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,

I was hoping to hear from you so I'm glad there was a message today! I'm happy

to hear that things are still going ok. The baby being correct size for dates

etc. is very reassuring. How many weeks are you now?

Yes, you can do bedrest for an entire pregnancy! I did it for 8 months and it

can be done! I had the bleeding/cramping first, then I had an emergency

circlage at 14weeks b/c I have an incompetent cervix, hence the bedrest for the

remainder of the pregnancy. Ah, and no intimate contact w/ dh either.....the

whole time!!! With Caelan I was on bedrest beginnning at 13 weeks when I had a

placental abruption and then at 18 weeks I had a cerclage done and was on

another 4 weeks of bedrest. I was then allowed modified bedrest for the rest of

the preg. where I could be up but no lifting etc. and had to being laying down

at least 4 hrs during the day. I began contracting at 28 weeks this time and

delivered at 34.5 weeks when my water broke. Grace was up and around this whole

time, but my mom came when I was on strict bedrest to help. The 8 months of

bedrest, my Mom lived w/ us during the week to run the house and feed me while

dh was gone.

If you want to check into it there is a group called Sidelines at

www.sidelines.org that helps give support to women with high risk pregnancy. I

volunteer for them.

Hang in there!!!

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-

Thanks for such a nice e-mail -- very encouraging. It will be interesting to meet the dr. who specializes in adult congenital defects. With my regular cardio, I am a bit of an anomaly -- it seems like unless cardio's specialize in congenital stuff, they don't see TOF patients too often.

They put me on Lasix and that seems to be helping the shortness of breath. I lost 5 lbs. overnight! (grin) I'm still hoping I might not need another open heart surgery, but I figure that if I do, it's better to have it done now while I'm young. Plus, my last open heart was almost 29years ago, so I'm sure technology has changed the process a lot!

I have to say... I'm still REALLY glad they did the ablation, because it sure is nice not to have the v-tach happening all the time. The valve problem is a bit of a bummer, but to be honest, I've almost forgotten about my ICD over the past few days! (I know, I know ... I'm sure IT will remind me if I need it. LOL) Plus, the valve problem already existed independent of the ablation and ICD -- so maybe it's lucky I went in for the other stuff so they could catch this too.

The dr. who did the TE scope was asking me a lot of questions about my younger childhood with TOF -- he seemed amazed to discover that I had an incredibly normal childhood -- even played volleyball and basketball, played in instrument, participated in drama, etc. etc. -- he seemed really delighted. I told him that I intend to live to be at least 90, so they need to keep on the TOF stuff for adults and get it all sorted out. :)

Hope things are going well for you in Ireland -- It's great to have contact with someone else who is doing so well with their TOF!

ita in Ohio

Re: ita from OH

ita,Glad things are turning out OK for you. I guess it was a big disappointmentwhen the post-ablation complications arose, but it's good to know they'resettling down again.Since we are the first generation of Fallot's Tetralogy patients survivingto adulthood, a lot has yet to be learned by medics about our condition.What you went through might help me if I ever need another ablation, andwhat doctors discover for me will be beneficial to you.Keep up the prayers, and thank God for the life you have lived so far andthe hope and inspiration you are giving. TumeltyNorthern IrelandPlease visit the Zapper homepage athttp://www.ZapLife.org

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I was absoulutely flabbergasted at this post! I havent been here long

but I know this group is great! I check messages on here several

times a day and I dont know how I could do my body for life diet with

out you guys. So if Dawn is happy some where else that's great! But

as for me, I love you guys and I am happy here! Thanks for the good

advice and support!

Here's to another great fat burning, muscle building, full of energy

day!

:) Laurie :)

> I wanted to thank each of the ladies in this group who was able to

> offer POSITIVE feedback and suggestions during my first challenge.

>

> I'm now working on week 10 of this challenge and will continue with

> this way of life. For that I thank each of you ladies.

>

> However, I've had enough of this group. Unfortunately, the

> negativity and the constant superiority complex that some of the

> people who post on this site have is quite annoying.

>

> There is another group that I belong to, and some of you ladies do

> as well that is much more positive and much more supportive than

> this group. They offer advice, feedback, and suggestions without

> deeming themselves experts, and let me tell you they should be

> considered experts !!!

>

> I wish you all the best, and for those of you who think you are the

> BFL goddesses, perhaps you need to practice what you preach to

> everyone else.

>

> Thanks

>

> Dawn West

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Dawn,

I'm sorry you feel this way. People just have such difference

personalities, and that comes through in e-mail. I think the great

majority of the women here are super supportive and willing to help.

Some of the ladies here do know a lot, and I like that they share

their knowledge with others. I don't mind the " get your butt in gear

and don't whine " mentality. Sometimes I need people to tell me

that. Anyway, I wish you all the best with your challenge.

Dani

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buh bye.

Thanks

I wanted to thank each of the ladies in this group who was able to

offer POSITIVE feedback and suggestions during my first challenge.

I'm now working on week 10 of this challenge and will continue with

this way of life. For that I thank each of you ladies.

However, I've had enough of this group. Unfortunately, the

negativity and the constant superiority complex that some of the

people who post on this site have is quite annoying.

There is another group that I belong to, and some of you ladies do

as well that is much more positive and much more supportive than

this group. They offer advice, feedback, and suggestions without

deeming themselves experts, and let me tell you they should be

considered experts !!!

I wish you all the best, and for those of you who think you are the

BFL goddesses, perhaps you need to practice what you preach to

everyone else.

Thanks

Dawn West

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me 2! Obviously she had a bad experience and felt obliged to tell everyone

about it.

i couldn't do without the support and advice I get from this board either!

Rita

Re: Thanks

I was absoulutely flabbergasted at this post! I havent been here long

but I know this group is great! I check messages on here several

times a day and I dont know how I could do my body for life diet with

out you guys. So if Dawn is happy some where else that's great! But

as for me, I love you guys and I am happy here! Thanks for the good

advice and support!

Here's to another great fat burning, muscle building, full of energy

day!

:) Laurie :)

> I wanted to thank each of the ladies in this group who was able to

> offer POSITIVE feedback and suggestions during my first challenge.

>

> I'm now working on week 10 of this challenge and will continue with

> this way of life. For that I thank each of you ladies.

>

> However, I've had enough of this group. Unfortunately, the

> negativity and the constant superiority complex that some of the

> people who post on this site have is quite annoying.

>

> There is another group that I belong to, and some of you ladies do

> as well that is much more positive and much more supportive than

> this group. They offer advice, feedback, and suggestions without

> deeming themselves experts, and let me tell you they should be

> considered experts !!!

>

> I wish you all the best, and for those of you who think you are the

> BFL goddesses, perhaps you need to practice what you preach to

> everyone else.

>

> Thanks

>

> Dawn West

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Different groups and clubs really do have unique personalities. This group tends

to be loud, goofy, catty, and very opinionated... sort of like a pack of hyenas.

:-) People either immediately fall in love with that brand of support, or they

roll their eyes and leave. Personally, I like knowing that if I snivel about

eating cookies on a non free day, someone will either a) refer me to a mental

health professional, or B) snarl, and bite my ear off. LOL :-)

Thanks

I wanted to thank each of the ladies in this group who was able to

offer POSITIVE feedback and suggestions during my first challenge.

I'm now working on week 10 of this challenge and will continue with

this way of life. For that I thank each of you ladies.

However, I've had enough of this group. Unfortunately, the

negativity and the constant superiority complex that some of the

people who post on this site have is quite annoying.

There is another group that I belong to, and some of you ladies do

as well that is much more positive and much more supportive than

this group. They offer advice, feedback, and suggestions without

deeming themselves experts, and let me tell you they should be

considered experts !!!

I wish you all the best, and for those of you who think you are the

BFL goddesses, perhaps you need to practice what you preach to

everyone else.

Thanks

Dawn West

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Well I, for one, like the diversity. I have quickly learned who knows what

she's talking about and who just THINKS she knows. lol But I enjoy reading all

the posts and find everyone here supportive and trying to be helpful.

Rita

Thanks

I wanted to thank each of the ladies in this group who was able to

offer POSITIVE feedback and suggestions during my first challenge.

I'm now working on week 10 of this challenge and will continue with

this way of life. For that I thank each of you ladies.

However, I've had enough of this group. Unfortunately, the

negativity and the constant superiority complex that some of the

people who post on this site have is quite annoying.

There is another group that I belong to, and some of you ladies do

as well that is much more positive and much more supportive than

this group. They offer advice, feedback, and suggestions without

deeming themselves experts, and let me tell you they should be

considered experts !!!

I wish you all the best, and for those of you who think you are the

BFL goddesses, perhaps you need to practice what you preach to

everyone else.

Thanks

Dawn West

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I'm with you, Rita. People who really know what they're talking

about don't need to boast and don't need to be right all the time.

" To know what you don't know is the greatest knowledge " --Aristotle

Couldn't have said it better myself.

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I love that quote Dani! :)

Rita

Re: Thanks

I'm with you, Rita. People who really know what they're talking

about don't need to boast and don't need to be right all the time.

" To know what you don't know is the greatest knowledge " --Aristotle

Couldn't have said it better myself.

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> Different groups and clubs really do have unique personalities.

This group tends

> to be loud, goofy, catty, and very opinionated... sort of like a

pack of hyenas.

> :-) People either immediately fall in love with that brand of

support, or they

> roll their eyes and leave. Personally, I like knowing that if I

snivel about

> eating cookies on a non free day, someone will either a) refer me

to a mental

> health professional, or B) snarl, and bite my ear off. LOL :-)

>

>

>

>

Haha! LOL! I agree. I couldn't do without this club, it's great. I

LOVE catty, goofy loud and opinionated women!!

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I've only been a member of this group for about a week and I LOVE

IT! I'm so happy to get advice from knowledgable ladies, many of

whom seem to be at the same stage as myself of 'fine tuning'. This

is the only flood of emails I read regularly and love to participate

in!

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Another thanks ... someone on the list posted something that really triggered

a mental response from me....something about how an alcohalic could never

take one day a week when alcohal was " legal " and food to some of us is the

same thing. It definitely is to me. My weakness is big chunky chocolate chip

cookies from the bakery. I teach high school and during all facutly meetings,

etc, the principal brings in trays of them and I take one and then suddenly

another and then I've decided in my mind to make this my free day and I end

up eating many more. Since last week was our last week of school, there were

chocolate chip cookies everywhere and I NEVER TOOK A SINGLE BITE!!! I felt so

strong and so empowered. Was it Dani who wrote that line in one of her posts?

Whoever it was, thank you thank you thank you....a

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In a message dated 6/4/2002 10:19:41 PM Eastern Standard Time,

no_reply writes:

> , many of

> whom seem to be at the same stage as myself of 'fine tuning'.

That would be me! I did 4 BFL challenges and am now fine tuning the nutrional

part to get rid of the last pounds clinging to my middle-aged belly. No more

free days! I have never been able to do the moderation thing well...when I

smoked years ago in college, I smoked two packs a day. If I take a bite of

ice cream, its a guarantee that I am going to binge and eat however much is

in the house. I'm the same way with cats...just adopeted my sixth but unlike

overeating and smoking, they are GOOD for me. a

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Hi Gail

Fabio is doing very well with potty training. At present, he doesn't go to the

toilet by himself, but when we sit him on the toilet he is doing 'his business'.

I wonder, how it will go when we are travelling - I take tons of clothes for

him, it is no problem as we are travelling by car. We will leave tomorrow

morning and will go first to the mountains, Tanja my 13 yr old is at a

volleyball camp in Muerren (a small village in the Alps than can only be reached

by a little train - there are no cars allowed up there) from there we go to

Italy and will spend one week at the beach. I will tell you how it was when I

get back !

Hugs from Switzerland

with Tanja 13, Fabio 11 ds/asd, Elena 8

and one husband

thanks

In a message dated 7/24/02 8:46:04 AM Pacific Daylight Time,

andrea.kuehne@... writes:

<< I'm very happy for you Gail !

Hugs from Switzerland

with Tanja 13, Fabio 11 ds/asd, Elena 8

and a husband >>

Thanks . How is the potty training going? When do you go to Italy?

Gail :-)

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!!!!

Glad the potty training is going well. Hope you have no problems with it

while traveling. Have a wonderful and safe trip and make us all jealous with

the update when you get home.

Can't hug you back , cause I'll hold on too tight and go to Italy with

you! LOL

Gail :-)

<< Hi Gail

Fabio is doing very well with potty training. At present, he doesn't go to

the toilet by himself, but when we sit him on the toilet he is doing 'his

business'. I wonder, how it will go when we are travelling - I take tons of

clothes for him, it is no problem as we are travelling by car. We will leave

tomorrow morning and will go first to the mountains, Tanja my 13 yr old is at

a volleyball camp in Muerren (a small village in the Alps than can only be

reached by a little train - there are no cars allowed up there) from there we

go to Italy and will spend one week at the beach. I will tell you how it was

when I get back !

Hugs from Switzerland

with Tanja 13, Fabio 11 ds/asd, Elena 8

and one husband >>

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Hi ,

sounds like a nice way to spend the day, pampering self, GOOD for you.

I am waiting and waiting for my little grandson to get here, my daughter

has been in labor since Thurs. 7am. This is nerve racking and I am very

impatient! Take care, Louise.

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Hi ,

sounds like a nice way to spend the day, pampering self, GOOD for you.

I am waiting and waiting for my little grandson to get here, my daughter

has been in labor since Thurs. 7am. This is nerve racking and I am very

impatient! Take care, Louise.

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Melis,

If you want to reduce temper tantrums--and, by the way, teeth grinding--why

not just go with C4 SMR referenced to A2?

The combination of information about night terrors (not just waking up) and

the fear of bipolar makes Mom's position much more sensible--or at least

understandable.

I don't have a problem with mixing in some SMR. My question was why you

chose to do it for a Tone problem when there didn't appear to be any aspects

of Tone.

Pete

thanks

Hi Pete,

Thanks for resending your post. I'm not sure why I did not receive it

before. Anyway, to answer a few questions you had...regarding sleep...mom

reports no problems with onset or duration before training began...only

reported grinding teeth while sleeping.

I chose to add t3t4 work bc he has emotional outbursts with aggressive

behaviour. His mom was upset bc of the " night terrors " after reading this is

a symptom in children prior to bipolar diagnosis...his father is bipolar.

not that this gives her the right to react to me as she did, but this is her

real reason for being so freaked out.

It sounds that you are recommending continuing B training in the

parietal lobes. I think C3Pz has been a good choice for him since we've seen

such positive results in regard to his reading. I'm not sure what placement

to do SMR training bc I thought you did recommend doing SMR to " balance " B

training. Am I missing something?

Thank you for your comments.

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Your welcome,

glad I could help

At 10:23 PM 9/11/2002 +0000, you wrote:

>Thanks , that was exactly what I needed.

>

>

>

>

>

> > > > >Okay, just thought it might help people better advise you.

>I've

> > > > >actually heard several less than tall women complain that their

> > >legs

> > > > >look too large when they have worked out to a lean weight, so

> > >perhaps

> > > > >you are not alone in your concern. I'm sure some of the

>trainers on

> > > > >here will be able to help you out.

> > > > >

> > > > >Alys

> > > > >

> > > > >

> > > > >

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Hi, everyone! Thanks for sharing your experiences. I can't sit at the

computer right now, so I just printed off everyone's stories to read later (I

promise not to distribute them through the neighborhood). I'm glad you all

had a wonderful time and welcome back!

Love,

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Vicci:

Hello....it sounds like you feel a bit better. This time will no doubt be a

trying time, emotional with all the added stresses of it all BUT I promise

you it does get better. I remember when we were going through it all I never

thought the light would shine again.....BUT it did.

No matter what the final " label " is it will not change who is. My son

although different has many qualities that I wished my older typical children

would have had.

You mentioned ped. in Pittsburgh......can you email me who he is and when are

you going....I live in Washington Pa and I am curious.........

Good luck

Debbie in Pa/ pdd-nos age 7

capajravelle wrote:

> Hello,

>

> I just got around to reading the reponses to my post and wanted to

> thank everyone for their input. This process has been a painful one,

> still is, and I am still so confused. is doing well right now.

> We are having less tantrums and meltdowns. He is going to bed now by

> 10 pm and actually going to sleep! Clothes are still a problem,

> especially now that it has gotten cold and he has to wear more of

> them, but I know what he likes and let him wear what he wants. Food

> issues we just don't deal with anymore. We let him eat his standard

> peanut butter sandwich and avoid the battle altogether. The schedule

> board has helped alot, it seems to give a sense of control. He

> has even requested that I expand it to include his morning routine as

> well. He has also mentioned that he would like one at school, but

> that is not going to happen without and IEP,which is not going to

> happen without a diagnosis other than ADHD. I always have to be ready

> to head off or sidetrack , but I'm getting better at

> anticipating situations and responses. Sometimes I feel like I still

> have a young toddler because I'm always on the alert and I have to

> lug snacks and drinks and " fidgets " whenever we take him anywhere. It

> isn't easy or conveinent making so many accomadations in our lives

> for him, but it is less stressful than dealing with the fallout.

>

> Finally, my husband and I have decided to go ahead with the

> appointment with the developmental pediatrician. He is suppossed to

> be the best one in Pittsburgh and very good with diagnosing children

> with PDD, autism, or other behavioral/developmental disorders. We've

> come to the conclusion that this is our last stop with . If he

> says that it really is just ADHD like the psychologist says,then so

> be it, but I will not put him on a stimulant medication again. If he

> says that it is PDD,then so be it, we'll finally qualify for the

> services seems to need and maybe the school will help instead

> of argue. If he says it is nothing and we're overreacting, then so be

> it, we've lived with him this long, what's a few more years? We will

> accept what they say and move on with our lives because will

> be no matter what label they give him. The label won't change

> how we perceive him, only how others perceive him and, perhaps,

> relate to him. That could be good or bad. As for the school, well,

> they'll just have to learn to adjust to him, too. I'm not going to

> let them push me around anymore. is our child and we, not the

> school, will decide what is best for him.

>

> Vicci

>

>

>

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Vicci, that is exactly what Evan's principal says. We need to be the

advocate for our child because we are the experts on him/her.

Betty

As for the school, well,

> they'll just have to learn to adjust to him, too. I'm not going to

> let them push me around anymore. is our child and we, not the

> school, will decide what is best for him.

>

> Vicci

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I too agree with the post referring to . I am a lurker (for almost a

year now) and I am amazed by her kindness, encouragement, knowledge and most

importantly, her ability to crack me up! You rock ! Cheers to

you........water of course!

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I too thank you so much Skwigg as you have really been cheering me on from

afar. Am getting my head on straight to begin in earnest to do my first

every C1, and read all the posts and books I have trying to get up the nerve

You really have given some great tips and ideas for us newbies....Have

everything all set up in my home gym, BFL book re-read, and Simply Protein

in the blender. One of these days will take the step..

Just wanted you to know how I do appreciate all your efforts.

Lynda in Madrid, Spain

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