Adrenal vein sampling

[Guest guest]

In Australia - like here in New Zealand, medical records are online and

linked.  If a doctor wants to - they can print out the whole lot in one go. 

The Ministry of Health requires that you have access to the records that are

yours - so request them.  The hard part for your specialist or GP may be

deleting their personal comments that don't relate to your condition.  I've

seen " too boring to concentrate " on transcripts for people on an optometrists

chart.  My business is consulting to medical professionals  for best business

practice - and it's difficult to get some people to break the habit of being a

smart *** with their client files.

Just ask - and if they don't hand them over, go to the Ministry of Health and

request a review of your record.  It will take awhile - but you'll eventually

get a copy. 

Sue

________________________________

From: jacca07 <jacca07@...>

hyperaldosteronism

Sent: Tuesday, 6 January, 2009 10:11:20 PM

Subject: Re: Adrenal Vein Sampling

Not looking for sympathy, just a result.

In Qld Aust it is not easy to get paper copies of any testing. They

are held by the doctor ordering them. To even get them from a lab or

hospital involved requires some effort. Believe me I have tried and

many others I have talked to agree!!

> > >

> > > > Sorry, have just got back to this forum. Symptoms have been

> > worsening

> > > > Just got out of hospital again, BP was 181/121 P104 when

admitted.

> > > > Woke up during normal sleep with chest pain, sweating,

shakes etc.

> > > > At the time I had weaned off the Betaloc and had taken 200ug

of

> > > > physiotens when I went to bed. My local doctor now has

started me

> > on

> > > > 12.5mg of spiro as well at night. I have never been on it

before

> > as I

> > > > have not had any conclusive results through testing only

what is

> > > > mentioned. I was simply referred to a cardio. Have had the

heart

> > > > checked out and it is OK. Had an Angio. OK. No reason given

from

> > > > anyone which explains the erratic BP, the left side

intermittent

> > > > pain. The top endo I had seen previously feels he can do no

more,

> > yet

> > > > one other endo I consulted for a second opinion, felt it was

> > > > endocrine and sent me back to the original guy. If one has

been

> > > > tested a couple of times a year ago, and no conclusive

results,

> > just

> > > > what I mentioned, does that mean that you are as a patient

> > considered

> > > > finished. I understood that these things can change over the

years

> > > > and should be investigated every so often if symptoms

worsen. It

> > has

> > > > also been mentioned that I am a risk for surgery because of

> > previous

> > > > abdominal surgery in my 20's and possible adhesions. I am

67kg and

> > > > have always been very active so this really debilitating. My

local

> > > > doctor is recommending seeing another endo surgeon for an

opinion.

> > > > What do you think??

> > > >

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

Excellent. Good on ya down there!

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 8, 2009, at 10:20 AM, marysue hopper wrote:

> In Australia - like here in New Zealand, medical records are online

> and linked. If a doctor wants to - they can print out the whole

> lot in one go. The Ministry of Health requires that you have

> access to the records that are yours - so request them. The hard

> part for your specialist or GP may be deleting their personal

> comments that don't relate to your condition. I've seen " too

> boring to concentrate " on transcripts for people on an optometrists

> chart. My business is consulting to medical professionals for

> best business practice - and it's difficult to get some people to

> break the habit of being a smart *** with their client files.

>

> Just ask - and if they don't hand them over, go to the Ministry of

> Health and request a review of your record. It will take awhile -

> but you'll eventually get a copy.

>

>

> Sue

>

> ________________________________

> From: jacca07 <jacca07@...>

> hyperaldosteronism

> Sent: Tuesday, 6 January, 2009 10:11:20 PM

> Subject: Re: Adrenal Vein Sampling

>

> Not looking for sympathy, just a result.

> In Qld Aust it is not easy to get paper copies of any testing. They

> are held by the doctor ordering them. To even get them from a lab or

> hospital involved requires some effort. Believe me I have tried and

> many others I have talked to agree!!

>

>

> > > >

> > > > > Sorry, have just got back to this forum. Symptoms have been

> > > worsening

> > > > > Just got out of hospital again, BP was 181/121 P104 when

> admitted.

> > > > > Woke up during normal sleep with chest pain, sweating,

> shakes etc.

> > > > > At the time I had weaned off the Betaloc and had taken 200ug

> of

> > > > > physiotens when I went to bed. My local doctor now has

> started me

> > > on

> > > > > 12.5mg of spiro as well at night. I have never been on it

> before

> > > as I

> > > > > have not had any conclusive results through testing only

> what is

> > > > > mentioned. I was simply referred to a cardio. Have had the

> heart

> > > > > checked out and it is OK. Had an Angio. OK. No reason given

> from

> > > > > anyone which explains the erratic BP, the left side

> intermittent

> > > > > pain. The top endo I had seen previously feels he can do no

> more,

> > > yet

> > > > > one other endo I consulted for a second opinion, felt it was

> > > > > endocrine and sent me back to the original guy. If one has

> been

> > > > > tested a couple of times a year ago, and no conclusive

> results,

> > > just

> > > > > what I mentioned, does that mean that you are as a patient

> > > considered

> > > > > finished. I understood that these things can change over the

> years

> > > > > and should be investigated every so often if symptoms

> worsen. It

> > > has

> > > > > also been mentioned that I am a risk for surgery because of

> > > previous

> > > > > abdominal surgery in my 20's and possible adhesions. I am

> 67kg and

> > > > > have always been very active so this really debilitating. My

> local

> > > > > doctor is recommending seeing another endo surgeon for an

> opinion.

> > > > > What do you think??

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

[Guest guest]

Not barbaric. Simple numbing med in groins, needle in each femoral vein (or only one depending on team), catheter guided up inside vein to adrenals for blood sampling. I have seen the cath in the L adrenal vein with in 15 sec after introduced in the femoral vein. BE sure they use ACTH.CE Grim MDOn May 14, 2012, at 1:45 PM, msmith_1928 wrote: I've had AVS twice. Not painful at all (I was put under each time) and I only took one day off from work both times. There really was no recovery from me except the second time, when they neglected to give me an antiemetic and the anesthesia made me sick to my stomach for several days. There have been some bad experiences here so I don't want to dismiss it as "no big deal" but in my case, both times it was far easier than most of the stories out there would lead you to believe. My whole AVS story can be found in the Files section at left. > > I am not sure i can go through with adrenal vein sammpling - sounds rather barbaric. Is there any other test (less invasive and less dangerous)? How p[ainful is avs and how long is the recovery??? >

[Guest guest]

Hello there...I just had the AVS done yesterday! It was very scary, especially

when they rolled me into the room where the procedure was to take place. But

the RN who was to administer my " cocktail " was very reassuring and she had her

IPOD on in the background playing Elton and so I felt much better. My

cocktail made me sleepy, but I did know what was going on in the room. There

was NO pain at all! Afterwards, they rolled me into another room where I slept

and laid flat for 2 hours or so. The weirdest feeling this morning is just the

tape on my groin area. No pain this morning at all. I was afraid like you, but

it really was not bad!

>

> I am not sure i can go through with adrenal vein sammpling - sounds rather

barbaric. Is there any other test (less invasive and less dangerous)? How

p[ainful is avs and how long is the recovery???

>

[Guest guest]

Can u add your note to our file AVS EXPERIENCES. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 17, 2012, at 8:18, summatravel <summatravel@...> wrote:

Hello there...I just had the AVS done yesterday! It was very scary, especially when they rolled me into the room where the procedure was to take place. But the RN who was to administer my "cocktail" was very reassuring and she had her IPOD on in the background playing Elton and so I felt much better. My cocktail made me sleepy, but I did know what was going on in the room. There was NO pain at all! Afterwards, they rolled me into another room where I slept and laid flat for 2 hours or so. The weirdest feeling this morning is just the tape on my groin area. No pain this morning at all. I was afraid like you, but it really was not bad!

>

> I am not sure i can go through with adrenal vein sammpling - sounds rather barbaric. Is there any other test (less invasive and less dangerous)? How p[ainful is avs and how long is the recovery???

>