Question

[Guest guest]

Sammi, please list the recipe to the group. What went wrong?. I would not

heat lye on the stove. I usually mix mine the day before and and usse it

at room temp or cooler depending how long I keep it in the cellar.

Jeanine

Jeanine's Hummingbird Soap Works

question

Hello there,

I was wondering if anyone has a recipe for a 4 pound or a 2 pound batch of

CP soap? I tried one in a book and it turned out wrong. Also, can you tell

me if we can re-heat lye on the stove if it drops below the temp.? A book I

was reading said to do it it warm water.

Thanks,

Sammi

[Guest guest]

You've gotten good advice from Becky and Jeanine. I'd be happy to help you

develop a formula with oils you have on hand and figure out how to use a lye

calc if you don't know how. It's *essential *for good soapmaking.

As Jeanine said, never heat lye. It's not only unnecessary, but it's

potentially dangerous. And as Becky said, you can let the lye cool to room

temp. without any problems at all. I prefer doing it that way, in fact. I

make my lye water and melt my hard oils. Then, I add my liquid oils and mix

them in. At this point, I can soap as soon as the temps cool to warmish, as

in I can touch the containers and they feel just a little warm, or I can let

the whole thing wait until the next day, and make the soap.

I know that a lot of books say that the temps have to be the same and just

so, but it's not true. They have to be cooled at least to the warmth I

described above to prevent spattering, but they don't have to hot or the

same temp.

If you'd like to give us your formula and procedure, maybe we can help you

figure out what went wrong. What makes you think something's wrong?

Beth Byrne

http://www.SoapAndGarden.com

Soap, get the real thing!

http://www.Saponifier.com

On Mon, May 10, 2010 at 11:22 AM, Sammi <simplysoap2010@...>wrote:

>

>

> Hello there,

> I was wondering if anyone has a recipe for a 4 pound or a 2 pound batch of

> CP soap? I tried one in a book and it turned out wrong. Also, can you tell

> me if we can re-heat lye on the stove if it drops below the temp.? A book I

> was reading said to do it it warm water.

>

> Thanks,

> Sammi

>

>

>

[Guest guest]

where are you located?

Caudle

The most beautiful things in the world

cannot be seen or even touched,

they must be felt with the heart....

question

>I have a daughter who is 27. While she was diagnosed 22 years ago as a high

>functioning moderate autistic, those who first meet her think she is

>Aspergers. My husband is also Aspergers.

>

> I know so many people who are autistic/Asperger's that are also either

> bipolar or schizophrenic. My question is how many people on this list also

> have a child/spouse/family member/friend who has the same problem.

>

> I think it has to do with the anxiety so many on the spectrum deal with

> that it causes other problems.

>

> In my daughter's case they have had a hard time diagnosing her because she

> has some symptoms from one thing and some from another thing but not

> enough to really be considered as either. One of the biggest problems is

> that we can't seem to find a psychologist that deals with adults with

> autism and how mental illness effects it.

>

> I am waiting for the day when there are more doctors that understand

> adults with autism spectrum disorder and how anxiety and stress truly

> affects them.

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi Robin,

My son who is 10 now was assessed with PPD(nos)a few years ago when he was 5 yrs

old, which does not qualify for services. This label falls right behind high

fuctioning Aspergers which was created as if they are knocking at the door or

wanting to get out of the autism spectrum. My son had so many typical quirks of

Aspergers and some of those have diminished or disappeared. My son's social

skills are rusty but way better than it used to be. He thrives wanting to have

friends and be accepted by his regluar peers. Could your dd possibly be

'labeled' PDD(nos)? Just a thought.

There are so many ways to approach and encourage these kids strengths but I am

so torn as to who to implement them. It seems the industry wants to focus on the

children first so they grow up as normal as possible. 20 yrs ago, they did not

have the studies, services they have presently so your dd may have missed the

opportunity for the help needed.

Hope this helps

Ronit

>

> where are you located?

>

> Caudle

>

> The most beautiful things in the world

> cannot be seen or even touched,

> they must be felt with the heart....

> question

>

>

> >I have a daughter who is 27. While she was diagnosed 22 years ago as a high

> >functioning moderate autistic, those who first meet her think she is

> >Aspergers. My husband is also Aspergers.

> >

> > I know so many people who are autistic/Asperger's that are also either

> > bipolar or schizophrenic. My question is how many people on this list also

> > have a child/spouse/family member/friend who has the same problem.

> >

> > I think it has to do with the anxiety so many on the spectrum deal with

> > that it causes other problems.

> >

> > In my daughter's case they have had a hard time diagnosing her because she

> > has some symptoms from one thing and some from another thing but not

> > enough to really be considered as either. One of the biggest problems is

> > that we can't seem to find a psychologist that deals with adults with

> > autism and how mental illness effects it.

> >

> > I am waiting for the day when there are more doctors that understand

> > adults with autism spectrum disorder and how anxiety and stress truly

> > affects them.

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

In our generation, I have a daughter who will be 21, they didn't know nearly as much about autism. Often misdiagnosed first, and most often diagnosed late. In the early to mid teens at the soonest. There were so many fewer of them then. And then the numbers ballooned/mushroomed with mercury in vaccines. And the majority of families with someone with autism, now, their kids are small. Something like 233X more kids in the 90s than in the 80s when my daughter was born. . . increased by 99%. My father was asperger's. I also was married to someone with Asperger's. And my daughter dated someone with Asperger's, before present boyfriend. Brain injury, functions pretty regularly. I'd enjoy an opportunity to talk to you off the loop about what it's like to live with a man with Asperger's. . .does he use treatment of any kind? We have a close college age friend, who is very high functioning asperger's, doing very well. We keep up with her, even after she moved off to graduate school. . .

Nina

On Sun, 09 May 2010 23:24 +0000, " stephen " <robindeutsch@...> wrote:

I have a daughter who is 27. While she was diagnosed 22 years ago as a high functioning moderate autistic, those who first meet her think she is Aspergers. My husband is also Aspergers.

I know so many people who are autistic/Asperger's that are also either bipolar or schizophrenic. My question is how many people on this list also have a child/spouse/family member/friend who has the same problem.

I think it has to do with the anxiety so many on the spectrum deal with that it causes other problems.

In my daughter's case they have had a hard time diagnosing her because she has some symptoms from one thing and some from another thing but not enough to really be considered as either. One of the biggest problems is that we can't seem to find a psychologist that deals with adults with autism and how mental illness effects it.

I am waiting for the day when there are more doctors that understand adults with autism spectrum disorder and how anxiety and stress truly affects them.

--

Nina Forest

autismlearning@...

[Guest guest]

I HAVE 2 CHILDREN WITH AUTISIM AND OTHER MENTAL HEALTH NEEDS

In a message dated 5/10/2010 11:17:57 P.M. Eastern Daylight Time, robindeutsch@... writes:

I have a daughter who is 27. While she was diagnosed 22 years ago as a high functioning moderate autistic, those who first meet her think she is Aspergers. My husband is also Aspergers.I know so many people who are autistic/Asperger's that are also either bipolar or schizophrenic. My question is how many people on this list also have a child/spouse/family member/friend who has the same problem.I think it has to do with the anxiety so many on the spectrum deal with that it causes other problems.In my daughter's case they have had a hard time diagnosing her because she has some symptoms from one thing and some from another thing but not enough to really be considered as either. One of the biggest problems is that we can't seem to find a psychologist that deals with adults with autism and how mental illness effects it.I am waiting for the day when there are more doctors that understand adults with autism spectrum disorder and how anxiety and stress truly affects them.

[Guest guest]

My son was actually misdiagnosed as Oppositional Defiant Disorder for a long time. Every where we went doctors were like if he is ODD he is on the good side of ODD. He was finally diagnosed Ausberger's Feb 09 while living in a children home. He has done fabulous since coming home. We were treating him for the ODD and making it much worse. Not sure where your located or your religious faction, but I can keep you in my prayers and hope that it comes together for your daughter.RobbynFrom: stephen <robindeutsch@...>Subject: questionAutism and Aspergers Treatment Date: Sunday, May 9,

2010, 11:24 PM

I have a daughter who is 27. While she was diagnosed 22 years ago as a high functioning moderate autistic, those who first meet her think she is Aspergers. My husband is also Aspergers.

I know so many people who are autistic/Asperger' s that are also either bipolar or schizophrenic. My question is how many people on this list also have a child/spouse/ family member/friend who has the same problem.

I think it has to do with the anxiety so many on the spectrum deal with that it causes other problems.

In my daughter's case they have had a hard time diagnosing her because she has some symptoms from one thing and some from another thing but not enough to really be considered as either. One of the biggest problems is that we can't seem to find a psychologist that deals with adults with autism and how mental illness effects it.

I am waiting for the day when there are more doctors that understand adults with autism spectrum disorder and how anxiety and stress truly affects them.

[Guest guest]

If we wait for the medical profession, our kids will grow ancient. I'm another one for prayer.

Speak with Him Thou for He hearest.

Spirit with Spirit can speak.

Closer is Love than breathing,

Nearer than hands and feet.

(with appreciation for Tennyson)

question

Autism and Aspergers Treatment

Date: Sunday, May 9, 2010, 11:24 PM

I have a daughter who is 27. While she was diagnosed 22 years ago as a high functioning moderate autistic, those who first meet her think she is Aspergers. My husband is also Aspergers.

I know so many people who are autistic/Asperger' s that are also either bipolar or schizophrenic. My question is how many people on this list also have a child/spouse/ family member/friend who has the same problem.

I think it has to do with the anxiety so many on the spectrum deal with that it causes other problems.

In my daughter's case they have had a hard time diagnosing her because she has some symptoms from one thing and some from another thing but not enough to really be considered as either. One of the biggest problems is that we can't seem to find a psychologist that deals with adults with autism and how mental illness effects it.

I am waiting for the day when there are more doctors that understand adults with autism spectrum disorder and how anxiety and stress truly affects them.

[Guest guest]

We are in Yelm, Washington or as my daughter says, the middle of nowhere.

>

> where are you located?

>

> Caudle

>

> The most beautiful things in the world

> cannot be seen or even touched,

> they must be felt with the heart....

> question

>

>

> >I have a daughter who is 27. While she was diagnosed 22 years ago as a high

> >functioning moderate autistic, those who first meet her think she is

> >Aspergers. My husband is also Aspergers.

> >

> > I know so many people who are autistic/Asperger's that are also either

> > bipolar or schizophrenic. My question is how many people on this list also

> > have a child/spouse/family member/friend who has the same problem.

> >

> > I think it has to do with the anxiety so many on the spectrum deal with

> > that it causes other problems.

> >

> > In my daughter's case they have had a hard time diagnosing her because she

> > has some symptoms from one thing and some from another thing but not

> > enough to really be considered as either. One of the biggest problems is

> > that we can't seem to find a psychologist that deals with adults with

> > autism and how mental illness effects it.

> >

> > I am waiting for the day when there are more doctors that understand

> > adults with autism spectrum disorder and how anxiety and stress truly

> > affects them.

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

When she was diagnosed 22 years ago she had almost every single symptom of

autism. There is no doubt that she is autistic still. However she has improved

greatly from the time she was a child.

It is hard when you can't get services that are really needed. I know that when

they come out with the new DSM-V in 2012 or 2013 they are grouping PDD in with

autism and just calling autism the autistic spectrum disorder and no longer

breaking it down. That might help.

Robin

> >

> > where are you located?

> >

> > Caudle

> >

> > The most beautiful things in the world

> > cannot be seen or even touched,

> > they must be felt with the heart....

> > question

> >

> >

> > >I have a daughter who is 27. While she was diagnosed 22 years ago as a high

> > >functioning moderate autistic, those who first meet her think she is

> > >Aspergers. My husband is also Aspergers.

> > >

> > > I know so many people who are autistic/Asperger's that are also either

> > > bipolar or schizophrenic. My question is how many people on this list also

> > > have a child/spouse/family member/friend who has the same problem.

> > >

> > > I think it has to do with the anxiety so many on the spectrum deal with

> > > that it causes other problems.

> > >

> > > In my daughter's case they have had a hard time diagnosing her because she

> > > has some symptoms from one thing and some from another thing but not

> > > enough to really be considered as either. One of the biggest problems is

> > > that we can't seem to find a psychologist that deals with adults with

> > > autism and how mental illness effects it.

> > >

> > > I am waiting for the day when there are more doctors that understand

> > > adults with autism spectrum disorder and how anxiety and stress truly

> > > affects them.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

My husband doesn't take anything for his problems. He hates change, has a hard

time with crowds, doesn't like to socialize and sudden sounds make him jump. But

he has been with the same company for 32 years now. When he was younger he was

on anti-anxiety meds but has been off of them now for 37 years. I know what

bothers him and what he could handle so I take care of things all the time.

Sometimes he has trouble dealing with Marcy because she is so much like him.

It's funny but things like the phone ringing cause both of them to jump and make

the same sound. I kid them that I get all that in stereo.

>

>

> I have a daughter who is 27. While she was diagnosed 22 years ago

> as a high functioning moderate autistic, those who first meet her

> think she is Aspergers. My husband is also Aspergers.

> I know so many people who are autistic/Asperger'

> s that are also either bipolar or schizophrenic. My question is

> how many people on this list also have a child/spouse/family

> member/friend who has the same problem.

> I think it has to do with the anxiety so many on the spectrum

> deal with that it causes other problems.

> In my daughter's case they have had a hard time diagnosing her

> because she has some symptoms from one thing and some from

> another thing but not enough to really be considered as either.

> One of the biggest problems is that we can't seem to find a

> psychologist that deals with adults with autism and how mental

> illness effects it.

> I am waiting for the day when there are more doctors that

> understand adults with autism spectrum disorder and how anxiety

> and stress truly affects them.

>

>

>

> References

>

> 1. mailto:robindeutsch@...?subject=question

> 2. mailto:Autism and Aspergers Treatment ?subject=question

> 3.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJxOTNtMzQ2BF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM1Njk3BHNlYwNmdHI\

Ec2xrA3JwbHkEc3RpbWUDMTI3MzU0Nzg3NQ--?act=reply & messageNum=35697

> 4.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJlNXQ4cHZpBF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA250cGMEc3R\

pbWUDMTI3MzU0Nzg3NQ--

> 5.

Autism and Aspergers Treatment/message/6;_ylc=X3oDMTMyNmFvZjljBF\

9TAzk3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM1Njk3BHNlYw\

NmdHIEc2xrA3Z0cGMEc3RpbWUDMTI3MzU0Nzg3NQR0cGNJZAM2

> 6.

Autism and Aspergers Treatment;_ylc=X3oDMTJlcmtzNWsyBF9TAzk3MzU5\

NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUD\

MTI3MzU0Nzg3NA--

> 7.

http://us.ard./SIG=15rg758ma/M=493064.13983314.14041046.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1273555075/L=cadc926e-5cab-11df-b830-bf21328\

e2e7e/B=xYKbSGKImnI-/J=1273547875710242/K=sL9AKNLDFhHEXDs_OsLp0w/A=6060255/R=0/S\

IG=1194m4keh/*http://us.toolbar./?.cpdl=grpj

> 8.

http://us.ard./SIG=15rsafgu4/M=493064.13814537.14041040.10835568/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1273555075/L=cadc926e-5cab-11df-b830-bf21328\

e2e7e/B=xoKbSGKImnI-/J=1273547875710242/K=sL9AKNLDFhHEXDs_OsLp0w/A=6078812/R=0/S\

IG=114ae4ln1/*http://dogandcatanswers./

> 9.

http://us.ard./SIG=15r3srovr/M=493064.14012770.13963757.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1273555075/L=cadc926e-5cab-11df-b830-bf21328\

e2e7e/B=x4KbSGKImnI-/J=1273547875710242/K=sL9AKNLDFhHEXDs_OsLp0w/A=6015306/R=0/S\

IG=11vlkvigg/*http://advision.webevents./hobbiesandactivitieszone/

> 10.

;_ylc=X3oDMTJkaXZvOW10BF9TAzk3MzU5NzE0BGdycElkAzE4MDAzMz\

IEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA2dmcARzdGltZQMxMjczNTQ3ODc1

> 11.

mailto:Autism and Aspergers Treatment-traditional ?subject=Change%20Delivery%20\

Format:%20Traditional

> 12.

mailto:Autism and Aspergers Treatment-digest ?subject=Email%20Delivery:%20Diges\

t

> 13. mailto:Autism and Aspergers Treatment-unsubscribe ?subject=Unsubscribe

> 14.

> --

> Nina Forest

> autismlearning@...

>

[Guest guest]

Thanks so much. I deal with a son with ODD as well. His grandfather was also

ODD. He argues with everything you tell him to do. I found that by just telling

him and walking away he does what I asked eventually. My husband still has to

argue and it could go on and on.

Sometimes it is more difficult to deal with that than my daughter's problems.

is very social and has none of the autistic qualities.

He is the one that developed that website, a free social media networking site

called psychmoo.com for the mentally interesting. He was tired of his sister

being bullied on forums. Her problem is that she sometimes misinterupts what

people say and take it wrong and then she gets all upset. She sees things as

either black or white with no shades of grey at all.

>

> From: stephen <robindeutsch@...>

> Subject: question

> Autism and Aspergers Treatment

> Date: Sunday, May 9, 2010, 11:24 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> I have a daughter who is 27. While she was diagnosed 22 years ago as a

high functioning moderate autistic, those who first meet her think she is

Aspergers. My husband is also Aspergers.

>

>

>

> I know so many people who are autistic/Asperger' s that are also either

bipolar or schizophrenic. My question is how many people on this list also have

a child/spouse/ family member/friend who has the same problem.

>

>

>

> I think it has to do with the anxiety so many on the spectrum deal with that

it causes other problems.

>

>

>

> In my daughter's case they have had a hard time diagnosing her because she has

some symptoms from one thing and some from another thing but not enough to

really be considered as either. One of the biggest problems is that we can't

seem to find a psychologist that deals with adults with autism and how mental

illness effects it.

>

>

>

> I am waiting for the day when there are more doctors that understand adults

with autism spectrum disorder and how anxiety and stress truly affects them.

>

[Guest guest]

well that is a little far my son goes to a good clinic in Salt Lake city,

Ut for his moods/ocd/anxiety issues I have been very happy with them it is

a 5 hr drive for us but we now only go once or twice a year

Caudle

The most beautiful things in the world

cannot be seen or even touched,

they must be felt with the heart....

question

>>

>>

>> >I have a daughter who is 27. While she was diagnosed 22 years ago as a

>> >high

>> >functioning moderate autistic, those who first meet her think she is

>> >Aspergers. My husband is also Aspergers.

>> >

>> > I know so many people who are autistic/Asperger's that are also either

>> > bipolar or schizophrenic. My question is how many people on this list

>> > also

>> > have a child/spouse/family member/friend who has the same problem.

>> >

>> > I think it has to do with the anxiety so many on the spectrum deal with

>> > that it causes other problems.

>> >

>> > In my daughter's case they have had a hard time diagnosing her because

>> > she

>> > has some symptoms from one thing and some from another thing but not

>> > enough to really be considered as either. One of the biggest problems

>> > is

>> > that we can't seem to find a psychologist that deals with adults with

>> > autism and how mental illness effects it.

>> >

>> > I am waiting for the day when there are more doctors that understand

>> > adults with autism spectrum disorder and how anxiety and stress truly

>> > affects them.

>> >

>> >

>> >

>> > ------------------------------------

>> >

>> >

[Guest guest]

why doesn't pdd-nos qualify? that is actually what my sons diag was 18

years ago and he is clearly low functioning autistic lots of people I know

have kids with the pdd diag and they get services depending on what the

child needs

Caudle

The most beautiful things in the world

cannot be seen or even touched,

they must be felt with the heart....

question

>> >

>> >

>> > >I have a daughter who is 27. While she was diagnosed 22 years ago as a

>> > >high

>> > >functioning moderate autistic, those who first meet her think she is

>> > >Aspergers. My husband is also Aspergers.

>> > >

>> > > I know so many people who are autistic/Asperger's that are also

>> > > either

>> > > bipolar or schizophrenic. My question is how many people on this list

>> > > also

>> > > have a child/spouse/family member/friend who has the same problem.

>> > >

>> > > I think it has to do with the anxiety so many on the spectrum deal

>> > > with

>> > > that it causes other problems.

>> > >

>> > > In my daughter's case they have had a hard time diagnosing her

>> > > because she

>> > > has some symptoms from one thing and some from another thing but not

>> > > enough to really be considered as either. One of the biggest problems

>> > > is

>> > > that we can't seem to find a psychologist that deals with adults with

>> > > autism and how mental illness effects it.

>> > >

>> > > I am waiting for the day when there are more doctors that understand

>> > > adults with autism spectrum disorder and how anxiety and stress truly

>> > > affects them.

>> > >

>> > >

>> > >

>> > > ------------------------------------

>> > >

>> > >

[Guest guest]

I would suggest taking the time to read through Kathy 's site. She was

very helpful to me when I first started soaping. Here is the link and welcome to

the addiction.

http://www.millersoap.com/

Mrs. Rovenea A.

When you control a man's thinking you do not have to worry about his actions.

www.heavensgiftjust4you.com

From: koalas_boutique <Koalas_boutique@...>

Subject: Re: question

Date: Thursday, May 13, 2010, 10:48 AM

 

hi there, if you are just starting out with soap making, which it seems as if

you are I would recommend what was told to me.

Start with a simple castile soap. I have one here called bunny's castile. Bunny

was a member on another group and she shared it with everyone. what makes it so

nice is that it uses liquid oils (mostly olive and 1- 4oz bottle of castor oil

from the grocery store) so you dont need to worry at all about temps and your

soap doing crazy things because the oils are too hot or whatnot. also for a

first try you might want to hold off on FOs as they can make soap do crazy

things too.

Then when you get the hang of it try adding some FO or experiment with adding

herbs, coffee water or fruit or veggie juices. Using a simple basic recipe like

a castile can give you so many options and you can see what differant additives

can do to your soap like adding silk enzymes or the silkiness you get using

potato water(water you boiled potatoes in, the starch from the potaoes makes it

slick) or try adding tapioca or rice powered(again from the grocery store) or

salt or various clays.

now for that recipe I will have to find my notebook whichi misplaced in my mess

of a bedroom. you may be able to find it online under Bunny's castile I will

search. I believe it was 32 ox olive oil (get pomace as it is cheapest) and 4oz

of castor oil. i am not sure how much water of lye. I will have to look it up.

good luck.

>

> Hello there,

> I was wondering if anyone has a recipe for a 4 pound or a 2 pound batch of CP

soap? I tried one in a book and it turned out wrong. Also, can you tell me if we

can re-heat lye on the stove if it drops below the temp.? A book I was reading

said to do it it warm water.

>  

> Thanks,

> Sammi

>

>

>

>

>

[Guest guest]

I know several kids who got the pdd diagnosis, they didn't qualify for SSI,

though they did get other services. I don't understand why they didn't qualify

for one but did for the other.

> >> >

> >> > where are you located?

> >> >

> >> > Caudle

> >> >

> >> > The most beautiful things in the world

> >> > cannot be seen or even touched,

> >> > they must be felt with the heart....

> >> > question

> >> >

> >> >

> >> > >I have a daughter who is 27. While she was diagnosed 22 years ago as a

> >> > >high

> >> > >functioning moderate autistic, those who first meet her think she is

> >> > >Aspergers. My husband is also Aspergers.

> >> > >

> >> > > I know so many people who are autistic/Asperger's that are also

> >> > > either

> >> > > bipolar or schizophrenic. My question is how many people on this list

> >> > > also

> >> > > have a child/spouse/family member/friend who has the same problem.

> >> > >

> >> > > I think it has to do with the anxiety so many on the spectrum deal

> >> > > with

> >> > > that it causes other problems.

> >> > >

> >> > > In my daughter's case they have had a hard time diagnosing her

> >> > > because she

> >> > > has some symptoms from one thing and some from another thing but not

> >> > > enough to really be considered as either. One of the biggest problems

> >> > > is

> >> > > that we can't seem to find a psychologist that deals with adults with

> >> > > autism and how mental illness effects it.

> >> > >

> >> > > I am waiting for the day when there are more doctors that understand

> >> > > adults with autism spectrum disorder and how anxiety and stress truly

> >> > > affects them.

> >> > >

> >> > >

> >> > >

> >> > > ------------------------------------

> >> > >

> >> > >

[Guest guest]

I know several kids who got the pdd diagnosis, they didn't qualify for SSI,

though they did get other services. I don't understand why they didn't qualify

for one but did for the other.

> >> >

> >> > where are you located?

> >> >

> >> > Caudle

> >> >

> >> > The most beautiful things in the world

> >> > cannot be seen or even touched,

> >> > they must be felt with the heart....

> >> > question

> >> >

> >> >

> >> > >I have a daughter who is 27. While she was diagnosed 22 years ago as a

> >> > >high

> >> > >functioning moderate autistic, those who first meet her think she is

> >> > >Aspergers. My husband is also Aspergers.

> >> > >

> >> > > I know so many people who are autistic/Asperger's that are also

> >> > > either

> >> > > bipolar or schizophrenic. My question is how many people on this list

> >> > > also

> >> > > have a child/spouse/family member/friend who has the same problem.

> >> > >

> >> > > I think it has to do with the anxiety so many on the spectrum deal

> >> > > with

> >> > > that it causes other problems.

> >> > >

> >> > > In my daughter's case they have had a hard time diagnosing her

> >> > > because she

> >> > > has some symptoms from one thing and some from another thing but not

> >> > > enough to really be considered as either. One of the biggest problems

> >> > > is

> >> > > that we can't seem to find a psychologist that deals with adults with

> >> > > autism and how mental illness effects it.

> >> > >

> >> > > I am waiting for the day when there are more doctors that understand

> >> > > adults with autism spectrum disorder and how anxiety and stress truly

> >> > > affects them.

> >> > >

> >> > >

> >> > >

> >> > > ------------------------------------

> >> > >

> >> > >

[Guest guest]

This is based on a wholly unsupported notion of test-and-treat, lacking rigorous data to support the idea. It also is a violation of the Denver Principles. Strub in his blog has delineated a lot of the seriously flawed approach of giving people--forcing people, really--into taking ARV even if they have 750 CD4 cells. It's absurd, in my view--there is no clinical rationale. Once again, profits over people, frankly. Seehttp://blogs.poz.com/sean/archives/2010/04/test_and_treat.html The comments are also quite good (pro and con). See also the Denver Principles:http://www.actupny.org/documents/Denver.html I think everyone should be in CARE right away. That should include information on managing the disease, addressing current needs (from family issues to substance use to mental readiness to other health conditions existing concurrently), nutritional information, suggestions for and provision of a multivitamin, and so forth.But that should not equate with handing out prescriptions to everyone--this is the lazy stupid tech way. it doesn't take into account a person's readiness or willingness to take drugs, the long term side effects, the clinical value, etc. Clinical value may be established through the proposed START study that I believe is enrolling already? It may help give us a better idea as to whether starting with CD4>500 is sensible (I doubt it) or 350-500 is necessary (I'm uncertain). 200-350, strong encouragement. Under 200, VERY strong encouragement, to put it mildly.But even then--the right to take or not take meds is each individuals. Doctors should work for US, neither pharma's profits nor their own puffed up inflated ego, when those issues can confound proper medical care. M. On May 18, 2010, at 12:38 PM, Tammy wrote:

I don't understand why they change med guidelines again. Here in San Francisco they're putting people on the meds no matter how many t-cells you have. I want to know the reasoning behind this.

[Guest guest]

Tammy,

There is no question that treatment keeps getting pushed earlier and earlier.

This is not because of drug company profits, but based on clearer and clearer

data that early treatment helps, and drugs which, while still imperfect, are

much safer than the early combinations.

" Test and Treat " is quite a buzz word, these days. Mathematically, if everyone

were put on treatment from day one, there would be far, far lower rates of new

infections, and the HIV epidemic would burn out over a generation. This is

exciting, at least theoretically.

Is it practical or practicable? That is an entirely different issue, and I have

grave doubts about the reality of getting everyone in the US on treatment. I

can't even imagine how we'd do it world wide. Remember that the rates of

" untreated " patients in Europe are not far behind those in the US, so it's not

just about access.

There are all kinds of policy/privacy issues with test and treat, but in fact,

the government already has the power to quarantine and force treatment on people

who are not compliant with tuberculosis medications, so I assume it would have

the legal authority to do the same for HIV.

The test and treat issue is being driven by epidemiology, and constrained by

limits of policy. It isn't coming from the drug companies.

JB

[Guest guest]

Tammy,

There is no question that treatment keeps getting pushed earlier and earlier.

This is not because of drug company profits, but based on clearer and clearer

data that early treatment helps, and drugs which, while still imperfect, are

much safer than the early combinations.

" Test and Treat " is quite a buzz word, these days. Mathematically, if everyone

were put on treatment from day one, there would be far, far lower rates of new

infections, and the HIV epidemic would burn out over a generation. This is

exciting, at least theoretically.

Is it practical or practicable? That is an entirely different issue, and I have

grave doubts about the reality of getting everyone in the US on treatment. I

can't even imagine how we'd do it world wide. Remember that the rates of

" untreated " patients in Europe are not far behind those in the US, so it's not

just about access.

There are all kinds of policy/privacy issues with test and treat, but in fact,

the government already has the power to quarantine and force treatment on people

who are not compliant with tuberculosis medications, so I assume it would have

the legal authority to do the same for HIV.

The test and treat issue is being driven by epidemiology, and constrained by

limits of policy. It isn't coming from the drug companies.

JB

[Guest guest]

----- Forwarded Message ----From: Medlin <amanda.medlin@...>infantile scoliosis treatment Sent: Wed, May 19, 2010 9:14:25 AMSubject: question

Hey guys!

Do any of you do like mad stretches or work the torso muscles on cast off days?? I was just wondering because they dont have a chance to use those muscles with the cast on....and how is the back suppose to hold the new spine in place when in theory the muscles may be weaker from not being used.....

Just wondering....

<this is what happens when I think about stuff toooooo long>\

Logan's mama (45 standing down to 14 in first cast--11 months old)

[Guest guest]

From what I understand, they don't need too much strengthening because even in

their cast they do still use their muscles. They may be a bit weaker when they

are finished with casting, but at least in our case with Cole we have not

noticed any weakness.

Jenn

Mommy to Cole, 2.5 years, 1st brace from rochester, 2 degrees down from 47 after

1 year in 5 casts

>

>

>

>

>

> ----- Forwarded Message ----

> From: Medlin <amanda.medlin@...>

> infantile scoliosis treatment

> Sent: Wed, May 19, 2010 9:14:25 AM

> Subject: question

>

>

> Hey guys!

> Do any of you do like mad stretches or work the torso muscles on cast off

days?? I was just wondering because they dont have a chance to use those muscles

with the cast on....and how is the back suppose to hold the new spine in place

when in theory the muscles may be weaker from not being used.....

>

> Just wondering....

> <this is what happens when I think about stuff toooooo long>\

>

>

> Logan's mama (45 standing down to 14 in first cast--11 months old)

>

[Guest guest]

We did in the beginning, but eventually stopped. Olivia had

such a six pack, that it was apparent that her core was very strong and that

she was using most all muscles…Gentle PT/yoga and stretching never hurts though!

HRH

From:

infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Medlin

Sent: Wednesday, May 19, 2010 7:14 AM

infantile scoliosis treatment

Subject: question

Hey guys!

Do any of you do like mad stretches or work the torso

muscles on cast off days?? I was just wondering because they dont have a chance

to use those muscles with the cast on....and how is the back suppose to hold

the new spine in place when in theory the muscles may be weaker from not being

used.....

Just wondering....

<this is what happens when I think about stuff toooooo

long>\

Logan's mama (45 standing down to 14 in first cast--11

months old)

[Guest guest]

We don't do anything big on cast off days, just go to the Zoo or children's museum, but Bex is very active all of the time, and he has definition on his torso that my husband wishes he had! : ) I don't think there is any way he is not working his core muscles in the cast. They are not weak at all, in his case. Safe, gentle stretching is pretty much good for the body, though, I think.Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: Medlin <amanda.medlin@...>infantile scoliosis treatment Sent: Wed, May 19, 2010 6:14:25 AMSubject: question

Hey guys!

Do any of you do like mad stretches or work the torso muscles on cast off days?? I was just wondering because they dont have a chance to use those muscles with the cast on....and how is the back suppose to hold the new spine in place when in theory the muscles may be weaker from not being used.....

Just wondering... .

<this is what happens when I think about stuff toooooo long>\

Logan's mama (45 standing down to 14 in first cast--11 months old)

[Guest guest]

I agree! We def have a lil muscle baby! My husband is SO proud!LOL!! (he calls the cast weight training)

From: Hyatt <heather@...>infantile scoliosis treatment Sent: Wed, May 19, 2010 12:41:54 PMSubject: RE: question

We did in the beginning, but eventually stopped. Olivia had such a six pack, that it was apparent that her core was very strong and that she was using most all muscles…Gentle PT/yoga and stretching never hurts though!

HRH

From: infantile scoliosis treatment @groups. com [mailto:infantile_ scoliosis] On Behalf Of MedlinSent: Wednesday, May 19, 2010 7:14 AMinfantile scoliosis treatment @groups. comSubject: [infantile_scoliosi s] question

Hey guys!

Do any of you do like mad stretches or work the torso muscles on cast off days?? I was just wondering because they dont have a chance to use those muscles with the cast on....and how is the back suppose to hold the new spine in place when in theory the muscles may be weaker from not being used.....

Just wondering... .

<this is what happens when I think about stuff toooooo long>\

Logan's mama (45 standing down to 14 in first cast--11 months old)