Guest guest Report post Posted April 3, 2007 Mel, I don't think it's you at all, but treatment related, I have heard similar stories from others.. Try to hang in, you've come this far, and that is truly something! You are far tougher than you are giving yourself credit for.. I only hope I do as well! Hugs and Prayers, Sheena Melodee <melodeedestefano@...> wrote: Thanks for your support. I hate to say it but I think I am manic. Either that or on the verge of nervous breakdown.At least all the "strucural anatomical" type tests are looking fairly normal, or at least what I expected. I have a little bit of cervical spine radiculopathy. I do not think that caused the burning arms episode. This dang Peg/Copeg is a bumpy ride for sure. Two GI docs said to continue on and that I am not doing too bad on this. Of course I have pushed myself everyinch of the way for 7 months trying to be wonder woman or something. I think that everything is just catching up to me now. I have been off work since March 17th. I am getting very concerned about bills coming due. I love being home, but I am almost afraid to relax and get comfortable. I have a boat load of doc visits scheduled and also going to s Hopkins endocrinology later next week to see what they have to say about all this.Thanks again for being a should er to cry onMel Don't get soaked. Take a quick peek at the forecast with the Search weather shortcut. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 4, 2007 Mel, I am starting my very first Injection and Riba on Friday, week one of 48 weeks minimum. Not sure how that will be for me, but I do hope that caring about others does not go the wayside. That would make me very unhappy.. I have watched others struggle for 7 months, all any of us can do is the best we can.. I do so hope you can get your disability resolved.. Hugs and Prayers, Sheena Melodee <melodeedestefano@...> wrote: YOUR WORDS ARE SO KIND!I wish I had the ability to be so caring.Went all around to docs today, gave blood for tests, made more appointments and now have to look into FMLA and short term disabilityMel Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 4, 2007 Sheena, I'll be right here beside you all the way. As will most of the other members of this group. It's scary starting, but once past that, it's just keeping SVR dangling like a carrot before you. I know you will get there, just as I know I will. Hugs and good vibes to you, friend. Sharon Re: Mel Mel, I am starting my very first Injection and Riba on Friday, week one of 48 weeks minimum. Not sure how that will be for me, but I do hope that caring about others does not go the wayside. That would make me very unhappy.. I have watched others struggle for 7 months, all any of us can do is the best we can.. I do so hope you can get your disability resolved.. Hugs and Prayers, Sheena Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 4, 2007 thanks your are a doll Mel > > Sheena, I'll be right here beside you all the way. As will most of the other members of this group. It's scary starting, but once past that, it's just keeping SVR dangling like a carrot before you. I know you will get there, just as I know I will. > > Hugs and good vibes to you, friend. > > Sharon > Re: Mel > > > Mel, > I am starting my very first Injection and Riba > on Friday, week one of 48 weeks minimum. Not sure > how that will be for me, but I do hope that caring about > others does not go the wayside. That would make me > very unhappy.. I have watched others struggle for 7 months, > all any of us can do is the best we can.. I do so hope you > can get your disability resolved.. > > Hugs and Prayers, > Sheena > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 5, 2007 Ah - la Ricky Lake *Go Sheena* *Go Sheena* * Go Sheena*!!!!! You may not be excited about starting treatment honey but we'll be excited for you! I can't wait to be there for you every step of the way as you SLAY this damned Dragon! Woohoo! Luv anne I am starting my very first Injection and Riba on Friday, week one of 48 weeks minimum...... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 6, 2007 What great news that you are feeling some better! I know everyone repsonds differently, time will tell.. The Ribavirin is the actual Dragon slayer, can see where they could kick butt! Thanks, and hope they can get you turned around very quickly! Hugs, Sheena Melodee <melodeedestefano@...> wrote: Hi girl.Look, you will probably be fine. In the past 7 months I have not gotten fever or symptoms to bad after the shot. Personslly I believe that the Ribaviron is harder on the system in general.But anyway, the beginning was the easiest for me. I have a "blown up" thyroid now, but everyone is confident that they can take care of it.I am feeling better today.melLove and blessings.......... Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 18, 2009 Hi ya Mellieeeee... Thank you. Never very far away and always listening. Just had to take a teeny break to work on a few personal things. How are you fairing in your "Mitemare"? ((Hugs))Trly>> awww. truly blessed. my hero here. thanks for replying. sometimes I think no one is listening to me. it's good that you are still around here. > Mel> > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 19, 2009 Hi TB: Things are much better here with me, but I can't completely get rid of them. They like me too much. But, I'm grateful that things are better. Mel From: trlyblest <trlyblest@...>Subject: Melbird mites Date: Sunday, July 19, 2009, 12:30 AM Hi ya Mellieeeee.. . Thank you. Never very far away and always listening. Just had to take a teeny break to work on a few personal things. How are you fairing in your "Mitemare"? ((Hugs))Trly>> awww. truly blessed. my hero here. thanks for replying. sometimes I think no one is listening to me. it's good that you are still around here. > Mel> > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 24, 2010 No u da’ bomb! HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Sent: Thursday, May 20, 2010 9:06 PM infantile scoliosis treatment Subject: Re: ISOP PSA on Lifetime I ditto everything heidi said about heather. And great news about the psa! Heidi and heather are da bomb! NIck Guthe <nickguthe@...> wrote: >Hey everyone, Nick got an email that the PSA has actually not yet aired on the Lifetime Channel- it will begin next week, and air for 4-6 weeks, so that is great news! Hopefully some new members will be here and getting the gold standard of care for their babies and kiddos with PIS. GO ISOP! > >, I hope you are feeling joy and a sense of ongoing accomplishment, with all of the children who you are directly responsible for helping and saving this week- and always! There are not very many people like you in the entire world, I marvel at what you have done every day. > >You and of course Dr. Mehta, and the Shriners and all of the groundbreaking docs and medical teams our kids go to....you are our true heroes!!! > Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast) > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2012 Hey Mel, The doc at CCHMC is a pediatric, orthopaedic surgeon specializing in the young spine and is the Director of the Crawford Spine Center. Hope you guys are well! HRH > , > Is Dr S a neurosurgeon by chance? > > mom to isaiah cast free and growing straighter since 2010! > > > heatherhewitt22 <heatherh1@...> wrote: > >>Good afternoon everyone. I am glad we have found this group, we need the >> advice from other parents who are going through the same thing. >> >>Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 >> months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected >> to do the casting treatment. Tom's first cast will go on a week from >> today. >> >>My husband and I could use any tips or advice on how to manage things the >> first week. What are the first 48 hours like? How should we handle Tom >> around his older siblings (ages 6 & 2). >> >>Thanks, >> >> > Quote Share this post Link to post Share on other sites
