New to the group

[Guest guest]

Welcome . You've found a great site with great people.

I only manage to read the posts in spurts, so please excuse the

delay in reading and responding to your message.

My son, Kenny, was originally diagnosed with Pfapa and later tested

for the genetic disorders (thanks to the info on the files here) and

found positive for Traps.

Kenny's fevers began on his 1st b-day, and he had about 14 episodes

the next year or so, but they were not as predictable as with Pfapa

fevers. They were 30 days apart...then 52 days apart...then 3

months apart. With Traps, episodes are triggered by physical or

emotional stress. Any changes to routine -- all vacations, plane

trips, start of preschool, etc., set off a fever.

The knee pain was far more prevalent than the fevers. He often

complained of pain in his knees, his feet, his hands, and his

stomach. Later, he began experiencing pain in his eyes.

It's very important to have the genetic testing, as the treatments

for Pfapa and the genetic fever disorders are not the same, and

there are potential side effects to some of the other disorders that

should be closely monitored.

Charyn, mom to Kenny 4, with Traps

[Guest guest]

Thanks so much for the warm welcome and words of encouragement. I am

on day three and all is well.

I know that I have a long road ahead; but as each day passes it gets

a little easier. It feels great knowing that I am making a positive

change in my life.

The headaches have subsided thank heavens. I have been doing really

well with water and lemon. I also went out and purchased Crystal

light.

I have to force myself to drink water. I have a 32 ounce bottle and

I fill it twice a day that way I know I am getting at least the

minimum amount. Plus I carry a bottle to the gym with me.

The overall change hasn't been bad. I have a slight head cold but

overall I feel great.

Blessings to you.

in Savannah

> >

> > Good Morning Ladies,

> >

> > My name is and I am new to the group. I just started the

BFL program on yesterday.

> >

> > Surprisingly, I felt great all day. I did have a headache last

night but I think that was from caffeine withdrawal. I am used to

gulping Pepsi at an alarming rate. I am so proud of myself because I

didn't have a craving all day.

> >

> > Any suggestions would be greatly appreciated. My goal is to lose

145 pounds over the next year, tone and gain muscle.

> >

> > Thanks and have a great day my sisters.

> >

> > Peace and Blessings,

> >

> >

[Guest guest]

>

> >

> I have to force myself to drink water. I have a 32 ounce bottle

and I fill it twice a day that way I know I am getting at least the

> minimum amount. Plus I carry a bottle to the gym with me.

>

,

I, too, am not a big water drinker. In fact for years lived on Diet

Pepsi and Zima alone <G>. I have noticed that as time progressed and

I forced myself to drink the water that I crave it more and more and

it does get easier to drink.

Colleen

[Guest guest]

Just a random heads up in response to part of your post -- Some

(definately not all, nor even most) people don't have a great

response to the artificial sweeteners in Crystal Light. Plenty of

people can drink it with no problem, but for some it will increase

sugar cravings. If you notice that you start craving lots of sweet

stuff, I'd cut out the Crystal Light and see if anything changes. I

hate to make things harder for you when you're just starting, but I

thought I'd point this out in advance!

> > >

> > > Good Morning Ladies,

> > >

> > > My name is and I am new to the group. I just started the

> BFL program on yesterday.

> > >

> > > Surprisingly, I felt great all day. I did have a headache last

> night but I think that was from caffeine withdrawal. I am used to

> gulping Pepsi at an alarming rate. I am so proud of myself because

I

> didn't have a craving all day.

> > >

> > > Any suggestions would be greatly appreciated. My goal is to

lose

> 145 pounds over the next year, tone and gain muscle.

> > >

> > > Thanks and have a great day my sisters.

> > >

> > > Peace and Blessings,

> > >

> > >

[Guest guest]

Colleen,

You are so right. Although, it has only been four days I drink it now without

thinking. Actually I have had only 3 glasses of Crystal light since Sunday.

Every day it gets easier and easier.

Re: New To The Group

>

> >

> I have to force myself to drink water. I have a 32 ounce bottle

and I fill it twice a day that way I know I am getting at least the

> minimum amount. Plus I carry a bottle to the gym with me.

>

,

I, too, am not a big water drinker. In fact for years lived on Diet

Pepsi and Zima alone <G>. I have noticed that as time progressed and

I forced myself to drink the water that I crave it more and more and

it does get easier to drink.

Colleen

[Guest guest]

hi --

hi. my name is laurel. live in jacksonville, florida. was diagnosed in fall

1990 although i was ill many months before. used to work for a big ad agency

in chicago. left because of my illness.

member of cfids.org as well as make a small monthly donation. started the

miami study with procrit last year but they ran out of something needed for

one of the tests and then i've been traveling a lot since then. spend a fair

amount of my time in northern california as my dad died last year and my mom

broke her wrist this past summer.

have a variety of other diagnoses, such as orthostatic intolerance, fms

(likely triggered from a car accident). i basically almost flat-lined on my

tilt table test. i'm one of the about 30% who has gotten better since being

ill. however, the past two years i've become the most ill since i first got

sick. although not as ill as then. and frankly, my attitude is not great.

tired of feeling weird, alone, etc. " relapse " has caused major problems in

my marriage which leads to other stressors, such as fear of future.

have three dachshunds, two cats, two fish tanks, and a cockatiel. hmm --

what else would you like to know? oh, I married 9 years ago and my husband

is " tired " of my being ill. and if he knew that I would be this sick, he

wouldn't have married me. adding just a bit of stress to my life.

thankfully my doctor believes in the illness although he's not into the more

alternative topics, such as candidiasis. however, i have military coverage

through my husband and my doctor has been very emotionally supportive.

specifically over the past two years, i've developed new symptoms -- such as

breathing, heart stuff -- and re-experienced memory problems and cognitive

issues. BEYOND frustrating.

when I first got ill, I tried pretty much everything that was known at the

time such as gamma-globulin, etc. but I quickly became immune to most

everything. I had a doctor who was european and was very plugged into the

alternative options. and I was macrobiotic for the first year, hung my

dry-cleaning outside for a few days, etc. however, as I started to get

better (probably never better than 70%) I got lax in taking care of myself.

probably wanting to lead a normal life.

I'VE COMMITTED THIS YEAR, 2005, to doing what I can to take care of myself

-- clean diet, various treatments.

I'm glad this list is here as it's a great way to bring myself up-to-speed

on the various treatments, options now available.

let me know what else you'd like to know, if anything.

thanks,

laurel

[Guest guest]

Hi, ,

Welcome to . You may recognize some of the characters here from

Down-syn, like me and Timbo and a few others.

Regards,

Bob, as in Bob and Lynn from Plainsboro, Charlie's parents

<<Hi,

I'm mom to Simone - 4 1/2 with DS, Adam - 3, and Merin - 4 months.

We live in NJ and I facilitate a DS Family Support Group in the

Edison/Woodbringe Area. Glad to have found this group!

>>

[Guest guest]

Hi, ,

Welcome to . You may recognize some of the characters here from

Down-syn, like me and Timbo and a few others.

Regards,

Bob, as in Bob and Lynn from Plainsboro, Charlie's parents

<<Hi,

I'm mom to Simone - 4 1/2 with DS, Adam - 3, and Merin - 4 months.

We live in NJ and I facilitate a DS Family Support Group in the

Edison/Woodbringe Area. Glad to have found this group!

>>

[Guest guest]

-Hi Jer: Welcome!! I'm new here also and find this group to be

wonderful!!

Faye

-- In 100-plus , " soartosuccess2004 "

<soartosuccess2004@y...> wrote:

>

>

> Hello...I'm new here...signed up a few days ago after weighing on

my

> new scales and having to face the fact that I had added 30 pounds

to

> my already ample body in the last year and a half. I was at my all

> time high of 270 pounds. What a reality check! It has been easy to

> fool myself that I was not really all that big...after all, all of

> my stretchy knit clothes still fit . Surely my jeans are just

> shrinking!!! Anyway, now I am serious. I have got to lose weight so

> I am making daily menus, counting calories, and so far doing pretty

> well. I am down to 265.7 Yeah! At least the scale is moving

> downward. I have not started an exercise plan yet...I hate to

> exercise, but I know I have to if I want to do this right and get

> healthy.

>

> A little about me: I'm 38, married, have two daughters, and am a

> teacher.

>

> I have really enjoyed reading the daily posts...I think this will

> help me stay motivated, to be in touch with so many others who also

> have a lot to lose. Thanks for being here!

>

> Jer

[Guest guest]

Welcome Jer. isn't amazing how it creeps on? I need to ban all stretchy pants lol

New to the group

Hello...I'm new here...signed up a few days ago after weighing on my new scales and having to face the fact that I had added 30 pounds to my already ample body in the last year and a half. I was at my all time high of 270 pounds. What a reality check! It has been easy to fool myself that I was not really all that big...after all, all of my stretchy knit clothes still fit . Surely my jeans are just shrinking!!! Anyway, now I am serious. I have got to lose weight so I am making daily menus, counting calories, and so far doing pretty well. I am down to 265.7 Yeah! At least the scale is moving downward. I have not started an exercise plan yet...I hate to exercise, but I know I have to if I want to do this right and get healthy. A little about me: I'm 38, married, have two daughters, and am a teacher. I have really enjoyed reading the daily posts...I think this will help me stay motivated, to be in touch with so many others who also have a lot to lose. Thanks for being here!JerWhen I hide myself from the world, I am also hiding myself from me.--------- from the old .com web site Daily MessageDon't forget to check our list's Files and Links pages for helpful weight loss information and loads of healthy recipes.

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.300 / Virus Database: 265.6.9 - Release Date: 1/6/2005

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Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.6.11 - Release Date: 1/12/2005

[Guest guest]

I have a DS in the navy, 20, I think undiagnosed ASD. Now that I see DS (4)

and have read up on symptoms - and am much older & wiser ;-)

He does pretty well with the structure, but has had problems with the

authority stuff sometimes. He is not in combat, and is also not a high

acheiver in the military, but he gets by. Has lots of problems managing money.

Luckily they pay for his room/board/health care.

D. Marie Ralstin-

University of Oregon

Graduate Teaching Fellow, Department of Sociology

Native American Event Coordinator, Office of Admissions

717 PLC Hall

Eugene, Oregon 97403

541-346-5071

dralstin@...

d.ralstin@...

http://gladstone.uoregon.edu/~dralstin/

Ending a sentence with a preposition is something up with which we should not

put. - Winston Churchill

When a well-packaged web of lies has been sold gradually to the masses over

generations, the truth will seem utterly preposterous and its speaker a raving

lunatic. - Dresden

[Guest guest]

Hi there,

>

> Hi, just found this group while looking for information about

> Aspie's in the military. My son who is 19 and recently diagnosed

> with AS wants to join the Marines. In order to do this he has to lie

> about having the disorder, lie about having seen a psychiatrist and

> lie during his 4 years in there and hope they don't find out else he

> will be brought up on charges for making false statements.

I must say that this does not sound sensible to me. Nobody is going to be

able to hide that they have AS for 4 years. Why does he need to, or should

he, lie about it? Autism is not a mental health issue, it is a social and

communication difference which makes all sorts of situations a minefield.

In this country, if someone were refused a job because of their disability,

the employer would be prosecuted for discrimination. Surely you have similar

laws in the US?

in England

[Guest guest]

I haven't heard of anyone who was formerly diagnosed that was in the

military, but with the regimens, the schedules, and the intense focus

on certain activities, for some Aspies, it is heaven on earth!!! I

know that my son would thrive in the military, but like yours, he

would have to lie his way through and I don't see him being able to

do that… He is too black and white, right and wrong… Hey, doesn't

that sound like what they are looking for in the military? I hope

someday that they realize that they are culling some of the most

efficient, most intelligent, and most focused individuals from their

ranks… Perhaps then they will be more open!!!

~hugs~

Rabecca

(who is proud of her family members who have served, and know more

than a few of them have strong Aspie traits)

>

> Hi, just found this group while looking for information about

> Aspie's in the military. My son who is 19 and recently diagnosed

> with AS wants to join the Marines. In order to do this he has to

lie

> about having the disorder, lie about having seen a psychiatrist and

> lie during his 4 years in there and hope they don't find out else

he

> will be brought up on charges for making false statements. He still

> has trouble with consequences of actions. I know what he went

> through in school with bullies and his frustration level caused him

> to behave violently from time to time. He thinks the order and

> structure of the military would be good for him and sees it as a

> challenge. I'm freaking out.

>

> Has anyone else heard of an AS in the military and how they cope?

[Guest guest]

This does not sound like a good situation, any way you look at it! Try to talk him out of it.

Anne

-- New to the group

Hi, just found this group while looking for information about Aspie's in the military. My son who is 19 and recently diagnosed with AS wants to join the Marines. In order to do this he has to lie about having the disorder, lie about having seen a psychiatrist and lie during his 4 years in there and hope they don't find out else he will be brought up on charges for making false statements. He still has trouble with consequences of actions. I know what he went through in school with bullies and his frustration level caused him to behave violently from time to time. He thinks the order and structure of the military would be good for him and sees it as a challenge. I'm freaking out. Has anyone else heard of an AS in the military and how they cope?

[Guest guest]

Bernstein wrote:

> Dana,

>

> My 12 y/o aspie lies constantly.....when did you notice that trait?

>

>

> Unfortunately my son is not a typical Aspie, because he lies

> constantly to me.

Louie (24, HFA/AS) tries lying sometimes too. But he's not really very

good at it. And he's always really abashed when he's caught out.

Annie, who loves ya annie@...

--

Every person is responsible for all the good within the scope of his

abilities, and for no more, and none can tell whose sphere is the

largest. Gail Hamilton (1833-1896) - Humorist

[Guest guest]

>

> Bernstein wrote:

>> Dana,

>>

>> My 12 y/o aspie lies constantly.....when did you notice that trait?

>>

>>

>> Unfortunately my son is not a typical Aspie, because he lies

>> constantly to me.

>

It is of course a myth that those with ASD cannot/do not tell lies (along

with the myths that they don't have emotion or don't have a sense of

humour). It may take them a while to cotton on to the fact that it is

possible (and so it is in a strange kind of way something to 'celebrate'

because it means they are developing), and their motivation for lying may be

different (often because of their difficulties with working out/weighing up

consequences). But they make exceptionally good liars because they do not

have any of the non-verbal give-away signs we normally look for!

[Guest guest]

> >> Dana,

> >>

> >> My 12 y/o aspie lies constantly.....when did you notice that

trait?

> >>

> >>

> >> Unfortunately my son is not a typical Aspie, because he lies

> >> constantly to me.

> >

>

> It is of course a myth that those with ASD cannot/do not tell lies

(along

> with the myths that they don't have emotion or don't have a sense

of

> humour). It may take them a while to cotton on to the fact that it

is

> possible (and so it is in a strange kind of way something

to 'celebrate'

> because it means they are developing), and their motivation for

lying may be

> different (often because of their difficulties with working

out/weighing up

> consequences). But they make exceptionally good liars because they

do not

> have any of the non-verbal give-away signs we normally look for!

>

>

[Guest guest]

BINGO...I found one.

http://www.autismtoday.com/lying.htm

Thanks,

Mandy

> > >> Dana,

> > >>

> > >> My 12 y/o aspie lies constantly.....when did you notice that

> trait?

> > >>

> > >>

> > >> Unfortunately my son is not a typical Aspie, because he

lies

> > >> constantly to me.

> > >

> >

> > It is of course a myth that those with ASD cannot/do not tell

lies

> (along

> > with the myths that they don't have emotion or don't have a sense

> of

> > humour). It may take them a while to cotton on to the fact that

it

> is

> > possible (and so it is in a strange kind of way something

> to 'celebrate'

> > because it means they are developing), and their motivation for

> lying may be

> > different (often because of their difficulties with working

> out/weighing up

> > consequences). But they make exceptionally good liars because

they

> do not

> > have any of the non-verbal give-away signs we normally look for!

> >

> >

[Guest guest]

Mandy,

I really liked how this article presented the topic! Tyler still

doesn't lie outright, but he has just recently tried to start

manipulating the facts... unsuccessfully, but perhaps it is a

milestone!

~laughing~

Rabecca

> > > >> Dana,

> > > >>

> > > >> My 12 y/o aspie lies constantly.....when did you notice that

> > trait?

> > > >>

> > > >>

> > > >> Unfortunately my son is not a typical Aspie, because he

> lies

> > > >> constantly to me.

> > > >

> > >

> > > It is of course a myth that those with ASD cannot/do not tell

> lies

> > (along

> > > with the myths that they don't have emotion or don't have a

sense

> > of

> > > humour). It may take them a while to cotton on to the fact that

> it

> > is

> > > possible (and so it is in a strange kind of way something

> > to 'celebrate'

> > > because it means they are developing), and their motivation for

> > lying may be

> > > different (often because of their difficulties with working

> > out/weighing up

> > > consequences). But they make exceptionally good liars because

> they

> > do not

> > > have any of the non-verbal give-away signs we normally look for!

> > >

> > >

[Guest guest]

sorry i am full of stuipd questions today what is aspergers

rabecca_whalen <rabeccawhalen@...> wrote:

Mandy,I really liked how this article presented the topic! Tyler still doesn't lie outright, but he has just recently tried to start manipulating the facts... unsuccessfully, but perhaps it is a milestone!~laughing~Rabecca> > > >> Dana,> > > >>> > > >> My 12 y/o aspie lies constantly.....when did you notice that > > trait?> > > >>> > > >>> > > >> Unfortunately my son is not a typical Aspie, because he > lies> > > >> constantly to me.> > > >> > > > > > It is of course a myth that those with ASD cannot/do not tell > lies > > (along > > > with the myths that they don't have emotion or don't have a sense > > of > > > humour). It may take them a while to cotton on to the fact that > it > > is > > > possible (and so it is in a strange kind of way something > > to 'celebrate' > > > because it means they are developing), and

their motivation for > > lying may be > > > different (often because of their difficulties with working > > out/weighing up > > > consequences). But they make exceptionally good liars because > they > > do not > > > have any of the non-verbal give-away signs we normally look for!> > > > > > from isla+ paris 2 1/2may you have a wonderfull day and keep your head up high

ALL-NEW Messenger - all new features - even more fun!

[Guest guest]

<< Can anyone tell me about Autism Support Fund or Natural Support

Waiver? Who do I contact? >>

Thanks to Dees for the following information:

_________________________________________

The Natural Supports Waiver program is a part of the MRWP waiver program

and was developed just a few years ago as a more flexible Family support

waiver. This is the info on both. See the paragraph on Natural Support

Enhancement.

The amount of this waiver is less but it is a way to start receiving some

services and with it looking like there will be some waiver slots approved in

the

budget for next year this is the time to call the Regional Board or Columbus

Community to get on the list!

For those who want to call and get on the waiting list for waiver supports:

Phone number for Metro Regional Board is (770)-414-3052

and Columbus Community is (770) 938-5310.

Mental Retardation Medicaid Waiver Program (MRWP)

The Division of Mental Health / Developmental Disabilities / Addictive

Diseases Administers a waiver program called the Mental Retardation Medicaid

Waiver Program (MRWP). The MRWP has a menu of different services within it.

The average cost of the MRWP is $20,400 per person.

Services Available Under the Mental Retardation Medicaid Waiver

Residential Options

Residential Training and Supervision - This service is provided in an agency

operated site like a group home or personal care home. It is usually a 24

hour

/7 day a week service. The training offered is tailored to the individual

consumer. It can include training in self care (dressing, bathing, tooth

brushing, hair

care, etc), independent living skills (cooking, shopping, vacuuming, laundry,

making the bed, etc), communication skills (answering the telephone,

understanding

multi-step instructions, answering questions, carrying on a conversation,

etc),

leisure skills (exercising, going to the park, playing sports, accessing

community recreational facilities like movies, game rooms, etc), enhancing

self

direction (making choices, decreasing inappropriate behaviors, etc)

Personal Support - This can be a similar service to Residential Training and

Supervision, but it occurs in the family’s home or the individual’s own home.

It can also be an a home provider’s home. Personal support can be from 1-24

hours a day depending upon what the individual needs. Personal support can

provide the same training opportunities as Residential Training and

Supervision.

Day Services Options

Day Habilitation – This is a service that is offered in a facility or in the

community. It is non-work in nature. It can target training in the areas of

communication skills, social skills, leisure skills, mobility skills, or self

help skills. There is a daily rate or an hourly rate.

Day Support Services – This service option has several variables. It can be

30 hours of community based day habilitation activities. It could offer 20

hours of facility based services and 20 hours of community based services.

It could offer 60-120 hours of facility based services with 6-12 hours of that

being community based services. Day Support Services can be a combination

of day habilitation, prevocational, or supported employment.

Supported Employment – This service offers individuals the opportunity to

work a minimum of 80 hours a month in the community. It can provide job

development, job coaching, and long-term follow-up to make sure the job is

going well.

Other Support Services

Specialized Medical Supplies – This can provide a range of supplies such as

disposable diapers, chux pads, latex gloves, wipes, disinfectant cleaners,

etc. There is a yearly cap of $1,659.84.

Specialized Medical Equipment – This service can provide equipment that is

not otherwise covered by Medicaid. It might include certain types of bath

chairs, ceiling track lift systems, communication systems, customized molded

chair

seats, etc. There is a $13,474.76 lifetime cap.

Personal Emergency Response Systems – The waiver will pay for installation

and the monthly fee for a lifeline type emergency response system.

Environmental Modifications – The waiver can pay for home modifications

that are not permanent structures. It could pay for a ramp, widening of

doorways, etc. There is a $10,400 lifetime cap.

Vehicle Adaptation - This service can pay for vehicle adaptations such as

wheelchair brackets, special seat belt harnesses, portable ramps. There is a

cap of $3,120 which means it usually is not enough to pay for a wheelchair

lift.

Respite Care – The waiver will pay for up to 52 days a year of respite care.

The Respite can be done in the person’s home or away from home. Respite can

be done on a daily or hourly basis.

Home Based Services - The regular state Medicaid plan covers some of these

services, but if a person receiving the waiver needs more than is offered in

the regular state Medicaid plan then they can receive them through the

waiver.

This could include up to 290 visits a year of any combination of skilled

nursing,

physical therapy, occupational therapy, speech therapy, or home health aide.

Natural Support Enhancement – This is a new service under the waiver. It can

pay for supports for the individual to become more linked into their

community. For example, it could pay for a YMCA membership, an art class,

swimming lessons, or karate classes. It could pay for a support person to go

along to assist the individual so they could participate in the activity. If the

person is a

sports fan, it could pay for tickets so they could attend the sporting event.

It can

also pay for in-home supports so other people are more familiar with the care

involved other than just family. It can pay for respite care without the 52

day limit.

It is a flexible service that is targeted at getting people out into the

community.

Natural Support Therapies – If a person needs special therapies or behavioral

or nutritional interventions, it can be paid for through Natural Support

Therapies. For example, if you needed a speech therapist to teach the Sunday

School

teacher how to use the communication system, it could be funded through this

service. If you needed a physical therapist to work with the YMCA swimming

instructor to show them how to support a child with cerebral palsy in the

swimming

pool, it could be paid for through this service. If a person had challenging

behaviors and you needed someone with expertise in behavior support plans, it

could be arranged for and paid through Natural Support Therapies.

[Guest guest]

My son was diagnosed at 7 with ADHD and the more time that went by the more I kept telling people there was "more" going on with him. It was not until I quit my job to stay home with my second child 4 years ago that I sat down an started to find out what the "more" really was. He had really bad sensory issues as a young child and many social issues in pre-school as well as early elementary. Teacher comments were all mentioning empathy, friendship, rigidity issues and so on all through the years starting at 3 and 4. It was his first grade teacher that pushed for the ADHD diagnosis (because he was throwing himself on the floor and having a full blown tantrum when things did not go the way he wanted them to). I got that diagnosis through a full neuro-psych between 1st and 2nd grades. However the report noted all the red flags for AS just not mentioning AS by name. I pushed for a speech and language eval between 3rd and 4th because I still had concerns and had the same results, all the indicators of AS but not mentioned by name, just a "verbal note" written by me that said she asked that I have him evaluated for a PDD. With a new baby at home I went to the school for help, they brushed me off, told me that they did not see any other disorder other than ADHD in him and I thought at the time "they are the professionals". He was then diagnosed with an unrelated rare hormone disorder and I got side tracked with him medical issues. The medical issues showed me that I had to be the one who "knew what they were doing" and needless to say, with this new attitude towards research and advocating, my 11 year old son finally received his AS diagnosis 2 weeks ago tomorrow. NOW, for the first time ever, I "get" my son! It's a good feeling. Funny thing is that the school fully "agrees" with this as being a "very accurate" diagnosis for him, lol.

BTW, Naomi, I am from MA living in So. NH for the past 6 years......where are you?

-Charlotte

New to the group

Hello All,I'm new to the group and thought I'd introduce myself. My name is Naomi and I am the parent of 5 children, ages 18 down to 6 years of age. My three youngest have been dx'd with Asperger's. For the person that asked, what ages were your children diagnosed; My 1st was dx'd at age 8 (13 now), second son dx'd at age 6 (8 now) and a daughter was just dx'd at age 6. The 13 year old had difficulties from an early age. Orginal diagnosis was ADHD and I knew it was wrong.Through the years, and my education of Asperger's and how to negotiate all the systems, I have become a Parent Advocate. I keep as active as I can in the schools, PAC group and continue my education through various workshops offered in the area.That is my short story. I love my children and wouldn't trade them for anything in this world. I do find them challenging at times, but never boring. ;-)I'm looking forward to this group and your posts. Thanks for having me.NaomiMass area

[Guest guest]

In a message dated 3/26/2005 9:39:45 A.M. Central Standard Time, islaparis@... writes:

hi and welcome to the group my son paris who is2/9months is still waitg for diagoned

Thanks for the welcome :-)

Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/

[Guest guest]

Welcome to the group Geri! My oldest son who is 13 has AS and was diagnosed with it at age 11. Your description of him is pretty close to a description of my son. Except my son has no friends at school. But he does the hand flapping alot, and he can be pretty agumentive. He's all around though a good kid and doesn't get in trouble at school or anything. The problems are more at home. I am just concerned about his socializing skills. I am also fairly new to the group too, and really enjoy it here, these women are such a help to me, and an inspiration! Hope all goes well with your son and glad you have joined us. Geris5@... wrote:

Hello all,

my name is Geri and I have three wonderful kids still in the nest. My oldest still at home is my DS and he was diagnosed with Aspergers Syndrome. He is almost 11 and the older he gets the harder the social interaction with his piers becomes. His IQ seems to range from the 70's to the upper 90's. Depends on who is testing and how. He is a very sweet and delightful child. He is also very concrete in his thinking and words things in a very different way. He is our oldest child still at home. We have several grown children and are taking care of some of our grandkids as temporary foster children. My son seems to be maturing more with the other kids being here, but also seems to have reverted back to some arm flapping and pushing his palms together when he gets really happy. We had this behavior changed to a thumbs up or verbal "that's cool" for the last three years so his piers would feel more comfortable around him at school. He is mainstreamed at school with an IEP and a full

time PARA. This was really hard for us to get and we had to go to due process to fight for it. That took almost 2 full years to win. He is doing better with 'normal' piers that with the severally mentally retarded children he was with in special education. He reads, writes, and spells at grade level. His math is a B, and all other grades are A's. He struggles some with some math, mainly the math questions. He doesn't understand the wording in the word problems, they don't make any sense to him.

For the most part, he is a really sweet guy with a big heart, but lacks the understanding of what is and is not appropriate play with piers and smaller children. He can be very pushy, grabby (clothing) and bossy with other kids. Hope to get to know you all and learn from you. Thanks for reading this.

Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/

[Guest guest]

In a message dated 3/26/2005 4:50:53 P.M. Central Standard Time, shell.belle@... writes:

Welcome to the group Geri! My oldest son who is 13 has AS and was diagnosed with it at age 11. Your description of him is pretty close to a description of my son. Except my son has no friends at school. But he does the hand flapping alot, and he can be pretty agumentive. He's all around though a good kid and doesn't get in trouble at school or anything. The problems are more at home. I am just concerned about his socializing skills. I am also fairly new to the group too, and really enjoy it here, these women are such a help to me, and an inspiration! Hope all goes well with your son and glad you have joined us.

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Thanks for the warm welcome. My Logan is pretty argumentative to. His PARA says he argues with her constantly about everything. I have a better handle on him so he doesn't do that with me. He never did it with the PARA he had for the previous 3 years either. He would argue if there wasn't even a point to be made. Part of his disorder I guess. Does your son do the rocking to? Logan rocks and does it so stiffly.

Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/