Jump to content
RemedySpot.com

Re: So the fibers survive coconut oil?

Rate this topic


Guest guest

Recommended Posts

Guest guest

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

 

100%. I wear all my clothes, rarely clean now because

I'm too tired anyway... Now I'm dealing with other

symptoms.  Morgellons is a subgroup of Lyme, there are

sometimes bugs involved, sometimes mold, or all of the

above.  You definitely have Lyme disease and have to treat

it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

 

Aandraya, would you mind telling me what

medications and in what doses did you take for the

Morgellons to go away completely?

So you no longer can get re-infested, right? Even if

you go into infested areas or wear infested

clothing? Are you totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

 

Just to add to what said, I found no

quick fix for the morgellons stuff.  It took a

solid year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

 

Jess,

I have a FAR infrared "Rainbow" which

I use often.  It does not seem to do

much to clear out the fibers.  Although

I have rarely used in on my head but

mainly use it on feet, legs, abdomen and

upper torso.  It does warm the body in a

way I've never experienced before...

raises the body temperature.  After

being under the Rainbow for 45 min to 2

hours I feel a laziness and lack of

clarity... almost like having had a few

glasses of good wine... 

Read the new post from Aandraya.  She

knows a lot about this and has gotten

rid of the fibers.  She has done far

more medications for Lyme and

co-infections than anyone I know.  She

also knows more about Lyme and

co-infections than anyone I know.  I'm

going to defer to her because she

obviously knows more and done more...

I'm in the same boat as you.  I'm in the

learning curve on this... so good to

hear from you!

What is weird is that I do not get

these things crawling on the face any

more.  I have nothing that feels like a

mite crawling in nose, eyes, eyebrows,

hair, ears.  I get what feels like a

fiber falling on an eyelash very

occasionally, I get symptoms of eyes

blurry, watery, when I don't take the

combination of Doxy and Rifampin.  The

combination keeps the eye symptoms in

check, but so far has not solved the

problem and I'm about 4 months into

taking the combination. The greasy waxy

stuff I get on my face, neck and head

comes and goes in intensity.  I have

stopped gettring the little papules and

pimples that I had been getting.  

What I'm dealing with now is

intestinal problems from the injections

I've been getting and am waiting for a

message from my LLMD about whether to

stop meds until that gets cleared up.  I

suspect I might have the C. Diff...

Dr. Staninger has a whole protocol

and remember Zoe?  She and her husband

did the whole protocol from Dr. S and

were not helped by it after spending

$$$$$$.  She did not get help until she

started antibiotics.  If you don't have

her protocol I'll post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012

5:15:42 PM

Subject: Re: So

the fibers survive coconut oil?

Hi ,

Thank you for your response. It's good

to hear from you too, and I've thought

about you too! Your experience mirrors

mine pretty accurately. I don't know

whether the fibers are "alive" in the

sense we know, but to me they seem

programmed somehow. I also see them

floating around, and I definitely got

them from mites. When I got rid of the

mites completely, the fibers were

already in me and have never left me. I

was able to reduce the amounts I used to

have by cleaning very often and getting

rid of things, but I keep getting

re-infested.

One thing I've noticed is that they are

programmed to infest ANYTHING that I

come in contact with. That includes

people, places and food. When I was at

my worst, I was afraid of getting close

to people because friends/acquaintances

would begin scratching their hair, nose

and face (the areas where I feel the

most crawling) and I could immediately

sense the fibers were leaving my body

because I had goose pumps whenever I

approached someone. It was weird, the

goose pumps would signal something was

going on and immediately the person

started scratching. When I go to visit

friends, I can see the fibers begin to

float around in their homes, and when I

return to that particular place, I start

to get the crawlings in my scalp, nose

and face. It's happened for so long that

I have definitely seen a clear pattern.

So these researchers may be right, these

must be nano products. How could anyone

explain this pattern?

I too, have found my ears plugs full of

fibers. What I've done is soak them in

hot water with borax and epsom salts.

When I take out the plugs after several

hours of soaking, I find hundreds of

fibers in the water. I look with a lamp

and can clearly see there's lots of

them. I also use a lint roll and I've

used it all over my head, face,

clothing, etc. I've found the stuff they

talk about on TV: Black, red and blue

fibers. They're bright blue and bright

red, and some are just white or clear,

and very long. Others are tiny.

What a mystery, but they're truly a

pain. I wonder if it's true that the

only remedy is what Dr. Staninger says?

Far infrared therapy? Has anyone tried

it?

Thank you , good to hear from you

again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

 

Hi Jess,

It is really good to hear

from you.  I've thought about

you often.  I'm in the same boat

with the similar questions about

fibers.  I wonder if there is

any way to get rid of the fibers

permanently.  I feel them

floating and landing on my hands

at times.  I don't know of

anyone who has had fibers that

actually got rid of them.  Many

on this site did not have

fibers, but had mites only.

 Their exposure to mites did not

bring fibers.  Mites for sure

can be killed, although with

tremendous difficulty.  I don't

know what makes the fibers, but

they are part of what defines

Morgellons.  So many people who

had mites end up with the

fibers.  Some people think they

are a by-product of a mite or

parasite, or bacteria and some

ppl believe they are alive.  I'm

a member of the group that

believes they are living,

although don't have any idea how

that could be.  Maybe

investigators, although very

controversial, believe they are

nano products, and I think they

maybe are.  That's just an

opinion... I'm not the one to

come up with this as there are

plenty of knowledgable people

who have said this... Dr.

Hildegard Staninger for one.

 When I had a microscope and was

collecting fibers and looking at

them under the digital scope I

found some interesting things.

 I would put the fibers on

slides, cover them in emersion

oil and a thin glass sheet over

the top and look at the fibers

over a period of months.  I

stored them in a special box

designed for slides.  The fibers

themselves changed over time

from month to month (some did,

some did not).  Some developed

what looked like a pin head.  I

never saw any of them move.  

I really wish I had a

microscope again, but I haven't

found one that hooks up with

software for an iMac which I

have now.  

I think there are things that

disrupt the energy of the

fibers.  Scientists may have

found a way to create life and I

think the fibers are self

creating... in the human body

they have what they need to

reproduce successfully.  They

also seem to reproduce in homes.

 Some may be programmed to carry

diseases.  

I did not find coconut oil

helpful on the body.  When I put

it on my hands and feet it

seemed to dry my skin out

further so I stopped using it.

 So no, it isn't just you Jess.

 It never was just you.  

From: "jessnyc"

<helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday, March 19,

2012 3:29:50 PM

Subject:

So the fibers survive coconut

oil?

I had thought that coconut oil

was a remedy for these fibers. I

bought

some and had a small jar next to

me at all times.

When the oil was in liquid form,

I noticed that the fibers

somehow

managed to get in the oil, my

little jar had suddenly like 10

or more

fibers. After a while I saw they

all stuck together, and

eventually I

began seeing more and more of

them.

I wonder if they reproduced in

the oil and assembled themselves

together? That's what it looked

like to me, my little jar is

full of

some big and some tiny fibers,

they're mostly blue red or

black, some

are also white and hard to see.

I guess this shows they don't

die with coconut oil, they

thrive and

reproduce in it.

Jesus, is there anything remedy

that actually kills them? I

haven't

found anything that would really

kill them.

Has anyone had any success with

coconut oil? Or is it just me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.AaOn Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because

I'm too tired anyway... Now I'm dealing with other

symptoms. Morgellons is a subgroup of Lyme, there are

sometimes bugs involved, sometimes mold, or all of the

above. You definitely have Lyme disease and have to treat

it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

Aandraya, would you mind telling me what

medications and in what doses did you take for the

Morgellons to go away completely?

So you no longer can get re-infested, right? Even if

you go into infested areas or wear infested

clothing? Are you totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no

quick fix for the morgellons stuff. It took a

solid year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a FAR infrared "Rainbow" which

I use often. It does not seem to do

much to clear out the fibers. Although

I have rarely used in on my head but

mainly use it on feet, legs, abdomen and

upper torso. It does warm the body in a

way I've never experienced before...

raises the body temperature. After

being under the Rainbow for 45 min to 2

hours I feel a laziness and lack of

clarity... almost like having had a few

glasses of good wine...

Read the new post from Aandraya. She

knows a lot about this and has gotten

rid of the fibers. She has done far

more medications for Lyme and

co-infections than anyone I know. She

also knows more about Lyme and

co-infections than anyone I know. I'm

going to defer to her because she

obviously knows more and done more...

I'm in the same boat as you. I'm in the

learning curve on this... so good to

hear from you!

What is weird is that I do not get

these things crawling on the face any

more. I have nothing that feels like a

mite crawling in nose, eyes, eyebrows,

hair, ears. I get what feels like a

fiber falling on an eyelash very

occasionally, I get symptoms of eyes

blurry, watery, when I don't take the

combination of Doxy and Rifampin. The

combination keeps the eye symptoms in

check, but so far has not solved the

problem and I'm about 4 months into

taking the combination. The greasy waxy

stuff I get on my face, neck and head

comes and goes in intensity. I have

stopped gettring the little papules and

pimples that I had been getting.

What I'm dealing with now is

intestinal problems from the injections

I've been getting and am waiting for a

message from my LLMD about whether to

stop meds until that gets cleared up. I

suspect I might have the C. Diff...

Dr. Staninger has a whole protocol

and remember Zoe? She and her husband

did the whole protocol from Dr. S and

were not helped by it after spending

$$$$$$. She did not get help until she

started antibiotics. If you don't have

her protocol I'll post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012

5:15:42 PM

Subject: Re: So

the fibers survive coconut oil?

Hi ,

Thank you for your response. It's good

to hear from you too, and I've thought

about you too! Your experience mirrors

mine pretty accurately. I don't know

whether the fibers are "alive" in the

sense we know, but to me they seem

programmed somehow. I also see them

floating around, and I definitely got

them from mites. When I got rid of the

mites completely, the fibers were

already in me and have never left me. I

was able to reduce the amounts I used to

have by cleaning very often and getting

rid of things, but I keep getting

re-infested.

One thing I've noticed is that they are

programmed to infest ANYTHING that I

come in contact with. That includes

people, places and food. When I was at

my worst, I was afraid of getting close

to people because friends/acquaintances

would begin scratching their hair, nose

and face (the areas where I feel the

most crawling) and I could immediately

sense the fibers were leaving my body

because I had goose pumps whenever I

approached someone. It was weird, the

goose pumps would signal something was

going on and immediately the person

started scratching. When I go to visit

friends, I can see the fibers begin to

float around in their homes, and when I

return to that particular place, I start

to get the crawlings in my scalp, nose

and face. It's happened for so long that

I have definitely seen a clear pattern.

So these researchers may be right, these

must be nano products. How could anyone

explain this pattern?

I too, have found my ears plugs full of

fibers. What I've done is soak them in

hot water with borax and epsom salts.

When I take out the plugs after several

hours of soaking, I find hundreds of

fibers in the water. I look with a lamp

and can clearly see there's lots of

them. I also use a lint roll and I've

used it all over my head, face,

clothing, etc. I've found the stuff they

talk about on TV: Black, red and blue

fibers. They're bright blue and bright

red, and some are just white or clear,

and very long. Others are tiny.

What a mystery, but they're truly a

pain. I wonder if it's true that the

only remedy is what Dr. Staninger says?

Far infrared therapy? Has anyone tried

it?

Thank you , good to hear from you

again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

Hi Jess,

It is really good to hear

from you. I've thought about

you often. I'm in the same boat

with the similar questions about

fibers. I wonder if there is

any way to get rid of the fibers

permanently. I feel them

floating and landing on my hands

at times. I don't know of

anyone who has had fibers that

actually got rid of them. Many

on this site did not have

fibers, but had mites only.

Their exposure to mites did not

bring fibers. Mites for sure

can be killed, although with

tremendous difficulty. I don't

know what makes the fibers, but

they are part of what defines

Morgellons. So many people who

had mites end up with the

fibers. Some people think they

are a by-product of a mite or

parasite, or bacteria and some

ppl believe they are alive. I'm

a member of the group that

believes they are living,

although don't have any idea how

that could be. Maybe

investigators, although very

controversial, believe they are

nano products, and I think they

maybe are. That's just an

opinion... I'm not the one to

come up with this as there are

plenty of knowledgable people

who have said this... Dr.

Hildegard Staninger for one.

When I had a microscope and was

collecting fibers and looking at

them under the digital scope I

found some interesting things.

I would put the fibers on

slides, cover them in emersion

oil and a thin glass sheet over

the top and look at the fibers

over a period of months. I

stored them in a special box

designed for slides. The fibers

themselves changed over time

from month to month (some did,

some did not). Some developed

what looked like a pin head. I

never saw any of them move.

I really wish I had a

microscope again, but I haven't

found one that hooks up with

software for an iMac which I

have now.

I think there are things that

disrupt the energy of the

fibers. Scientists may have

found a way to create life and I

think the fibers are self

creating... in the human body

they have what they need to

reproduce successfully. They

also seem to reproduce in homes.

Some may be programmed to carry

diseases.

I did not find coconut oil

helpful on the body. When I put

it on my hands and feet it

seemed to dry my skin out

further so I stopped using it.

So no, it isn't just you Jess.

It never was just you.

From: "jessnyc"

<helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday, March 19,

2012 3:29:50 PM

Subject:

So the fibers survive coconut

oil?

I had thought that coconut oil

was a remedy for these fibers. I

bought

some and had a small jar next to

me at all times.

When the oil was in liquid form,

I noticed that the fibers

somehow

managed to get in the oil, my

little jar had suddenly like 10

or more

fibers. After a while I saw they

all stuck together, and

eventually I

began seeing more and more of

them.

I wonder if they reproduced in

the oil and assembled themselves

together? That's what it looked

like to me, my little jar is

full of

some big and some tiny fibers,

they're mostly blue red or

black, some

are also white and hard to see.

I guess this shows they don't

die with coconut oil, they

thrive and

reproduce in it.

Jesus, is there anything remedy

that actually kills them? I

haven't

found anything that would really

kill them.

Has anyone had any success with

coconut oil? Or is it just me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

Jess lives in Mexico. Do you know of anyone there?From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.AaOn Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because

I'm too tired anyway... Now I'm dealing with other

symptoms. Morgellons is a subgroup of Lyme, there are

sometimes bugs involved, sometimes mold, or all of the

above. You definitely have Lyme disease and have to treat

it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

Aandraya, would you mind telling me what

medications and in what doses did you take for the

Morgellons to go away completely?

So you no longer can get re-infested, right? Even if

you go into infested areas or wear infested

clothing? Are you totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no

quick fix for the morgellons stuff. It took a

solid year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a FAR infrared "Rainbow" which

I use often. It does not seem to do

much to clear out the fibers. Although

I have rarely used in on my head but

mainly use it on feet, legs, abdomen and

upper torso. It does warm the body in a

way I've never experienced before...

raises the body temperature. After

being under the Rainbow for 45 min to 2

hours I feel a laziness and lack of

clarity... almost like having had a few

glasses of good wine...

Read the new post from Aandraya. She

knows a lot about this and has gotten

rid of the fibers. She has done far

more medications for Lyme and

co-infections than anyone I know. She

also knows more about Lyme and

co-infections than anyone I know. I'm

going to defer to her because she

obviously knows more and done more...

I'm in the same boat as you. I'm in the

learning curve on this... so good to

hear from you!

What is weird is that I do not get

these things crawling on the face any

more. I have nothing that feels like a

mite crawling in nose, eyes, eyebrows,

hair, ears. I get what feels like a

fiber falling on an eyelash very

occasionally, I get symptoms of eyes

blurry, watery, when I don't take the

combination of Doxy and Rifampin. The

combination keeps the eye symptoms in

check, but so far has not solved the

problem and I'm about 4 months into

taking the combination. The greasy waxy

stuff I get on my face, neck and head

comes and goes in intensity. I have

stopped gettring the little papules and

pimples that I had been getting.

What I'm dealing with now is

intestinal problems from the injections

I've been getting and am waiting for a

message from my LLMD about whether to

stop meds until that gets cleared up. I

suspect I might have the C. Diff...

Dr. Staninger has a whole protocol

and remember Zoe? She and her husband

did the whole protocol from Dr. S and

were not helped by it after spending

$$$$$$. She did not get help until she

started antibiotics. If you don't have

her protocol I'll post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012

5:15:42 PM

Subject: Re: So

the fibers survive coconut oil?

Hi ,

Thank you for your response. It's good

to hear from you too, and I've thought

about you too! Your experience mirrors

mine pretty accurately. I don't know

whether the fibers are "alive" in the

sense we know, but to me they seem

programmed somehow. I also see them

floating around, and I definitely got

them from mites. When I got rid of the

mites completely, the fibers were

already in me and have never left me. I

was able to reduce the amounts I used to

have by cleaning very often and getting

rid of things, but I keep getting

re-infested.

One thing I've noticed is that they are

programmed to infest ANYTHING that I

come in contact with. That includes

people, places and food. When I was at

my worst, I was afraid of getting close

to people because friends/acquaintances

would begin scratching their hair, nose

and face (the areas where I feel the

most crawling) and I could immediately

sense the fibers were leaving my body

because I had goose pumps whenever I

approached someone. It was weird, the

goose pumps would signal something was

going on and immediately the person

started scratching. When I go to visit

friends, I can see the fibers begin to

float around in their homes, and when I

return to that particular place, I start

to get the crawlings in my scalp, nose

and face. It's happened for so long that

I have definitely seen a clear pattern.

So these researchers may be right, these

must be nano products. How could anyone

explain this pattern?

I too, have found my ears plugs full of

fibers. What I've done is soak them in

hot water with borax and epsom salts.

When I take out the plugs after several

hours of soaking, I find hundreds of

fibers in the water. I look with a lamp

and can clearly see there's lots of

them. I also use a lint roll and I've

used it all over my head, face,

clothing, etc. I've found the stuff they

talk about on TV: Black, red and blue

fibers. They're bright blue and bright

red, and some are just white or clear,

and very long. Others are tiny.

What a mystery, but they're truly a

pain. I wonder if it's true that the

only remedy is what Dr. Staninger says?

Far infrared therapy? Has anyone tried

it?

Thank you , good to hear from you

again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

Hi Jess,

It is really good to hear

from you. I've thought about

you often. I'm in the same boat

with the similar questions about

fibers. I wonder if there is

any way to get rid of the fibers

permanently. I feel them

floating and landing on my hands

at times. I don't know of

anyone who has had fibers that

actually got rid of them. Many

on this site did not have

fibers, but had mites only.

Their exposure to mites did not

bring fibers. Mites for sure

can be killed, although with

tremendous difficulty. I don't

know what makes the fibers, but

they are part of what defines

Morgellons. So many people who

had mites end up with the

fibers. Some people think they

are a by-product of a mite or

parasite, or bacteria and some

ppl believe they are alive. I'm

a member of the group that

believes they are living,

although don't have any idea how

that could be. Maybe

investigators, although very

controversial, believe they are

nano products, and I think they

maybe are. That's just an

opinion... I'm not the one to

come up with this as there are

plenty of knowledgable people

who have said this... Dr.

Hildegard Staninger for one.

When I had a microscope and was

collecting fibers and looking at

them under the digital scope I

found some interesting things.

I would put the fibers on

slides, cover them in emersion

oil and a thin glass sheet over

the top and look at the fibers

over a period of months. I

stored them in a special box

designed for slides. The fibers

themselves changed over time

from month to month (some did,

some did not). Some developed

what looked like a pin head. I

never saw any of them move.

I really wish I had a

microscope again, but I haven't

found one that hooks up with

software for an iMac which I

have now.

I think there are things that

disrupt the energy of the

fibers. Scientists may have

found a way to create life and I

think the fibers are self

creating... in the human body

they have what they need to

reproduce successfully. They

also seem to reproduce in homes.

Some may be programmed to carry

diseases.

I did not find coconut oil

helpful on the body. When I put

it on my hands and feet it

seemed to dry my skin out

further so I stopped using it.

So no, it isn't just you Jess.

It never was just you.

From: "jessnyc"

<helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday, March 19,

2012 3:29:50 PM

Subject:

So the fibers survive coconut

oil?

I had thought that coconut oil

was a remedy for these fibers. I

bought

some and had a small jar next to

me at all times.

When the oil was in liquid form,

I noticed that the fibers

somehow

managed to get in the oil, my

little jar had suddenly like 10

or more

fibers. After a while I saw they

all stuck together, and

eventually I

began seeing more and more of

them.

I wonder if they reproduced in

the oil and assembled themselves

together? That's what it looked

like to me, my little jar is

full of

some big and some tiny fibers,

they're mostly blue red or

black, some

are also white and hard to see.

I guess this shows they don't

die with coconut oil, they

thrive and

reproduce in it.

Jesus, is there anything remedy

that actually kills them? I

haven't

found anything that would really

kill them.

Has anyone had any success with

coconut oil? Or is it just me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

It's been a little over a year, probably a year and a half that I've

had this. There's been months where I've felt almost symptom free,

but I get re-infested when I go back to places I visited when I

first came back from NYC with the huge infestation. My mother's

house is one of those places, very unfortunately. Nobody in her

house has felt anything at all, it's just  me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@... wrote:

 

Jess lives in Mexico.  Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012 7:27:44 PM

Subject: Re: So the fibers survive

coconut oil?

No, that is one of many combinations I was treated

with.  If you haven't had it that long you could start

with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole,

artemisinin.  But you need to see a Lyme literate

practitioner because you likely have babesia and

bartonella which requires other meds.  Dr. Stricker in

CA is excellent, don't know which part of CA he's in but

he treats Lyme/morgellons patients.  How long have you

had this?  If more than a year it will take long term

treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...>

wrote:

 

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid

of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

 

100%. I wear all my clothes, rarely clean

now because I'm too tired anyway... Now I'm

dealing with other symptoms.  Morgellons is a

subgroup of Lyme, there are sometimes bugs

involved, sometimes mold, or all of the above.

 You definitely have Lyme disease and have to

treat it to get your immune system back in

charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

 

Aandraya, would you mind telling me

what medications and in what doses did

you take for the Morgellons to go away

completely?

So you no longer can get re-infested,

right? Even if you go into infested

areas or wear infested clothing? Are you

totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

 

Just to add to what said, I

found no quick fix for the

morgellons stuff.  It took a solid

year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

 

Jess,

I have a FAR infrared

"Rainbow" which I use often.

 It does not seem to do much

to clear out the fibers.

 Although I have rarely used

in on my head but mainly use

it on feet, legs, abdomen

and upper torso.  It does

warm the body in a way I've

never experienced before...

raises the body temperature.

 After being under the

Rainbow for 45 min to 2

hours I feel a laziness and

lack of clarity... almost

like having had a few

glasses of good wine... 

Read the new post from

Aandraya.  She knows a lot

about this and has gotten

rid of the fibers.  She has

done far more medications

for Lyme and co-infections

than anyone I know.  She

also knows more about Lyme

and co-infections than

anyone I know.  I'm going to

defer to her because she

obviously knows more and

done more... I'm in the same

boat as you.  I'm in the

learning curve on this... so

good to hear from you!

What is weird is that I

do not get these things

crawling on the face any

more.  I have nothing that

feels like a mite crawling

in nose, eyes, eyebrows,

hair, ears.  I get what

feels like a fiber falling

on an eyelash very

occasionally, I get symptoms

of eyes blurry, watery, when

I don't take the combination

of Doxy and Rifampin.  The

combination keeps the eye

symptoms in check, but so

far has not solved the

problem and I'm about 4

months into taking the

combination. The greasy waxy

stuff I get on my face, neck

and head comes and goes in

intensity.  I have stopped

gettring the little papules

and pimples that I had been

getting.  

What I'm dealing with now

is intestinal problems from

the injections I've been

getting and am waiting for a

message from my LLMD about

whether to stop meds until

that gets cleared up.  I

suspect I might have the C.

Diff...

Dr. Staninger has a whole

protocol and remember Zoe?

 She and her husband did the

whole protocol from Dr. S

and were not helped by it

after spending $$$$$$.  She

did not get help until she

started antibiotics.  If you

don't have her protocol I'll

post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March

19, 2012 5:15:42 PM

Subject: Re:

So the fibers

survive coconut oil?

Hi ,

Thank you for your response.

It's good to hear from you

too, and I've thought about

you too! Your experience

mirrors mine pretty

accurately. I don't know

whether the fibers are

"alive" in the sense we

know, but to me they seem

programmed somehow. I also

see them floating around,

and I definitely got them

from mites. When I got rid

of the mites completely, the

fibers were already in me

and have never left me. I

was able to reduce the

amounts I used to have by

cleaning very often and

getting rid of things, but I

keep getting re-infested.

One thing I've noticed is

that they are programmed to

infest ANYTHING that I come

in contact with. That

includes people, places and

food. When I was at my

worst, I was afraid of

getting close to people

because

friends/acquaintances would

begin scratching their hair,

nose and face (the areas

where I feel the most

crawling) and I could

immediately sense the fibers

were leaving my body because

I had goose pumps whenever I

approached someone. It was

weird, the goose pumps would

signal something was going

on and immediately the

person started scratching.

When I go to visit friends,

I can see the fibers begin

to float around in their

homes, and when I return to

that particular place, I

start to get the crawlings

in my scalp, nose and face.

It's happened for so long

that I have definitely seen

a clear pattern.

So these researchers may be

right, these must be nano

products. How could anyone

explain this pattern?

I too, have found my ears

plugs full of fibers. What

I've done is soak them in

hot water with borax and

epsom salts. When I take out

the plugs after several

hours of soaking, I find

hundreds of fibers in the

water. I look with a lamp

and can clearly see there's

lots of them. I also use a

lint roll and I've used it

all over my head, face,

clothing, etc. I've found

the stuff they talk about on

TV: Black, red and blue

fibers. They're bright blue

and bright red, and some are

just white or clear, and

very long. Others are tiny.

What a mystery, but they're

truly a pain. I wonder if

it's true that the only

remedy is what Dr. Staninger

says? Far infrared therapy?

Has anyone tried it?

Thank you , good to

hear from you again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

 

Hi

Jess,

It is really good

to hear from you.

 I've thought about

you often.  I'm in

the same boat with

the similar

questions about

fibers.  I wonder if

there is any way to

get rid of the

fibers permanently.

 I feel them

floating and landing

on my hands at

times.  I don't know

of anyone who has

had fibers that

actually got rid of

them.  Many on this

site did not have

fibers, but had

mites only.  Their

exposure to mites

did not bring

fibers.  Mites for

sure can be killed,

although with

tremendous

difficulty.  I don't

know what makes the

fibers, but they are

part of what defines

Morgellons.  So many

people who had mites

end up with the

fibers.  Some people

think they are a

by-product of a mite

or parasite, or

bacteria and some

ppl believe they are

alive.  I'm a member

of the group that

believes they are

living, although

don't have any idea

how that could be.

 Maybe

investigators,

although very

controversial,

believe they are

nano products, and I

think they maybe

are.  That's just an

opinion... I'm not

the one to come up

with this as there

are plenty of

knowledgable people

who have said

this... Dr.

Hildegard Staninger

for one.  When I had

a microscope and was

collecting fibers

and looking at them

under the digital

scope I found some

interesting things.

 I would put the

fibers on slides,

cover them in

emersion oil and a

thin glass sheet

over the top and

look at the fibers

over a period of

months.  I stored

them in a special

box designed for

slides.  The fibers

themselves changed

over time from month

to month (some did,

some did not).  Some

developed what

looked like a pin

head.  I never saw

any of them move.  

I really wish I

had a microscope

again, but I haven't

found one that hooks

up with software for

an iMac which I have

now.  

I think there are

things that disrupt

the energy of the

fibers.  Scientists

may have found a way

to create life and I

think the fibers are

self creating... in

the human body they

have what they need

to reproduce

successfully.  They

also seem to

reproduce in homes.

 Some may be

programmed to carry

diseases.  

I did not find

coconut oil helpful

on the body.  When I

put it on my hands

and feet it seemed

to dry my skin out

further so I stopped

using it.  So no, it

isn't just you Jess.

 It never was just

you.  

From:

"jessnyc" <helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive coconut oil?

I had thought that

coconut oil was a

remedy for these

fibers. I bought

some and had a small

jar next to me at

all times.

When the oil was in

liquid form, I

noticed that the

fibers somehow

managed to get in

the oil, my little

jar had suddenly

like 10 or more

fibers. After a

while I saw they all

stuck together, and

eventually I

began seeing more

and more of them.

I wonder if they

reproduced in the

oil and assembled

themselves

together? That's

what it looked like

to me, my little jar

is full of

some big and some

tiny fibers, they're

mostly blue red or

black, some

are also white and

hard to see.

I guess this shows

they don't die with

coconut oil, they

thrive and

reproduce in it.

Jesus, is there

anything remedy that

actually kills them?

I haven't

found anything that

would really kill

them.

Has anyone had any

success with coconut

oil? Or is it just

me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

Too bad... I thought Zhang might be able to help you. I also thought he would treat you for Lyme, but I guess he thought you did not have any symptoms so he would not treat you. Jess used to live in NYC, but lives in Mexico now. From: "miteymaid" <miteymaid@...>bird mites Sent: Monday, March 19, 2012 5:41:25 PMSubject: Re: So the fibers survive coconut oil?I wonder how many people in NYC suffer from some sort of infestation. I was having my own exterminator spray but now the building management says I can't and they won't do anything themselves because their exterminating company and it's entomologist don't believe mites can cross over. If there were some sort of central place people could go here maybe something would be done. I wonder if I would be better off spraying Lysol around instead. I figure I get the apartment sprayed with pesticide every few months and then hit smaller areas with alcohol and lysol but now not sure what to do again. Hate all these chemicals and pesticides but need to do something. Also saw Dr. Zhang and I really didn't have any symptoms of Lyme just the bugs so he gave me some pills to make me less allergic to them but he kept saying dust mites when he said mites were all around and I'd never be able to get rid of them, which I agree but since I'm not dealing with dust mites I'm trying the meds for two weeks and see what happens. Thing about Chinese herbs, they're written on the container but I don't know anything about them. Are you in Brooklyn? The doctors I went to said they had someone else come in with mites or morgellons but they didn't treat. Now if I go somewhere I try to find out if they have others come with same problem. Maybe it doesn't matter because they never seem to be able to help anyway.> > > > Hi Jess,> >> > It is really good to hear from you. I've thought about you often.> > I'm in the same boat with the similar questions about fibers. I> > wonder if there is any way to get rid of the fibers permanently. I> > feel them floating and landing on my hands at times. I don't know of> > anyone who has had fibers that actually got rid of them. Many on this> > site did not have fibers, but had mites only. Their exposure to mites> > did not bring fibers. Mites for sure can be killed, although with> > tremendous difficulty. I don't know what makes the fibers, but they> > are part of what defines Morgellons. So many people who had mites end> > up with the fibers. Some people think they are a by-product of a mite> > or parasite, or bacteria and some ppl believe they are alive. I'm a> > member of the group that believes they are living, although don't have> > any idea how that could be. Maybe investigators, although very> > controversial, believe they are nano products, and I think they maybe> > are. That's just an opinion... I'm not the one to come up with this> > as there are plenty of knowledgable people who have said this... Dr.> > Hildegard Staninger for one. When I had a microscope and was> > collecting fibers and looking at them under the digital scope I found> > some interesting things. I would put the fibers on slides, cover them> > in emersion oil and a thin glass sheet over the top and look at the> > fibers over a period of months. I stored them in a special box> > designed for slides. The fibers themselves changed over time from> > month to month (some did, some did not). Some developed what looked> > like a pin head. I never saw any of them move. > >> > I really wish I had a microscope again, but I haven't found one that> > hooks up with software for an iMac which I have now. > >> > I think there are things that disrupt the energy of the fibers.> > Scientists may have found a way to create life and I think the fibers> > are self creating... in the human body they have what they need to> > reproduce successfully. They also seem to reproduce in homes. Some> > may be programmed to carry diseases. > >> > I did not find coconut oil helpful on the body. When I put it on my> > hands and feet it seemed to dry my skin out further so I stopped using> > it. So no, it isn't just you Jess. It never was just you. > >> > > >> > ------------------------------------------------------------------------> > *From: *"jessnyc" <helpnynow@...>> > **"Birdmites.org Website" <bird mites >> > *Sent: *Monday, March 19, 2012 3:29:50 PM> > *Subject: * So the fibers survive coconut oil?> >> > I had thought that coconut oil was a remedy for these fibers. I bought> > some and had a small jar next to me at all times.> >> > When the oil was in liquid form, I noticed that the fibers somehow> > managed to get in the oil, my little jar had suddenly like 10 or more> > fibers. After a while I saw they all stuck together, and eventually I> > began seeing more and more of them.> >> > I wonder if they reproduced in the oil and assembled themselves> > together? That's what it looked like to me, my little jar is full of> > some big and some tiny fibers, they're mostly blue red or black, some> > are also white and hard to see.> >> > I guess this shows they don't die with coconut oil, they thrive and> > reproduce in it.> >> > Jesus, is there anything remedy that actually kills them? I haven't> > found anything that would really kill them.> >> > Has anyone had any success with coconut oil? Or is it just me?> >> > Jess.> >> >> >> >> > ------------------------------------> >> >

Link to comment
Share on other sites

Guest guest

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?

It's been a little over a year, probably a year and a half that I've

had this. There's been months where I've felt almost symptom free,

but I get re-infested when I go back to places I visited when I

first came back from NYC with the huge infestation. My mother's

house is one of those places, very unfortunately. Nobody in her

house has felt anything at all, it's just me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012 7:27:44 PM

Subject: Re: So the fibers survive

coconut oil?

No, that is one of many combinations I was treated

with. If you haven't had it that long you could start

with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole,

artemisinin. But you need to see a Lyme literate

practitioner because you likely have babesia and

bartonella which requires other meds. Dr. Stricker in

CA is excellent, don't know which part of CA he's in but

he treats Lyme/morgellons patients. How long have you

had this? If more than a year it will take long term

treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid

of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean

now because I'm too tired anyway... Now I'm

dealing with other symptoms. Morgellons is a

subgroup of Lyme, there are sometimes bugs

involved, sometimes mold, or all of the above.

You definitely have Lyme disease and have to

treat it to get your immune system back in

charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

Aandraya, would you mind telling me

what medications and in what doses did

you take for the Morgellons to go away

completely?

So you no longer can get re-infested,

right? Even if you go into infested

areas or wear infested clothing? Are you

totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I

found no quick fix for the

morgellons stuff. It took a solid

year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a FAR infrared

"Rainbow" which I use often.

It does not seem to do much

to clear out the fibers.

Although I have rarely used

in on my head but mainly use

it on feet, legs, abdomen

and upper torso. It does

warm the body in a way I've

never experienced before...

raises the body temperature.

After being under the

Rainbow for 45 min to 2

hours I feel a laziness and

lack of clarity... almost

like having had a few

glasses of good wine...

Read the new post from

Aandraya. She knows a lot

about this and has gotten

rid of the fibers. She has

done far more medications

for Lyme and co-infections

than anyone I know. She

also knows more about Lyme

and co-infections than

anyone I know. I'm going to

defer to her because she

obviously knows more and

done more... I'm in the same

boat as you. I'm in the

learning curve on this... so

good to hear from you!

What is weird is that I

do not get these things

crawling on the face any

more. I have nothing that

feels like a mite crawling

in nose, eyes, eyebrows,

hair, ears. I get what

feels like a fiber falling

on an eyelash very

occasionally, I get symptoms

of eyes blurry, watery, when

I don't take the combination

of Doxy and Rifampin. The

combination keeps the eye

symptoms in check, but so

far has not solved the

problem and I'm about 4

months into taking the

combination. The greasy waxy

stuff I get on my face, neck

and head comes and goes in

intensity. I have stopped

gettring the little papules

and pimples that I had been

getting.

What I'm dealing with now

is intestinal problems from

the injections I've been

getting and am waiting for a

message from my LLMD about

whether to stop meds until

that gets cleared up. I

suspect I might have the C.

Diff...

Dr. Staninger has a whole

protocol and remember Zoe?

She and her husband did the

whole protocol from Dr. S

and were not helped by it

after spending $$$$$$. She

did not get help until she

started antibiotics. If you

don't have her protocol I'll

post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March

19, 2012 5:15:42 PM

Subject: Re:

So the fibers

survive coconut oil?

Hi ,

Thank you for your response.

It's good to hear from you

too, and I've thought about

you too! Your experience

mirrors mine pretty

accurately. I don't know

whether the fibers are

"alive" in the sense we

know, but to me they seem

programmed somehow. I also

see them floating around,

and I definitely got them

from mites. When I got rid

of the mites completely, the

fibers were already in me

and have never left me. I

was able to reduce the

amounts I used to have by

cleaning very often and

getting rid of things, but I

keep getting re-infested.

One thing I've noticed is

that they are programmed to

infest ANYTHING that I come

in contact with. That

includes people, places and

food. When I was at my

worst, I was afraid of

getting close to people

because

friends/acquaintances would

begin scratching their hair,

nose and face (the areas

where I feel the most

crawling) and I could

immediately sense the fibers

were leaving my body because

I had goose pumps whenever I

approached someone. It was

weird, the goose pumps would

signal something was going

on and immediately the

person started scratching.

When I go to visit friends,

I can see the fibers begin

to float around in their

homes, and when I return to

that particular place, I

start to get the crawlings

in my scalp, nose and face.

It's happened for so long

that I have definitely seen

a clear pattern.

So these researchers may be

right, these must be nano

products. How could anyone

explain this pattern?

I too, have found my ears

plugs full of fibers. What

I've done is soak them in

hot water with borax and

epsom salts. When I take out

the plugs after several

hours of soaking, I find

hundreds of fibers in the

water. I look with a lamp

and can clearly see there's

lots of them. I also use a

lint roll and I've used it

all over my head, face,

clothing, etc. I've found

the stuff they talk about on

TV: Black, red and blue

fibers. They're bright blue

and bright red, and some are

just white or clear, and

very long. Others are tiny.

What a mystery, but they're

truly a pain. I wonder if

it's true that the only

remedy is what Dr. Staninger

says? Far infrared therapy?

Has anyone tried it?

Thank you , good to

hear from you again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is really good

to hear from you.

I've thought about

you often. I'm in

the same boat with

the similar

questions about

fibers. I wonder if

there is any way to

get rid of the

fibers permanently.

I feel them

floating and landing

on my hands at

times. I don't know

of anyone who has

had fibers that

actually got rid of

them. Many on this

site did not have

fibers, but had

mites only. Their

exposure to mites

did not bring

fibers. Mites for

sure can be killed,

although with

tremendous

difficulty. I don't

know what makes the

fibers, but they are

part of what defines

Morgellons. So many

people who had mites

end up with the

fibers. Some people

think they are a

by-product of a mite

or parasite, or

bacteria and some

ppl believe they are

alive. I'm a member

of the group that

believes they are

living, although

don't have any idea

how that could be.

Maybe

investigators,

although very

controversial,

believe they are

nano products, and I

think they maybe

are. That's just an

opinion... I'm not

the one to come up

with this as there

are plenty of

knowledgable people

who have said

this... Dr.

Hildegard Staninger

for one. When I had

a microscope and was

collecting fibers

and looking at them

under the digital

scope I found some

interesting things.

I would put the

fibers on slides,

cover them in

emersion oil and a

thin glass sheet

over the top and

look at the fibers

over a period of

months. I stored

them in a special

box designed for

slides. The fibers

themselves changed

over time from month

to month (some did,

some did not). Some

developed what

looked like a pin

head. I never saw

any of them move.

I really wish I

had a microscope

again, but I haven't

found one that hooks

up with software for

an iMac which I have

now.

I think there are

things that disrupt

the energy of the

fibers. Scientists

may have found a way

to create life and I

think the fibers are

self creating... in

the human body they

have what they need

to reproduce

successfully. They

also seem to

reproduce in homes.

Some may be

programmed to carry

diseases.

I did not find

coconut oil helpful

on the body. When I

put it on my hands

and feet it seemed

to dry my skin out

further so I stopped

using it. So no, it

isn't just you Jess.

It never was just

you.

From:

"jessnyc" <helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive coconut oil?

I had thought that

coconut oil was a

remedy for these

fibers. I bought

some and had a small

jar next to me at

all times.

When the oil was in

liquid form, I

noticed that the

fibers somehow

managed to get in

the oil, my little

jar had suddenly

like 10 or more

fibers. After a

while I saw they all

stuck together, and

eventually I

began seeing more

and more of them.

I wonder if they

reproduced in the

oil and assembled

themselves

together? That's

what it looked like

to me, my little jar

is full of

some big and some

tiny fibers, they're

mostly blue red or

black, some

are also white and

hard to see.

I guess this shows

they don't die with

coconut oil, they

thrive and

reproduce in it.

Jesus, is there

anything remedy that

actually kills them?

I haven't

found anything that

would really kill

them.

Has anyone had any

success with coconut

oil? Or is it just

me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

Thank you, . Yes, I guess I could do that, but then there would

have to be a way to figure out my progress. I'd have to get a test

done every so often, and how would I know what doses to take? I

don't want to do something wrong and make these things more powerful

or immune to these medications. Somebody here would have to explain

very well the process. If an MD can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@... wrote:

 

There must be someone who treats Lyme disease

there in Mexico.  I'll see if anyone I know might know of

someone too.  But Jess you could get those drugs

over-the-counter.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012 9:50:47 PM

Subject: Re: So the fibers

survive coconut oil?

It's been a little over a year, probably a year and a

half that I've had this. There's been months where I've

felt almost symptom free, but I get re-infested when I

go back to places I visited when I first came back from

NYC with the huge infestation. My mother's house is one

of those places, very unfortunately. Nobody in her house

has felt anything at all, it's just  me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@... wrote:

 

Jess lives in Mexico.  Do

you know of anyone there?

From: "Aandraya" <aandraya@...>

bird mites

Sent: Monday, March 19, 2012 7:27:44 PM

Subject: Re: So the fibers

survive coconut oil?

No, that is one of many combinations I was

treated with.  If you haven't had it that long

you could start with Bactrim DS, Doxy 2-400 mg a

day, with Voriconazole, artemisinin.  But you

need to see a Lyme literate practitioner because

you likely have babesia and bartonella which

requires other meds.  Dr. Stricker in CA is

excellent, don't know which part of CA he's in

but he treats Lyme/morgellons patients.  How

long have you had this?  If more than a year it

will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...>

wrote:

 

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin

rotation."

Would that be it? That's all you needed to

get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

 

100%. I wear all my clothes, rarely

clean now because I'm too tired

anyway... Now I'm dealing with other

symptoms.  Morgellons is a subgroup of

Lyme, there are sometimes bugs

involved, sometimes mold, or all of

the above.  You definitely have Lyme

disease and have to treat it to get

your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc

<helpnynow@...>

wrote:

 

Aandraya, would you mind

telling me what medications and

in what doses did you take for

the Morgellons to go away

completely?

So you no longer can get

re-infested, right? Even if you

go into infested areas or wear

infested clothing? Are you

totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya

wrote:

 

Just to add to what

said, I found no quick fix

for the morgellons stuff.

 It took a solid year of

antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM,

Goldstein@...

wrote:

 

Jess,

I have a FAR

infrared "Rainbow"

which I use often.

 It does not seem to

do much to clear out

the fibers.

 Although I have

rarely used in on my

head but mainly use

it on feet, legs,

abdomen and upper

torso.  It does warm

the body in a way

I've never

experienced

before... raises the

body temperature.

 After being under

the Rainbow for 45

min to 2 hours I

feel a laziness and

lack of clarity...

almost like having

had a few glasses of

good wine... 

Read the new post

from Aandraya.  She

knows a lot about

this and has gotten

rid of the fibers.

 She has done far

more medications for

Lyme and

co-infections than

anyone I know.  She

also knows more

about Lyme and

co-infections than

anyone I know.  I'm

going to defer to

her because she

obviously knows more

and done more... I'm

in the same boat as

you.  I'm in the

learning curve on

this... so good to

hear from you!

What is weird is

that I do not get

these things

crawling on the face

any more.  I have

nothing that feels

like a mite crawling

in nose, eyes,

eyebrows, hair,

ears.  I get what

feels like a fiber

falling on an

eyelash very

occasionally, I get

symptoms of eyes

blurry, watery, when

I don't take the

combination of Doxy

and Rifampin.  The

combination keeps

the eye symptoms in

check, but so far

has not solved the

problem and I'm

about 4 months into

taking the

combination. The

greasy waxy stuff I

get on my face, neck

and head comes and

goes in intensity.

 I have stopped

gettring the little

papules and pimples

that I had been

getting.  

What I'm dealing

with now is

intestinal problems

from the injections

I've been getting

and am waiting for a

message from my LLMD

about whether to

stop meds until that

gets cleared up.  I

suspect I might have

the C. Diff...

Dr. Staninger has

a whole protocol and

remember Zoe?  She

and her husband did

the whole protocol

from Dr. S and were

not helped by it

after spending

$$$$$$.  She did not

get help until she

started antibiotics.

 If you don't have

her protocol I'll

post it again.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So

the fibers survive

coconut oil?

Hi ,

Thank you for your

response. It's good

to hear from you

too, and I've

thought about you

too! Your experience

mirrors mine pretty

accurately. I don't

know whether the

fibers are "alive"

in the sense we

know, but to me they

seem programmed

somehow. I also see

them floating

around, and I

definitely got them

from mites. When I

got rid of the mites

completely, the

fibers were already

in me and have never

left me. I was able

to reduce the

amounts I used to

have by cleaning

very often and

getting rid of

things, but I keep

getting re-infested.

One thing I've

noticed is that they

are programmed to

infest ANYTHING that

I come in contact

with. That includes

people, places and

food. When I was at

my worst, I was

afraid of getting

close to people

because

friends/acquaintances

would begin

scratching their

hair, nose and face

(the areas where I

feel the most

crawling) and I

could immediately

sense the fibers

were leaving my body

because I had goose

pumps whenever I

approached someone.

It was weird, the

goose pumps would

signal something was

going on and

immediately the

person started

scratching. When I

go to visit friends,

I can see the fibers

begin to float

around in their

homes, and when I

return to that

particular place, I

start to get the

crawlings in my

scalp, nose and

face. It's happened

for so long that I

have definitely seen

a clear pattern.

So these researchers

may be right, these

must be nano

products. How could

anyone explain this

pattern?

I too, have found my

ears plugs full of

fibers. What I've

done is soak them in

hot water with borax

and epsom salts.

When I take out the

plugs after several

hours of soaking, I

find hundreds of

fibers in the water.

I look with a lamp

and can clearly see

there's lots of

them. I also use a

lint roll and I've

used it all over my

head, face,

clothing, etc. I've

found the stuff they

talk about on TV:

Black, red and blue

fibers. They're

bright blue and

bright red, and some

are just white or

clear, and very

long. Others are

tiny.

What a mystery, but

they're truly a

pain. I wonder if

it's true that the

only remedy is what

Dr. Staninger says?

Far infrared

therapy? Has anyone

tried it?

Thank you ,

good to hear from

you again,

Jess

On 3/19/2012 5:46

PM, Goldstein@...

wrote:

 

Hi

Jess,

It is

really good to

hear from you.

 I've thought

about you

often.  I'm in

the same boat

with the

similar

questions

about fibers.

 I wonder if

there is any

way to get rid

of the fibers

permanently.

 I feel them

floating and

landing on my

hands at

times.  I

don't know of

anyone who has

had fibers

that actually

got rid of

them.  Many on

this site did

not have

fibers, but

had mites

only.  Their

exposure to

mites did not

bring fibers.

 Mites for

sure can be

killed,

although with

tremendous

difficulty.  I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

 So many

people who had

mites end up

with the

fibers.  Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

 I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be.  Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

 That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one.  When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things.  I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months.  I

stored them in

a special box

designed for

slides.  The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

 Some

developed what

looked like a

pin head.  I

never saw any

of them move.

 

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.  

I think

there are

things that

disrupt the

energy of the

fibers.

 Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

 They also

seem to

reproduce in

homes.  Some

may be

programmed to

carry

diseases.  

I did not

find coconut

oil helpful on

the body.

 When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it.  So no, it

isn't just you

Jess.  It

never was just

you.  

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

    bird mites/

<*> Your

email

settings:

    Individual

Email |

Traditional

<*> To

change

settings

online go to:

    bird mites/join

    ( ID

required)

<*> To

change

settings via

email:

    bird mites-digest

    bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

    bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

    

Link to comment
Share on other sites

Guest guest

Yeah, that's usually the case, only people with the chronic infections are bothered. My daughter didn't sense anything nor did my boyfriend. AaOn Mar 19, 2012, at 11:50 PM, jessnyc <helpnynow@...> wrote:

It's been a little over a year, probably a year and a half that I've

had this. There's been months where I've felt almost symptom free,

but I get re-infested when I go back to places I visited when I

first came back from NYC with the huge infestation. My mother's

house is one of those places, very unfortunately. Nobody in her

house has felt anything at all, it's just me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012 7:27:44 PM

Subject: Re: So the fibers survive

coconut oil?

No, that is one of many combinations I was treated

with. If you haven't had it that long you could start

with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole,

artemisinin. But you need to see a Lyme literate

practitioner because you likely have babesia and

bartonella which requires other meds. Dr. Stricker in

CA is excellent, don't know which part of CA he's in but

he treats Lyme/morgellons patients. How long have you

had this? If more than a year it will take long term

treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin rotation."

Would that be it? That's all you needed to get rid

of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean

now because I'm too tired anyway... Now I'm

dealing with other symptoms. Morgellons is a

subgroup of Lyme, there are sometimes bugs

involved, sometimes mold, or all of the above.

You definitely have Lyme disease and have to

treat it to get your immune system back in

charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...>

wrote:

Aandraya, would you mind telling me

what medications and in what doses did

you take for the Morgellons to go away

completely?

So you no longer can get re-infested,

right? Even if you go into infested

areas or wear infested clothing? Are you

totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I

found no quick fix for the

morgellons stuff. It took a solid

year of antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a FAR infrared

"Rainbow" which I use often.

It does not seem to do much

to clear out the fibers.

Although I have rarely used

in on my head but mainly use

it on feet, legs, abdomen

and upper torso. It does

warm the body in a way I've

never experienced before...

raises the body temperature.

After being under the

Rainbow for 45 min to 2

hours I feel a laziness and

lack of clarity... almost

like having had a few

glasses of good wine...

Read the new post from

Aandraya. She knows a lot

about this and has gotten

rid of the fibers. She has

done far more medications

for Lyme and co-infections

than anyone I know. She

also knows more about Lyme

and co-infections than

anyone I know. I'm going to

defer to her because she

obviously knows more and

done more... I'm in the same

boat as you. I'm in the

learning curve on this... so

good to hear from you!

What is weird is that I

do not get these things

crawling on the face any

more. I have nothing that

feels like a mite crawling

in nose, eyes, eyebrows,

hair, ears. I get what

feels like a fiber falling

on an eyelash very

occasionally, I get symptoms

of eyes blurry, watery, when

I don't take the combination

of Doxy and Rifampin. The

combination keeps the eye

symptoms in check, but so

far has not solved the

problem and I'm about 4

months into taking the

combination. The greasy waxy

stuff I get on my face, neck

and head comes and goes in

intensity. I have stopped

gettring the little papules

and pimples that I had been

getting.

What I'm dealing with now

is intestinal problems from

the injections I've been

getting and am waiting for a

message from my LLMD about

whether to stop meds until

that gets cleared up. I

suspect I might have the C.

Diff...

Dr. Staninger has a whole

protocol and remember Zoe?

She and her husband did the

whole protocol from Dr. S

and were not helped by it

after spending $$$$$$. She

did not get help until she

started antibiotics. If you

don't have her protocol I'll

post it again.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March

19, 2012 5:15:42 PM

Subject: Re:

So the fibers

survive coconut oil?

Hi ,

Thank you for your response.

It's good to hear from you

too, and I've thought about

you too! Your experience

mirrors mine pretty

accurately. I don't know

whether the fibers are

"alive" in the sense we

know, but to me they seem

programmed somehow. I also

see them floating around,

and I definitely got them

from mites. When I got rid

of the mites completely, the

fibers were already in me

and have never left me. I

was able to reduce the

amounts I used to have by

cleaning very often and

getting rid of things, but I

keep getting re-infested.

One thing I've noticed is

that they are programmed to

infest ANYTHING that I come

in contact with. That

includes people, places and

food. When I was at my

worst, I was afraid of

getting close to people

because

friends/acquaintances would

begin scratching their hair,

nose and face (the areas

where I feel the most

crawling) and I could

immediately sense the fibers

were leaving my body because

I had goose pumps whenever I

approached someone. It was

weird, the goose pumps would

signal something was going

on and immediately the

person started scratching.

When I go to visit friends,

I can see the fibers begin

to float around in their

homes, and when I return to

that particular place, I

start to get the crawlings

in my scalp, nose and face.

It's happened for so long

that I have definitely seen

a clear pattern.

So these researchers may be

right, these must be nano

products. How could anyone

explain this pattern?

I too, have found my ears

plugs full of fibers. What

I've done is soak them in

hot water with borax and

epsom salts. When I take out

the plugs after several

hours of soaking, I find

hundreds of fibers in the

water. I look with a lamp

and can clearly see there's

lots of them. I also use a

lint roll and I've used it

all over my head, face,

clothing, etc. I've found

the stuff they talk about on

TV: Black, red and blue

fibers. They're bright blue

and bright red, and some are

just white or clear, and

very long. Others are tiny.

What a mystery, but they're

truly a pain. I wonder if

it's true that the only

remedy is what Dr. Staninger

says? Far infrared therapy?

Has anyone tried it?

Thank you , good to

hear from you again,

Jess

On 3/19/2012 5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is really good

to hear from you.

I've thought about

you often. I'm in

the same boat with

the similar

questions about

fibers. I wonder if

there is any way to

get rid of the

fibers permanently.

I feel them

floating and landing

on my hands at

times. I don't know

of anyone who has

had fibers that

actually got rid of

them. Many on this

site did not have

fibers, but had

mites only. Their

exposure to mites

did not bring

fibers. Mites for

sure can be killed,

although with

tremendous

difficulty. I don't

know what makes the

fibers, but they are

part of what defines

Morgellons. So many

people who had mites

end up with the

fibers. Some people

think they are a

by-product of a mite

or parasite, or

bacteria and some

ppl believe they are

alive. I'm a member

of the group that

believes they are

living, although

don't have any idea

how that could be.

Maybe

investigators,

although very

controversial,

believe they are

nano products, and I

think they maybe

are. That's just an

opinion... I'm not

the one to come up

with this as there

are plenty of

knowledgable people

who have said

this... Dr.

Hildegard Staninger

for one. When I had

a microscope and was

collecting fibers

and looking at them

under the digital

scope I found some

interesting things.

I would put the

fibers on slides,

cover them in

emersion oil and a

thin glass sheet

over the top and

look at the fibers

over a period of

months. I stored

them in a special

box designed for

slides. The fibers

themselves changed

over time from month

to month (some did,

some did not). Some

developed what

looked like a pin

head. I never saw

any of them move.

I really wish I

had a microscope

again, but I haven't

found one that hooks

up with software for

an iMac which I have

now.

I think there are

things that disrupt

the energy of the

fibers. Scientists

may have found a way

to create life and I

think the fibers are

self creating... in

the human body they

have what they need

to reproduce

successfully. They

also seem to

reproduce in homes.

Some may be

programmed to carry

diseases.

I did not find

coconut oil helpful

on the body. When I

put it on my hands

and feet it seemed

to dry my skin out

further so I stopped

using it. So no, it

isn't just you Jess.

It never was just

you.

From:

"jessnyc" <helpnynow@...>

"Birdmites.org

Website" <bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive coconut oil?

I had thought that

coconut oil was a

remedy for these

fibers. I bought

some and had a small

jar next to me at

all times.

When the oil was in

liquid form, I

noticed that the

fibers somehow

managed to get in

the oil, my little

jar had suddenly

like 10 or more

fibers. After a

while I saw they all

stuck together, and

eventually I

began seeing more

and more of them.

I wonder if they

reproduced in the

oil and assembled

themselves

together? That's

what it looked like

to me, my little jar

is full of

some big and some

tiny fibers, they're

mostly blue red or

black, some

are also white and

hard to see.

I guess this shows

they don't die with

coconut oil, they

thrive and

reproduce in it.

Jesus, is there

anything remedy that

actually kills them?

I haven't

found anything that

would really kill

them.

Has anyone had any

success with coconut

oil? Or is it just

me?

Jess.

------------------------------------

Link to comment
Share on other sites

Guest guest

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS. AaOn Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would

have to be a way to figure out my progress. I'd have to get a test

done every so often, and how would I know what doses to take? I

don't want to do something wrong and make these things more powerful

or immune to these medications. Somebody here would have to explain

very well the process. If an MD can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease

there in Mexico. I'll see if anyone I know might know of

someone too. But Jess you could get those drugs

over-the-counter.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012 9:50:47 PM

Subject: Re: So the fibers

survive coconut oil?

It's been a little over a year, probably a year and a

half that I've had this. There's been months where I've

felt almost symptom free, but I get re-infested when I

go back to places I visited when I first came back from

NYC with the huge infestation. My mother's house is one

of those places, very unfortunately. Nobody in her house

has felt anything at all, it's just me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do

you know of anyone there?

From: "Aandraya" <aandraya@...>

bird mites

Sent: Monday, March 19, 2012 7:27:44 PM

Subject: Re: So the fibers

survive coconut oil?

No, that is one of many combinations I was

treated with. If you haven't had it that long

you could start with Bactrim DS, Doxy 2-400 mg a

day, with Voriconazole, artemisinin. But you

need to see a Lyme literate practitioner because

you likely have babesia and bartonella which

requires other meds. Dr. Stricker in CA is

excellent, don't know which part of CA he's in

but he treats Lyme/morgellons patients. How

long have you had this? If more than a year it

will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin, bactrim/ceftin

rotation."

Would that be it? That's all you needed to

get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely

clean now because I'm too tired

anyway... Now I'm dealing with other

symptoms. Morgellons is a subgroup of

Lyme, there are sometimes bugs

involved, sometimes mold, or all of

the above. You definitely have Lyme

disease and have to treat it to get

your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc

<helpnynow@...>

wrote:

Aandraya, would you mind

telling me what medications and

in what doses did you take for

the Morgellons to go away

completely?

So you no longer can get

re-infested, right? Even if you

go into infested areas or wear

infested clothing? Are you

totally immune to it now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM, Aandraya

wrote:

Just to add to what

said, I found no quick fix

for the morgellons stuff.

It took a solid year of

antimicrobial agents- rx and

herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM,

Goldstein@...

wrote:

Jess,

I have a FAR

infrared "Rainbow"

which I use often.

It does not seem to

do much to clear out

the fibers.

Although I have

rarely used in on my

head but mainly use

it on feet, legs,

abdomen and upper

torso. It does warm

the body in a way

I've never

experienced

before... raises the

body temperature.

After being under

the Rainbow for 45

min to 2 hours I

feel a laziness and

lack of clarity...

almost like having

had a few glasses of

good wine...

Read the new post

from Aandraya. She

knows a lot about

this and has gotten

rid of the fibers.

She has done far

more medications for

Lyme and

co-infections than

anyone I know. She

also knows more

about Lyme and

co-infections than

anyone I know. I'm

going to defer to

her because she

obviously knows more

and done more... I'm

in the same boat as

you. I'm in the

learning curve on

this... so good to

hear from you!

What is weird is

that I do not get

these things

crawling on the face

any more. I have

nothing that feels

like a mite crawling

in nose, eyes,

eyebrows, hair,

ears. I get what

feels like a fiber

falling on an

eyelash very

occasionally, I get

symptoms of eyes

blurry, watery, when

I don't take the

combination of Doxy

and Rifampin. The

combination keeps

the eye symptoms in

check, but so far

has not solved the

problem and I'm

about 4 months into

taking the

combination. The

greasy waxy stuff I

get on my face, neck

and head comes and

goes in intensity.

I have stopped

gettring the little

papules and pimples

that I had been

getting.

What I'm dealing

with now is

intestinal problems

from the injections

I've been getting

and am waiting for a

message from my LLMD

about whether to

stop meds until that

gets cleared up. I

suspect I might have

the C. Diff...

Dr. Staninger has

a whole protocol and

remember Zoe? She

and her husband did

the whole protocol

from Dr. S and were

not helped by it

after spending

$$$$$$. She did not

get help until she

started antibiotics.

If you don't have

her protocol I'll

post it again.

From:

"jessnyc" <helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So

the fibers survive

coconut oil?

Hi ,

Thank you for your

response. It's good

to hear from you

too, and I've

thought about you

too! Your experience

mirrors mine pretty

accurately. I don't

know whether the

fibers are "alive"

in the sense we

know, but to me they

seem programmed

somehow. I also see

them floating

around, and I

definitely got them

from mites. When I

got rid of the mites

completely, the

fibers were already

in me and have never

left me. I was able

to reduce the

amounts I used to

have by cleaning

very often and

getting rid of

things, but I keep

getting re-infested.

One thing I've

noticed is that they

are programmed to

infest ANYTHING that

I come in contact

with. That includes

people, places and

food. When I was at

my worst, I was

afraid of getting

close to people

because

friends/acquaintances

would begin

scratching their

hair, nose and face

(the areas where I

feel the most

crawling) and I

could immediately

sense the fibers

were leaving my body

because I had goose

pumps whenever I

approached someone.

It was weird, the

goose pumps would

signal something was

going on and

immediately the

person started

scratching. When I

go to visit friends,

I can see the fibers

begin to float

around in their

homes, and when I

return to that

particular place, I

start to get the

crawlings in my

scalp, nose and

face. It's happened

for so long that I

have definitely seen

a clear pattern.

So these researchers

may be right, these

must be nano

products. How could

anyone explain this

pattern?

I too, have found my

ears plugs full of

fibers. What I've

done is soak them in

hot water with borax

and epsom salts.

When I take out the

plugs after several

hours of soaking, I

find hundreds of

fibers in the water.

I look with a lamp

and can clearly see

there's lots of

them. I also use a

lint roll and I've

used it all over my

head, face,

clothing, etc. I've

found the stuff they

talk about on TV:

Black, red and blue

fibers. They're

bright blue and

bright red, and some

are just white or

clear, and very

long. Others are

tiny.

What a mystery, but

they're truly a

pain. I wonder if

it's true that the

only remedy is what

Dr. Staninger says?

Far infrared

therapy? Has anyone

tried it?

Thank you ,

good to hear from

you again,

Jess

On 3/19/2012 5:46

PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

Individual

Email |

Traditional

<*> To

change

settings

online go to:

bird mites/join

( ID

required)

<*> To

change

settings via

email:

bird mites-digest

bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

Link to comment
Share on other sites

Guest guest

Thank you, Aandraya.

Do you know any more people who've been cured of  Morgellons? What

have these doctors done for them, and do you know how much they

charge?

Thanks,

Jess

On 3/20/2012 12:16 AM, Aandraya wrote:

 

You have two of the best LLMDs in New York if you can

go back, there's some waiting time to get in but they are

the best- Horowitz and Cameron.  I know someone who saw

Cameron and she loves him.  He was the president of

ILADS. 

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...>

wrote:

 

Thank you, . Yes, I guess I could do that,

but then there would have to be a way to figure out

my progress. I'd have to get a test done every so

often, and how would I know what doses to take? I

don't want to do something wrong and make these

things more powerful or immune to these medications.

Somebody here would have to explain very well the

process. If an MD can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@...

wrote:

 

There must be someone who

treats Lyme disease there in Mexico.  I'll see

if anyone I know might know of someone too.  But

Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>

bird mites

Sent: Monday, March 19, 2012 9:50:47

PM

Subject: Re: So the

fibers survive coconut oil?

It's been a little over a year, probably a

year and a half that I've had this. There's

been months where I've felt almost symptom

free, but I get re-infested when I go back to

places I visited when I first came back from

NYC with the huge infestation. My mother's

house is one of those places, very

unfortunately. Nobody in her house has felt

anything at all, it's just  me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@...

wrote:

 

Jess

lives in Mexico.  Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012

7:27:44 PM

Subject: Re: So

the fibers survive coconut oil?

No, that is one of many

combinations I was treated with.  If

you haven't had it that long you could

start with Bactrim DS, Doxy 2-400 mg a

day, with Voriconazole, artemisinin.

 But you need to see a Lyme literate

practitioner because you likely have

babesia and bartonella which requires

other meds.  Dr. Stricker in CA is

excellent, don't know which part of CA

he's in but he treats Lyme/morgellons

patients.  How long have you had this?

 If more than a year it will take long

term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc

<helpnynow@...>

wrote:

 

Thanks, Aandraya.

"Voricon., levaquin,

bactrim/ceftin rotation."

Would that be it? That's all you

needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya

wrote:

 

100%. I wear all my

clothes, rarely clean now

because I'm too tired

anyway... Now I'm dealing

with other symptoms.

 Morgellons is a subgroup of

Lyme, there are sometimes

bugs involved, sometimes

mold, or all of the above.

 You definitely have Lyme

disease and have to treat it

to get your immune system

back in charge.

Aa

On Mar 19, 2012, at 7:49 PM,

jessnyc <helpnynow@...>

wrote:

 

Aandraya, would you

mind telling me what

medications and in

what doses did you

take for the

Morgellons to go away

completely?

So you no longer can

get re-infested,

right? Even if you go

into infested areas or

wear infested

clothing? Are you

totally immune to it

now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM,

Aandraya wrote:

 

Just to add to

what said, I

found no quick fix

for the morgellons

stuff.  It took a

solid year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19, 2012,

at 7:29 PM, Goldstein@...

wrote:

 

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often.  It

does not seem

to do much to

clear out the

fibers.

 Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

 It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

 After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine... 

Read the

new post from

Aandraya.  She

knows a lot

about this and

has gotten rid

of the fibers.

 She has done

far more

medications

for Lyme and

co-infections

than anyone I

know.  She

also knows

more about

Lyme and

co-infections

than anyone I

know.  I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you.  I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more.  I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears.  I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin.  The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity.  I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

 

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up.  I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

 She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$.  She

did not get

help until she

started

antibiotics.

 If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

 

Hi

Jess,

It is

really good to

hear from you.

 I've thought

about you

often.  I'm in

the same boat

with the

similar

questions

about fibers.

 I wonder if

there is any

way to get rid

of the fibers

permanently.

 I feel them

floating and

landing on my

hands at

times.  I

don't know of

anyone who has

had fibers

that actually

got rid of

them.  Many on

this site did

not have

fibers, but

had mites

only.  Their

exposure to

mites did not

bring fibers.

 Mites for

sure can be

killed,

although with

tremendous

difficulty.  I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

 So many

people who had

mites end up

with the

fibers.  Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

 I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be.  Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

 That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one.  When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things.  I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months.  I

stored them in

a special box

designed for

slides.  The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

 Some

developed what

looked like a

pin head.  I

never saw any

of them move.

 

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.  

I think

there are

things that

disrupt the

energy of the

fibers.

 Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

 They also

seem to

reproduce in

homes.  Some

may be

programmed to

carry

diseases.  

I did not

find coconut

oil helpful on

the body.

 When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it.  So no, it

isn't just you

Jess.  It

never was just

you.  

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

    bird mites/

<*> Your

email

settings:

    Individual

Email |

Traditional

<*> To

change

settings

online go to:

    bird mites/join

    ( ID

required)

<*> To

change

settings via

email:

    bird mites-digest

    bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

    bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

    

Link to comment
Share on other sites

Guest guest

Thats rotten that u feel yukky a lot linda!:-(

Hows,ur daughter n grandaughter now?

------------------------------

On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote:

>Aandraya,

>

>

>My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for

the Intraconazole script. The other antifungal doesn't seem to be doing it for

me. Thanks. I've not been feeling good for weeks. An occasional day when I feel

sorta okay, but generally feeling pretty yucky. I sure know you go in and out of

it too.

>

>

>

>

> So the fibers survive coconut oil?

>

>I had thought that coconut oil was a remedy for these fibers. I bought

>some and had a small jar next to me at all times.

>

>When the oil was in liquid form, I noticed that the fibers somehow

>managed to get in the oil, my little jar had suddenly like 10 or more

>fibers. After a while I saw they all stuck together, and eventually I

>began seeing more and more of them.

>

>I wonder if they reproduced in the oil and assembled themselves

>together? That's what it looked like to me, my little jar is full of

>some big and some tiny fibers, they're mostly blue red or black, some

>are also white and hard to see.

>

>I guess this shows they don't die with coconut oil, they thrive and

>reproduce in it.

>

>Jesus, is there anything remedy that actually kills them? I haven't

>found anything that would really kill them.

>

>Has anyone had any success with coconut oil? Or is it just me?

>

>Jess.

>

>

>

>

>------------------------------------

>

>

Link to comment
Share on other sites

Guest guest

Thanks C. I've got an email request into my doctor to do some testing.From: "ILIKE TREES" <wherearetheangels@...>bird mites Sent: Tuesday, March 20, 2012 10:08:16 AMSubject: Re: So the fibers survive coconut oil?Thats rotten that u feel yukky a lot linda!:-(Hows,ur daughter n grandaughter now?------------------------------On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote:>Aandraya, >>>My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for the Intraconazole script. The other antifungal doesn't seem to be doing it for me. Thanks. I've not been feeling good for weeks. An occasional day when I feel sorta okay, but generally feeling pretty yucky. I sure know you go in and out of it too. >>> >> So the fibers survive coconut oil? >>I had thought that coconut oil was a remedy for these fibers. I bought >some and had a small jar next to me at all times. >>When the oil was in liquid form, I noticed that the fibers somehow >managed to get in the oil, my little jar had suddenly like 10 or more >fibers. After a while I saw they all stuck together, and eventually I >began seeing more and more of them. >>I wonder if they reproduced in the oil and assembled themselves >together? That's what it looked like to me, my little jar is full of >some big and some tiny fibers, they're mostly blue red or black, some >are also white and hard to see. >>I guess this shows they don't die with coconut oil, they thrive and >reproduce in it. >>Jesus, is there anything remedy that actually kills them? I haven't >found anything that would really kill them. >>Has anyone had any success with coconut oil? Or is it just me? >>Jess. >>>>>------------------------------------ >>

Link to comment
Share on other sites

Guest guest

My daughter and granddaughter are a tiny bit better. Not great yet. Thanks dear. How are you doing? How's the tummy?From: Goldstein@...To: bird mites Sent: Tuesday, March 20, 2012 11:20:13 AMSubject: Re: So the fibers survive coconut oil?Thanks C. I've got an email request into my doctor to do some testing.From: "ILIKE TREES" <wherearetheangels@...>bird mites Sent: Tuesday, March 20, 2012 10:08:16 AMSubject: Re: So the fibers survive coconut oil?Thats rotten that u feel yukky a lot linda!:-(Hows,ur daughter n grandaughter now?------------------------------On Mon, Mar 19, 2012 17:14 PDT Goldstein@... wrote:>Aandraya, >>>My memory sucks so I probably knew that, but forgot. I'm going to ask Dr. M for the Intraconazole script. The other antifungal doesn't seem to be doing it for me. Thanks. I've not been feeling good for weeks. An occasional day when I feel sorta okay, but generally feeling pretty yucky. I sure know you go in and out of it too. >>> >> So the fibers survive coconut oil? >>I had thought that coconut oil was a remedy for these fibers. I bought >some and had a small jar next to me at all times. >>When the oil was in liquid form, I noticed that the fibers somehow >managed to get in the oil, my little jar had suddenly like 10 or more >fibers. After a while I saw they all stuck together, and eventually I >began seeing more and more of them. >>I wonder if they reproduced in the oil and assembled themselves >together? That's what it looked like to me, my little jar is full of >some big and some tiny fibers, they're mostly blue red or black, some >are also white and hard to see. >>I guess this shows they don't die with coconut oil, they thrive and >reproduce in it. >>Jesus, is there anything remedy that actually kills them? I haven't >found anything that would really kill them. >>Has anyone had any success with coconut oil? Or is it just me? >>Jess. >>>>>------------------------------------ >>

Link to comment
Share on other sites

Guest guest

Jess- I don't know of anyone personally, except for people on this board, some who are gone and have gotten on with their lives, but I do know that Stricker MD has treated many using Lyme treatment(morgellons is a presentation of Lyme) and people fully recover. I had a severe case and the skin symptoms are fully gone, bugs, etc. If I can be cured anyone can. You have to address the Lyme and coinfections because they dramatically surpress the immune system and make healing nearly impossible. I believe Cameron charges 6-700 for 1st appt- 2 hrs and much less for follow ups. Horowitz is around the same. They have seen the morgellons presentations many times- been treating Lyme complex for a long time. No idea what Stricker charges in CA but probably like the others, I think he's the president of ILADS right now. You need a ggod doctor to treat you because you will become more symptomatic, it could be months or years, but the infections will progress if they go untreated. Also, I did not think I had Lyme symptoms when I was diagnosed- and all my tests were negative. I did have a couple bands show up on the Igenix test and my CD57 was low- 14. Lyme, bartonella, and babesia are diagnosed clinically. A positive test can confirm it, but a negative test cannot rule it out by any means. There are LLMDs who charge less if you're interested, but the ones I know of are in the Midwest if travel for you is an option. My doctor here is well aware of morgellons even though I started with her after those symptoms were gone. Hope this helps. Aandraya On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:

Thank you, Aandraya.

Do you know any more people who've been cured of Morgellons? What

have these doctors done for them, and do you know how much they

charge?

Thanks,

Jess

On 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can

go back, there's some waiting time to get in but they are

the best- Horowitz and Cameron. I know someone who saw

Cameron and she loves him. He was the president of

ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...>

wrote:

Thank you, . Yes, I guess I could do that,

but then there would have to be a way to figure out

my progress. I'd have to get a test done every so

often, and how would I know what doses to take? I

don't want to do something wrong and make these

things more powerful or immune to these medications.

Somebody here would have to explain very well the

process. If an MD can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@...

wrote:

There must be someone who

treats Lyme disease there in Mexico. I'll see

if anyone I know might know of someone too. But

Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>

bird mites

Sent: Monday, March 19, 2012 9:50:47

PM

Subject: Re: So the

fibers survive coconut oil?

It's been a little over a year, probably a

year and a half that I've had this. There's

been months where I've felt almost symptom

free, but I get re-infested when I go back to

places I visited when I first came back from

NYC with the huge infestation. My mother's

house is one of those places, very

unfortunately. Nobody in her house has felt

anything at all, it's just me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@...

wrote:

Jess

lives in Mexico. Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012

7:27:44 PM

Subject: Re: So

the fibers survive coconut oil?

No, that is one of many

combinations I was treated with. If

you haven't had it that long you could

start with Bactrim DS, Doxy 2-400 mg a

day, with Voriconazole, artemisinin.

But you need to see a Lyme literate

practitioner because you likely have

babesia and bartonella which requires

other meds. Dr. Stricker in CA is

excellent, don't know which part of CA

he's in but he treats Lyme/morgellons

patients. How long have you had this?

If more than a year it will take long

term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc

<helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin,

bactrim/ceftin rotation."

Would that be it? That's all you

needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya

wrote:

100%. I wear all my

clothes, rarely clean now

because I'm too tired

anyway... Now I'm dealing

with other symptoms.

Morgellons is a subgroup of

Lyme, there are sometimes

bugs involved, sometimes

mold, or all of the above.

You definitely have Lyme

disease and have to treat it

to get your immune system

back in charge.

Aa

On Mar 19, 2012, at 7:49 PM,

jessnyc <helpnynow@...>

wrote:

Aandraya, would you

mind telling me what

medications and in

what doses did you

take for the

Morgellons to go away

completely?

So you no longer can

get re-infested,

right? Even if you go

into infested areas or

wear infested

clothing? Are you

totally immune to it

now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM,

Aandraya wrote:

Just to add to

what said, I

found no quick fix

for the morgellons

stuff. It took a

solid year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19, 2012,

at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

Individual

Email |

Traditional

<*> To

change

settings

online go to:

bird mites/join

( ID

required)

<*> To

change

settings via

email:

bird mites-digest

bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

Link to comment
Share on other sites

Guest guest

Jess- the doctors treat them for Lyme and coinfections because they all have it. I personally believe that all Lyme patients who have morgellons type symptoms also have severe bartonella(passed by ticks and insects along with Lyme babesia)Coinfections are microbes that are passed from the same tick or insect- the most common and debilitating are bartonella- bacterial, and babesia- protozoal, sister to malaria. I had both. Lyme is borrelia- a spiral shaped bacteria.AaOn Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...> wrote:

Thank you, Aandraya.

Do you know any more people who've been cured of Morgellons? What

have these doctors done for them, and do you know how much they

charge?

Thanks,

Jess

On 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can

go back, there's some waiting time to get in but they are

the best- Horowitz and Cameron. I know someone who saw

Cameron and she loves him. He was the president of

ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...>

wrote:

Thank you, . Yes, I guess I could do that,

but then there would have to be a way to figure out

my progress. I'd have to get a test done every so

often, and how would I know what doses to take? I

don't want to do something wrong and make these

things more powerful or immune to these medications.

Somebody here would have to explain very well the

process. If an MD can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@...

wrote:

There must be someone who

treats Lyme disease there in Mexico. I'll see

if anyone I know might know of someone too. But

Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>

bird mites

Sent: Monday, March 19, 2012 9:50:47

PM

Subject: Re: So the

fibers survive coconut oil?

It's been a little over a year, probably a

year and a half that I've had this. There's

been months where I've felt almost symptom

free, but I get re-infested when I go back to

places I visited when I first came back from

NYC with the huge infestation. My mother's

house is one of those places, very

unfortunately. Nobody in her house has felt

anything at all, it's just me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@...

wrote:

Jess

lives in Mexico. Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March 19, 2012

7:27:44 PM

Subject: Re: So

the fibers survive coconut oil?

No, that is one of many

combinations I was treated with. If

you haven't had it that long you could

start with Bactrim DS, Doxy 2-400 mg a

day, with Voriconazole, artemisinin.

But you need to see a Lyme literate

practitioner because you likely have

babesia and bartonella which requires

other meds. Dr. Stricker in CA is

excellent, don't know which part of CA

he's in but he treats Lyme/morgellons

patients. How long have you had this?

If more than a year it will take long

term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc

<helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin,

bactrim/ceftin rotation."

Would that be it? That's all you

needed to get rid of Morgellons?

Thanks.

On 3/19/2012 7:12 PM, Aandraya

wrote:

100%. I wear all my

clothes, rarely clean now

because I'm too tired

anyway... Now I'm dealing

with other symptoms.

Morgellons is a subgroup of

Lyme, there are sometimes

bugs involved, sometimes

mold, or all of the above.

You definitely have Lyme

disease and have to treat it

to get your immune system

back in charge.

Aa

On Mar 19, 2012, at 7:49 PM,

jessnyc <helpnynow@...>

wrote:

Aandraya, would you

mind telling me what

medications and in

what doses did you

take for the

Morgellons to go away

completely?

So you no longer can

get re-infested,

right? Even if you go

into infested areas or

wear infested

clothing? Are you

totally immune to it

now?

Thanks a lot,

Jess

On 3/19/2012 6:45 PM,

Aandraya wrote:

Just to add to

what said, I

found no quick fix

for the morgellons

stuff. It took a

solid year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19, 2012,

at 7:29 PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

Individual

Email |

Traditional

<*> To

change

settings

online go to:

bird mites/join

( ID

required)

<*> To

change

settings via

email:

bird mites-digest

bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

Link to comment
Share on other sites

Guest guest

Thank you, Aandraya.

Do you think I could treat myself without going to a doctor? Like,

getting the Igenex testing, and then getting the medications you

used? How did you know when to stop the treatment, did you get

tested continuously? Do you know for a fact that you're fully

recovered and that you don't have and left over infection that could

begin growing slowly again? I don't think I could afford expensive

treatment right now, but I might be able to afford the Igenex

testing and the meds alone, I just wonder if that would be enough.

I don't think I have any neurological symptoms, and the fiber

problem is not as severe as it used to be, although it is still

there, but that's the only symptom I have, the fibers.

Thanks a lot for the information.

Jess

On 3/20/2012 2:57 PM, Aandraya wrote:

 

Jess- the doctors treat them for Lyme and coinfections

because they all have it. I personally believe that all

Lyme patients who have morgellons type symptoms also have

severe bartonella(passed by ticks and insects along with

Lyme babesia)

Coinfections are microbes that are passed from the same

tick or insect- the most common and debilitating are

bartonella- bacterial, and babesia- protozoal, sister to

malaria.  I had both.  Lyme is borrelia- a spiral shaped

bacteria.

Aa

On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...>

wrote:

 

Thank you, Aandraya.

Do you know any more people who've been cured of 

Morgellons? What have these doctors done for them,

and do you know how much they charge?

Thanks,

Jess

On 3/20/2012 12:16 AM, Aandraya wrote:

 

You have two of the best LLMDs in New York if

you can go back, there's some waiting time to

get in but they are the best- Horowitz and

Cameron.  I know someone who saw Cameron and she

loves him.  He was the president of ILADS. 

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...>

wrote:

 

Thank you, . Yes, I guess I could

do that, but then there would have to be a

way to figure out my progress. I'd have to

get a test done every so often, and how

would I know what doses to take? I don't

want to do something wrong and make these

things more powerful or immune to these

medications. Somebody here would have to

explain very well the process. If an MD

can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@...

wrote:

 

There must be someone who

treats Lyme disease there in Mexico.

 I'll see if anyone I know might know

of someone too.  But Jess you could

get those drugs over-the-counter.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers survive coconut oil?

It's been a little over a year,

probably a year and a half that I've

had this. There's been months where

I've felt almost symptom free, but I

get re-infested when I go back to

places I visited when I first came

back from NYC with the huge

infestation. My mother's house is

one of those places, very

unfortunately. Nobody in her house

has felt anything at all, it's just 

me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@...

wrote:

 

Jess lives in

Mexico.  Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March

19, 2012 7:27:44 PM

Subject: Re:

So the fibers

survive coconut oil?

No, that is one of many

combinations I was treated

with.  If you haven't had it

that long you could start

with Bactrim DS, Doxy 2-400

mg a day, with Voriconazole,

artemisinin.  But you need

to see a Lyme literate

practitioner because you

likely have babesia and

bartonella which requires

other meds.  Dr. Stricker in

CA is excellent, don't know

which part of CA he's in but

he treats Lyme/morgellons

patients.  How long have you

had this?  If more than a

year it will take long term

treatment.

Aa

On Mar 19, 2012, at 8:31 PM,

jessnyc <helpnynow@...>

wrote:

 

Thanks, Aandraya.

"Voricon., levaquin,

bactrim/ceftin

rotation."

Would that be it?

That's all you needed

to get rid of

Morgellons?

Thanks.

On 3/19/2012 7:12 PM,

Aandraya wrote:

 

100%. I wear

all my clothes,

rarely clean now

because I'm too

tired anyway...

Now I'm dealing

with other

symptoms.

 Morgellons is a

subgroup of Lyme,

there are

sometimes bugs

involved,

sometimes mold, or

all of the above.

 You definitely

have Lyme disease

and have to treat

it to get your

immune system back

in charge.

Aa

On Mar 19, 2012,

at 7:49 PM,

jessnyc <helpnynow@...> wrote:

 

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

 

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff.  It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

 

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often.  It

does not seem

to do much to

clear out the

fibers.

 Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

 It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

 After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine... 

Read the

new post from

Aandraya.  She

knows a lot

about this and

has gotten rid

of the fibers.

 She has done

far more

medications

for Lyme and

co-infections

than anyone I

know.  She

also knows

more about

Lyme and

co-infections

than anyone I

know.  I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you.  I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more.  I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears.  I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin.  The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity.  I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

 

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up.  I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

 She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$.  She

did not get

help until she

started

antibiotics.

 If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

 

Hi

Jess,

It is

really good to

hear from you.

 I've thought

about you

often.  I'm in

the same boat

with the

similar

questions

about fibers.

 I wonder if

there is any

way to get rid

of the fibers

permanently.

 I feel them

floating and

landing on my

hands at

times.  I

don't know of

anyone who has

had fibers

that actually

got rid of

them.  Many on

this site did

not have

fibers, but

had mites

only.  Their

exposure to

mites did not

bring fibers.

 Mites for

sure can be

killed,

although with

tremendous

difficulty.  I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

 So many

people who had

mites end up

with the

fibers.  Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

 I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be.  Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

 That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one.  When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things.  I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months.  I

stored them in

a special box

designed for

slides.  The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

 Some

developed what

looked like a

pin head.  I

never saw any

of them move.

 

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.  

I think

there are

things that

disrupt the

energy of the

fibers.

 Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

 They also

seem to

reproduce in

homes.  Some

may be

programmed to

carry

diseases.  

I did not

find coconut

oil helpful on

the body.

 When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it.  So no, it

isn't just you

Jess.  It

never was just

you.  

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

    bird mites/

<*> Your

email

settings:

    Individual

Email |

Traditional

<*> To

change

settings

online go to:

    bird mites/join

    ( ID

required)

<*> To

change

settings via

email:

    bird mites-digest

    bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

    bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

    

Link to comment
Share on other sites

Guest guest

You would need a doctor to order the igenix test. If you have a mild case you might recover with Doxy and voriconazole. But if you already have fibers I'm not sure if that will do it. If you have the fibers you do have Lyme and it needs to be treated. Check out the Cowden protocol, you could do that wihout a doctor. Based on people I've known once you have fibers it's a long recovery and requires antifungals. AaOn Mar 20, 2012, at 6:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, Aandraya.

Do you think I could treat myself without going to a doctor? Like,

getting the Igenex testing, and then getting the medications you

used? How did you know when to stop the treatment, did you get

tested continuously? Do you know for a fact that you're fully

recovered and that you don't have and left over infection that could

begin growing slowly again? I don't think I could afford expensive

treatment right now, but I might be able to afford the Igenex

testing and the meds alone, I just wonder if that would be enough.

I don't think I have any neurological symptoms, and the fiber

problem is not as severe as it used to be, although it is still

there, but that's the only symptom I have, the fibers.

Thanks a lot for the information.

Jess

On 3/20/2012 2:57 PM, Aandraya wrote:

Jess- the doctors treat them for Lyme and coinfections

because they all have it. I personally believe that all

Lyme patients who have morgellons type symptoms also have

severe bartonella(passed by ticks and insects along with

Lyme babesia)

Coinfections are microbes that are passed from the same

tick or insect- the most common and debilitating are

bartonella- bacterial, and babesia- protozoal, sister to

malaria. I had both. Lyme is borrelia- a spiral shaped

bacteria.

Aa

On Mar 20, 2012, at 1:37 AM, jessnyc <helpnynow@...>

wrote:

Thank you, Aandraya.

Do you know any more people who've been cured of

Morgellons? What have these doctors done for them,

and do you know how much they charge?

Thanks,

Jess

On 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if

you can go back, there's some waiting time to

get in but they are the best- Horowitz and

Cameron. I know someone who saw Cameron and she

loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...>

wrote:

Thank you, . Yes, I guess I could

do that, but then there would have to be a

way to figure out my progress. I'd have to

get a test done every so often, and how

would I know what doses to take? I don't

want to do something wrong and make these

things more powerful or immune to these

medications. Somebody here would have to

explain very well the process. If an MD

can understand it, so can we.

On 3/19/2012 10:54 PM, Goldstein@...

wrote:

There must be someone who

treats Lyme disease there in Mexico.

I'll see if anyone I know might know

of someone too. But Jess you could

get those drugs over-the-counter.

From: "jessnyc"

<helpnynow@...>

bird mites

Sent: Monday, March 19, 2012

9:50:47 PM

Subject: Re:

So the fibers survive coconut oil?

It's been a little over a year,

probably a year and a half that I've

had this. There's been months where

I've felt almost symptom free, but I

get re-infested when I go back to

places I visited when I first came

back from NYC with the huge

infestation. My mother's house is

one of those places, very

unfortunately. Nobody in her house

has felt anything at all, it's just

me.

Thanks,

Jess

On 3/19/2012 10:47 PM, Goldstein@...

wrote:

Jess lives in

Mexico. Do you know of anyone

there?

From: "Aandraya"

<aandraya@...>

bird mites

Sent: Monday, March

19, 2012 7:27:44 PM

Subject: Re:

So the fibers

survive coconut oil?

No, that is one of many

combinations I was treated

with. If you haven't had it

that long you could start

with Bactrim DS, Doxy 2-400

mg a day, with Voriconazole,

artemisinin. But you need

to see a Lyme literate

practitioner because you

likely have babesia and

bartonella which requires

other meds. Dr. Stricker in

CA is excellent, don't know

which part of CA he's in but

he treats Lyme/morgellons

patients. How long have you

had this? If more than a

year it will take long term

treatment.

Aa

On Mar 19, 2012, at 8:31 PM,

jessnyc <helpnynow@...>

wrote:

Thanks, Aandraya.

"Voricon., levaquin,

bactrim/ceftin

rotation."

Would that be it?

That's all you needed

to get rid of

Morgellons?

Thanks.

On 3/19/2012 7:12 PM,

Aandraya wrote:

100%. I wear

all my clothes,

rarely clean now

because I'm too

tired anyway...

Now I'm dealing

with other

symptoms.

Morgellons is a

subgroup of Lyme,

there are

sometimes bugs

involved,

sometimes mold, or

all of the above.

You definitely

have Lyme disease

and have to treat

it to get your

immune system back

in charge.

Aa

On Mar 19, 2012,

at 7:49 PM,

jessnyc <helpnynow@...> wrote:

Aandraya,

would you mind

telling me

what

medications

and in what

doses did you

take for the

Morgellons to

go away

completely?

So you no

longer can get

re-infested,

right? Even if

you go into

infested areas

or wear

infested

clothing? Are

you totally

immune to it

now?

Thanks a lot,

Jess

On 3/19/2012

6:45 PM,

Aandraya

wrote:

Just to

add to what

said, I

found no quick

fix for the

morgellons

stuff. It

took a solid

year of

antimicrobial

agents- rx and

herbal to cure

that stuff.

Aandraya

On Mar 19,

2012, at 7:29

PM, Goldstein@...

wrote:

Jess,

I have a

FAR infrared

"Rainbow"

which I use

often. It

does not seem

to do much to

clear out the

fibers.

Although I

have rarely

used in on my

head but

mainly use it

on feet, legs,

abdomen and

upper torso.

It does warm

the body in a

way I've never

experienced

before...

raises the

body

temperature.

After being

under the

Rainbow for 45

min to 2 hours

I feel a

laziness and

lack of

clarity...

almost like

having had a

few glasses of

good wine...

Read the

new post from

Aandraya. She

knows a lot

about this and

has gotten rid

of the fibers.

She has done

far more

medications

for Lyme and

co-infections

than anyone I

know. She

also knows

more about

Lyme and

co-infections

than anyone I

know. I'm

going to defer

to her because

she obviously

knows more and

done more...

I'm in the

same boat as

you. I'm in

the learning

curve on

this... so

good to hear

from you!

What is

weird is that

I do not get

these things

crawling on

the face any

more. I have

nothing that

feels like a

mite crawling

in nose, eyes,

eyebrows,

hair, ears. I

get what feels

like a fiber

falling on an

eyelash very

occasionally,

I get symptoms

of eyes

blurry,

watery, when I

don't take the

combination of

Doxy and

Rifampin. The

combination

keeps the eye

symptoms in

check, but so

far has not

solved the

problem and

I'm about 4

months into

taking the

combination.

The greasy

waxy stuff I

get on my

face, neck and

head comes and

goes in

intensity. I

have stopped

gettring the

little papules

and pimples

that I had

been getting.

What I'm

dealing with

now is

intestinal

problems from

the injections

I've been

getting and am

waiting for a

message from

my LLMD about

whether to

stop meds

until that

gets cleared

up. I suspect

I might have

the C. Diff...

Dr.

Staninger has

a whole

protocol and

remember Zoe?

She and her

husband did

the whole

protocol from

Dr. S and were

not helped by

it after

spending

$$$$$$. She

did not get

help until she

started

antibiotics.

If you don't

have her

protocol I'll

post it again.

From:

"jessnyc"

<helpnynow@...>

bird mites

Sent: Monday,

March 19, 2012

5:15:42 PM

Subject: Re:

So the fibers

survive

coconut oil?

Hi ,

Thank you for

your response.

It's good to

hear from you

too, and I've

thought about

you too! Your

experience

mirrors mine

pretty

accurately. I

don't know

whether the

fibers are

"alive" in the

sense we know,

but to me they

seem

programmed

somehow. I

also see them

floating

around, and I

definitely got

them from

mites. When I

got rid of the

mites

completely,

the fibers

were already

in me and have

never left me.

I was able to

reduce the

amounts I used

to have by

cleaning very

often and

getting rid of

things, but I

keep getting

re-infested.

One thing I've

noticed is

that they are

programmed to

infest

ANYTHING that

I come in

contact with.

That includes

people, places

and food. When

I was at my

worst, I was

afraid of

getting close

to people

because

friends/acquaintances

would begin

scratching

their hair,

nose and face

(the areas

where I feel

the most

crawling) and

I could

immediately

sense the

fibers were

leaving my

body because I

had goose

pumps whenever

I approached

someone. It

was weird, the

goose pumps

would signal

something was

going on and

immediately

the person

started

scratching.

When I go to

visit friends,

I can see the

fibers begin

to float

around in

their homes,

and when I

return to that

particular

place, I start

to get the

crawlings in

my scalp, nose

and face. It's

happened for

so long that I

have

definitely

seen a clear

pattern.

So these

researchers

may be right,

these must be

nano products.

How could

anyone explain

this pattern?

I too, have

found my ears

plugs full of

fibers. What

I've done is

soak them in

hot water with

borax and

epsom salts.

When I take

out the plugs

after several

hours of

soaking, I

find hundreds

of fibers in

the water. I

look with a

lamp and can

clearly see

there's lots

of them. I

also use a

lint roll and

I've used it

all over my

head, face,

clothing, etc.

I've found the

stuff they

talk about on

TV: Black, red

and blue

fibers.

They're bright

blue and

bright red,

and some are

just white or

clear, and

very long.

Others are

tiny.

What a

mystery, but

they're truly

a pain. I

wonder if it's

true that the

only remedy is

what Dr.

Staninger

says? Far

infrared

therapy? Has

anyone tried

it?

Thank you

, good to

hear from you

again,

Jess

On 3/19/2012

5:46 PM, Goldstein@...

wrote:

Hi

Jess,

It is

really good to

hear from you.

I've thought

about you

often. I'm in

the same boat

with the

similar

questions

about fibers.

I wonder if

there is any

way to get rid

of the fibers

permanently.

I feel them

floating and

landing on my

hands at

times. I

don't know of

anyone who has

had fibers

that actually

got rid of

them. Many on

this site did

not have

fibers, but

had mites

only. Their

exposure to

mites did not

bring fibers.

Mites for

sure can be

killed,

although with

tremendous

difficulty. I

don't know

what makes the

fibers, but

they are part

of what

defines

Morgellons.

So many

people who had

mites end up

with the

fibers. Some

people think

they are a

by-product of

a mite or

parasite, or

bacteria and

some ppl

believe they

are alive.

I'm a member

of the group

that believes

they are

living,

although don't

have any idea

how that could

be. Maybe

investigators,

although very

controversial,

believe they

are nano

products, and

I think they

maybe are.

That's just

an opinion...

I'm not the

one to come up

with this as

there are

plenty of

knowledgable

people who

have said

this... Dr.

Hildegard

Staninger for

one. When I

had a

microscope and

was collecting

fibers and

looking at

them under the

digital scope

I found some

interesting

things. I

would put the

fibers on

slides, cover

them in

emersion oil

and a thin

glass sheet

over the top

and look at

the fibers

over a period

of months. I

stored them in

a special box

designed for

slides. The

fibers

themselves

changed over

time from

month to month

(some did,

some did not).

Some

developed what

looked like a

pin head. I

never saw any

of them move.

I really

wish I had a

microscope

again, but I

haven't found

one that hooks

up with

software for

an iMac which

I have now.

I think

there are

things that

disrupt the

energy of the

fibers.

Scientists

may have found

a way to

create life

and I think

the fibers are

self

creating... in

the human body

they have what

they need to

reproduce

successfully.

They also

seem to

reproduce in

homes. Some

may be

programmed to

carry

diseases.

I did not

find coconut

oil helpful on

the body.

When I put it

on my hands

and feet it

seemed to dry

my skin out

further so I

stopped using

it. So no, it

isn't just you

Jess. It

never was just

you.

From:

"jessnyc"

<helpnynow@...>

"Birdmites.org

Website"

<bird mites >

Sent: Monday,

March 19, 2012

3:29:50 PM

Subject:

So the fibers

survive

coconut oil?

I had thought

that coconut

oil was a

remedy for

these fibers.

I bought

some and had a

small jar next

to me at all

times.

When the oil

was in liquid

form, I

noticed that

the fibers

somehow

managed to get

in the oil, my

little jar had

suddenly like

10 or more

fibers. After

a while I saw

they all stuck

together, and

eventually I

began seeing

more and more

of them.

I wonder if

they

reproduced in

the oil and

assembled

themselves

together?

That's what it

looked like to

me, my little

jar is full of

some big and

some tiny

fibers,

they're mostly

blue red or

black, some

are also white

and hard to

see.

I guess this

shows they

don't die with

coconut oil,

they thrive

and

reproduce in

it.

Jesus, is

there anything

remedy that

actually kills

them? I

haven't

found anything

that would

really kill

them.

Has anyone had

any success

with coconut

oil? Or is it

just me?

Jess.

------------------------------------

Links

<*> To

visit your

group on the

web, go to:

bird mites/

<*> Your

email

settings:

Individual

Email |

Traditional

<*> To

change

settings

online go to:

bird mites/join

( ID

required)

<*> To

change

settings via

email:

bird mites-digest

bird mites-fullfeatured

<*> To

unsubscribe

from this

group, send an

email to:

bird mites-unsubscribe

<*> Your

use of

Groups is

subject to:

Link to comment
Share on other sites

Guest guest

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year,

probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the

fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends,

I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only

remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus,

is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------

Link to comment
Share on other sites

Guest guest

Aggi,The spirochetes have an intelligence - they are intelligent enough to change form when threatened into 4 distinct forms. 1) spiral form in form of spirochete; 2) an L form which can hide in cells 3) a cyst form which is protected because it is a shell consisting of a cyst and 4) a biofilm form where they work in collaboration with fungi, parasites, bacterias and viruses. I see no reason that the borrelia could not have a strong affinity for something else to protect it, collagen fibers. I know spirochetes are very very difficult to culture, so if the fibers have been cultured and there are spirochetes inside, those may not be cultured, so nearly impossible to detect. Anything is possible Aggi. All I know is that I do still have fibers... I wonder if I have as many as at the beginning 4 years ago. I don't think so, so the antibiotics change where they are reproducing, the body. Good thinking Aggi. It is an interesting possible theory and all are worth pondering. All I know is that if one of these floating fibers falls on me, particularly some place with hair, it manages to wiggle its way down the shaft of the hair. So maybe there is a spirochete inside. Thanks Aggi!From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Wednesday, March 21, 2012 7:20:42 AMSubject: Re: So the fibers survive coconut oil?

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year,

probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the

fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends,

I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only

remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus,

is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------

Link to comment
Share on other sites

Guest guest

I think anything is possible. In my case an organism was wrapping in clothing fuzz and embedding in my skin, other things were byproducts of chronic infections including molds.AaOn Mar 21, 2012, at 9:20 AM, Aggi Assmann <aggi_assmann@...> wrote:

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year,

probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the

fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends,

I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only

remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus,

is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------

Link to comment
Share on other sites

Guest guest

- have you done a cystbuster? Flagyl or tindamax?AaOn Mar 21, 2012, at 10:17 AM, Goldstein@... wrote:

Aggi,The spirochetes have an intelligence - they are intelligent enough to change form when threatened into 4 distinct forms. 1) spiral form in form of spirochete; 2) an L form which can hide in cells 3) a cyst form which is protected because it is a shell consisting of a cyst and 4) a biofilm form where they work in collaboration with fungi, parasites, bacterias and viruses. I see no reason that the borrelia could not have a strong affinity for something else to protect it, collagen fibers. I know spirochetes are very very difficult to culture, so if the fibers have been cultured and there are spirochetes inside, those may not be cultured, so nearly impossible to detect. Anything is possible Aggi. All I know is that I do still have fibers... I wonder if I have as many as at the beginning 4 years ago. I don't think so, so the antibiotics change where they are reproducing, the body. Good thinking Aggi. It is an interesting possible theory and all are worth pondering. All I know is that if one of these floating fibers falls on me, particularly some place with hair, it manages to wiggle its way down the shaft of the hair. So maybe there is a spirochete inside. Thanks Aggi!From: "Aggi Assmann" <aggi_assmann@...>bird mites Sent: Wednesday, March 21, 2012 7:20:42 AMSubject: Re: So the fibers survive coconut oil?

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year,

probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the

fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends,

I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only

remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March 19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus,

is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------

Link to comment
Share on other sites

Guest guest

My daughter in Boston learned a year and a half ago when she went to an herb shop to ask what could help me that the mite problem was common in Boston. The man said he is always selling to people with that problem. He told my daughter things to suggest to me. If it is that common in Boston, then New York must be a given. From: miteymaid <miteymaid@...> bird mites Sent: Monday, March 19, 2012 8:41 PM Subject: Re: So the fibers survive coconut oil?

I wonder how many people in NYC suffer from some sort of infestation. I was having my own exterminator spray but now the building management says I can't and they won't do anything themselves because their exterminating company and it's entomologist don't believe mites can cross over. If there were some sort of central place people could go here maybe something would be done. I wonder if I would be better off spraying Lysol around instead. I figure I get the apartment sprayed with pesticide every few months and then hit smaller areas with alcohol and lysol but now not sure what to do again. Hate all these chemicals and pesticides but need to do something. Also saw Dr. Zhang and I really didn't have any symptoms of Lyme just the bugs so he gave me some pills to make me less allergic to them but he kept saying dust mites when he said mites were all around and I'd never be able to get rid of them, which I agree but since I'm not dealing with dust mites I'm

trying the meds for two weeks and see what happens. Thing about Chinese herbs, they're written on the container but I don't know anything about them. Are you in Brooklyn? The doctors I went to said they had someone else come in with mites or morgellons but they didn't treat. Now if I go somewhere I try to find out if they have others come with same problem. Maybe it doesn't matter because they never seem to be able to help anyway.

> >

> > Hi Jess,

> >

> > It is really good to hear from you. I've thought about you often.

> > I'm in the same boat with the similar questions about fibers. I

> > wonder if there is any way to get rid of the fibers permanently. I

> > feel them floating and landing on my hands at times. I don't know of

> > anyone who has had fibers that actually got rid of them. Many on this

> > site did not have fibers, but had mites only. Their exposure to mites

> > did not bring fibers. Mites for sure can be killed, although with

> > tremendous difficulty. I don't know what makes the fibers, but they

> > are part of what defines Morgellons. So many people who had mites end

> > up with the fibers. Some people think they are a by-product of a mite

> > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > member of the group that believes they are living, although don't have

> > any idea how that could be. Maybe investigators, although very

> > controversial, believe they are nano products, and I think they maybe

> > are. That's just an opinion... I'm not the one to come up with this

> > as there are plenty of knowledgable people who have said this... Dr.

> > Hildegard Staninger for one. When I had a microscope and was

> > collecting fibers and looking at them under the digital scope I found

> > some interesting things. I would put the fibers on slides, cover them

> > in emersion oil and a thin glass sheet over the top and look at the

> > fibers over a period of months. I stored them in a special box

> > designed for slides. The fibers themselves changed over time from

> > month to month (some did, some did not). Some developed what looked

> > like a pin head. I never saw any of them move.

> >

> > I really wish I had a microscope again, but I haven't found one that

> > hooks up with software for an iMac which I have now.

> >

> > I think there are things that disrupt the energy of the fibers.

> > Scientists may have found a way to create life and I think the fibers

> > are self creating... in the human body they have what they need to

> > reproduce successfully. They also seem to reproduce in homes. Some

> > may be programmed to carry diseases.

> >

> > I did not find coconut oil helpful on the body. When I put it on my

> > hands and feet it seemed to dry my skin out further so I stopped using

> > it. So no, it isn't just you Jess. It never was just you.

> >

> >

> >

> > ----------------------------------------------------------

> > *From: *"jessnyc" <helpnynow@...>

> > **"Birdmites.org Website" <bird mites >

> > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > *Subject: * So the fibers survive coconut oil?

> >

> > I had thought that coconut oil was a remedy for these fibers. I bought

> > some and had a small jar next to me at all times.

> >

> > When the oil was in liquid form, I noticed that the fibers somehow

> > managed to get in the oil, my little jar had suddenly like 10 or more

> > fibers. After a while I saw they all stuck together, and eventually I

> > began seeing more and more of them.

> >

> > I wonder if they reproduced in the oil and assembled themselves

> > together? That's what it looked like to me, my little jar is full of

> > some big and some tiny fibers, they're mostly blue red or black, some

> > are also white and hard to see.

> >

> > I guess this shows they don't die with coconut oil, they thrive and

> > reproduce in it.

> >

> > Jesus, is there anything remedy that actually kills them? I haven't

> > found anything that would really kill them.

> >

> > Has anyone had any success with coconut oil? Or is it just me?

> >

> > Jess.

> >

> >

> >

> >

> > ------------------------------------

> >

> >

Link to comment
Share on other sites

Guest guest

Aggie, give me a little time to answer you. I'm in the middle of a discovery but don't want to comment until the experiment is over. You may be on to something.Love and light, From: Aggi Assmann <aggi_assmann@...> "bird mites " <bird mites > Sent: Wednesday, March 21, 2012 10:20 AM Subject: Re: So the fibers survive coconut oil?

Guys, just been reading something really interesting on a website about Lyme disease.

It says that the borrelia has a strong affinity to collagen fibres, because wrapped up in these fibres it protects them from being attacked by the immune system of the body. So I couldn't help, but wonder if

- it is the borrelia floating around, docking fibres and this is what we see floating through the air (we all seem to have a higher presence of floaters in the air)

- the fuzz balls many of us here have reported of are something like the 2nd stage of accumulated fibres, protecting the borrelia embedded deep inside

- the mites or whatever parasite biting us transporting the fibres including the borrelia into our system and for this simple reason they just love our couches, mattresses, clothes and carpets best ?

Could this all be the Lyme/Morgellon correlation, or is it totally naive thinking that way ?

Comments please ! ;-)

Von: jessnyc <helpnynow@...>An: bird mites Gesendet: 7:37 Dienstag, 20.März 2012Betreff: Re: So the fibers survive coconut oil?

Thank you, Aandraya.Do you know any more people who've been cured of Morgellons? What have these doctors done for them, and do you know how much they charge?Thanks,JessOn 3/20/2012 12:16 AM, Aandraya wrote:

You have two of the best LLMDs in New York if you can go back, there's some waiting time to get in but they are the best- Horowitz and Cameron. I know someone who saw Cameron and she loves him. He was the president of ILADS.

Aa

On Mar 19, 2012, at 11:57 PM, jessnyc <helpnynow@...> wrote:

Thank you, . Yes, I guess I could do that, but then there would have to be a way to figure out my progress. I'd have to get a test done every so often, and how would I know what doses to take? I don't want to do something wrong and make these things more powerful or immune to these medications. Somebody here would have to explain very well the process. If an MD can understand it, so can we. On 3/19/2012 10:54 PM, Goldstein@... wrote:

There must be someone who treats Lyme disease there in Mexico. I'll see if anyone I know might know of someone too. But Jess you could get those drugs over-the-counter.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 9:50:47 PMSubject: Re: So the fibers survive coconut oil?It's been a little over a year,

probably a year and a half that I've had this. There's been months where I've felt almost symptom free, but I get re-infested when I go back to places I visited when I first came back from NYC with the huge infestation. My mother's house is one of those places, very unfortunately. Nobody in her house has felt anything at all, it's just me. Thanks,JessOn 3/19/2012 10:47 PM, Goldstein@... wrote:

Jess lives in Mexico. Do you know of anyone there?

From: "Aandraya" <aandraya@...>bird mites Sent: Monday, March 19, 2012 7:27:44 PMSubject: Re: So the fibers survive coconut oil?

No, that is one of many combinations I was treated with. If you haven't had it that long you could start with Bactrim DS, Doxy 2-400 mg a day, with Voriconazole, artemisinin. But you need to see a Lyme literate practitioner because you likely have babesia and bartonella which requires other meds. Dr. Stricker in CA is excellent, don't know which part of CA he's in but he treats Lyme/morgellons patients. How long have you had this? If more than a year it will take long term treatment.

Aa

On Mar 19, 2012, at 8:31 PM, jessnyc <helpnynow@...> wrote:

Thanks, Aandraya."Voricon., levaquin, bactrim/ceftin rotation." Would that be it? That's all you needed to get rid of Morgellons?Thanks. On 3/19/2012 7:12 PM, Aandraya wrote:

100%. I wear all my clothes, rarely clean now because I'm too tired anyway... Now I'm dealing with other symptoms. Morgellons is a subgroup of Lyme, there are sometimes bugs involved, sometimes mold, or all of the above. You definitely have Lyme disease and have to treat it to get your immune system back in charge.

Aa

On Mar 19, 2012, at 7:49 PM, jessnyc <helpnynow@...> wrote:

Aandraya, would you mind telling me what medications and in what doses did you take for the Morgellons to go away completely?So you no longer can get re-infested, right? Even if you go into infested areas or wear infested clothing? Are you totally immune to it now?Thanks a lot,JessOn 3/19/2012 6:45 PM, Aandraya wrote:

Just to add to what said, I found no quick fix for the morgellons stuff. It took a solid year of antimicrobial agents- rx and herbal to cure that stuff.

Aandraya

On Mar 19, 2012, at 7:29 PM, Goldstein@... wrote:

Jess,

I have a FAR infrared "Rainbow" which I use often. It does not seem to do much to clear out the fibers. Although I have rarely used in on my head but mainly use it on feet, legs, abdomen and upper torso. It does warm the body in a way I've never experienced before... raises the body temperature. After being under the Rainbow for 45 min to 2 hours I feel a laziness and lack of clarity... almost like having had a few glasses of good wine...

Read the new post from Aandraya. She knows a lot about this and has gotten rid of the fibers. She has done far more medications for Lyme and co-infections than anyone I know. She also knows more about Lyme and co-infections than anyone I know. I'm going to defer to her because she obviously knows more and done more... I'm in the same boat as you. I'm in the learning curve on this... so good to hear from you!

What is weird is that I do not get these things crawling on the face any more. I have nothing that feels like a mite crawling in nose, eyes, eyebrows, hair, ears. I get what feels like a fiber falling on an eyelash very occasionally, I get symptoms of eyes blurry, watery, when I don't take the combination of Doxy and Rifampin. The combination keeps the eye symptoms in check, but so far has not solved the problem and I'm about 4 months into taking the combination. The greasy waxy stuff I get on my face, neck and head comes and goes in intensity. I have stopped gettring the little papules and pimples that I had been getting.

What I'm dealing with now is intestinal problems from the injections I've been getting and am waiting for a message from my LLMD about whether to stop meds until that gets cleared up. I suspect I might have the C. Diff...

Dr. Staninger has a whole protocol and remember Zoe? She and her husband did the whole protocol from Dr. S and were not helped by it after spending $$$$$$. She did not get help until she started antibiotics. If you don't have her protocol I'll post it again.

From: "jessnyc" <helpnynow@...>bird mites Sent: Monday, March 19, 2012 5:15:42 PMSubject: Re: So the fibers survive coconut oil?Hi ,Thank you for your response. It's good to hear from you too, and I've thought about you too! Your experience mirrors mine pretty accurately. I don't know whether the

fibers are "alive" in the sense we know, but to me they seem programmed somehow. I also see them floating around, and I definitely got them from mites. When I got rid of the mites completely, the fibers were already in me and have never left me. I was able to reduce the amounts I used to have by cleaning very often and getting rid of things, but I keep getting re-infested.One thing I've noticed is that they are programmed to infest ANYTHING that I come in contact with. That includes people, places and food. When I was at my worst, I was afraid of getting close to people because friends/acquaintances would begin scratching their hair, nose and face (the areas where I feel the most crawling) and I could immediately sense the fibers were leaving my body because I had goose pumps whenever I approached someone. It was weird, the goose pumps would signal something was going on and immediately the person started scratching. When I go to visit friends,

I can see the fibers begin to float around in their homes, and when I return to that particular place, I start to get the crawlings in my scalp, nose and face. It's happened for so long that I have definitely seen a clear pattern. So these researchers may be right, these must be nano products. How could anyone explain this pattern? I too, have found my ears plugs full of fibers. What I've done is soak them in hot water with borax and epsom salts. When I take out the plugs after several hours of soaking, I find hundreds of fibers in the water. I look with a lamp and can clearly see there's lots of them. I also use a lint roll and I've used it all over my head, face, clothing, etc. I've found the stuff they talk about on TV: Black, red and blue fibers. They're bright blue and bright red, and some are just white or clear, and very long. Others are tiny.What a mystery, but they're truly a pain. I wonder if it's true that the only

remedy is what Dr. Staninger says? Far infrared therapy? Has anyone tried it? Thank you , good to hear from you again,JessOn 3/19/2012 5:46 PM, Goldstein@... wrote:

Hi Jess,

It is really good to hear from you. I've thought about you often. I'm in the same boat with the similar questions about fibers. I wonder if there is any way to get rid of the fibers permanently. I feel them floating and landing on my hands at times. I don't know of anyone who has had fibers that actually got rid of them. Many on this site did not have fibers, but had mites only. Their exposure to mites did not bring fibers. Mites for sure can be killed, although with tremendous difficulty. I don't know what makes the fibers, but they are part of what defines Morgellons. So many people who had mites end up with the fibers. Some people think they are a by-product of a mite or parasite, or bacteria and some ppl believe they are alive. I'm a member of the group that believes they are living, although don't have any idea how that could be. Maybe investigators, although very

controversial, believe they are nano products, and I think they maybe are. That's just an opinion... I'm not the one to come up with this as there are plenty of knowledgable people who have said this... Dr. Hildegard Staninger for one. When I had a microscope and was collecting fibers and looking at them under the digital scope I found some interesting things. I would put the fibers on slides, cover them in emersion oil and a thin glass sheet over the top and look at the fibers over a period of months. I stored them in a special box designed for slides. The fibers themselves changed over time from month to month (some did, some did not). Some developed what looked like a pin head. I never saw any of them move.

I really wish I had a microscope again, but I haven't found one that hooks up with software for an iMac which I have now.

I think there are things that disrupt the energy of the fibers. Scientists may have found a way to create life and I think the fibers are self creating... in the human body they have what they need to reproduce successfully. They also seem to reproduce in homes. Some may be programmed to carry diseases.

I did not find coconut oil helpful on the body. When I put it on my hands and feet it seemed to dry my skin out further so I stopped using it. So no, it isn't just you Jess. It never was just you.

From: "jessnyc" <helpnynow@...>"Birdmites.org Website" <bird mites >Sent: Monday, March

19, 2012 3:29:50 PMSubject: So the fibers survive coconut oil?I had thought that coconut oil was a remedy for these fibers. I boughtsome and had a small jar next to me at all times.When the oil was in liquid form, I noticed that the fibers somehowmanaged to get in the oil, my little jar had suddenly like 10 or morefibers. After a while I saw they all stuck together, and eventually Ibegan seeing more and more of them.I wonder if they reproduced in the oil and assembled themselvestogether? That's what it looked like to me, my little jar is full ofsome big and some tiny fibers, they're mostly blue red or black, someare also white and hard to see.I guess this shows they don't die with coconut oil, they thrive andreproduce in it.Jesus,

is there anything remedy that actually kills them? I haven'tfound anything that would really kill them.Has anyone had any success with coconut oil? Or is it just me?Jess.------------------------------------

Link to comment
Share on other sites

Guest guest

I wonder what the herb person recommended for mites and if it worked. I know

Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about

mite infestations or if people were coming to him with this problem but although

he is Lyme literate he didn't seem to know what I was talking about and gave me

some pills that are supposed to make me less sensitive. So far I see no

difference. When I go back again I'll try asking more about Lyme.I wondered if

there was a way of getting all those together with this problem in NYC to demand

some action but I wouldn't know where to begin. Inasked several doctors I'd seen

previously if they'd had people come with similar stories and I had at least one

person for each doctor. The entomologist who came by without any equipment, no

scope, nothing, said he had someone tell him mites were coming out of her

cavities, at least that's what I think he said and I didn't know how tonanswer

him. I gave examples of what I'd observed but he dismissed everything cause I

had no proof.

E

> > >

> > > Hi Jess,

> > >

> > > It is really good to hear from you. I've thought about you often.

> > > I'm in the same boat with the similar questions about fibers. I

> > > wonder if there is any way to get rid of the fibers permanently. I

> > > feel them floating and landing on my hands at times. I don't know of

> > > anyone who has had fibers that actually got rid of them. Many on this

> > > site did not have fibers, but had mites only. Their exposure to mites

> > > did not bring fibers. Mites for sure can be killed, although with

> > > tremendous difficulty. I don't know what makes the fibers, but they

> > > are part of what defines Morgellons. So many people who had mites end

> > > up with the fibers. Some people think they are a by-product of a mite

> > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > member of the group that believes they are living, although don't have

> > > any idea how that could be. Maybe investigators, although very

> > > controversial, believe they are nano products, and I think they maybe

> > > are. That's just an opinion... I'm not the one to come up with this

> > > as there are plenty of knowledgable people who have said this... Dr.

> > > Hildegard Staninger for one. When I had a microscope and was

> > > collecting fibers and looking at them under the digital scope I found

> > > some interesting things. I would put the fibers on slides, cover them

> > > in emersion oil and a thin glass sheet over the top and look at the

> > > fibers over a period of months. I stored them in a special box

> > > designed for slides. The fibers themselves changed over time from

> > > month to month (some did, some did not). Some developed what looked

> > > like a pin head. I never saw any of them move.

> > >

> > > I really wish I had a microscope again, but I haven't found one that

> > > hooks up with software for an iMac which I have now.

> > >

> > > I think there are things that disrupt the energy of the fibers.

> > > Scientists may have found a way to create life and I think the fibers

> > > are self creating... in the human body they have what they need to

> > > reproduce successfully. They also seem to reproduce in homes. Some

> > > may be programmed to carry diseases.

> > >

> > > I did not find coconut oil helpful on the body. When I put it on my

> > > hands and feet it seemed to dry my skin out further so I stopped using

> > > it. So no, it isn't just you Jess. It never was just you.

> > >

> > >

> > >

> > > ----------------------------------------------------------

> > > *From: * " jessnyc " <helpnynow@>

> > > ** " Birdmites.org Website " <bird mites >

> > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > *Subject: * So the fibers survive coconut oil?

> > >

> > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > some and had a small jar next to me at all times.

> > >

> > > When the oil was in liquid form, I noticed that the fibers somehow

> > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > fibers. After a while I saw they all stuck together, and eventually I

> > > began seeing more and more of them.

> > >

> > > I wonder if they reproduced in the oil and assembled themselves

> > > together? That's what it looked like to me, my little jar is full of

> > > some big and some tiny fibers, they're mostly blue red or black, some

> > > are also white and hard to see.

> > >

> > > I guess this shows they don't die with coconut oil, they thrive and

> > > reproduce in it.

> > >

> > > Jesus, is there anything remedy that actually kills them? I haven't

> > > found anything that would really kill them.

> > >

> > > Has anyone had any success with coconut oil? Or is it just me?

> > >

> > > Jess.

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

Link to comment
Share on other sites

Guest guest

E-I'm surprised because Dr. Zhang is good friends with Dr. Schaller, my first LLMD, and he knew about the bug infestations and morgellons symptoms. Do you have anything coming out of your skin? Tell Dr. Zhang you want to do his full Lyme protocol including the HH2, Art2, and Allicin.AandrayaOn Mar 21, 2012, at 6:47 PM, miteymaid <miteymaid@...> wrote:

I wonder what the herb person recommended for mites and if it worked. I know Aandraa is recommending samento and banderol. I asked Dr. Zhang if he knew about mite infestations or if people were coming to him with this problem but although he is Lyme literate he didn't seem to know what I was talking about and gave me some pills that are supposed to make me less sensitive. So far I see no difference. When I go back again I'll try asking more about Lyme.I wondered if there was a way of getting all those together with this problem in NYC to demand some action but I wouldn't know where to begin. Inasked several doctors I'd seen previously if they'd had people come with similar stories and I had at least one person for each doctor. The entomologist who came by without any equipment, no scope, nothing, said he had someone tell him mites were coming out of her cavities, at least that's what I think he said and I didn't know how tonanswer him. I gave examples of what I'd observed but he dismissed everything cause I had no proof.

E

> > >

> > > Hi Jess,

> > >

> > > It is really good to hear from you. I've thought about you often.

> > > I'm in the same boat with the similar questions about fibers. I

> > > wonder if there is any way to get rid of the fibers permanently. I

> > > feel them floating and landing on my hands at times. I don't know of

> > > anyone who has had fibers that actually got rid of them. Many on this

> > > site did not have fibers, but had mites only. Their exposure to mites

> > > did not bring fibers. Mites for sure can be killed, although with

> > > tremendous difficulty. I don't know what makes the fibers, but they

> > > are part of what defines Morgellons. So many people who had mites end

> > > up with the fibers. Some people think they are a by-product of a mite

> > > or parasite, or bacteria and some ppl believe they are alive. I'm a

> > > member of the group that believes they are living, although don't have

> > > any idea how that could be. Maybe investigators, although very

> > > controversial, believe they are nano products, and I think they maybe

> > > are. That's just an opinion... I'm not the one to come up with this

> > > as there are plenty of knowledgable people who have said this... Dr.

> > > Hildegard Staninger for one. When I had a microscope and was

> > > collecting fibers and looking at them under the digital scope I found

> > > some interesting things. I would put the fibers on slides, cover them

> > > in emersion oil and a thin glass sheet over the top and look at the

> > > fibers over a period of months. I stored them in a special box

> > > designed for slides. The fibers themselves changed over time from

> > > month to month (some did, some did not). Some developed what looked

> > > like a pin head. I never saw any of them move.

> > >

> > > I really wish I had a microscope again, but I haven't found one that

> > > hooks up with software for an iMac which I have now.

> > >

> > > I think there are things that disrupt the energy of the fibers.

> > > Scientists may have found a way to create life and I think the fibers

> > > are self creating... in the human body they have what they need to

> > > reproduce successfully. They also seem to reproduce in homes. Some

> > > may be programmed to carry diseases.

> > >

> > > I did not find coconut oil helpful on the body. When I put it on my

> > > hands and feet it seemed to dry my skin out further so I stopped using

> > > it. So no, it isn't just you Jess. It never was just you.

> > >

> > >

> > >

> > > ----------------------------------------------------------

> > > *From: *"jessnyc" <helpnynow@>

> > > **"Birdmites.org Website" <bird mites >

> > > *Sent: *Monday, March 19, 2012 3:29:50 PM

> > > *Subject: * So the fibers survive coconut oil?

> > >

> > > I had thought that coconut oil was a remedy for these fibers. I bought

> > > some and had a small jar next to me at all times.

> > >

> > > When the oil was in liquid form, I noticed that the fibers somehow

> > > managed to get in the oil, my little jar had suddenly like 10 or more

> > > fibers. After a while I saw they all stuck together, and eventually I

> > > began seeing more and more of them.

> > >

> > > I wonder if they reproduced in the oil and assembled themselves

> > > together? That's what it looked like to me, my little jar is full of

> > > some big and some tiny fibers, they're mostly blue red or black, some

> > > are also white and hard to see.

> > >

> > > I guess this shows they don't die with coconut oil, they thrive and

> > > reproduce in it.

> > >

> > > Jesus, is there anything remedy that actually kills them? I haven't

> > > found anything that would really kill them.

> > >

> > > Has anyone had any success with coconut oil? Or is it just me?

> > >

> > > Jess.

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...