Guest guest Report post Posted December 5, 2010 I have a booklet from I think Great Plains Labs where a definite connection is established between toe-walking and clostridia Dif. Clostridia affects Acetylcholine, the neurotransmitter which relaxes muscles so it makes a lot of sense to me. So people with muscle stiffness also I guess could have potentially the same bacterial problem. Subject: Re: shoesTo: Autism-Biomedical-Europe Date: Sunday, 5 December, 2010, 7:38 makes so much sense - walking on tippy toes too - could all be down to gut. > > > > > > 's therapist said he bit one of those worm type things with liquid > > > in them, don't know what it's called it had stars and stuff inside as > > > well. > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > how much, anyone know what that liquid might be? > > > Vicky > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 Looks interesting. Has anyone had experience of INPP?  I agree, but can also be retained reflexes, these people are up your end of the country Jane  http://www.inpp.org.uk/ Tonic Labyrinthine Reflex Inhibition of the tonic labyrinthine reflex is a gradual process involving the maturation of other systems. It should be completed by three and a half years of age. If it persists beyond this time, it is sometimes associated with: Postural problems, specifically hyper- or hypo-tonus (muscle tone) Tendency to walk on the toes Poor balance Motion sickness Orientation and spatial difficulties Oculo-motor problems – affecting reading Visual-perceptual problems – affecting reading and writing Dislike of Physical Education (PE)  In a message dated 05/12/2010 07:38:53 GMT Standard Time, bbrowne123@... writes:  makes so much sense - walking on tippy toes too - could all be down to gut. > > > > > > 's therapist said he bit one of those worm type things with liquid > > > in them, don't know what it's called it had stars and stuff inside as > > > well. > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > how much, anyone know what that liquid might be? > > > Vicky > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 We've done clear outs and never seen any improvement. Matt has toe walked from starting to walk at 12 months. We have tried physio, OT, Biomed including chelation (that we may try again soon), we have seen an Orthopedic Surgeon, tried prism glasses, hence me thinking I am not going to be able to help and may need to think about special footwear to make walking long distances easier. I'm also thinking long term damage to hip joints etc., Thanks for the suggestions. makes so much sense - walking on tippy toes too - could all be down to gut. > > > > > > 's therapist said he bit one of those worm type things with liquid > > > in them, don't know what it's called it had stars and stuff inside as > > > well. > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > how much, anyone know what that liquid might be? > > > Vicky > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 Hi , I'll have a look at Great Plains. We have had various tests in the past that haven't shown Clostridia. Thanks for the suggestion. Jane  I have a booklet from I think Great Plains Labs where a definite connection is established between toe-walking and clostridia Dif. Clostridia affects Acetylcholine, the neurotransmitter which relaxes muscles so it makes a lot of sense to me. So people with muscle stiffness also I guess could have potentially the same bacterial problem. Subject: Re: shoes To: Autism-Biomedical-Europe Date: Sunday, 5 December, 2010, 7:38  makes so much sense - walking on tippy toes too - could all be down to gut. > > > > > > 's therapist said he bit one of those worm type things with liquid > > > in them, don't know what it's called it had stars and stuff inside as > > > well. > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > how much, anyone know what that liquid might be? > > > Vicky > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 I know an adult woman without autism who still toe walks out of habit. I wondered whether anyone in the NHS has suggested botox and splinting - however my son's osteopath says this treatment puts enormous strain elsewhere in the body, but perhaps this treatment is sometimes necessary to get enough release and after the treatment there could be rebalancing physio, or lessons if the child would co-operate. If you look at the paper to which I posted the link, the teacher points out that orthotics, while improving the visual appearance in some ways, still put the body under stress and out of balance. If at all possible, I would suggest keeping going with exercises and stretching, perhaps yoga, if he were capable of enjoying it. Our children are such an enormous worry to us. Margaret > > > > > > > > > > 's therapist said he bit one of those worm type things with > > liquid > > > > > in them, don't know what it's called it had stars and stuff > > inside as > > > > > well. > > > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > > > how much, anyone know what that liquid might be? > > > > > Vicky > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 Just a thought but have you tried putting those wrist weights on his ankles? I suggest this as this helped my daughter to feel her body and where it is in space, they are relatively cheap, and can be bought at a sports shop. They have Velcro on them, so you could just try putting them on with his shoes, and then go out for a short walk, and build up. This way he will be getting some feedback into his muscle memory! Long shot, but had to mention it. It worked for my dd, but her issues were - she kept taking off her shoes and socks and sitting down in the middle of where ever!! resolves now. Re: shoes I know an adult woman without autism who still toe walks out of habit. I wondered whether anyone in the NHS has suggested botox and splinting - however my son's osteopath says this treatment puts enormous strain elsewhere in the body, but perhaps this treatment is sometimes necessary to get enough release and after the treatment there could be rebalancing physio, or lessons if the child would co-operate. If you look at the paper to which I posted the link, the teacher points out that orthotics, while improving the visual appearance in some ways, still put the body under stress and out of balance. If at all possible, I would suggest keeping going with exercises and stretching, perhaps yoga, if he were capable of enjoying it. Our children are such an enormous worry to us.Margaret> > > > >> > > > > 's therapist said he bit one of those worm type things with > > liquid> > > > > in them, don't know what it's called it had stars and stuff > > inside as> > > > > well.> > > > > Anyway she said he drunk the orange liquid inside, she doesn't know> > > > > how much, anyone know what that liquid might be?> > > > > Vicky> > > > >> > > > >> > > >> > >> >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 5, 2010 Botox is a form of clostridia (clostridia botulin) which is why I wouldn't risk it......Subject: Re: shoesTo: Autism-Biomedical-Europe Date: Sunday, 5 December, 2010, 15:54 I know an adult woman without autism who still toe walks out of habit. I wondered whether anyone in the NHS has suggested botox and splinting - however my son's osteopath says this treatment puts enormous strain elsewhere in the body, but perhaps this treatment is sometimes necessary to get enough release and after the treatment there could be rebalancing physio, or lessons if the child would co-operate. If you look at the paper to which I posted the link, the teacher points out that orthotics, while improving the visual appearance in some ways, still put the body under stress and out of balance. If at all possible, I would suggest keeping going with exercises and stretching, perhaps yoga, if he were capable of enjoying it. Our children are such an enormous worry to us. Margaret > > > > > > > > > > 's therapist said he bit one of those worm type things with > > liquid > > > > > in them, don't know what it's called it had stars and stuff > > inside as > > > > > well. > > > > > Anyway she said he drunk the orange liquid inside, she doesn't know > > > > > how much, anyone know what that liquid might be? > > > > > Vicky > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2011 I second this. Liam and I both live in New Balance. Kathy, Liam's mom Re: Shoes Hi Kathy, Our podisty recommends new balance brand. My husband who has alot of problems with his feet and has job were he is on his feet all day swears by them. Patty Kathy sen <northnr@...> wrote: >Hi everyone. I have a question about flat feet and shoes. could live >in flip flops but we are in Rhode Island and kind of impossible. I wish we >could wear them all year long! She is beginning a job internship at college >and has to dress up those days. She has flat feet that pronate a bit. She >can wear flat flipflops with no problems but " flats " hurt her feet. She >sometimes uses the inserts but they bug her too. Has anyone had any luck >with brands like naturalizer etc? > > > >Kathy > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 25, 2012 My 16 year old grandaughter has been diagnosed with RA she also has multiple foot problems flat feet bunions etc. She is very short and has small feet size 2 girls. Now that she is a teenager and in high school she wants to look cool. Any one have any suggestions where we could find sandals that would offer some support for times when she doesnt wear sneakers with orthotics Quote Share this post Link to post Share on other sites
