Guest guest Report post Posted May 16, 2002 Hi Jess Welcome to the list. There's only 1 person I know who says " what's up? " , is it you TuftySue On 16 May 2002, at 19:08, pickndaisies2002 wrote: > I am new. My name is . What's up? Wanna E Me? sue@... Wanna See Me? http://www.tuftysue.co.uk Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 In a message dated 5/16/2002 5:11:06 PM Pacific Standard Time, codemann@... writes: > I'll say what I know about ; if she don't mind. She's 19yrs old > and lives in Provo, Utah. There not really quite sure if she has SMA for > sure, but she resembles its characteristics. She in a power wheel-chair > from a young age, never really walked. Has scholiosis & had spinal > fusion. Has had some respiratory issues and uses oxygen 24/7.. That's > all I really can say. > , you live in Provo? I'm going to BYU in August! (Having a terrible time trying to arrange the services I'll need, but it's going to work out; it has to!) Maybe we'll run into each other some time. ~e~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know people. somebody introduce me!!!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 Hey , Glad you could join the list! Welcome aboard. Tell us a little more about your diagnosis? I'll say what I know about ; if she don't mind. She's 19yrs old and lives in Provo, Utah. There not really quite sure if she has SMA for sure, but she resembles its characteristics. She in a power wheel-chair from a young age, never really walked. Has scholiosis & had spinal fusion. Has had some respiratory issues and uses oxygen 24/7.. That's all I really can say. Take Care, Cody Namesnik codemann@... Re: hey yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know people. somebody introduce me!!!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 Hi Welcome to the SMA Friends Group --- pickndaisies2002 <pickndaisies2002@...> wrote: > I am new. My name is . What's up? > > __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 Hi , Im , 23, from the bay area calif...full time college student at san jose state univ. studying social work, work part time as social work intern at stanford childrens hospital..single (looking=), like to read, watch tv, go out to eat, lay out and tan, play w/ my dogs, internet stuff, shop... SMAII, power scooter... welcome to the list! Cody Namesnik <codemann@...> wrote: Hey , Glad you could join the list! Welcome aboard. Tell us a little more about your diagnosis? I'll say what I know about ; if she don't mind. She's 19yrs old and lives in Provo, Utah. There not really quite sure if she has SMA for sure, but she resembles its characteristics. She in a power wheel-chair from a young age, never really walked. Has scholiosis & had spinal fusion. Has had some respiratory issues and uses oxygen 24/7.. That's all I really can say. Take Care, Cody Namesnik codemann@... Re: hey yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know people. somebody introduce me!!!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 16, 2002 > In a message dated 5/16/2002 5:11:06 PM Pacific Standard Time, you are?? nice do u have a pic Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 Hey , it's me s, i'm so happy u joined da list. U'll learn a lot here! Btw I graduate Monday u guys, yippy! ~s Class of 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 In a message dated 5/17/02 2:26:45 PM Eastern Daylight Time, laurenmarie791@... writes: > any plans for a big grad party? what are your plans after high school? > > Yes, we're having a grad party on SAt. As a grad present my parents are buying me a princess cut platinum diamond ring, so I'm excited! After hs I'm going to a local community college for my AA then hopefully to a big university (praying it won't be in fl ) probably I'll major in psycology, I cant wait to meet all da cute guys ;-) ~s Class of 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 I've been quiet, quiet, quiet for several months, but figured I ought to poke my head back up. Especially, , since we live in the same city! My daughter has SMA, she's still a youngun, almost 22 months old. She has SMA 1, but is doing really well for her diagnosis. I know there are other parents on the list but lately we've all been pretty silent. Welcome to the list! Did you grow up in Provo, or did you move here at some point? At 04:59 PM 5/16/02 -0700, you wrote: >Hey , > > > >Glad you could join the list! Welcome aboard. Tell us a little more >about your diagnosis? > > > >I'll say what I know about ; if she don't mind. She's 19yrs old >and lives in Provo, Utah. There not really quite sure if she has SMA for >sure, but she resembles its characteristics. She in a power wheel-chair >from a young age, never really walked. Has scholiosis & had spinal >fusion. Has had some respiratory issues and uses oxygen 24/7.. That's >all I really can say. > > > >Take Care, > >Cody Namesnik > >codemann@... > > Re: hey > > > >yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know >people. somebody introduce me!!!! > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 congratulations brookes!!!...any plans for a big grad party? what are your plans after high school? MsBYGthoughts@... wrote: Hey , it's me s, i'm so happy u joined da list. U'll learn a lot here! Btw I graduate Monday u guys, yippy! ~s Class of 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 Congrats s! My grad's a month from today. (Just noticed that, wow!) Yay for us! It's exciting! ~e~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 you live in provo? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 Yep, on the South end of ville Road. We're just down the hill from University Mall, about a half a mile from D.I. At 08:17 PM 5/17/02 +0000, you wrote: >you live in provo? > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 wow.....are you married or what? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 17, 2002 ohhh brookes, u will love college (SO MUCH BETTER THAN HS!)...i too was a psych major (now doing social work--pretty similar)...good luck to you and have a fun party this wknd! lauren MsBYGthoughts@... wrote: In a message dated 5/17/02 2:26:45 PM Eastern Daylight Time, laurenmarie791@... writes: > any plans for a big grad party? what are your plans after high school? > > Yes, we're having a grad party on SAt. As a grad present my parents are buying me a princess cut platinum diamond ring, so I'm excited! After hs I'm going to a local community college for my AA then hopefully to a big university (praying it won't be in fl ) probably I'll major in psycology, I cant wait to meet all da cute guys ;-) ~s Class of 2002~ " Challenges are what make life interesting; overcoming them is what makes l ife meaningful. " - J. Marine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 18, 2002 Hi jessica I'm in the UK, 26 yrs old SMA 2/3 works as a civil servant helping to chase truant kids heehee ..welcome xx Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2002 Hey, I've been on this list for awhile but haven't said much. I have SMA 2/3 but it affects my distal muscles (apparently rare phenotype). I'm in Calgary, Canada, studying Fine Arts. I feel like I've learnt alot from this email list, so many emails, even though I haven't contributed that much, it somehow makes me feel so much better about my SMA to hear about how all of you get on. Later! Kim >From: Biancucci <laurenmarie791@...> >Reply- > >Subject: RE: Re: hey >Date: Thu, 16 May 2002 20:04:59 -0700 (PDT) > > > Hi , > Im , 23, from the bay area calif...full time college student at san >jose state univ. studying social work, work part time as social work intern >at stanford childrens hospital..single (looking=), like to read, watch tv, >go out to eat, lay out and tan, play w/ my dogs, internet stuff, shop... >SMAII, power scooter... >welcome to the list! > > Cody Namesnik <codemann@...> wrote: Hey , > > > >Glad you could join the list! Welcome aboard. Tell us a little more >about your diagnosis? > > > >I'll say what I know about ; if she don't mind. She's 19yrs old >and lives in Provo, Utah. There not really quite sure if she has SMA for >sure, but she resembles its characteristics. She in a power wheel-chair >from a young age, never really walked. Has scholiosis & had spinal >fusion. Has had some respiratory issues and uses oxygen 24/7.. That's >all I really can say. > > > >Take Care, > >Cody Namesnik > >codemann@... > > Re: hey > > > >yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know >people. somebody introduce me!!!! > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2002 On 20 May 2002, at 11:22, Kimberley wrote: > Hey, > I've been on this list for awhile but haven't said much. I have SMA 2/3 > but it affects my distal muscles (apparently rare phenotype). I'm in > Calgary, Canada, studying Fine Arts. I feel like I've learnt alot from this > email list, so many emails, even though I haven't contributed that much, it > somehow makes me feel so much better about my SMA to hear about how all of > you get on. Later! Hi Kim I just thought I'd say welcome aboard Looking forward to hearing more from you. TuftySue Wanna E Me? sue@... Wanna See Me? http://www.tuftysue.co.uk Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2002 Hi Kim, Just to say hello. Nice to meet you. My name is Lydia, I am Indonesian. I also like this mailing list, although I don't post as much. Lyd Kimberley <crippledvagabond@...> wrote: Hey, I've been on this list for awhile but haven't said much. I have SMA 2/3 but it affects my distal muscles (apparently rare phenotype). I'm in Calgary, Canada, studying Fine Arts. I feel like I've learnt alot from this email list, so many emails, even though I haven't contributed that much, it somehow makes me feel so much better about my SMA to hear about how all of you get on. Later! Kim >From: Biancucci >Reply- > >Subject: RE: Re: hey >Date: Thu, 16 May 2002 20:04:59 -0700 (PDT) > > > Hi , > Im , 23, from the bay area calif...full time college student at san >jose state univ. studying social work, work part time as social work intern >at stanford childrens hospital..single (looking=), like to read, watch tv, >go out to eat, lay out and tan, play w/ my dogs, internet stuff, shop... >SMAII, power scooter... >welcome to the list! > > Cody Namesnik wrote: Hey , > > > >Glad you could join the list! Welcome aboard. Tell us a little more >about your diagnosis? > > > >I'll say what I know about ; if she don't mind. She's 19yrs old >and lives in Provo, Utah. There not really quite sure if she has SMA for >sure, but she resembles its characteristics. She in a power wheel-chair >from a young age, never really walked. Has scholiosis & had spinal >fusion. Has had some respiratory issues and uses oxygen 24/7.. That's >all I really can say. > > > >Take Care, > >Cody Namesnik > >codemann@... > > Re: hey > > > >yeah......its me. the crazy girl from ICQ. hehe. i wanna get to know >people. somebody introduce me!!!! > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 4, 2003 In a message dated 5/4/2003 2:18:15 PM Central Daylight Time, mjs93311@... writes: > Mel, What's the address? Marta > > I think this is what I needed to post, but couldn't find it earlier. DS_Revisions_Postop-subscribe I'm new at all this.....LOL in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 12/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 04/06- 324.3 (minus 53.2 lbs) 05/02- 311 (minus 66.5 lbs) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 13, 2003 anyone know how to stop this nasty spam mail? -- Hey I hope this is the right adreess but I did what you said and posted the video of me and my twin sis I even went down on her, Its under NaughtyNurse http://www.hotpersonalad.com/landing.asp?afl=YYHO Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 13, 2003 Gil, thanks for being on top of this spam--most e-groups just expect you to ignore it....thanks for caring enough to try and make it so we dont have to. ali Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 13, 2003 I have added another requirement to new members, so I think NOW we will stop the spam - by stopping the spammers from joining. I deleted that message and the sender is banned from our group. I am very sorry about this #$ & @! I can not understand how people like that can look in the mirror. Thanks to all of you for your patience as we learn to deal with this new and disturbing trend. Group Master Gil Frishman > anyone know how to stop this nasty spam mail? > > > -- Hey > > I hope this is the right adreess > but I did what you said and posted the video of me and my twin sis > I even went down on her, Its under NaughtyNurse > > http://www.hotpersonalad.com/landing.asp?afl=YYHO > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 9, 2003 Hey , I'm 20 from Fl. SMA Type 2, if u wanna chat my ID is: mspurplepassion02. On aol MsBYGthoughts hope u gain a lot from this list I sure have! s, the Unique Princess " Follow your heart, your intuition, it will lead you in the right direction. " -Jewel Quote Share this post Link to post Share on other sites
