(No subject)

[Guest guest]

Diane,

Run your virus software now and make sure you have no bugs. You are on the

list, but it's possible you got a " worm " (not from the list) that has

accessed your address book and is sending out emails. is set up so no

one can get a virus or worm from the list mail.

(no subject)

> someone sent an email saying I asked to be removed from the list and I did

> not. I just got another email supposedly from me saying something is fake,

and

> saying that's wrong. I don't know what that is, or who is using my name

but

> its not me.???

>

> Diane

> wweisbrodt@...

>

>

>

>

[Guest guest]

In a message dated 9/1/2004 2:00:08 AM Eastern Daylight Time, JB66111@...

writes:

In other words deciding whether a person is disabled. That's

not usually a problem with our kids.

DS= automatic qualify ... it's in the SS regs. (unless mosiac)

Cheryl

[Guest guest]

In a message dated 2/16/2005 5:04:14 PM Eastern Standard Time, Loree5@...

writes:

> Okay guys it's been too quiet around here. I have a question. I took

> Micah

> to our teaching hospital to the pediatric dentist (they have a

> developmental

> program). I understand that it is hard to get our kids to be compliant but

>

> they want to papoose Micah on a board to take x-rays and I have a problem

> with this.

I have to admit we need to use something like a papoose for Liam through most

of the dental exam. He's stubborn and incredibly strong (like Bam-Bam on the

Flintstones). The last time I took Liam to the Opthamalogist, the poor

doctor got kicked in a most sensitive place. I take him to the dentists at LIJ

and

they are incredibly sweet to him. We call it the magic blanket. The brief

indignation of being put into a retrained position goes away quickly as they

distract him and make a game out of things. I don't think Micah will be

traumatized as long as you're with him and keep on talking to him.

Kathy, Liam's Mom (6)

[Guest guest]

In a message dated 2/16/2005 5:04:14 PM Eastern Standard Time, Loree5@...

writes:

> Okay guys it's been too quiet around here. I have a question. I took

> Micah

> to our teaching hospital to the pediatric dentist (they have a

> developmental

> program). I understand that it is hard to get our kids to be compliant but

>

> they want to papoose Micah on a board to take x-rays and I have a problem

> with this.

I have to admit we need to use something like a papoose for Liam through most

of the dental exam. He's stubborn and incredibly strong (like Bam-Bam on the

Flintstones). The last time I took Liam to the Opthamalogist, the poor

doctor got kicked in a most sensitive place. I take him to the dentists at LIJ

and

they are incredibly sweet to him. We call it the magic blanket. The brief

indignation of being put into a retrained position goes away quickly as they

distract him and make a game out of things. I don't think Micah will be

traumatized as long as you're with him and keep on talking to him.

Kathy, Liam's Mom (6)

[Guest guest]

Great picture Loree and what a cutie! Looks like he's found the treasure.

Kathy, Liam's Mom (6)

[Guest guest]

Great picture Loree and what a cutie! Looks like he's found the treasure.

Kathy, Liam's Mom (6)

[Guest guest]

Anyway the hospital is pushing my sister in law to become his

> guardian to make decisions (she has a health care proxy on him) and I told

> her to be careful because I am afraid she would be responsible for his

medical

> and nursing home care bills. It is going to cost 4,000.00 just to get

> guardianship alone. She would lose her home if this is the case. I know

we have

> to get legal guardianship of our children when they turn 21 so figured

you

> guys would know the answer to this question.

I know little about guardianship responsibilities. I would ask the local

ARC for assistance on this. My impression is that guardians make decisions

after they are appointed by a court. Many people assume that if they are

their adult child's representative payee, then they automatically are their

guardians ...not true! And...not all of our children will be found needing

a guardian when they become adults (age 18). If we as parents want to

petition the court for guardianship, then we may have to pay attorney fees

(if they retain one) and definately court costs. I do know a few guardians,

but the financial responsibility of someones daily care would and still

should be covered by medicaid/medicare. See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.859 / Virus Database: 585 - Release Date: 2/15/2005

[Guest guest]

Anyway the hospital is pushing my sister in law to become his

> guardian to make decisions (she has a health care proxy on him) and I told

> her to be careful because I am afraid she would be responsible for his

medical

> and nursing home care bills. It is going to cost 4,000.00 just to get

> guardianship alone. She would lose her home if this is the case. I know

we have

> to get legal guardianship of our children when they turn 21 so figured

you

> guys would know the answer to this question.

I know little about guardianship responsibilities. I would ask the local

ARC for assistance on this. My impression is that guardians make decisions

after they are appointed by a court. Many people assume that if they are

their adult child's representative payee, then they automatically are their

guardians ...not true! And...not all of our children will be found needing

a guardian when they become adults (age 18). If we as parents want to

petition the court for guardianship, then we may have to pay attorney fees

(if they retain one) and definately court costs. I do know a few guardians,

but the financial responsibility of someones daily care would and still

should be covered by medicaid/medicare. See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.859 / Virus Database: 585 - Release Date: 2/15/2005

[Guest guest]

In our area, we have had hospitals push and take legal action to assign

guardians for patients with disabilities. It is a slippery slope, because then

they are in charge of medical care, how much and where they send the person.

With

the hospital rep in charge, treatment could be withheld or patients could be

placed in long term care facilities that the hospital has an interest in.

You really should check this out. Why wouldn't a medical power of attorney

suffice instead of guardianship?

Cheryl in VA

[Guest guest]

In our area, we have had hospitals push and take legal action to assign

guardians for patients with disabilities. It is a slippery slope, because then

they are in charge of medical care, how much and where they send the person.

With

the hospital rep in charge, treatment could be withheld or patients could be

placed in long term care facilities that the hospital has an interest in.

You really should check this out. Why wouldn't a medical power of attorney

suffice instead of guardianship?

Cheryl in VA

[Guest guest]

Well mys sister in law already had a medical proxy form filled out and is making

all his medical decisions, that was my point exactly. I don't think they can

take that away from her but if she takes guardianship, he takes on all his

medicsl bills . She says the social worker told her no that she is not

reponsible for his bills but I am leery. I know when we adopted our children we

first had paperwork that said we were his legal guardians until the adoption was

final and resposnsible for all his needs until his adoption took place. I would

think this is the same. Your the legal guardian responsible for it all. What a

mess this is, I hope she proceeds slowly. People make rash decisions when

emotions are at play.

Re: (no subject)

In our area, we have had hospitals push and take legal action to assign

guardians for patients with disabilities. It is a slippery slope, because

then

they are in charge of medical care, how much and where they send the person.

With

the hospital rep in charge, treatment could be withheld or patients could be

placed in long term care facilities that the hospital has an interest in.

You really should check this out. Why wouldn't a medical power of attorney

suffice instead of guardianship?

Cheryl in VA

[Guest guest]

Well mys sister in law already had a medical proxy form filled out and is making

all his medical decisions, that was my point exactly. I don't think they can

take that away from her but if she takes guardianship, he takes on all his

medicsl bills . She says the social worker told her no that she is not

reponsible for his bills but I am leery. I know when we adopted our children we

first had paperwork that said we were his legal guardians until the adoption was

final and resposnsible for all his needs until his adoption took place. I would

think this is the same. Your the legal guardian responsible for it all. What a

mess this is, I hope she proceeds slowly. People make rash decisions when

emotions are at play.

Re: (no subject)

In our area, we have had hospitals push and take legal action to assign

guardians for patients with disabilities. It is a slippery slope, because

then

they are in charge of medical care, how much and where they send the person.

With

the hospital rep in charge, treatment could be withheld or patients could be

placed in long term care facilities that the hospital has an interest in.

You really should check this out. Why wouldn't a medical power of attorney

suffice instead of guardianship?

Cheryl in VA

[Guest guest]

See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

I have started to do this but am finding there are many different types of

guardianships. She is just going to have to get a good lawyer and trust what he

says. I told her to make sure he understands that she can't be responsible for

his bills. He is going to be in a long term faciclity for a long time there is

no doubt. Thanks everyone.

Loree

Re: (no subject)

Anyway the hospital is pushing my sister in law to become his

> guardian to make decisions (she has a health care proxy on him) and I told

> her to be careful because I am afraid she would be responsible for his

medical

> and nursing home care bills. It is going to cost 4,000.00 just to get

> guardianship alone. She would lose her home if this is the case. I know

we have

> to get legal guardianship of our children when they turn 21 so figured

you

> guys would know the answer to this question.

I know little about guardianship responsibilities. I would ask the local

ARC for assistance on this. My impression is that guardians make decisions

after they are appointed by a court. Many people assume that if they are

their adult child's representative payee, then they automatically are their

guardians ...not true! And...not all of our children will be found needing

a guardian when they become adults (age 18). If we as parents want to

petition the court for guardianship, then we may have to pay attorney fees

(if they retain one) and definately court costs. I do know a few guardians,

but the financial responsibility of someones daily care would and still

should be covered by medicaid/medicare. See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.859 / Virus Database: 585 - Release Date: 2/15/2005

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

[Guest guest]

See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

I have started to do this but am finding there are many different types of

guardianships. She is just going to have to get a good lawyer and trust what he

says. I told her to make sure he understands that she can't be responsible for

his bills. He is going to be in a long term faciclity for a long time there is

no doubt. Thanks everyone.

Loree

Re: (no subject)

Anyway the hospital is pushing my sister in law to become his

> guardian to make decisions (she has a health care proxy on him) and I told

> her to be careful because I am afraid she would be responsible for his

medical

> and nursing home care bills. It is going to cost 4,000.00 just to get

> guardianship alone. She would lose her home if this is the case. I know

we have

> to get legal guardianship of our children when they turn 21 so figured

you

> guys would know the answer to this question.

I know little about guardianship responsibilities. I would ask the local

ARC for assistance on this. My impression is that guardians make decisions

after they are appointed by a court. Many people assume that if they are

their adult child's representative payee, then they automatically are their

guardians ...not true! And...not all of our children will be found needing

a guardian when they become adults (age 18). If we as parents want to

petition the court for guardianship, then we may have to pay attorney fees

(if they retain one) and definately court costs. I do know a few guardians,

but the financial responsibility of someones daily care would and still

should be covered by medicaid/medicare. See if your sister in law's state

codes are available on the internet (VA are) and search under guardianship.

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.859 / Virus Database: 585 - Release Date: 2/15/2005

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

[Guest guest]

Lorre,

Look under IEP meeting help, parent doc.

Joy

(no subject)

,

Didin't you once say you wrote out a parent's overview about to

hand out at IEP meetings? I went to the group listings but couldn't find

anything. Could you tell me exactly what you did. I am dreading my IEP, they

haven't even given me a date yet but I am scrambling because of now having to

make new decisions since CSPE meeting and finding out that we are going to

have to fight for a teacher consult and another year of preschool. Now we are

mulling over if it might be a good idea to just let him do kindy twice as

long as they include him in home school regular kindy with supports. (Our

school only has self contained classroom until 2nd grade). But now I have to

try

and rework everything when I thought I had a WHOLE year to plan for his first

IEP. HELP!!

Loree

[Guest guest]

Lorre,

Look under IEP meeting help, parent doc.

Joy

(no subject)

,

Didin't you once say you wrote out a parent's overview about to

hand out at IEP meetings? I went to the group listings but couldn't find

anything. Could you tell me exactly what you did. I am dreading my IEP, they

haven't even given me a date yet but I am scrambling because of now having to

make new decisions since CSPE meeting and finding out that we are going to

have to fight for a teacher consult and another year of preschool. Now we are

mulling over if it might be a good idea to just let him do kindy twice as

long as they include him in home school regular kindy with supports. (Our

school only has self contained classroom until 2nd grade). But now I have to

try

and rework everything when I thought I had a WHOLE year to plan for his first

IEP. HELP!!

Loree

[Guest guest]

She has every legal right to homeschool. Send her to hslda.com it has the

laws for homeschooling in every state.

Here in Pennsylvania, the governmental service money comes thru our school

district and if I were to pull Hannah out they would still have to provide

services.

The reason that she wants to homeschool doesn't matter. She has a RIGHT to

do it for what ever reason she chooses.

Connie

In a message dated 6/10/2005 9:14:03 A.M. Eastern Daylight Time,

Loree5@... writes:

I have a question for everyone. Micah's ST has a family who have two kids

with CP and they had them for the past two years in an integrated

pre-school

program. During that time they were absent from school two thirds of the

time

ill. Mom wants to home school the kids and the school said they will not

provide a teacher consult to help her with curriculum if she keeps them

out.

Her doctor won't give her a medical note as he feels that being exposed to

the

germs will build there immunity. Does she have any legal rights to home

school with the school providing teacher consult. They will provide the

OT, ST,

PT for them. Any ideas??

Loree

[Guest guest]

In a message dated 6/10/2005 6:39:11 AM US Mountain Standard Time,

kindafunny@... writes:

if I were to pull Hannah out they would still have to provide

services.

You are right they have to provide services.. (but she would still probably

have to take them to the school to get them...) but do they have to provide the

teacher consult? I'm thinking they don't.

M.

[Guest guest]

In a message dated 6/10/2005 6:39:11 AM US Mountain Standard Time,

kindafunny@... writes:

if I were to pull Hannah out they would still have to provide

services.

You are right they have to provide services.. (but she would still probably

have to take them to the school to get them...) but do they have to provide the

teacher consult? I'm thinking they don't.

M.

[Guest guest]

In a message dated 6/10/2005 9:14:02 AM Eastern Daylight Time, Loree5@...

writes:

> I have a question for everyone. Micah's ST has a family who have two kids

>

> with CP and they had them for the past two years in an integrated

> pre-school

> program. During that time they were absent from school two thirds of the

> time

> ill. Mom wants to home school the kids and the school said they will not

> provide a teacher consult to help her with curriculum if she keeps them

> out.

That's really crummy. Last fall when Liam came down with Diabetes, the unit

coordinator (like an assistant principal) called and offered to provide an in

home tutor. I thanked her and declined since I really want him in school.

Liam was out no where near two-thirds of the time. If NYC can be so

accommodating I can't see why Suffolk or Nassau can't.

Kathy, Liam's Mom (7, Down syndrome, Asthma, Type 1 Diabetes (dx 11/04))

[Guest guest]

She probably won'r get help with the teacher consult (frankly I do the

consulting TO the teachers rather than the other way around!). She should look

into home schooling groups and co-ops in her area. Other parents who are doing

the same thing will be her best resource.

- Becky

Her doctor won't give her a medical note as he feels that being exposed to

the

germs will build there immunity. Does she have any legal rights to home

school with the school providing teacher consult. They will provide the

OT, ST,

PT for them. Any ideas??

Loree

[Guest guest]

In a message dated 13/07/2005 21:47:12 GMT Daylight Time, CK2Mail writes:

don't know. But the instructions areclear. The bottle says "store atroom temperature." The package says"DO NOT REFRIGERATE". The expirationdate is about the same for therefrigerate stuff I used to get,less than 2 months.The bottle does say "No preservatives".--- CK2Mail@... wrote:> >>This is interetsing , our UK DAN! dr just> started sourcing the MB12 > in vials from College and using their hospital> pharmacy to prefilled > syringes. Now a buddy has some and said she was told> to ke in a dark place but wasn;t > told to refridgerate - I told to because I never> heard of not doing so.> > How does this not go bad?> > Mandi in UK> Already put my RX in at Wellness before this deal> came off but if they don;t > depatch today, I'll telll them to forget it and try> this stuff. Need to > support the Dr also has has tried to sort this out> for us. > > _http://www.drneubrander.com/page5.html_ > (http://www.drneubrander.com/page5.html) > > We recently switched our prescription to> College Pharmacy in Colorado Springs,> CO. The stuff does not require refrigeration.> The pharmacy accepts insurance. We notice> postive effects from these shots as opposed> to the former prescription: increased awareness> and interaction. Pharmacy computes dose based> upon weight of child.

I don't know. But the instructions areclear. The bottle says "store atroom temperature." The package says"DO NOT REFRIGERATE". The expirationdate is about the same for therefrigerate stuff I used to get,less than 2 months.The bottle does say "No preservatives".--- CK2Mail@... wrote:> >>This is interetsing , our UK DAN! dr just> started sourcing the MB12 > in vials from College and using their hospital> pharmacy to prefilled > syringes. Now a buddy has some and said she was told> to ke in a dark place but wasn;t > told to refridgerate - I told to because I never> heard of not doing so.> > How does this not go bad?> > Mandi in UK> Already put my RX in at Wellness before this deal> came off but if they don;t > depatch today, I'll telll them to forget it and try> this stuff. Need to > support the Dr also has has tried to sort this out> for us. > > _http://www.drneubrander.com/page5.html_ > (http://www.drneubrander.com/page5.html) > > We recently switched our prescription to> College Pharmacy in Colorado Springs,> CO. The stuff does not require refrigeration.> The pharmacy accepts insurance. We notice> postive effects from these shots as opposed> to the former prescription: increased awareness> and interaction. Pharmacy computes dose based> upon weight of child.

[Guest guest]

Hi- I am so sorry about Micah I am praying he stops scaring his Mommy!! Try

Hydrocortisone cream even the docs use it that's how I heard about.

RN Mom to (9 ADHD tics Depression) (bossy boats 2) Liam (8

months DS)

(no subject)

Well we took another ride in the ambulance again last night. Micah decided

he was going to scare the pants off his mother and start choking again (we

are assuing he refluxed again, I have to take him to ped on Monday).

and

the boys had just left to go pick up their tux's for Mandi's wedding this

Saturday (like I don't already have enough stress), and I don't think they

were

gone 10 minutes when he started choking. He does this so I waited for about

4 minutes as he choked and coughed until his lips started turning purple,

heart atack time. I then did the Heimlich and called 911. As I was on the

phone with 911 he threw up and while better was still choking and coughing.

He

gradually started to return to normal but when paramendics and police got

there they were both nervous about his cough so it was off in the ambulance

again. What a night!!! So does anyone know a good way to cover up zits? My

face was slightly broken out before, this morning it is terrible. This

figures,

haven't had a skin breakout in years, just to much stress for one mother. I

am not super vain but would like to look decent for my daughter's wedding

when I have to walk the aisle and go up and light the candles. HELP!!! I am

desperate!. Thank the Lord Micah is doing better today so I can breathe a

little easier. Thanks guys for any suggestions.

Loree one very tired and stressed out mom!!

[Guest guest]

Hi- I am so sorry about Micah I am praying he stops scaring his Mommy!! Try

Hydrocortisone cream even the docs use it that's how I heard about.

RN Mom to (9 ADHD tics Depression) (bossy boats 2) Liam (8

months DS)

(no subject)

Well we took another ride in the ambulance again last night. Micah decided

he was going to scare the pants off his mother and start choking again (we

are assuing he refluxed again, I have to take him to ped on Monday).

and

the boys had just left to go pick up their tux's for Mandi's wedding this

Saturday (like I don't already have enough stress), and I don't think they

were

gone 10 minutes when he started choking. He does this so I waited for about

4 minutes as he choked and coughed until his lips started turning purple,

heart atack time. I then did the Heimlich and called 911. As I was on the

phone with 911 he threw up and while better was still choking and coughing.

He

gradually started to return to normal but when paramendics and police got

there they were both nervous about his cough so it was off in the ambulance

again. What a night!!! So does anyone know a good way to cover up zits? My

face was slightly broken out before, this morning it is terrible. This

figures,

haven't had a skin breakout in years, just to much stress for one mother. I

am not super vain but would like to look decent for my daughter's wedding

when I have to walk the aisle and go up and light the candles. HELP!!! I am

desperate!. Thank the Lord Micah is doing better today so I can breathe a

little easier. Thanks guys for any suggestions.

Loree one very tired and stressed out mom!!

[Guest guest]

In a message dated 8/3/2005 4:27:41 P.M. Eastern Standard Time, RSYOSH

writes:

Usually school busses are exempt under state law (re: seat belts & booster

seats). But definitely push for a seat (or at least a seat blet) installed for

him in the regular bus. had a seat belt installed for her on the

regular bus in Kindergarten. It was great for 2 reasons - kept her stabilized

so

she didn't slide off the seat due to poor muscle tone, AND kept her from

standing on the seat to wave out the window (!).

- Becky

There are seat belts on the bus already and I already suggested that I would

put him on and belt him in. I also requested a seat buddy from the

neighborhood and seating right behind the bus driver. They are still worried

about

his being so small, he is only 28 pounds, but I will continue the good fight.

loree