Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Dan, I did what you did, 20, 17.5, 15, 12,5 10, but now she wants me to go to 5 and I did 7.5. I can't take it!!!! All of these I was supposed to do for 14 days each. I may have to go back to 10 until I see the new doc. Thanks Lynn Dudenhoefer ldudette@... Re: Need advice Lynn, That sounds like a " too darn quick " taper off the prednisone to me. From 20 me doc had me go to 17.5 (splittin the 5's in half), then after a couple weeks of that went down to 15, then after a couple of weeks down to 12.5, then after a couple weeks down to 10. Then it was a prescription of 1mgs, and along with the 5mgs, after a couple weeks on 10, I moved down to 9. This all went in like 2 week increments and decrease 1mg each time. From what you said it looks to me like you have been going from 20 to 15 to 10 and looking at 5. I am thinking OUCH !!!!! Even with the little 1mg decreases I kind of had the ouchies for a few days after each decrease. I do not know if they was real ouchies, or in me head. (Know what I mean?) Anyway kido, I have been off the prednisone since first part of February this year. Only taking the MTX and celebrex and of course the folic acid. Hope you figure out what to do there. Being in pain and misery " is the pitts for sure " . Dan > Hi my nonvegas pals. > My doctor has had me tapering off the prednisone. I got down to 10 mg from 20 mg with some pain and I have had constant pain at 10. She then wanted me to drop to 5 mg after 14 days at 10. Well, I was not doing that. after about 16 days I dropped to 7.5 and now I am in so much pain. My whole body it hurting, every joint and my costo is pretty painful. I don't see any of my new doctors here in Wisconsin until October when my new health plan takes effect. I could take pain pills to get thru this but should I be having this much pain, I am tempted to just take a couple prednisone, except I am so frustrated with the weight thing also. Any comments would be appreciated based on your experience, not looking for medical advice. > > Lynn Dudenhoefer > ldudette@c... > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.520 / Virus Database: 318 - Release Date: 9/18/2003 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Hae you tried Celebrex? Need advice Hi my nonvegas pals. My doctor has had me tapering off the prednisone. I got down to 10 mg from 20 mg with some pain and I have had constant pain at 10. She then wanted me to drop to 5 mg after 14 days at 10. Well, I was not doing that. after about 16 days I dropped to 7.5 and now I am in so much pain. My whole body it hurting, every joint and my costo is pretty painful. I don't see any of my new doctors here in Wisconsin until October when my new health plan takes effect. I could take pain pills to get thru this but should I be having this much pain, I am tempted to just take a couple prednisone, except I am so frustrated with the weight thing also. Any comments would be appreciated based on your experience, not looking for medical advice. Lynn Dudenhoefer ldudette@... --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.520 / Virus Database: 318 - Release Date: 9/18/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Hi Lynn- sorry you are having a hard time. From what I have heard from others in the past, and from my own experience, it sounds like maybe your doc needs to slow the taper down a bit. I was on 60mg/day for almost a year before I began tapering, and I will tell you it was not easy and it went very slowly. The closer you get to being off, the slower you have to go with it. If I remember correctly, my doc tapered me in 2.5 dose increments, and usually it was a 14-21 day change. In other words, I would have come down from 22.5 to 20 mg/day then for 2-3 weeks stay at 20. Then I would come down to 17.5 mg. I will tell you that the tapering did hurt, but I was in so much pain anyway. I did start to feel somewhat better though after finally getting off the stuff- my PCP and Rheumy both had been trying to tell me that it was the Prednisone that was making me hurt so badly, but I thought they were both looney tunes until I got off the Pred. and started feeling better. All I know to tell you is to keep in touch with your doctor about your progress (or lack thereof) and if you feel that he is moving too rapidly with the tapering, tell him (her). Maybe you could ask for a temporary increase in dosage on your pain meds to compensate. Try to get lots of rest, take hot baths, and take pain medicine if you need it. Hang in there, and I will be praying for you and thinking of you. Love and hugs........ Traci > Hi my nonvegas pals. > My doctor has had me tapering off the prednisone. I got down to 10 mg from 20 mg with some pain and I have had constant pain at 10. She then wanted me to drop to 5 mg after 14 days at 10. Well, I was not doing that. after about 16 days I dropped to 7.5 and now I am in so much pain. My whole body it hurting, every joint and my costo is pretty painful. I don't see any of my new doctors here in Wisconsin until October when my new health plan takes effect. I could take pain pills to get thru this but should I be having this much pain, I am tempted to just take a couple prednisone, except I am so frustrated with the weight thing also. Any comments would be appreciated based on your experience, not looking for medical advice. > > Lynn Dudenhoefer > ldudette@c... > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.520 / Virus Database: 318 - Release Date: 9/18/2003 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Yep, celbrex, vioxx, advil, none of the nsaids do anything for me, thanks Lynn Dudenhoefer ldudette@... Need advice Hi my nonvegas pals. My doctor has had me tapering off the prednisone. I got down to 10 mg from 20 mg with some pain and I have had constant pain at 10. She then wanted me to drop to 5 mg after 14 days at 10. Well, I was not doing that. after about 16 days I dropped to 7.5 and now I am in so much pain. My whole body it hurting, every joint and my costo is pretty painful. I don't see any of my new doctors here in Wisconsin until October when my new health plan takes effect. I could take pain pills to get thru this but should I be having this much pain, I am tempted to just take a couple prednisone, except I am so frustrated with the weight thing also. Any comments would be appreciated based on your experience, not looking for medical advice. Lynn Dudenhoefer ldudette@... --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.520 / Virus Database: 318 - Release Date: 9/18/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 When coming off mine my doctor had me cutting ten in half and taking one. Cut back 1 mg every two weeks. If I had a start of a flair go back up to the ten for a full week and cut down less. It took me nine months I think to get totally off Pred. Now I'm off Pred. But having tiny flares. Doctor increased my Dapsone but new pills haven't arrived yet. Your body has to adjust VERY SLOWLY to the loss of strength of Pred. Plus it builds up in your system and even though your off -- your body can have Pred still in it for two to three month. I know the storable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 When coming off mine my doctor had me cutting ten in half and taking one. Cut back 1 mg every two weeks. If I had a start of a flair go back up to the ten for a full week and cut down less. It took me nine months I think to get totally off Pred. Now I'm off Pred. But having tiny flares. Doctor increased my Dapsone but new pills haven't arrived yet. Your body has to adjust VERY SLOWLY to the loss of strength of Pred. Plus it builds up in your system and even though your off -- your body can have Pred still in it for two to three month. I know the storable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Hey Colleen, Thanks for the advice! Do you know how many grams a serving of Protien should be? Thanks, Asia > Asia, > > I would do a little tweaking on your menu if you aren't seeing > results. All your meals should have 1 serving of protein and 1 of > carbs. I see a few of your meals are missing carbs. Plus I'd lose > the zone bar if you aren't seeing progress, Lots of sugar and not the > greatest source of carbs. Some of your meals are several servings of > protein. I'd try these changes before adding extra cardio. > > Colleen > > -------------------- > > Hi. This is my first challenge, I'm at C1W5D4. So far, no inches > lost and no pounds lost. I read on Hussman's page that adding > 10-30 minutes of low to moderate cardio at the end of my High > Intensity 20 minutes really burns fat. Should I eat more or less? > What do you think? What do I need to change? > > Here is what I eat: > > Get up take 1 themo dynamx-work out, 16 oz water > > Meal 1 (1 hour after work out)2 scoops lean dynamx, b-12 vitamin, > vitamin C, 1/2 cup cottage cheese, 1 Zone bar, and 32 oz water. > 28g Protien, 27 grams Carbs, 300 Calories > > Meal 2 Natures Best Isopure low carb protien powder shake. Multi > Vitamin, Calcuim Vitamin, 32 oz of water > 25g Protien, 0 Carbs, 105 Calories > > Meal 3 2 scoops Lean Dynamx,1 thermo dynamx, 3oz Chicken, 1 boiled > potato, 1-2 cups of steamed broccoli or asperagus, 1 T Udos Oil, 32oz > water > 20g Protien, 28 Carbs, 375 Calories > > Meal 4 Natures Best Isopure low carb protien shake, 132 oz water > 25g Protien, 0 Carbs, 105 Calories > > Meal 5 2 scoops Lean Dynamx, 3 oz Chicken Breast, 2 cups of > Cawliflower, 1 cup of broccoli, 1T Udos Oil, 16 oz water > 20g Protien, 11g Carbs, 325 Calories > > Meal 6 1 cup cottage cheese > 24g protien, 10 carbs, 180 Calories > > So that's my plan pretty much everyday. I'm 5'5, 22 years old, and > 145 lbs. The last time I lifted weights was about 2.5 years ago. > What should I expect? Is it normal not to have any changes still > after 5 weeks? I haven't missed a work out yet, and constantly push > myself. > > Any advice is greatly appreciated! > > Thanks, > Asia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 > Hey Colleen, > Thanks for the advice! Do you know how many grams a serving of > Protien should be? > Thanks, > Asia For most women, it is about 20-25 grams of protein and 20-25 grams of carbs per serving. This is an approxmation though. The best way to measure is to use the palm/fist method by the book. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 In a message dated 10/27/2003 10:39:41 AM US Mountain Standard Time, mom2bridget@... writes: > I would come prepared with a request in writing for a Functional Behavioral > Assessment. It should be performed by a behavioralist. If they want to use > the school psych, ask what is his/her experience in this area? How many > assessments has she/he done? I agree with on this. Be careful of letting unqualified people make up a program. Have they done an ABC chart on her? Make one up and take it with you to have them complete it for 2 weeks and say, " We'll meet again when there is some data! " And IF they and you feel the need for a behavioral program.....MAKE IT POSITIVE!! They do NOT have to have a negative consequence for everything that comes up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Darcy, My first question would be what has changed? Nothing was mentioned before, so just what has changed? Then, I would ask what is the behavior specifically? When does it happen and what happens before it? I would come prepared with a request in writing for a Functional Behavioral Assessment. It should be performed by a behavioralist. If they want to use the school psych, ask what is his/her experience in this area? How many assessments has she/he done? Then depending on this answer, ask for an outside eval. The eval should include observation time at school, playground, after school, and home. It should have a questionnaire for you, the teachers, and anyone else that has ANY contact with her. Good Luck! mom to Bridget 10 Need Advice Hi. Kaitlyn's resource room teacher just called and wants to have an informal meeting to discuss Kaitlyn's behavior. Supposedly it is so bad now that she is not progressing. Mind you we had a parent teacher conference last Tuesday with both she and the reg ed teacher and not one word was uttered about her behavior or lack of progression. In fact everything was good. Now Kaitlyn is sitting in the principals office and they have come up with a motivation plan? Ok its good that they are talking about a plan, but I am questioning who is qualified to assess behavior? I think that if behavior is an issue we should get a formal behavior assessment and develop a positive behavior support plan based on that data. I don't think this teacher is qualified to make such an assessment. What do I need to ask for and who is qualified to make such an assessment? What credentials do they need? Part of my problem is that we have a communication book, I am in the school several days each week and not one word has been said about behavior issues not even at parent/teacher conference. How does Sue say it? This piggs me off! Thanks for any input, I am meeting with her this afternoon. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 That was a darned inconvenient meeting. They should give you more notice. Did you go alone? Never do that. Also, did they discuss placement? If so, they are way out of compliance with the law. You must be given a certain amount of notice. Did you ask for an independent evaluation? You can write a formal letter asking for one but send it certified mail with receipt requested so that they can't say they didn't get it. Elaine Need Advice Hi. Kaitlyn's resource room teacher just called and wants to have an informal meeting to discuss Kaitlyn's behavior. Supposedly it is so bad now that she is not progressing. Mind you we had a parent teacher conference last Tuesday with both she and the reg ed teacher and not one word was uttered about her behavior or lack of progression. In fact everything was good. Now Kaitlyn is sitting in the principals office and they have come up with a motivation plan? Ok its good that they are talking about a plan, but I am questioning who is qualified to assess behavior? I think that if behavior is an issue we should get a formal behavior assessment and develop a positive behavior support plan based on that data. I don't think this teacher is qualified to make such an assessment. What do I need to ask for and who is qualified to make such an assessment? What credentials do they need? Part of my problem is that we have a communication book, I am in the school several days each week and not one word has been said about behavior issues not even at parent/teacher conference. How does Sue say it? This piggs me off! Thanks for any input, I am meeting with her this afternoon. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Elaine: It was not an official meeting. and I met with the spec. ed teacher just like I would meet with a regular teacher if one of my boys misbehaved. However, we did confront her about the fact that we had just had a parent teacher conference within the past week (with both she and the regular ed teacher) and not one word had been mentioned about behavior problems. Also no notes had come home in her communications notebook either. I wish you could see her. She got all red and she was trembling. We scare the pants off of the woman. What I find incredible is that her explanation was there had been no mention of the problem because she did not want to deal with us basically. I explained back that if we are kept in the loop, it is much easier to work as a team. She proposed a positive behavior plan (unofficial, not in IEP). We said that we would agree to try it for two weeks to see if it would work. It was what I would have recommended we try if she would have only asked me in the first place. If behavior does not improve, then I am going to formally request a FBA and go from there. Sometimes I just wonder what in the world this woman is thinking. Wish us luck. Darcy Need Advice Hi. Kaitlyn's resource room teacher just called and wants to have an informal meeting to discuss Kaitlyn's behavior. Supposedly it is so bad now that she is not progressing. Mind you we had a parent teacher conference last Tuesday with both she and the reg ed teacher and not one word was uttered about her behavior or lack of progression. In fact everything was good. Now Kaitlyn is sitting in the principals office and they have come up with a motivation plan? Ok its good that they are talking about a plan, but I am questioning who is qualified to assess behavior? I think that if behavior is an issue we should get a formal behavior assessment and develop a positive behavior support plan based on that data. I don't think this teacher is qualified to make such an assessment. What do I need to ask for and who is qualified to make such an assessment? What credentials do they need? Part of my problem is that we have a communication book, I am in the school several days each week and not one word has been said about behavior issues not even at parent/teacher conference. How does Sue say it? This piggs me off! Thanks for any input, I am meeting with her this afternoon. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 In a message dated 10/28/03 10:31:57 AM Eastern Standard Time, deads@... writes: > > What I need to find out is how do I know the person doing the Assessment > knows what the heck they are doing? I have a problem with our districts > testing in other areas so I need to be able to feel confident that the assessment > is done correctly. Can I trust the results. Darcy > I had an FBA for my daughter when she was in 3rd grade when we were in CA. It was VERY well done.... but I learned a lot up front from a parent who had one done at the same school the year before that was a total joke. This is what I can pass along: 1) you MUST get the wording your state uses for setting the standard for doing a Functional Analysis (as it is called in CA) or a Functional Behavior Analysis. (CA requires a person who is a " trained behavioral specialist with an emphasis on positive behavior intervantions. " You could also all that you expect a person experienced with DS if you want.) 2) Write a letter BEFORE the assessment begins, copy everyone on the IEP team, detailing what you expect the FBA to cover. From the CA statutes I wrote a letter, quoting the state standards, letting the school know what I expected out of the assessment. Funny - in the meeting they acted afronted, saying " of course " they always did an FBA as thouroughly as I expected. (I snicked to myself, knowing that the previous year a child got a 4 hour observation and a telephone report to the head of special ed because that's all the district paid for, even tho it went totally against the state statute. *smirk*) Here's part of the letter I wrote (I've underlined the parts that are direct quotes from CA law): (note that I inserted exactly who I expected the person doing the assessment to talk to, because I knew those people had been successful with in the past - you should include exactly who you think would be beneficial. In our case the school hired an outside consultant who was so impressed with the aise form the year before she talked her into coming back!) ---------- Per the California Code of Regulations (Title 5, Article I, Section 3052), I understand that this Functional Analysis will be conducted by a person who has documented training in behavior analysis with an emphasis on positive behavior interventions. The Functional Analysis assessment personnel shall gather information from three sources: direct observation, interviews with significant others, and review of available data in 's file. The interviews with significant others shall include (but not be limited to) interviews with myself, 's teacher from last year (J_______) and 's aide from last year (_A______) in order to establish the history of behaviors and the effectiveness of previously used behavioral interventions, as well as insight into 's communicative intent in her behavior. The analysis will include an ecological analysis of the setting in which behaviors occur most frequently, considering factors such as physical setting, social setting, the activites and the nature of the instruction, scheduling, and the communicative intent of the behavior. The communicative intent of behavior is to be identified in terms of what is either requesting or protesting through display of her behaviors. The Functional Analysis Assessment Report shall be a written report and shall include all of the following: a description of the nature and severity of the targeted behaviors(s) in objective and measurable terms, including baseline data; an analysis of antecendents and consequences that maintain the targeted behavior;a description of the rate of alternative behaviors, their antecendents and consequences; recommendations for the IEP team of a positive programming for behavioral intervention. A Behavioral Intervention Plan shall be implemented by or under the supervision of a staff member with documented training in behavioral analysis (behavioral intervention case manager), including the use of positive behavioral interventions. Such interventions shall only be used to replace specified maladaptive behavior(s) with alternative acceptable behavior(s) and never used soley to eliminate maladaptive behavior(s). The behavioral intervention plan shall become part of the IEP and shall be written with sufficient detail as to direct the implementation of the plan. 3) Hold the school accountable if they don't comply! Put your objections in WRITING and copy everyone on the IEP team. If you can find any part of the state standard they did not comply with, file a complaint with your state. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 The IEP team should determine the parameters of the FBA at the time you make the request. Who does it, where it is done,(specify each location) and for how long (over one day, two days, a week?) Then the team sets a date to meet back and review the data and listen to recommendations and then formulate a plan based on the assessment. Cheryl in VA In a message dated 10/27/2003 3:37:28 PM Eastern Standard Time, mom2bridget@... writes: > It should be performed by a behavioralist. If they want to use the school psych, ask what is his/her experience in this area? How many assessments has she/he done? Then depending on this answer, ask for an outside eval. The eval should include observation time at school, playground, after school, and home. It should have a questionnaire for you, the > teachers, and anyone else that has ANY contact with her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 What I need to find out is how do I know the person doing the Assessment knows what the heck they are doing? I have a problem with our districts testing in other areas so I need to be able to feel confident that the assessment is done correctly. Can I trust the results. Darcy Re: Need Advice The IEP team should determine the parameters of the FBA at the time you make the request. Who does it, where it is done,(specify each location) and for how long (over one day, two days, a week?) Then the team sets a date to meet back and review the data and listen to recommendations and then formulate a plan based on the assessment. Cheryl in VA In a message dated 10/27/2003 3:37:28 PM Eastern Standard Time, mom2bridget@... writes: > It should be performed by a behavioralist. If they want to use the school psych, ask what is his/her experience in this area? How many assessments has she/he done? Then depending on this answer, ask for an outside eval. The eval should include observation time at school, playground, after school, and home. It should have a questionnaire for you, the > teachers, and anyone else that has ANY contact with her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 In VA we have different Teacher Technical Assistance Centers (T-TACS) set up at universities all over the state. Each T-TAC specializes in different age students. They help teachers, they teach teacher wannabes, and they do lots more. Our nearest university does FBAs, but they have to be called in by the school (who NEVER wants to have outsiders come in and do that) There are also private companies that do this too. Call your federally funded state parent resource agency and ask them who does GOOD FBAs in your area. See if your university has programs set up like we do. Cheryl in VA In a message dated 10/28/2003 10:30:42 AM Eastern Standard Time, deads@... writes: > What I need to find out is how do I know the person doing > the Assessment knows what the heck they are doing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 In a message dated 10/28/03 8:48:58 PM Eastern Standard Time, writes: > I would come prepared with a request in writing for a Functional Behavioral > Assessment. It should be performed by a behavioralist. If they want to use > the school psych, ask what is his/her experience in this area? How many > assessments has she/he done? Then depending on this answer, ask for an outside > eval According to a lawyer that spoke at an advocacy training I just took if you want the district to pay for the independent FBA, 1st you must let the district do one. Then if you don't agree with the process or recommendations then ask for the outside eval. If the district doesn't have an opportunity to first do any type of testing they do not have to agree to paying for the independent eval. Of course any family can choose to go outside of the district--just don't expect to be reimbursed. nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 In a message dated 10/29/2003 3:02:55 PM Eastern Standard Time, NEHolroyd writes: > want the district to pay for the independent FBA, 1st you must let the district > do one. Then if you don't agree with the process or > recommendations then ask > for the outside eval. This is true of any evaluations but in our case, the T-TAC centers I spoke of .... unless they have changed policy ....they don't charge! ;-) Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Wow Becky. Thanks for this! It is very informative and detailed. Schulte Re: Need Advice > In a message dated 10/28/03 10:31:57 AM Eastern Standard Time, deads@... > writes: > > > > > What I need to find out is how do I know the person doing the Assessment > > knows what the heck they are doing? I have a problem with our districts > > testing in other areas so I need to be able to feel confident that the assessment > > is done correctly. Can I trust the results. Darcy > > > > I had an FBA for my daughter when she was in 3rd grade when we were in CA. It > was VERY well done.... but I learned a lot up front from a parent who had one > done at the same school the year before that was a total joke. > > This is what I can pass along: > > 1) you MUST get the wording your state uses for setting the standard for > doing a Functional Analysis (as it is called in CA) or a Functional Behavior > Analysis. (CA requires a person who is a " trained behavioral specialist with an > emphasis on positive behavior intervantions. " You could also all that you expect > a person experienced with DS if you want.) > > 2) Write a letter BEFORE the assessment begins, copy everyone on the IEP > team, detailing what you expect the FBA to cover. > From the CA statutes I wrote a letter, quoting the state standards, letting > the school know what I expected out of the assessment. Funny - in the meeting > they acted afronted, saying " of course " they always did an FBA as thouroughly > as I expected. (I snicked to myself, knowing that the previous year a child > got a 4 hour observation and a telephone report to the head of special ed > because that's all the district paid for, even tho it went totally against the > state statute. *smirk*) > > Here's part of the letter I wrote (I've underlined the parts that are direct > quotes from CA law): > (note that I inserted exactly who I expected the person doing the assessment > to talk to, because I knew those people had been successful with in the > past - you should include exactly who you think would be beneficial. In our > case the school hired an outside consultant who was so impressed with the aise > form the year before she talked her into coming back!) > > ---------- > > Per the California Code of Regulations (Title 5, Article I, Section 3052), I > understand that this Functional Analysis will be conducted by a person who > has documented training in behavior analysis with an emphasis on positive > behavior interventions. > The Functional Analysis assessment personnel shall gather information from > three sources: direct observation, interviews with significant others, and > review of available data in 's file. The interviews with significant others > shall include (but not be limited to) interviews with myself, 's > teacher from last year (J_______) and 's aide from last year (_A______) in > order to establish the history of behaviors and the effectiveness of previously > used behavioral interventions, as well as insight into 's communicative > intent in her behavior. > The analysis will include an ecological analysis of the setting in which > behaviors occur most frequently, considering factors such as physical setting, > social setting, the activites and the nature of the instruction, scheduling, and > the communicative intent of the behavior. The communicative intent of > behavior is to be identified in terms of what is either requesting or > protesting through display of her behaviors. > The Functional Analysis Assessment Report shall be a written report and shall > include all of the following: a description of the nature and severity of the > targeted behaviors(s) in objective and measurable terms, including baseline > data; an analysis of antecendents and consequences that maintain the targeted > behavior;a description of the rate of alternative behaviors, their > antecendents and consequences; recommendations for the IEP team of a positive programming > for behavioral intervention. > A Behavioral Intervention Plan shall be implemented by or under the > supervision of a staff member with documented training in behavioral analysis > (behavioral intervention case manager), including the use of positive behavioral > interventions. Such interventions shall only be used to replace specified > maladaptive behavior(s) with alternative acceptable behavior(s) and never used soley to > eliminate maladaptive behavior(s). > The behavioral intervention plan shall become part of the IEP and shall be > written with sufficient detail as to direct the implementation of the plan. > > 3) Hold the school accountable if they don't comply! Put your objections in > WRITING and copy everyone on the IEP team. If you can find any part of the > state standard they did not comply with, file a complaint with your state. > > - Becky > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 In a message dated 10/29/03 3:27:23 PM Eastern Standard Time, Wildwards writes: > unless they have changed policy ....they don't charge! ;-) > That's nice! You are fortunate to have an independent source that doesn't charge. Fees can be quite pricey--depending on what type is being done and the district can refuse to use them. nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 , First... move the coffe table out of the room. We did that last week because is cruising aroung the furniture and keeps falling and hitting his head. I would get the ortho appt moved up, find out what his curve is at and then if you are still concerned go to the Neurologist. Only you as Nates Mom knows what is normal, you know in your heart. Your Pediatrician doesn't live with Nate and doesn't watch him on a daily basis. Your maternal instinct will tell you what to do. What was his curve and RVAD at last time he had an x-ray? I know it was low but I can't remember. Try not to worry...easier said then done I know. Being a Mom is so hard, so much worry. I know Nate will be fine, he is just a crazy little wild boy, is going to be there too soon. I am exhausted! Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 , is a total MANIAC. He crawls so fast, I feel like we race for things half of the time. The Dishwasher left open, it's a race to see who gets there first. Me to close it or him to crawl into it. LOL He sees a gate left open and his wheels start spinning for the great escape. He stands up on the furniture and is cruising along it, so not walking quite yet. I am sure his cast will slow him down a tad, but I am not too worried about it. Our coffee table had to be moved out last week because he stands at it and chews the darn thing. My floor lamp had to be removed too because the stinker pulls it over. I have my hands full with this one. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Nates curve is around 21 and RVA is around 15+/- a few. My husband moved the coffee table into the family room in the basement for now, we spend more time up here then down there. I also tried to find a baby helmet for him. Can you believe that they used to sell them for " newly walkers " but they discontinued them???? It makes no sence. My mom suggested a bike helmet for a baby size, but the wieght is a factor. Im afraid it will knock him furthur off balance, not to mention aggrevate his curve. The baby safety helmets were more streamlined to cover the forhead and temples and all. And they were VERY light weight. A friend of mine had one for her child. She doesnt have it anymore. Im bummed I cant find one... Ill keep looking though. Let me know if you see one somewhere. Ive already bought bumpers for all the tables and corners in the house. His 15 month check up is coming up soon. Ill ask his dr then about a neurologist. Im just afraid if i dont look into it and he DOES have something. Its better to be TOO cautious then let it go and there be something there. Thanks for the advice though I appreciate it!! Is Nickolas trying to walk already???? Hes still to young!! Dont they grow up QUICK??!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 A " pain in the butt " is usually the sciatic nerve. It's the biggest nerve in your body, about as big around as your thumb! It runs from your spine, through your glutes, and all the way down your legs. Try to give it time to get better. You don't want to aggravate it to the point that you have blazing pain shooting down your leg. I would do whatever you can without hurting it. Maybe you could do some other form of cardio? Or some lower body that doesn't affect it? Calf raises, maybe leg extensions, stretching, whatever you can do that doesn't feel like it's putting more pressure on it. If it flares up, anti-inflammatories like Advil can help calm it back down. Sciatica on WebMD http://my.webmd.com/content/pages/4/1661_50314.htm need advice A week and a half ago I was doing my HIIT outside running (I usually nordic track) and started feeling pain in my left glute area. By the time I finished it was hurting and I was limping the next day, but only 1 day. I layed off lbwo for a week because I could still feel a " twinge " when I hit my 9s and 10s on the nordic track. 3 questions - do I stay away from lbwo until the twinge goes away? (I only feel it when really pushing on the cardio - don't feel it until I'm hitting a 9) Do I stay away from the 9s on the cardio until the twinge goes away? Since I'm not doing lbwo how many days should a rest between ubwo? Help! BTW, my husband is having a great time asking about my pain in the butt! Thanks- Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 In a message dated 8/22/2004 12:09:44 AM Eastern Standard Time, Brettsmom@... writes: Bretts has a mini joystick for his power chair and we are very unhappy with it Wow, I'm absolutely in love w/ my mini joystick! I've had mine since 2002 and haven't had problems w/ it. Maybe he can try the mouse pad joystick thingy? I tried like 3 different joysticks (very frustrating) before finding the perfect one, but when I tried the mouse pad joystick, I had no luck. It required too much strength from me. I'm 21 now and I have severe SMA Type 2. I had my spinal fusion in Jan 03 and my curve was AWFUL. It kept me in constant pain because my curve was over 100 degrees. My neck was and still is curved, my surgeon wanted to fuse up into my neck, but soon discovered I cannot swallow UNLESS my head is turned to the right. Therefore, he decided not to fuse my neck because my head couldn't be turned. For my seating system in my chair they mold me in a Contour U and my head rest supports my neck completely due to lack of head control. That being said, after about two hrs in my chair, my neck starts to throb in pain. It would be nice to have a straight stable neck :-) Sincerely, s, the Unique Princess. Quote Link to comment Share on other sites More sharing options...
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