Request for information

[Guest guest]

At 05:37 PM 4/28/2003 -0600, you wrote:

>My question to the list: Do any of you know of other children with Downs

>who have experienced such early decline/regression (ie: beginning circa

>age 5/6 to 8/9 or before age 20)? There are at least two other cases as

>noted in a search and respond section of the Exceptional Parent site.

> I'd love to hear of any others. Since autistic features are so

>prominent in my son's case, and in at least one of the other cases from

>Exceptional Parent, I thought this might be a useful forum in which to

>post the question.

HI Donna:

Regression is one of the symptoms that should lead folks to a diagnosis of

autism--IF all other medical issues are not present. Sometimes unresolved

medical issues that cause recurrent pain (such as reflux disease, celiac

disease) can also cause regression. So hyou want to make sure your child

has a head-to-toe physical.

The good news is, if your child has experienced a regressiobn of skills

that is related to autism, it's not permanent. Things change and are

different, but your child will still learn. He may not regain exactly what

he lost, but he might regain the same outcome with a different skill. Our

son lost signs, for instance, and the few word approximations that he had.

But he has gained communication using other methods.

What's important is to find the most appropriate and effective teaching

strategies for your son, based on how he learns (which you learn by what he

responds to). He will learn. I promise.

It is hard to see them lose skills. Do not let anyone tell you it's because

he has alzheimer's disease or something at age 8 or 9! That's just

completely inappropriate.

Make sure he is healthy, though, as chronic pain does cause folks to

withdraw and regress and not want to engage and not learn.

Take care,

joan

[Guest guest]

> Hi. I agree with Joan. Have a complete physical done if you

haven't already. I was SURE had autism too, but it turned out

a few other things. She was diagnosed with Grave's Disease

(hyperthyriodism) which was causing a ton of stuff going on within

her little body! Also, she has sensory problems that are now being

dealt with. She hardly has any autistic tendencies anymore. Still

shakes a book or toy and hums alot, but her communication is great!

She is in a regular Kinder. classroom and follows the routine with

the others. She came home yesterday and pulled a paper out of her

backpack and counted the frogs to 6 with out any help at all!!!!

Good luck to you. This group is great!!

mom to 7 DS and two others

Hello,

>

> I have a son, now 13, with Downs Syndrome. Until he was 6 or 7 he

was

> developing at an okay rate for a child with Downs. Then he began to

have

> what his aide and myself would call " grey " days that became more

and

> more frequent. He stopped progressing academically and autistic

> behaviours developed to the point where these are now his

predominant

> feature. In the last three years he has lost almost all academic

skills

> and most of his language although he will still sign with

prompting.

> Numerous tests and consultations have yielded nothing to account

for the

> regression. After reading about autism and alternative approaches

to

> treatment I put him on a gluten, dairy and corn free diet with some

> success in at least reducing some of the autistic behaviours. His

sleep

> patterns have also improved. I'm not sure though if the regression

has

> stopped.

>

> My question to the list: Do any of you know of other children with

Downs

> who have experienced such early decline/regression (ie: beginning

circa

> age 5/6 to 8/9 or before age 20)? There are at least two other

cases as

> noted in a search and respond section of the Exceptional Parent

site.

> I'd love to hear of any others. Since autistic features are so

> prominent in my son's case, and in at least one of the other cases

from

> Exceptional Parent, I thought this might be a useful forum in which

to

> post the question.

>

> Many thanks,

> Donna Seyed Mahmoud

>

> --

> Donna Seyed Mahmoud

> Associate University Librarian

> University of Lethbridge Library

> (403)329-2128/fax:(403)329-2234

[Guest guest]

, are you talking about having a physical with a regular family dr.?

Or a specialist? I'm about to take my 13 year old step son to his primary

care physician for a regular check up and to talk to him about his autistic

symptoms. I'm a bit afraid he might miss something since his expertise is

in the average growing child.

Re: Request for Information

> Hi. I agree with Joan. Have a complete physical done if you

haven't already. I was SURE had autism too, but it turned out

a few other things. She was diagnosed with Grave's Disease

(hyperthyriodism) which was causing a ton of stuff going on within

her little body! Also, she has sensory problems that are now being

dealt with. She hardly has any autistic tendencies anymore. Still

shakes a book or toy and hums alot, but her communication is great!

She is in a regular Kinder. classroom and follows the routine with

the others. She came home yesterday and pulled a paper out of her

backpack and counted the frogs to 6 with out any help at all!!!!

Good luck to you. This group is great!!

mom to 7 DS and two others

Hello,

>

> I have a son, now 13, with Downs Syndrome. Until he was 6 or 7 he

was

> developing at an okay rate for a child with Downs. Then he began to

have

> what his aide and myself would call " grey " days that became more

and

> more frequent. He stopped progressing academically and autistic

> behaviours developed to the point where these are now his

predominant

> feature. In the last three years he has lost almost all academic

skills

> and most of his language although he will still sign with

prompting.

> Numerous tests and consultations have yielded nothing to account

for the

> regression. After reading about autism and alternative approaches

to

> treatment I put him on a gluten, dairy and corn free diet with some

> success in at least reducing some of the autistic behaviours. His

sleep

> patterns have also improved. I'm not sure though if the regression

has

> stopped.

>

> My question to the list: Do any of you know of other children with

Downs

> who have experienced such early decline/regression (ie: beginning

circa

> age 5/6 to 8/9 or before age 20)? There are at least two other

cases as

> noted in a search and respond section of the Exceptional Parent

site.

> I'd love to hear of any others. Since autistic features are so

> prominent in my son's case, and in at least one of the other cases

from

> Exceptional Parent, I thought this might be a useful forum in which

to

> post the question.

>

> Many thanks,

> Donna Seyed Mahmoud

>

> --

> Donna Seyed Mahmoud

> Associate University Librarian

> University of Lethbridge Library

> (403)329-2128/fax:(403)329-2234

[Guest guest]

> > Hi. I agree with Joan. Have a complete physical done if you

> haven't already. I was SURE had autism too, but it turned

out

> a few other things. She was diagnosed with Grave's Disease

> (hyperthyriodism) which was causing a ton of stuff going on within

> her little body! Also, she has sensory problems that are now being

> dealt with. She hardly has any autistic tendencies anymore. Still

> shakes a book or toy and hums alot, but her communication is

great!

> She is in a regular Kinder. classroom and follows the routine with

> the others. She came home yesterday and pulled a paper out of her

> backpack and counted the frogs to 6 with out any help at all!!!!

> Good luck to you. This group is great!!

>

> mom to 7 DS and two others

>

>

> Hello,

> >

> > I have a son, now 13, with Downs Syndrome. Until he was 6 or 7

he

> was

> > developing at an okay rate for a child with Downs. Then he began

to

> have

> > what his aide and myself would call " grey " days that became more

> and

> > more frequent. He stopped progressing academically and autistic

> > behaviours developed to the point where these are now his

> predominant

> > feature. In the last three years he has lost almost all academic

> skills

> > and most of his language although he will still sign with

> prompting.

> > Numerous tests and consultations have yielded nothing to account

> for the

> > regression. After reading about autism and alternative

approaches

> to

> > treatment I put him on a gluten, dairy and corn free diet with

some

> > success in at least reducing some of the autistic behaviours.

His

> sleep

> > patterns have also improved. I'm not sure though if the

regression

> has

> > stopped.

> >

> > My question to the list: Do any of you know of other children

with

> Downs

> > who have experienced such early decline/regression (ie: beginning

> circa

> > age 5/6 to 8/9 or before age 20)? There are at least two other

> cases as

> > noted in a search and respond section of the Exceptional Parent

> site.

> > I'd love to hear of any others. Since autistic features are so

> > prominent in my son's case, and in at least one of the other

cases

> from

> > Exceptional Parent, I thought this might be a useful forum in

which

> to

> > post the question.

> >

> > Many thanks,

> > Donna Seyed Mahmoud

> >

> > --

> > Donna Seyed Mahmoud

> > Associate University Librarian

> > University of Lethbridge Library

> > (403)329-2128/fax:(403)329-2234

>

>

>

>

[Guest guest]

ok. Thanks. This could be really fun. I can just see him with a needle in

his arm!!! Won't be pretty.

Has had her ears checked by a primary physician? I read that

sometimes kids with Down's have smaller tubes and stuff going on in there

which makes it hard to see with the regular doctor scopes.

Re: Request for Information

> > Hi. I agree with Joan. Have a complete physical done if you

> haven't already. I was SURE had autism too, but it turned

out

> a few other things. She was diagnosed with Grave's Disease

> (hyperthyriodism) which was causing a ton of stuff going on within

> her little body! Also, she has sensory problems that are now being

> dealt with. She hardly has any autistic tendencies anymore. Still

> shakes a book or toy and hums alot, but her communication is

great!

> She is in a regular Kinder. classroom and follows the routine with

> the others. She came home yesterday and pulled a paper out of her

> backpack and counted the frogs to 6 with out any help at all!!!!

> Good luck to you. This group is great!!

>

> mom to 7 DS and two others

>

>

> Hello,

> >

> > I have a son, now 13, with Downs Syndrome. Until he was 6 or 7

he

> was

> > developing at an okay rate for a child with Downs. Then he began

to

> have

> > what his aide and myself would call " grey " days that became more

> and

> > more frequent. He stopped progressing academically and autistic

> > behaviours developed to the point where these are now his

> predominant

> > feature. In the last three years he has lost almost all academic

> skills

> > and most of his language although he will still sign with

> prompting.

> > Numerous tests and consultations have yielded nothing to account

> for the

> > regression. After reading about autism and alternative

approaches

> to

> > treatment I put him on a gluten, dairy and corn free diet with

some

> > success in at least reducing some of the autistic behaviours.

His

> sleep

> > patterns have also improved. I'm not sure though if the

regression

> has

> > stopped.

> >

> > My question to the list: Do any of you know of other children

with

> Downs

> > who have experienced such early decline/regression (ie: beginning

> circa

> > age 5/6 to 8/9 or before age 20)? There are at least two other

> cases as

> > noted in a search and respond section of the Exceptional Parent

> site.

> > I'd love to hear of any others. Since autistic features are so

> > prominent in my son's case, and in at least one of the other

cases

> from

> > Exceptional Parent, I thought this might be a useful forum in

which

> to

> > post the question.

> >

> > Many thanks,

> > Donna Seyed Mahmoud

> >

> > --

> > Donna Seyed Mahmoud

> > Associate University Librarian

> > University of Lethbridge Library

> > (403)329-2128/fax:(403)329-2234

>

>

>

>

[Guest guest]

In a message dated 4/29/2003 9:55:42 AM Eastern Standard Time,

kristen3kids@... writes:

> Hi. I agree with Joan. Have a complete physical done if you

> haven't already. I was SURE had autism too, but it turned out

> a few other things. She was diagnosed with Grave's Disease

> (hyperthyriodism) which was causing a ton of stuff going on within

> her little body! Also, she has sensory problems that are now being

> dealt with.

Ditto!!! We went on a six month long testing period with Maddie LONG

before she was dx'd with autism. We tested for celiac among MANY other

things. We ended up finding hypothyroidism (at 3 yrs) and GERD (at 2 yrs),

but the autism was still blatantly there. Maddie's autism came on so

abruptly that it was painfully obvious. I even have pictures that

demonstrate it (if you go to <A

HREF= " www.nas.com/downsyn/ " >www.nas.com/downsyn/</A> you will see my angel PRE

autism---that's her in the left hand corner). Having done all the

physical testing before the autism dx made it much more believable for the

professionals also.

BTW, Maddie's care is followed by our regular ped, but I totally guide him.

He has the DS Preventive Medical Check List and he abides by it completely.

However, I have also taken her numerous times to Dr. Capone (developmental

ped and director of the DS clinic at KKI) at s Hopkins since she was 2.

Good luck,

Donna

[Guest guest]

In a message dated 4/29/2003 2:54:54 PM Eastern Standard Time,

melville@... writes:

> What about neurological exams or spinal exams?

Joan posted the site so you can print it out. As far as spinal exams,

typically they are done at the age of 3. As far as neurological exams,

it's all in the check list, which is like a bible for my ped when treating

Maddie.

Donna

[Guest guest]

>

> Has had her ears checked by a primary physician? I read that

> sometimes kids with Down's have smaller tubes and stuff going on in

there

> which makes it hard to see with the regular doctor scopes.

Yes, gets her ears checked by a reg. Doc. She used to hate

that, but she's getting better about it and actually holds her hair

up for the doc to look in. Her tubes are smaller, but (unless

there's too much wax) the doc can usually get a good look. She's had

three 3 ear tube surgeries so there's alwasy a tube to look for.

now gets her blood drawn twice a year and we HATE that. It's

so hard when she cries and

says " Please.........owie.........no........help me! " I used to cry

too, but I handle it better now.

Let us know how your visit goes.

[Guest guest]

Where did you get the DS Preventative Medical Check list?

I've been step mother for 8 years. And we've never taken him to

doctor before. He's always lived with his mother. She was very busy

working and traveling, so I can't imagine that he's had a DS Preventative

Medical check up. Probably just visits when he was sick. So this is

incredibly new for us. And we want to explore all the avenues to see if we

can help him. He has just come to live with us during the school year (at

age 13). We're taking the opportunity (or the challenge, he doesn't much

like to be touched by others).

What about neurological exams or spinal exams?

Re: Re: Request for Information

In a message dated 4/29/2003 9:55:42 AM Eastern Standard Time,

kristen3kids@... writes:

> Hi. I agree with Joan. Have a complete physical done if you

> haven't already. I was SURE had autism too, but it turned out

> a few other things. She was diagnosed with Grave's Disease

> (hyperthyriodism) which was causing a ton of stuff going on within

> her little body! Also, she has sensory problems that are now being

> dealt with.

Ditto!!! We went on a six month long testing period with Maddie LONG

before she was dx'd with autism. We tested for celiac among MANY other

things. We ended up finding hypothyroidism (at 3 yrs) and GERD (at 2

yrs),

but the autism was still blatantly there. Maddie's autism came on so

abruptly that it was painfully obvious. I even have pictures that

demonstrate it (if you go to <A

HREF= " www.nas.com/downsyn/ " >www.nas.com/downsyn/</A> you will see my angel

PRE

autism---that's her in the left hand corner). Having done all the

physical testing before the autism dx made it much more believable for the

professionals also.

BTW, Maddie's care is followed by our regular ped, but I totally guide him.

He has the DS Preventive Medical Check List and he abides by it completely.

However, I have also taken her numerous times to Dr. Capone (developmental

ped and director of the DS clinic at KKI) at s Hopkins since she was 2.

Good luck,

Donna

[Guest guest]

The best place to download this is from Len Leshin's website:

www.ds-health.com

this has the long article with supporting documentation and different flow

sheets to keep you on track.

joan

At 11:53 AM 4/29/2003 -0700, you wrote:

>Where did you get the DS Preventative Medical Check list?

>

>I've been step mother for 8 years. And we've never taken him to

>doctor before. He's always lived with his mother. She was very busy

>working and traveling, so I can't imagine that he's had a DS Preventative

>Medical check up. Probably just visits when he was sick. So this is

>incredibly new for us. And we want to explore all the avenues to see if we

>can help him. He has just come to live with us during the school year (at

>age 13). We're taking the opportunity (or the challenge, he doesn't much

>like to be touched by others).

>

>What about neurological exams or spinal exams?

>

> Re: Re: Request for Information

>

>

>In a message dated 4/29/2003 9:55:42 AM Eastern Standard Time,

>kristen3kids@... writes:

>

> > Hi. I agree with Joan. Have a complete physical done if you

> > haven't already. I was SURE had autism too, but it turned out

> > a few other things. She was diagnosed with Grave's Disease

> > (hyperthyriodism) which was causing a ton of stuff going on within

> > her little body! Also, she has sensory problems that are now being

> > dealt with.

>

>Ditto!!! We went on a six month long testing period with Maddie LONG

>before she was dx'd with autism. We tested for celiac among MANY other

>things. We ended up finding hypothyroidism (at 3 yrs) and GERD (at 2

>yrs),

>but the autism was still blatantly there. Maddie's autism came on so

>abruptly that it was painfully obvious. I even have pictures that

>demonstrate it (if you go to <A

>HREF= " www.nas.com/downsyn/ " >www.nas.com/downsyn/</A> you will see my angel

>PRE

>autism---that's her in the left hand corner). Having done all the

>physical testing before the autism dx made it much more believable for the

>professionals also.

>BTW, Maddie's care is followed by our regular ped, but I totally guide him.

>

>He has the DS Preventive Medical Check List and he abides by it completely.

>

>However, I have also taken her numerous times to Dr. Capone (developmental

>ped and director of the DS clinic at KKI) at s Hopkins since she was 2.

>Good luck,

>Donna

>

>

>

[Guest guest]

nathan was around 4yrs of age when the docs told us he was autistic. shawna.

Request for Information

> Hello,

>

> I have a son, now 13, with Downs Syndrome. Until he was 6 or 7 he was

> developing at an okay rate for a child with Downs. Then he began to have

> what his aide and myself would call " grey " days that became more and

> more frequent. He stopped progressing academically and autistic

> behaviours developed to the point where these are now his predominant

> feature. In the last three years he has lost almost all academic skills

> and most of his language although he will still sign with prompting.

> Numerous tests and consultations have yielded nothing to account for the

> regression. After reading about autism and alternative approaches to

> treatment I put him on a gluten, dairy and corn free diet with some

> success in at least reducing some of the autistic behaviours. His sleep

> patterns have also improved. I'm not sure though if the regression has

> stopped.

>

> My question to the list: Do any of you know of other children with Downs

> who have experienced such early decline/regression (ie: beginning circa

> age 5/6 to 8/9 or before age 20)? There are at least two other cases as

> noted in a search and respond section of the Exceptional Parent site.

> I'd love to hear of any others. Since autistic features are so

> prominent in my son's case, and in at least one of the other cases from

> Exceptional Parent, I thought this might be a useful forum in which to

> post the question.

>

> Many thanks,

> Donna Seyed Mahmoud

>

> --

> Donna Seyed Mahmoud

> Associate University Librarian

> University of Lethbridge Library

> (403)329-2128/fax:(403)329-2234

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list.

> --------------------------------------------

>

>

[Guest guest]

In a message dated 4/29/03 10:38:16 AM Central Daylight Time,

writes:

> , are you talking about having a physical with a regular family dr.?

> Or a specialist? I'm about to take my 13 year old step son to his primary

> care physician for a regular check up and to talk to him about his autistic

> symptoms. I'm a bit afraid he might miss something since his expertise is

> in the average growing child.

>

I have found that while our ped. knows the general things to watch for with

down syndrome I have had to suggest specific tests when things aren't going

well. Eventually we went to the down syndrome clinic and several things that

we had already done were what they would have suggested.

One thing that I had repeated to me over and over when doing residential care

was never to just accept a neg. change is someone's awareness or behavior as

" just the way things are " or as a " new behavior " always have it thoroughly

checked out medically before accepting it.

This information has been invaluable with . He has numerous medical

issues that have effected his behavior including heart problems, hypothyroid

( which can have sensory issues as a symptom), hearing problems, vision

problems, sinus problems, and orthopedic problems. Not that we have found

medical treatments for all of these issues but knowing they exist can help us

work around them.

Karyn

[Guest guest]

I am nodding my head. Yes, Yes, Yes. I am finding that out very slowly.

Diane

>

> From: KVanRyzin@...

> Date: 2003/04/30 Wed PM 01:38:17 EDT

>

> Subject: Re: REquest for information

>

> One thing that I had repeated to me over and over when doing residential care

was never to just accept a neg. change is someone's awareness or behavior as

" just the way things are " or as a " new behavior " always have it thoroughly

checked out medically before accepting it.

This information has been invaluable with . He has numerous medical

issues that have effected his behavior including heart problems, hypothyroid

( which can have sensory issues as a symptom), hearing problems, vision

problems, sinus problems, and orthopedic problems. Not that we have found

medical treatments for all of these issues but knowing they exist can help us

work around them.

Karyn

[Guest guest]

Well, we saw the doctor today. He took blood (that was fun) and referred us

to someone for a spinal xray (needed for special olympics). But he thought

didn't show signs of autism really, because he communicates with us.

He referred us to the San Diego regional center. He didn't see in

the classroom or with a pencil (somehow my husband managed to talk

him into leaving the pencil in the car - my husband is magic). That's the

thing. How can a doctor see a kids for 20 minutes and know anything about

their behavior?

So, I guess we're on our own looking into autism. Providing the blood test

comes up negative for thyroid problems.

He did take the article on medical needs of kids with down's and the medical

check lists from us to use in the future. (from the ds-health.com).

Re: Re: Request for Information

>

>

>In a message dated 4/29/2003 9:55:42 AM Eastern Standard Time,

>kristen3kids@... writes:

>

> > Hi. I agree with Joan. Have a complete physical done if you

> > haven't already. I was SURE had autism too, but it turned out

> > a few other things. She was diagnosed with Grave's Disease

> > (hyperthyriodism) which was causing a ton of stuff going on within

> > her little body! Also, she has sensory problems that are now being

> > dealt with.

>

>Ditto!!! We went on a six month long testing period with Maddie LONG

>before she was dx'd with autism. We tested for celiac among MANY other

>things. We ended up finding hypothyroidism (at 3 yrs) and GERD (at 2

>yrs),

>but the autism was still blatantly there. Maddie's autism came on so

>abruptly that it was painfully obvious. I even have pictures that

>demonstrate it (if you go to <A

>HREF= " www.nas.com/downsyn/ " >www.nas.com/downsyn/</A> you will see my angel

>PRE

>autism---that's her in the left hand corner). Having done all the

>physical testing before the autism dx made it much more believable for the

>professionals also.

>BTW, Maddie's care is followed by our regular ped, but I totally guide him.

>

>He has the DS Preventive Medical Check List and he abides by it completely.

>

>However, I have also taken her numerous times to Dr. Capone (developmental

>ped and director of the DS clinic at KKI) at s Hopkins since she was 2.

>Good luck,

>Donna

>

>

>

[Guest guest]

In a message dated 5/1/2003 8:37:45 PM Eastern Standard Time,

melville@... writes:

> That's the

> thing. How can a doctor see a kids for 20 minutes and know anything about

> their behavior?

>

Yea, I know. That's why I kept my pedi after I had Maddie and love him

so much. When the onslaught of autism hit us, I was literally in a panic.

He never poo-poohed me.....I'd been poo-poohed by Maddie's then speech

therapist (actually she tried to mortify me whenever I brought it up) and was

pleasantly surprised to have a professional not only give me his ear and

heart, but to take charge and do all he could to get to the bottom of our

problems. I really do think that that is rare though....from what we read

on this list, it's hard to find a professional who gets it without a

struggle. But thanks to the work Joan and others in the professional

world, that is changing.

Good luck with the future testing for and keep us posted!!!!

Donna

[Guest guest]

See attached message from board for death due to head banging. I do not

know the person who posted it...just that it totally scared the snot out of

me as my daughter (3 yrs. old PDD)likes to beat her head on the floor

sometimes, so it stuck with me and I went back and found the post.

I hope this helps.

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

See attached message from board for death due to head banging. I do not

know the person who posted it...just that it totally scared the snot out of

me as my daughter (3 yrs. old PDD)likes to beat her head on the floor

sometimes, so it stuck with me and I went back and found the post.

I hope this helps.

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.htmlHere is the

link I wrote about earlier for the head-banging...the attachment did not

work

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.htmlHere is the

link I wrote about earlier for the head-banging...the attachment did not

work

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

Thanks for your reply. Unfortunately, the site you referred to is

down and the author states that all info is being moved to another

server. SIGH!!! Do you have a copy of the article?

Dawn

> http://neuro-

mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.htmlHere is the

> link I wrote about earlier for the head-banging...the attachment

did not

> work

> Request for Information

>

>

> I'm trying to help my friend obtain information for a court case

that

> has gone very wrong. If you are aware of any child's death that

has

> occurred due to self-inflicted " head banging " , please e-mail my

> friend at monicac2@m... as quickly as possible. It does

> not matter if the child had autism, the age should be 12 or under,

> and the death cannot be abuse caused by another, it must be

caused by

> the child's own head banging. I'm sorry if this sounds off-the-

wall,

> but it is real and my friend has been asked to help because of her

> long fights with the legal systems to bring a better life to her

26

> year old son who has autism. If you have any information at all,

> please contact . (The lawyers were given only seven days to

> obtain more information, so turnaround is urgent if you have

info.)

>

> Thank you!

>

> Dawn Jennings

> town, TX

> (Mom to , age 16, PDD-NOS)

>

>

>

[Guest guest]

Thanks for your reply. Unfortunately, the site you referred to is

down and the author states that all info is being moved to another

server. SIGH!!! Do you have a copy of the article?

Dawn

> http://neuro-

mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.htmlHere is the

> link I wrote about earlier for the head-banging...the attachment

did not

> work

> Request for Information

>

>

> I'm trying to help my friend obtain information for a court case

that

> has gone very wrong. If you are aware of any child's death that

has

> occurred due to self-inflicted " head banging " , please e-mail my

> friend at monicac2@m... as quickly as possible. It does

> not matter if the child had autism, the age should be 12 or under,

> and the death cannot be abuse caused by another, it must be

caused by

> the child's own head banging. I'm sorry if this sounds off-the-

wall,

> but it is real and my friend has been asked to help because of her

> long fights with the legal systems to bring a better life to her

26

> year old son who has autism. If you have any information at all,

> please contact . (The lawyers were given only seven days to

> obtain more information, so turnaround is urgent if you have

info.)

>

> Thank you!

>

> Dawn Jennings

> town, TX

> (Mom to , age 16, PDD-NOS)

>

>

>

[Guest guest]

Here is the correct link--

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.html

Peacefully,

Jeff Sell

Autism Society of America - 1st Vice Chair

Chairman - ASA Government Relations Committee

www.autism-society.org

JZSell@...

www.JZSLAW.com

832-731-3145 (cell)

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

Here is the correct link--

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.html

Peacefully,

Jeff Sell

Autism Society of America - 1st Vice Chair

Chairman - ASA Government Relations Committee

www.autism-society.org

JZSell@...

www.JZSLAW.com

832-731-3145 (cell)

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

Thanks Jeff...I am not good at the link thing yet...my husband ROCKS at it

so I have yet to have to develop the skill. Thanks for translating for me!

Re: Request for Information

Here is the correct link--

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.html

Peacefully,

Jeff Sell

Autism Society of America - 1st Vice Chair

Chairman - ASA Government Relations Committee

www.autism-society.org

JZSell@...

www.JZSLAW.com

832-731-3145 (cell)

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)

[Guest guest]

Thanks Jeff...I am not good at the link thing yet...my husband ROCKS at it

so I have yet to have to develop the skill. Thanks for translating for me!

Re: Request for Information

Here is the correct link--

http://neuro-mancer.mgh.harvard.edu/ubb/Forum260/HTML/008676.html

Peacefully,

Jeff Sell

Autism Society of America - 1st Vice Chair

Chairman - ASA Government Relations Committee

www.autism-society.org

JZSell@...

www.JZSLAW.com

832-731-3145 (cell)

Request for Information

I'm trying to help my friend obtain information for a court case that

has gone very wrong. If you are aware of any child's death that has

occurred due to self-inflicted " head banging " , please e-mail my

friend at monicac2@... as quickly as possible. It does

not matter if the child had autism, the age should be 12 or under,

and the death cannot be abuse caused by another, it must be caused by

the child's own head banging. I'm sorry if this sounds off-the-wall,

but it is real and my friend has been asked to help because of her

long fights with the legal systems to bring a better life to her 26

year old son who has autism. If you have any information at all,

please contact . (The lawyers were given only seven days to

obtain more information, so turnaround is urgent if you have info.)

Thank you!

Dawn Jennings

town, TX

(Mom to , age 16, PDD-NOS)