Adrenal vein sampling

February 8, 2005

Be sure they do it with ACTH infusion and measrue aldo and corticsol. do you have any renin and aldo results.

We collect Conn's Stories. If you have time please send us the details of how long it took to make the diagnosis, what proboems you have before the figured it out. ETC. I think we have the protocol for adrenal vein sampling on our site.

Any fammily history of HTN and low K?

You can call it "JAM's Story"

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora

February 8, 2005

In a message dated 2/8/05 12:28:44, ja_m9@... writes:

Obviously, I have a lot of questions to ask from the doctor how's gonna perform the

procedure. My fear is that the doctors here my not have enough experience to perform

such procedure because Conn's Syndrome is rare.

Conn's is not rare if you look for it. I have been finding it in about 10% of HTN who get to me for about 40 years.

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora

February 8, 2005

Hi Everyone !

I have been recently diagnosed with a Conn's Syndrome. I have all the symptoms

and my lab results shows I have the syndrome. My CT scan results revealed a 1cm

mass on one of my adrenal glands. My next stop is going to radiology for an adrenal

vein sampling.

Does anybody know how long will it take for them to get the right sample for testing ?

Patient prep said that in worst case I may spend the nite over for observation. Will they

use anesthesia ? Put me to sleep ?

Obviously, I have a lot of questions to ask from the doctor how's gonna perform the

procedure. My fear is that the doctors here my not have enough experience to perform

such procedure because Conn's Syndrome is rare.

Thanks in advance for you infos...

JAM__________________________________________________

December 15, 2008

I have a left adrenal adenoma. Have been symptomatic for 16 months but

am worsening considerably with symptoms similar to pheo. However MIBG

ruled pheo out. My noradrenaline was 4.9 nmol/L six months ago. My

query is when the AVS was done it was correct on the left side but they

went into the wrong vein on the right side so there was no comparison

available. For this reason it was discounted.

However, could anyone tell me if these readings on the left are high.

Aldosterone 1090 ng/100ml Cortisol 460 ug/100ml Cortisol AV/PV 22

Aldosterone 1200 ng/100ml Cortisol 510 ug/100ml Cortisol AV/PV 23

The only comment on the sheet was.. definite left sided aldosterone

production. Only treatment I am on is beta blocker for high bp spiking

up to 200/100, which is not working.

Endo lost interest as urine testing had no results.

December 15, 2008

Without accurate measurement from both sides, it cannot be determined which

side is over-producing. You are being seriously mistreated. You should be

on spironolactone or Inspra. Your endo is killing you.

Where did you have the AVS?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of jacca07

I have a left adrenal adenoma. Have been symptomatic for 16 months but

am worsening considerably with symptoms similar to pheo. However MIBG

ruled pheo out. My noradrenaline was 4.9 nmol/L six months ago. My

query is when the AVS was done it was correct on the left side but they

went into the wrong vein on the right side so there was no comparison

available. For this reason it was discounted.

However, could anyone tell me if these readings on the left are high.

Aldosterone 1090 ng/100ml Cortisol 460 ug/100ml Cortisol AV/PV 22

Aldosterone 1200 ng/100ml Cortisol 510 ug/100ml Cortisol AV/PV 23

The only comment on the sheet was.. definite left sided aldosterone

production. Only treatment I am on is beta blocker for high bp spiking

up to 200/100, which is not working.

Endo lost interest as urine testing had no results.

December 15, 2008

You need to find someone who knows what they are doing.

Where are you I may have someone to recommend.

I am happy to work with your Endo to get him or her up to speed.

Please take him my article and ask him to call or email me.

(lowerbp2@...)

CE Grim MD

On Dec 15, 2008, at 4:34 PM, Valarie wrote:

> Without accurate measurement from both sides, it cannot be

> determined which

> side is over-producing. You are being seriously mistreated. You

> should be

> on spironolactone or Inspra. Your endo is killing you.

>

> Where did you have the AVS?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of jacca07

>

> I have a left adrenal adenoma. Have been symptomatic for 16 months but

> am worsening considerably with symptoms similar to pheo. However MIBG

> ruled pheo out. My noradrenaline was 4.9 nmol/L six months ago. My

> query is when the AVS was done it was correct on the left side but

> they

> went into the wrong vein on the right side so there was no comparison

> available. For this reason it was discounted.

> However, could anyone tell me if these readings on the left are high.

> Aldosterone 1090 ng/100ml Cortisol 460 ug/100ml Cortisol AV/PV 22

> Aldosterone 1200 ng/100ml Cortisol 510 ug/100ml Cortisol AV/PV 23

> The only comment on the sheet was.. definite left sided aldosterone

> production. Only treatment I am on is beta blocker for high bp spiking

> up to 200/100, which is not working.

> Endo lost interest as urine testing had no results.

>

December 15, 2008

What did spiro do to your BP?

CE Grim MD

On Dec 15, 2008, at 12:00 PM, jacca07 wrote:

> I have a left adrenal adenoma. Have been symptomatic for 16 months but

> am worsening considerably with symptoms similar to pheo. However MIBG

> ruled pheo out. My noradrenaline was 4.9 nmol/L six months ago. My

> query is when the AVS was done it was correct on the left side but

> they

> went into the wrong vein on the right side so there was no comparison

> available. For this reason it was discounted.

> However, could anyone tell me if these readings on the left are high.

> Aldosterone 1090 ng/100ml Cortisol 460 ug/100ml Cortisol AV/PV 22

> Aldosterone 1200 ng/100ml Cortisol 510 ug/100ml Cortisol AV/PV 23

> The only comment on the sheet was.. definite left sided aldosterone

> production. Only treatment I am on is beta blocker for high bp spiking

> up to 200/100, which is not working.

> Endo lost interest as urine testing had no results.

>

December 15, 2008

Speaking of endos, I called for a refill on my spiro two weeks ago - no

response from endo. I'm glad I bought some spiro on the Internet or I'd be

in serious trouble.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Valarie

Your endo is killing you.

December 15, 2008

Trust it smells like peppermint or may not be real stuff.

CE

On Dec 15, 2008, at 5:19 PM, Valarie wrote:

> Speaking of endos, I called for a refill on my spiro two weeks ago

> - no

> response from endo. I'm glad I bought some spiro on the Internet or

> I'd be

> in serious trouble.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Valarie

>

> Your endo is killing you.

>

December 23, 2008

Sorry, have just got back to this forum. Symptoms have been worsening

Just got out of hospital again, BP was 181/121 P104 when admitted.

Woke up during normal sleep with chest pain, sweating, shakes etc.

At the time I had weaned off the Betaloc and had taken 200ug of

physiotens when I went to bed. My local doctor now has started me on

12.5mg of spiro as well at night. I have never been on it before as I

have not had any conclusive results through testing only what is

mentioned. I was simply referred to a cardio. Have had the heart

checked out and it is OK. Had an Angio. OK. No reason given from

anyone which explains the erratic BP, the left side intermittent

pain. The top endo I had seen previously feels he can do no more, yet

one other endo I consulted for a second opinion, felt it was

endocrine and sent me back to the original guy. If one has been

tested a couple of times a year ago, and no conclusive results, just

what I mentioned, does that mean that you are as a patient considered

finished. I understood that these things can change over the years

and should be investigated every so often if symptoms worsen. It has

also been mentioned that I am a risk for surgery because of previous

abdominal surgery in my 20's and possible adhesions. I am 67kg and

have always been very active so this really debilitating. My local

doctor is recommending seeing another endo surgeon for an opinion.

What do you think??

December 23, 2008

You need to tell us where you are located. Dr. Grim may be able to refer you

to a more knowledgeable endo.

As mentioned, your endo that you have now, is going to end up

killing you.

You need to stop your other bp medication and increase your spironolactone.

Its better to start with a higher dose to control your blood pressure. It

takes few days before Spironolactone starts working and you notice a result.

Most of us start at about 100mg/day and after few months temper down. Do you

have low potassium too?

Also, the AVS is inconclusive if you dont have both sides. Both adrenal

glands could be producing too much aldosternone and you would not know it

unless a proper AVS has been performed. ..and by the way many untalented

radiologists miss the right side because of the location of the right

adrenal gland, a lot of doctors just take the sampling from the vena cava

thinking they are in the right adrenal vein.

Also, you need to make sure your thyroid gland is not over/under producing.

a symptom of the thyroid mal function can also be chest pain, sweating and

rapid heart rate and not being able to sleep at night.

Take care and keep us posted.

Hang in there.

Farah

On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

> Sorry, have just got back to this forum. Symptoms have been worsening

> Just got out of hospital again, BP was 181/121 P104 when admitted.

> Woke up during normal sleep with chest pain, sweating, shakes etc.

> At the time I had weaned off the Betaloc and had taken 200ug of

> physiotens when I went to bed. My local doctor now has started me on

> 12.5mg of spiro as well at night. I have never been on it before as I

> have not had any conclusive results through testing only what is

> mentioned. I was simply referred to a cardio. Have had the heart

> checked out and it is OK. Had an Angio. OK. No reason given from

> anyone which explains the erratic BP, the left side intermittent

> pain. The top endo I had seen previously feels he can do no more, yet

> one other endo I consulted for a second opinion, felt it was

> endocrine and sent me back to the original guy. If one has been

> tested a couple of times a year ago, and no conclusive results, just

> what I mentioned, does that mean that you are as a patient considered

> finished. I understood that these things can change over the years

> and should be investigated every so often if symptoms worsen. It has

> also been mentioned that I am a risk for surgery because of previous

> abdominal surgery in my 20's and possible adhesions. I am 67kg and

> have always been very active so this really debilitating. My local

> doctor is recommending seeing another endo surgeon for an opinion.

> What do you think??

>

December 23, 2008

You only need a surgeon ifntjereb

Is spmething to cut out

Sent from my iPhone

CE Grim MD

Specializing in Difficult

Hypertension

On Dec 23, 2008, at 4:26 PM, Farah Rahbar <farahbar@...> wrote:

> You need to tell us where you are located. Dr. Grim may be able to

> refer you

> to a more knowledgeable endo.

> As mentioned, your endo that you have now, is going to end up

> killing you.

> You need to stop your other bp medication and increase your

> spironolactone.

> Its better to start with a higher dose to control your blood

> pressure. It

> takes few days before Spironolactone starts working and you notice a

> result.

> Most of us start at about 100mg/day and after few months temper

> down. Do you

> have low potassium too?

> Also, the AVS is inconclusive if you dont have both sides. Both

> adrenal

> glands could be producing too much aldosternone and you would not

> know it

> unless a proper AVS has been performed. ..and by the way many

> untalented

> radiologists miss the right side because of the location of the right

> adrenal gland, a lot of doctors just take the sampling from the vena

> cava

> thinking they are in the right adrenal vein.

>

> Also, you need to make sure your thyroid gland is not over/under

> producing.

> a symptom of the thyroid mal function can also be chest pain,

> sweating and

> rapid heart rate and not being able to sleep at night.

>

> Take care and keep us posted.

>

> Hang in there.

>

> Farah

>

> On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

>

> > Sorry, have just got back to this forum. Symptoms have been

> worsening

> > Just got out of hospital again, BP was 181/121 P104 when admitted.

> > Woke up during normal sleep with chest pain, sweating, shakes etc.

> > At the time I had weaned off the Betaloc and had taken 200ug of

> > physiotens when I went to bed. My local doctor now has started me on

> > 12.5mg of spiro as well at night. I have never been on it before

> as I

> > have not had any conclusive results through testing only what is

> > mentioned. I was simply referred to a cardio. Have had the heart

> > checked out and it is OK. Had an Angio. OK. No reason given from

> > anyone which explains the erratic BP, the left side intermittent

> > pain. The top endo I had seen previously feels he can do no more,

> yet

> > one other endo I consulted for a second opinion, felt it was

> > endocrine and sent me back to the original guy. If one has been

> > tested a couple of times a year ago, and no conclusive results, just

> > what I mentioned, does that mean that you are as a patient

> considered

> > finished. I understood that these things can change over the years

> > and should be investigated every so often if symptoms worsen. It has

> > also been mentioned that I am a risk for surgery because of previous

> > abdominal surgery in my 20's and possible adhesions. I am 67kg and

> > have always been very active so this really debilitating. My local

> > doctor is recommending seeing another endo surgeon for an opinion.

> > What do you think??

> >

>

December 23, 2008

Need your renin ,

Aldo and K Hx

Sent from my iPhone

CE Grim MD

Specializing in Difficult

Hypertension

On Dec 23, 2008, at 4:26 PM, Farah Rahbar <farahbar@...> wrote:

> You need to tell us where you are located. Dr. Grim may be able to

> refer you

> to a more knowledgeable endo.

> As mentioned, your endo that you have now, is going to end up

> killing you.

> You need to stop your other bp medication and increase your

> spironolactone.

> Its better to start with a higher dose to control your blood

> pressure. It

> takes few days before Spironolactone starts working and you notice a

> result.

> Most of us start at about 100mg/day and after few months temper

> down. Do you

> have low potassium too?

> Also, the AVS is inconclusive if you dont have both sides. Both

> adrenal

> glands could be producing too much aldosternone and you would not

> know it

> unless a proper AVS has been performed. ..and by the way many

> untalented

> radiologists miss the right side because of the location of the right

> adrenal gland, a lot of doctors just take the sampling from the vena

> cava

> thinking they are in the right adrenal vein.

>

> Also, you need to make sure your thyroid gland is not over/under

> producing.

> a symptom of the thyroid mal function can also be chest pain,

> sweating and

> rapid heart rate and not being able to sleep at night.

>

> Take care and keep us posted.

>

> Hang in there.

>

> Farah

>

> On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

>

> > Sorry, have just got back to this forum. Symptoms have been

> worsening

> > Just got out of hospital again, BP was 181/121 P104 when admitted.

> > Woke up during normal sleep with chest pain, sweating, shakes etc.

> > At the time I had weaned off the Betaloc and had taken 200ug of

> > physiotens when I went to bed. My local doctor now has started me on

> > 12.5mg of spiro as well at night. I have never been on it before

> as I

> > have not had any conclusive results through testing only what is

> > mentioned. I was simply referred to a cardio. Have had the heart

> > checked out and it is OK. Had an Angio. OK. No reason given from

> > anyone which explains the erratic BP, the left side intermittent

> > pain. The top endo I had seen previously feels he can do no more,

> yet

> > one other endo I consulted for a second opinion, felt it was

> > endocrine and sent me back to the original guy. If one has been

> > tested a couple of times a year ago, and no conclusive results, just

> > what I mentioned, does that mean that you are as a patient

> considered

> > finished. I understood that these things can change over the years

> > and should be investigated every so often if symptoms worsen. It has

> > also been mentioned that I am a risk for surgery because of previous

> > abdominal surgery in my 20's and possible adhesions. I am 67kg and

> > have always been very active so this really debilitating. My local

> > doctor is recommending seeing another endo surgeon for an opinion.

> > What do you think??

> >

>

December 24, 2008

this is what Cardiologist do. Good to know angio was OK. If

completely normal(and you should ask if there was any evidence of

rusty arteries even very early) at your age unlikely to die to CAD at

least. If there was then you need to do all you can to prevent

progression. Diet is the most cost effective. Google Lyon Heart

Study and Medicterrean Diet. Recall that CAD and HTN are not a normal

part of being human.

Only when we feed our genome incorrectly.

CE Grim MD

On Dec 23, 2008, at 6:12 PM, jacca07 wrote:

> Have had the heart

> checked out and it is OK. Had an Angio. OK. No reason given from

> anyone which explains the erratic BP, the left side intermittent

> pain.

Clarence Grim

lowerbp2@...

ï¿¼

December 25, 2008

>

> Need your renin ,

> Aldo and K Hx

Only results I have are from - August 07 - when testing was done in

Brisbane. Was admitted for observation in 08, and comment was probably

pericarditis/myocarditis (no proof in echo though). Here is what I have:

AVS - Right Adrenaline 6.1 Noradrenaline 5.0 (Nov 07)

Left Adrenaline 106 Noradrenaline 22

Right Adrenaline 5.0 Noradrenaline 4.4

Left Adrenaline 145 Noradrenaline 32

Potassium 4-4.5

Aldo/Renin Ratio supine 110, upright 80 (no salt diet and on

hypertensives at the time).

Urea 9.7

Chol 7.5

Plasma Cat Adrenaline 1.4 Noradrenaline 4.1 (Nov 07)

Bicarb 17

Sodium 120

Don't know if this is of any use. I am in the too hard basket I

think. Amazes me!! I have not had a single night without heart issues

in 16 months, high BP, getting higher. Recently had gastroscopy to

check digestive, BP dropped through the floor, vasovagal during AVS,

dental anaes. heart into overdrive, recent CT scan of adenoma (11mm) BP

through the roof, massive kidney pain,collapsed, shakes, felt like I

had hold of a live power line...Have only been on the spiro for a few

days but GP wants it up to 25mg.. the tingling and chest pain has

eased, and I notice the rapid jumping of my chest over heart starts the

minute I move in bed, always around 3am but BP is always 160/105 at

this time. Getting more pain over left flank now, sweating, recent

blood spotting in urine. I am wondering if I should try a Nephrologist,

have tried every other sort of specialist!! Thank you Dr Grim for your

interest.

January 5, 2009

Thanks Farah, Your input helps greatly.

I am in Qld, Australia and went to the recommended Hypertension Unit

in Brisbane (reluctant to use names) late 2007 with no conclusive

results. Did the urinary, bloods, AVS, etc all there. In the unit, I

was not given figures just told everything was 'normal' which

obviously it wasn't as I wrote to the labs for the few paper results

I actually have and they show some otherwise. My episodes according

to my local dr, who has to treat me.. are more pheo like as they are

happening with adrenaline rushes and triggers...even though he

originally thought Conn's. The mass in the left adrenal was picked up

when I went to Emergency at another hospital whilst on a trip, during

another severe episode.

After being told 'there was nothing more they can do' regarding

testing at the Hytn Unit, my dr was so frustrated at me seemingly

getting 'nowhere', he took me off the Beta and has put me on Spiro

25mg which has made a huge difference in only two weeks. Also on

Moxonidine (Physiotens) for the BP which is working. I had been

tried on numerous other BP meds with no reduction in BP. In the Unit

I was never given a reason for the heart episodes. I had a couple of

severe ones requiring cardiology whilst in there. I was not very

active in the unit during the testing. When active at home, symptoms

are severe and in the heat of summer here are 100% worse than a year

ago when the testing was done. My potassium I do not have a clue.

Kept being told it was normal. I have not had any testing much in

the past year really. Re the AVS they only did it reluctantly as

nothing else showed results, then it was a failed one, which again

gave no result. Most other parts of the body have been tested one way

or other. Thyroid has a lump in it also, cyst they think. I was

told it was OK. Only interesting thing I thought was in my 20's I

had severe endometriosis, 2 ops resulting in total hyst., appendix

out, gall bladder out, breast lump out, vagotomy, all chromaffin

tissue causing the pain and problems with each op. Probably the same

in the left adrenal and thyroid.

Since being on the two new drugs, relief in that my chest pain at

night has reduced considerably, fluid buildup in chest has eased

(unless I do too much), muscular tingling has eased, BP has come

down. Has spiked a few times in the middle of the night though, salt

in a meal caused one..cannot seem to tolerate salt. That was one test

that was very low. Other symptoms are all as usual, left flank pain

is getting worse. Was told kidneys are OK from ct scan.

My dr is now sending me to an endo surgeon to see if it warrants

taking the left adrenal out. Me, I do not know where to turn

anymore, seem to have few options.

In hyperaldosteronism , " Farah Rahbar " <farahbar@...>

wrote:

>

> You need to tell us where you are located. Dr. Grim may be able to

refer you

> to a more knowledgeable endo.

> As mentioned, your endo that you have now, is going to end

up

> killing you.

> You need to stop your other bp medication and increase your

spironolactone.

> Its better to start with a higher dose to control your blood

pressure. It

> takes few days before Spironolactone starts working and you notice

a result.

> Most of us start at about 100mg/day and after few months temper

down. Do you

> have low potassium too?

> Also, the AVS is inconclusive if you dont have both sides. Both

adrenal

> glands could be producing too much aldosternone and you would not

know it

> unless a proper AVS has been performed. ..and by the way many

untalented

> radiologists miss the right side because of the location of the

right

> adrenal gland, a lot of doctors just take the sampling from the

vena cava

> thinking they are in the right adrenal vein.

>

> Also, you need to make sure your thyroid gland is not over/under

producing.

> a symptom of the thyroid mal function can also be chest pain,

sweating and

> rapid heart rate and not being able to sleep at night.

>

> Take care and keep us posted.

>

> Hang in there.

>

> Farah

>

> On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

>

> > Sorry, have just got back to this forum. Symptoms have been

worsening

> > Just got out of hospital again, BP was 181/121 P104 when admitted.

> > Woke up during normal sleep with chest pain, sweating, shakes etc.

> > At the time I had weaned off the Betaloc and had taken 200ug of

> > physiotens when I went to bed. My local doctor now has started me

on

> > 12.5mg of spiro as well at night. I have never been on it before

as I

> > have not had any conclusive results through testing only what is

> > mentioned. I was simply referred to a cardio. Have had the heart

> > checked out and it is OK. Had an Angio. OK. No reason given from

> > anyone which explains the erratic BP, the left side intermittent

> > pain. The top endo I had seen previously feels he can do no more,

yet

> > one other endo I consulted for a second opinion, felt it was

> > endocrine and sent me back to the original guy. If one has been

> > tested a couple of times a year ago, and no conclusive results,

just

> > what I mentioned, does that mean that you are as a patient

considered

> > finished. I understood that these things can change over the years

> > and should be investigated every so often if symptoms worsen. It

has

> > also been mentioned that I am a risk for surgery because of

> > have always been very active so this really debilitating. My local

> > doctor is recommending seeing another endo surgeon for an opinion.

> > What do you think??

> >

>

January 5, 2009

You keep saying that you are being " told " this or that.

Not to sound unsympatheticd, but you cannot get anywhere with any

health problems unless you keep your own medical record with copies of

final reports of all blood tests and any other diagnostic tests or

surgical procedures. That is the first step toward removing the cloud

of uncertainty you live with.

••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••

••

On Jan 5, 2009, at 9:32 PM, jacca07 wrote:

> Thanks Farah, Your input helps greatly.

> I am in Qld, Australia and went to the recommended Hypertension Unit

> in Brisbane (reluctant to use names) late 2007 with no conclusive

> results. Did the urinary, bloods, AVS, etc all there. In the unit, I

> was not given figures just told everything was 'normal' which

> obviously it wasn't as I wrote to the labs for the few paper results

> I actually have and they show some otherwise. My episodes according

> to my local dr, who has to treat me.. are more pheo like as they are

> happening with adrenaline rushes and triggers...even though he

> originally thought Conn's. The mass in the left adrenal was picked up

> when I went to Emergency at another hospital whilst on a trip, during

> another severe episode.

> After being told 'there was nothing more they can do' regarding

> testing at the Hytn Unit, my dr was so frustrated at me seemingly

> getting 'nowhere', he took me off the Beta and has put me on Spiro

> 25mg which has made a huge difference in only two weeks. Also on

> Moxonidine (Physiotens) for the BP which is working. I had been

> tried on numerous other BP meds with no reduction in BP. In the Unit

> I was never given a reason for the heart episodes. I had a couple of

> severe ones requiring cardiology whilst in there. I was not very

> active in the unit during the testing. When active at home, symptoms

> are severe and in the heat of summer here are 100% worse than a year

> ago when the testing was done. My potassium I do not have a clue.

> Kept being told it was normal. I have not had any testing much in

> the past year really. Re the AVS they only did it reluctantly as

> nothing else showed results, then it was a failed one, which again

> gave no result. Most other parts of the body have been tested one way

> or other. Thyroid has a lump in it also, cyst they think. I was

> told it was OK. Only interesting thing I thought was in my 20's I

> had severe endometriosis, 2 ops resulting in total hyst., appendix

> out, gall bladder out, breast lump out, vagotomy, all chromaffin

> tissue causing the pain and problems with each op. Probably the same

> in the left adrenal and thyroid.

> Since being on the two new drugs, relief in that my chest pain at

> night has reduced considerably, fluid buildup in chest has eased

> (unless I do too much), muscular tingling has eased, BP has come

> down. Has spiked a few times in the middle of the night though, salt

> in a meal caused one..cannot seem to tolerate salt. That was one test

> that was very low. Other symptoms are all as usual, left flank pain

> is getting worse. Was told kidneys are OK from ct scan.

> My dr is now sending me to an endo surgeon to see if it warrants

> taking the left adrenal out. Me, I do not know where to turn

> anymore, seem to have few options.

>

> In hyperaldosteronism , " Farah Rahbar " <farahbar@...>

> wrote:

> >

> > You need to tell us where you are located. Dr. Grim may be able to

> refer you

> > to a more knowledgeable endo.

> > As mentioned, your endo that you have now, is going to end

> up

> > killing you.

> > You need to stop your other bp medication and increase your

> spironolactone.

> > Its better to start with a higher dose to control your blood

> pressure. It

> > takes few days before Spironolactone starts working and you notice

> a result.

> > Most of us start at about 100mg/day and after few months temper

> down. Do you

> > have low potassium too?

> > Also, the AVS is inconclusive if you dont have both sides. Both

> adrenal

> > glands could be producing too much aldosternone and you would not

> know it

> > unless a proper AVS has been performed. ..and by the way many

> untalented

> > radiologists miss the right side because of the location of the

> right

> > adrenal gland, a lot of doctors just take the sampling from the

> vena cava

> > thinking they are in the right adrenal vein.

> >

> > Also, you need to make sure your thyroid gland is not over/under

> producing.

> > a symptom of the thyroid mal function can also be chest pain,

> sweating and

> > rapid heart rate and not being able to sleep at night.

> >

> > Take care and keep us posted.

> >

> > Hang in there.

> >

> > Farah

> >

> > On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

> >

> > > Sorry, have just got back to this forum. Symptoms have been

> worsening

> > > Just got out of hospital again, BP was 181/121 P104 when admitted.

> > > Woke up during normal sleep with chest pain, sweating, shakes etc.

> > > At the time I had weaned off the Betaloc and had taken 200ug of

> > > physiotens when I went to bed. My local doctor now has started me

> on

> > > 12.5mg of spiro as well at night. I have never been on it before

> as I

> > > have not had any conclusive results through testing only what is

> > > mentioned. I was simply referred to a cardio. Have had the heart

> > > checked out and it is OK. Had an Angio. OK. No reason given from

> > > anyone which explains the erratic BP, the left side intermittent

> > > pain. The top endo I had seen previously feels he can do no more,

> yet

> > > one other endo I consulted for a second opinion, felt it was

> > > endocrine and sent me back to the original guy. If one has been

> > > tested a couple of times a year ago, and no conclusive results,

> just

> > > what I mentioned, does that mean that you are as a patient

> considered

> > > finished. I understood that these things can change over the years

> > > and should be investigated every so often if symptoms worsen. It

> has

> > > also been mentioned that I am a risk for surgery because of

> previous

> > > abdominal surgery in my 20's and possible adhesions. I am 67kg and

> > > have always been very active so this really debilitating. My local

> > > doctor is recommending seeing another endo surgeon for an opinion.

> > > What do you think??

> > >

> >

January 6, 2009

Not looking for sympathy, just a result.

In Qld Aust it is not easy to get paper copies of any testing. They

are held by the doctor ordering them. To even get them from a lab or

hospital involved requires some effort. Believe me I have tried and

many others I have talked to agree!!

> > >

> > > > Sorry, have just got back to this forum. Symptoms have been

> > worsening

> > > > Just got out of hospital again, BP was 181/121 P104 when

admitted.

> > > > Woke up during normal sleep with chest pain, sweating,

shakes etc.

> > > > At the time I had weaned off the Betaloc and had taken 200ug

of

> > > > physiotens when I went to bed. My local doctor now has

started me

> > on

> > > > 12.5mg of spiro as well at night. I have never been on it

before

> > as I

> > > > have not had any conclusive results through testing only

what is

> > > > mentioned. I was simply referred to a cardio. Have had the

heart

> > > > checked out and it is OK. Had an Angio. OK. No reason given

from

> > > > anyone which explains the erratic BP, the left side

intermittent

> > > > pain. The top endo I had seen previously feels he can do no

more,

> > yet

> > > > one other endo I consulted for a second opinion, felt it was

> > > > endocrine and sent me back to the original guy. If one has

been

> > > > tested a couple of times a year ago, and no conclusive

results,

> > just

> > > > what I mentioned, does that mean that you are as a patient

> > considered

> > > > finished. I understood that these things can change over the

years

> > > > and should be investigated every so often if symptoms

worsen. It

> > has

> > > > also been mentioned that I am a risk for surgery because of

> > previous

> > > > abdominal surgery in my 20's and possible adhesions. I am

67kg and

> > > > have always been very active so this really debilitating. My

local

> > > > doctor is recommending seeing another endo surgeon for an

opinion.

> > > > What do you think??

> > > >

> > >

January 6, 2009

I agree. I always have to ask what my BP is when it's measured by a dr

or nurse. Hard to get copies of results unless you make a strong point

of it - not always possible when you're feeling sick anyway.

Carol

jacca07 wrote:

>

> Not looking for sympathy, just a result.

> In Qld Aust it is not easy to get paper copies of any testing. They

> are held by the doctor ordering them. To even get them from a lab or

> hospital involved requires some effort. Believe me I have tried and

> many others I have talked to agree!!

>

> > > >

> > > > > Sorry, have just got back to this forum. Symptoms have been

> > > worsening

> > > > > Just got out of hospital again, BP was 181/121 P104 when

> admitted.

> > > > > Woke up during normal sleep with chest pain, sweating,

> shakes etc.

> > > > > At the time I had weaned off the Betaloc and had taken 200ug

> of

> > > > > physiotens when I went to bed. My local doctor now has

> started me

> > > on

> > > > > 12.5mg of spiro as well at night. I have never been on it

> before

> > > as I

> > > > > have not had any conclusive results through testing only

> what is

> > > > > mentioned. I was simply referred to a cardio. Have had the

> heart

> > > > > checked out and it is OK. Had an Angio. OK. No reason given

> from

> > > > > anyone which explains the erratic BP, the left side

> intermittent

> > > > > pain. The top endo I had seen previously feels he can do no

> more,

> > > yet

> > > > > one other endo I consulted for a second opinion, felt it was

> > > > > endocrine and sent me back to the original guy. If one has

> been

> > > > > tested a couple of times a year ago, and no conclusive

> results,

> > > just

> > > > > what I mentioned, does that mean that you are as a patient

> > > considered

> > > > > finished. I understood that these things can change over the

> years

> > > > > and should be investigated every so often if symptoms

> worsen. It

> > > has

> > > > > also been mentioned that I am a risk for surgery because of

> > > previous

> > > > > abdominal surgery in my 20's and possible adhesions. I am

> 67kg and

> > > > > have always been very active so this really debilitating. My

> local

> > > > > doctor is recommending seeing another endo surgeon for an

> opinion.

> > > > > What do you think??

> > > > >

> > > >

January 6, 2009

In retrospect it is easy to look back and see what should have been

done. I mistakenly thought my problem would be fairly quickly

resolved. If I had known I would be in this position over a year

later, yes, I would have been like a ferret after results. even

though I am not medically trained to understand them.

later

> > > > >

> > > > > > Sorry, have just got back to this forum. Symptoms have

been

> > > > worsening

> > > > > > Just got out of hospital again, BP was 181/121 P104 when

> > admitted.

> > > > > > Woke up during normal sleep with chest pain, sweating,

> > shakes etc.

> > > > > > At the time I had weaned off the Betaloc and had taken

200ug

> > of

> > > > > > physiotens when I went to bed. My local doctor now has

> > started me

> > > > on

> > > > > > 12.5mg of spiro as well at night. I have never been on it

> > before

> > > > as I

> > > > > > have not had any conclusive results through testing only

> > what is

> > > > > > mentioned. I was simply referred to a cardio. Have had the

> > heart

> > > > > > checked out and it is OK. Had an Angio. OK. No reason

given

> > from

> > > > > > anyone which explains the erratic BP, the left side

> > intermittent

> > > > > > pain. The top endo I had seen previously feels he can do

no

> > more,

> > > > yet

> > > > > > one other endo I consulted for a second opinion, felt it

was

> > > > > > endocrine and sent me back to the original guy. If one has

> > been

> > > > > > tested a couple of times a year ago, and no conclusive

> > results,

> > > > just

> > > > > > what I mentioned, does that mean that you are as a patient

> > > > considered

> > > > > > finished. I understood that these things can change over

the

> > years

> > > > > > and should be investigated every so often if symptoms

> > worsen. It

> > > > has

> > > > > > also been mentioned that I am a risk for surgery because

of

> > > > previous

> > > > > > abdominal surgery in my 20's and possible adhesions. I am

> > 67kg and

> > > > > > have always been very active so this really debilitating.

My

> > local

> > > > > > doctor is recommending seeing another endo surgeon for an

> > opinion.

> > > > > > What do you think??

> > > > > >

> > > > >

January 6, 2009

Sounds like a time for medical care reform down under.

You all are a democracy down there as I recall.

Contact your local elected rep to get them up to speed on this

issue. The patient's record is the patient's record.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 6, 2009, at 3:14 AM, jacca07 wrote:

>

> In retrospect it is easy to look back and see what should have been

> done. I mistakenly thought my problem would be fairly quickly

> resolved. If I had known I would be in this position over a year

> later, yes, I would have been like a ferret after results. even

> though I am not medically trained to understand them.

>

> later

> > > > > >

> > > > > > > Sorry, have just got back to this forum. Symptoms have

> been

> > > > > worsening

> > > > > > > Just got out of hospital again, BP was 181/121 P104 when

> > > admitted.

> > > > > > > Woke up during normal sleep with chest pain, sweating,

> > > shakes etc.

> > > > > > > At the time I had weaned off the Betaloc and had taken

> 200ug

> > > of

> > > > > > > physiotens when I went to bed. My local doctor now has

> > > started me

> > > > > on

> > > > > > > 12.5mg of spiro as well at night. I have never been on it

> > > before

> > > > > as I

> > > > > > > have not had any conclusive results through testing only

> > > what is

> > > > > > > mentioned. I was simply referred to a cardio. Have had the

> > > heart

> > > > > > > checked out and it is OK. Had an Angio. OK. No reason

> given

> > > from

> > > > > > > anyone which explains the erratic BP, the left side

> > > intermittent

> > > > > > > pain. The top endo I had seen previously feels he can do

> no

> > > more,

> > > > > yet

> > > > > > > one other endo I consulted for a second opinion, felt it

> was

> > > > > > > endocrine and sent me back to the original guy. If one has

> > > been

> > > > > > > tested a couple of times a year ago, and no conclusive

> > > results,

> > > > > just

> > > > > > > what I mentioned, does that mean that you are as a patient

> > > > > considered

> > > > > > > finished. I understood that these things can change over

> the

> > > years

> > > > > > > and should be investigated every so often if symptoms

> > > worsen. It

> > > > > has

> > > > > > > also been mentioned that I am a risk for surgery because

> of

> > > > > previous

> > > > > > > abdominal surgery in my 20's and possible adhesions. I am

> > > 67kg and

> > > > > > > have always been very active so this really debilitating.

> My

> > > local

> > > > > > > doctor is recommending seeing another endo surgeon for an

> > > opinion.

> > > > > > > What do you think??

> > > > > > >

> > > > > >

January 6, 2009

Now that you have added the information about " all the chromafin

tissue being removed that may have been causing pain " I wonder if you

did not have a virtual lumbar sympathectomy which can lead to wild

swings in BP-it knocks out the sympathetic control systems.

Now you understand what we mean when we say you cannot give us too

many details!

Would try to get all the details about what was done at this surgery

and include in your medical records. Be sure to mention it to all

future Drs.

You need to see a cardiologist or someone at Greenslopes who

specializes in this sort of problem and maybe you did but if you did

not mention the surgery they may not have picked up on this.

I suspect surgery willl be a real problem with all the scar tissue

that is there now.

How did they explain the striking effect of a low dose of sprio.

That is PA till proven otherwise IMHO.

May your pressure be low!

chromaffin

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 5, 2009, at 7:16 PM, arthur springer wrote:

> You keep saying that you are being " told " this or that.

> Not to sound unsympatheticd, but you cannot get anywhere with any

> health problems unless you keep your own medical record with copies of

> final reports of all blood tests and any other diagnostic tests or

> surgical procedures. That is the first step toward removing the cloud

> of uncertainty you live with.

> Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•Â•

> Â•Â•

>

> On Jan 5, 2009, at 9:32 PM, jacca07 wrote:

>

>> Thanks Farah, Your input helps greatly.

>> I am in Qld, Australia and went to the recommended Hypertension Unit

>> in Brisbane (reluctant to use names) late 2007 with no conclusive

>> results. Did the urinary, bloods, AVS, etc all there. In the unit, I

>> was not given figures just told everything was 'normal' which

>> obviously it wasn't as I wrote to the labs for the few paper results

>> I actually have and they show some otherwise. My episodes according

>> to my local dr, who has to treat me.. are more pheo like as they are

>> happening with adrenaline rushes and triggers...even though he

>> originally thought Conn's. The mass in the left adrenal was

>> picked up

>> when I went to Emergency at another hospital whilst on a trip,

>> during

>> another severe episode.

>> After being told 'there was nothing more they can do' regarding

>> testing at the Hytn Unit, my dr was so frustrated at me seemingly

>> getting 'nowhere', he took me off the Beta and has put me on Spiro

>> 25mg which has made a huge difference in only two weeks. Also on

>> Moxonidine (Physiotens) for the BP which is working. I had been

>> tried on numerous other BP meds with no reduction in BP. In the Unit

>> I was never given a reason for the heart episodes. I had a couple of

>> severe ones requiring cardiology whilst in there. I was not very

>> active in the unit during the testing. When active at home, symptoms

>> are severe and in the heat of summer here are 100% worse than a year

>> ago when the testing was done. My potassium I do not have a clue.

>> Kept being told it was normal. I have not had any testing much in

>> the past year really. Re the AVS they only did it reluctantly as

>> nothing else showed results, then it was a failed one, which again

>> gave no result. Most other parts of the body have been tested one

>> way

>> or other. Thyroid has a lump in it also, cyst they think. I was

>> told it was OK. Only interesting thing I thought was in my 20's I

>> had severe endometriosis, 2 ops resulting in total hyst., appendix

>> out, gall bladder out, breast lump out, vagotomy, all chromaffin

>> tissue causing the pain and problems with each op. Probably the same

>> in the left adrenal and thyroid.

>> Since being on the two new drugs, relief in that my chest pain at

>> night has reduced considerably, fluid buildup in chest has eased

>> (unless I do too much), muscular tingling has eased, BP has come

>> down. Has spiked a few times in the middle of the night though, salt

>> in a meal caused one..cannot seem to tolerate salt. That was one

>> test

>> that was very low. Other symptoms are all as usual, left flank pain

>> is getting worse. Was told kidneys are OK from ct scan.

>> My dr is now sending me to an endo surgeon to see if it warrants

>> taking the left adrenal out. Me, I do not know where to turn

>> anymore, seem to have few options.

>>

>> In hyperaldosteronism , " Farah Rahbar " <farahbar@...>

>> wrote:

>>>

>>> You need to tell us where you are located. Dr. Grim may be able to

>> refer you

>>> to a more knowledgeable endo.

>>> As mentioned, your endo that you have now, is going to end

>> up

>>> killing you.

>>> You need to stop your other bp medication and increase your

>> spironolactone.

>>> Its better to start with a higher dose to control your blood

>> pressure. It

>>> takes few days before Spironolactone starts working and you notice

>> a result.

>>> Most of us start at about 100mg/day and after few months temper

>> down. Do you

>>> have low potassium too?

>>> Also, the AVS is inconclusive if you dont have both sides. Both

>> adrenal

>>> glands could be producing too much aldosternone and you would not

>> know it

>>> unless a proper AVS has been performed. ..and by the way many

>> untalented

>>> radiologists miss the right side because of the location of the

>> right

>>> adrenal gland, a lot of doctors just take the sampling from the

>> vena cava

>>> thinking they are in the right adrenal vein.

>>>

>>> Also, you need to make sure your thyroid gland is not over/under

>> producing.

>>> a symptom of the thyroid mal function can also be chest pain,

>> sweating and

>>> rapid heart rate and not being able to sleep at night.

>>>

>>> Take care and keep us posted.

>>>

>>> Hang in there.

>>>

>>> Farah

>>>

>>> On Tue, Dec 23, 2008 at 4:12 PM, jacca07 <jacca07@...> wrote:

>>>

>>>> Sorry, have just got back to this forum. Symptoms have been

>> worsening

>>>> Just got out of hospital again, BP was 181/121 P104 when admitted.

>>>> Woke up during normal sleep with chest pain, sweating, shakes etc.

>>>> At the time I had weaned off the Betaloc and had taken 200ug of

>>>> physiotens when I went to bed. My local doctor now has started me

>> on

>>>> 12.5mg of spiro as well at night. I have never been on it before

>> as I

>>>> have not had any conclusive results through testing only what is

>>>> mentioned. I was simply referred to a cardio. Have had the heart

>>>> checked out and it is OK. Had an Angio. OK. No reason given from

>>>> anyone which explains the erratic BP, the left side intermittent

>>>> pain. The top endo I had seen previously feels he can do no more,

>> yet

>>>> one other endo I consulted for a second opinion, felt it was

>>>> endocrine and sent me back to the original guy. If one has been

>>>> tested a couple of times a year ago, and no conclusive results,

>> just

>>>> what I mentioned, does that mean that you are as a patient

>> considered

>>>> finished. I understood that these things can change over the years

>>>> and should be investigated every so often if symptoms worsen. It

>> has

>>>> also been mentioned that I am a risk for surgery because of

>> previous

>>>> abdominal surgery in my 20's and possible adhesions. I am 67kg and

>>>> have always been very active so this really debilitating. My local

>>>> doctor is recommending seeing another endo surgeon for an opinion.

>>>> What do you think??

>>>>

>>>

January 6, 2009

LOL. That is how my PA was discovered. I am 6'4 " tall and at the time

weighed about 250 pounds. The Dr insisted on upping a medication

(that I was already on and it wasn't working). It was making me feel

like crap. I got angry, stood up and put my index finger in his chest

and said (edited) " no way. " Besides calling a shrink because of my

outburst, he set me up with a nephrologist who discovered the issue

almost immediately. Unfortunately, she lost her job due to corporate

politics. But since then I have never hesitated to discuss or even

argue for ME with whoever the Dr is. After all, I am hiring them and

I am paying them.

~Dave K.

> > > >

> > > > > Sorry, have just got back to this forum. Symptoms have been

> > > worsening

> > > > > Just got out of hospital again, BP was 181/121 P104 when

> admitted.

> > > > > Woke up during normal sleep with chest pain, sweating,

> shakes etc.

> > > > > At the time I had weaned off the Betaloc and had taken

200ug

> of

> > > > > physiotens when I went to bed. My local doctor now has

> started me

> > > on

> > > > > 12.5mg of spiro as well at night. I have never been on it

> before

> > > as I

> > > > > have not had any conclusive results through testing only

> what is

> > > > > mentioned. I was simply referred to a cardio. Have had the

> heart

> > > > > checked out and it is OK. Had an Angio. OK. No reason

given

> from

> > > > > anyone which explains the erratic BP, the left side

> intermittent

> > > > > pain. The top endo I had seen previously feels he can do

no

> more,

> > > yet

> > > > > one other endo I consulted for a second opinion, felt it

was

> > > > > endocrine and sent me back to the original guy. If one has

> been

> > > > > tested a couple of times a year ago, and no conclusive

> results,

> > > just

> > > > > what I mentioned, does that mean that you are as a patient

> > > considered

> > > > > finished. I understood that these things can change over

the

> years

> > > > > and should be investigated every so often if symptoms

> worsen. It

> > > has

> > > > > also been mentioned that I am a risk for surgery because of

> > > previous

> > > > > abdominal surgery in my 20's and possible adhesions. I am

> 67kg and

> > > > > have always been very active so this really debilitating.

My

> local

> > > > > doctor is recommending seeing another endo surgeon for an

> opinion.

> > > > > What do you think??

> > > > >

> > > >

January 6, 2009

dont recall that we have bigdogs complete story.

May your pressure be low!

ï¿¼

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 6, 2009, at 7:45 PM, bigdogdkiedrow wrote:

> LOL. That is how my PA was discovered. I am 6'4 " tall and at the time

> weighed about 250 pounds. The Dr insisted on upping a medication

> (that I was already on and it wasn't working). It was making me feel

> like crap. I got angry, stood up and put my index finger in his chest

> and said (edited) " no way. " Besides calling a shrink because of my

> outburst, he set me up with a nephrologist who discovered the issue

> almost immediately. Unfortunately, she lost her job due to corporate

> politics. But since then I have never hesitated to discuss or even

> argue for ME with whoever the Dr is. After all, I am hiring them and

> I am paying them.

>

> ~Dave K.

>

> > > > >

> > > > > > Sorry, have just got back to this forum. Symptoms have been

> > > > worsening

> > > > > > Just got out of hospital again, BP was 181/121 P104 when

> > admitted.

> > > > > > Woke up during normal sleep with chest pain, sweating,

> > shakes etc.

> > > > > > At the time I had weaned off the Betaloc and had taken

> 200ug

> > of

> > > > > > physiotens when I went to bed. My local doctor now has

> > started me

> > > > on

> > > > > > 12.5mg of spiro as well at night. I have never been on it

> > before

> > > > as I

> > > > > > have not had any conclusive results through testing only

> > what is

> > > > > > mentioned. I was simply referred to a cardio. Have had the

> > heart

> > > > > > checked out and it is OK. Had an Angio. OK. No reason

> given

> > from

> > > > > > anyone which explains the erratic BP, the left side

> > intermittent

> > > > > > pain. The top endo I had seen previously feels he can do

> no

> > more,

> > > > yet

> > > > > > one other endo I consulted for a second opinion, felt it

> was

> > > > > > endocrine and sent me back to the original guy. If one has

> > been

> > > > > > tested a couple of times a year ago, and no conclusive

> > results,

> > > > just

> > > > > > what I mentioned, does that mean that you are as a patient

> > > > considered

> > > > > > finished. I understood that these things can change over

> the

> > years

> > > > > > and should be investigated every so often if symptoms

> > worsen. It

> > > > has

> > > > > > also been mentioned that I am a risk for surgery because of

> > > > previous

> > > > > > abdominal surgery in my 20's and possible adhesions. I am

> > 67kg and

> > > > > > have always been very active so this really debilitating.

> My

> > local

> > > > > > doctor is recommending seeing another endo surgeon for an

> > opinion.

> > > > > > What do you think??

> > > > > >

> > > > >

January 6, 2009

Stick around dog. I need your attitude. I can't be the only kickass

participant in this group. Did you ever go see the psychiatrist? What

did you tell him/her?

as

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On Jan 6, 2009, at 10:45 PM, bigdogdkiedrow wrote: