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I didn't send it to you and I notice that I too am getting mail from people

that I have never heard of. I am running virus software that is less than a

week old and up dated reg. Just delete and don't open anything with an

attachment.

Chris

RE: Question

> you sent an email to my address kdy@... but there was a

> virus - so AVG deleted all the content. Send to me again as soon as you

get

> it cleared up =)

> Kristi

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.298 / Virus Database: 161 - Release Date: 11/13/2001

>

>

>

>

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No, you place the label on the soap individually as you normally would, then

with a paint brush paint on the melted parafin wax. It will be rather dull,

so you now shine with an old clean nylon stocking. Voila!

Re: Question

> Can you spray the sheet of labels, and they'll still peel off????? I'm

> anxious to try this. Thanks a bunch Holly S

>

>

>

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I'm sorry, I thought you were trying to waterproof a soap lable on the

individual bars. If you are trying to waterproof a label on a jar, spray

with Spray Craft Sealer with 2 or 3 coats. Make sure you buy the

non-yellowing kind of sealer. It won't hurt the jar. It is crystal clear.

Re: Question

>

>

> Dumb 2nd Question. How do you get the spray on without messing up the

jar.,

> or do you do it with a paint brush??? Thanks for responding

> Kristi--------Holly S

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.298 / Virus Database: 161 - Release Date: 11/13/2001

>

>

>

>

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Tammy,

My understanding is that your information as manufacturer does need

to be included on the label. If your company isn't listed in the

local telephone directory then you have to have your complete address

on the label, otherwise, just name, city and state.

Tonya

> HI~

>

> I have been asked to consider making a salve for another soap

company and

> while they will provide their own labels, I am wondering what, if

any, the

> FDA requirements are on such an endeavor...ie does my contact info

need to

> be there as manufacturer?

> TIA

>

> Blessings~

> Tammy

> Gladheart Acres

> Palmer Alaska

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In a message dated 3/8/02 11:46:03 AM Eastern Standard Time,

Strider3@... writes:

>

>

>

>

>

>

> Do you know of any food that will keep you going 24

> hrs and not make you tired? The reason I ask is that

> I'll be going to Six Flags next Friday, and I don't

> want to get tired.

>

Well , Joan being the *food lady* will be able to tell you better, but

I would think foods high in protein would be good. Pack things like hard

boiled eggs, tuna, plenty of fruit. Stay away from heavy hold you down

foods like pasta, breads and french fries. They would also be NO FUN to

bring up after riding one of Six Flags' famous roller coasters.....;-)

Have fun!!!

Donna

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,

Just wanted you to know that I hope you have LOTS & LOTS of fun. Take

care.

Irma

>

> Do you know of any food that will keep you going 24

> hrs and not make you tired? The reason I ask is that

> I'll be going to Six Flags next Friday, and I don't

> want to get tired.

>

>

>

> =====

> " It means people on crutches and in a wheelchair can do anything. "

> --Hannah McFadden, age 4

>

> __________________________________________________

>

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hehehe, caffiene, sooo lots and lots of chocolates and pop, and carbos give you

energy too. shawna.

question

Do you know of any food that will keep you going 24

hrs and not make you tired? The reason I ask is that

I'll be going to Six Flags next Friday, and I don't

want to get tired.

=====

" It means people on crutches and in a wheelchair can do anything. "

--Hannah McFadden, age 4

__________________________________________________

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thanks, but I have to watch out on caffine the only

thing I need to worry

rebecca

--- greenpak <greenpak@...> wrote:

> hehehe, caffiene, sooo lots and lots of chocolates

> and pop, and carbos give you energy too. shawna.

> question

>

>

>

> Do you know of any food that will keep you going

> 24

> hrs and not make you tired? The reason I ask is

> that

> I'll be going to Six Flags next Friday, and I

> don't

> want to get tired.

>

>

>

> =====

> " It means people on crutches and in a wheelchair

> can do anything. "

> --Hannah McFadden, age 4

>

> __________________________________________________

>

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thanks so much

I'm just worried about the road- cause theirs this

young person that stole a truck and went from TX to OK

at 114 speed- and smashed into vehicles and killed a

person. .

--- mum592001 <ICANFIELD@...> wrote:

> ,

> Just wanted you to know that I hope you have LOTS &

> LOTS of fun. Take

> care.

> Irma

>

>

> >

> > Do you know of any food that will keep you going

> 24

> > hrs and not make you tired? The reason I ask is

> that

> > I'll be going to Six Flags next Friday, and I

> don't

> > want to get tired.

> >

> >

> >

> > =====

> > " It means people on crutches and in a wheelchair

> can do anything. "

> > --Hannah McFadden, age 4

> >

> > __________________________________________________

> >

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Thanks.

I didn't know that breads or fries slows you down.

I'll keep that in mind- and I'll defently have

bounches of fruit. .

--- duffey48@... wrote:

> In a message dated 3/8/02 11:46:03 AM Eastern

> Standard Time,

> Strider3@... writes:

>

>

> >

> >

> >

> >

> >

> >

> > Do you know of any food that will keep you going

> 24

> > hrs and not make you tired? The reason I ask is

> that

> > I'll be going to Six Flags next Friday, and I

> don't

> > want to get tired.

> >

>

> Well , Joan being the *food lady* will be

> able to tell you better, but

> I would think foods high in protein would be good.

> Pack things like hard

> boiled eggs, tuna, plenty of fruit. Stay away from

> heavy hold you down

> foods like pasta, breads and french fries. They

> would also be NO FUN to

> bring up after riding one of Six Flags' famous

> roller coasters.....;-)

> Have fun!!!

> Donna

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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Becky,

Have you gotten any information from the IDF? They have a wonderful

packet of information for parents, that has tons of detailed information

like the IgG ranges etc. They also include a computer program or a video

called " A Day in the Life " , it is geared for about 8 years old and up,

it explains a normal immune system, and then a pid kids immune system.

It follows a pre teen boy through his day of getting IVIG. They also

include a children's book. For Kody and his school, I printed out a copy

of all the things that pertained to him right from the IDF manual, I

included the video for them to watch as well as a home video I made of

Kody getting his own IVIG. I also talked to our pediatrician who wrote

me a short letter stating Kody's diagnosis and his opinion on how it

will effect Kody's learning and school attendance. And I included web

sites that they could look up themselves to learn more. jmfworld.com has

a link to a site specifically for teachers. ( or they did, I haven't

looked recently). Does Maddie have an IEP? If not request one, and get

her POHI (physically and otherwise health impaired) labeled (I hate

labels but this gives our kids a fair chance in school), included in

that POHI packet is a statement that has to be signed by Maddie's

doctors. What happens with POHI, is that the school cannot hold Maddie

back because of missed school days (too many and they have to provide

her with a tutor at their expense) and she will be in regular

classrooms, not special ed. It makes it so that when Maddie is

miserable, you do not feel like you HAVE to send her to school, she can

be home with you and comfortable instead! What the IEP and POHI does

best is force the school to cooperate with you, and work around Maddie's

needs. About the EEG, does she see a neurologist for that? If so, call

and ask what it meant!!! By now, all of Kody's doctors know that I have

an incredible need to know all details in great detail and our

communication is wonderful now. But if I had never started asking

questions, I'd still be in the dark. I worried that they would think I

was a pain in the butt, but on the contrary, I have gained their

respect. Good luck to you, hope that helped!!

Diane, Mom to Kody, age 6, IgG sub def, epilepsy, asthma, GERD

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thanks , 's is a 5mm. He is seeing someone may 13th at Vanderbilt. I

sure appreciate the advice, I agree that he should be looked at further, Dawn,

take care!

Re: question

3 of my kids have AAI. Sam. , and Esther. I have been told that it is

not a problem below a 5(mm ?). I have a friend whose daughter had a 5.5 fel

off the bed, broke her neck and was in a halo for 9 months before it got

better. I would get it checked. They can fuse the area. Good luck

& Garry, parents of (11 ds), (10 ds), JJ (8

ds/autism/celiac), (7 ds/ADHD/Celiac), and Esther (5 ds). All adopted.

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3 of my kids have AAI. Sam. , and Esther. I have been told that it is

not a problem below a 5(mm ?). I have a friend whose daughter had a 5.5 fel

off the bed, broke her neck and was in a halo for 9 months before it got

better. I would get it checked. They can fuse the area. Good luck

& Garry, parents of (11 ds), (10 ds), JJ (8

ds/autism/celiac), (7 ds/ADHD/Celiac), and Esther (5 ds). All adopted.

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I think a middle or a high schooler had a head halo

on for about 7 months or so. I know he shared his

story about what happened to him in church. I think

he said the doctors just wanted it to heal on it's

own. I think he had a broken neck, or something. . I

don't remember. But I can ask a friend if you need

information about halo's or stuff.

--- dawn ligon <DPLigon@...> wrote:

> thanks , 's is a 5mm. He is seeing

> someone may 13th at Vanderbilt. I sure appreciate

> the advice, I agree that he should be looked at

> further, Dawn, take care!

>

> Re: question

>

> 3 of my kids have AAI. Sam. , and Esther. I

> have been told that it is

> not a problem below a 5(mm ?). I have a friend

> whose daughter had a 5.5 fel

> off the bed, broke her neck and was in a halo for 9

> months before it got

> better. I would get it checked. They can fuse the

> area. Good luck

>

> & Garry, parents of (11 ds), (10

> ds), JJ (8

> ds/autism/celiac), (7 ds/ADHD/Celiac), and

> Esther (5 ds). All adopted.

>

>

>

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sorry I can't help you

I don't know exactly what that condition is

--- dpligon37129 <DPLigon@...> wrote:

> hey guys, just wondering if any of your kids have

> this Atlantoaxial

> Instability that our kids can sometimes have,

> had this exray

> when he was 2 and now just again because his pt

> feels since he stands

> on his head so much and puts so much presure on his

> neck (this is all

> sensory related, presure on head and all) so the dr.

> called today and

> said he needs to see a ped. orthapedic (sp)dr. He

> said he could

> possibly need to have this fusion surgery.

>

> I called my old pt in Ky. who is great and she said

> to make sure we

> check with nuro surgeon too. Anyone know about this?

> I am a bit

> stunned but am just trying to find some info. on

> internet to learn

> more. He has his sleep study (reschedualed)

> tommaoreow, and this is

> why I cant even spell. guess I am a bit stressed but

> I know

> everything will be okay, thank youguys for always

> listening. hope

> everyone is doing okay, (very thankful I have good

> therapists who

> told me to get another exray!) God Bless all, Dawn

> 's mom

>

>

=====

It's National Autism Awareness Month.

__________________________________________________

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thanks , I am just searching the internet and will wait for his dr.

appointment, take care, Dawn

Re: question

>

> 3 of my kids have AAI. Sam. , and Esther. I

> have been told that it is

> not a problem below a 5(mm ?). I have a friend

> whose daughter had a 5.5 fel

> off the bed, broke her neck and was in a halo for 9

> months before it got

> better. I would get it checked. They can fuse the

> area. Good luck

>

> & Garry, parents of (11 ds), (10

> ds), JJ (8

> ds/autism/celiac), (7 ds/ADHD/Celiac), and

> Esther (5 ds). All adopted.

>

>

>

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anytime

--- dawn ligon <DPLigon@...> wrote:

> thanks , I am just searching the internet and

> will wait for his dr. appointment, take care, Dawn

>

> Re: question

> >

> > 3 of my kids have AAI. Sam. , and Esther. I

> > have been told that it is

> > not a problem below a 5(mm ?). I have a friend

> > whose daughter had a 5.5 fel

> > off the bed, broke her neck and was in a halo for

> 9

> > months before it got

> > better. I would get it checked. They can fuse

> the

> > area. Good luck

> >

> > & Garry, parents of (11 ds),

> (10

> > ds), JJ (8

> > ds/autism/celiac), (7 ds/ADHD/Celiac), and

> > Esther (5 ds). All adopted.

> >

> >

> >

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In a message dated 4/15/02 8:55:28 PM Eastern Daylight Time, DPLigon@...

writes:

> I called my old pt in Ky. who is great and she said to make sure we

> check with nuro surgeon too. Anyone know about this? I am a bit

> stunned but am just trying to find some info. on internet to learn

> more. He has his sleep study (reschedualed) tommaoreow, and this is

> why I cant even spell. guess I am a bit stressed but I know

> everything will be okay

Dawn,

Well, we surely understand the stress!!!! Maddie had a sleep

study....rest up indeed!! Cracks me up that they call it a *sleep* study

since neither one of us slept!!! ;-)

Maddie had the AAI x-ray twice also, once because they were putting tubes

in her ears and wanted to make sure she didn't have it, and then again at the

required age. I don't really understand what type of fusion they do, but I

had spinal fusion surgery. I would also check with a neuro. My

understanding is that when it is the thoracic or lumbar sections of the

spine, you see an ortho, when it's cervical you see a neuro.

Giant {{{{{{{{{{{{{{Hugs}}}}}}}}}}}}}}}} and please let us know!!! You can

vent ANY time here!!!!

Donna

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dawn, they check nathan every couple years, or so, soemthing to do with growth

times in certain ages, when a toddler and angain school age, then i forget after

that. I know nathan also gets it checked for special olympics, which by the way

are tomarrow here, nathan will be running (hopefully keep your fingers crossed)

and the softball throw since he cant swim this year because of his ears. prayers

for good outcomes on andrews xrays, and a noneventful surgery if needed, ive met

other children with ds whove had that surgery done for the same reason, without

any probs. shawna.

question

hey guys, just wondering if any of your kids have this Atlantoaxial

Instability that our kids can sometimes have, had this exray

when he was 2 and now just again because his pt feels since he stands

on his head so much and puts so much presure on his neck (this is all

sensory related, presure on head and all) so the dr. called today and

said he needs to see a ped. orthapedic (sp)dr. He said he could

possibly need to have this fusion surgery.

I called my old pt in Ky. who is great and she said to make sure we

check with nuro surgeon too. Anyone know about this? I am a bit

stunned but am just trying to find some info. on internet to learn

more. He has his sleep study (reschedualed) tommaoreow, and this is

why I cant even spell. guess I am a bit stressed but I know

everything will be okay, thank youguys for always listening. hope

everyone is doing okay, (very thankful I have good therapists who

told me to get another exray!) God Bless all, Dawn 's mom

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a, thanks for the comforting words, it sounds kinda scary so to hear that

other kids have gone through this helps me!! Wish the best of weather for you

guys for special olympics!!! yeaaaa, have so much fun!! Go , take care,

Dawn

question

hey guys, just wondering if any of your kids have this Atlantoaxial

Instability that our kids can sometimes have, had this exray

when he was 2 and now just again because his pt feels since he stands

on his head so much and puts so much presure on his neck (this is all

sensory related, presure on head and all) so the dr. called today and

said he needs to see a ped. orthapedic (sp)dr. He said he could

possibly need to have this fusion surgery.

I called my old pt in Ky. who is great and she said to make sure we

check with nuro surgeon too. Anyone know about this? I am a bit

stunned but am just trying to find some info. on internet to learn

more. He has his sleep study (reschedualed) tommaoreow, and this is

why I cant even spell. guess I am a bit stressed but I know

everything will be okay, thank youguys for always listening. hope

everyone is doing okay, (very thankful I have good therapists who

told me to get another exray!) God Bless all, Dawn 's mom

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I was told to wash out with alcohol real good and then real hot soap wash. Hope

this is helpful.

Sharon :)

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Hi everyone,

Just wanted to know what the best method is for taking out the FO scent left

behind on glassware....

I made some solid perfume yesterday and I can't get rid of the scent left

behind on the pyrex glassware I used. Thanks! :0)

Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

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Hi Patty,

A quick question if you don't mind. My girls Tara and sing and are

putting on a concert in the summer. We are going to invite relative and

friends to the event and whilst everyone will bring a dish of food, all have

agreed to pay a few quid to go into the hall.

The girls wish to donate the money to Stills - is there a Stills research

group or something in England?

Hope you are well

Love, Health and Happiness

a, Oliver, Dave and the clan

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Hi there a,

I know you addressed this to Patty, but, also mentioned it in the

e-mail you sent me...so I will answer and Patty or Bob or someone

else can let you know if this is wrong. The donations that go into

the Stills fund here in the U.S. go into what is called " INTERNATIONAL

STILLS DISEASE FOUNDATION, INC. So, this means the whole

world I guess...you included. Everyone, everywhere can benefit from

this....there is a place on the Stills Site where Free Brochures are

offered, this would not be possible if not for the donations. If you

send your name and address to Kate, she will send you a few. Then

if you send your name and address to Bob. I will get his e-mail addy

to you...when there is another batch of brochures made up, you will

receive some more if you would like. The " fund " is where the money

comes to have the brochures made for instance, and they hopefully

one day will reach from one end of the earth to the other. We would

like to make it possible that *everyone* knows what Stills Disease is.,

just as they know what Parkinson's or Diabetes is.

Most of us here know what it is like to have family and or friends try

to get us to take herbs or whatever, and thinking that if we do this,

it will surely cure this Stills thing. Not so. This disease is not curable,

(at this time) we learn how to keep it under control and cope with it.

I am not 100% against so called " natural remedies, " it's just that we

have to be very careful that we don't take something that " could " make

the disease worse. You sound like you are very " on top of everything. "

You are a delight to know a.

Your doctor telling you *not* to drive car...I understand what you mean,

just drive anyway, but don't tell the doctor right?? What he don't know

won't hurt him. Did he tell you how he expected you to get from here to

there??

You and yours have a delightful weekend,

Your friend, tricia

Bob Himes & his wife Carole are Secty/treasurer for the group.

This is his e-mail addy: oldgoat378@...

-- Re: question

Hi Patty,

A quick question if you don't mind. My girls Tara and sing and are

putting on a concert in the summer. We are going to invite relative and

friends to the event and whilst everyone will bring a dish of food, all have

agreed to pay a few quid to go into the hall.

The girls wish to donate the money to Stills - is there a Stills research

group or something in England?

Hope you are well

Love, Health and Happiness

a, Oliver, Dave and the clan

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Hey there a, I'm up to company today but before they arrive I just

wanted to say what sweet dear girls. I notice that Tricia has been right on

top of the e-mail today, so I'm sure you will have that addy for Bob, our

treasurer soon. Big hugs and love to so many that think of others. Have a

sunny day with lots of smiles, Patty

Re: question

> Hi Patty,

> A quick question if you don't mind. My girls Tara and sing and

are

> putting on a concert in the summer. We are going to invite relative and

> friends to the event and whilst everyone will bring a dish of food, all

have

> agreed to pay a few quid to go into the hall.

>

> The girls wish to donate the money to Stills - is there a Stills research

> group or something in England?

>

> Hope you are well

> Love, Health and Happiness

> a, Oliver, Dave and the clan

>

>

>

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There are many tests left to do besides IgA and IgG. I don't think it

would be borrowing trouble at all, I think that unless they have tested

everything, you don't have an exact clear picture to work with. And yeah

it is possible for the numbers to be different each time you are tested.

You may have normal IgG's now but have very low ones the next time they

are tested. And the opposite can happen. And you are not paranoid!!

Although I do think that as parents of pid kids, we do become paranoid

out of necessity! lol

Diane Mom to Kody

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