Hello!

October 18, 2006

Thank you, Ginger.

I am not able to get those tests at this time, much as I would like to. My husband had a severe stroke last may and it

takes five months to get disability, six, actually until the check comes for

the prior month. I have no health

insurance and am currently paperwork blocked, thanks to the Patriot Act, from

the UTMB sliding scale. Hopefully

that will be cleared up by next month.

We had to close down our business and have justr a few side interests that are

keeping us going. This will all

resolve itself in a few months when I get what I am doing built up. In the meantime I have to stay with hubby because

he cannot do for himself. We do not

qualify for aid. I know ll about

falling through the cracks… But we are tough old roots and I feel pretty

sure that I will get through fine. Yep,

I have no plans for dying from the C, either : ) But it is true, none of us

are getting out of here alive.

Nikki

I would not ignore this and assume it is liver. We can think everything is associated with liver

and it isn't. Many of us will die

from something other than Hep C.

My brother for instance, 55, complete athlete, never drank

or smoked, had the same pain and problems with heat and dehydration. Found out he had a 90% blockage in on artery and

50% in 2 others. We couldn't believe

it, nor could he because of his healthy lifestyle.

He was playing a tennis match and the heat and dehydration got to him for

the last time and he decided he really needed to have this checked out.

Anyway it is your life, but those chest pains could be heart

attacks. An angiogram might be in

order, at the very least a stress test.

I'm not trying to diagnose you, I guess my point is we need

to be careful not to blame everything on liver.

We have a lot of other systems going on in our bodies.

Thanks for listening

Ginger

__._,_.___

October 18, 2006

I agree with this,, you must check it out and NOT assume that its always your liver,, Swift <kswift@...> wrote: Nikki I would not ignore this and assume it is liver. We can think everything is associated with liver and it isn't. Many of us will die from something other than Hep C. My brother for instance, 55, complete athlete, never drank or smoked,

had the same pain and problems with heat and dehydration. Found out he had a 90% blockage in on artery and 50% in 2 others. We couldn't believe it, nor could he because of his healthy lifestyle. He was playing a tennis match and the heat and dehydration got to him for the last time and he decided he really needed to have this checked out. Anyway it is your life, but those chest pains could be heart attacks. An angiogram might be in order, at the very least a stress test. I'm not trying to diagnose you, I guess my point is we need to be careful not to blame everything on liver. We have a lot of other systems going on in our bodies. Thanks for listening Ginger Jackie

October 18, 2006

tell me about the retention enema's ,, Im really interested in what you are doing,, jaxNikki Cowan <nikkicowan@...> wrote: I am doing retention enemas with my morning urine, colloidal silver and a teaspoon of DMSO. When I first heard about urine therapy I was totally revolted, but being the curious person that I am and highly motivated from my

brother’s very sad and drawn out and painful passing. I read Martha Christy’s “Your Own Perfect Medicine” and I gave it a try. It has been amazing for me and my life is back on track, I feel really good. Nikki Hi Nikki, What are you doing instead of Conventional treatment? No chest pains here, but my nerves are sure shot.. Blessings, Sheena Jackie

October 19, 2006

In the mornings I do a clear water

enema to make room in my colon.

Then I take my morning urine, a like amount of colloidal/ionic silver (I make

my own and use it for tons of things) and a rounded teaspoon of 99% DMSO gel (

I get it through jeffersequine.com)

and hold this in for at least 20 minutes.

I usually get in my recliner in a feet up position and take a little nap. The energy is immediate and over time it

seems to be correcting my sluggish bowel.

Instead of one bm a day or less I have one after each meal, pretty much, which

is what I have read is better for you.

I used to have ulcerative colitis; no more I don’t tout this

as a great cure-all for everyone, but I can tell you the difference that it has

made in my life is staggering.

I sleep at night, something that used to torment me.

I feel good, and have enthusiasm and energy.

I have almost completely stopped my insulin and I used to take 3 shots a day

but my sugar is pretty good and I eat things I haven’t been able to eat

in years. I do incorporate a

teaspoon of cinnamon daily like my doc suggested.

I am off of antidepressants. I

haven’t had any viral loads taken because I just can’t afford it

right now, but if the proof is in the pudding, I feel good. However, for all I know my liver is going to

fall out tomorrow at 3:42 pm.

But I don’t think so.

Nikki

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Jackie on

Sent: Thursday, October 19, 2006

12:27 AM

Hepatitis C

Subject: RE:

Hello!

tell me about the retention enema's ,, Im really interested in what you

are doing,,

jax

Nikki Cowan

wrote:

I am doing retention enemas with my

morning urine, colloidal silver and a teaspoon of DMSO. When I first heard about urine therapy I was

totally revolted, but being the curious person that I am and highly motivated

from my brother’s very sad and drawn out and painful passing. I read Martha Christy’s “Your

Own Perfect Medicine” and I gave it a try.

It has been amazing for me and my life is back on track, I feel really good.

Nikki

Hi Nikki,

What are you doing instead of Conventional treatment?

No chest pains here, but my nerves are sure shot..

Blessings,

Sheena

Jackie __._,_.___

__,_._,___

October 19, 2006

now that sounds really interesting,, you do this every day? How does this help? why the urine? Do you have any literature to read on this?Nikki Cowan <nikkicowan@...> wrote: In the mornings I do a clear water enema to make room in my colon. Then I take my morning urine, a like amount of colloidal/ionic silver (I make my own and use it for tons

of things) and a rounded teaspoon of 99% DMSO gel ( I get it through jeffersequine.com) and hold this in for at least 20 minutes. I usually get in my recliner in a feet up position and take a little nap. The energy is immediate and over time it seems to be correcting my sluggish bowel. Instead of one bm a day or less I have one after each meal, pretty much, which is what I have read is better for you. I used to have ulcerative colitis; no more I don’t tout this as a great cure-all for everyone, but I can tell you the difference that it has made in my life is staggering. I sleep at night, something that used to torment me. I feel good, and have enthusiasm and energy. I have almost completely stopped my insulin and I used to take 3 shots a day but my sugar is pretty good and I eat things I haven’t been able to eat in years.

I do incorporate a teaspoon of cinnamon daily like my doc suggested. I am off of antidepressants. I haven’t had any viral loads taken because I just can’t afford it right now, but if the proof is in the pudding, I feel good. However, for all I know my liver is going to fall out tomorrow at 3:42 pm. But I don’t think so. Nikki From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Thursday, October 19, 2006 12:27 AMHepatitis C Subject: RE: Hello! tell me about the retention enema's ,, Im really interested in what you are doing,, jaxNikki Cowan <nikkicowansbcglobal (DOT) net> wrote: I am doing retention enemas with my morning urine, colloidal silver and a teaspoon of DMSO. When I first heard about urine therapy I was totally revolted, but being the curious person that I am and

highly motivated from my brother’s very sad and drawn out and painful passing. I read Martha Christy’s “Your Own Perfect Medicine” and I gave it a try. It has been amazing for me and my life is back on track, I feel really good. Nikki Hi Nikki, What are you doing instead of Conventional treatment? No chest pains here, but my nerves are sure shot.. Blessings, Sheena Jackie __._,_.___ __,_._,___ Jackie

October 20, 2006

It helps by alleviating my symptoms, and

that feels pretty good to me Yes, I try to do it every day, but not

always enough time in the mornings. Urine

therapy is pretty amazing. It

has been around for a long time and seems to work for me.

I believe that is what is relieving my diabetes, but I can’t say

for sure. I bought Martha

Christy’s book “Your Own Perfect Medicine”. You can read about that here: http://www.all-natural.com/urine.html

and also there is much info in the files at urine_therapy

Another book is The Golden Fountain, can’t remember the

author off of the top of my head. As

far as the other things that I combine, here is more info.

Look in the files sections of these groups.

'DimethylSulfoxide-DMSO

'colloidalsilver2

For me to feel this good after feeling so

badly for so long is such a blessing.

Nikki

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Jackie on

Sent: Thursday, October 19, 2006

11:28 PM

Hepatitis C

Subject: RE:

Hello!

now that sounds really interesting,, you do this every day? How

does this help? why the urine? Do you have any literature to read on

this?

Nikki Cowan

wrote:

In the mornings I do a clear water

enema to make room in my colon.

Then I take my morning urine, a like amount of colloidal/ionic silver (I make

my own and use it for tons of things) and a rounded teaspoon of 99% DMSO gel (

I get it through jeffersequine.com)

and hold this in for at least 20 minutes.

I usually get in my recliner in a feet up position and take a little nap. The energy is immediate and over time

it seems to be correcting my sluggish bowel.

Instead of one bm a day or less I have one after each meal, pretty much, which

is what I have read is better for you.

I used to have ulcerative colitis; no more I don’t tout this

as a great cure-all for everyone, but I can tell you the difference that it has

made in my life is staggering.

I sleep at night, something that used to torment me.

I feel good, and have enthusiasm and energy.

I have almost completely stopped my insulin and I used to take 3 shots a day

but my sugar is pretty good and I eat things I haven’t been able to eat

in years. I do

incorporate a teaspoon of cinnamon daily like my doc suggested. I am off of antidepressants. I haven’t had any viral loads

taken because I just can’t afford it right now, but if the proof is in

the pudding, I feel good.

However, for all I know my liver is going to fall out tomorrow at 3:42 pm. But I don’t think so.

Nikki

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of Jackie on

Sent: Thursday, October 19, 2006

12:27 AM

Hepatitis C

Subject: RE:

Hello!

tell me about the retention enema's ,, Im really interested in

what you are doing,,

jax

Nikki Cowan

wrote:

I am doing retention enemas with my

morning urine, colloidal silver and a teaspoon of DMSO. When I first heard about urine therapy

I was totally revolted, but being the curious person that I am and highly

motivated from my brother’s very sad and drawn out and painful passing. I read Martha Christy’s

“Your Own Perfect Medicine” and I gave it a try. It has been amazing for me and

my life is back on track, I feel really good.

Nikki

Hi Nikki,

What are you doing instead of Conventional treatment?

No chest pains here, but my nerves are sure shot..

Blessings,

Sheena

Jackie __._,_.___

__,_._,___

Jackie __._,_.___

__,_._,___

November 28, 2006

awwww she looks like a little angel :-d welcome to the group.

On 11/28/06, Fox <mlynnfox@...> wrote:

>

> Hi there! My name is Fox - my daughter, Malorie, is 4 years old

> - she has SMA type 2. She was diagnosed at 10 months old. We live in Ada,

> Michigan. You can visit Malorie on her site - www.maloriefox.com. Can't

> wait to chat with everyone!

>

November 30, 2006

welcome !

My name is , I am 27yrs old (soon to be the big 28 approaching

30! yikes) and have SMA type 2, diagnosed at 18 months old. I use a

power chair and personal care attendants for help. I currently live

in CA with my parents but lived on my own for a few yrs while

getting my Masters degree. now on the big job search after

graduating!

I'm the new list owner to this group so should you have any

questions, let me know. The list is an excellent resource.

Take care,

>

> Hi there! My name is Fox - my daughter, Malorie, is 4

years old - she has SMA type 2. She was diagnosed at 10 months

old. We live in Ada, Michigan. You can visit Malorie on her site -

www.maloriefox.com. Can't wait to chat with everyone!

>

December 10, 2006

I suffer from iron overload also . Tell your doctor to send you to a hematologist so that they can do phlebotomies to get your iron levels down. Once your iron level comes down your viral load can also go down( my viral load went from 14million to 1mil after I had phlebotomies) and it increases the chance for a sustained viralogical response . I have not read anything about a pill that can reduce the iron level yet but I will find it if it is real . LOL I am this boards medical researcher and a moderator for the group . Welcome to the group Alaska hehe

Hello!

And greetings from the not so frozen far north country, Alaska!Thank you for accepting me into your group.I'll jump right in with a question....anyone with experience with ironoverload? Dr. says avoid iron fortified food....and he is doingresearch for a treatment for too much iron. I've read online abouthaving your blood drawn out....sounds a bit like using leaches(I joke)and I found a site that says the FDA just approved a pill? Any oneelse in the same boat?I sure appreciate the sharing of your experiences...Thanks,D

December 10, 2006

I forgot to ask if you know what your iron saturation % is ?

Hello!

And greetings from the not so frozen far north country, Alaska!Thank you for accepting me into your group.I'll jump right in with a question....anyone with experience with ironoverload? Dr. says avoid iron fortified food....and he is doingresearch for a treatment for too much iron. I've read online abouthaving your blood drawn out....sounds a bit like using leaches(I joke)and I found a site that says the FDA just approved a pill? Any oneelse in the same boat?I sure appreciate the sharing of your experiences...Thanks,D

December 11, 2006

Hi Diane, welcome to the group!

Ally

On 12/11/06, Diane <ddnorman@...> wrote:

And greetings from the not so frozen far north country, Alaska!Thank you for accepting me into your group.I'll jump right in with a question....anyone with experience with ironoverload? Dr. says avoid iron fortified food....and he is doing

research for a treatment for too much iron. I've read online abouthaving your blood drawn out....sounds a bit like using leaches(I joke)and I found a site that says the FDA just approved a pill? Any oneelse in the same boat?

I sure appreciate the sharing of your experiences...Thanks,D

December 11, 2006

Hi Diane, welcome to the group!

Ally

On 12/11/06, Diane <ddnorman@...> wrote:

And greetings from the not so frozen far north country, Alaska!Thank you for accepting me into your group.I'll jump right in with a question....anyone with experience with ironoverload? Dr. says avoid iron fortified food....and he is doing

research for a treatment for too much iron. I've read online abouthaving your blood drawn out....sounds a bit like using leaches(I joke)and I found a site that says the FDA just approved a pill? Any oneelse in the same boat?

I sure appreciate the sharing of your experiences...Thanks,D

December 22, 2006

Hartel wrote:

>

> I just wanted to say 'Hi " to everyone and find out where we are all

> from?

from Dale, Mom to Katy, CVID, age 22, married

Welcome ! I'm from California in the San /San Francisco end.

A group that really helped me to navigate Katy's insurance was

A.C.C.E.S.S. They told me what rights I had and what I was eligible

for, etc. Give them a call and see what they can do to help you with

insurance. Their number is 206-340-4505.

Hope that helps and you can figure out a plan.

In His service,

dale

December 22, 2006

Hartel wrote:

>

> I just wanted to say 'Hi " to everyone and find out where we are all

> from?

from Dale, Mom to Katy, CVID, age 22, married

Welcome ! I'm from California in the San /San Francisco end.

A group that really helped me to navigate Katy's insurance was

A.C.C.E.S.S. They told me what rights I had and what I was eligible

for, etc. Give them a call and see what they can do to help you with

insurance. Their number is 206-340-4505.

Hope that helps and you can figure out a plan.

In His service,

dale

December 22, 2006

Medicare sounds like a good option but it takes a long time. He will not be

eligible for awhile . you may want to find a legislature to help you. I know

that is how I got my SSI. It will be under him only since he is an adult. Also

you may want to contact IDF and a group called Access which will walk you

through the process. BARBIE Lucas CVID and Bipolar SQ IG, we live in OK now.

Hartel <maryhartel@...> wrote:

I just wanted to say 'Hi " to everyone and find out where we are all

from?

I am from Michigan and decided to join this group because my 20 yo

son has CVID ( diagnosed in '99) and his medicaid is being cut off,

effective Jan 31 2007.

We applied for insurance through Aetna and was turned down. Of course

I would like to know why? Could it be that he is high risk?

Here is a brief history of

Born at 36 weeks gestation with a Tracheal Esophogeal Fistula (

T.E.F.)

A feeding tube was inserted right after birth. TEF repair was

performed the next day. Admitted to the NNICU for one month. 3

episodes of Apnea. Came home on a monitor.

Illnesses:

Pneumonias.......too many hospitalizations to list.

* 1989.....age 3. I take him to to the ER for spiked temp. (103) and

severe vomiting and difficulty breathing ( had already been diagnosed

with asthma). Chest xrays are taken and confirmed that he has double

pneumonia. A bolus of amonophylin (sp) is given. He is transported to

his hospital room. Still has the IV of amonophyllin in form the ER. I

notice a few hours later that he is acting 'whacko'and totally out of

it. He is also in an O2 tent. Nurse comes in to check him and leaves

the room quickly. Comes back with his doctor and I am told that he

has to be admitted to the PICU because his theophyllin levels were

above 60! He has to go on a ventilator. Also a charcoal rx is given

to get some of the meds out of his system. He was on the ventlator

for, if I recall correctly, about 4 days. He stays in the PICU for 2

weeks and ten is transferred back on the floor for another 3 weeks.

So....what turned out to be a few day stay turned out to be about a

month! I will never forget that!

He also has tracheomalasia, bronchomalasia, rx of sinus infections, (

has had them surgically cleaned and scoped a few times) rx of reflux,

( he had the thal fundoplication done in fall of 1996. His reflux has

been greatly reduced and so far the wrap is holding. No leaks so far!

Today he is 'ok' but worried that if his infusions are stopped he

will get gravely ill. His last IgG level was was at 700. Before he

started infusions, they were in the low 300's. We have been told by

is Immumonlogist/Allergist that he will need these infusions if he

wants to have a 'normal' life.

So now we have to find insurance for him. Medicare? Any help or

advise would be extremely appreciated.

I look forward to hearing from all of you.

Take care

Charlotte MI

December 22, 2006