Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Would not be the first time one man changed the world. The reason for this group is to try to change how Dr look at PA. When you look at cost many like me become unable to work. So we have to get welfare to live. So when this happens every tax payer is helping to support someone like me. > > $1 mill is a criteria? > And yet they don't know PA? > > Maybe they should just do breast surgery and cut the science? > > And you want one guy to straighten them out instead of treating patients? > Get real, Francis. > > My Dr relies on me to straighten out their staff, they don't have time for > it. > > Just logic dictates I want the top ten med school guys working on the main > things - CVD, cancer, diabetes, and let me work the minor crap myself. > > BTW, a lot of new Dr's don't even come from this country. > > Regards > > > Re: Please recommend doctor in eastern Mass > > > You have to look at Dartmouth as being one of the top ten med schools in > the US. just the fact that a Doctor has gone to Dartmouth means that they > will earn 1,000,000 in there life time then doctors form other med schools > do. > > But when it comes to PA they seem somewhat lacking in doctors that know the > proper way to test for it. If my experience with them is any indication as > to how they train doctors about PA then most likey they are not training > them right. In my case if what Dr Grim says there is no good way to test for > PA based on the meds I take. But Gr grim also thinks by how the meds work on > me that PA is very likey in me. Something one of the top teaching hospitals > missed. > > Is it worth Dr Grims's time to try to train them only he can decide this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Almost every hospital in both New Hampshire and Vermont and part of or Affiliated with Dartmouth Including both VA hospitals. > > > > > > Maybe Dr grim could help us both out. I think you may be closer to Dartmouth then B & W. If Dr Grim is willing to contact someone at Dartmouth He could learn if they know how to test and treat PA. I have two names and emails he can try. one is Dr Remillard he is on the ASH list. He is Section Chief of Nephrology. He is likey to respond to Email. .D.Remillard@ This is the Phone number (603) 653-3830 of Fax: (603) 653-3991. Dr Comi was recomend by some one in this group. I send him email but got no reply so will have to try some other way. He is Section Chief of Endocrinology. .j.comi@ Phone number (603) 650-8630 Fax: (603) 650-2240. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I have always thought the purpose of this group is to educate ourselves so that we can become more proactive in our medical care. Also to offer support to others diagnosed with PA and help us learn the best ways to cope with it. To think this group is going to educate physicians is unrealistic, IMO. I believe the vast majority of us here still work. a > From: Francis Bill <georgewbill@...> > Subject: Re: Please recommend doctor in eastern Mass > hyperaldosteronism > Date: Tuesday, November 3, 2009, 3:26 PM > Would not be the first time one man > changed the world. The reason for this group is to try to > change how Dr look at PA. > > When you look at cost many like me become unable to work. > So we have to get welfare to live. So when this happens > every tax payer is helping to support someone like me. > > > > > > > $1 mill is a criteria? > > And yet they don't know PA? > > > > Maybe they should just do breast surgery and cut the > science? > > > > And you want one guy to straighten them out instead of > treating patients? > > Get real, Francis. > > > > My Dr relies on me to straighten out their staff, they > don't have time for > > it. > > > > Just logic dictates I want the top ten med school guys > working on the main > > things - CVD, cancer, diabetes, and let me work the > minor crap myself. > > > > BTW, a lot of new Dr's don't even come from this > country. > > > > Regards > > > > > > Re: Please recommend > doctor in eastern Mass > > > > > > You have to look at Dartmouth as > being one of the top ten med schools in > > the US. just the fact that a Doctor has gone to > Dartmouth means that they > > will earn 1,000,000 in there life time then doctors > form other med schools > > do. > > > > But when it comes to PA they seem somewhat lacking in > doctors that know the > > proper way to test for it. If my experience with them > is any indication as > > to how they train doctors about PA then most likey > they are not training > > them right. In my case if what Dr Grim says there is > no good way to test for > > PA based on the meds I take. But Gr grim also thinks > by how the meds work on > > me that PA is very likey in me. Something one of the > top teaching hospitals > > missed. > > > > Is it worth Dr Grims's time to try to train them only > he can decide this. > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Are you saying is that there are laws that limit how many can become doctors in the US? So if AMA has this power not likey to get much in way of health care reform. > > > $1 mill is a criteria? > > And yet they don't know PA? > > > > Maybe they should just do breast surgery and cut the science? > > > > And you want one guy to straighten them out instead of treating > > patients? > > Get real, Francis. > > > > My Dr relies on me to straighten out their staff, they don't have > > time for > > it. > > > > Just logic dictates I want the top ten med school guys working on > > the main > > things - CVD, cancer, diabetes, and let me work the minor crap myself. > > > > BTW, a lot of new Dr's don't even come from this country. > > > > Regards > > > > Re: Please recommend doctor in > > eastern Mass > > > > You have to look at Dartmouth as being one of the top ten med > > schools in > > the US. just the fact that a Doctor has gone to Dartmouth means > > that they > > will earn 1,000,000 in there life time then doctors form other med > > schools > > do. > > > > But when it comes to PA they seem somewhat lacking in doctors that > > know the > > proper way to test for it. If my experience with them is any > > indication as > > to how they train doctors about PA then most likey they are not > > training > > them right. In my case if what Dr Grim says there is no good way to > > test for > > PA based on the meds I take. But Gr grim also thinks by how the > > meds work on > > me that PA is very likey in me. Something one of the top teaching > > hospitals > > missed. > > > > Is it worth Dr Grims's time to try to train them only he can decide > > this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 The majority may still work but for thoses of us that can't have to do something. All of us don't find a doctor that is willing to do there job. I have been trying for 4 years to find out why I am unable to function at a somewhat normal level. Maybe I don't have PA and have something else I still would like to know what it is. Most things point to PA. Except for PRA ratio that was done on meds that give false test results. I have tried to get retested off the meds but no luck with this. > > > > > > $1 mill is a criteria? > > > And yet they don't know PA? > > > > > > Maybe they should just do breast surgery and cut the > > science? > > > > > > And you want one guy to straighten them out instead of > > treating patients? > > > Get real, Francis. > > > > > > My Dr relies on me to straighten out their staff, they > > don't have time for > > > it. > > > > > > Just logic dictates I want the top ten med school guys > > working on the main > > > things - CVD, cancer, diabetes, and let me work the > > minor crap myself. > > > > > > BTW, a lot of new Dr's don't even come from this > > country. > > > > > > Regards > > > > > > > > > Re: Please recommend > > doctor in eastern Mass > > > > > > > > > You have to look at Dartmouth as > > being one of the top ten med schools in > > > the US. just the fact that a Doctor has gone to > > Dartmouth means that they > > > will earn 1,000,000 in there life time then doctors > > form other med schools > > > do. > > > > > > But when it comes to PA they seem somewhat lacking in > > doctors that know the > > > proper way to test for it. If my experience with them > > is any indication as > > > to how they train doctors about PA then most likey > > they are not training > > > them right. In my case if what Dr Grim says there is > > no good way to test for > > > PA based on the meds I take. But Gr grim also thinks > > by how the meds work on > > > me that PA is very likey in me. Something one of the > > top teaching hospitals > > > missed. > > > > > > Is it worth Dr Grims's time to try to train them only > > he can decide this. > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 I understand your frustration, my guess is that I had PA at least 20 years before I was diagnosed but I don't think it was because my doctors were unwilling to do their jobs. It would not be cost effective to test every person with hypertension for PA. It wasn't until I became hypokalemic that one doctor decided to do further testing. Unfortunately physicians don't have psychic powers, they have to take their best educated guess as to what is going on with us. I have a very strong feeling that after I was diagnosed my PCP read up on PA, and that's a good thing. a > From: Francis Bill <georgewbill@...> > Subject: Re: Please recommend doctor in eastern Mass > hyperaldosteronism > Date: Tuesday, November 3, 2009, 5:58 PM > The majority may still work but for > thoses of us that can't have to do something. All of us > don't find a doctor that is willing to do there job. I have > been trying for 4 years to find out why I am unable to > function at a somewhat normal level. Maybe I don't have PA > and have something else I still would like to know what it > is. Most things point to PA. Except for PRA ratio that was > done on meds that give false test results. I have tried to > get retested off the meds but no luck with this. > > > > > > > > > > $1 mill is a criteria? > > > > And yet they don't know PA? > > > > > > > > Maybe they should just do breast surgery and > cut the > > > science? > > > > > > > > And you want one guy to straighten them out > instead of > > > treating patients? > > > > Get real, Francis. > > > > > > > > My Dr relies on me to straighten out their > staff, they > > > don't have time for > > > > it. > > > > > > > > Just logic dictates I want the top ten med > school guys > > > working on the main > > > > things - CVD, cancer, diabetes, and let me > work the > > > minor crap myself. > > > > > > > > BTW, a lot of new Dr's don't even come from > this > > > country. > > > > > > > > Regards > > > > > > > > > > > > Re: Please > recommend > > > doctor in eastern Mass > > > > > > > > > > > > You have to look at Dartmouth as > > > being one of the top ten med schools in > > > > the US. just the fact that a Doctor has gone > to > > > Dartmouth means that they > > > > will earn 1,000,000 in there life time then > doctors > > > form other med schools > > > > do. > > > > > > > > But when it comes to PA they seem somewhat > lacking in > > > doctors that know the > > > > proper way to test for it. If my experience > with them > > > is any indication as > > > > to how they train doctors about PA then most > likey > > > they are not training > > > > them right. In my case if what Dr Grim says > there is > > > no good way to test for > > > > PA based on the meds I take. But Gr grim > also thinks > > > by how the meds work on > > > > me that PA is very likey in me. Something > one of the > > > top teaching hospitals > > > > missed. > > > > > > > > Is it worth Dr Grims's time to try to train > them only > > > he can decide this. > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Dr. Grim serves a growing list, almost a thousand, PATIENTS, yes. But I think the reason for the group is for patients to change the way their Dr's look at HTN/PA. You're the one to carry the message to those you can see. I've trained my 5, you get yours. Pick young ones - it takes a while, and some die and some retire. Regards Re: Please recommend doctor in eastern Mass Would not be the first time one man changed the world. The reason for this group is to try to change how Dr look at PA. When you look at cost many like me become unable to work. So we have to get welfare to live. So when this happens every tax payer is helping to support someone like me. > > $1 mill is a criteria? > And yet they don't know PA? > > Maybe they should just do breast surgery and cut the science? > > And you want one guy to straighten them out instead of treating patients? > Get real, Francis. > > My Dr relies on me to straighten out their staff, they don't have time for > it. > > Just logic dictates I want the top ten med school guys working on the main > things - CVD, cancer, diabetes, and let me work the minor crap myself. > > BTW, a lot of new Dr's don't even come from this country. > > Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Well it is actually society that controls the funding for medical schools and they are very expensive. But because the public funds them they would be able to increse enrollment. For example someone can check how many new Dr slots have been added to the CA medical schools over the last 15 years vs how much the population of CA has increased.CE Grim MDOn Nov 3, 2009, at 4:37 PM, Francis Bill wrote: Are you saying is that there are laws that limit how many can become doctors in the US? So if AMA has this power not likey to get much in way of health care reform. > > > $1 mill is a criteria? > > And yet they don't know PA? > > > > Maybe they should just do breast surgery and cut the science? > > > > And you want one guy to straighten them out instead of treating > > patients? > > Get real, Francis. > > > > My Dr relies on me to straighten out their staff, they don't have > > time for > > it. > > > > Just logic dictates I want the top ten med school guys working on > > the main > > things - CVD, cancer, diabetes, and let me work the minor crap myself. > > > > BTW, a lot of new Dr's don't even come from this country. > > > > Regards > > > > Re: Please recommend doctor in > > eastern Mass > > > > You have to look at Dartmouth as being one of the top ten med > > schools in > > the US. just the fact that a Doctor has gone to Dartmouth means > > that they > > will earn 1,000,000 in there life time then doctors form other med > > schools > > do. > > > > But when it comes to PA they seem somewhat lacking in doctors that > > know the > > proper way to test for it. If my experience with them is any > > indication as > > to how they train doctors about PA then most likey they are not > > training > > them right. In my case if what Dr Grim says there is no good way to > > test for > > PA based on the meds I take. But Gr grim also thinks by how the > > meds work on > > me that PA is very likey in me. Something one of the top teaching > > hospitals > > missed. > > > > Is it worth Dr Grims's time to try to train them only he can decide > > this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Have you had a trial of spiro?CE Grim MDOn Nov 3, 2009, at 4:58 PM, Francis Bill wrote: The majority may still work but for thoses of us that can't have to do something. All of us don't find a doctor that is willing to do there job. I have been trying for 4 years to find out why I am unable to function at a somewhat normal level. Maybe I don't have PA and have something else I still would like to know what it is. Most things point to PA. Except for PRA ratio that was done on meds that give false test results. I have tried to get retested off the meds but no luck with this. > > > > > > $1 mill is a criteria? > > > And yet they don't know PA? > > > > > > Maybe they should just do breast surgery and cut the > > science? > > > > > > And you want one guy to straighten them out instead of > > treating patients? > > > Get real, Francis. > > > > > > My Dr relies on me to straighten out their staff, they > > don't have time for > > > it. > > > > > > Just logic dictates I want the top ten med school guys > > working on the main > > > things - CVD, cancer, diabetes, and let me work the > > minor crap myself. > > > > > > BTW, a lot of new Dr's don't even come from this > > country. > > > > > > Regards > > > > > > > > > Re: Please recommend > > doctor in eastern Mass > > > > > > > > > You have to look at Dartmouth as > > being one of the top ten med schools in > > > the US. just the fact that a Doctor has gone to > > Dartmouth means that they > > > will earn 1,000,000 in there life time then doctors > > form other med schools > > > do. > > > > > > But when it comes to PA they seem somewhat lacking in > > doctors that know the > > > proper way to test for it. If my experience with them > > is any indication as > > > to how they train doctors about PA then most likey > > they are not training > > > them right. In my case if what Dr Grim says there is > > no good way to test for > > > PA based on the meds I take. But Gr grim also thinks > > by how the meds work on > > > me that PA is very likey in me. Something one of the > > top teaching hospitals > > > missed. > > > > > > Is it worth Dr Grims's time to try to train them only > > he can decide this. > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 No I am the one that has the VA doctor that told me if I had PA he would still treat me the same why he treating now. So not likey to get spiro from him. > > > > > > > > > > $1 mill is a criteria? > > > > > And yet they don't know PA? > > > > > > > > > > Maybe they should just do breast surgery and cut the > > > > science? > > > > > > > > > > And you want one guy to straighten them out instead of > > > > treating patients? > > > > > Get real, Francis. > > > > > > > > > > My Dr relies on me to straighten out their staff, they > > > > don't have time for > > > > > it. > > > > > > > > > > Just logic dictates I want the top ten med school guys > > > > working on the main > > > > > things - CVD, cancer, diabetes, and let me work the > > > > minor crap myself. > > > > > > > > > > BTW, a lot of new Dr's don't even come from this > > > > country. > > > > > > > > > > Regards > > > > > > > > > > > > > > > Re: Please recommend > > > > doctor in eastern Mass > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > being one of the top ten med schools in > > > > > the US. just the fact that a Doctor has gone to > > > > Dartmouth means that they > > > > > will earn 1,000,000 in there life time then doctors > > > > form other med schools > > > > > do. > > > > > > > > > > But when it comes to PA they seem somewhat lacking in > > > > doctors that know the > > > > > proper way to test for it. If my experience with them > > > > is any indication as > > > > > to how they train doctors about PA then most likey > > > > they are not training > > > > > them right. In my case if what Dr Grim says there is > > > > no good way to test for > > > > > PA based on the meds I take. But Gr grim also thinks > > > > by how the meds work on > > > > > me that PA is very likey in me. Something one of the > > > > top teaching hospitals > > > > > missed. > > > > > > > > > > Is it worth Dr Grims's time to try to train them only > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Saw them both, Remillard deferred to Comi and Comi did the test and confirmed PA. My PCP and local endo disagreed with the way the test was done. In addition I got very sick on spirno. My PCP and endo will not try me on Eplerenone (no experience with it) and want me to go to B & W for their opinion and to repeat the test. There were some communication issues between Dartmouth and my local doctors but airing them out here would not benefit the group. :-) Thanks much! > > > > > > > > > > > > > > > > > > > > > > Hello Dr Grim, > > > > > > > > > > > > > > > > > > > > > > I live in western MA and a while ago you recommended > > > > a Dr > > > > > > Gordon > > > > > > > > > > or the doctors that work in his group. You > > > > > > mentioned that > > > > > > > > > > he is at Harvard and my PCP and I have been trying to > > > > > > locate him > > > > > > > > > > without success. Do you know if he works at Brighams and > > > > > > Womans in > > > > > > > > > > Boston? Would appreciate any information that you may > > > > have for > > > > > > > > him. > > > > > > > > > > > > > > > > > > > > > > Thank you very much! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Were you taking any Meds before Dr Comi did the tests. Why does your local endo disagree with how tests were done? Why can't your endo do his own testing? He can read can't he. If he is unsure as to how to do the test should not be hard to find information on how it is done. > > > > > > > > > > > > > > > > > > > > > > > > Hello Dr Grim, > > > > > > > > > > > > > > > > > > > > > > > > I live in western MA and a while ago you recommended > > > > > a Dr > > > > > > > Gordon > > > > > > > > > > > or the doctors that work in his group. You > > > > > > > mentioned that > > > > > > > > > > > he is at Harvard and my PCP and I have been trying to > > > > > > > locate him > > > > > > > > > > > without success. Do you know if he works at Brighams and > > > > > > > Womans in > > > > > > > > > > > Boston? Would appreciate any information that you may > > > > > have for > > > > > > > > > him. > > > > > > > > > > > > > > > > > > > > > > > > Thank you very much! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Dartmouth is charging over $40,000 a year for non medical school education. And still have cut back on there help. They do waste a lot of money. They still keep building new buildings but most of that money is given by past alumni. Would seem it would be better use of money to have name on scholarship then some building. > > > > > > > $1 mill is a criteria? > > > > And yet they don't know PA? > > > > > > > > Maybe they should just do breast surgery and cut the science? > > > > > > > > And you want one guy to straighten them out instead of treating > > > > patients? > > > > Get real, Francis. > > > > > > > > My Dr relies on me to straighten out their staff, they don't have > > > > time for > > > > it. > > > > > > > > Just logic dictates I want the top ten med school guys working on > > > > the main > > > > things - CVD, cancer, diabetes, and let me work the minor crap > > myself. > > > > > > > > BTW, a lot of new Dr's don't even come from this country. > > > > > > > > Regards > > > > > > > > Re: Please recommend doctor in > > > > eastern Mass > > > > > > > > You have to look at Dartmouth as being one of the top ten med > > > > schools in > > > > the US. just the fact that a Doctor has gone to Dartmouth means > > > > that they > > > > will earn 1,000,000 in there life time then doctors form other med > > > > schools > > > > do. > > > > > > > > But when it comes to PA they seem somewhat lacking in doctors that > > > > know the > > > > proper way to test for it. If my experience with them is any > > > > indication as > > > > to how they train doctors about PA then most likey they are not > > > > training > > > > them right. In my case if what Dr Grim says there is no good > > way to > > > > test for > > > > PA based on the meds I take. But Gr grim also thinks by how the > > > > meds work on > > > > me that PA is very likey in me. Something one of the top teaching > > > > hospitals > > > > missed. > > > > > > > > Is it worth Dr Grims's time to try to train them only he can > > decide > > > > this. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I'm going to decline to reply to this. > > > > > > > > > > > > > > > > > > > > > > > > > > Hello Dr Grim, > > > > > > > > > > > > > > > > > > > > > > > > > > I live in western MA and a while ago you recommended > > > > > > a Dr > > > > > > > > Gordon > > > > > > > > > > > > or the doctors that work in his group. You > > > > > > > > mentioned that > > > > > > > > > > > > he is at Harvard and my PCP and I have been trying to > > > > > > > > locate him > > > > > > > > > > > > without success. Do you know if he works at Brighams and > > > > > > > > Womans in > > > > > > > > > > > > Boston? Would appreciate any information that you may > > > > > > have for > > > > > > > > > > him. > > > > > > > > > > > > > > > > > > > > > > > > > > Thank you very much! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I know I have the tumor I know my BP is high I know my K has been low I know I have PVC's I know I have at times a heart rate of 110 to 120 BPM I Know not all my EKG's are normal I have had stress test and echo grams done. Am told my problem is heart related. Have had 24 hour urine for both cushings and Pheochromocytomas both normal. It took a while before VA thought to test for PA but test was done on meds. PAR ratio about 8 not high enough for PA. Because I thought that Meds may have changed PAR ratio Went to Dartmouth that also did test on meds and PRA ratio still about 8. What is more cost effective doing the test again off the meds and maybe it would show PA. Or keep doing other tests. Dr grim has made an educated guess based on what I have put on here his guess is PA. So seem like like of the many health care providers I have seen at the VA and Dartmouth they should have made this same educated guess. > > > > > > > > > > $1 mill is a criteria? > > > > > And yet they don't know PA? > > > > > > > > > > Maybe they should just do breast surgery and > > cut the > > > > science? > > > > > > > > > > And you want one guy to straighten them out > > instead of > > > > treating patients? > > > > > Get real, Francis. > > > > > > > > > > My Dr relies on me to straighten out their > > staff, they > > > > don't have time for > > > > > it. > > > > > > > > > > Just logic dictates I want the top ten med > > school guys > > > > working on the main > > > > > things - CVD, cancer, diabetes, and let me > > work the > > > > minor crap myself. > > > > > > > > > > BTW, a lot of new Dr's don't even come from > > this > > > > country. > > > > > > > > > > Regards > > > > > > > > > > > > > > > Re: Please > > recommend > > > > doctor in eastern Mass > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > being one of the top ten med schools in > > > > > the US. just the fact that a Doctor has gone > > to > > > > Dartmouth means that they > > > > > will earn 1,000,000 in there life time then > > doctors > > > > form other med schools > > > > > do. > > > > > > > > > > But when it comes to PA they seem somewhat > > lacking in > > > > doctors that know the > > > > > proper way to test for it. If my experience > > with them > > > > is any indication as > > > > > to how they train doctors about PA then most > > likey > > > > they are not training > > > > > them right. In my case if what Dr Grim says > > there is > > > > no good way to test for > > > > > PA based on the meds I take. But Gr grim > > also thinks > > > > by how the meds work on > > > > > me that PA is very likey in me. Something > > one of the > > > > top teaching hospitals > > > > > missed. > > > > > > > > > > Is it worth Dr Grims's time to try to train > > them only > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 got very sick is not useful termMore details. Were you DASHing at the time.Recall that DASHing is a critical part of taking care of PA.EG no salt in diet no HTN or K problems.Best way to get experience is to try it. I am happy to coach.What is rational for retesting?CE Grim MDOn Nov 4, 2009, at 8:03 AM, toben84 wrote: Saw them both, Remillard deferred to Comi and Comi did the test and confirmed PA. My PCP and local endo disagreed with the way the test was done. In addition I got very sick on spirno. My PCP and endo will not try me on Eplerenone (no experience with it) and want me to go to B & W for their opinion and to repeat the test. There were some communication issues between Dartmouth and my local doctors but airing them out here would not benefit the group. :-) Thanks much! > > > > > > > > > > > > > > > > > > > > > > Hello Dr Grim, > > > > > > > > > > > > > > > > > > > > > > I live in western MA and a while ago you recommended > > > > a Dr > > > > > > Gordon > > > > > > > > > > or the doctors that work in his group. You > > > > > > mentioned that > > > > > > > > > > he is at Harvard and my PCP and I have been trying to > > > > > > locate him > > > > > > > > > > without success. Do you know if he works at Brighams and > > > > > > Womans in > > > > > > > > > > Boston? Would appreciate any information that you may > > > > have for > > > > > > > > him. > > > > > > > > > > > > > > > > > > > > > > Thank you very much! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Have you taken my article to them?CE GrimMDOn Nov 4, 2009, at 9:05 AM, Francis Bill wrote: Were you taking any Meds before Dr Comi did the tests. Why does your local endo disagree with how tests were done? Why can't your endo do his own testing? He can read can't he. If he is unsure as to how to do the test should not be hard to find information on how it is done. > > > > > > > > > > > > > > > > > > > > > > > > Hello Dr Grim, > > > > > > > > > > > > > > > > > > > > > > > > I live in western MA and a while ago you recommended > > > > > a Dr > > > > > > > Gordon > > > > > > > > > > > or the doctors that work in his group. You > > > > > > > mentioned that > > > > > > > > > > > he is at Harvard and my PCP and I have been trying to > > > > > > > locate him > > > > > > > > > > > without success. Do you know if he works at Brighams and > > > > > > > Womans in > > > > > > > > > > > Boston? Would appreciate any information that you may > > > > > have for > > > > > > > > > him. > > > > > > > > > > > > > > > > > > > > > > > > Thank you very much! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I recommend at trial of spiro.CE Grim MDOn Nov 4, 2009, at 2:04 PM, Francis Bill wrote: I know I have the tumor I know my BP is high I know my K has been low I know I have PVC's I know I have at times a heart rate of 110 to 120 BPM I Know not all my EKG's are normal I have had stress test and echo grams done. Am told my problem is heart related. Have had 24 hour urine for both cushings and Pheochromocytomas both normal. It took a while before VA thought to test for PA but test was done on meds. PAR ratio about 8 not high enough for PA. Because I thought that Meds may have changed PAR ratio Went to Dartmouth that also did test on meds and PRA ratio still about 8. What is more cost effective doing the test again off the meds and maybe it would show PA. Or keep doing other tests. Dr grim has made an educated guess based on what I have put on here his guess is PA. So seem like like of the many health care providers I have seen at the VA and Dartmouth they should have made this same educated guess. > > > > > > > > > > $1 mill is a criteria? > > > > > And yet they don't know PA? > > > > > > > > > > Maybe they should just do breast surgery and > > cut the > > > > science? > > > > > > > > > > And you want one guy to straighten them out > > instead of > > > > treating patients? > > > > > Get real, Francis. > > > > > > > > > > My Dr relies on me to straighten out their > > staff, they > > > > don't have time for > > > > > it. > > > > > > > > > > Just logic dictates I want the top ten med > > school guys > > > > working on the main > > > > > things - CVD, cancer, diabetes, and let me > > work the > > > > minor crap myself. > > > > > > > > > > BTW, a lot of new Dr's don't even come from > > this > > > > country. > > > > > > > > > > Regards > > > > > > > > > > > > > > > Re: Please > > recommend > > > > doctor in eastern Mass > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > being one of the top ten med schools in > > > > > the US. just the fact that a Doctor has gone > > to > > > > Dartmouth means that they > > > > > will earn 1,000,000 in there life time then > > doctors > > > > form other med schools > > > > > do. > > > > > > > > > > But when it comes to PA they seem somewhat > > lacking in > > > > doctors that know the > > > > > proper way to test for it. If my experience > > with them > > > > is any indication as > > > > > to how they train doctors about PA then most > > likey > > > > they are not training > > > > > them right. In my case if what Dr Grim says > > there is > > > > no good way to test for > > > > > PA based on the meds I take. But Gr grim > > also thinks > > > > by how the meds work on > > > > > me that PA is very likey in me. Something > > one of the > > > > top teaching hospitals > > > > > missed. > > > > > > > > > > Is it worth Dr Grims's time to try to train > > them only > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I first have to find a DR that will do this. IF both VA and Dartmouth say they don't think I have PA then not likey I will find a dr to put me on it. > > > > > > > > > > > > > > $1 mill is a criteria? > > > > > > > And yet they don't know PA? > > > > > > > > > > > > > > Maybe they should just do breast surgery and > > > > cut the > > > > > > science? > > > > > > > > > > > > > > And you want one guy to straighten them out > > > > instead of > > > > > > treating patients? > > > > > > > Get real, Francis. > > > > > > > > > > > > > > My Dr relies on me to straighten out their > > > > staff, they > > > > > > don't have time for > > > > > > > it. > > > > > > > > > > > > > > Just logic dictates I want the top ten med > > > > school guys > > > > > > working on the main > > > > > > > things - CVD, cancer, diabetes, and let me > > > > work the > > > > > > minor crap myself. > > > > > > > > > > > > > > BTW, a lot of new Dr's don't even come from > > > > this > > > > > > country. > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > Re: Please > > > > recommend > > > > > > doctor in eastern Mass > > > > > > > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > > > being one of the top ten med schools in > > > > > > > the US. just the fact that a Doctor has gone > > > > to > > > > > > Dartmouth means that they > > > > > > > will earn 1,000,000 in there life time then > > > > doctors > > > > > > form other med schools > > > > > > > do. > > > > > > > > > > > > > > But when it comes to PA they seem somewhat > > > > lacking in > > > > > > doctors that know the > > > > > > > proper way to test for it. If my experience > > > > with them > > > > > > is any indication as > > > > > > > to how they train doctors about PA then most > > > > likey > > > > > > they are not training > > > > > > > them right. In my case if what Dr Grim says > > > > there is > > > > > > no good way to test for > > > > > > > PA based on the meds I take. But Gr grim > > > > also thinks > > > > > > by how the meds work on > > > > > > > me that PA is very likey in me. Something > > > > one of the > > > > > > top teaching hospitals > > > > > > > missed. > > > > > > > > > > > > > > Is it worth Dr Grims's time to try to train > > > > them only > > > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Spiro is a reasonable drug to use in any HTN who is having difficulty getting to goal. Esp if K has EVER been low.It is a widely used drug for difficult HTN. So one does not have to have classic PA to be given a trail if pt is not a goal or not feeling well.Discuss with your team.CE Grim MDOn Nov 4, 2009, at 3:27 PM, Francis Bill wrote: I first have to find a DR that will do this. IF both VA and Dartmouth say they don't think I have PA then not likey I will find a dr to put me on it. > > > > > > > > > > > > > > $1 mill is a criteria? > > > > > > > And yet they don't know PA? > > > > > > > > > > > > > > Maybe they should just do breast surgery and > > > > cut the > > > > > > science? > > > > > > > > > > > > > > And you want one guy to straighten them out > > > > instead of > > > > > > treating patients? > > > > > > > Get real, Francis. > > > > > > > > > > > > > > My Dr relies on me to straighten out their > > > > staff, they > > > > > > don't have time for > > > > > > > it. > > > > > > > > > > > > > > Just logic dictates I want the top ten med > > > > school guys > > > > > > working on the main > > > > > > > things - CVD, cancer, diabetes, and let me > > > > work the > > > > > > minor crap myself. > > > > > > > > > > > > > > BTW, a lot of new Dr's don't even come from > > > > this > > > > > > country. > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > Re: Please > > > > recommend > > > > > > doctor in eastern Mass > > > > > > > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > > > being one of the top ten med schools in > > > > > > > the US. just the fact that a Doctor has gone > > > > to > > > > > > Dartmouth means that they > > > > > > > will earn 1,000,000 in there life time then > > > > doctors > > > > > > form other med schools > > > > > > > do. > > > > > > > > > > > > > > But when it comes to PA they seem somewhat > > > > lacking in > > > > > > doctors that know the > > > > > > > proper way to test for it. If my experience > > > > with them > > > > > > is any indication as > > > > > > > to how they train doctors about PA then most > > > > likey > > > > > > they are not training > > > > > > > them right. In my case if what Dr Grim says > > > > there is > > > > > > no good way to test for > > > > > > > PA based on the meds I take. But Gr grim > > > > also thinks > > > > > > by how the meds work on > > > > > > > me that PA is very likey in me. Something > > > > one of the > > > > > > top teaching hospitals > > > > > > > missed. > > > > > > > > > > > > > > Is it worth Dr Grims's time to try to train > > > > them only > > > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Perhaps you need to write him a letter and tell him that if you have PA, you would most definitely be treated differently. PA without an aldo blocker = early death. Send him Dr. Grim's paper and ask that he read it. Not having choice is a bitch. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill No I am the one that has the VA doctor that told me if I had PA he would still treat me the same why he treating now. So not likey to get spiro from him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I have tried He has no interest in Dr Grim. > > Perhaps you need to write him a letter and tell him that if you have PA, you > would most definitely be treated differently. PA without an aldo blocker = > early death. Send him Dr. Grim's paper and ask that he read it. > > Not having choice is a bitch. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of Francis Bill > > > No I am the one that has the VA doctor that told me if I had PA he would > still treat me the same why he treating now. So not likey to get spiro from > him. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 The VA is my PCP. I kind of have them be my PCP as they are watching other things in me. I have a 10% service connected hearing loss. They supply me with hearing aids and battries. I am also at risk of having glaucoma so they are watching this. I am thaking meds that would have to be stopped before taking Spironolactone. Not many Dr that want to treat you if have other doctors treating you unless they are on the same team. > > > > > > > > > > > > > > > > $1 mill is a criteria? > > > > > > > > And yet they don't know PA? > > > > > > > > > > > > > > > > Maybe they should just do breast surgery and > > > > > cut the > > > > > > > science? > > > > > > > > > > > > > > > > And you want one guy to straighten them out > > > > > instead of > > > > > > > treating patients? > > > > > > > > Get real, Francis. > > > > > > > > > > > > > > > > My Dr relies on me to straighten out their > > > > > staff, they > > > > > > > don't have time for > > > > > > > > it. > > > > > > > > > > > > > > > > Just logic dictates I want the top ten med > > > > > school guys > > > > > > > working on the main > > > > > > > > things - CVD, cancer, diabetes, and let me > > > > > work the > > > > > > > minor crap myself. > > > > > > > > > > > > > > > > BTW, a lot of new Dr's don't even come from > > > > > this > > > > > > > country. > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > > > > Re: Please > > > > > recommend > > > > > > > doctor in eastern Mass > > > > > > > > > > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > > > > being one of the top ten med schools in > > > > > > > > the US. just the fact that a Doctor has gone > > > > > to > > > > > > > Dartmouth means that they > > > > > > > > will earn 1,000,000 in there life time then > > > > > doctors > > > > > > > form other med schools > > > > > > > > do. > > > > > > > > > > > > > > > > But when it comes to PA they seem somewhat > > > > > lacking in > > > > > > > doctors that know the > > > > > > > > proper way to test for it. If my experience > > > > > with them > > > > > > > is any indication as > > > > > > > > to how they train doctors about PA then most > > > > > likey > > > > > > > they are not training > > > > > > > > them right. In my case if what Dr Grim says > > > > > there is > > > > > > > no good way to test for > > > > > > > > PA based on the meds I take. But Gr grim > > > > > also thinks > > > > > > > by how the meds work on > > > > > > > > me that PA is very likey in me. Something > > > > > one of the > > > > > > > top teaching hospitals > > > > > > > > missed. > > > > > > > > > > > > > > > > Is it worth Dr Grims's time to try to train > > > > > them only > > > > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 So I assume francis that you are on spiro if he said if he knew you had PA he would not treat any differently. Or maybe he has not treated in PAs.On Nov 4, 2009, at 3:45 PM, Valarie wrote: Perhaps you need to write him a letter and tell him that if you have PA, you would most definitely be treated differently. PA without an aldo blocker = early death. Send him Dr. Grim's paper and ask that he read it. Not having choice is a bitch. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill No I am the one that has the VA doctor that told me if I had PA he would still treat me the same why he treating now. So not likey to get spiro from him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 But if you have PA spiro is the magic bullet and almost diagnostic. On Nov 3, 2009, at 7:18 PM, Francis Bill wrote: No I am the one that has the VA doctor that told me if I had PA he would still treat me the same why he treating now. So not likey to get spiro from him. > > > > > > > > > > $1 mill is a criteria? > > > > > And yet they don't know PA? > > > > > > > > > > Maybe they should just do breast surgery and cut the > > > > science? > > > > > > > > > > And you want one guy to straighten them out instead of > > > > treating patients? > > > > > Get real, Francis. > > > > > > > > > > My Dr relies on me to straighten out their staff, they > > > > don't have time for > > > > > it. > > > > > > > > > > Just logic dictates I want the top ten med school guys > > > > working on the main > > > > > things - CVD, cancer, diabetes, and let me work the > > > > minor crap myself. > > > > > > > > > > BTW, a lot of new Dr's don't even come from this > > > > country. > > > > > > > > > > Regards > > > > > > > > > > > > > > > Re: Please recommend > > > > doctor in eastern Mass > > > > > > > > > > > > > > > You have to look at Dartmouth as > > > > being one of the top ten med schools in > > > > > the US. just the fact that a Doctor has gone to > > > > Dartmouth means that they > > > > > will earn 1,000,000 in there life time then doctors > > > > form other med schools > > > > > do. > > > > > > > > > > But when it comes to PA they seem somewhat lacking in > > > > doctors that know the > > > > > proper way to test for it. If my experience with them > > > > is any indication as > > > > > to how they train doctors about PA then most likey > > > > they are not training > > > > > them right. In my case if what Dr Grim says there is > > > > no good way to test for > > > > > PA based on the meds I take. But Gr grim also thinks > > > > by how the meds work on > > > > > me that PA is very likey in me. Something one of the > > > > top teaching hospitals > > > > > missed. > > > > > > > > > > Is it worth Dr Grims's time to try to train them only > > > > he can decide this. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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