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Lynn

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Hi Lynn

Nice to hear from you, I hope you are well. That's a very good reminder about the Internet. I think the surgeon I'm seeing is very able but he does tend towards the cheery side of optimism regarding any surgery etc as a 'piece of cake'. I suspect he underplays things as a part of his bedside manner and so I end up searching the Internet just to get another side on what he tells me. So yes - I should keep a perspective!

Regards Phil

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That is okay Tess. I just wish you were feeling better. Hope today is

better for you.

Lynn (MeMom)

tess_northwest@... wrote:

> Dearest Lynn...I am pretty much being a couch potato. Thanks for your

> caring.

>

> Love...

>

> Tess

>

>

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Congratulations, Lynn! We are so happy to welcome little to this world!

Send us a photo when

you can. Do you have to change your name to MeMomGrandMom? Iris

> > > Hi Everyone,

> > > Yesterday was very special, my son and his wife had their son. He

> > > is so cute and all boy. No mistaking him for a girl. He looks like

> > > and my dad. Everything went so well. Everyone is fine and

> > the

> > > baby's name is .

> > > Lynn MeMom

> >

> >

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Hi Iris,

Actually MeMom is for Grandmom. My little granddaughter Alyssa started

calling me, MeMom on her

own. She has been doing it ever since she was very little. I love it. I think

since 's

daughter my little Becky calls me Grandmom Lynn, will too. However, I do

love MeMom. Thank you

for the note. Hope you are feeling well.

Lynn MeMom

Iris Nosker wrote:

> Congratulations, Lynn! We are so happy to welcome little to this world!

Send us a photo when

> you can. Do you have to change your name to MeMomGrandMom? Iris

>

> > > > Hi Everyone,

> > > > Yesterday was very special, my son and his wife had their son. He

> > > > is so cute and all boy. No mistaking him for a girl. He looks like

> > > > and my dad. Everything went so well. Everyone is fine and

> > > the

> > > > baby's name is .

> > > > Lynn MeMom

> > >

> > >

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Will you let me know how the homeopath goes? Email privately if no

one else is interested... mamapudd@...

I'm really wanting to try the vaccine clearing.

Lynn

> > I have to tell you that my son wouldn't have been autistic at 13

> > months either! That's when the problems started though. Speech

was

> > first just like you mention. Don't drop this issue if the

> > neurologist does. Please seek help here or through a DAN! dr.

You

> > may want to even implement the GFCF diet and see what that does.

> > check out www.gcfcdiet.com

> >

> > Lynn

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Hi a,

I do know what the insurance company is putting you through and it is

terrible.

I have been dealing with an insurance company for eight years. My hearing to

stop

my income is on June 10. All the depositions are in so we will see what

happens.

Dealing with an insurance company is very stressful as you know. I just wish it

was

better for you.

My grades for the geography class are in. I am in shock, I got a B. I truly

believe the teacher dropped the last test because I know I did so bad on it. I

heard he does drop test when the class does badly. I am just waiting for the

other

class.

I went for the test today for my stomach. The doctor let me watch, it was

interesting. He explained what every thing inside me was, even if it all isn't

in

the right place. The stomach empties well but than stops and that is why I feel

sick whenever I eat. I don't think anything can be done about that. The pain

well

I am lucky there is no obstructions. However, I don't have an answer either.

He

thinks it is probably scar tissue and it doesn't always show up. That is

exactly

what the GI specialist told me. I haven't spoken to her yet but I feel like I

am

between a brick and a hard place. But she told me nothing was going to show. I

hate to think that I will have to stay in this pain but that is what it looks

like

at this point. I will wait and talk to her, it is just frustrating.

I sure hope you start to feel better and that insurance company helps you. They

fight and fight a person and end up paying for everything anyway. They waste

more

money and it makes no sense. They hope if they hold out you will just go away.

Just keep fighting them. I'll let you know what the GI doc says and how the

hearing

goes.

Lynn

a wrote:

> Lynn,

> You must be so proud of your daughter. I see she took after you with her

> interest in history. It's nice to have a common interest with your

> daughter.

> I'm glad you were able to go to school. I know how much it means to you.

> I'll be going back one of these days. I had hoped to go this summer, but my

> granddaughter from Florida is coming up for the summer and will be staying

> with me. Maybe I can sneak in an online course.

>

> Sorry you've been in such pain. Has the doctors ever suggested taking

> digestive enzymes to help you digest food?

>

> So glad you've figured out how to eat your pizza even if it isn't the

> complete pizza!

>

> I know you've been through the mill with wc and know how I feel. I'm trying

> not to let it get to me, but it's difficult when I have a headache as a

> constant reminder. The unfairness of how I'm treated is really hard to

> swallow.

> I have a lot of problems, but I don't think carpel tunnel is one of them.

> Sometimes I think the RA is creeping into my wrists, but they haven't

> bothered me for quite a while. I too feel bad when I hear of how much some

> people suffer. All we can do is pray for a miracle.

>

> I hope you enjoy your graduation festivities!

> a

>

> > Hi a,

> > Right now I am involved with my daughters graduation from college. I am

so

> > proud of her. Her goal is to return to school in the fall for grad work.

> > Right

> > now her plan along with this is to teach history at the college level. It

is

> > a

> > nice time. I finish school this week. It was a challenge but I am glad I

> > went

> > back and look forward to the fall semester.

> > I saw the GI doctor on Monday the pain has become very bad. She doesn't

> > know

> > what is wrong but believes it is scar tissue. I don't agree because it is

the

> > same

> > pain in the same location I had before the second surgery. I am wondering

if

> > something isn't twisted again. She has me going for a bunch of GI test to

see

> > what

> > is happening. If nothing is found she has suggested a pain management

doctor.

> > However, my primary is totally against this and says we have to talk. But I

> > am to

> > get the test first. It is almost constant pain just like before. We did

> > agree I

> > will not be going back to the U. of P. or Doctor to. He is a very nice

> > man but

> > totally out of touch with his patients. She told me that she has heard all

> > these

> > complaints about this hospital and doctor many times. So I will be going to

a

> > surgeon (if it comes to that) at Abington. I didn't get his name but he

> > trained

> > under to. I hate going for these test I thought it was all behind me.

She

> > also

> > told me that no surgeon will touch me unless it is life threatening. I

don't

> > know

> > how you live with this pain on top of the RA, carpal tunnel, and neck.

> > Eating I have come to terms with. Sometimes I will make a whole bag of some

> > fresh

> > veggie and munch off it all day. My life is a lot of veggies & soup which

is

> > fine. Sitting down to a meal is impossible and I pay a price if I try to

eat

> > to

> > much. I found a way of eating pizza if you can call it that. It is just a

> > very

> > thin crust and sauce, hehe better than nothing. Actually, Laurie makes it

> > when she

> > makes pizza and it is not so bad, we laugh. I absolutely crave anything

with

> > acid

> > in it. I put lemon juice all over any veggies. Oddly enough I can eat

> > pickles

> > and do I ever. I think because there is no acid in my stomach (pouch) I

crave

> > it.

> > I am trying to deal with it all. The RA is bad but I am trying to walk as

> > much as

> > I can. I keep thinking if I could get one problem solved (stomach)

everything

> > would be better. I just pray and I do get through it. I am so looking

> > forward to

> > Laurie graduation on Friday. Friday night my sons are going to take all of

> > out to

> > dinner for a small celebration. Her party is on Sunday.

> > I feel so bad when I read all you are going through. Plus the pain you are

> > in, I

> > wish there was some advise I could give you. I know one thing do not let

that

> > insurance company get to you, that is what they are trying to do. Fight

them

> > a

> > on everything, you have to keep at them. You DESERVE to have the medical

care

> > and

> > equipment you need so you can function. The insurance company knows they

will

> > have

> > to pay, they do this in the hopes you will go away. My ortho did a

wonderful

> > deposition for me, with the wc. So we go back to court in June or July. If

I

> > win

> > my attorney feels this maybe it. Apparently the ortho's depo couldn't have

> > been

> > better. I remember one time you sent me a site that explained most judges

do

> > not

> > go against a patients doctor, so I am hoping all we be okay. I also think

> > when you

> > are going through all this stuff with an insurance company it makes you

tense,

> > hence making everything worse.

> > I hope the sun starts to shine for you and you feel better. If I can do

> > anything

> > just let me know. You are in my prayers.

> > Lynn

> >

> >

> > a wrote:

> >

> >> Thanks Lynn. I know you've been through a lot of fighting with WC and know

> >> how it feels. I hope your battle is over soon. How have you been feeling?

> >> Are you done school?

> >> a

> >>

> >>> Hi a,

> >>> I am so sorry to read you are still having so many problems. Insurance

> >>> companies are terrible. The people can be very rude and mean. I know I

> >>> have

> >>> been dealing with wc for eight years. I wish things could be better for

> >>> you.

> >>> Also, wish you felt better. You are in my prayers.

> >>> Lynn MeMom

> >>

> >>

> >>

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Congratulations on your geography grade. Are you taking any classes over

the summer or taking a break?

I'll be praying that your hearing goes well. You've had such a long battle.

I'm sorry nothing can be done for your stomach. I can't believe there are

not alternatives and you just have to live in pain. I hope your GI doctor

will come up with something to make your life more comfortable. I know what

it's like to loose the joy of eating. When eating causes pain, it puts food

in a different light.

a

> Hi a,

> I do know what the insurance company is putting you through and it is

> terrible.

> I have been dealing with an insurance company for eight years. My hearing to

> stop

> my income is on June 10. All the depositions are in so we will see what

> happens.

> Dealing with an insurance company is very stressful as you know. I just wish

> it was

> better for you.

> My grades for the geography class are in. I am in shock, I got a B. I truly

> believe the teacher dropped the last test because I know I did so bad on it.

> I

> heard he does drop test when the class does badly. I am just waiting for the

> other

> class.

> I went for the test today for my stomach. The doctor let me watch, it was

> interesting. He explained what every thing inside me was, even if it all

> isn't in

> the right place. The stomach empties well but than stops and that is why I

> feel

> sick whenever I eat. I don't think anything can be done about that. The pain

> well

> I am lucky there is no obstructions. However, I don't have an answer either.

> He

> thinks it is probably scar tissue and it doesn't always show up. That is

> exactly

> what the GI specialist told me. I haven't spoken to her yet but I feel like I

> am

> between a brick and a hard place. But she told me nothing was going to show.

> I

> hate to think that I will have to stay in this pain but that is what it looks

> like

> at this point. I will wait and talk to her, it is just frustrating.

> I sure hope you start to feel better and that insurance company helps you.

> They

> fight and fight a person and end up paying for everything anyway. They waste

> more

> money and it makes no sense. They hope if they hold out you will just go

> away.

> Just keep fighting them. I'll let you know what the GI doc says and how the

> hearing

> goes.

> Lynn

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Hi a,

I was thinking of you this morning when I got up and it was raining again.

I'm

sure your jaw must be very painful. But I am glad the insurance company has to

pay

for what you need.

I am not taking a class this summer. The last semester was very hard.

There

were days when I dragged myself to class. Plus the pain with my stomach didn't

help

any. So I am taking the summer off. I am so relieved with my Geo.. grade. I

am

waiting for my English Comp II grade. However, I did get my research paper

back. I

was so excited about that because he gave me an A. It was 20 pages long and I

wrote

it on Historic Preservation. I was hoping for a B but was blown away with the

A.

He wrote some very nice compliments on the paper. I feel so much better. I

really

thought I had made a mistake going back when I did, but you know it worked out.

It

will be a little harder to go now. I can't get anyone financial aid at my

school.

If I transferred to a four year school I could. So I will have to scrape the

money

together to continue. Even if I can only take one class at a time I will have

to do

it that way. I hate to not go with only 5 classes to take for my degree. I

will

just trust God will help me find a way.

Tylenol was helping with the pain in my stomach but no longer works. So I

started

taking darvocet. I am still waiting to here from the GI doctor but with the

holiday

I think it will be a couple of days. I do plan on going down to the hospital

and

picking up a couple of the reports myself. I like to read what has been written

that way I have questions. Laurie made pizza last night so I got a slice of

what I

like to think of as pizza. Really just a slice of dough and sauce but who cares

it

is a treat.

I hope your holiday is peaceful and you can enjoy it. Isn't the weather

terrible, I

can't remember the last time the sun was out.

Hugs,

Lynn

a wrote:

> Congratulations on your geography grade. Are you taking any classes over

> the summer or taking a break?

> I'll be praying that your hearing goes well. You've had such a long battle.

> I'm sorry nothing can be done for your stomach. I can't believe there are

> not alternatives and you just have to live in pain. I hope your GI doctor

> will come up with something to make your life more comfortable. I know what

> it's like to loose the joy of eating. When eating causes pain, it puts food

> in a different light.

> a

>

>

> > Hi a,

> > I do know what the insurance company is putting you through and it is

> > terrible.

> > I have been dealing with an insurance company for eight years. My hearing

to

> > stop

> > my income is on June 10. All the depositions are in so we will see what

> > happens.

> > Dealing with an insurance company is very stressful as you know. I just

wish

> > it was

> > better for you.

> > My grades for the geography class are in. I am in shock, I got a B. I

truly

> > believe the teacher dropped the last test because I know I did so bad on it.

> > I

> > heard he does drop test when the class does badly. I am just waiting for

the

> > other

> > class.

> > I went for the test today for my stomach. The doctor let me watch, it was

> > interesting. He explained what every thing inside me was, even if it all

> > isn't in

> > the right place. The stomach empties well but than stops and that is why I

> > feel

> > sick whenever I eat. I don't think anything can be done about that. The

pain

> > well

> > I am lucky there is no obstructions. However, I don't have an answer

either.

> > He

> > thinks it is probably scar tissue and it doesn't always show up. That is

> > exactly

> > what the GI specialist told me. I haven't spoken to her yet but I feel like

I

> > am

> > between a brick and a hard place. But she told me nothing was going to

show.

> > I

> > hate to think that I will have to stay in this pain but that is what it

looks

> > like

> > at this point. I will wait and talk to her, it is just frustrating.

> > I sure hope you start to feel better and that insurance company helps you.

> > They

> > fight and fight a person and end up paying for everything anyway. They

waste

> > more

> > money and it makes no sense. They hope if they hold out you will just go

> > away.

> > Just keep fighting them. I'll let you know what the GI doc says and how the

> > hearing

> > goes.

> > Lynn

>

>

>

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Dear Lynn:

First....I hope you are having a great Memorial Day!

Sometimes, our hopes and plans change for a reason. It could be that you are

supposed to cut back to one class at this particular time in your life. No one

can take away what you have already learned with the sweat of your brow and

sacrifices that have carried you to this point. Who knows what the Master

Weaver has ahead for you and sometimes when you look back in retrospect, the

pieces of the puzzle fall into their perspective places and a light

dawns......... " Oh, I see why that happened! " I'm speaking from experience. I

started a community college right out of high school, part time. Circumstances

after a year, forced me to stop (not stop, actually, it was always in my mind to

go back). When I was able to go back, it was after my husband died and with

juggling two kids, working full time, and a myriad of other things, took

anywhere from 1 - 3 classes a semester. There were times, I had to drop a

semester and wait until the money and/or resources were there. I had difficulty

with 3 different subjects and had to drop each one several times before finding

a teacher that was able to reach my dense brain before finally succeeding in

them and going on to other classes in the same field. In 1977, 19 years after

starting my first class, walked with the graduating class and received a

well-appreciated AA degree in English. One year later, having had enough

credits to take 6 more classes and earn a second AA, received one in Social

Science. My GPA was 3.8 and I never realized the significance of the degrees and

GPA until later when I had to change careers in mid-stream. I continued the

following year for one semester at the University but again, circumstances

forced me to postpone any further education. A few years after that, telephone

company (where I had worked for 22 years) was in the middle of the divestiture

and my department was on the way out having gone from 5 locations with anywhere

from over a hundred to two hundred employees down to 1 location and around 50

employees. When several options were presented to us(ie, early full retirement,

quitting, waiting it out for a transfer but no guarantee where the location

would be, possibility of being laid off, or taking a package early retirement

which consisted of in my case of salary and benefits for 10 months, a small lump

sum (2500 eaten up by taxes) and picking up a fixed retirement pension at age

65) I opted for the early (VIPP) package because of the stress the job phone

company was putting everyone through at the time and pressures at home with a

teenager that was trying to find herself. That's when I found that even just

the two small degrees were not really small and always played a big influence in

all the jobs I have had since. I regretted leaving college when I did, however,

when the big picture came into focus, many things were clearer and now there are

no regrets. At some point, I will go back for more learning whether it will be

for a degree or for my own enjoyment. But then again, all of it has been for my

own enjoyment.

As for the financial aid, you never know what aids are available. It might take

a little research on your part, but I am sure there are resources out there. At

San Diego State University's library there is a complete section devoted to

scholarships and I'm sure other Universities have something similar. There are

scholarships available, for example, if you are over 40 and color your hair with

a certain product or if you had a relative that carried the baggage for a wagon

train west for his great aunt.(this one is stretched, but just to show you that

some of the most ridiculous scholarships are available and usually go unused

because no one knows about them). Give it a try and I think you might be

surprised.

Anyhow......good luck on your learning adventure. It's a great feeling when you

are finished.

Thinking positive thoughts for you with lots of prayers and (((hugs))). Jan in

CA +/:=)

Ruf-Caimi <ruf-caimi@...> wrote:

" .....I feel so much better. I really thought I had made a mistake going back

when I did, but you know it worked out. It will be a little harder to go now.

I can't get anyone financial aid at my school. If I transferred to a four year

school I could. So I will have to scrape the money together to continue. Even

if I can only take one class at a time I will have to do it that way. I hate

to not go with only 5 classes to take for my degree. I will just trust God will

help me find a way..... "

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Hi Jan,

I am so impressed with all your accomplishments. You certainly have done so

well. It must have been so hard trying to go to school with children at home.

My girls are older so it is not hard. I thank you for all your kind words. I

really didn't get all that upset when the letter came. I thought I will just

trust God to help me find a way. I am disappointed that I won't be able to

graduate next May but that is the way it is. I already have a certificate in

Historic Preservation that I earned two years ago. That certificate means a lot

to me, there were some very difficult courses in that program. I would like to

have my AA in Liberal Arts and I think I will be able to get that. I was

suppose to go to Temple for a bachelor but I may just stay at Bucks. There are

many classes I would like to take. I know God is watching over me and helping

me. I am sure he has a good reason for all that has happened. I forgot about

all this until I read your note. Thank you from

the bottom of my heart. Hope your holiday was nice. Here in Pa., it is nothing

but rain and more rain. It was continue for the whole week-end again.

Thank you for your kind thoughts,

Lynn

Jan Tully wrote:

> Dear Lynn:

> First....I hope you are having a great Memorial Day!

> Sometimes, our hopes and plans change for a reason. It could be that you are

supposed to cut back to one class at this particular time in your life. No one

can take away what you have already learned with the sweat of your brow and

sacrifices that have carried you to this point. Who knows what the Master

Weaver has ahead for you and sometimes when you look back in retrospect, the

pieces of the puzzle fall into their perspective places and a light

dawns......... " Oh, I see why that happened! " I'm speaking from experience. I

started a community college right out of high school, part time. Circumstances

after a year, forced me to stop (not stop, actually, it was always in my mind to

go back). When I was able to go back, it was after my husband died and with

juggling two kids, working full time, and a myriad of other things, took

anywhere from 1 - 3 classes a semester. There were times, I had to drop a

semester and wait until the money and/or resources were there. I had di!

> fficulty with 3 different subjects and had to drop each one several times

before finding a teacher that was able to reach my dense brain before finally

succeeding in them and going on to other classes in the same field. In 1977, 19

years after starting my first class, walked with the graduating class and

received a well-appreciated AA degree in English. One year later, having had

enough credits to take 6 more classes and earn a second AA, received one in

Social Science. My GPA was 3.8 and I never realized the significance of the

degrees and GPA until later when I had to change careers in mid-stream. I

continued the following year for one semester at the University but again,

circumstances forced me to postpone any further education. A few years after

that, telephone company (where I had worked for 22 years) was in the middle of

the divestiture and my department was on the way out having gone from 5

locations with anywhere from over a hundred to two hundred employees down t!

> o 1 location and around 50 employees. When several options were presented to

us(ie, early full retirement, quitting, waiting it out for a transfer but no

guarantee where the location would be, possibility of being laid off, or taking

a package early retirement which consisted of in my case of salary and benefits

for 10 months, a small lump sum (2500 eaten up by taxes) and picking up a fixed

retirement pension at age 65) I opted for the early (VIPP) package because of

the stress the job phone company was putting everyone through at the time and

pressures at home with a teenager that was trying to find herself. That's when

I found that even just the two small degrees were not really small and always

played a big influence in all the jobs I have had since. I regretted leaving

college when I did, however, when the big picture came into focus, many things

were clearer and now there are no regrets. At some point, I will go back for

more learning whether it will be for a degree !

> or for my own enjoyment. But then again, all of it has been for my own

enjoyment.

> As for the financial aid, you never know what aids are available. It might

take a little research on your part, but I am sure there are resources out

there. At San Diego State University's library there is a complete section

devoted to scholarships and I'm sure other Universities have something similar.

There are scholarships available, for example, if you are over 40 and color your

hair with a certain product or if you had a relative that carried the baggage

for a wagon train west for his great aunt.(this one is stretched, but just to

show you that some of the most ridiculous scholarships are available and usually

go unused because no one knows about them). Give it a try and I think you might

be surprised.

> Anyhow......good luck on your learning adventure. It's a great feeling when

you are finished.

> Thinking positive thoughts for you with lots of prayers and (((hugs))). Jan

in CA +/:=)

>

>

> Ruf-Caimi <ruf-caimi@...> wrote:

> " .....I feel so much better. I really thought I had made a mistake going back

when I did, but you know it worked out. It will be a little harder to go now.

I can't get anyone financial aid at my school. If I transferred to a four year

school I could. So I will have to scrape the money together to continue. Even

if I can only take one class at a time I will have to do it that way. I hate

to not go with only 5 classes to take for my degree. I will just trust God will

help me find a way..... "

>

>

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Thanks a, I will check this out. The only thing she has me on is Zelnorm.

But that is to just empty the pouch when I do eat. Problem with that drug is

remembering to take it before you eat.

Thanks I will check out the sites. You know I thought I knew all about the

surgeries I had. I thought I had researched everything and I really was told I

had the best doctors. I am so rethinking everything but at this point it won't

do me any good.

Lynn

a wrote:

> Half of the people who have major pancreatic surgery have problems digesting

> foods.

> This site mentions taking digestive enzymes after the Whipple procedure:

>

> Digestive Enzymes: The Missing Link

> http://www.lef.org/magazine/mag99/apr99-cover.html

> http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/

>

> Medical College of Wisconsin

> http://healthlink.mcw.edu/article/971119645.html

>

> Malabsorption Syndromes

> http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp

>

> a

>

>

>

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I saw you mention digestive enzymes for Lynn a few times before, a.

I think it's a good idea and I'm wondering why none of the doctors have

mentioned it.

[ ] Lynn

> Half of the people who have major pancreatic surgery have problems

digesting

> foods.

> This site mentions taking digestive enzymes after the Whipple

procedure:

>

> Digestive Enzymes: The Missing Link

> http://www.lef.org/magazine/mag99/apr99-cover.html

> http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/

>

> Medical College of Wisconsin

> http://healthlink.mcw.edu/article/971119645.html

>

> Malabsorption Syndromes

> http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp

>

> a

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a,

I am reading this sites with great interest. I did enzymes when I was

having all the attacks but it was stopped. I see that people are

suppose to take enzymes before they have a whipple. No one ever told me

that one. I don't understand why it hasn't been recommended. I don't

eat dairy or meat. I do eat a lot of veggie but they are well cooked

and if I understand this site, that cooking takes out the enzymes. I am

going to ask my primary on Saturday. I called the hospital to see if an

error was made. I am suppose to call them back later today. I feel

like the GI doc is so frustrated she doesn't want to deal with it. She

told me to call her and let her know what the pain management doctor

says. I guess I am suppose to cancel the appointment I have with her.

I am going to continue reading the sites you sent.

Thank You,

Lynn

a wrote:

>

> Half of the people who have major pancreatic surgery have problems digesting

> foods.

> This site mentions taking digestive enzymes after the Whipple procedure:

>

> Digestive Enzymes: The Missing Link

> http://www.lef.org/magazine/mag99/apr99-cover.html

> http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/

>

> Medical College of Wisconsin

> http://healthlink.mcw.edu/article/971119645.html

>

> Malabsorption Syndromes

> http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp

>

> a

>

>

>

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Guest guest

Dear ,

I am so sorry that the pain continues to be so intense without anyone figuring

out how they could

help you. My cousin had his spleen removed and he has to take medication daily

so I don't see how

they could have removed your spleen without you knowing that. I hope that your

doc meant that

there should be some other way of treating you and was not saying that he

doesn't believe in pain

treatment. Please let us know what he says. Hugs to you. Iris

--- Ruf-Caimi <ruf-caimi@...> wrote:

> Hi a,

> No she didn't mention the enzymes. She told me there is really nothing

she can

> do for me. That is why she suggested pain management. But since it is scar

tissue

> wouldn't it at some point have to be dealt with. I wouldn't want anyone

operating

> on me at this point. I have had all the surgery I want but with the pain and

scar

> tissue seems to me it will only get worse. I think I will get more answers

when I

> see the primary on Saturday. He was not in favor of pain management, he told

me, we

> needed to talk. I always feel better after I talk to him. I will be calling

the

> hospital tomorrow to ask that they reread the x-rays. If they don't find a

spleen,

> the surgeon gets a phone call. I won't deal with his residents either, he

will have

> to be the one to answer the questions. When I talked to the GI doctor I could

> almost feel her frustration, when she said there is nothing to be done. I

really

> believe she doesn't know what to do.

> How are you feeling? Is the pain any better in your jaw?

> Lynn

>

> a wrote:

>

> > I hope it was a mistake Lynn. I wish you had other options besides pain

> > management. Has your doctors mentioned taking digestive enzymes to help you

> > digest food?

> > a

> >

> >

> > > Hi ,

> > > I talked with the GI doctor and she feels a mistake has been made. She

does

> > > not recall anything about taking out the spleen. I am going to call the

> > > hospital

> > > tomorrow and ask that they reread the x-ray and look for a spleen. On the

> > > other

> > > hand she told me there is nothing she can do for me. She is recommending

pain

> > > management and wants me to go see them. She said there is no doubt that

all

> > > the

> > > pain is scar tissue and that it would not show up on the test. I feel

like I

> > > am

> > > between a brick and a hard place. I will talk to my primary and see what

he

> > > thinks. I am suppose to go back to the GI doc in July but I will cancel

that.

> > > She did say there is nothing more she can do. My primary will just take

over.

> > > Really I don't want anyone touching the scar tissue if it can be helped.

Some

> > > mess huh, I didn't think it would all turn out like this.

> > > Lynn

> >

> >

> >

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a,

I am printing some of this information out. I want to take it to my primary

tomorrow. Thank you so much for all your help. Hope you are feeling better.

Lynn

a wrote:

> Half of the people who have major pancreatic surgery have problems digesting

> foods.

> This site mentions taking digestive enzymes after the Whipple procedure:

>

> Digestive Enzymes: The Missing Link

> http://www.lef.org/magazine/mag99/apr99-cover.html

> http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/

>

> Medical College of Wisconsin

> http://healthlink.mcw.edu/article/971119645.html

>

> Malabsorption Syndromes

> http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp

>

> a

>

>

>

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Guest guest

Hi Iris,

Well we found the spleen, thank goodness. The pain is bad but I will just

have to deal with it.

I really don't want anymore surgery. I think surgery will be in my picture but

I hope it hold it off

as long as possible. I have had way to much surgery for a long time.

Hope you are having a good day,

Lynn

Iris Nosker wrote:

> Dear ,

>

> I am so sorry that the pain continues to be so intense without anyone figuring

out how they could

> help you. My cousin had his spleen removed and he has to take medication daily

so I don't see how

> they could have removed your spleen without you knowing that. I hope that your

doc meant that

> there should be some other way of treating you and was not saying that he

doesn't believe in pain

> treatment. Please let us know what he says. Hugs to you. Iris

>

> --- Ruf-Caimi <ruf-caimi@...> wrote:

> > Hi a,

> > No she didn't mention the enzymes. She told me there is really nothing

she can

> > do for me. That is why she suggested pain management. But since it is scar

tissue

> > wouldn't it at some point have to be dealt with. I wouldn't want anyone

operating

> > on me at this point. I have had all the surgery I want but with the pain

and scar

> > tissue seems to me it will only get worse. I think I will get more answers

when I

> > see the primary on Saturday. He was not in favor of pain management, he

told me, we

> > needed to talk. I always feel better after I talk to him. I will be

calling the

> > hospital tomorrow to ask that they reread the x-rays. If they don't find a

spleen,

> > the surgeon gets a phone call. I won't deal with his residents either, he

will have

> > to be the one to answer the questions. When I talked to the GI doctor I

could

> > almost feel her frustration, when she said there is nothing to be done. I

really

> > believe she doesn't know what to do.

> > How are you feeling? Is the pain any better in your jaw?

> > Lynn

> >

> > a wrote:

> >

> > > I hope it was a mistake Lynn. I wish you had other options besides pain

> > > management. Has your doctors mentioned taking digestive enzymes to help

you

> > > digest food?

> > > a

> > >

> > >

> > > > Hi ,

> > > > I talked with the GI doctor and she feels a mistake has been made.

She does

> > > > not recall anything about taking out the spleen. I am going to call the

> > > > hospital

> > > > tomorrow and ask that they reread the x-ray and look for a spleen. On

the

> > > > other

> > > > hand she told me there is nothing she can do for me. She is

recommending pain

> > > > management and wants me to go see them. She said there is no doubt that

all

> > > > the

> > > > pain is scar tissue and that it would not show up on the test. I feel

like I

> > > > am

> > > > between a brick and a hard place. I will talk to my primary and see

what he

> > > > thinks. I am suppose to go back to the GI doc in July but I will cancel

that.

> > > > She did say there is nothing more she can do. My primary will just take

over.

> > > > Really I don't want anyone touching the scar tissue if it can be helped.

Some

> > > > mess huh, I didn't think it would all turn out like this.

> > > > Lynn

> > >

> > >

> > >

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Lynn, I have to start getting ready for work soon and I wanted to get

this off to you. I have been wanting to write but time is really hard on

me. I am always behind in reading and posting. I always feel bad that I

wasn't able to post what I want or be in touch with everybody. It's only

been a few months I have been in the group. At first I was really

overwhelmed by the whole thing. I got pretty stressed out by the whole

thing. My daughter and ex think it's not good for me to be in the group.

That I have gone downhill since being in it. Even my doc says that. In a

way they are right, but, I'm not willing to give it up. I am a bit more

relaxed now with posting and I can understand how people feel. I don't

know if I'll be ever be able to get the total hang of it. If I didn't

have to work it would be better. Anyway I just wanted to let you know

that I have always enjoyed your little notes for having a good day!

Especially the little rose! -NH

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,

Yes, I got it to and was going to forward it to Jerry to see if I was the only one. I guess I won't now because others must have received it. I was suspect but did open it because it started . I hope someone looks into it.

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Lynn, Yes you did write me back. Was going to write last night but it got

late. Figured I would get to it this morning before going to work and

naturally ran out of time. I spent early hours clearing out posts. I'm so

afraid if I hold on to to many that my e-mail address will break down

again like my other one did! I need to ask you something! And anybody

else can answer this too! I was just reading today's messages and there

was one from: hot4_azz1 Subject: ( )are you coming

to my orgy 7/23/03 DID ANYBODY GET THIS TOO IN THEIR POSTS?

I copied it to see the e-mail address and it says:

hot4u_azz1@... Can something write back and tell me

whether they saw this too? Like right now?? Weird things have been

happening and I need to know. -NH Lynn, next post is to you!

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, unfortunately, I did get the same post. Makes me sick ! I deleted

it immmediately. Take care, Sue(from Ohio)

Nocera-NH@... wrote:

Lynn, Yes you did write me back. Was going to write last night but it got

late. Figured I would get to it this morning before going to work and

naturally ran out of time. I spent early hours clearing out posts. I'm so

afraid if I hold on to to many that my e-mail address will break down

again like my other one did! I need to ask you something! And anybody

else can answer this too! I was just reading today's messages and there

was one from: hot4_azz1 Subject: ( )are you coming

to my orgy 7/23/03 DID ANYBODY GET THIS TOO IN THEIR POSTS?

I copied it to see the e-mail address and it says:

hot4u_azz1@... Can something write back and tell me

whether they saw this too? Like right now?? Weird things have been

happening and I need to know. -NH Lynn, next post is to you!

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Hi Lynn, I sent you a personal e-mail the other day in the morning. Did

you get it? I have to leave to go house sit in a few minutes. Will be

home tomorrow morning for awhile so I'll be able to catch some post up.

My e-mail address is Nocera-NH@... Take Care! -NH

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Hi ,

I did get your e-mail and I am sorry I am late in posting back..

I havent been online much the past couple of days.

How are you?

We are just going out to eat, however, I have no idea what I will eat as I cant eat meat and most foods in the little restaurants around here is so greasy and fried..

I will be sure and keep up with my mail,, I promise..

Thanks for being there.

Have a nice evening and a good Saturday.

My grandson is coming down for the weekend. He is eleven ..

Take care,

LynNocera-NH@... wrote:

Hi Lynn, I sent you a personal e-mail the other day in the morning. Didyou get it? I have to leave to go house sit in a few minutes. Will behome tomorrow morning for awhile so I'll be able to catch some post up.My e-mail address is Nocera-NH@... Take Care! -NH

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Lynn, I know I asked this before, but, are you seeing a GI or a Hep? Do

you live in a small area? I remember you saying finding a doctor who is

experienced with PLD is hard to find. Do they have to drain these cysts

every so often? Can't these cysts be removed? Are they on the inside of

your liver too? I think you mentioned you have fatty liver too. I like

seeing the rose again. How do you add these things to your posts. There

is much I do not know about computers! Hope you are feeling well. Do

you color your hair? If so, what do you use? Take Care -NH

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Hi Lynn,

I have been getting messages ok and I hope you are now. I wouldn't even know where to start to fix your problem except for you to try the help process.

Let me know if you get this message or if you are still having the problem and I'll try and think of something to do.

MicheleLynn Witkowski <lynnwit@...> wrote:

Hi Michele,

Several of the messages have been empty... I am just wondering if this is an isolated problem affecting just my mail, or if others in the group are getting the same thing. The following is an example of what I receive.

Lynn

-- Re: Dental Work after C-Toma

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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Michele, the message you sent is still empty... though i am receiving other messages with no problem...

-- Re: Lynn

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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