Re: So the fibers survive coconut oil?

March 22, 2012

Could be. The fact that you got rid of fibers indicates this is so. Also, did Marie have fibers?Sent from my iPodOn Mar 22, 2012, at 7:33 AM, Aandraya <aandraya@...> wrote:

I used to think that - maybe agrobacterium, but now I think it's mostly multi-fungal co-existing with all the other pathogens.AaOn Mar 21, 2012, at 11:59 PM, Goldstein@... wrote:

She definitely calls it Morgellons. When I first started with her 3 years ago I sent her pictures for my file of all my fibers. I have fewer fibers now (I think). I don't see near as many or as often. She KNOWS Morgellons is largely Lyme Disease and cos. She also thinks plant matter is growing in us as a result of GMOs and pesticide use, herbicides, etc.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:54:57 PMSubject: Re: So the fibers survive coconut oil?

Thank you, . Does your doctor admit you have "Morgellons" or

does she call it something else?

How did your Igenex test come out?

Thank you,

Jess

On 3/21/2012 10:52 PM, Goldstein@... wrote:

I agree... My doc told me she could get me 80%

of the way and she has done that. And more, but the Lyme

is a ball buster to say the least and I have a complex

case. I also believe by the time you are producing fibers

and have Morgellons your case of Lyme is more complicated.

Much much more. My doctor told me my situation is

unique. Aandraya has probably had the best Lyme doctors

and she is very brave. She has been through so much and I

don't know if I am strong enough physically to go all the

way, although I would like to, just don't know physically

if I am able. I think Aa can go all the way and will be

totally healed at one point. I'm a lot older and have had

cancer 13 years ago... so much has been compromised. BUT

(great emphasis) I KNOW that if you start the journey with

treatment, you do kick back the infection and things

improve. So even if you can't afford or don't want to do

the antibiotics for years you will be helped by what you

do. This is not to say it isn't very difficult, it is. I

had to stop the abx for a while. Will resume tx soon.

That is a fact.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Wednesday, March 21, 2012 9:43:16 PM

Subject: Re: So the fibers

survive coconut oil?

Hi ,

Thank you for that information, the only thing that

worries me if that even after spending that money, you

still have the fibers. Could your doctor not be doing

the right thing?

What did your IGenex test say?

Thank you,

Jess

On 3/21/2012 10:41 PM, Goldstein@...

wrote:

Jess,

My doctor in CA charges about $450 for

first appointment and a half hour is $200.

She will do phone follow ups which are about

every 3 months. IGeneX is maybe 20 minutes

away from my doctor so we just drove right

over there to get our blood drawn. If you

have the money maybe a doctor in California

would work. I don't know which LLMDs are the

best... my LLMD works with me. She is not

intimidated by the idea of bird mites one

single bit. She has seen others who have had

bird mites.

From: "Aandraya" <aandraya@...>

bird mites

Sent: Wednesday, March 21, 2012

7:25:53 PM

Subject: Re: So the

fibers survive coconut oil?

Jess- No! God I hope not. You are

probably in early stage. $5-700 for first

doctor visit, $200 for igenix test. Follow

up appt are between $2-300 and are every

3-5 months, some will give phone appts.

Medication prices are all over the place.

Do it right the first time and you won't be

in my place, I'm unable to work and 2 yrs

into this. If I had started treatment when

I just had the fibers it would be a

different story.

Aa

On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya, how much do you

think I should be spending just to get

rid of this, including doctors,

testing and meds? Over $20,000?

On 3/21/2012 7:54 PM, Aandraya wrote:

Jess-

Chicago 25 years, just moved to

Minneapolis a year ago due to this

illness. Had to stop working.

Treat it now and you'll be good

to go.

Aa

On Mar 21, 2012, at 8:42 PM,

jessnyc <helpnynow@...>

wrote:

No kidding, Aandraya, I'm

in Condesa! Few blocks from

Roma, pretty cool area,

isn't it? Where do you live

now?

Jess

On 3/21/2012 7:39 PM,

Aandraya wrote:

Jess-

Where in Mexico DF do

you live? I used to

live in Colonia Roma.

Hope you're doing well.

Aa

On Mar 21, 2012, at 8:35

PM, jessnyc <helpnynow@...>

wrote:

Thank you,

, I

appreciate so much

your concern. Yes,

everybody is fine.

Most of my family

lives a couple of

hours away from

Mexico City and

the seismic area,

so they didn't

feel anything. I

live in Mexico

City and I

definitely felt

everything, made

me dizzy! ...but

nothing major

happened around

me, just a few

buildings lost

their windows and

stuff like that,

but no victims

around my area.

Thank you for

thinking about me

:-)

Jess

On 3/21/2012 7:29

PM, Goldstein@...

wrote:

Jess,

Did your

family come

out okay after

that terrible

earthquake? I

was thinking

about you and

your family...

I know no one

was killed,

but so many

lost homes.

Very

horrible. So

sorry too.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Tuesday,

March 20, 2012

4:57:50 PM

Subject: Re:

So the fibers

survive

coconut oil?

Thank you,

Aandraya.

Do you think I

could treat

myself without

going to a

doctor? Like,

getting the

Igenex

testing, and

then getting

the

medications

you used? How

did you know

when to stop

the treatment,

did you get

tested

continuously?

Do you know

for a fact

that you're

fully

recovered and

that you don't

have and left

over infection

that could

begin growing

slowly again?

I don't think

I could afford

expensive

treatment

right now, but

I might be

able to afford

the Igenex

testing and

the meds

alone, I just

wonder if that

would be

enough.

I don't think

I have any

neurological

symptoms, and

the fiber

problem is not

as severe as

it used to be,

although it is

still there,

but that's the

only symptom I

have, the

fibers.

Thanks a lot

for the

information.

Jess

On 3/20/2012

2:57 PM,

Aandraya

wrote:

Jess- the

doctors treat

them for Lyme

and

coinfections

because they

all have it. I

personally

believe that

all Lyme

patients who

have

morgellons

type symptoms

also have

severe

bartonella(passed

by ticks and

insects along

with Lyme

babesia)

Coinfections

are microbes

that are

passed from

the same tick

or insect- the

most common

and

debilitating

are

bartonella-

bacterial, and

babesia-

protozoal,

sister to

malaria. I

had both.

Lyme is

borrelia- a

spiral shaped

bacteria.

Aa

On Mar 20,

2012, at 1:37

AM, jessnyc

<helpnynow@...>

wrote:

Thank you,

Aandraya.

Do you know

any more

people who've

been cured of

Morgellons?

What have

these doctors

done for them,

and do you

know how much

they charge?

Thanks,

Jess

On 3/20/2012

12:16 AM,

Aandraya

wrote:

You have

two of the

best LLMDs in

New York if

you can go

back, there's

some waiting

time to get in

but they are

the best-

Horowitz and

Cameron. I

know someone

who saw

Cameron and

she loves him.

He was the

president of

ILADS.

Aa

On Mar 19,

2012, at 11:57

PM, jessnyc

<helpnynow@...>

wrote:

Thank you,

. Yes, I

guess I could

do that, but

then there

would have to

be a way to

figure out my

progress. I'd

have to get a

test done

every so

often, and how

would I know

what doses to

take? I don't

want to do

something

wrong and make

these things

more powerful

or immune to

these

medications.

Somebody here

would have to

explain very

well the

process. If an

MD can

understand it,

so can we.

On 3/19/2012

10:54 PM, Goldstein@...

wrote:

There

must be

someone who

treats Lyme

disease there

in Mexico.

I'll see if

anyone I know

might know of

someone too.

But Jess you

could get

those drugs

over-the-counter.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers

survive

coconut oil?

It's been a

little over a

year, probably

a year and a

half that I've

had this.

There's been

months where

I've felt

almost symptom

free, but I

get

re-infested

when I go back

to places I

visited when I

first came

back from NYC

with the huge

infestation.

My mother's

house is one

of those

places, very

unfortunately.

Nobody in her

house has felt

anything at

all, it's

just me.

Thanks,

Jess

On 3/19/2012

10:47 PM, Goldstein@...

wrote:

Jess

lives in

Mexico. Do

you know of

anyone there?

From:

"Aandraya"

<aandraya@...>

bird mites

Sent: Monday,

March 19, 2012

7:27:44 PM

Subject: Re:

So the fibers

survive

coconut oil?

No, that

is one of many

combinations I

was treated

with. If you

haven't had it

that long you

could start

with Bactrim

DS, Doxy 2-400

mg a day, with

Voriconazole,

artemisinin.

But you need

to see a Lyme

literate

practitioner

because you

likely have

babesia and

bartonella

which requires

other meds.

Dr. Stricker

in CA is

excellent,

don't know

which part of

CA he's in but

he treats

Lyme/morgellons

patients. How

long have you

had this? If

more than a

year it will

take long term

treatment.

Aa

On Mar 19,

2012, at 8:31

PM, jessnyc

<helpnynow@...>

wrote:

Thanks,

Aandraya.

"Voricon.,

levaquin,

bactrim/ceftin

rotation."

Would that be

it? That's all

you needed to

get rid of

Morgellons?

Thanks.

On 3/19/2012

7:12 PM,

Aandraya

wrote:

100%. I

wear all my

clothes,

rarely clean

now because

I'm too tired

anyway... Now

I'm dealing

with other

symptoms.

Morgellons is

a subgroup of

Lyme, there

are sometimes

bugs involved,

sometimes

mold, or all

of the above.

You

definitely

have Lyme

disease and

have to treat

it to get your

immune system

back in

charge.

Aa

On Mar 19,

2012, at 7:49

PM, jessnyc

<helpnynow@...>

wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

March 22, 2012

Yes, Lyme docs could be rated even though we are lucky to have even one locally, even if not the best. All have to be Ilads trained, right? I can't wait to hear what Dr. Jemsek says to do for you. Do you have an appointment already?Sent from my iPodOn Mar 22, 2012, at 7:31 AM, Aandraya <aandraya@...> wrote:

- I think it's more that your insurance company has been dictating what medications they pay for. I never would have been able to do the treatments I've done had I not had my insurance. They have covered 100% of my scripts. Some of my friends have to pick and choose which meds they use and try to get them in Canada when they're cheaper. I was also lucky to start with Dr. Schaller because he started me on an aggressive treatment when I was clueless about everything. A good doctor is key. My second doctor got me off track and now I've been back on track since October but lost ground for a good year. In May I'm going to DC to see Jemsek to do his program. With severe cases jumping around with meds doesn't work. It takes an organized program. Hindsight is 20/20.AandrayaOn Mar 21, 2012, at 11:52 PM, Goldstein@... wrote:

I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if you

can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil?

Hi ,

Thank you for that information, the only thing that worries me if

that even after spending that money, you still have the fibers.

Could your doctor not be doing the right thing?

What did your IGenex test say?

Thank you,

Jess

On 3/21/2012 10:41 PM, Goldstein@... wrote:

Jess,

My doctor in CA charges about $450 for first

appointment and a half hour is $200. She will do phone

follow ups which are about every 3 months. IGeneX is

maybe 20 minutes away from my doctor so we just drove

right over there to get our blood drawn. If you have

the money maybe a doctor in California would work. I

don't know which LLMDs are the best... my LLMD works

with me. She is not intimidated by the idea of bird

mites one single bit. She has seen others who have had

bird mites.

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Wednesday, March 21, 2012 7:25:53 PM

Subject: Re: So the fibers

survive coconut oil?

Jess- No! God I hope not. You are probably in

early stage. $5-700 for first doctor visit, $200 for

igenix test. Follow up appt are between $2-300 and

are every 3-5 months, some will give phone appts.

Medication prices are all over the place. Do it

right the first time and you won't be in my place, I'm

unable to work and 2 yrs into this. If I had started

treatment when I just had the fibers it would be a

different story.

Aa

On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya, how much do you think I

should be spending just to get rid of this,

including doctors, testing and meds? Over

$20,000?

On 3/21/2012 7:54 PM, Aandraya wrote:

Jess-

Chicago 25 years, just moved to

Minneapolis a year ago due to this illness.

Had to stop working. Treat it now and

you'll be good to go.

Aa

On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...>

wrote:

No kidding, Aandraya, I'm in

Condesa! Few blocks from Roma, pretty

cool area, isn't it? Where do you live

now?

Jess

On 3/21/2012 7:39 PM, Aandraya wrote:

Jess-

Where in Mexico DF do you live?

I used to live in Colonia Roma.

Hope you're doing well.

Aa

On Mar 21, 2012, at 8:35 PM,

jessnyc <helpnynow@...>

wrote:

Thank you, , I

appreciate so much your

concern. Yes, everybody is

fine. Most of my family

lives a couple of hours away

from Mexico City and the

seismic area, so they didn't

feel anything. I live in

Mexico City and I definitely

felt everything, made me

dizzy! ...but nothing major

happened around me, just a

few buildings lost their

windows and stuff like that,

but no victims around my

area.

Thank you for thinking about

me

:-)

Jess

On 3/21/2012 7:29 PM, Goldstein@...

wrote:

Jess,

Did your family

come out okay after

that terrible

earthquake? I was

thinking about you and

your family... I know

no one was killed, but

so many lost homes.

Very horrible. So

sorry too.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Tuesday,

March 20, 2012 4:57:50

PM

Subject: Re:

So the

fibers survive coconut

oil?

Thank you, Aandraya.

Do you think I could

treat myself without

going to a doctor?

Like, getting the

Igenex testing, and

then getting the

medications you used?

How did you know when

to stop the treatment,

did you get tested

continuously? Do you

know for a fact that

you're fully recovered

and that you don't

have and left over

infection that could

begin growing slowly

again? I don't think I

could afford expensive

treatment right now,

but I might be able to

afford the Igenex

testing and the meds

alone, I just wonder

if that would be

enough.

I don't think I have

any neurological

symptoms, and the

fiber problem is not

as severe as it used

to be, although it is

still there, but

that's the only

symptom I have, the

fibers.

Thanks a lot for the

information.

Jess

On 3/20/2012 2:57 PM,

Aandraya wrote:

Jess- the

doctors treat

them for Lyme

and coinfections

because they all

have it. I

personally

believe that all

Lyme patients

who have

morgellons type

symptoms also

have severe

bartonella(passed

by ticks and

insects along

with Lyme

babesia)

Coinfections

are microbes

that are passed

from the same

tick or insect-

the most common

and debilitating

are bartonella-

bacterial, and

babesia-

protozoal,

sister to

malaria. I had

both. Lyme is

borrelia- a

spiral shaped

bacteria.

Aa

On Mar 20, 2012,

at 1:37 AM,

jessnyc <helpnynow@...>

wrote:

Thank you,

Aandraya.

Do you know

any more

people who've

been cured of

Morgellons?

What have

these doctors

done for them,

and do you

know how much

they charge?

Thanks,

Jess

On 3/20/2012

12:16 AM,

Aandraya

wrote:

You have

two of the

best LLMDs in

New York if

you can go

back, there's

some waiting

time to get in

but they are

the best-

Horowitz and

Cameron. I

know someone

who saw

Cameron and

she loves him.

He was the

president of

ILADS.

Aa

On Mar 19,

2012, at 11:57

PM, jessnyc

<helpnynow@...>

wrote:

Thank you,

. Yes, I

guess I could

do that, but

then there

would have to

be a way to

figure out my

progress. I'd

have to get a

test done

every so

often, and how

would I know

what doses to

take? I don't

want to do

something

wrong and make

these things

more powerful

or immune to

these

medications.

Somebody here

would have to

explain very

well the

process. If an

MD can

understand it,

so can we.

On 3/19/2012

10:54 PM, Goldstein@...

wrote:

There

must be

someone who

treats Lyme

disease there

in Mexico.

I'll see if

anyone I know

might know of

someone too.

But Jess you

could get

those drugs

over-the-counter.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers

survive

coconut oil?

It's been a

little over a

year, probably

a year and a

half that I've

had this.

There's been

months where

I've felt

almost symptom

free, but I

get

re-infested

when I go back

to places I

visited when I

first came

back from NYC

with the huge

infestation.

My mother's

house is one

of those

places, very

unfortunately.

Nobody in her

house has felt

anything at

all, it's

just me.

Thanks,

Jess

On 3/19/2012

10:47 PM, Goldstein@...

wrote:

Jess

lives in

Mexico. Do

you know of

anyone there?

From:

"Aandraya"

<aandraya@...>

bird mites

Sent: Monday,

March 19, 2012

7:27:44 PM

Subject: Re:

So the fibers

survive

coconut oil?

No, that

is one of many

combinations I

was treated

with. If you

haven't had it

that long you

could start

with Bactrim

DS, Doxy 2-400

mg a day, with

Voriconazole,

artemisinin.

But you need

to see a Lyme

literate

practitioner

because you

likely have

babesia and

bartonella

which requires

other meds.

Dr. Stricker

in CA is

excellent,

don't know

which part of

CA he's in but

he treats

Lyme/morgellons

patients. How

long have you

had this? If

more than a

year it will

take long term

treatment.

Aa

On Mar 19,

2012, at 8:31

PM, jessnyc

<helpnynow@...>

wrote:

Thanks,

Aandraya.

"Voricon.,

levaquin,

bactrim/ceftin

rotation."

Would that be

it? That's all

you needed to

get rid of

Morgellons?

Thanks.

On 3/19/2012

7:12 PM,

Aandraya

wrote:

100%. I

wear all my

clothes,

rarely clean

now because

I'm too tired

anyway... Now

I'm dealing

with other

symptoms.

Morgellons is

a subgroup of

Lyme, there

are sometimes

bugs involved,

sometimes

mold, or all

of the above.

You

definitely

have Lyme

disease and

have to treat

it to get your

immune system

back in

charge.

Aa

On Mar 19,

2012, at 7:49

PM, jessnyc

<helpnynow@...>

wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

March 22, 2012

-May 23. Two friends here in Mpls. are seeing him and say he is a genious. One was already treated for 5 yrs by a prominent LLMD here. He improved but never fully recovered, now he does whatever Dr. J says and he is getting better. The other started with a local LLMD as well and later switched. A lot of LLMDs jump around with the meds and don't have an ordered program, he does. In many cases the babesia is not properly treated and full recovery doesn't happen. The largest organisms to the smallest and they overlap not start and stop individual coinfections. ILADS trained is a start but it sure doesn't guarantee An effective doctor.AandrayaOn Mar 22, 2012, at 11:50 AM, goldstein <Goldstein@...> wrote:

Yes, Lyme docs could be rated even though we are lucky to have even one locally, even if not the best. All have to be Ilads trained, right? I can't wait to hear what Dr. Jemsek says to do for you. Do you have an appointment already?Sent from my iPodOn Mar 22, 2012, at 7:31 AM, Aandraya <aandraya@...> wrote:

- I think it's more that your insurance company has been dictating what medications they pay for. I never would have been able to do the treatments I've done had I not had my insurance. They have covered 100% of my scripts. Some of my friends have to pick and choose which meds they use and try to get them in Canada when they're cheaper. I was also lucky to start with Dr. Schaller because he started me on an aggressive treatment when I was clueless about everything. A good doctor is key. My second doctor got me off track and now I've been back on track since October but lost ground for a good year. In May I'm going to DC to see Jemsek to do his program. With severe cases jumping around with meds doesn't work. It takes an organized program. Hindsight is 20/20.AandrayaOn Mar 21, 2012, at 11:52 PM, Goldstein@... wrote:

I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if

you

can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil?

Hi ,

Thank you for that information, the only thing that worries me if

that even after spending that money, you still have the fibers.

Could your doctor not be doing the right thing?

What did your IGenex test say?

Thank you,

Jess

On 3/21/2012 10:41 PM, Goldstein@... wrote:

Jess,

My doctor in CA charges about $450 for first

appointment and a half hour is $200. She will do phone

follow ups which are about every 3 months. IGeneX is

maybe 20 minutes away from my doctor so we just drove

right over there to get our blood drawn. If you have

the money maybe a doctor in California would work. I

don't know which LLMDs are the best... my LLMD works

with me. She is not intimidated by the idea of bird

mites one single bit. She has seen others who have had

bird mites.

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Wednesday, March 21, 2012 7:25:53 PM

Subject: Re: So the fibers

survive coconut oil?

Jess- No! God I hope not. You are probably in

early stage. $5-700 for first doctor visit, $200 for

igenix test. Follow up appt are between $2-300 and

are every 3-5 months, some will give phone appts.

Medication prices are all over the place. Do it

right the first time and you won't be in my place, I'm

unable to work and 2 yrs into this. If I had started

treatment when I just had the fibers it would be a

different story.

Aa

On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya, how much do you think I

should be spending just to get rid of this,

including doctors, testing and meds? Over

$20,000?

On 3/21/2012 7:54 PM, Aandraya wrote:

Jess-

Chicago 25 years, just moved to

Minneapolis a year ago due to this illness.

Had to stop working. Treat it now and

you'll be good to go.

Aa

On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...>

wrote:

No kidding, Aandraya, I'm in

Condesa! Few blocks from Roma, pretty

cool area, isn't it? Where do you live

now?

Jess

On 3/21/2012 7:39 PM, Aandraya wrote:

Jess-

Where in Mexico DF do you live?

I used to live in Colonia Roma.

Hope you're doing well.

Aa

On Mar 21, 2012, at 8:35 PM,

jessnyc <helpnynow@...>

wrote:

Thank you, , I

appreciate so much your

concern. Yes, everybody is

fine. Most of my family

lives a couple of hours away

from Mexico City and the

seismic area, so they didn't

feel anything. I live in

Mexico City and I definitely

felt everything, made me

dizzy! ...but nothing major

happened around me, just a

few buildings lost their

windows and stuff like that,

but no victims around my

area.

Thank you for thinking about

me

:-)

Jess

On 3/21/2012 7:29 PM, Goldstein@...

wrote:

Jess,

Did your family

come out okay after

that terrible

earthquake? I was

thinking about you and

your family... I know

no one was killed, but

so many lost homes.

Very horrible. So

sorry too.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Tuesday,

March 20, 2012 4:57:50

PM

Subject: Re:

So the

fibers survive coconut

oil?

Thank you, Aandraya.

Do you think I could

treat myself without

going to a doctor?

Like, getting the

Igenex testing, and

then getting the

medications you used?

How did you know when

to stop the treatment,

did you get tested

continuously? Do you

know for a fact that

you're fully recovered

and that you don't

have and left over

infection that could

begin growing slowly

again? I don't think I

could afford expensive

treatment right now,

but I might be able to

afford the Igenex

testing and the meds

alone, I just wonder

if that would be

enough.

I don't think I have

any neurological

symptoms, and the

fiber problem is not

as severe as it used

to be, although it is

still there, but

that's the only

symptom I have, the

fibers.

Thanks a lot for the

information.

Jess

On 3/20/2012 2:57 PM,

Aandraya wrote:

Jess- the

doctors treat

them for Lyme

and coinfections

because they all

have it. I

personally

believe that all

Lyme patients

who have

morgellons type

symptoms also

have severe

bartonella(passed

by ticks and

insects along

with Lyme

babesia)

Coinfections

are microbes

that are passed

from the same

tick or insect-

the most common

and debilitating

are bartonella-

bacterial, and

babesia-

protozoal,

sister to

malaria. I had

both. Lyme is

borrelia- a

spiral shaped

bacteria.

Aa

On Mar 20, 2012,

at 1:37 AM,

jessnyc <helpnynow@...>

wrote:

Thank you,

Aandraya.

Do you know

any more

people who've

been cured of

Morgellons?

What have

these doctors

done for them,

and do you

know how much

they charge?

Thanks,

Jess

On 3/20/2012

12:16 AM,

Aandraya

wrote:

You have

two of the

best LLMDs in

New York if

you can go

back, there's

some waiting

time to get in

but they are

the best-

Horowitz and

Cameron. I

know someone

who saw

Cameron and

she loves him.

He was the

president of

ILADS.

Aa

On Mar 19,

2012, at 11:57

PM, jessnyc

<helpnynow@...>

wrote:

Thank you,

. Yes, I

guess I could

do that, but

then there

would have to

be a way to

figure out my

progress. I'd

have to get a

test done

every so

often, and how

would I know

what doses to

take? I don't

want to do

something

wrong and make

these things

more powerful

or immune to

these

medications.

Somebody here

would have to

explain very

well the

process. If an

MD can

understand it,

so can we.

On 3/19/2012

10:54 PM, Goldstein@...

wrote:

There

must be

someone who

treats Lyme

disease there

in Mexico.

I'll see if

anyone I know

might know of

someone too.

But Jess you

could get

those drugs

over-the-counter.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers

survive

coconut oil?

It's been a

little over a

year, probably

a year and a

half that I've

had this.

There's been

months where

I've felt

almost symptom

free, but I

get

re-infested

when I go back

to places I

visited when I

first came

back from NYC

with the huge

infestation.

My mother's

house is one

of those

places, very

unfortunately.

Nobody in her

house has felt

anything at

all, it's

just me.

Thanks,

Jess

On 3/19/2012

10:47 PM, Goldstein@...

wrote:

Jess

lives in

Mexico. Do

you know of

anyone there?

From:

"Aandraya"

<aandraya@...>

bird mites

Sent: Monday,

March 19, 2012

7:27:44 PM

Subject: Re:

So the fibers

survive

coconut oil?

No, that

is one of many

combinations I

was treated

with. If you

haven't had it

that long you

could start

with Bactrim

DS, Doxy 2-400

mg a day, with

Voriconazole,

artemisinin.

But you need

to see a Lyme

literate

practitioner

because you

likely have

babesia and

bartonella

which requires

other meds.

Dr. Stricker

in CA is

excellent,

don't know

which part of

CA he's in but

he treats

Lyme/morgellons

patients. How

long have you

had this? If

more than a

year it will

take long term

treatment.

Aa

On Mar 19,

2012, at 8:31

PM, jessnyc

<helpnynow@...>

wrote:

Thanks,

Aandraya.

"Voricon.,

levaquin,

bactrim/ceftin

rotation."

Would that be

it? That's all

you needed to

get rid of

Morgellons?

Thanks.

On 3/19/2012

7:12 PM,

Aandraya

wrote:

100%. I

wear all my

clothes,

rarely clean

now because

I'm too tired

anyway... Now

I'm dealing

with other

symptoms.

Morgellons is

a subgroup of

Lyme, there

are sometimes

bugs involved,

sometimes

mold, or all

of the above.

You

definitely

have Lyme

disease and

have to treat

it to get your

immune system

back in

charge.

Aa

On Mar 19,

2012, at 7:49

PM, jessnyc

<helpnynow@...>

wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

March 22, 2012

Friggin' fantastic. From: "Aandraya" <aandraya@...>bird mites Sent: Thursday, March 22, 2012 11:19:40 AMSubject: Re: So the fibers survive coconut oil?

-May 23. Two friends here in Mpls. are seeing him and say he is a genious. One was already treated for 5 yrs by a prominent LLMD here. He improved but never fully recovered, now he does whatever Dr. J says and he is getting better. The other started with a local LLMD as well and later switched. A lot of LLMDs jump around with the meds and don't have an ordered program, he does. In many cases the babesia is not properly treated and full recovery doesn't happen. The largest organisms to the smallest and they overlap not start and stop individual coinfections. ILADS trained is a start but it sure doesn't guarantee An effective doctor.AandrayaOn Mar 22, 2012, at 11:50 AM, goldstein <Goldstein@...> wrote:

Yes, Lyme docs could be rated even though we are lucky to have even one locally, even if not the best. All have to be Ilads trained, right? I can't wait to hear what Dr. Jemsek says to do for you. Do you have an appointment already?Sent from my iPodOn Mar 22, 2012, at 7:31 AM, Aandraya <aandraya@...> wrote:

- I think it's more that your insurance company has been dictating what medications they pay for. I never would have been able to do the treatments I've done had I not had my insurance. They have covered 100% of my scripts. Some of my friends have to pick and choose which meds they use and try to get them in Canada when they're cheaper. I was also lucky to start with Dr. Schaller because he started me on an aggressive treatment when I was clueless about everything. A good doctor is key. My second doctor got me off track and now I've been back on track since October but lost ground for a good year. In May I'm going to DC to see Jemsek to do his program. With severe cases jumping around with meds doesn't work. It takes an organized program. Hindsight is 20/20.AandrayaOn Mar 21, 2012, at 11:52 PM, Goldstein@... wrote:

I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if

you

can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil?

Hi ,

Thank you for that information, the only thing that worries me if

that even after spending that money, you still have the fibers.

Could your doctor not be doing the right thing?

What did your IGenex test say?

Thank you,

Jess

On 3/21/2012 10:41 PM, Goldstein@... wrote:

Jess,

My doctor in CA charges about $450 for first

appointment and a half hour is $200. She will do phone

follow ups which are about every 3 months. IGeneX is

maybe 20 minutes away from my doctor so we just drove

right over there to get our blood drawn. If you have

the money maybe a doctor in California would work. I

don't know which LLMDs are the best... my LLMD works

with me. She is not intimidated by the idea of bird

mites one single bit. She has seen others who have had

bird mites.

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Wednesday, March 21, 2012 7:25:53 PM

Subject: Re: So the fibers

survive coconut oil?

Jess- No! God I hope not. You are probably in

early stage. $5-700 for first doctor visit, $200 for

igenix test. Follow up appt are between $2-300 and

are every 3-5 months, some will give phone appts.

Medication prices are all over the place. Do it

right the first time and you won't be in my place, I'm

unable to work and 2 yrs into this. If I had started

treatment when I just had the fibers it would be a

different story.

Aa

On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya, how much do you think I

should be spending just to get rid of this,

including doctors, testing and meds? Over

$20,000?

On 3/21/2012 7:54 PM, Aandraya wrote:

Jess-

Chicago 25 years, just moved to

Minneapolis a year ago due to this illness.

Had to stop working. Treat it now and

you'll be good to go.

Aa

On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...>

wrote:

No kidding, Aandraya, I'm in

Condesa! Few blocks from Roma, pretty

cool area, isn't it? Where do you live

now?

Jess

On 3/21/2012 7:39 PM, Aandraya wrote:

Jess-

Where in Mexico DF do you live?

I used to live in Colonia Roma.

Hope you're doing well.

Aa

On Mar 21, 2012, at 8:35 PM,

jessnyc <helpnynow@...>

wrote:

Thank you, , I

appreciate so much your

concern. Yes, everybody is

fine. Most of my family

lives a couple of hours away

from Mexico City and the

seismic area, so they didn't

feel anything. I live in

Mexico City and I definitely

felt everything, made me

dizzy! ...but nothing major

happened around me, just a

few buildings lost their

windows and stuff like that,

but no victims around my

area.

Thank you for thinking about

me

:-)

Jess

On 3/21/2012 7:29 PM, Goldstein@...

wrote:

Jess,

Did your family

come out okay after

that terrible

earthquake? I was

thinking about you and

your family... I know

no one was killed, but

so many lost homes.

Very horrible. So

sorry too.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Tuesday,

March 20, 2012 4:57:50

PM

Subject: Re:

So the

fibers survive coconut

oil?

Thank you, Aandraya.

Do you think I could

treat myself without

going to a doctor?

Like, getting the

Igenex testing, and

then getting the

medications you used?

How did you know when

to stop the treatment,

did you get tested

continuously? Do you

know for a fact that

you're fully recovered

and that you don't

have and left over

infection that could

begin growing slowly

again? I don't think I

could afford expensive

treatment right now,

but I might be able to

afford the Igenex

testing and the meds

alone, I just wonder

if that would be

enough.

I don't think I have

any neurological

symptoms, and the

fiber problem is not

as severe as it used

to be, although it is

still there, but

that's the only

symptom I have, the

fibers.

Thanks a lot for the

information.

Jess

On 3/20/2012 2:57 PM,

Aandraya wrote:

Jess- the

doctors treat

them for Lyme

and coinfections

because they all

have it. I

personally

believe that all

Lyme patients

who have

morgellons type

symptoms also

have severe

bartonella(passed

by ticks and

insects along

with Lyme

babesia)

Coinfections

are microbes

that are passed

from the same

tick or insect-

the most common

and debilitating

are bartonella-

bacterial, and

babesia-

protozoal,

sister to

malaria. I had

both. Lyme is

borrelia- a

spiral shaped

bacteria.

Aa

On Mar 20, 2012,

at 1:37 AM,

jessnyc <helpnynow@...>

wrote:

Thank you,

Aandraya.

Do you know

any more

people who've

been cured of

Morgellons?

What have

these doctors

done for them,

and do you

know how much

they charge?

Thanks,

Jess

On 3/20/2012

12:16 AM,

Aandraya

wrote:

You have

two of the

best LLMDs in

New York if

you can go

back, there's

some waiting

time to get in

but they are

the best-

Horowitz and

Cameron. I

know someone

who saw

Cameron and

she loves him.

He was the

president of

ILADS.

Aa

On Mar 19,

2012, at 11:57

PM, jessnyc

<helpnynow@...>

wrote:

Thank you,

. Yes, I

guess I could

do that, but

then there

would have to

be a way to

figure out my

progress. I'd

have to get a

test done

every so

often, and how

would I know

what doses to

take? I don't

want to do

something

wrong and make

these things

more powerful

or immune to

these

medications.

Somebody here

would have to

explain very

well the

process. If an

MD can

understand it,

so can we.

On 3/19/2012

10:54 PM, Goldstein@...

wrote:

There

must be

someone who

treats Lyme

disease there

in Mexico.

I'll see if

anyone I know

might know of

someone too.

But Jess you

could get

those drugs

over-the-counter.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers

survive

coconut oil?

It's been a

little over a

year, probably

a year and a

half that I've

had this.

There's been

months where

I've felt

almost symptom

free, but I

get

re-infested

when I go back

to places I

visited when I

first came

back from NYC

with the huge

infestation.

My mother's

house is one

of those

places, very

unfortunately.

Nobody in her

house has felt

anything at

all, it's

just me.

Thanks,

Jess

On 3/19/2012

10:47 PM, Goldstein@...

wrote:

Jess

lives in

Mexico. Do

you know of

anyone there?

From:

"Aandraya"

<aandraya@...>

bird mites

Sent: Monday,

March 19, 2012

7:27:44 PM

Subject: Re:

So the fibers

survive

coconut oil?

No, that

is one of many

combinations I

was treated

with. If you

haven't had it

that long you

could start

with Bactrim

DS, Doxy 2-400

mg a day, with

Voriconazole,

artemisinin.

But you need

to see a Lyme

literate

practitioner

because you

likely have

babesia and

bartonella

which requires

other meds.

Dr. Stricker

in CA is

excellent,

don't know

which part of

CA he's in but

he treats

Lyme/morgellons

patients. How

long have you

had this? If

more than a

year it will

take long term

treatment.

Aa

On Mar 19,

2012, at 8:31

PM, jessnyc

<helpnynow@...>

wrote:

Thanks,

Aandraya.

"Voricon.,

levaquin,

bactrim/ceftin

rotation."

Would that be

it? That's all

you needed to

get rid of

Morgellons?

Thanks.

On 3/19/2012

7:12 PM,

Aandraya

wrote:

100%. I

wear all my

clothes,

rarely clean

now because

I'm too tired

anyway... Now

I'm dealing

with other

symptoms.

Morgellons is

a subgroup of

Lyme, there

are sometimes

bugs involved,

sometimes

mold, or all

of the above.

You

definitely

have Lyme

disease and

have to treat

it to get your

immune system

back in

charge.

Aa

On Mar 19,

2012, at 7:49

PM, jessnyc

<helpnynow@...>

wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

March 22, 2012

Yes, looking forward to itOn Mar 22, 2012, at 1:33 PM, Goldstein@... wrote:

Friggin' fantastic. From: "Aandraya" <aandraya@...>bird mites Sent: Thursday, March 22, 2012 11:19:40 AMSubject: Re: So the fibers survive coconut oil?

-May 23. Two friends here in Mpls. are seeing him and say he is a genious. One was already treated for 5 yrs by a prominent LLMD here. He improved but never fully recovered, now he does whatever Dr. J says and he is getting better. The other started with a local LLMD as well and later switched. A lot of LLMDs jump around with the meds and don't have an ordered program, he does. In many cases the babesia is not properly treated and full recovery doesn't happen. The largest organisms to the smallest and they overlap not start and stop individual coinfections. ILADS trained is a start but it sure doesn't guarantee An effective doctor.AandrayaOn Mar 22, 2012, at 11:50 AM, goldstein <Goldstein@...> wrote:

Yes, Lyme docs could be rated even though we are lucky to have even one locally, even if not the best. All have to be Ilads trained, right? I can't wait to hear what Dr. Jemsek says to do for you. Do you have an appointment already?Sent from my iPodOn Mar 22, 2012, at 7:31 AM, Aandraya <aandraya@...> wrote:

- I think it's more that your insurance company has been dictating what medications they pay for. I never would have been able to do the treatments I've done had I not had my insurance. They have covered 100% of my scripts. Some of my friends have to pick and choose which meds they use and try to get them in Canada when they're cheaper. I was also lucky to start with Dr. Schaller because he started me on an aggressive treatment when I was clueless about everything. A good doctor is key. My second doctor got me off track and now I've been back on track since October but lost ground for a good year. In May I'm going to DC to see Jemsek to do his program. With severe cases jumping around with meds doesn't work. It takes an organized program. Hindsight is 20/20.AandrayaOn Mar 21, 2012, at 11:52 PM, Goldstein@... wrote:

I agree... My doc told me she could get me 80% of the way and she has done that. And more, but the Lyme is a ball buster to say the least and I have a complex case. I also believe by the time you are producing fibers and have Morgellons your case of Lyme is more complicated. Much much more. My doctor told me my situation is unique. Aandraya has probably had the best Lyme doctors and she is very brave. She has been through so much and I don't know if I am strong enough physically to go all the way, although I would like to, just don't know physically if I am able. I think Aa can go all the way and will be totally healed at one point. I'm a lot older and have had cancer 13 years ago... so much has been compromised. BUT (great emphasis) I KNOW that if you start the journey with treatment, you do kick back the infection and things improve. So even if

you

can't afford or don't want to do the antibiotics for years you will be helped by what you do. This is not to say it isn't very difficult, it is. I had to stop the abx for a while. Will resume tx soon. That is a fact.From: "jessnyc" <helpnynow@...>bird mites Sent: Wednesday, March 21, 2012 9:43:16 PMSubject: Re: So the fibers survive coconut oil?

Hi ,

Thank you for that information, the only thing that worries me if

that even after spending that money, you still have the fibers.

Could your doctor not be doing the right thing?

What did your IGenex test say?

Thank you,

Jess

On 3/21/2012 10:41 PM, Goldstein@... wrote:

Jess,

My doctor in CA charges about $450 for first

appointment and a half hour is $200. She will do phone

follow ups which are about every 3 months. IGeneX is

maybe 20 minutes away from my doctor so we just drove

right over there to get our blood drawn. If you have

the money maybe a doctor in California would work. I

don't know which LLMDs are the best... my LLMD works

with me. She is not intimidated by the idea of bird

mites one single bit. She has seen others who have had

bird mites.

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Wednesday, March 21, 2012 7:25:53 PM

Subject: Re: So the fibers

survive coconut oil?

Jess- No! God I hope not. You are probably in

early stage. $5-700 for first doctor visit, $200 for

igenix test. Follow up appt are between $2-300 and

are every 3-5 months, some will give phone appts.

Medication prices are all over the place. Do it

right the first time and you won't be in my place, I'm

unable to work and 2 yrs into this. If I had started

treatment when I just had the fibers it would be a

different story.

Aa

On Mar 21, 2012, at 8:59 PM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya, how much do you think I

should be spending just to get rid of this,

including doctors, testing and meds? Over

$20,000?

On 3/21/2012 7:54 PM, Aandraya wrote:

Jess-

Chicago 25 years, just moved to

Minneapolis a year ago due to this illness.

Had to stop working. Treat it now and

you'll be good to go.

Aa

On Mar 21, 2012, at 8:42 PM, jessnyc <helpnynow@...>

wrote:

No kidding, Aandraya, I'm in

Condesa! Few blocks from Roma, pretty

cool area, isn't it? Where do you live

now?

Jess

On 3/21/2012 7:39 PM, Aandraya wrote:

Jess-

Where in Mexico DF do you live?

I used to live in Colonia Roma.

Hope you're doing well.

Aa

On Mar 21, 2012, at 8:35 PM,

jessnyc <helpnynow@...>

wrote:

Thank you, , I

appreciate so much your

concern. Yes, everybody is

fine. Most of my family

lives a couple of hours away

from Mexico City and the

seismic area, so they didn't

feel anything. I live in

Mexico City and I definitely

felt everything, made me

dizzy! ...but nothing major

happened around me, just a

few buildings lost their

windows and stuff like that,

but no victims around my

area.

Thank you for thinking about

me

:-)

Jess

On 3/21/2012 7:29 PM, Goldstein@...

wrote:

Jess,

Did your family

come out okay after

that terrible

earthquake? I was

thinking about you and

your family... I know

no one was killed, but

so many lost homes.

Very horrible. So

sorry too.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Tuesday,

March 20, 2012 4:57:50

PM

Subject: Re:

So the

fibers survive coconut

oil?

Thank you, Aandraya.

Do you think I could

treat myself without

going to a doctor?

Like, getting the

Igenex testing, and

then getting the

medications you used?

How did you know when

to stop the treatment,

did you get tested

continuously? Do you

know for a fact that

you're fully recovered

and that you don't

have and left over

infection that could

begin growing slowly

again? I don't think I

could afford expensive

treatment right now,

but I might be able to

afford the Igenex

testing and the meds

alone, I just wonder

if that would be

enough.

I don't think I have

any neurological

symptoms, and the

fiber problem is not

as severe as it used

to be, although it is

still there, but

that's the only

symptom I have, the

fibers.

Thanks a lot for the

information.

Jess

On 3/20/2012 2:57 PM,

Aandraya wrote:

Jess- the

doctors treat

them for Lyme

and coinfections

because they all

have it. I

personally

believe that all

Lyme patients

who have

morgellons type

symptoms also

have severe

bartonella(passed

by ticks and

insects along

with Lyme

babesia)

Coinfections

are microbes

that are passed

from the same

tick or insect-

the most common

and debilitating

are bartonella-

bacterial, and

babesia-

protozoal,

sister to

malaria. I had

both. Lyme is

borrelia- a

spiral shaped

bacteria.

Aa

On Mar 20, 2012,

at 1:37 AM,

jessnyc <helpnynow@...>

wrote:

Thank you,

Aandraya.

Do you know

any more

people who've

been cured of

Morgellons?

What have

these doctors

done for them,

and do you

know how much

they charge?

Thanks,

Jess

On 3/20/2012

12:16 AM,

Aandraya

wrote:

You have

two of the

best LLMDs in

New York if

you can go

back, there's

some waiting

time to get in

but they are

the best-

Horowitz and

Cameron. I

know someone

who saw

Cameron and

she loves him.

He was the

president of

ILADS.

Aa

On Mar 19,

2012, at 11:57

PM, jessnyc

<helpnynow@...>

wrote:

Thank you,

. Yes, I

guess I could

do that, but

then there

would have to

be a way to

figure out my

progress. I'd

have to get a

test done

every so

often, and how

would I know

what doses to

take? I don't

want to do

something

wrong and make

these things

more powerful

or immune to

these

medications.

Somebody here

would have to

explain very

well the

process. If an

MD can

understand it,

so can we.

On 3/19/2012

10:54 PM, Goldstein@...

wrote:

There

must be

someone who

treats Lyme

disease there

in Mexico.

I'll see if

anyone I know

might know of

someone too.

But Jess you

could get

those drugs

over-the-counter.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers

survive

coconut oil?

It's been a

little over a

year, probably

a year and a

half that I've

had this.

There's been

months where

I've felt

almost symptom

free, but I

get

re-infested

when I go back

to places I

visited when I

first came

back from NYC

with the huge

infestation.

My mother's

house is one

of those

places, very

unfortunately.

Nobody in her

house has felt

anything at

all, it's

just me.

Thanks,

Jess

On 3/19/2012

10:47 PM, Goldstein@...

wrote:

Jess

lives in

Mexico. Do

you know of

anyone there?

From:

"Aandraya"

<aandraya@...>

bird mites

Sent: Monday,

March 19, 2012

7:27:44 PM

Subject: Re:

So the fibers

survive

coconut oil?

No, that

is one of many

combinations I

was treated

with. If you

haven't had it

that long you

could start

with Bactrim

DS, Doxy 2-400

mg a day, with

Voriconazole,

artemisinin.

But you need

to see a Lyme

literate

practitioner

because you

likely have

babesia and

bartonella

which requires

other meds.

Dr. Stricker

in CA is

excellent,

don't know

which part of

CA he's in but

he treats

Lyme/morgellons

patients. How

long have you

had this? If

more than a

year it will

take long term

treatment.

Aa

On Mar 19,

2012, at 8:31

PM, jessnyc

<helpnynow@...>

wrote:

Thanks,

Aandraya.

"Voricon.,

levaquin,

bactrim/ceftin

rotation."

Would that be

it? That's all

you needed to

get rid of

Morgellons?

Thanks.

On 3/19/2012

7:12 PM,

Aandraya

wrote:

100%. I

wear all my

clothes,

rarely clean

now because

I'm too tired

anyway... Now

I'm dealing

with other

symptoms.

Morgellons is

a subgroup of

Lyme, there

are sometimes

bugs involved,

sometimes

mold, or all

of the above.

You

definitely

have Lyme

disease and

have to treat

it to get your

immune system

back in

charge.

Aa

On Mar 19,

2012, at 7:49

PM, jessnyc

<helpnynow@...>

wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

March 22, 2012

Well, the herb person just recommended the same treatments I had heard online back then. Use a loofa, epsome salts, etc. I think the real cause is an infection that is moving through the population. When it gets larger than the immune system can handle, infestations begin. Lyme or other, something is infecting people. From: miteymaid <miteymaid@...> bird mites Sent: Wednesday, March 21, 2012

7:47 PM Subject: Re: So the fibers survive coconut oil?

I wonder what the herb person recommended for mites and if it worked. I know Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about mite infestations or if people were coming to him with this problem but although he is Lyme literate he didn't seem to know what I was talking about and gave me some pills that are supposed to make me less sensitive. So far I see no difference. When I go back again I'll try asking more about Lyme.I wondered if there was a way of getting all those together with this problem in NYC to demand some action but I wouldn't know where to begin. Inasked several doctors I'd seen previously if they'd had people come with similar stories and I had at least one person for each doctor. The entomologist who came by without any equipment, no scope, nothing, said he had someone tell him mites were coming out of her cavities, at least that's what I think he said and I didn't know how tonanswer him. I gave examples of

what I'd observed but he dismissed everything cause I had no proof.

E

> > >

> > > Hi Jess,

> > >

> > > It is really good to hear from you. I've thought about you often.

> > > I'm in the same boat with the similar questions about fibers. I

> > > wonder if there is any way to get rid of the fibers permanently. I

> > > feel them floating and landing on my hands at times. I don't know of

> > > anyone who has had fibers that actually got rid of them. Many on this

> > > site did not have fibers, but had mites only. Their exposure to mites

> > > did not bring fibers. Mites for sure can be killed, although with

> > > tremendous difficulty. I don't know what makes the fibers, but they

> > > are part of what defines Morgellons. So many people who had mites end

> > > up with the fibers. Some people think they are a by-product of a mite

> > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > member of the group that believes they are living, although don't have

> > > any idea how that could be. Maybe investigators, although very

> > > controversial, believe they are nano products, and I think they maybe

> > > are. That's just an opinion... I'm not the one to come up with this

> > > as there are plenty of knowledgable people who have said this... Dr.

> > > Hildegard Staninger for one. When I had a microscope and was

> > > collecting fibers and looking at them under the digital scope I found

> > > some interesting things. I would put the fibers on slides, cover them

> > > in emersion oil and a thin glass sheet over the top and look at the

> > > fibers over a period of months. I stored them in a special box

> > > designed for slides. The fibers themselves changed over time from

> > > month to month (some did, some did not). Some developed what looked

> > > like a pin head. I never saw any of them move.

> > >

> > > I really wish I had a microscope again, but I haven't found one that

> > > hooks up with software for an iMac which I have now.

> > >

> > > I think there are things that disrupt the energy of the fibers.

> > > Scientists may have found a way to create life and I think the fibers

> > > are self creating... in the human body they have what they need to

> > > reproduce successfully. They also seem to reproduce in homes. Some

> > > may be programmed to carry diseases.

> > >

> > > I did not find coconut oil helpful on the body. When I put it on my

> > > hands and feet it seemed to dry my skin out further so I stopped using

> > > it. So no, it isn't just you Jess. It never was just you.

> > >

> > > ----------------------------------------------------------

> > > *From: *"jessnyc" <helpnynow@>

> > > **"Birdmites.org Website" <bird mites >

> > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > *Subject: * So the fibers survive coconut oil?

> > >

> > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > some and had a small jar next to me at all times.

> > >

> > > When the oil was in liquid form, I noticed that the fibers somehow

> > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > fibers. After a while I saw they all stuck together, and eventually I

> > > began seeing more and more of them.

> > >

> > > I wonder if they reproduced in the oil and assembled themselves

> > > together? That's what it looked like to me, my little jar is full of

> > > some big and some tiny fibers, they're mostly blue red or black, some

> > > are also white and hard to see.

> > >

> > > I guess this shows they don't die with coconut oil, they thrive and

> > > reproduce in it.

> > >

> > > Jesus, is there anything remedy that actually kills them? I haven't

> > > found anything that would really kill them.

> > >

> > > Has anyone had any success with coconut oil? Or is it just me?

> > >

> > > Jess.

> > >

> > > ------------------------------------

> > >

March 23, 2012

I used many herbs. The most helpful were these 2 cocktails. I also too derma

nerve, and kidney rejuvenator. All of these cocktails were designed for animal

care, however the viparabac is for humans. I have used it with great results on

my dog after coyote attack to.

http://wolfcreekranch.net/viparabac_plus.html

http://wolfcreekranch1.tripod.com/adizone.html

> > > >

> > > > Hi Jess,

> > > >

> > > > It is really good to hear from you. I've thought about you often.

> > > > I'm in the same boat with the similar questions about fibers. I

> > > > wonder if there is any way to get rid of the fibers permanently. I

> > > > feel them floating and landing on my hands at times. I don't know of

> > > > anyone who has had fibers that actually got rid of them. Many on this

> > > > site did not have fibers, but had mites only. Their exposure to mites

> > > > did not bring fibers. Mites for sure can be killed, although with

> > > > tremendous difficulty. I don't know what makes the fibers, but they

> > > > are part of what defines Morgellons. So many people who had mites end

> > > > up with the fibers. Some people think they are a by-product of a mite

> > > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > > member of the group that believes they are living, although don't have

> > > > any idea how that could be. Maybe investigators, although very

> > > > controversial, believe they are nano products, and I think they maybe

> > > > are. That's just an opinion... I'm not the one to come up with this

> > > > as there are plenty of knowledgable people who have said this... Dr.

> > > > Hildegard Staninger for one. When I had a microscope and was

> > > > collecting fibers and looking at them under the digital scope I found

> > > > some interesting things. I would put the fibers on slides, cover them

> > > > in emersion oil and a thin glass sheet over the top and look at the

> > > > fibers over a period of months. I stored them in a special box

> > > > designed for slides. The fibers themselves changed over time from

> > > > month to month (some did, some did not). Some developed what looked

> > > > like a pin head. I never saw any of them move.

> > > >

> > > > I really wish I had a microscope again, but I haven't found one that

> > > > hooks up with software for an iMac which I have now.

> > > >

> > > > I think there are things that disrupt the energy of the fibers.

> > > > Scientists may have found a way to create life and I think the fibers

> > > > are self creating... in the human body they have what they need to

> > > > reproduce successfully. They also seem to reproduce in homes. Some

> > > > may be programmed to carry diseases.

> > > >

> > > > I did not find coconut oil helpful on the body. When I put it on my

> > > > hands and feet it seemed to dry my skin out further so I stopped using

> > > > it. So no, it isn't just you Jess. It never was just you.

> > > >

> > > > ----------------------------------------------------------

> > > > *From: * " jessnyc " <helpnynow@>

> > > > ** " Birdmites.org Website " <bird mites >

> > > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > > *Subject: * So the fibers survive coconut oil?

> > > >

> > > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > > some and had a small jar next to me at all times.

> > > >

> > > > When the oil was in liquid form, I noticed that the fibers somehow

> > > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > > fibers. After a while I saw they all stuck together, and eventually I

> > > > began seeing more and more of them.

> > > >

> > > > I wonder if they reproduced in the oil and assembled themselves

> > > > together? That's what it looked like to me, my little jar is full of

> > > > some big and some tiny fibers, they're mostly blue red or black, some

> > > > are also white and hard to see.

> > > >

> > > > I guess this shows they don't die with coconut oil, they thrive and

> > > > reproduce in it.

> > > >

> > > > Jesus, is there anything remedy that actually kills them? I haven't

> > > > found anything that would really kill them.

> > > >

> > > > Has anyone had any success with coconut oil? Or is it just me?

> > > >

> > > > Jess.

> > > >

> > > > ------------------------------------

> > > >

March 26, 2012

....and knowing that our hair and skin and bones containing big amounts of collagen, this could just be a perfect cycle, or

biologically, a perfect symbiosis !

Von: Aggi Assmann <aggi_assmann@...>An: "bird mites " <bird mites > Gesendet: 15:20 Mittwoch, 21.MÃ¤rz 2012Betreff: Re: So the fibers survive coconut oil?

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.MÃ¤rz 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year, probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to

places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got

them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends, I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in

my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you

again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50

PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus, is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success

with coconut oil? Or is it just me?Jess.------------------------------------

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