Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

June 2, 2007

Wow. Talk about throwing her under the bus.

I love how they omitted that they PAY for their grandson's medical care based on

vaccines

causing his autism. (all biomedical including chelation)

But, then they state publicly that their views are different than their

daughter's?

, if you read this, I am sorry this happened. But, know also that you are

not alone.

Keep speaking out just as any good mother would do. This is YOUR child. I know

you love

your parents and I know they have done a lot for you. But, you need to keep

pushing. Not

for my sake or anyone else. Do it for your son.

Col

>

> http://www.autismspeaks.org/wrights_statement.php

> <http://www.autismspeaks.org/wrights_statement.php>

>

> Statement from Bob and Suzanne , Co-founders of Autism Speaks

>

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby was

> done without the knowledge or consent of Autism Speaks.

>

> Autism Speaks is committed to finding the causes of and a cure for

> autism. We are proud of our scientifically based research programs,

> including those established by NAAR and CAN, and will continue to pursue

> them. The members of our scientific advisory teams have impeccable

> credentials and we fully support them. There is no question that

> genetics plays the leading role in autism and that environmental

> triggers are key issues for many children. These areas, as well as

> biomedical treatments, need huge research support.

>

> Autism Speaks merged with NAAR because it believes in and supports its

> scientific mission, methods, and advisory board. We are proud of the

> accomplishments of NAAR and grateful to the families and volunteers who

> created it. They are a tremendously valued part of Autism Speaks. We

> welcome input from volunteers and parents/guardians of children with

> autism of all ages, including adults with autism. We apologize to our

> valued volunteers who were led to believe otherwise by our daughter's

> statement.

>

June 2, 2007

I feel REALLY badly for at the moment. Hope she knows that WE

support her FULLY, regardless of the politics. HANG IN THERE KATIE!

WE'RE ON YOUR SIDE AND YOU HAVE OUR FULL SUPPORT!

> >

> > http://www.autismspeaks.org/wrights_statement.php

> > <http://www.autismspeaks.org/wrights_statement.php>

> >

> > Statement from Bob and Suzanne , Co-founders of Autism

Speaks

> >

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect

the

> > ongoing mission of Autism Speaks. Her appearance with

Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

> > Autism Speaks is committed to finding the causes of and a cure

for

> > autism. We are proud of our scientifically based research

programs,

> > including those established by NAAR and CAN, and will continue

to

> pursue

> > them. The members of our scientific advisory teams have

impeccable

> > credentials and we fully support them. There is no question that

> > genetics plays the leading role in autism and that environmental

> > triggers are key issues for many children. These areas, as well

as

> > biomedical treatments, need huge research support.

> >

> > Autism Speaks merged with NAAR because it believes in and

supports

> its

> > scientific mission, methods, and advisory board. We are proud of

the

> > accomplishments of NAAR and grateful to the families and

volunteers

> who

> > created it. They are a tremendously valued part of Autism

Speaks. We

> > welcome input from volunteers and parents/guardians of children

with

> > autism of all ages, including adults with autism. We apologize

to

> our

> > valued volunteers who were led to believe otherwise by our

> daughter's

> > statement.

> >

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

June 2, 2007

Peereviewresearch writes:

Obviously the bias in this group is that the mercury preservative thatused to be in vaccines is the cause of autism. This despite the factthat studies of hundreds of thousands of children report otherwise.Even if the rest of the world bows to your bias, you've still got someexplaining to do regarding the constant stream of new cases of autismthat present each and every day.

---------------------------------------------------------------------------------------------------------------------

This "group" is not alone on the list of those who've "still got some explaining to do regarding the constant stream of new cases of autism that present each and every day".

Surely the "constant stream" is a cause for alarm, not a source of "comfort", especially to those who "peer-reviewed" research insists mercury is not the "link" this "group" suspects it is?

Perhaps you can provide your own "explanation" for the "constant stream of new cases" presenting each and every day?

In any event, I would like to know what "peer reviewed research" you have that sought to "identify" the cause of "autistic enterocolitis" that thousands of "regressed" children experience? Indeed, the "identification" of the "cause" for colitis in 3 year old children ought not be any more difficult to uncover than contaminated spinach or Taco Bell lettuce.

Do you know of ANY toxicological research studies COMPLETED that identified the "cause" of enterocolitis in autistic children?

See what's free at AOL.com.

June 2, 2007

Most here believe that autism is caused by environmental triggers

that effects kids with a genetic predisposition and part of the cure

is biomed.How does this differ from the majority views on this board?

" There is no question that

> > genetics plays the leading role in autism and that environmental

> > triggers are key issues for many children. These areas, as well as

> > biomedical treatments, need huge research support " .

Wow, sounds like crap really hit the fan at AS and Bob is doing some

damage control,there must be some folks at Naar really flipping out

over 's comments. you go girl!!!!!!!!!!

> >

> > http://www.autismspeaks.org/wrights_statement.php

> > <http://www.autismspeaks.org/wrights_statement.php>

> >

> > Statement from Bob and Suzanne , Co-founders of Autism

Speaks

> >

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect

the

> > ongoing mission of Autism Speaks. Her appearance with Kirby

was

> > done without the knowledge or consent of Autism Speaks.

> >

> > Autism Speaks is committed to finding the causes of and a cure for

> > autism. We are proud of our scientifically based research

programs,

> > including those established by NAAR and CAN, and will continue to

pursue

> > them. The members of our scientific advisory teams have impeccable

> > credentials and we fully support them. There is no question that

> > genetics plays the leading role in autism and that environmental

> > triggers are key issues for many children. These areas, as well as

> > biomedical treatments, need huge research support.

> >

> > Autism Speaks merged with NAAR because it believes in and

supports its

> > scientific mission, methods, and advisory board. We are proud of

the

> > accomplishments of NAAR and grateful to the families and

volunteers who

> > created it. They are a tremendously valued part of Autism Speaks.

We

> > welcome input from volunteers and parents/guardians of children

with

> > autism of all ages, including adults with autism. We apologize to

our

> > valued volunteers who were led to believe otherwise by our

daughter's

> > statement.

> >

>

June 2, 2007

The cure for autism can be found in the third aisle of the Home Depot center, amongst the circular saws.

Maybe that's what Bernie Marcus thinks.

Statement from Bob and Suzanne , Co-founders of Autism Speaks

http://www.autismspeaks.org/wrights_statement.php

Statement from Bob and Suzanne , Co-founders of Autism Speaks

is not a spokesperson for Autism Speaks. Our daughter's personal views differ from ours and do not represent or reflect the ongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks.

Autism Speaks is committed to finding the causes of and a cure for autism. We are proud of our scientifically based research programs, including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams have impeccable credentials and we fully support them. There is no question that genetics plays the leading role in autism and that environmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support.

Autism Speaks merged with NAAR because it believes in and supports its scientific mission, methods, and advisory board. We are proud of the accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part of Autism Speaks. We welcome input from volunteers and parents/guardians of children with autism of all ages, including adults with autism. We apologize to our valued volunteers who were led to believe otherwise by our daughter's statement.

June 2, 2007

Up is down!

is right (I don't even know what you call that written trick- homonyminum?).

This really isn't that hard. Unless you're vested.

Bernie, pass me that extension cord from aisle 4.

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

Eegads, is an adult and has every right to speak her own mind. Her parents do not speak for her! Let's not put any words into her mouth until she speaks them!!

Aasa

P.S., I find it difficult to believe that her parents are utterring the words that they are, supposedly,....martinx2us <martyx2rcn> wrote:

http://www.autismspeaks.org/wrights_statement.php

Statement from Bob and Suzanne , Co-founders of Autism Speaks

is not a spokesperson for Autism Speaks. Our daughter's personal views differ from ours and do not represent or reflect the ongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks.

Autism Speaks is committed to finding the causes of and a cure for autism. We are proud of our scientifically based research programs, including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams have impeccable credentials and we fully support them. There is no question that genetics plays the leading role in autism and that environmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support.

Autism Speaks merged with NAAR because it believes in and supports its scientific mission, methods, and advisory board. We are proud of the accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part of Autism Speaks. We welcome input from volunteers and parents/guardians of children with autism of all ages, including adults with autism. We apologize to our valued volunteers who were led to believe otherwise by our daughter's statement.

June 2, 2007

Watch what they do- don't listen necessarily to what they say.

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

I am incredibly shocked to hear such words from katie's parents. I was under the impression from her interview that her parents were on board with her views and just laying low until some of the contractual obligations with NAAR and others have past.VERY disappointing.>> > http://www.autismspeaks.org/wrights_statement.php> <http://www.autismspeaks.org/wrights_statement.php>> > > > Statement from Bob and Suzanne , Co-founders of Autism Speaks> > > > > > is not a spokesperson for Autism Speaks. Our daughter's> personal views differ from ours and do not represent or reflect the> ongoing mission of Autism Speaks. Her appearance with Kirby was> done without the knowledge or consent of Autism Speaks.> > > > Autism Speaks is committed to finding the causes of and a cure for> autism. We are proud of our scientifically based research programs,> including those established by NAAR and CAN, and will continue to pursue> them. The members of our scientific advisory teams have impeccable> credentials and we fully support them. There is no question that> genetics plays the leading role in autism and that environmental> triggers are key issues for many children. These areas, as well as> biomedical treatments, need huge research support.> > > > Autism Speaks merged with NAAR because it believes in and supports its> scientific mission, methods, and advisory board. We are proud of the> accomplishments of NAAR and grateful to the families and volunteers who> created it. They are a tremendously valued part of Autism Speaks. We> welcome input from volunteers and parents/guardians of children with> autism of all ages, including adults with autism. We apologize to our> valued volunteers who were led to believe otherwise by our daughter's> statement.>

June 2, 2007

I'm not buying this- just yet.

Bob cut his teeth in the cutthroat television media market. He attained great status. This man knows how to play.

You fake right to go left and then run downfield.

Autism Speak is designed as a Trojan Horse. But if you minimize the damage from Autism Speaks Trojan Horse as you make changes, that may be as good as you can do.

Just a thought.

Re: Statement from Boband Suzanne , Co-founders of Autism Speaks

I honestly feel bad for for how she must be feeling right now. I cannot imagine a parent treating their daughter so badly. For not believing in her. She said nothing but good things about them and look what they are doing to her. Wow. Just when I thought (again) that AS just could possibly be the answer to our prayers...It's really sad.> >> > > > http://www.autismspeaks.org/wrights_statement.php> > <http://www.autismspeaks.org/wrights_statement.php>> > > > > > > > Statement from Bob and Suzanne , Co-founders of Autism Speaks> > > > > > > > > > > > is not a spokesperson for Autism Speaks. Our daughter's> > personal views differ from ours and do not represent or reflect the> > ongoing mission of Autism Speaks. Her appearance with Kirby > was> > done without the knowledge or consent of Autism Speaks.> > > > > > > > Autism Speaks is committed to finding the causes of and a cure for> > autism. We are proud of our scientifically based research programs,> > including those established by NAAR and CAN, and will continue to > pursue> > them. The members of our scientific advisory teams have impeccable> > credentials and we fully support them. There is no question that> > genetics plays the leading role in autism and that environmental> > triggers are key issues for many children. These areas, as well as> > biomedical treatments, need huge research support.> > > > > > > > Autism Speaks merged with NAAR because it believes in and supports > its> > scientific mission, methods, and advisory board. We are proud of the> > accomplishments of NAAR and grateful to the families and volunteers > who> > created it. They are a tremendously valued part of Autism Speaks. We> > welcome input from volunteers and parents/guardians of children with> > autism of all ages, including adults with autism. We apologize to > our> > valued volunteers who were led to believe otherwise by our > daughter's> > statement.> >> > > > > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.>

June 2, 2007

does anyone have the link to the interview-I couldn't get the the first time around on my computer, but i want to try it again. Could someone pass along the Kirby- link again? thanks. maurine <rng777@...> wrote: Most here believe that autism is caused by environmental triggers that effects kids with a genetic predisposition and part of the cure is biomed.How does this differ from the majority views on this board?"There is no question that> > genetics plays the leading role in

autism and that environmental> > triggers are key issues for many children. These areas, as well as> > biomedical treatments, need huge research support".Wow, sounds like crap really hit the fan at AS and Bob is doing some damage control,there must be some folks at Naar really flipping out over 's comments. you go girl!!!!!!!!!!> >> > > > http://www.autismspeaks.org/wrights_statement.php> > <http://www.autismspeaks.org/wrights_statement.php>> > > > > > > > Statement from Bob and Suzanne , Co-founders of Autism Speaks> > > > > > > > > > > > is not a spokesperson for

Autism Speaks. Our daughter's> > personal views differ from ours and do not represent or reflect the> > ongoing mission of Autism Speaks. Her appearance with Kirby was> > done without the knowledge or consent of Autism Speaks.> > > > > > > > Autism Speaks is committed to finding the causes of and a cure for> > autism. We are proud of our scientifically based research programs,> > including those established by NAAR and CAN, and will continue to pursue> > them. The members of our scientific advisory teams have impeccable> > credentials and we fully support them. There is no question that> > genetics plays the leading role in autism and that environmental> > triggers are key issues for many children. These areas, as well as> > biomedical treatments, need huge research support.> > > > >

> > > Autism Speaks merged with NAAR because it believes in and supports its> > scientific mission, methods, and advisory board. We are proud of the> > accomplishments of NAAR and grateful to the families and volunteers who> > created it. They are a tremendously valued part of Autism Speaks. We> > welcome input from volunteers and parents/guardians of children with> > autism of all ages, including adults with autism. We apologize to our> > valued volunteers who were led to believe otherwise by our daughter's> > statement.> >>

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

June 2, 2007

I dont know but I always thought the older generation doggedly sticks to their beliefs and mindsets ,it is much harder for them to change their points of view, especially when they have spent a lifetime getting to a certain position of power .

There are so many examples of families being split up over unmoveable points of view.

I think our society is going through major paradigm changing times and familly ties may not be strong enough at this point.

Ange

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

Eegads, is an adult and has every right to speak her own mind. Her parents do not speak for her! Let's not put any words into her mouth until she speaks them!!

Aasa

P.S., I find it difficult to believe that her parents are utterring the words that they are, supposedly,....martinx2us <martyx2rcn> wrote:

http://www.autismspeaks.org/wrights_statement.php

Statement from Bob and Suzanne , Co-founders of Autism Speaks

is not a spokesperson for Autism Speaks. Our daughter's personal views differ from ours and do not represent or reflect the ongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks.

Autism Speaks is committed to finding the causes of and a cure for autism. We are proud of our scientifically based research programs, including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams have impeccable credentials and we fully support them. There is no question that genetics plays the leading role in autism and that environmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support.

Autism Speaks merged with NAAR because it believes in and supports its scientific mission, methods, and advisory board. We are proud of the accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part of Autism Speaks. We welcome input from volunteers and parents/guardians of children with autism of all ages, including adults with autism. We apologize to our valued volunteers who were led to believe otherwise by our daughter's statement.

June 2, 2007

This might also be true, but i think politics plays an equally important role in this(big pharma linked to AS).max walker <max.walker@...> wrote: I dont know but I always thought the older generation doggedly sticks to their beliefs and mindsets ,it is much harder for them to change their points of view, especially when they have spent a lifetime getting to a certain position of power . There

are so many examples of families being split up over unmoveable points of view. I think our society is going through major paradigm changing times and familly ties may not be strong enough at this point. Ange Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks Eegads, is an adult and has every right to speak her own mind. Her parents do not speak for her! Let's not put any words into her mouth until she speaks them!! Aasa P.S., I find it difficult to believe that her parents are utterring the words that they are, supposedly,....martinx2us <martyx2rcn> wrote: http://www.autismspeaks.org/wrights_statement.php Statement from Bob and Suzanne , Co-founders of Autism Speaks is not a spokesperson for Autism Speaks. Our daughter's personal views differ from ours and do not represent or reflect the ongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks. Autism Speaks is committed to finding the causes of and a cure for autism. We are proud of our scientifically based research programs, including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams have impeccable credentials and we fully support them. There is no question that genetics plays the leading role in autism and that environmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support. Autism Speaks merged with NAAR because it believes in and supports its scientific mission, methods, and advisory board. We are proud of the accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part of Autism Speaks. We welcome input from

volunteers and parents/guardians of children with autism of all ages, including adults with autism. We apologize to our valued volunteers who were led to believe otherwise by our daughter's statement.

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

June 2, 2007

The basic problem is that the combined expertise of NAAR (genetics and psychiatric disciplines) is completely ill-suited for either understanding the etiology of the autism epidemic or providing anything other than a red herring non-solution to same. If western blot analysis of gene sequences combined with the administration of psychotropics was anything other than a completely misguided approach to this problem, we would see some progress. Instead we get "which way did he go, ?" type research that is either completely off the mark because of the inherent bias of the researchers or is designed to mislead because of liability concerns of the grant benefactors. In addition, we get "autism- the great mystery- this is all just so complex" pieces of tripe from a clueless media.

I believe that they initially misled because they simply didn't know and were wrong- but the initial approach represented the best guess/analysis from a completely ill-suited (to the specific problem) group of professionals. This has been going on since Kanner's original research. The basic problem starts out with Kanner being completely ill-suited to analyze what was going on because the inherent bias of his background led all of us down the red herring path. Initially, we blamed Frigidaire.

Now, however, I believe that they mislead because they are concerned that they will be shown to be the fools that we know that they are. It's a primary reason why we can't get most in this debate to change and correct. Those who initiated the debate are too vested. They know they are wrong and they are frightened. They act like caged animals because, in a way, they are. If truth sets you free, then maybe we can understand what kind of a cage they are in. It's historical and the truth exposes the experts for what they have been for more than 60 years- basically, wrong-headed.

Given the nature of most organizations, especially establishment organizations, to display paralysis in action, especially where, as here, history shows the initial approach to be wrongheaded and, in primary measure, counterproductive, it is not a surprise that Autism Speaks, as the establishment organization, would carry all of the historical baggage and refuse to adapt quickly to a rapidly changing analysis.

This group has the advantage of instantaneous flip-flopping/correction to accommodate changing facts on the ground.

Autism Speaks just runs into icebergs.

Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks

Most here believe that autism is caused by environmental triggers that effects kids with a genetic predisposition and part of the cure is biomed.How does this differ from the majority views on this board?"There is no question that> > genetics plays the leading role in autism and that environmental> > triggers are key issues for many children. These areas, as well as> > biomedical treatments, need huge research support".Wow, sounds like crap really hit the fan at AS and Bob is doing some damage control,there must be some folks at Naar really flipping out over 's comments. you go girl!!!!!!!!!!> >> > > > http://www.autismspeaks.org/wrights_statement.php> > <http://www.autismspeaks.org/wrights_statement.php>> > > > > > > > Statement from Bob and Suzanne , Co-founders of Autism Speaks> > > > > > > > > > > > is not a spokesperson for Autism Speaks. Our daughter's> > personal views differ from ours and do not represent or reflect the> > ongoing mission of Autism Speaks. Her appearance with Kirby was> > done without the knowledge or consent of Autism Speaks.> > > > > > > > Autism Speaks is committed to finding the causes of and a cure for> > autism. We are proud of our scientifically based research programs,> > including those established by NAAR and CAN, and will continue to pursue> > them. The members of our scientific advisory teams have impeccable> > credentials and we fully support them. There is no question that> > genetics plays the leading role in autism and that environmental> > triggers are key issues for many children. These areas, as well as> > biomedical treatments, need huge research support.> > > > > > > > Autism Speaks merged with NAAR because it believes in and supports its> > scientific mission, methods, and advisory board. We are proud of the> > accomplishments of NAAR and grateful to the families and volunteers who> > created it. They are a tremendously valued part of Autism Speaks. We> > welcome input from volunteers and parents/guardians of children with> > autism of all ages, including adults with autism. We apologize to our> > valued volunteers who were led to believe otherwise by our daughter's> > statement.> >>

June 2, 2007

This is just odd. If 's parents are not following their

daughters lead, the mother of an autistic child, the caregiver of the

child that knows what is best for her child, why did Bob even start

Autism Speaks? Maybe it is like said on the Kirby interview

that it's the board of directors that steers the good ship AS and not

Bob himself.

>

> http://www.autismspeaks.org/wrights_statement.php

> <http://www.autismspeaks.org/wrights_statement.php>

>

> Statement from Bob and Suzanne , Co-founders of Autism Speaks

>

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby

was

> done without the knowledge or consent of Autism Speaks.

>

> Autism Speaks is committed to finding the causes of and a cure for

> autism. We are proud of our scientifically based research programs,

> including those established by NAAR and CAN, and will continue to

pursue

> them. The members of our scientific advisory teams have impeccable

> credentials and we fully support them. There is no question that

> genetics plays the leading role in autism and that environmental

> triggers are key issues for many children. These areas, as well as

> biomedical treatments, need huge research support.

>

> Autism Speaks merged with NAAR because it believes in and supports

its

> scientific mission, methods, and advisory board. We are proud of the

> accomplishments of NAAR and grateful to the families and volunteers

who

> created it. They are a tremendously valued part of Autism Speaks. We

> welcome input from volunteers and parents/guardians of children with

> autism of all ages, including adults with autism. We apologize to

our

> valued volunteers who were led to believe otherwise by our

daughter's

> statement.

>

June 2, 2007

I’m not buying it yet either.

Suzanne entirely believes the environmental cause NEEDS to be found, I watched

her speak about it. They have to have gotten a ton of flack from the

current board members and had to do some damage control. Her father is most likely

playing some political maneuver. But that does not lessen the pain

must be feeling for her parents to publicly voice there disregard of her entire

position on Autism. Something is not right. -

From: EOHarm [mailto:EOHarm ] On Behalf Of hcoleman

Sent: Saturday, June 02, 2007 7:07

AM

EOHarm

Subject: Re: Re:

Statement from Bob and Suzanne , Co-founders of Autism Speaks

I'm not buying this- just yet.

Bob cut his teeth in the cutthroat television media

market. He attained great status. This man knows how to play.

You fake right to go left and then run downfield.

Autism Speak is designed as a Trojan Horse. But if you

minimize the damage from Autism Speaks Trojan Horse as you make changes, that

may be as good as you can do.

Just a thought.

Re:

Statement from Boband Suzanne , Co-founders of Autism Speaks

I honestly feel bad for for how she must be

feeling right

now. I cannot imagine a parent treating their daughter so badly.

For not believing in her. She said nothing but good things about

them and look what they are doing to her. Wow. Just when I thought

(again) that AS just could possibly be the answer to our prayers...

It's really sad.

> >

> > http://www.autismspeaks.org/wrights_statement.php

> > <http://www.autismspeaks.org/wrights_statement.php>

> >

> > Statement from Bob and Suzanne , Co-founders of Autism

Speaks

> >

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect

the

> > ongoing mission of Autism Speaks. Her appearance with

Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

> > Autism Speaks is committed to finding the causes of and a cure

for

> > autism. We are proud of our scientifically based research

programs,

> > including those established by NAAR and CAN, and will continue

to

> pursue

> > them. The members of our scientific advisory teams have

impeccable

> > credentials and we fully support them. There is no question that

> > genetics plays the leading role in autism and that environmental

> > triggers are key issues for many children. These areas, as well

as

> > biomedical treatments, need huge research support.

> >

> > Autism Speaks merged with NAAR because it believes in and

supports

> its

> > scientific mission, methods, and advisory board. We are proud

of the

> > accomplishments of NAAR and grateful to the families and

volunteers

> who

> > created it. They are a tremendously valued part of Autism

Speaks. We

> > welcome input from volunteers and parents/guardians of children

with

> > autism of all ages, including adults with autism. We apologize

to

> our

> > valued volunteers who were led to believe otherwise by our

> daughter's

> > statement.

> >

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

June 2, 2007

This might also be true, but i think politics plays an equally important role in this(big pharma linked to AS).max walker <max.walker@...> wrote: I dont know but I always thought the older generation doggedly sticks to their beliefs and mindsets ,it is much harder for them to change their points of view, especially when they have spent a lifetime getting to a certain position of power . There are so many examples of families being split up over unmoveable points of view. I think our society is going through major paradigm changing times and familly ties may not be strong enough at this point. Ange Re: Statement from Bob and Suzanne , Co-founders of Autism Speaks Eegads, is an adult and has every right to speak her own mind. Her parents do not speak for her! Let's not put any words into her mouth until she speaks them!! Aasa P.S., I find it difficult to believe that her parents are utterring the words that they are, supposedly,....martinx2us <martyx2rcn> wrote: http://www.autismspeaks.org/wrights_statement.php Statement from Bob and Suzanne , Co-founders of Autism Speaks is not a spokesperson for Autism Speaks. Our daughter's personal views differ from ours and do not represent or reflect the ongoing mission of Autism Speaks. Her appearance with Kirby was done without the knowledge or consent of Autism Speaks. Autism Speaks is committed to finding the causes of and a cure for autism. We are proud of our scientifically based research programs, including those established by NAAR and CAN, and will continue to pursue them. The members of our scientific advisory teams have impeccable credentials and we fully support them. There is no question that genetics plays the leading role in autism and that environmental triggers are key issues for many children. These areas, as well as biomedical treatments, need huge research support. Autism Speaks merged with NAAR because it believes in and supports its scientific mission, methods, and advisory board. We are proud of the accomplishments of NAAR and grateful to the families and volunteers who created it. They are a tremendously valued part of Autism Speaks. We welcome input from

volunteers and parents/guardians of children with autism of all ages, including adults with autism. We apologize to our valued volunteers who were led to believe otherwise by our daughter's statement.

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

June 2, 2007

>

> The basic problem is that the combined expertise of NAAR (genetics

and psychiatric disciplines) is completely ill-suited for either

understanding the etiology of the autism epidemic or providing

anything other than a red herring non-solution to same.

Perhaps you haven't reviewed the qualifications of their scientific

advisory board? See

http://www.autismspeaks.org/science/boards/index.php . Their

backgrounds include epidemiology, child neurology/development,

anatomy, etc.

>If western blot analysis of gene sequences combined with the

administration of psychotropics was anything other than a completely

misguided approach to this problem, we would see some progress.

Perhaps you haven't reviewed where the AS research dollars are

directed: http://www.autismspeaks.org/science/programs/index.php

>Instead we get " which way did he go, ? " type research that is

either completely off the mark because of the inherent bias of the

researchers or is designed to mislead because of liability concerns of

the grant benefactors.

Obviously the bias in this group is that the mercury preservative that

used to be in vaccines is the cause of autism. This despite the fact

that studies of hundreds of thousands of children report otherwise.

Even if the rest of the world bows to your bias, you've still got some

explaining to do regarding the constant stream of new cases of autism

that present each and every day.

> I believe that they initially misled because they simply didn't know

and were wrong- but the initial approach represented the best

guess/analysis from a completely ill-suited (to the specific problem)

group of professionals.

> This has been going on since Kanner's original research. The basic

problem starts out with Kanner being completely ill-suited to analyze

what was going on because the inherent bias of his background led all

of us down the red herring path. Initially, we blamed Frigidaire.

You describe the process of directing research funding as a blind,

nearly random, shot in the dark. While this may be the case in other

autism organizations, it is not the case in either AS, nor was it the

case in NAAR. Both organizations have nationally distinguished

physicians and scientists *volunteering* hundreds of hours to review

research proposals from all over the world. Each proposal is carefully

scrutinized and evaluated before the money is awarded--contrary to

your descripton.

June 2, 2007

>

> Given the nature of most organizations, especially establishment

organizations, to display paralysis in action, especially where, as

here, history shows the initial approach to be wrongheaded and, in

primary measure, counterproductive, it is not a surprise that Autism

Speaks, as the establishment organization, would carry all of the

historical baggage and refuse to adapt quickly to a rapidly changing

analysis.

>

> This group has the advantage of instantaneous

flip-flopping/correction to accommodate changing facts on the ground.

>

> Autism Speaks just runs into icebergs.

If you or Kirby or DAN/EOH are so clear on the etiology and

treatment of autism, is there something or someone that prevents you

from raising money to do the research?

I believe that's how NAAR began in the first place--there was no other

group dedicated to raising funds for *scientifically* directed autism

research. NAAR didn't disparage other autism groups--they went out,

raised the money and spent it as their scientific board directed.

Why don't you, DAN and Kirby do the same for " bio-medical "

autism research? Why hasn't Mr. Kirby donated the proceeds of his book

towards such a cause? Certainly even DAN doctors alone, with their

very generous billing practices, ought to be able to fund plenty of

research and treatment studies. Why aren't the EOH bloggers out

raising money to support this cause which they so passionately believe

in rather than continually disparaging other parents and scientists

who have chosen to work to support scientifically-based autism research?

Or has the " big pharma " /CDC/NIH conspiracy stymied all of your efforts?

June 2, 2007

“Obviously the bias in this

group is that the mercury preservative that

used to be in vaccines is the cause of autism.”

You’re joking right?? Just last

night on the news they talked about how the flu shot is helpful to the fetus.

Over 90% of which still contain the full dose of mercury. Also, mercury is

still in most of these shots in smaller amounts. Added with the yearly flu

shot started in pregnancy and then again at 6 months after every year after. We

all read the Ghion safety data sheet on thimerosal which explicitly states

should NOT be given to pregnant women. Mercury is toxic and apologizing for it

at this point with all of the biological science and how toxic our kids are is immoral.

-

From: EOHarm [mailto:EOHarm ] On Behalf Of peerreviewresearch

Sent: Saturday, June 02, 2007 8:26

AM

EOHarm

Subject: Re: Statement

from Bob and Suzanne , Co-founders of Autism Speaks

>

> The basic problem is that the combined expertise of NAAR (genetics

and psychiatric disciplines) is completely ill-suited for either

understanding the etiology of the autism epidemic or providing

anything other than a red herring non-solution to same.

Perhaps you haven't reviewed the qualifications of their scientific

advisory board? See

http://www.autismspeaks.org/science/boards/index.php

.. Their

backgrounds include epidemiology, child neurology/development,

anatomy, etc.

>If western blot analysis of gene sequences combined with the

administration of psychotropics was anything other than a completely

misguided approach to this problem, we would see some progress.

Perhaps you haven't reviewed where the AS research dollars are

directed: http://www.autismspeaks.org/science/programs/index.php

>Instead we get " which way did he go, ? " type research that

is