Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 It was easy to get it approved b/c it is cheaper than IVIG in the hospital. I knew the immunologists were switching to SCIG, so I told our hematologist that we wanted to go to SCIG-especially after J had a bad reaction to IVIG (hem witnessed it) the first company that came out set us up with the autoinjectors and the minimed sets and when we were forced to switch home health care companies, we told them we wanted to continue using these sets--- J had OCD and was already freaking out about switching pumps.and had a hard transition from IVIG to SCIG-he doesn't adapt to change well. The new company even gave us a new autoinjector (I have two kids, but they gave us one) Peace, Pattie Have courage for the great sorrows of life and patience for the small ones. And when you have finished your daily task, go to sleep in peace. God is awake. ~ Victor Hugo How did you get approved? This is the first I have heard about these. I live in Mont Al and my son is the first child in the area to do SubQ. He is breaking the drs in over here. LOL Any info I get is through ya'll. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 127,000 Is a medium number but on the hep c pcr rna any number is considered abnormal . But in terms of the numbers , anything over 2 million is the begining of the high range . You stand of a good chance of clearing if you haven't treated before . But with your geno type the odds do drop some. Aprox 65% of treatment nieve patients can accheive SVR ( sustained viralogical response) which means clear of the viral load . I am pretty sure of the numbers , if I am off it is only by a small % help I have hep c and just got my genotyping and hcv done. I really don't understand what these mean and the doctor just spit a bunch of stuff at me that I couldn't understand my questions involve the viral load number and how high it actually is and the treatment success rate for the genotype of hep c I have. The test says I have type 1Aand the HCV, RNA, PCR, QN is 127000 HIf anyone can help explain any of this too me I would be eternally grateful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Roxanne, Ok, well we do understand how you feel, docs only allot themselves maybe 5 min per patient and dont take the time to answer your questions,, so I will try to answer them as best I can and the rest of the group will be along soon to put in their parts too,, ok, you have genotype 1a,, there are many different genotypes, geno 1 is the most prevalent but the hardest to treat in America. I too am geno 1a but I have treated successfully and have been in remission almost 5 years now.. geno 1B is about the hardest to treat but I do know several who have treated and reached svr which means sustained viral response,, or that the viral load is gone and the virus is in remission,, there is no cure at this point but remission is what we all strive for. Your viral load is not that high, but viral load really does not correlate with the amount of damage done from it. Most docs consider anything less than 2 million as low to moderate viral load and over 2 million is considered high.. so if you wrote your numbers correctly, you are saying that your load is one hundred twenty seven thousand ,, so that is quite low in fact..The reason it says 127,000 with the H after it for high is that your viral load should be zero or less than 2-5 iu/ml so ANY viral load would be considered high because you are not supposed to have one.. if that makes sense.. So now the next step is to have a biopsy to see how much damage you have or dont have. That will be graded in "stage and grade".. Stage means how much fibrosis or cirrhosis you have, its rated in 0-4 with 0 meaning no damage and 4 meaning cirrhosis.. the 'grade' of inflammation is also on a 0-4 scale with 0 meaning no activity and 4 meaning its really moving quickly to damage your liver. So you need to have a biopsy done to see where you are so you can make the decision if you are going to do treatment or not... Most docs advocate tx immediately but I think that is foolish.. that is only my opinion but I have seen ppl with no damage and low viral load cause their virus to mutate from failed treatments.. Treatment is difficult but doable,, but one should be very serious when considering treatment and should not start it without intending to finish it as stopping and starting it can cause mutation and then one can never get rid of it with the current tx. Current tx is hard, can actually cause permanent damage but if you have a lot of damage to your liver like I did, you have to treat if you want to stop the virus.. its kind of a catch 22... but getting a biopsy is the next thing you need to do and to have all your liver function tests done.. Its a good idea to get copies of everything from your doc and keep it in a file at home so you can refer to it whenever you want as you question something.. HCV is a long term chronic disease , it takes years to damage your liver.. so the first thing is to take a deep breath and try to educate yourself on this disease as much as you can...and dont panic! We're here for you and will try to help you as much as possible. Just remember that we're not doctors, but we do have nurses and paramedics here,, Im one of the paramedics and is the other who is also our researcher. Janet one of the owners here is a nurse,, and anne is a caregiver,, Sheena is one of us who gives as much support here as possible... we have a wonderful group here so please let us know how we can help you! jaxRoxanna <shyleeblue@...> wrote: I have hep c and just got my genotyping and hcv done. I really don't understand what these mean and the doctor just spit a bunch of stuff at me that I couldn't understand my questions involve the viral load number and how high it actually is and the treatment success rate for the genotype of hep c I have. The test says I have type 1Aand the HCV, RNA, PCR, QN is 127000 HIf anyone can help explain any of this too me I would be eternally grateful.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Kelley, I don't have anything wise to say here, only that hearing that type of programing makes me angry. Maybe more angry because *I* was once part of the " children are over medicated these days " club until it was *my* child that was suffering. Suddenly I became more knowledgeable and had to eat crow. I am no longer judgmental about other people's children and their issues because who knows what they have been through or are currently going through. No one wants to medicate their child. I don't. I know there are side effects. While my DD (12) is a straight A student, she used to be so quick and bright. Now she's a little duller and has a harder time learning new concepts. This is frustrating to both of us. She's had to battle weight gain when she's on certain meds, so it's up and down with her weight. What middle school girl wants to be chubby? Especially one that is naturally slim? No one. But the alternative was such a horrible quality of life. Her anxiety was off the charts. I can't explain how horrible it was for us all. We didn't try natural remedies because she would have died had we waited them out. (She wasn't eating.) I am not anxious to have her go off of her good match of meds. (Prozac and Buspar) just to " see " if the natural remedies work. Not after watching her suffer for nearly a year. I would much prefer her to be happy and functioning. When she is an adult, she can decide how much risk she wants to take by trying some natural remedies. I have an Aunt and a bunch of cousins that are REALLY into natural remedies only. They work for Life Extensions. I really believe they have helped a lot of people. I am not opposed to natural remedies. I am currently taking my non-OCD'er to an acupuncturist for a problem he is having that isn't life threatening or any sense of urgency. I take Melatonin to help me sleep at night and a bunch of natural supplements. However, I have seen how my cousins are constantly giving false hope or inaccurate information because of their bias to synthetic medication. I have a great aunt who is nearly comatose in the last stages of cancer and read an e-mail from one of them trying to get her children to pump her full of some special juice, telling her that she will be miraculously cured. The poor woman isn't even eating anymore. Sorry, I digress. I don't think there is anything wrong with supplements and natural remedies as long as there aren't serious consequences to the child's quality of life to try them. We don't blindly follow the Dr. That's why we are on this group and always reading and searching for the most information we can. Sometimes the thing that helps our children the most is medication, but we feel we have to hide that because of the stigma society places on them. I have a good friend who has 2 boys that have ADHD, 4th and 2nd grade. I am the only one she has told that they are taking Concerta because of the judgment she feels she would receive about giving them that medication. But she said the difference in their quality of life is remarkable. I often wonder if someone that is so vehemently opposed to medication were to suffer like my daughter, would they change their mind? I'm also not opposed to homeschooling. I home schooled my 4th grader last year for 1/2 the day because he has such an awful math curriculum. But, both my school age kids love school and don't want to be pulled out. They love their friends and sense of community, so for now they are in public school. Of course if something changes, I wouldn't hesitate to home school. But, it has to be something that both you and your daughters want. (Unless you see something ugly going on at the school that you wish to remove them from.) Sorry I dont' have any concrete information for you--I know many here will offer their experiences with natural remedies though. Many have had great success. Dina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 I'll answer b/c I have tried various schooling situations and still have struggling kids, I would say mine (with ocd) are not generally happy or content, or only so for brief spells, no matter what we have tried, b/c the ocd just makes life difficult. So if your kids feel stable and content where they are don't pull them out, it is alot more risky to make changes for kids with neuro- issues than with average kids, they can get destabilized so easily. Some semblance of daily stability, with activities and friendships already built in, is quite a blessing imo, under your circumstances. Not something you would want to risk disrupting at this time. Maybe your husband is concerned b/c socially/neurologicaly floundering kids may be more susceptible to influences of troubled peers, but your girls do not sound like they are floundering or lost in that way. Being happy where they are is big plus. Alot of kids with ocd or AS spectrum are struggling socalliy and academically and homeschool vs public school is not necessarily the decisive factor (having tried both here). You do what works at the time. As for medications, I believe people who criticize do not believe that ocd and spectrums are medical/neurological in nature. In other words they are ignorant, which is not surprising b/c " psych " disorders are commonly attributed to psychological trauma or repression or parenting issues etc by those who have not faced it personally. In your case since the girls have narcolepsy (clearly regarded as neuro/medical in nature-right?) why not acknowledge that the ocd is on the same neurological spectrum, as would be tourettes or even something like epilepsy- these are things that kids do not have control over until undergoing treatment, and treatment often involves trials of medications for those with more severe symptoms. Even in the case of heart attack (as I experienced recently for unknown reasons) medications are attempted on a trial basis, I've been on and off several and they have side effects-there may be risks- but doing nothing is not really acceptable to me. With medications nothing works quite the same for one person as another, so trials are necessary. That is just the nature of medicating diverse physiologies. I do understand about the concerns with influences outside the home (as a homeschooler in a religius family-but also accepting of public schooling as needed). What about supplementing with religious curriculum at home, many homeschool curriculum providers will provide single subjects. Your husbands' interest and concern is an advantage- maybe he would take on some of the instruction. Your girls would be fortunate to have that fatherly involvement. nancy grace In , kelleydinkins@... wrote: > > I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am hoping that > those of you who have experiences with alternative treatments (supplements, > nutritional, etc.) both positive and negative will weigh in for him. We have two > daughters, Hannah who is seventeen and has been treated for OCD for six > years. She is on Luvox and Risperdal. She also has narcolepsy and takes > Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other > daughter, , is fourteen and has been treated for OCD since she was seven. She > also takes Luvox and Risperdal as well as Celexa for her OCD. She also has > narcolepsy but was unable to take Adderall XR for hers. We had a very bad > experience with it last week and are seeing the doctor later today for > information. I suspect he will put her on Ritalin, which my husband is very much > against. We are still experimenting with her. Oh, she also takes Clonidine at > night to help her fall asleep. Hannah has been doing fairly well. Her OCD is > very severe and this time of year is difficult for her but she has been > managing well. has been having a hard time lately because her narcolepsy is > newly diagnosed and we are trying to figure out the correct treatment. My > husband also believes that the kids need to be pulled out of high school and > home schooled because of the environment at school. He feels that it is > detrimental to them and that if they had a more positive atmosphere, they would do > better. Neither one of them wants to be home schooled. They are involved in > different activities and while struggles with friendships (she also has > mild Asperger's syndrome) they like school. I have been accused of " blindly > listening to everything the doctor says " and would love for my husband to > hear something other than his radio information. I am the one who primarily > deals with all of these issues and it is only recently that he has started > voicing his rather strong opinion. Thank you, Kelley in NV > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi , As far as school goes, in your situation, I would not pull my kids out, when they are doing well. If it's not broken, don't fix it! This is just my experience with meds. I don't like them. I hate the side effects. I hate giving them to my children, but I certainly would not give them if they didn't need them to function. I have tried the natural supplements, and CALMS, etc. These did not work for either of my kids. I'm not going to listen and watch my son say horrible bad thoughts,do the same repetitive behaviors over and over, and rage, and just sit there. I feel that quality of life is what counts. If a certain med can stop that, than I will give it to them , just like if my child had cancer and needed chemo, I would give that. JMHO, but I would tell your husband to GET A CLUE!!!!!! or let him deal with it alone for awhile. I bet he'd change his mind real fast!!!! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 My wife and I had/have worked through similar issues in caring for our son. I know this may be hard, but I recommend that that you and your husband get away for an hour or so a week and plan what things you might want/need to try and what event/condition will tell you that you need to take those steps. In the end, you will probably try things in a different order or at a different pace than either of you feels completely comfortable with, but you will find your way--together. kelleydinkins@... wrote: I have been a member of this group for several years and I'm hoping you all can help me out here. My husband has been listening to Christian radio shows that talk about the dangers of medication and how people are just blindly put on drugs without alternative treatments being sought. I am hoping that those of you who have experiences with alternative treatments (supplements, nutritional, etc.) both positive and negative will weigh in for him. We have two daughters, Hannah who is seventeen and has been treated for OCD for six years. She is on Luvox and Risperdal. She also has narcolepsy and takes Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other daughter, , is fourteen and has been treated for OCD since she was seven. She also takes Luvox and Risperdal as well as Celexa for her OCD. She also has narcolepsy but was unable to take Adderall XR for hers. We had a very bad experience with it last week and are seeing the doctor later today for information. I suspect he will put her on Ritalin, which my husband is very much against. We are still experimenting with her. Oh, she also takes Clonidine at night to help her fall asleep. Hannah has been doing fairly well. Her OCD is very severe and this time of year is difficult for her but she has been managing well. has been having a hard time lately because her narcolepsy is newly diagnosed and we are trying to figure out the correct treatment. My husband also believes that the kids need to be pulled out of high school and home schooled because of the environment at school. He feels that it is detrimental to them and that if they had a more positive atmosphere, they would do better. Neither one of them wants to be home schooled. They are involved in different activities and while struggles with friendships (she also has mild Asperger's syndrome) they like school. I have been accused of " blindly listening to everything the doctor says " and would love for my husband to hear something other than his radio information. I am the one who primarily deals with all of these issues and it is only recently that he has started voicing his rather strong opinion. Thank you, Kelley in NV **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 , Are you and/or your husband members of a church? In our lives, we find that the general laws we thought we knew about our religion aren't as stringent as we thought when we ask our clergyman. Usually, he recommends what is best for our individual case, consults his peers to find the most lenient position, and we find there are many gray areas. Of course, prayer is considered a very useful tool, at least as a supplement to medical treatment. I would suggest your husband discuss the situation with a clergy person (unless we're talking about Christian Science, and that's a whole other story!) kelleydinkins@... wrote: I have been a member of this group for several years and I'm hoping you all can help me out here. My husband has been listening to Christian radio shows that talk about the dangers of medication and how people are just blindly put on drugs without alternative treatments being sought. I am hoping that those of you who have experiences with alternative treatments (supplements, nutritional, etc.) both positive and negative will weigh in for him. We have two daughters, Hannah who is seventeen and has been treated for OCD for six years. She is on Luvox and Risperdal. She also has narcolepsy and takes Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other daughter, , is fourteen and has been treated for OCD since she was seven. She also takes Luvox and Risperdal as well as Celexa for her OCD. She also has narcolepsy but was unable to take Adderall XR for hers. We had a very bad experience with it last week and are seeing the doctor later today for information. I suspect he will put her on Ritalin, which my husband is very much against. We are still experimenting with her. Oh, she also takes Clonidine at night to help her fall asleep. Hannah has been doing fairly well. Her OCD is very severe and this time of year is difficult for her but she has been managing well. has been having a hard time lately because her narcolepsy is newly diagnosed and we are trying to figure out the correct treatment. My husband also believes that the kids need to be pulled out of high school and home schooled because of the environment at school. He feels that it is detrimental to them and that if they had a more positive atmosphere, they would do better. Neither one of them wants to be home schooled. They are involved in different activities and while struggles with friendships (she also has mild Asperger's syndrome) they like school. I have been accused of " blindly listening to everything the doctor says " and would love for my husband to hear something other than his radio information. I am the one who primarily deals with all of these issues and it is only recently that he has started voicing his rather strong opinion. Thank you, Kelley in NV **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Kelley, Well you know I've tried and we are now trying " alternatives " for 's OCD. Now inositol powder did help in middle school but we tried it again this year and no luck. And we tried it at the maximum dosage, compared to the lower dosage we used in middle school. Also this past year we've tried: omega3/fish oil (2 brands at least); 5-HTP; GABA; theanine...probably something else I can't recall at this moment. But nothing helped his bad thoughts. We are now trying St. 's Wort. Remember that doesn't want to try prescription medication so we'll trying all this other. He was on Celexa 9th and 10th grades and did fine on it. It's the only prescription med he's tried. But he stopped it at the end of 10th grade and then months later his OCD came bursting back with all this new stuff. (which I've read it happens, that's why therapy is so important) just seems to want to try to win this on his own. Let's see he's been trying to do this since the last half of 11th grade, he's now in his first year of college...! So - I think prescription medication is his best hope at a normal life. He's miserable! But at his age I can't hold him down to take it! I think if your daughter's are doing so well and managing with prescription, then don't rock their boat!!! I'm all for trying prescription. As to school: Personally I think homeschooling is great but if the " student " is doing well in public school and wishes to remain there (they're not saying, " please, please homeschool me! " constantly) and are staying out of trouble at school, then, well, why pull them out? If he's worried about the environment there, one way to look at it is they will be in all sorts of environments, around all sorts of people, in college and any workplace. Keeping communication open with them and having raised them with your family values, will help them manage. Gotta go! single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers , 18, (twin) Randall, 22 > > I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 I'm a big believer in trying all other options before turning to meds...and that's for everything, not just mental health. In my family, we are slowly weaning our kids off of dairy, gluten and processed foods with the intention of doing a strict GFCF diet in the new year. I've also introduced a vitamin fortified fruit smoothy in the morning to increase the fruit and fibre they eat as well as boost the brain enhancing vitamins they get. We're hoping that this change in diet will help my daughter's OCD and will help my sons with their health issues as well as introducing them to new food choices. I am fully GFCF myself, and since starting this diet I've discovered I am also soy intolerant...that may be the next thing I look at for the kids. :-) However, if my daughter (5yo) was already on meds, I certainly wouldn't suddenly be stopping them to change course. We are trying diet, because it is our first effort at easing her symptoms (along with positive reinforcement through a check-mark & reward system), if dietary changes prove unhelpful and her symptoms get worse (and start showing up at school) then medication will be our next option. > > I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am hoping that > those of you who have experiences with alternative treatments (supplements, > nutritional, etc.) both positive and negative will weigh in for him. We have two > daughters, Hannah who is seventeen and has been treated for OCD for six > years. She is on Luvox and Risperdal. She also has narcolepsy and takes > Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other > daughter, , is fourteen and has been treated for OCD since she was seven. She > also takes Luvox and Risperdal as well as Celexa for her OCD. She also has > narcolepsy but was unable to take Adderall XR for hers. We had a very bad > experience with it last week and are seeing the doctor later today for > information. I suspect he will put her on Ritalin, which my husband is very much > against. We are still experimenting with her. Oh, she also takes Clonidine at > night to help her fall asleep. Hannah has been doing fairly well. Her OCD is > very severe and this time of year is difficult for her but she has been > managing well. has been having a hard time lately because her narcolepsy is > newly diagnosed and we are trying to figure out the correct treatment. My > husband also believes that the kids need to be pulled out of high school and > home schooled because of the environment at school. He feels that it is > detrimental to them and that if they had a more positive atmosphere, they would do > better. Neither one of them wants to be home schooled. They are involved in > different activities and while struggles with friendships (she also has > mild Asperger's syndrome) they like school. I have been accused of " blindly > listening to everything the doctor says " and would love for my husband to > hear something other than his radio information. I am the one who primarily > deals with all of these issues and it is only recently that he has started > voicing his rather strong opinion. Thank you, Kelley in NV > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 I'm a big believer in trying all other options before turning to meds...and that's for everything, not just mental health. In my family, we are slowly weaning our kids off of dairy, gluten and processed foods with the intention of doing a strict GFCF diet in the new year. I've also introduced a vitamin fortified fruit smoothy in the morning to increase the fruit and fibre they eat as well as boost the brain enhancing vitamins they get. We're hoping that this change in diet will help my daughter's OCD and will help my sons with their health issues as well as introducing them to new food choices. I am fully GFCF myself, and since starting this diet I've discovered I am also soy intolerant...that may be the next thing I look at for the kids. :-) However, if my daughter (5yo) was already on meds, I certainly wouldn't suddenly be stopping them to change course. We are trying diet, because it is our first effort at easing her symptoms (along with positive reinforcement through a check-mark & reward system), if dietary changes prove unhelpful and her symptoms get worse (and start showing up at school) then medication will be our next option. > > I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am hoping that > those of you who have experiences with alternative treatments (supplements, > nutritional, etc.) both positive and negative will weigh in for him. We have two > daughters, Hannah who is seventeen and has been treated for OCD for six > years. She is on Luvox and Risperdal. She also has narcolepsy and takes > Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other > daughter, , is fourteen and has been treated for OCD since she was seven. She > also takes Luvox and Risperdal as well as Celexa for her OCD. She also has > narcolepsy but was unable to take Adderall XR for hers. We had a very bad > experience with it last week and are seeing the doctor later today for > information. I suspect he will put her on Ritalin, which my husband is very much > against. We are still experimenting with her. Oh, she also takes Clonidine at > night to help her fall asleep. Hannah has been doing fairly well. Her OCD is > very severe and this time of year is difficult for her but she has been > managing well. has been having a hard time lately because her narcolepsy is > newly diagnosed and we are trying to figure out the correct treatment. My > husband also believes that the kids need to be pulled out of high school and > home schooled because of the environment at school. He feels that it is > detrimental to them and that if they had a more positive atmosphere, they would do > better. Neither one of them wants to be home schooled. They are involved in > different activities and while struggles with friendships (she also has > mild Asperger's syndrome) they like school. I have been accused of " blindly > listening to everything the doctor says " and would love for my husband to > hear something other than his radio information. I am the one who primarily > deals with all of these issues and it is only recently that he has started > voicing his rather strong opinion. Thank you, Kelley in NV > > > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 - , Just wanted to say I can relate to the medicine issue. I, too, have two daughters on meds for OCD. We just started meds that worked and added the risperdol in August. The are and 9. It is easy for people to say that meds are bad, or you dont need meds when they dont need them and/or are not in your situation. I feel uncomfortable with them on the one hand, on the other hand they have give my daughters a normal life, we tried counseling for two years first. Unfortunately these same drugs work for them. so for us, its a matter of kids who aren't controlled and are miserable or controlled and on meds. Its hard to listen to the radio and read the internet because you will find lots of positions that condem these drugs. But if you a child with asthma, you would treat. or how about any of the drugs for ruhmatoid arthritis and so on? would you not treat?? Doing so holistically is okay if it works. With the drug syour daughters on are, i would suspect a return of symptoms esp if stopped w/o a doctor. GOod, Luck. Kathy -- In , lisa fishman <noahfsmom@...> wrote: > > , > Are you and/or your husband members of a church? In our lives, we find that the general laws we thought we knew about our religion aren't as stringent as we thought when we ask our clergyman. Usually, he recommends what is best for our individual case, consults his peers to find the most lenient position, and we find there are many gray areas. Of course, prayer is considered a very useful tool, at least as a supplement to medical treatment. > > I would suggest your husband discuss the situation with a clergy person (unless we're talking about Christian Science, and that's a whole other story!) > > > > kelleydinkins@... wrote: I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am hoping that > those of you who have experiences with alternative treatments (supplements, > nutritional, etc.) both positive and negative will weigh in for him. We have two > daughters, Hannah who is seventeen and has been treated for OCD for six > years. She is on Luvox and Risperdal. She also has narcolepsy and takes > Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other > daughter, , is fourteen and has been treated for OCD since she was seven. She > also takes Luvox and Risperdal as well as Celexa for her OCD. She also has > narcolepsy but was unable to take Adderall XR for hers. We had a very bad > experience with it last week and are seeing the doctor later today for > information. I suspect he will put her on Ritalin, which my husband is very much > against. We are still experimenting with her. Oh, she also takes Clonidine at > night to help her fall asleep. Hannah has been doing fairly well. Her OCD is > very severe and this time of year is difficult for her but she has been > managing well. has been having a hard time lately because her narcolepsy is > newly diagnosed and we are trying to figure out the correct treatment. My > husband also believes that the kids need to be pulled out of high school and > home schooled because of the environment at school. He feels that it is > detrimental to them and that if they had a more positive atmosphere, they would do > better. Neither one of them wants to be home schooled. They are involved in > different activities and while struggles with friendships (she also has > mild Asperger's syndrome) they like school. I have been accused of " blindly > listening to everything the doctor says " and would love for my husband to > hear something other than his radio information. I am the one who primarily > deals with all of these issues and it is only recently that he has started > voicing his rather strong opinion. Thank you, Kelley in NV > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 - , Just wanted to say I can relate to the medicine issue. I, too, have two daughters on meds for OCD. We just started meds that worked and added the risperdol in August. The are and 9. It is easy for people to say that meds are bad, or you dont need meds when they dont need them and/or are not in your situation. I feel uncomfortable with them on the one hand, on the other hand they have give my daughters a normal life, we tried counseling for two years first. Unfortunately these same drugs work for them. so for us, its a matter of kids who aren't controlled and are miserable or controlled and on meds. Its hard to listen to the radio and read the internet because you will find lots of positions that condem these drugs. But if you a child with asthma, you would treat. or how about any of the drugs for ruhmatoid arthritis and so on? would you not treat?? Doing so holistically is okay if it works. With the drug syour daughters on are, i would suspect a return of symptoms esp if stopped w/o a doctor. GOod, Luck. Kathy -- In , lisa fishman <noahfsmom@...> wrote: > > , > Are you and/or your husband members of a church? In our lives, we find that the general laws we thought we knew about our religion aren't as stringent as we thought when we ask our clergyman. Usually, he recommends what is best for our individual case, consults his peers to find the most lenient position, and we find there are many gray areas. Of course, prayer is considered a very useful tool, at least as a supplement to medical treatment. > > I would suggest your husband discuss the situation with a clergy person (unless we're talking about Christian Science, and that's a whole other story!) > > > > kelleydinkins@... wrote: I have been a member of this group for several years and I'm hoping you all > can help me out here. My husband has been listening to Christian radio shows > that talk about the dangers of medication and how people are just blindly > put on drugs without alternative treatments being sought. I am hoping that > those of you who have experiences with alternative treatments (supplements, > nutritional, etc.) both positive and negative will weigh in for him. We have two > daughters, Hannah who is seventeen and has been treated for OCD for six > years. She is on Luvox and Risperdal. She also has narcolepsy and takes > Adderall XR, Provigil, and Temazepam (sleep medication) for that. My other > daughter, , is fourteen and has been treated for OCD since she was seven. She > also takes Luvox and Risperdal as well as Celexa for her OCD. She also has > narcolepsy but was unable to take Adderall XR for hers. We had a very bad > experience with it last week and are seeing the doctor later today for > information. I suspect he will put her on Ritalin, which my husband is very much > against. We are still experimenting with her. Oh, she also takes Clonidine at > night to help her fall asleep. Hannah has been doing fairly well. Her OCD is > very severe and this time of year is difficult for her but she has been > managing well. has been having a hard time lately because her narcolepsy is > newly diagnosed and we are trying to figure out the correct treatment. My > husband also believes that the kids need to be pulled out of high school and > home schooled because of the environment at school. He feels that it is > detrimental to them and that if they had a more positive atmosphere, they would do > better. Neither one of them wants to be home schooled. They are involved in > different activities and while struggles with friendships (she also has > mild Asperger's syndrome) they like school. I have been accused of " blindly > listening to everything the doctor says " and would love for my husband to > hear something other than his radio information. I am the one who primarily > deals with all of these issues and it is only recently that he has started > voicing his rather strong opinion. Thank you, Kelley in NV > > **************************************See AOL's top rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 dear kellley, i homeschooled both of our 2 children, boy and a girl for 8 1/2 years. i can tell you it was very rewarding but also very stressful, especially due to the increasing needs of our daughter with ocd. it showed up about 4 years old. and by 7 years old she couldn't participate in dance or gymnastics any longer due to her obsessions over the tights and costumes etc. my husband was adimant that we homeschool more because of out neighborhood and the dangers. I finally put them in school when i was completely wiped out. i needed a break from our children especially our daughter, who's ocd and moodiness peaked at puberty. by that time we had started prozac, which caused a lot of weight gain. finally we found a dr. who tried other meds. there are pros and cons, but i honestly think that it's good for kids to get out of the house and have experiences with other persons and get a break from their ocd. several therapists have said that home is the worst place for ocd, because it's the child's or adult's comfort zone so it's stronger there. thanks **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 , Keep working at the nursing. 4 months old is an age where they seem to get less interested in nursing and are more interested in the world around them. As far as getting goats milk for supplementing, I only know of places on the north end. I do believe the farmer who supplies MVV with goats milk might be closer for you. You will need to contact MVV to get the info to contact them as they do not have a computer. Goats milk freezes great so maybe you can make a run for milk once or twice a month?? Kimi ~~~~~~~~~~~~~~~~~~~~~ www.Jremedies.com Only two defining forces have ever offered to die for you: 1. Jesus Christ 2.. The American G. I. One died for your soul, the other for your freedom. --- http://USFamily.Net/dialup.html - $8.25/mo! -- http://www.usfamily.net/dsl.html - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I agree with Kimi. Don't give up if at all possible. Also, I was going to suggest the same thing...if you need goat's milk, you will still have to make the trip to Poplar Hill or wherever, but empty each container out a little and freeze it. I have known people who have had success with the formula recipes in Nourishing Traditions. I thing there is a liver one??? Good Luck, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Hi , I have to concur with the others, there is nothing in the world more beneficial than breast milk, and your child deserves it, so keep trying....however, in the mean time and for emergency purposes you can, or at least could a few months ago find Poplar Hills goat milk at the Cub Foods in apple valley. Either go to the dairy section and look VERY carefully, because it's almost hidden, or ask someone and don't take no for an answer. Also I don't condone pasteurized dairy, but some poor quality food is better than no food and it is surely better than formula. Best of luck to ya. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Diane (?) I've sent you details direct. {¦;¬))  N. England. If a group has NO topic there's no such thing as going " Off-topic " A.B.A.L.T.A.T. " Any, LEGAL, topic which other groups would consider Off-Topic. " http://uk./group/ABALTAT/ Current membership ¦;-) = 8 Any advance on 8? help i need to know if someone would help me tp post my new address for kombucha babies i'am on www.kombu.de/suche2 htm,my infor: is diane stridiron 2999 contiental colony pkwy pkwy #231 atlanta ga. 30331 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 You need to email Günther W. : > frank@... < > > i need to know if someone would help me tp post my new address for kombucha babies i'am on www.kombu.de/suche2 htm,my infor: is diane stridiron 2999 contiental colony pkwy pkwy #231 atlanta ga. 30331 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 My husband Russ has been smoke free for 6 years now and the patch is what did it for him and prayer. He went on a higher dose then what he was smoked patch at first then tapered down to lower. He left the patch on at night he said it gave him wicked wild dreams and liked it but I dont know if you should do that.... It was real hard but he did it and chewed lots of gum. His throat was starting to bother him terrible and he was spitting all the time when he smoked it was nasty.  He now hates the smell and will not even stay around someone that smokes. It was hard he made a few mistakes in the first month a few set backs but he got right back on the stick so to speak and was determined. He still craved them after about 2 years after a meal or a beer( he stopped drinking bear for 2 years because it made him want a cigarette) but he soon got over that too. With the price of the packs now and your health we are here for you if you need help. You will be so happy in the long run my hubby is, so is our pocket book and the kids health and example of him. Its hard very hard he said but he said if he could do it you can too .You have to want it and be determined that its whats best for your body. Your Friend,  Ann Fultz help i was just wondering if anyone had advice on how to quit smoking? I tried to quit cold turkey that didn & #39;t work and right now i smoke so much. I & #39;m 22 and really don & #39;t want to be makin things worse. Don & #39;t want to take any chances with this disease it & #39;s hard enough. Thank you for any help you can give me. I hope everyone is doing okay. Larry i have a question what was it that put you in the hospital i don & #39;t think i read that. I do have dranage in my eyes but it & #39;s not yellow. I also have had thrush in my mouth for about a month now even with the meds hasn & #39;t gone away. I & #39;m sure my smokin isn & #39;t helpin:) well i think this is long enough. Oh wait i am willin to help with getting stills out there anyways. I agree puttin down a group of people that has helped so many and is there when we need them night and day even when they are sick to will get us no where. Positive thinkin and stickin together will get us further. Thank you everyone who takes time to write me back, lots of love Mandy from Wyo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 My husband Russ has been smoke free for 6 years now and the patch is what did it for him and prayer. He went on a higher dose then what he was smoked patch at first then tapered down to lower. He left the patch on at night he said it gave him wicked wild dreams and liked it but I dont know if you should do that.... It was real hard but he did it and chewed lots of gum. His throat was starting to bother him terrible and he was spitting all the time when he smoked it was nasty.  He now hates the smell and will not even stay around someone that smokes. It was hard he made a few mistakes in the first month a few set backs but he got right back on the stick so to speak and was determined. He still craved them after about 2 years after a meal or a beer( he stopped drinking bear for 2 years because it made him want a cigarette) but he soon got over that too. With the price of the packs now and your health we are here for you if you need help. You will be so happy in the long run my hubby is, so is our pocket book and the kids health and example of him. Its hard very hard he said but he said if he could do it you can too .You have to want it and be determined that its whats best for your body. Your Friend,  Ann Fultz help i was just wondering if anyone had advice on how to quit smoking? I tried to quit cold turkey that didn & #39;t work and right now i smoke so much. I & #39;m 22 and really don & #39;t want to be makin things worse. Don & #39;t want to take any chances with this disease it & #39;s hard enough. Thank you for any help you can give me. I hope everyone is doing okay. Larry i have a question what was it that put you in the hospital i don & #39;t think i read that. I do have dranage in my eyes but it & #39;s not yellow. I also have had thrush in my mouth for about a month now even with the meds hasn & #39;t gone away. I & #39;m sure my smokin isn & #39;t helpin:) well i think this is long enough. Oh wait i am willin to help with getting stills out there anyways. I agree puttin down a group of people that has helped so many and is there when we need them night and day even when they are sick to will get us no where. Positive thinkin and stickin together will get us further. Thank you everyone who takes time to write me back, lots of love Mandy from Wyo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Mandy  Best advice is never ever stopping trying. See I am a smoker and I want to stop just have not found my key to achieving that yet. I have tried cold turkey and many others. I did stop for over 6 months that started back up again how silly of me and now find it harder then ever but I will never stop tiring and I would say that to you also. What I have learned is you have to want to for your self not for other people or other things but you and only you! I also have been watching my son fight it. Now he can stop cold but he always starts up again if he is around a smoker. They do not have to smoke around him just smell of it. Out of 5 kids in my family we all smoked and now I am the only one. Sad part is I have been smoking for over 40 years now. The rest stopped after 20 to 30 years.  SO KEEP TRYIN KEEP AT IT AND YOU WILL WIN IT IS A MATTER OF TIME! any slip is nothing more then that a slip it never means you are a loser only that your human and make mistakes and how you deal with it after that is the key.  Thrush o boy my son just had that his med was over 60 dollars I know as I paid for it. Well he had his for almost two months before it cleared up. Using his med it seamed to go away after a few days then back again the doc told him it was normal to do that and to keep at it. after two months it dose seam to be gone now but for how long no one know being we all carry it in our mouths so what ever sets it off could again but this time he knows what to do and how not to be panicked . see he read on line about it with aids people so right away I got aids LOL now mind you he is 23 and a great kid just his mom almost had him being a hoipcondract like her self . any hoot keep at it and talk to the Doctor if you believe it is not working or if it gets worse but also know this in most people it will even clear up by it's self given enough time. Not that I would give it any time my self LOL. My son got it right after being really sick with the flu. So he was already run down and that’s what set if off. now we have stills so we also are run down so we some times get to enjoy this fun things but never ever give up always keep fighting your a beautiful young lady with a whole life ahead of you it is hard to see that I know but it is there and that light at the end of the tunnel is not a train that’s going to hit you hade on but it is the sunshine awaiting you to greet you into a life of new and acceptance of your self and stills and the knowledge and enjoyment that will come with it . or as daddy would say and " this to shale pass just do not destroy your self wanting it right now as you may not know how to deal with it " man he was one smart man only I never knew it I was to young to see it tell I became a father that is . Just like my son tells me he is an adult after all he is 23. So I tell him age matters not it is how he acts that makes him an adult or not. Yes he gets mad at me for that see he still calls out daddy and when I offer to help he tells me he is a man so I tell him then why did you call daddy to come and help you tell you what to do. See he is a young man but still dose things some times as a kid and age dose not mean a person is grown up it only means there physically mature. Mental maturity takes time and some never do see it and some see it way before they should in life. So live to day for what it is good or bad and look forward to tomorrow. do not live in the past because that is were it is the past and to day is the present a gift of life to enjoy the best you can and tomorrow is the hope of some thing better but never forget the day you have right now in front of you as soon it will be the past also and tomorrow will be your present. Hugs  the rednecks Marty & G.  Stills ; An illness I know to well! To learn about Stills  http://www.stillsdisease.org/stills_info  and Hancock: We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] : " The general principles upon which the Fathers achieved independence were the general principals of Christianity... I will avow that I believed and now believe that those general principles of Christianity are as eternal and immutable as the existence and attributes of God. " • " [July 4th] ought to be commemorated as the day of deliverance by solemn acts of devotion to God Almighty. " – in a letter written to Abigail on the day the Declaration was approved by Congress Jefferson God who gave us life gave us liberty. And can the liberties of a nation be thought secure when we have removed their only firm basis, a conviction in the minds of the people that these liberties are a gift from God? That they are not to be violated but with His wrath? Indeed I tremble for my country when I reflect that God is just, and that His justice cannot sleep forever. " (excerpts are inscribed on the walls of the Jefferson Memorial in the nations capital)  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 Yes i speak Spanish. Con carino, From: luzmarana <luzmarana@...>Subject: Help Date: Friday, September 12, 2008, 9:15 PM Does somebody in this group speak spanish? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 Hola, luz , Que tal. No hay ningun tipo de molestia. Estaria muy agradecida ayudarle en cualquier mannera. Tiene usted una pregunta en particular?From: luzmarana <luzmarana@...>Subject: Help Date: Friday, September 12, 2008, 9:15 PM Does somebody in this group speak spanish? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 Hi lisa muchas gracias por contestarme. En realidad hace poco escuche hablar de la dieta macrobiotica y me ha interesado, He estado buscando informacion via internet y he encontrado alguna, pero me gustaria estudiar mas. Desafortunadamente no he podido encontrar a nadie en mi area (Orlando, Fl) que me pueda ayudar. Yo sufro de anemia y me preocupa hacer algo que me pueda afectar mas. Te agradezco cualquier tipo de recomendacion y disculpa por tanta molestia. Agradecida por adelantado. luz > From: luzmarana <luzmarana@...> > Subject: Help > > Date: Friday, September 12, 2008, 9:15 PM > > > > > > > > > > > > Does somebody in this group speak spanish? > Quote Link to comment Share on other sites More sharing options...
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