Re: Senate Appropriations - You must call the committee

[Guest guest]

That's why you call them with a serious, whole-hearted request to

suspend the appropriations committee hearing until the autism treatment

parents are included. That's why you call Tom Harkin, U.S. Senator

and inform his staff that we're boxed out.

I can't believe that A-Champ would be sitting around twittling their

thumbs trying to figure out what to do even on short notice. Just

remember our kids are not behind the eight ball AS is.

They are pretty good about coming across like Bartles and cut-

outs because they plan their work then work their plan, but we're

pretty good doing things at the computer in our underwear. Imus is

canned. We made sure that people have a chance to understand why.

If A-Champ is willing to peck out a URGENT press release I think a

few of us know what to do with it. Fox News, CBS News, CNN, etc. U.S.

Senate APCOM.

A-Champ needs to back up our calls with " on the record " proof that we

have been shut out. This has to go beyond " rumor " . We need to be able

to tell our allies that APCOM had no excuse to play dumb.

>

>

>

>

>

>

>

> --- I just called Sen Harkin'soffice. I got a message as the

office is

> closed, but I left my name and City. I thanked him for

including A-

> Champ in the Senate Appropriations Committee Meeting.

>

> Sorry I got home too late to make anymore calls....

>

> Trish

>

[Guest guest]

Just so it is clear, after Sen. Harkin's office received phone calls,

especially from A-Champ members from Iowa, a staffperson did contact us

this morning and invited us to submit written testimony. To restate

what I said earlier, we have always had a good rapport with Sen. Harkin

and his staff and we have great respect for the Senator.

We learned of the hearing only on Thursday afternoon and that was

through one of our Texas members. When we first contacted the committee

we did not get any return calls. The committee posted the witness list

on Friday although a receptionist did give me the list before it was

posted on Friday.

When we contacted many organizations about the first Senate Autism

hearing in years none of them knew about this hearing, which gave us

serious concern. It was only when we encouraged parent to call did we

get a response. It was discouraging to see a Senate hearing after we

have been asking for hearings for years, and to see one organization

and the CDC/NIH as the only witnesses. Now apparently one parent from

ASA has been and we expect that as a parent she will drive home the

point about the difficulty of obtaining services.

The point that we believe is important is that the autism community as

a whole appeared to be excluded from the hearing. When we raised our

voices there was a response. We have been advised that Sen. Harkin

wants information about autism and we have asked for additional

hearings with adequate notice to allow us to participate meaningfully.

Sen. Harkin has always been fairminded but sometimes we need to raise

our voices to be heard if others claim to represent the community.

One more point. It was suggested by someone, not on this list, that

somehow we were maligning Bradley Whitford, the celebrity spokesperson

for autism Speaks. This is not the case. We made no comment about Mr.

Whitford and would not say anything negative about him. Mr. Whitford is

not the issue. Certainly, his intention is to promote the cause of

helping children with autism.

Bob Krakow

On Apr 16, 2007, at 7:56 PM, Trish wrote:

> Yeah, bummer.... I didn't realize that A-Champ was not notified in a

> timely fashion...or at all. I only hope that this flooding of calls

> makes some kind of an impact....

>

> -Trish

>

>

> >

> > You guys understand that the A-Champ people live 6-8 hrs from DC and

> cannot

> > just leave in the morning to be there ontime....

> >

> >

> >

>

>

J. Krakow

Attorney At Law

2001 Marcus Avenue, Suite N125

Lake Success, New York 11042

(516) 354-3300

(646) 349-1771 (fax)

(212) 227-0600 (NYC telephone)

[Guest guest]

Lets be clear about Senator Harkin...really He takes lots of money from big

pharma

and lots of money from PACs funded heavily by GE. He has been deeply vested

with GE

politically for a long time. This is also a senator that refused to sign onto

Chuck Hagels bill

to remove mercury from vaccines. He is a career politician, that in itself

makes him

corrupt(sorry if you don't like that cold reality). Here is a glimpse into his

2006 cycle. I

took the pharma stuff only. Do you really think he will do the right thing?

Did he do the

right thing with the appropriations meeting or did he just do the WRIGHT thing.

That said, we have no choice but to work with him.

Contributor Name Employer Occupation State Zip Code Business

Records Amount

PFIZER NY 10017 Pharmaceutical manufacturing

90 $52,750

ELI LILLY IN 46285 Pharmaceutical manufacturing

12 $15,500

GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing

18 $12,050

WYETH PHARMACEUTICALS NJ 07940 Pharmaceutical manufacturing

22 $8,600

GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing

14 $7,450

GLAXOSMITHKLINE DC 20005 Pharmaceutical manufacturing

8 $4,350

SCHERING PLOUGH DC 20036 Pharmaceutical manufacturing

7 $3,500

HOFFMAN-LAROCHE/HLR NJ 07110 Pharmaceutical manufacturing

9 $2,000

HOFFMAN LAROCHE/HLR NJ 07110 Pharmaceutical manufacturing

7 $1,500

GLAXOSMITHKLINE Pharmaceutical manufacturing

1 $1,000

GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing

2 $1,000

MERCK & CO DC 20004 Pharmaceutical manufacturing

5 $950

MERCK & CO PA 19486 Pharmaceutical manufacturing

4 $800

GLAXOSMITHKLINE IA 27709 Pharmaceutical manufacturing

1 $750

GLAXOSMITHKLINE IA 50312 Pharmaceutical manufacturing

1 $750

PFIZER NY 10017 Pharmaceutical manufacturing

1 $500

GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing

1 $500

SCHERING PLOUGH Pharmaceutical manufacturing

1 $500

MEDIMMUNE INC MD 20878 Pharmaceutical manufacturing

2 $300

PFIZER NY 10017 Pharmaceutical manufacturing

1 $200

> > >

> > > You guys understand that the A-Champ people live 6-8 hrs from DC and

> > cannot

> > > just leave in the morning to be there ontime....

> > >

> > >

> > >

> >

> >

> J. Krakow

> Attorney At Law

> 2001 Marcus Avenue, Suite N125

> Lake Success, New York 11042

> (516) 354-3300

> (646) 349-1771 (fax)

> (212) 227-0600 (NYC telephone)

>

[Guest guest]

Please forgive me if this is a dumb question, but how does or could tomorrow's (probably today's by now) Senate Appropriation Hearing coincide, interface with, or impact upon the IOM workshop which is slated to occur on April 18th, regarding Autism and the Environment? Don't tell me that these two events are occurring in isolation of each other! Right now, these 2 events are upcoming within the next few days, yet I see no-one making connections between the two, if indeed there are any connections to be drawn or made. If any of you have the time, please visit the IOM link that I sent to this list group yesterday (or the day before, since it's after midnight now). If what is going on there is separate from the Senate hearings, some folks ought to lend an ear there also, to make sure that you and your children are not left out of the loop. Aasa Aasaahs10402

<allprint@...> wrote: Lets be clear about Senator Harkin...really He takes lots of money from big pharmaand lots of money from PACs funded heavily by GE. He has been deeply vested with GE politically for a long time. This is also a senator that refused to sign onto Chuck Hagels bill to remove mercury from vaccines. He is a career politician, that in itself makes him corrupt(sorry if you don't like that cold reality). Here is a glimpse into his 2006 cycle. I took the pharma stuff only. Do you really think

he will do the right thing? Did he do the right thing with the appropriations meeting or did he just do the WRIGHT thing. That said, we have no choice but to work with him. Contributor Name Employer Occupation State Zip Code BusinessRecords AmountPFIZER NY 10017 Pharmaceutical manufacturing90 $52,750ELI LILLY IN 46285 Pharmaceutical manufacturing12 $15,500GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing18 $12,050WYETH PHARMACEUTICALS NJ 07940 Pharmaceutical manufacturing22 $8,600GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing14 $7,450GLAXOSMITHKLINE DC 20005 Pharmaceutical manufacturing8 $4,350SCHERING PLOUGH DC 20036 Pharmaceutical manufacturing7 $3,500HOFFMAN-LAROCHE/HLR NJ 07110 Pharmaceutical manufacturing9 $2,000HOFFMAN LAROCHE/HLR NJ 07110 Pharmaceutical manufacturing7 $1,500GLAXOSMITHKLINE Pharmaceutical manufacturing1 $1,000GLAXOSMITHKLINE NC

27709 Pharmaceutical manufacturing2 $1,000MERCK & CO DC 20004 Pharmaceutical manufacturing5 $950MERCK & CO PA 19486 Pharmaceutical manufacturing4 $800GLAXOSMITHKLINE IA 27709 Pharmaceutical manufacturing1 $750GLAXOSMITHKLINE IA 50312 Pharmaceutical manufacturing1 $750PFIZER NY 10017 Pharmaceutical manufacturing1 $500GLAXOSMITHKLINE NC 27709 Pharmaceutical manufacturing1 $500SCHERING PLOUGH Pharmaceutical manufacturing1 $500MEDIMMUNE INC MD 20878 Pharmaceutical manufacturing2 $300PFIZER NY 10017 Pharmaceutical manufacturing1 $200> > >> > > You guys understand that the A-Champ people live 6-8 hrs from DC and> > cannot> > > just leave in the morning to be there ontime....> > >> > > > > >> >> > > J. Krakow> Attorney At Law> 2001 Marcus

Avenue, Suite N125> Lake Success, New York 11042> (516) 354-3300> (646) 349-1771 (fax)> (212) 227-0600 (NYC telephone)>

[Guest guest]

So, are we still calling anyone today about anything? Is it too late?

Thanks,

>

> Not a dumb question.  The thing is, we don’t know what will be

> discussed.  The agenda could be anything frankly.  It could be

about

> the legislation they will announce at the 10am press conference

where

> they are asking for $350Million, that I never heard of before last

> night.  It could be a surrender for the IOM. No idea.

>

[Guest guest]

If you didn’t call all the people

on the list yesterday, keep calling.  If you did call them all already, call

back the head guys, Harkin and Specter, and ask them to ask questions of the

panels for you.  And ask them to call AChamp to testify.  I will be there to do

it if they call on us.    we don’t want to be relegated to just

submitted written testimony after the fact. 

From: EOHarm [mailto:EOHarm ] On Behalf Of andrea52521991

Sent: Tuesday, April 17, 2007 8:16

AM

EOHarm

Subject: Re: Senate

Appropriations - You must call the committee

So, are we still calling anyone today about anything?

Is it too late?

Thanks,

>

> Not a dumb question. The thing is, we don’t know what

will be

> discussed. The agenda could be anything frankly. It could be

about

> the legislation they will announce at the 10am press conference

where

> they are asking for $350Million, that I never heard of before last

> night. It could be a surrender for the IOM. No idea.

>

[Guest guest]

Yes, continue to call throughout the day and beyond. We cannot afford for

anyone to be

complacent and be sitting on their ass the next couple days or telling war

stories on this

list. Call all the members on the committee and plead your case for them to

consider the

other organizations and science. All we can do at this point is persuade them

to listen to

people other than the small hand picked panel. If you are a constituent of any

of these

senators you can likely get better access to speak with someone. If we cannot

ring their

phones consistently to protest the limited panel of this appropriations meeting

than we

really have nothing to complain about. You folks who never call really need to

step up

now.

> >

> > Not a dumb question.  The thing is, we don’t know what will be

> > discussed.  The agenda could be anything frankly.  It could be

> about

> > the legislation they will announce at the 10am press conference

> where

> > they are asking for $350Million, that I never heard of before last

> > night.  It could be a surrender for the IOM. No idea.

> >

>

[Guest guest]

What questions is everyone else asking for? I think we'd have more

impact if we were asking for the same things.

> >

> > Not a dumb question. The thing is, we don’t know what

will be

> > discussed. The agenda could be anything frankly. It could be

> about

> > the legislation they will announce at the 10am press conference

> where

> > they are asking for $350Million, that I never heard of before last

> > night. It could be a surrender for the IOM. No idea.

> >

>