New here

December 17, 2005

Hi there

Welcome to the list!

I dont personally know of any docs in your neck of the woods, but I

do know that Shattock of the Autism Research Unit recently held

a conference in Prague (I think). The focus of the conference was

trying to get biomedical approaches to treating autism off the

ground in the ex iron curtain countries.

He may be able to put you in touch with your nearest doc. You can

contact him via the Autism Research Unit

http://osiris.sunderland.ac.uk/autism/

Otherwise there is Dr Heard over here for chelation. He is based at

the Breakspear Hospital in Hemmel Hempstead (listed on the ARI site)

but unfortunately his list is closed until at least April - it might

be longer....other listmates will know.

Hope this helps.

Zoe x

>

> Hello listmates,

>

> I am new to this group and thought I would post to see if anyone

has

> some suggestions as to where I could find a doctor to help with

> chelating my son.

>

> We are Americans living in the Czech Republic, and my son has

> Sensory Integration Dysfunction, some Aspberger traits too, but

> undiagnosed. We spent the last year in the USA getting sensory

> integration therapy and starting on the path of biomedical

> intervention. After doing the gfcf diet for 11 months, limiting

high

> phenols, and using digestive enzymes, he's doing great! Thankfully

> everything we've dealt with has been on the very mild end of the

> spectrum, so most people don't notice much wrong with him. But as

a

> mom, I see areas that we still need to address. Many of his

symptoms

> have gone away, though, with the interventions mentioned above.

All

> of this has been done without a doctor.

>

> So....we are at the point where we feel like we need to chelate

him.

> Had a hair test done, and he met one of Andy Cutler's counting

> rules. I would like to have the chelation be done under the care

of

> a physicial if possible....so if anyone knows of a decent doctor

in

> the Czech Republic, or Germany, Poland, or any other neighboring

> country, could you let me know? I see one doctor listed on the DAN

> list who is in Germany, but her profile doesn't tell whether she

> chelates or not.

>

> Any help is very much appreciated. Oh, and any suggestions on

where

> to get special food...we cannot find preservative free lunchmeat

> here- really just the bare minimum of things are here to make gfcf

> and low phenol diets work. So any suggestions are most

appreciated.

> We could even drive to Germany if we knew there was a very good

> health food store somewhere.

>

> Thanks so much!

> Satia

>

December 18, 2005

Hello there

Do you have further information on doctor Esser from Germany, eg a

web site or contact details for him/her?

For information, Dr Aitken is not a medical doctor.

Do you have further information on the Polish DAN doctor?

This information would be useful for the Treating Autism web site,

in case there are future similar enquiries about biomedical

doctors/practitioners from across Europe.

Thanks.

Zoe

> >

> > Hello listmates,

> >

> > I am new to this group and thought I would post to see if anyone

> has

> > some suggestions as to where I could find a doctor to help with

> > chelating my son.

> >

> > We are Americans living in the Czech Republic, and my son has

> > Sensory Integration Dysfunction, some Aspberger traits too, but

> > undiagnosed. We spent the last year in the USA getting sensory

> > integration therapy and starting on the path of biomedical

> > intervention. After doing the gfcf diet for 11 months, limiting

> high

> > phenols, and using digestive enzymes, he's doing great!

Thankfully

> > everything we've dealt with has been on the very mild end of the

> > spectrum, so most people don't notice much wrong with him. But

as a

> > mom, I see areas that we still need to address. Many of his

> symptoms

> > have gone away, though, with the interventions mentioned above.

All

> > of this has been done without a doctor.

> >

> > So....we are at the point where we feel like we need to chelate

> him.

> > Had a hair test done, and he met one of Andy Cutler's counting

> > rules. I would like to have the chelation be done under the care

of

> > a physicial if possible....so if anyone knows of a decent doctor

in

> > the Czech Republic, or Germany, Poland, or any other neighboring

> > country, could you let me know? I see one doctor listed on the

DAN

> > list who is in Germany, but her profile doesn't tell whether she

> > chelates or not.

> >

> > Any help is very much appreciated. Oh, and any suggestions on

where

> > to get special food...we cannot find preservative free lunchmeat

> > here- really just the bare minimum of things are here to make

gfcf

> > and low phenol diets work. So any suggestions are most

appreciated.

> > We could even drive to Germany if we knew there was a very good

> > health food store somewhere.

> >

> > Thanks so much!

> > Satia

> >

>

December 18, 2005

Yes you are right. Dr Aitken is not medical doctor.

However from these three (I have seen all of them) he made biggest

impression on me.

He is consulting with the Polish medical doctor - dr Magdalena Cubala-

Kuchrska. Dr Cubala attended the conference in Edinburgh. She will

attend one of the US conferences in the spring to get the DAN title.

Dr Esser (she) contact is in the ARI list. You will not find anything

on dr Esser in the internet (maybe it has changed lately). It seems

in Germany DAN is operated in underground. e.g. I have heard that

MB12 is forbidden in Germany.

> > >

> > > Hello listmates,

> > >

> > > I am new to this group and thought I would post to see if

anyone

> > has

> > > some suggestions as to where I could find a doctor to help with

> > > chelating my son.

> > >

> > > We are Americans living in the Czech Republic, and my son has

> > > Sensory Integration Dysfunction, some Aspberger traits too, but

> > > undiagnosed. We spent the last year in the USA getting sensory

> > > integration therapy and starting on the path of biomedical

> > > intervention. After doing the gfcf diet for 11 months, limiting

> > high

> > > phenols, and using digestive enzymes, he's doing great!

> Thankfully

> > > everything we've dealt with has been on the very mild end of

the

> > > spectrum, so most people don't notice much wrong with him. But

> as a

> > > mom, I see areas that we still need to address. Many of his

> > symptoms

> > > have gone away, though, with the interventions mentioned above.

> All

> > > of this has been done without a doctor.

> > >

> > > So....we are at the point where we feel like we need to chelate

> > him.

> > > Had a hair test done, and he met one of Andy Cutler's counting

> > > rules. I would like to have the chelation be done under the

care

> of

> > > a physicial if possible....so if anyone knows of a decent

doctor

> in

> > > the Czech Republic, or Germany, Poland, or any other

neighboring

> > > country, could you let me know? I see one doctor listed on the

> DAN

> > > list who is in Germany, but her profile doesn't tell whether

she

> > > chelates or not.

> > >

> > > Any help is very much appreciated. Oh, and any suggestions on

> where

> > > to get special food...we cannot find preservative free

lunchmeat

> > > here- really just the bare minimum of things are here to make

> gfcf

> > > and low phenol diets work. So any suggestions are most

> appreciated.

> > > We could even drive to Germany if we knew there was a very good

> > > health food store somewhere.

> > >

> > > Thanks so much!

> > > Satia

> > >

> >

>

December 21, 2005

Oh my, I could have written this post myself. Almost the exact same

symptoms are going on with me, I think the only problem I don't have is the

café au lait spots and the breast cysts. I have had menstrual problems, but

I am now post menopause so that part is over. I have been seeing a

neurologist and they are trying to figure out what is going on. I was just

dx'd with Hashimoto's although I am pretty sure I have had it for many

years.

I wish I could tell you what is wrong, but I don't know what is wrong with

me. We must keep in touch with each other because it is entirely possible

that we are dealing with the same illness[es]. Mine have gotten so bad,

that I actually got SSD without having to fight them tooth and nail.

I just had an EMG and some problems were found, but the Doc that gave me the

test talked way over my head and was insistant that I get a more detailed

family history. I have another neuro appointment on Jan 2 and I will get

the results of the EMG translated at that time.

BTW, in spite of the negative tests for Lupus and MS, one or the other could

still be the problem. I had an MRI of the brain and it was clean, but I am

guessing we are going to MRI the spinal cord next.

Please, lets keep each other posted on our medical journey. I am going to

insist that they check my adrenal glands function. And it is true that if

you have one autoimmune disease, you are at greater risk to develop others.

Cody

New here

I am a 42 year old female, I was diagnosed 16 years ago with

Hashimoto's Thyroiditis, so I have become used to the symptoms of

this. My TSH levels have been really good for quite sometime now. But

I have started having a number of other symptoms most every day, I

have had all of these symptoms at various other times over the past

5-7 years, but they would come and go and usually would only last for

a few weeks or so, very seldom ever lasting longer than that.

Approximately 6 years ago I was checked for lupus and multiple

sclerosis because of my symptoms, at the time both of those tests came

back negative. I was told that I was very prone to other autoimmune

diseases though, since I have had several positive ANA(antinuclear

antibody) tests.

I know that some of my symptoms could be related to the medicine that

I am on, but I was having these symptoms on and off again for several

years before these medicines were started. The only medication I have

taken long term has been the thyroid replacement.

The medications I currently take are:

Levoxyl for the Hypothyroidism, been using for approximately 7 years

before Levoxyl, I was taking Synthyroid.

Lipitor for high cholesterol, been using for 2 months.

Nexium for heartburn, been using for 2 months.

Buspar for panic attacks, been using 5 months.

Zoloft for depression, been using 5 months.

Prometrium to regulate my menstrual cycle, just started taking this one.

Here are the symptoms that I am currently experiencing most of them on

a daily basis, and these have been getting worse over a period of

about 3 months. My eyes jerk involuntarily, I have some occasional eye

pain, and my eyes are usually dry sometimes to the point of being

bloodshot.. I have been having muscle weakness, muscle stiffness,

muscle pain, and muscle twitches. I have moderate joint pain and a

great deal of joint stiffness. I also have lower back pain, and pain

in the upper part of my back mainly between my shoulder blades,

sometimes this is just pain other times it is a burning pain.

Sometimes my body jerks involuntarily usually at night. I sometimes

have numbness in my arms and fingersand in the past couple of days I

get the numbness in my legs also. I seem to itch all over my body. My

coordination has gotten worse I can't hold my arm out to the side and

touch my nose, I will usually end up touching my lip or chin, this

seems to be a little better with my left hand, which confuses me a

little since I am right handed. I walk a little funny now, I have to

keep my feet farther apart than normal to try and keep my balance, and

my feet seem to drag every once in a while, or sometimes it feels like

my feet stick to the floor, I also bump into things while walking. My

hands shake when I am trying to do something, my writing has gotten

terrible, sometimes it seems I have forgotten how to spell

properly(thank goodness for spell checkers), I miss things that I

reach for, I drop things more frequently, and my grip has gotten

weaker. I have a hard time keeping my balance, especially if I turn, I

can't maintain my balance if I try to stand on one foot, and I can't

close my eyes and bow my head while standing without swaying. I get

dizzy and light headed most every day. Sometimes my speech is jumbled,

so far this does not happen too often and sometimes I don't comprehend

what is said to me, this has got to where it happens at least once a

day, I am very forgetful, and it seems like I have trouble

concentrating, or thinking. I have some abdominal pain with minor

bloating, and alternating constipation and diarrhea. I have started

having more problems with nausea. I have started having some bladder

control problems with approximately 12 " accidents " in the past two

days, I have also had two episodes of bowel control problems. If I

don't take the Nexium I get heartburn daily, but so far the Nexium is

controlling that. I have frequent spells of getting slightly choked or

strangled when swallowing. I seem to be sensitive to heat and cold,

but my body feels cold most of the time. My hands turn pale and throb

when they get cold. My palms have a reddish tint to them. I have a

faint pink color that has come up on my cheeks and across my nose. I

get frequent headaches, I stay tired no matter how much I rest. Over

the past week my blood pressure has been higher than normal. I stay

thirsty and my mouth usually seems dry. I have been having daily

recurrent chest pain on my upper left side that seems to radiate down

my arm sometimes. My menstrual cycle has changed or gotten irregular

going from 3 to 6 weeks in between, my last menstrual period lasted

for 13 days, with normal for me has been being around 4 days. I have

also been having breast pain in my right breast.

I went to my general practitioner about a 1 ½ weeks ago, for some

routine blood work and a follow up on the Nexium and Lipitor. I told

him about some of these symptoms or at least the ones I thought of at

the time. While I was there for my checkup, he checked my blood

pressure and at the time it was 138/104, before that normal for me was

around 110-115/60-70. He ordered a stress test which was done last

week. During my stress test they wanted my heart rate to get to 178,

and I managed to get to that point, before the test started my blood

pressure was 127/66, which I assumed was normal. At the end of the

test my chest had started hurting mildly, I was somewhat short of

breath, dizzy and light headed and my blood pressure was 166/28. The

cardiologist said the EKG was normal, but that in a female that didn't

necessarily mean anything, that he wanted to do another test. I am now

waiting for the results of the Persantine Nuclear Scan, during the

stress test part my blood pressure ranged from 104/66 at the

beginning, to 156/42 at the end. When the stress test portion was over

I was having mild to moderate chest pain, was very short of breath,

and fairly dizzy and light headed. I also had my annual gyn exam this

week and during that my gyn told me that my breasts had a great deal

of cysts and she has ordered a mammogram to make sure that they are

nothing serious, and she also thinks that I have a mass in my uterus

so she has also ordered a pelvic ultrasound. I still have an upper GI

to be done later this week, and after the first of the year I have a

neurologist appointment. My gyn also suggested that I see a

dermatologist because I have a great deal of café au lait spots around

50-75 ranging in size from maybe a dime to the size of a salad plate.

She said she thought that these were associated with something she

just could not remember what.

I am sorry this was so long, but I feel like I am falling apart, my

husband, my daughter and my parents are worried about me because they

have noticed the changes in me, and I am beginning to get a little

worried now because these symptoms seem to be getting progressively worse.

Therashaetha

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Message Archives-/messages

Chat:- Scheduled Chats at

/chat

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator

email: -owner

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into groups at your

convenience and receive no email.

To modify your subscription settings please visit:-

/join

To subscribe or unsubscribe please email:-

-subscribe

-unsubscribe

This group is not intended to diagnose or treat illnesses. No one on this

group is qualified to diagnose medical conditions. If you feel you need

medical attention, seek the advice of a qualified physician.

~~~~ *** ~~~ *** ~~~ *** ~~~~

When nothing is sure, everything is possible.

--- Margaret Drabble

~~~~ *** ~~~ *** ~~~ *** ~~~~

January 8, 2006

Hi Lori,

I'm so happy you decided to join. What a nice surprise this morning to see

your introduction. You have just entered a group of incredibly caring and

knowledgeable women (mostly women that is).

Lori is an acqaintance of mine - our boys are the same age and attend the same

school.

Anita

loris914 <loris914@...> wrote:

Just wanted to introduce myself, my son is 4.5 years old and was

diagnosed with autism at 20 months of age. He was typcially

developing and we had no developmental concerns until shortly after

his MMR vaccine at 15 months. Shortly after that vaccine he became

quiet and withdrawn. We have been treating him biomedically with the

DAN approach for 2.5 years.

Lori

January 8, 2006

hi lori,

welcome!

im sure you will learn a heap here... wondering how much improvement /

success you have had with the DAN doctor?

roweena x

On 09/01/2006, at 1:35 AM, loris914 wrote:

> Just wanted to introduce myself, my son is 4.5 years old and was

> diagnosed with autism at 20 months of age.Â He was typcially

> developing and we had no developmental concerns until shortly after

> his MMR vaccine at 15 months.Â Shortly after that vaccine he became

> quiet and withdrawn.Â We have been treating him biomedically with the

> DAN approach for 2.5 years.Â

>

> Lori

>

January 8, 2006

Welcome Lori. My son lost the ability to speak/coo/babble after the MMR

shot and was silent for over a year- then spoke in unintelligible jibberish

for a very long time. Now at age 6 (and after 3 years of speech therapy) he

is doing well.

Have you read " Evidence of Harm " by Kirby?- great book - It does

contain stories of children regressing and losing speech after the MMR shot.

New Here

> Just wanted to introduce myself, my son is 4.5 years old and was

> diagnosed with autism at 20 months of age. He was typcially

> developing and we had no developmental concerns until shortly after

> his MMR vaccine at 15 months. Shortly after that vaccine he became

> quiet and withdrawn. We have been treating him biomedically with the

> DAN approach for 2.5 years.

>

> Lori

>

January 10, 2006

Hi Lori --

Welcome to the group. I'm , live in NY with my DH and 2 great kids.

My son had a severe reaction to the DPT shot -- they tell me it was

specifically to the pertussis vaccine -- and a year and a half ago he had

whooping cough. We avoid meds whenever possible (which is almost always),

instead we choose nutrition (organic when possible) and organic whole food

supplements to fill in our nutritional gaps. :-)

I look forward to getting to know you.

Health & blessings,

Project MAHMA -- Moms At Home Making A difference...

and a lot of money!

1-866-312-8064

January 29, 2006

Hi Suzy - welcome Can't wait to hear more about you.Suzy <shp@...> wrote: Hello everyone, I am Suzy from DE I just signed up for support. I thinkI may have been a member on this list at one point can't remember??? Anywaycan't wait ot meet new friends and get and offer support. I will be back later with more info about me. ODAAT! Suzy )Live, Love, Laugh

January 29, 2006

welcome Suzy

February 16, 2006

I know that many of us have been trained and/or brainwashed by the educational

system and by the news media, powers that be, but we have to now think " out of

the box " so to speak and think for ourselves. The so-called government has been

telling its 'citizens' that they know better than us what is good for us, etc.

.. This is how they trap us into thinking that we are to obey them rather than

them obeying us, the sovereign flesh and blood creation of God. The human body

has its own immune system that no vaccine can match. Keep that in mind. Also,

the corporate government has converted the flesh and blood human to what some

call corporate entities, i.e. JOHN DOE, JOHN D. DOE and its other creations.

The laws, state and federal only pertains to these entitities, not the flesh and

blood creation of God. Please study the following sites: Commercial

Redemption. Strawman...STATE OF.............. . All these are misnomers and

only exist in our minds. In other words, they are

names only and strive or live: UNDER COLOR OF LAW.

momszilla1 <momszilla1@...> wrote: Hi, my name is and I am new to

this group. I have 3 boys the

oldest 4, middle just turned 3, and 8 months they keep me very busy to

say the least. My oldest was just diagnosed with autism and adhd which

doesn't help much at all and he was vaccinated...we were told there

was no link that genetics played the rold in that. I started learning

about vaccinations about 4 years ago and have learned many things

beginning with Mercury to the vaccine fillers and I cannot fathom the

idea of putting those fillers and ingredients into my kids veins after

learning that. I am glad my other 2 boys have had none and many

people told me many things like my kids won't get into school and

people thinking they knew what my legal rights were when they didn't.

It makes me sick just knowing that the pediatritians administer this

stuff to newborns to top it off. I recently aquired the 2006

immunization schedule and it doesn't have the added ones on it as far

as I can see, I need time to look and I barely have time to breath

somedays so please do not quote me on that. I will further check that

documentation. I like that there is a world of information with this

group, site it will really help to educate me further.

February 16, 2006

jusbelli.com commercial redemption learn the difference between the

definitions of STRAWMAN UNITED STATES republic v. democracy. Wow, so much

to mention.

momszilla1 <momszilla1@...> wrote: Hi, my name is and I am new

to this group. I have 3 boys the