NEED ADVICE

[Guest guest]

On Apr 25, 2009, at 4:33 PM, slesfam1@... wrote:I am going to go ahead and get that done. My husband has sleep apnea and has the cpap machine, so I know a lot about it cause of him. I am just curious why the added concern for this in my case. Can having sleep apnea cause higher blood pressure? yes and excess aldo it seemsI do wake up 3 to 4 times a night for no apparent reason. do usnore or stop nresthing when asleepdo u pee when u get up?My husband does not though. Most of my problem is getting to sleep  because my mind is just wired and won't shut down. Plus, I feel my best at that time too. I stopped all caffeine and and late dinners to try to help but no change. Now my best, is in comparrison to how I normally feel, which is crappy. I go to bed same time all the time and get up at the same time too. I do know that I generate so much heat from within  so when I sleep,  I have to have a fan or I will have an asthma attack.  Flushing is a major problem too.  I only tell you this so you have a clearer picture of malfunctions! lol Another thing why would you think my BP could be low? I have a BP machine at home and have since my bp problems 11yrs ago. When at home I always have a BP of 115-120/75-85. But at the doctors is when it seems to go up I guess it is nerves. My BP would probably be even better if I'd lose some weight. However, I have never thought of my BP as low. Now I have tried to moniter my BP when I stand up cause of the head pains upon standing. Sometimes, I do catch about a 5 point drop when I stand but it is not consistant. this is normal bp drop a bit with standingI have been on BP med like topral(I think is its name)  for the odd time my bp went to 140 at the docs office...I guess he did not believe me. It made no difference  so the doc took me off it.

[Guest guest]

I have been told I do snore sometimes and occasionally it is obnoxious.

; ) I do not know if I stop breathing...gosh I hope not! Yes, I do get

up to go pee a lot. I thought it was cause of the potassium sparing

diuretic but was the same off it. I had a bladder lift Dec 08 and a

cystoscope done to see if there was a reason for the tender bladder and

the inability to hold my pee as long as others. Of course everything

appeared normal. I was given meds but again had bad reactions. I have

just tried to, " deal " with it. Is there any way to test my aldo levels

without having to come off my water pill......like by AVS? Also, I

thought BP increase's so it can get the blood flowing out of the legs

to the brain so to avoid hypotension?

>

> > I am going to go ahead and get that done. My husband has sleep

> > apnea and has the cpap machine, so I know a lot about it cause of

> > him. I am just curious why the added concern for this in my case.

> > Can having sleep apnea cause higher blood pressure?

>

>

> yes and excess aldo it seems

>

> > I do wake up 3 to 4 times a night for no apparent reason.

>

> do usnore or stop nresthing when asleep

> do u pee when u get up?

>

> > My husband does not though. Most of my problem is getting to sleep

> > because my mind is just wired and won't shut down. Plus, I feel my

> > best at that time too. I stopped all caffeine and and late dinners

> > to try to help but no change. Now my best, is in comparrison to how

> > I normally feel, which is crappy. I go to bed same time all the

> > time and get up at the same time too. I do know that I generate so

> > much heat from within so when I sleep, I have to have a fan or I

> > will have an asthma attack. Flushing is a major problem too. I

> > only tell you this so you have a clearer picture of malfunctions!

> > lol Another thing why would you think my BP could be low? I have a

> > BP machine at home and have since my bp problems 11yrs ago. When at

> > home I always have a BP of 115-120/75-85. But at the doctors is

> > when it seems to go up I guess it is nerves. My BP would probably

> > be even better if I'd lose some weight. However, I have never

> > thought of my BP as low. Now I have tried to moniter my BP when I

> > stand up cause of the head pains upon standing. Sometimes, I do

> > catch about a 5 point drop when I stand but it is not consistant.

>

> this is normal bp drop a bit with standing

>

> > I have been on BP med like topral(I think is its name) for the odd

> > time my bp went to 140 at the docs office...I guess he did not

> > believe me. It made no difference so the doc took me off it.

>

[Guest guest]

YES, sleep apnea can cause high blood pressure. dash---- Clarence Grim <lowerbp2@...> wrote:=============On Apr 25, 2009, at 4:33 PM, slesfam1@... wrote:> I am going to go ahead and get that done. My husband has sleep> apnea and has the cpap machine, so I know a lot about it cause of> him. I am just curious why the added concern for this in my case.> Can having sleep apnea cause higher blood pressure?yes and excess aldo it seems> I do wake up 3 to 4 times a night for no apparent reason.do usnore or stop nresthing when asleepdo u pee when u get up?> My husband does not though. Most of my problem is getting to sleep> because my mind is just wired and won't shut down. Plus, I feel my> best at that time too. I stopped all caffeine and and late dinners> to try to help but no change. Now my best, is in comparrison to how> I normally feel, which is crappy. I go to bed same time all the> time and get up at the same time too. I do know that I generate so> much heat from within so when I sleep, I have to have a fan or I> will have an asthma attack. Flushing is a major problem too. I> only tell you this so you have a clearer picture of malfunctions!> lol Another thing why would you think my BP could be low? I have a> BP machine at home and have since my bp problems 11yrs ago. When at> home I always have a BP of 115-120/75-85. But at the doctors is> when it seems to go up I guess it is nerves. My BP would probably> be even better if I'd lose some weight. However, I have never> thought of my BP as low. Now I have tried to moniter my BP when I> stand up cause of the head pains upon standing. Sometimes, I do> catch about a 5 point drop when I stand but it is not consistant.this is normal bp drop a bit with standing> I have been on BP med like topral(I think is its name) for the odd> time my bp went to 140 at the docs office...I guess he did not> believe me. It made no difference so the doc took me off it.

[Guest guest]

Anti depressants decreases libido and may also help lessen other autism behaviors - My son is little 7 yrs old and for months he could not stop himself from touching his penis.I repeatedly told him " You can only touch your penis in the bathroom - if you want too touch your penis, go to the bathroom "

All 16 year old boys are so easily sexually stimulated! Maybe some fashion magazines can help get some release?On Tue, Dec 29, 2009 at 8:27 AM, AlidaV <alidavanengel@...> wrote:

 

aHello

I have an 16 year old autistic son, which get sexually stimulated by women in leggings and denimtrousers . The the problem is not this way he gets stimulates. he plays whits his nippels to get make the feeling intenser by getting an erection. the problem is that this is he not enough needs more to get rid of that tension. I have try to learn him to mastrubation but he does not wants that. So he gets very restless and he uses aggression to get rid off the tension. We live in the netherlands

went to the docter ask for some thing to low his libido. he look at me if i was crazy. Is there a natural way low his libido.

Ida

-- Kate Myers

[Guest guest]

The stumulated is not the problem.The very aggressive behavior that go with ist. while is aggressive he will suddenly stop and play with his nipple and than go further with his aggressive behavior. Sometime my daughter and I do not feel save when is like that

aHelloI have an 16 year old autistic son, which get sexually stimulated by women in leggings and denimtrousers . The the problem is not this way he gets stimulates. he plays whits his nippels to get make the feeling intenser by getting an erection. the problem is that this is he not enough needs more to get rid of that tension. I have try to learn him to mastrubation but he does not wants that. So he gets very restless and he uses aggression to get rid off the tension. We live in the netherlandswent to the docter ask for some thing to low his libido. he look at me if i was crazy. Is there a natural way low his libido.Ida

-- Kate Myers

[Guest guest]

I am sorry - our kids can be creepy.Libidino is a natural suppressant - I have no idea if it works or if it is safeOn Tue, Dec 29, 2009 at 9:01 AM, Alida Van Engel <alidavanengel@...> wrote:

 

The stumulated is not the problem.The very aggressive behavior that go with ist.             while is aggressive he will suddenly stop and play with his nipple and than go further with his aggressive behavior. Sometime my daughter and I do not feel save when is like that

 

aHelloI have an 16 year old autistic son, which get sexually stimulated by women in leggings and denimtrousers . The the problem is not this way he gets stimulates. he plays whits his nippels to get make the feeling intenser by getting an erection. the problem is that this is he not enough needs more to get rid of that tension. I have try to learn him to mastrubation but he does not wants that. So he gets very restless and he uses aggression to get rid off the tension. We live in the netherlands

went to the docter ask for some thing to low his libido. he look at me if i was crazy. Is there a natural way low his libido.Ida

-- Kate Myers

-- Kate Myers

[Guest guest]

Sounds like a great program..would you mind sharing more info on it or point us to the right links?

Josh (16) still is not mature emotionally sexually but I know the time will come.

Re: Need advice

I have a 14yo that has become very focused on rubbing his private parts and touching women's skin. When he became sexually aroused, he became more aggressive. But we have found a solution and I hope it will help your son too.Our son receives ABA so we decided to implement a "private time" program where our son would be able to play with himself as much as he wants. The routine is 1. put a private time sign up on the outside of the door and shut the door.2. when you come out, wash your hands.Our son is fairly low-functioning so it took a bit to teach him this... we have the whole program is if you need it. Please note private time is not just about sex but just having some time to yourself. It is a 3 step program which has really helped my son.Well back to the story... it was clear that he was using private time but he was not completing the act, and he was getting more and more aggressive. Our doctor gave me a link to a "how to masturabate" video. Boy did I feel like a pervert as I showed this to my son. But he got it after one viewing... became very happy... and the aggression went away.Now I really struggled with this. But it's better that he does this in his room behind a closed door than in public or the living room. And the sexually-stimulated aggression went away too.Jill> > > Â > > > > aHello> > I have an 16 year old autistic son, which get sexually stimulated by women in leggings and denimtrousers . The the problem is not this way he gets stimulates. he plays whits his nippels to get make the feeling intenser by getting an erection. the problem is that this is he not enough needs more to get rid of that tension. I have try to learn him to mastrubation but he does not wants that. So he gets very restless and he uses aggression to get rid off the tension. We live in the netherlands> went to the docter ask for some thing to low his libido. he look at me if i was crazy. Is there a natural way low his libido.> > Ida> > > > > > -- > Kate Myers>

[Guest guest]

I love my Open Sesame Door Opener. I haven't had to modify my doors (I've

always used it on wooden exterior doors) but have installed electric

strikeplates. Any locksmith and most handypersons can do this. I either buzz

people in with my handheld remote, or they punch in an access code on an

exterior remote. A cheaper alternative is to mounts a key box outside and give

your pca the code:

http://www.selectalarms.com/site/1266420/product/190-12675

>

> Hi again, need a bit of advice. I am probably going to be moving into a senior

building this week if all my bank info goes through. An unforeseen problem has

arisen I hadn't taken into account. The building has a front door where you have

to buzz the person in. This is fine when I'm up, but I need to let my pca in in

the morning to get me up. This is my first time venturing out on my own and

everything is starting to go south on me already. Also what experience do you

have with remote doors, there's two companies, handicap access and

opensesame......is one better than the other, does the door have to be modified

and will the apt allow it, and does the remote have to be direct line of sight

or can i open the door from my bedroom (another potential problem)? Many more

questions to come as I undertake my journey, thank you so much, Doug

>

>

[Guest guest]

Hi Doug,

Congrats on your new adventures. Things may seem scary and difficult at first,

but don't give up. Where there's a will, there's a way!

I lived in a senior place before where we buzzed people in-did you check if you

can buzz them in by phone? Our ppl would call from front door but it would ring

the phone and we just pressed # or something to let them in...  I'm sure they

can work *something* out for you.

 

I also have the open sesame and it is truly awesome. Installation wasn't so bad

with two very handy men! hehe That strike plate or whatever Alana mentioned was

the only thing was a little difficult-but it was nothing major. 

 

Hope you get internet soon after your move and let us know what's up!

 

From: Doug <doug696@...>

Subject: need advice

Date: Saturday, July 17, 2010, 7:25 AM

Hi again, need a bit of advice. I am probably going to be moving into a senior

building this week if all my bank info goes through. An unforeseen problem has

arisen I hadn't taken into account. The building has a front door where you have

to buzz the person in. This is fine when I'm up, but I need to let my pca in in

the morning to get me up. This is my first time venturing out on my own and

everything is starting to go south on me already. Also what experience do you

have with remote doors, there's two companies, handicap access and

opensesame......is one better than the other, does the door have to be modified

and will the apt allow it, and does the remote have to be direct line of sight

or can i open the door from my bedroom (another potential problem)? Many more

questions to come as I undertake my journey, thank you so much, Doug

[Guest guest]

The phone is on the wall (something else to overcome) closer to the door, don't

think it can be moved will have to see. Thanks for the words of encouragement,

my family is giving me pure hell, making me doubt all this, and yes I'm

terrfied. Doug

[Guest guest]

You should be able to forward the phone to a cell phone. ??

Why are they doing that??

Lori

________________________________

From: Doug <doug696@...>

Sent: Sun, July 18, 2010 4:53:37 PM

Subject: Re: need advice

The phone is on the wall (something else to overcome) closer to the door, don't

think it can be moved will have to see. Thanks for the words of encouragement,

my family is giving me pure hell, making me doubt all this, and yes I'm

terrfied. Doug

[Guest guest]

I'll bet you can get anyone in there with telephone wiring experience to wire

the wall mounted phone to wherever you need it. And under both the Fair Housing

Act and the Americans with Disabilities Act it's legal for you to make these

modifications.

Good luck, Doug. Don't let your family's negativity get to you. You're doing

good things to take care of yourself. Heart!

Alana

>

> The phone is on the wall (something else to overcome) closer to the door,

don't think it can be moved will have to see. Thanks for the words of

encouragement, my family is giving me pure hell, making me doubt all this, and

yes I'm terrfied. Doug

>

>

[Guest guest]

Hey wonder if I got a cheap cordless phone, and put that on the wall, one that

is also wall mountable, doesn't a corded phone come off the wall easily? Then I

could just keep the handset in bed with me. I don't think the phone is for

making outgoing/incoming calls.....its just for the intercom system, I maybe

wrong though. Thats thats why I'm not sure about forwarding it to my cell phone.

Hey Alana, can they kick me out if they know I'm unable to get up out of bed by

myself, like some sort of fire hazard thing, something my Uncle brought up to me

who's against this all the way too, but doesn't want me living with him either

of course. Lotsa nay sayers and no encouragement at all. Doug

[Guest guest]

Even a cordless phone needs to be put on its cradle sometimes so it can charge.

I am not a mechanical person at all, but I wonder if there can be some kind of

switch device that will allow you to operate the intercom from your bed.

 

There are a lot of people who live on their own and cannot get out of bed

without assistance.

 

Dina

 

From: Doug <doug696@...>

Subject: Re: need advice

Date: Monday, July 19, 2010, 12:55 PM

 

Hey wonder if I got a cheap cordless phone, and put that on the wall, one that

is also wall mountable, doesn't a corded phone come off the wall easily? Then I

could just keep the handset in bed with me. I don't think the phone is for

making outgoing/incoming calls.....its just for the intercom system, I maybe

wrong though. Thats thats why I'm not sure about forwarding it to my cell phone.

Hey Alana, can they kick me out if they know I'm unable to get up out of bed by

myself, like some sort of fire hazard thing, something my Uncle brought up to me

who's against this all the way too, but doesn't want me living with him either

of course. Lotsa nay sayers and no encouragement at all. Doug

[Guest guest]

Might I qualify for something like this, or would it only be for a limited time?

Medicare Coverage of Skilled Home Health Care

The Medicare program will pay for home health care if all of the following

conditions are met:

a.. Your doctor must decide that you need medical care at home, and make a

plan for your care at home

b.. You must need at least one of the following: intermittent skilled nursing

care, or physical therapy, or speech-language therapy, or continue to need

occupational therapy

c.. You must be homebound, or normally unable to leave home unassisted. To be

homebound means that leaving home takes considerable and taxing effort. A person

may leave home for medical treatment or short, infrequent absences for

non-medical reasons, such as a trip to the barber or to attend religious

services. A need for adult day services does not keep you from getting home

health care for other medical conditions, and

d.. The home health care agency caring for you must be Medicare certified.

Contact your physician if you feel you may qualify for skilled care benefits.

[Guest guest]

Doug,

I don't know the answer to your question. I recommend asking the people at your

local housing rights organization.

Check with Michigan Disability Rights Coalition

http://www.copower.org/mdrc/MDRC.htm

Alana

>

> Hey wonder if I got a cheap cordless phone, and put that on the wall, one that

is also wall mountable, doesn't a corded phone come off the wall easily? Then I

could just keep the handset in bed with me. I don't think the phone is for

making outgoing/incoming calls.....its just for the intercom system, I maybe

wrong though. Thats thats why I'm not sure about forwarding it to my cell phone.

Hey Alana, can they kick me out if they know I'm unable to get up out of bed by

myself, like some sort of fire hazard thing, something my Uncle brought up to me

who's against this all the way too, but doesn't want me living with him either

of course. Lotsa nay sayers and no encouragement at all. Doug

>

>

[Guest guest]

Doug,

You may be eligible for this if you're on Medicare. The downside is that the

homebound requirement is pretty restrictive if you want to go out for anything

other than medical care and religious worship.

How many hours do you get under Michigan's Choices Waiver?

Alana

>

> Might I qualify for something like this, or would it only be for a limited

time?

>

> Medicare Coverage of Skilled Home Health Care

> The Medicare program will pay for home health care if all of the following

conditions are met:

>

> a.. Your doctor must decide that you need medical care at home, and make a

plan for your care at home

>

> b.. You must need at least one of the following: intermittent skilled

nursing care, or physical therapy, or speech-language therapy, or continue to

need occupational therapy

>

> c.. You must be homebound, or normally unable to leave home unassisted. To

be homebound means that leaving home takes considerable and taxing effort. A

person may leave home for medical treatment or short, infrequent absences for

non-medical reasons, such as a trip to the barber or to attend religious

services. A need for adult day services does not keep you from getting home

health care for other medical conditions, and

>

> d.. The home health care agency caring for you must be Medicare certified.

>

> Contact your physician if you feel you may qualify for skilled care benefits.

>

>

>

[Guest guest]

Hey Alana, regarding the Open Sesame, I called my apartment manager and she said

it's against HUD regulations for this to be installed, something about it being

a fire hazard, seems like more of a fire hazard if I can't get in or out to me.

I'm supposed to sign my lease tomorrow and have no where else to go. Is this

true do you know?

[Guest guest]

Doug I don't know why it would be a fire hazard, when not actually in use to

power the door, the open sesame opener is completely neutral and does not

apply any weight or resistance to the door. I would find out why he thinks

it would qualify as a hazard.

On 7/26/10 1:18 PM, " Doug " <doug696@...> wrote:

> Hey Alana, regarding the Open Sesame, I called my apartment manager and she

> said it's against HUD regulations for this to be installed, something about it

> being a fire hazard, seems like more of a fire hazard if I can't get in or out

> to me. I'm supposed to sign my lease tomorrow and have no where else to go. Is

> this true do you know?

>

>

[Guest guest]

Did you contact the housing advocates in your area. I sent a link earlier. You

really need to connect with a housing expert. There must be an automatic door

solution that adheres to fire codes. In all the Sec 8 housing here, automatic

doors have been installed. I think you're being jerked around.

>

> Hey Alana, regarding the Open Sesame, I called my apartment manager and she

said it's against HUD regulations for this to be installed, something about it

being a fire hazard, seems like more of a fire hazard if I can't get in or out

to me. I'm supposed to sign my lease tomorrow and have no where else to go. Is

this true do you know?

>

>

[Guest guest]

Doug,

If this apartment building is federally funded, they must do reasonable

modifications for the disabled tenant and they must pay for them. If it

is not HUD funded, they must let the tenant make the modifications at

his own expense. Here are links to HUD's website where I found

information that may help with the phone situation and the automatic

door (or other accommodations). I can't see any way that they can say

the door opener is a fire hazard and get away with that.

http://www.hud.gov/offices/fheo/disabilities/sect504.cfm

<Doug,%20If%20this%20apartment%20building%20is%20HUD%20funded,%20they%20\

must%20do%20reasonable%20modifications%20for%20the%20disabled%20tenant%2\

0and%20they%20must%20pay%20for%20them.%20If%20it%20is%20not%20HUD%20fund\

ed,%20they%20must%20let%20the%20tenant%20make%20the%20modifications%20at\

%20his%20own%20expense.%20Here%27s%20a%20link%20to%20HUD%27s%20website%2\

0where%20I%20found%20information.%20%20%20http://www.hud.gov/offices/fhe\

o/disabilities/sect504.cfm>

http://www.hud.gov/offices/fheo/disabilities/inhousing.cfm

<http://www.hud.gov/offices/fheo/disabilities/inhousing.cfm>

Here's the toll free number to ADA's information line. Maybe they can

help too. 800-514-0301

Here's and article about housing rights on the MDA/Quest site.

http://www.mdausa.org/publications/Quest/q33apartment.html

<http://www.mdausa.org/publications/Quest/q33apartment.html>

Here's info on Section 8 housing vouchers in case you aren't aware of

them and might qualify for help toward your rent.

http://portal.hud.gov/portal/page/portal/HUD/topics/housing_choice_vouch\

er_program_section_8

<http://portal.hud.gov/portal/page/portal/HUD/topics/housing_choice_vouc\

her_program_section_8>

I'm thinking you said that you live in Michigan. If so, here's a link to

a list of contacts (emails and phone numbers) at the Michigan HUD office

that may help you...or direct you somewhere that can.

Hope some of this helps,

>

> Hey Alana, regarding the Open Sesame, I called my apartment manager

and she said it's against HUD regulations for this to be installed,

something about it being a fire hazard, seems like more of a fire hazard

if I can't get in or out to me. I'm supposed to sign my lease tomorrow

and have no where else to go. Is this true do you know?

>

>

[Guest guest]

Hi Rene,

I feel your pain. We were lucky enough that I was able to drive Hannah

to school in the morning, eliminating the hour ride to go 10 minutes.

If you think he needs an aid, ask for one. There is some room for

negotiation. Good luck...I hate this part of the struggle. Hang in there.

Connie

[Guest guest]

Hi Rene,

No wonder you are second-guessing this classroom! Of course, these are only my

opinions, coming from a mother whose 2nd-grade child is in a special-needs class

and goes to a " regular " class for instruction as part of her day, but, if your

son is in a special Kindergarten class, then accomodating him with these small

things like his drink shouldn't even be an issue.

They should have some ideas about how to direct his behavior in the classroom,

lunchroom, etc - this is wonderful that you came in to help give some ideas, but

in my experience, the teachers already have some techniques ready to try.

Olivia's teachers (the great ones, anyway) knew what to do to help her follow

the rules in those settings, or things to try. Now her special ed class has 2

aides/1 teacher about the same amount of students, although some have more

severe delays. But more aides probably meant that I got a better day-to-day

communication, she sent home a daily communication notebook.

I think you are so right about the bus ride too! Olivia almost had a long ride

in the morning this year, and I really objected. That is just so long for a

young student, especially when he is getting used to all-day school too - that

is a big adjustment as well.

I know you will hear from others, with good advice about what to do. I don't

know how or what you should change, but there should be accomodations at the

least.

Patty

________________________________

From: Troy and Rene Vaughn <creativekidsdaycare@...>

; down_syndrome

Sent: Mon, September 13, 2010 7:14:27 AM

Subject: Need advice

 

My son Evan who is 5 just started Special K this year 3 weeks ago. Last

year and the year prior, he attended special Pre-K for about 3 hours a day

and he did very well. Well, this year he is in school all day for 8 hours.

Gets up at 6:00 a.m., catches bus at 7:00 a.m, rides the bus for 1 hour.

He is in a small class of 6 children, a teacher and 1 aide. The children

have special needs, but very mild (some may even just have speech issues).

Evan is the only child with down syndrome. Without going into too much

detail, we are finding that this classroom/teacher hasn't been very

accomodating. I had to get the OT to tell them that Evan NEEDED them to

pour his water in milk into an open cup for him at snack and lunch because

he cannot drink out of a water bottle without making a mess. When I

requested it be done, I was kind of shrugged off as the school wants the

children to have their own water bottles! HELLO! He does have special

needs. Anyhow, below is a letter from the teacher last friday because I

requested that she keep me updated on how his week is going. They say Evan

is getting up and running around at lunch in the cafeteria (which he did

fine when I showed up and disciplined him twice). Also, he is not

cooperating in class.

I believe that getting up at 6:00 a.m. and then riding the bus for an hour

takes a toll on him, not to mention adjusting to the new long day. We are

working on putting him to bed earlier and earlier.

Is this a situation when I should request and aide for my son? I don't even

know if he his eligible for one right now. Apparently in our county,

special needs kids start out in special pre-K first (least restrictive) and

then after a year or earlier if identified, they may be moved to functional

skills classes to a school which is in my school district.

A part of me wonders if this is where he needs to be? He also has

hirschsprungs disease, which requires diaper changes due to stooling. I

feel like he is disrupting the class and I know that he requires more

attention than the other children. I welcome any comments, advice, or your

own personal stories and resolutions.

I don't even want to send him to school. Thanks. Rene (mom to Evan)

_____

From: [mailto:robertse@...]

Sent: Friday, September 10, 2010 3:07 PM

creativekidsdaycare@...

Subject: Weekly update

Hi Mrs. Vaughn,

Thank you for coming in and giving us some tips for the lunch room. The

following day, I had lunch duty and it worked well for me. However, Mrs.

Carrington is still having a difficult time getting Evan to respond to the

chips and to remain seated. In the classroom, Evan needs much adult

assistance to remain seated during direct instruction and to attend to the

lessons. He loves when we read a story and usually attends to lessons on

the smart board. The morning is more productive for him as after recess he

seems very tired and less cooperative. I have tried to get him to take a

break and lay down for a few minutes, but he doesn't seem interested. I saw

your note regarding homework, Mrs. Carrington was absent and there was a

lack of communication about where some of the copies were placed and until

she returned, I could not send it home. Thank you for completing it with

him and returning it on time.

If you have any suggestions/questions/comments please share.

I hope you enjoy your weekend!

[Guest guest]

Patty, Evan is the one with the most severe delay. so maybe that's the

problem with only having 1 aide and he's the only one interrupting the

class. I wish there were others, so I could push for another aide. This

teacher actually told me that she has never had to change diapers before in

her special K class! I said, " This is SPECIAL K, right? " I told her that

was depressing, and she had no comment. I guess she's nice enough but my

instincts make believe that she doesn't have the time or patience for Evan.

I have to look at her side too though. She's trying to push academic

lessons on 6 kids, 5 of which are probably more developmentally ready for,

and Evan disrupting.

Evan learned to count to 13, his colors, shapes, matching, identifying

objects, how to follow rules, in his special PRE-K class, but his teacher

and aide were the cream of the crop and I know that I was spoiled and very

blessed to have them. I wish there were more special teachers out there

like those two!

_____

From: Patty Derdzinski [mailto:pderdzinski@...]

Sent: Monday, September 13, 2010 7:50 AM

creativekidsdaycare@...; ;

down_syndrome

Subject: Re: Need advice

Hi Rene,

No wonder you are second-guessing this classroom! Of course, these are only

my opinions, coming from a mother whose 2nd-grade child is in a

special-needs class and goes to a " regular " class for instruction as part of

her day, but, if your son is in a special Kindergarten class, then

accomodating him with these small things like his drink shouldn't even be an

issue.

They should have some ideas about how to direct his behavior in the

classroom, lunchroom, etc - this is wonderful that you came in to help give

some ideas, but in my experience, the teachers already have some techniques

ready to try. Olivia's teachers (the great ones, anyway) knew what to do to

help her follow the rules in those settings, or things to try. Now her

special ed class has 2 aides/1 teacher about the same amount of students,

although some have more severe delays. But more aides probably meant that I

got a better day-to-day communication, she sent home a daily communication

notebook.

I think you are so right about the bus ride too! Olivia almost had a long

ride in the morning this year, and I really objected. That is just so long

for a young student, especially when he is getting used to all-day school

too - that is a big adjustment as well.

I know you will hear from others, with good advice about what to do. I don't

know how or what you should change, but there should be accomodations at the

least.

Patty

_____

From: Troy and Rene Vaughn <creativekidsdaycare@...>

; down_syndrome

Sent: Mon, September 13, 2010 7:14:27 AM

Subject: Need advice

My son Evan who is 5 just started Special K this year 3 weeks ago. Last

year and the year prior, he attended special Pre-K for about 3 hours a day

and he did very well. Well, this year he is in school all day for 8 hours.

Gets up at 6:00 a.m., catches bus at 7:00 a.m, rides the bus for 1 hour.

He is in a small class of 6 children, a teacher and 1 aide. The children

have special needs, but very mild (some may even just have speech issues).

Evan is the only child with down syndrome. Without going into too much

detail, we are finding that this classroom/teacher hasn't been very

accomodating. I had to get the OT to tell them that Evan NEEDED them to

pour his water in milk into an open cup for him at snack and lunch because

he cannot drink out of a water bottle without making a mess. When I

requested it be done, I was kind of shrugged off as the school wants the

children to have their own water bottles! HELLO! He does have special

needs. Anyhow, below is a letter from the teacher last friday because I

requested that she keep me updated on how his week is going. They say Evan

is getting up and running around at lunch in the cafeteria (which he did

fine when I showed up and disciplined him twice). Also, he is not

cooperating in class.

I believe that getting up at 6:00 a.m. and then riding the bus for an hour

takes a toll on him, not to mention adjusting to the new long day. We are

working on putting him to bed earlier and earlier.

Is this a situation when I should request and aide for my son? I don't even

know if he his eligible for one right now. Apparently in our county,

special needs kids start out in special pre-K first (least restrictive) and

then after a year or earlier if identified, they may be moved to functional

skills classes to a school which is in my school district.

A part of me wonders if this is where he needs to be? He also has

hirschsprungs disease, which requires diaper changes due to stooling. I

feel like he is disrupting the class and I know that he requires more

attention than the other children. I welcome any comments, advice, or your

own personal stories and resolutions.

I don't even want to send him to school. Thanks. Rene (mom to Evan)

_____

From: [mailto:robertse@...

<mailto:robertse%40calvertnet.k12.md.us> ]

Sent: Friday, September 10, 2010 3:07 PM

creativekidsdaycare@...

<mailto:creativekidsdaycare%40verizon.net>

Subject: Weekly update

Hi Mrs. Vaughn,

Thank you for coming in and giving us some tips for the lunch room. The

following day, I had lunch duty and it worked well for me. However, Mrs.

Carrington is still having a difficult time getting Evan to respond to the

chips and to remain seated. In the classroom, Evan needs much adult

assistance to remain seated during direct instruction and to attend to the

lessons. He loves when we read a story and usually attends to lessons on

the smart board. The morning is more productive for him as after recess he

seems very tired and less cooperative. I have tried to get him to take a

break and lay down for a few minutes, but he doesn't seem interested. I saw

your note regarding homework, Mrs. Carrington was absent and there was a

lack of communication about where some of the copies were placed and until

she returned, I could not send it home. Thank you for completing it with

him and returning it on time.

If you have any suggestions/questions/comments please share.

I hope you enjoy your weekend!

[Guest guest]

What a nice note. I just wished the teacher had said " lie down " instead of

" lay down. "

Perhaps Evan will learn to drink from a bottle now. All my kids made a mess

when they first started drinking from bottles without nipples, but,

eventually, all of them learned.

Perhaps quiet time instead of a nap would work better for him. Just get him

to sit quietly with a book.

granny

On Mon, Sep 13, 2010 at 6:14 AM, Troy and Rene Vaughn <

creativekidsdaycare@...> wrote:

>

>

> My son Evan who is 5 just started Special K this year 3 weeks ago. Last

> year and the year prior, he attended special Pre-K for about 3 hours a day

> and he did very well. Well, this year he is in school all day for 8 hours.

> Gets up at 6:00 a.m., catches bus at 7:00 a.m, rides the bus for 1 hour.

>

> He is in a small class of 6 children, a teacher and 1 aide. The children

> have special needs, but very mild (some may even just have speech issues).

> Evan is the only child with down syndrome. Without going into too much

> detail, we are finding that this classroom/teacher hasn't been very

> accomodating. I had to get the OT to tell them that Evan NEEDED them to

> pour his water in milk into an open cup for him at snack and lunch because

> he cannot drink out of a water bottle without making a mess. When I

> requested it be done, I was kind of shrugged off as the school wants the

> children to have their own water bottles! HELLO! He does have special

> needs. Anyhow, below is a letter from the teacher last friday because I

> requested that she keep me updated on how his week is going. They say Evan

> is getting up and running around at lunch in the cafeteria (which he did

> fine when I showed up and disciplined him twice). Also, he is not

> cooperating in class.

>

> I believe that getting up at 6:00 a.m. and then riding the bus for an hour

> takes a toll on him, not to mention adjusting to the new long day. We are

> working on putting him to bed earlier and earlier.

>

> Is this a situation when I should request and aide for my son? I don't even

> know if he his eligible for one right now. Apparently in our county,

> special needs kids start out in special pre-K first (least restrictive) and

> then after a year or earlier if identified, they may be moved to functional

> skills classes to a school which is in my school district.

>

> A part of me wonders if this is where he needs to be? He also has

> hirschsprungs disease, which requires diaper changes due to stooling. I

> feel like he is disrupting the class and I know that he requires more

> attention than the other children. I welcome any comments, advice, or your

> own personal stories and resolutions.

>

> I don't even want to send him to school. Thanks. Rene (mom to Evan)

> _____

>

> From:

[mailto:robertse@...<robertse%40calvertnet.k12.md.us>]

>

> Sent: Friday, September 10, 2010 3:07 PM

> creativekidsdaycare@... <creativekidsdaycare%40verizon.net>

> Subject: Weekly update

>

> Hi Mrs. Vaughn,

> Thank you for coming in and giving us some tips for the lunch room. The

> following day, I had lunch duty and it worked well for me. However, Mrs.

> Carrington is still having a difficult time getting Evan to respond to the

> chips and to remain seated. In the classroom, Evan needs much adult

> assistance to remain seated during direct instruction and to attend to the

> lessons. He loves when we read a story and usually attends to lessons on

> the smart board. The morning is more productive for him as after recess he

> seems very tired and less cooperative. I have tried to get him to take a

> break and lay down for a few minutes, but he doesn't seem interested. I saw

> your note regarding homework, Mrs. Carrington was absent and there was a

> lack of communication about where some of the copies were placed and until

> she returned, I could not send it home. Thank you for completing it with

> him and returning it on time.

> If you have any suggestions/questions/comments please share.

> I hope you enjoy your weekend!

>

>

>