NEED ADVICE

April 22, 2009

I just wanted to let you know that my PCM tested my urine today and apparently I

am not losing potassium threw my urine. So where is it all going!

Schlesinger

> >Lyme testing? Celiac testing?

> >

> >Could you please post your aldo and renin test results?

> >

> >Val

> >

> >From: hyperaldosteronism

> >[mailto:hyperaldosteronism ] On Behalf Of slesfam1@...

> >

> >I am having problems with my potassium levels. The levels stay around

> >2.7-2.9. I have been off of all diuretics and taken three potassium pills a

> >day with no change. I have had two ct's of the adrenals and I have been told

> >they are fine. My aldosterone and renin levels are within normal range, but

> >my endo does not trust those results due to the fact I am on Maxzide again.

> >I have been unable to to be without that med since I swell so much to the

> >point I cannot breath and my eyes swell. My GFR's are all normal as is my

> >thyroid.The only problems noted to date is enlarged lymph nodes to the left

> >of my paraaortic artery, magnesium def,vit d def,iron def,b-12 def,calcium

> >def,sed rate of 50. I have sharp pains in my head upon stand but my blood

> >bressure has been up a little lately(120-135/85-95). I am soo tired it is

> >beyond description and for two weeks not I have had a constant nagging

> >headache. I have been on Spirolactone 50mg with very little change and at

> >100mg I could not handle!(Extreme nausea & heart beating weird). I have also

> >been on Inspra and was taken off of it due to the worst headache EVER!

> >

> >Can ANYONE tell me why this may be happening? Nothing is making sense and I

> >don't know how to proceed.

> >

>

April 22, 2009

I hope that your urinary K is a

24-hour test, and that they include urinary sodium. That is the only way for sure to know

what level of sodium you're eating.

I would not touch Vytorin. Google it and read about it. I don't understand why anyone is

prescribing it.

Val

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On

Behalf Of slesfam1@...

The dash DASH diet is a low sodium diet right? My sodium levels are low to low

normal and I crave salt really bad. My endo thought I had hypoaldosterism but

now I not sure of what she thinks. She has started to give my k pills again and

test my k every couple of days but still no change. As far as my urinary K, It

has never been tested!(I know unbelievable)Today my regular PCM is going to do

it and I will past as soon as I know more. My meds are listed below. The last

three I just started yesterday.

Zoloft---- 100 mg 1x Daily

Protonix--- 40 mg 1x Daily

Magnesium------ 400mg 1x daily

Vitamin D--- 50000 IU 1x week

Iron Supp---- 65 mg 1x daily

B-12 --------1000mcg 1 x Monthly

Zolpidem -- 10mg 1x daily

Pataday------- as needed

Albuterol----- as needed

Vytorin--------10mg-20mg 1x daily

Potassium CL ER----20 MEQ 1x daily

Oracea--------40mg 1x daily

Finacea 15%------ apply (face) 1x AM

Sodium Sulfacetamide 10% & Sulfur 5%-----apply (face)1x PM

-- In hyperaldosteronism ,

lowerbp2 <lowerbp2@...> wrote:

>

> Recommend you start the DASH diet ASAP and do it to the max till we get

more information. Get the book by T and start the 14 day challenge now!.

>

> This will help K without spiro or inspra.

April 22, 2009

Under U.S. law, you are entitled to copies of your records. Send, deliver or fax a request in

writing to your endo. Ask for a

copy of everything in your file, to date, and offer to pay for the cost. You have to take charge of your own care

and you can't do it without information.

In addition to aldo/renin, be sure to get all your thyroid test

results. Chances are, he didn't do

the correct ones.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of slesfam1@...

Hi Val,

I have been tested for celiac but it was neg. As far as aldo & renin I

cannot get my hands on. My Endo has a CRANKY nurse that won't give it to

me.Next time I manage to talk to my endo I will try again!

>

> Lyme testing? Celiac testing?

>

> Could you please post your aldo and renin test results?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ]

On Behalf Of slesfam1@...

>

> I am having problems with my potassium levels. The levels stay around

> 2.7-2.9. I have been off of all diuretics and taken three potassium pills

a

> day with no change. I have had two ct's of the adrenals and I have been

told

> they are fine. My aldosterone and renin levels are within normal range,

but

> my endo does not trust those results due to the fact I am on Maxzide

again.

> I have been unable to to be without that med since I swell so much to the

> point I cannot breath and my eyes swell. My GFR's are all normal as is my

> thyroid.The only problems noted to date is enlarged lymph nodes to the

left

> of my paraaortic artery, magnesium def,vit d def,iron def,b-12 def,calcium

> def,sed rate of 50. I have sharp pains in my head upon stand but my blood

> bressure has been up a little lately(120-135/85-95). I am soo tired it is

> beyond description and for two weeks not I have had a constant nagging

> headache. I have been on Spirolactone 50mg with very little change and at

> 100mg I could not handle!(Extreme nausea & heart beating weird). I

have also

> been on Inspra and was taken off of it due to the worst headache EVER!

>

> Can ANYONE tell me why this may be happening? Nothing is making sense and

I

> don't know how to proceed.

>

April 22, 2009

Yes but your low Na is not likely due to low diet Na. You want the low sodium

version of the DASH as well.

Why are you on each pill. It looks to me like too many pills. When was each

started and did it help with what it was being given for.

Please give Dx tests done for Pernicious Anemia-the other PA-and only good

reason to give B12.

Clarence E. Grim, BS, MS, MD

On Wednesday, April 22, 2009, at 06:58AM, " slesfam1@... " <slesfam1@...>

wrote:

>-

>

>The dash DASH diet is a low sodium diet right? My sodium levels are low to low

normal and I crave salt really bad. My endo thought I had hypoaldosterism but

now I not sure of what she thinks. She has started to give my k pills again and

test my k every couple of days but still no change. As far as my urinary K, It

has never been tested!(I know unbelievable)Today my regular PCM is going to do

it and I will past as soon as I know more. My meds are listed below. The last

three I just started yesterday.

>

>Zoloft---- 100 mg 1x Daily

>Protonix--- 40 mg 1x Daily

>Magnesium------ 400mg 1x daily

>Vitamin D--- 50000 IU 1x week

>Iron Supp---- 65 mg 1x daily

>B-12 --------1000mcg 1 x Monthly

>Zolpidem -- 10mg 1x daily

>Pataday------- as needed

>Albuterol----- as needed

>Vytorin--------10mg-20mg 1x daily

>Potassium CL ER----20 MEQ 1x daily

>Oracea--------40mg 1x daily

>Finacea 15%------ apply (face) 1x AM

>Sodium Sulfacetamide 10% & Sulfur 5%-----apply (face)1x PM

>

>-- In hyperaldosteronism , lowerbp2 <lowerbp2@...> wrote:

>>

>> Recommend you start the DASH diet ASAP and do it to the max till we get more

information. Get the book by T and start the 14 day challenge now!.

>>

>> This will help K without spiro or inspra.

>>

>> What other meds are you or have you been on.

>>

>> What does your team think is causing the low K? What is urine K?

>>

>> Clarence E. Grim, BS, MS, MD

>>

>> Am Dienstag 21 April 2009 um 05:59PM schrieb " slesfam1@... " <slesfam1@...>:

>> >I am having problems with my potassium levels. The levels stay around

2.7-2.9. I have been off of all diuretics and taken three potassium pills a day

with no change. I have had two ct's of the adrenals and I have been told they

are fine. My aldosterone and renin levels are within normal range, but my endo

does not trust those results due to the fact I am on Maxzide again. I have been

unable to to be without that med since I swell so much to the point I cannot

breath and my eyes swell. My GFR's are all normal as is my thyroid.The only

problems noted to date is enlarged lymph nodes to the left of my paraaortic

artery, magnesium def,vit d def,iron def,b-12 def,calcium def,sed rate of 50. I

have sharp pains in my head upon stand but my blood bressure has been up a

little lately(120-135/85-95). I am soo tired it is beyond description and for

two weeks not I have had a constant nagging headache. I have been on

Spirolactone 50mg with very little change and at 100mg I could not

handle!(Extreme nausea & heart beating weird). I have also been on Inspra and

was taken off of it due to the worst headache EVER!

>> >

>> >Can ANYONE tell me why this may be happening? Nothing is making sense and I

don't know how to proceed.

>> >

>> >Thanks So Much

>> > Schlesinger

>> >

>>

>

April 22, 2009

Why to they think your K is low?

Tell the nurse you need to speak to her supervisor of the clinic so you can get

your results-NOW.

Clarence E. Grim, BS, MS, MD

On Wednesday, April 22, 2009, at 07:03AM, " slesfam1@... " <slesfam1@...>

wrote:

>Hi Val,

>

>I have been tested for celiac but it was neg. As far as aldo & renin I cannot

get my hands on. My Endo has a CRANKY nurse that won't give it to me.Next time I

manage to talk to my endo I will try again!

>

>>

>> Lyme testing? Celiac testing?

>>

>> Could you please post your aldo and renin test results?

>>

>> Val

>>

>> From: hyperaldosteronism

>> [mailto:hyperaldosteronism ] On Behalf Of slesfam1@...

>>

>> I am having problems with my potassium levels. The levels stay around

>> 2.7-2.9. I have been off of all diuretics and taken three potassium pills a

>> day with no change. I have had two ct's of the adrenals and I have been told

>> they are fine. My aldosterone and renin levels are within normal range, but

>> my endo does not trust those results due to the fact I am on Maxzide again.

>> I have been unable to to be without that med since I swell so much to the

>> point I cannot breath and my eyes swell. My GFR's are all normal as is my

>> thyroid.The only problems noted to date is enlarged lymph nodes to the left

>> of my paraaortic artery, magnesium def,vit d def,iron def,b-12 def,calcium

>> def,sed rate of 50. I have sharp pains in my head upon stand but my blood

>> bressure has been up a little lately(120-135/85-95). I am soo tired it is

>> beyond description and for two weeks not I have had a constant nagging

>> headache. I have been on Spirolactone 50mg with very little change and at

>> 100mg I could not handle!(Extreme nausea & heart beating weird). I have also

>> been on Inspra and was taken off of it due to the worst headache EVER!

>>

>> Can ANYONE tell me why this may be happening? Nothing is making sense and I

>> don't know how to proceed.

>>

>

April 22, 2009

Spot urine K is not very reliable except to see if it is very low or high.

If low they you are either not eating enough K, vomiting it up, losing it in

diarrhea or sweating unless you taking diuretics an stopped just before testing.

Do you have the exact numbers?

Clarence E. Grim, BS, MS, MD

On Wednesday, April 22, 2009, at 11:47AM, " Valarie " <val@...>

wrote:

>I hope that your urinary K is a 24-hour test, and that they include urinary

>sodium. That is the only way for sure to know what level of sodium you're

>eating.

>

>I would not touch Vytorin. Google it and read about it. I don't understand

>why anyone is prescribing it.

>

>Val

>

>From: hyperaldosteronism

>[mailto:hyperaldosteronism ] On Behalf Of slesfam1@...

>

>The dash DASH diet is a low sodium diet right? My sodium levels are low to

>low normal and I crave salt really bad. My endo thought I had

>hypoaldosterism but now I not sure of what she thinks. She has started to

>give my k pills again and test my k every couple of days but still no

>change. As far as my urinary K, It has never been tested!(I know

>unbelievable)Today my regular PCM is going to do it and I will past as soon

>as I know more. My meds are listed below. The last three I just started

>yesterday.

>

>Zoloft---- 100 mg 1x Daily

>Protonix--- 40 mg 1x Daily

>Magnesium------ 400mg 1x daily

>Vitamin D--- 50000 IU 1x week

>Iron Supp---- 65 mg 1x daily

>B-12 --------1000mcg 1 x Monthly

>Zolpidem -- 10mg 1x daily

>Pataday------- as needed

>Albuterol----- as needed

>Vytorin--------10mg-20mg 1x daily

>Potassium CL ER----20 MEQ 1x daily

>Oracea--------40mg 1x daily

>Finacea 15%------ apply (face) 1x AM

>Sodium Sulfacetamide 10% & Sulfur 5%-----apply (face)1x PM

>

>-- In hyperaldosteronism

><mailto:hyperaldosteronism%40> , lowerbp2 <lowerbp2@...>

>wrote:

>>

>> Recommend you start the DASH diet ASAP and do it to the max till we get

>more information. Get the book by T and start the 14 day challenge

>now!.

>>

>> This will help K without spiro or inspra.

>

April 22, 2009

No my urinary k was a random sample but they said it was normal. I believe that

my sodium levels were tested thru the blood. I am having to fight to get

everything. I am working between my PCM and my endo (at the same time) and

between the two of them I am gonna get some stuff done! lol My PCM is gonna call

me Friday and let me know all the test HE wants me to have done. My endo is

trying the k supp AGAIN.....as if she thinks I am not telling the truth.I get my

k tested tomorrow with 40meq. After that what she is gonna do is beyond me.She

is real nice but very busy. She is so booked up that I cannot get a follow up so

she just calls me and tells me what she wants me to do. I did not know vytorin

was bad ......I will for sure check that out!

> >

> > Recommend you start the DASH diet ASAP and do it to the max till we get

> more information. Get the book by T and start the 14 day challenge

> now!.

> >

> > This will help K without spiro or inspra.

>

April 22, 2009

I will do that!

> >

> > Lyme testing? Celiac testing?

> >

> > Could you please post your aldo and renin test results?

> >

> > Val

> >

> > From: hyperaldosteronism

> <mailto:hyperaldosteronism%40>

> > [mailto:hyperaldosteronism

> <mailto:hyperaldosteronism%40> ] On Behalf Of slesfam1@

> >

> > I am having problems with my potassium levels. The levels stay around

> > 2.7-2.9. I have been off of all diuretics and taken three potassium pills

> a

> > day with no change. I have had two ct's of the adrenals and I have been

> told

> > they are fine. My aldosterone and renin levels are within normal range,

> but

> > my endo does not trust those results due to the fact I am on Maxzide

> again.

> > I have been unable to to be without that med since I swell so much to the

> > point I cannot breath and my eyes swell. My GFR's are all normal as is my

> > thyroid.The only problems noted to date is enlarged lymph nodes to the

> left

> > of my paraaortic artery, magnesium def,vit d def,iron def,b-12 def,calcium

> > def,sed rate of 50. I have sharp pains in my head upon stand but my blood

> > bressure has been up a little lately(120-135/85-95). I am soo tired it is

> > beyond description and for two weeks not I have had a constant nagging

> > headache. I have been on Spirolactone 50mg with very little change and at

> > 100mg I could not handle!(Extreme nausea & heart beating weird). I have

> also

> > been on Inspra and was taken off of it due to the worst headache EVER!

> >

> > Can ANYONE tell me why this may be happening? Nothing is making sense and

> I

> > don't know how to proceed.

> >

>

April 22, 2009

Dr. Grim,

I so agree with the amount of meds but I need them I guess. I think I have one

major problem that if my docs could solve ..3/4ths of the med would go bye bye.

Zoloft---- 100 mg 1x Daily - was given for extreme pms and mood issues- life

altering must have been on for 11 yrs

Protonix--- 40 mg 1x Daily - for acid reflux - only thing that has ever worked

for me (have hernia, thickening of lower esophagus) Been on for 6 yrs

Magnesium------ 400mg 1x daily

Vitamin D--- 50000 IU 1x week

Iron Supp---- 65 mg 1x daily

These three i go deficient in as soon as I am off them. I have been on all three

for a month now

B-12 --------1000mcg 1 x Monthly - My level before inj was 107, pills don't work

and I go deficient again within three months.I drop 400 to 500 points a month.

They (docs) refuse to test for pernicious anemia.I think it is due to cost. They

said it did not matter anyway because the treatment was the same.My numbness in

arms and legs is so bad and without it it gets to the point I have a hard time

controlling my extremities.been on for 4 or 5 yrs now.

Zolpidem -- 10mg 1x daily I only use as needed to help me sleep.Between 10pm and

midnight I cannot sleep even though I am soo tired. My mind just won't shut

down. Been on a month.

Pataday------- as needed I have-- allergic pink eye. been on a year.

Albuterol----- as needed for mild asthma (when I get overheated or experience

strong emotion (ex. laughing & crying) been on for two or three years. Hardly

use it cause I manage better on my own.

Vytorin--------10mg-20mg 1x daily--for cholesterol Just put on this 5 days ago

Potassium CL ER----20 MEQ 1x daily- for k def_ NOT WORKING

Oracea--------40mg 1x daily- for rosecea. Was just put on the three rosecea meds

so I do not know how they will work

Finacea 15%------ apply (face) 1x AM-- for rosecea.

Sodium Sulfacetamide 10% & Sulfur 5%-----apply (face)1x PM -for rosecea

Humira 40mg---bi-weekly(forgot this one)---Is fantastic my psoriasis has just

about disappeared - been on for three months.Had psoriasis for about three years

now.

> >>

> >> Recommend you start the DASH diet ASAP and do it to the max till we get

more information. Get the book by T and start the 14 day challenge now!.

> >>

> >> This will help K without spiro or inspra.

> >>

> >> What other meds are you or have you been on.

> >>

> >> What does your team think is causing the low K? What is urine K?

> >>

> >> Clarence E. Grim, BS, MS, MD

> >>

> >> Am Dienstag 21 April 2009 um 05:59PM schrieb " slesfam1@ " <slesfam1@>:

> >> >I am having problems with my potassium levels. The levels stay around