New here

[Guest guest]

Welcome, ! We'll do our best for you!

New here

I have a Vita Mix for years and one of those people who have been afrad to use it grrrrrrrr lol it is new. I bought a book on Ebay that is used at shows thinking I might really get some good rescipes.The reps make such good things for us to taste,it is just me and hubbie now,boys are gone now.Hope I get some good ideas here from everyone

lindah in Texas

[Guest guest]

Welcome h! You will learn lots of ways to use your VM here! I have

been using mine for almost as long as I have been married! (married

1976, got VM in 1977). Start with the simple soup and smoothie recipes.

What really draws my husband is frozen yogurt made with plain yogurt,

frozen fruit, and a bit of Agave for sweet if needed. He can eat a big

bowlful and never gets tired of it because I can make a new flavor each

night.

Velda

On 3/27/2011 7:32 PM, lindahiesermann wrote:

> I have a Vita Mix for years and one of those people who have been afrad to use

it grrrrrrrr lol it is new. I bought a book on Ebay that is used at shows

thinking I might really get some good rescipes.The reps make such good things

for us to taste,it is just me and hubbie now,boys are gone now.Hope I get some

good ideas here from everyone

> lindah in Texas

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi, me too!

Beverly

Re: New here

I am in Fort Worth, Texas

[Guest guest]

Dear KAz!Sorry to hear about your situation. Have you found any mites or gotten your bites identified? It must be awful that nothing helps. Are you trying with borax as well in laundry and on walls?Keep the fight up!CeciliaFrom: kazk1 <kazk1@...>bird mites Sent: Sat, May 21, 2011 4:51:59 PMSubject: New here

Hi, I've not posted on here before, just read other peoples stories and ideas for getting rid of these things.

I believe I had a problem with bird mites from around August/September 2010. The weather had been particularly humid, and I just couldn't stop itching. I spoke to my mum about this and she had the same thing.

At first, I thought it was fleas from my cat,but had her checked out and all was fine with her. I couldn't, and still can't understand where these b***ards came from.

My quest for answers then began..I searched and searched the internet, trying to find answers for this nightmare..became very confused with all the conflicting opinions on different sites.

I had a pest controller come in and spray a broad spectrum pesticide everywhere, but still itched. My mum has had over the last 9 months probably 4 or 5 treatments, and they didn't work either.

The impact on the family has been awful..family members not being able to visit or us not visiting their homes..we feel very isolated with this.

My daughters, who live with me, don't seem to be affected, maybe occasional itching, but nothing like the itching and bites that I have had.

I have tried so many things.. loads of different essential oils, epsom salts, borax. diatomaceous earth, menthol etc, with no real results.

My latest addition has been a dehumidifier, and I'm not sure if it's doing anything yet (cost of electricity is frightening!)

Anyway, we are now trying neem oil products,which do seem promising.. but then so many other things have seemed promising.

Sorry for the long message, am just so dispondant now and feeling we will never get our lives back to how they were.. just normal.

I totally understand how you all feel.. it's so traumatic and isolating and not something that you can talk about to others who don't have it.

Thanks for reading

Kaz x

[Guest guest]

Sorry to meet you under these circumstances but you've come to the right place

for advice and support. The people here are so helpful and there are so many

protocols to try. So don't get discouraged if what worked for someone else

doesn't work for you. Don't give up. If you keep at it you'll find something

that will help make things bearable.

I contacted this nightmare Nov.2010. I thought that things would never get

better and now after trying numerous things, i've seen drastic improvements. No

more bites and occasional crawling.

Make sure you spray ceilings and walls. That made the difference for me.

>

> Dear KAz!

> Sorry to hear about your situation. Have you found any mites or gotten your

> bites identified? It must be awful that nothing helps. Are you trying with

borax

> as well in laundry and on walls?

> Keep the fight up!

> Cecilia

>

>

>

> ________________________________

> From: kazk1 <kazk1@...>

> bird mites

> Sent: Sat, May 21, 2011 4:51:59 PM

> Subject: New here

>

>

> Hi, I've not posted on here before, just read other peoples stories and ideas

> for getting rid of these things.

>

> I believe I had a problem with bird mites from around August/September 2010.

The

> weather had been particularly humid, and I just couldn't stop itching. I spoke

> to my mum about this and she had the same thing.

>

> At first, I thought it was fleas from my cat,but had her checked out and all

was

> fine with her. I couldn't, and still can't understand where these b***ards

came

> from.

>

> My quest for answers then began..I searched and searched the internet, trying

to

> find answers for this nightmare..became very confused with all the conflicting

> opinions on different sites.

>

> I had a pest controller come in and spray a broad spectrum pesticide

everywhere,

> but still itched. My mum has had over the last 9 months probably 4 or 5

> treatments, and they didn't work either.

>

> The impact on the family has been awful..family members not being able to

visit

> or us not visiting their homes..we feel very isolated with this.

>

> My daughters, who live with me, don't seem to be affected, maybe occasional

> itching, but nothing like the itching and bites that I have had.

>

> I have tried so many things.. loads of different essential oils, epsom salts,

> borax. diatomaceous earth, menthol etc, with no real results.

>

> My latest addition has been a dehumidifier, and I'm not sure if it's doing

> anything yet (cost of electricity is frightening!)

>

> Anyway, we are now trying neem oil products,which do seem promising.. but then

> so many other things have seemed promising.

>

> Sorry for the long message, am just so dispondant now and feeling we will

never

> get our lives back to how they were.. just normal.

>

> I totally understand how you all feel.. it's so traumatic and isolating and

not

> something that you can talk about to others who don't have it.

>

> Thanks for reading

>

> Kaz x

>

[Guest guest]

Hi

After spraying all my walls & for years wtih dawn soap , borax & epsomsalts. I

found borax powder 1 cup in a blender w/ an ocilating dan behind the blender to

waft the powder all over, powders every inch of the walls & ceiling in 10-30

mins . The bug is slowly reduced little by little . I did it once per 2 weeks

for & year . Now I just use baking soda in the blender once every 2 months &

puff & little around te perimeter & under the computer table if I feel a nibble

, baking soda stops the bug insatntly

( I did soak in a tub of borax 1 cup for 30 mins at least once a wekk for

months . & I use a lot of the 16 oz peroxide & 32 ox water & 2 tbls borax , it

stops anything , if it dosent stop I use

1 cup peroxide

1 cup water &

8 tbls borax , that never fails , even on deep ones , I apply & leave on till

the next shower ) .

God bless you ,

Bill

On Sun May 22nd, 2011 5:31 PM EDT wrote:

>Sorry to meet you under these circumstances but you've come to the right place

for advice and support. The people here are so helpful and there are so many

protocols to try. So don't get discouraged if what worked for someone else

doesn't work for you. Don't give up. If you keep at it you'll find something

that will help make things bearable.

>I contacted this nightmare Nov.2010. I thought that things would never get

better and now after trying numerous things, i've seen drastic improvements. No

more bites and occasional crawling.

>Make sure you spray ceilings and walls. That made the difference for me.

>

>

>>

>> Dear KAz!

>> Sorry to hear about your situation. Have you found any mites or gotten your

>> bites identified? It must be awful that nothing helps. Are you trying with

borax

>> as well in laundry and on walls?

>> Keep the fight up!

>> Cecilia

>>

>>

>>

>> ________________________________

>> From: kazk1 <kazk1@...>

>> bird mites

>> Sent: Sat, May 21, 2011 4:51:59 PM

>> Subject: New here

>>

>>

>> Hi, I've not posted on here before, just read other peoples stories and ideas

>> for getting rid of these things.

>>

>> I believe I had a problem with bird mites from around August/September 2010.

The

>> weather had been particularly humid, and I just couldn't stop itching. I

spoke

>> to my mum about this and she had the same thing.

>>

>> At first, I thought it was fleas from my cat,but had her checked out and all

was

>> fine with her. I couldn't, and still can't understand where these b***ards

came

>> from.

>>

>> My quest for answers then began..I searched and searched the internet, trying

to

>> find answers for this nightmare..became very confused with all the

conflicting

>> opinions on different sites.

>>

>> I had a pest controller come in and spray a broad spectrum pesticide

everywhere,

>> but still itched. My mum has had over the last 9 months probably 4 or 5

>> treatments, and they didn't work either.

>>

>> The impact on the family has been awful..family members not being able to

visit

>> or us not visiting their homes..we feel very isolated with this.

>>

>> My daughters, who live with me, don't seem to be affected, maybe occasional

>> itching, but nothing like the itching and bites that I have had.

>>

>> I have tried so many things.. loads of different essential oils, epsom salts,

>> borax. diatomaceous earth, menthol etc, with no real results.

>>

>> My latest addition has been a dehumidifier, and I'm not sure if it's doing

>> anything yet (cost of electricity is frightening!)

>>

>> Anyway, we are now trying neem oil products,which do seem promising.. but

then

>> so many other things have seemed promising.

>>

>> Sorry for the long message, am just so dispondant now and feeling we will

never

>> get our lives back to how they were.. just normal.

>>

>> I totally understand how you all feel.. it's so traumatic and isolating and

not

>> something that you can talk about to others who don't have it.

>>

>> Thanks for reading

>>

>> Kaz x

>>

>

>

[Guest guest]

Hi Kaz,

Did you have them identified as bird mites? Did you find the source of the infestation and remove it?

I wanted to pick up on one point from your post regarding essential oils. I've had success with various oils, especially organic orange and lavender oils. Essential oils should have a use-by date, country/area of origin, state that they are pure and not mixed with anything else etc.... Yet they are often sold without any information whatsoever. I suspect the reason some oils don't work is because they are not pure or were not stored properly and lost some or all of their active ingredients.

I know what you mean about the isolation. People don't understand why I don't return their invitations for dinner, or invite them over to watch a movie. Needless to say I can't have anyone staying over at the moment, and had to turn down a good friend, which is making things awkward between us. Sometimes I feel these bugs are going to completely kill my social life - or what's left of it since this started

I wish you the best of luck and hopefully the neem oil will help.

Zélie

From: kazk1 <kazk1@...>Subject: New herebird mites Date: Saturday, May 21, 2011, 10:51 AM

Hi, I've not posted on here before, just read other peoples stories and ideas for getting rid of these things.I believe I had a problem with bird mites from around August/September 2010. The weather had been particularly humid, and I just couldn't stop itching. I spoke to my mum about this and she had the same thing.At first, I thought it was fleas from my cat,but had her checked out and all was fine with her. I couldn't, and still can't understand where these b***ards came from.My quest for answers then began..I searched and searched the internet, trying to find answers for this nightmare..became very confused with all the conflicting opinions on different sites.I had a pest controller come in and spray a broad spectrum pesticide everywhere, but still itched. My mum has had over the last 9 months probably 4 or 5 treatments, and they didn't work either.The impact on the family has been awful..family members

not being able to visit or us not visiting their homes..we feel very isolated with this.My daughters, who live with me, don't seem to be affected, maybe occasional itching, but nothing like the itching and bites that I have had.I have tried so many things.. loads of different essential oils, epsom salts, borax. diatomaceous earth, menthol etc, with no real results.My latest addition has been a dehumidifier, and I'm not sure if it's doing anything yet (cost of electricity is frightening!)Anyway, we are now trying neem oil products,which do seem promising.. but then so many other things have seemed promising.Sorry for the long message, am just so dispondant now and feeling we will never get our lives back to how they were.. just normal.I totally understand how you all feel.. it's so traumatic and isolating and not something that you can talk about to others who don't have it.Thanks for

readingKaz x

[Guest guest]

If they are ill, usually the prevnar titers are rechecked at 6+ mos or so (to

see if they can keep them over time, beyond the 6-8 wks. Many kids can mount a

response, at first, but it fades off...).

Mom to dani, cvid

Sent from my Sprint® BlackBerry

~~~~~~~~~~~~~~~~~~~~~~

New here

My 3.5 yaer old was just diagnosed with hypogamma (hopefully transient).

He has low total igg and at 1st no response to his prevnar. They

revaccinated with prevnar and retested and he responded this time. All

this testing started after his 3rd pneumonia in 3 yaers this Jan. He has

had lots of ear infections (tubes in and adnoid out), sinus infections,

bronchitis, strep throat, croup, RSV, on and on and on. He has asthma,

reflux, eczema and now takes amoxicillian everyday to help prevent new

infections. That was working great until he got cellulitis from a bug

bite (grr...stupid bugs) so we switched to augmentin until the

cellulitis cleared now back to amoxicillian. He also has diarrehea

almost all the time, maybe from all the meds...

I read that transient hypogamma generally fixes itself prior to a child

turning 3. Does that make it less likely that his will get better? Why

did he respond to the prevnar this time but not before? Is his igg 426

(453-916) just a little low like it looks or is that worse than it

looks?

I'd like to go to our appointment next week armed with questions for the

Dr. Our 1st appointment ended with her telling us he has and immune

deficiency and to take the ammoxicillian and have more blood work. I

feel like I missed some info after she said there was a problem, if you

know what I mean. I knew he was sick, but kind if expoected to hear I

was over reacting to it like my ped. said...Any input from you guys will

be helpful!

Thanks,

Liz

[Guest guest]

Does anyone have any advice on where to start? I guess I may not be posting

this correctly since I can't figure out this group thing.....

>

> Hi my name is Corrin and my oldest daughter, Raegan, is 8 and we don't have a

" clear " idea of her complete diagnosis yet. We know she has 0 IgA but are still

trying to find an immunologist around us. Right now she has many specialist

that are trying to treat her many different symptoms. In the last few months

her overall health and well being have dramatically dropped off. She has had

sifnificant weight loss, is suffering with migraines and bouts of N/V. She is

so weak and " fragile " that she doesn't have enough energy to do much. We are in

the process of getting a second opinion from another neurologist per her GI

specialist. Her asthma and allergies are very up and down and she has chronic

sinusitis and will probably be referred to an ENT next. Our next planned

actions are an endoscopy and an MRI of the brain. If anyone here has advice on

anything we are open ears. We are worried about how much she has changed, not

just physically but her persona and livlihood is so down. Thanks so much for

having us in your group. I hope to learn a lot from you.

>

> Corrin

> north of Atlanta, GA

>

[Guest guest]

Does anyone have any advice on where to start? I guess I may not be posting

this correctly since I can't figure out this group thing.....

>

> Hi my name is Corrin and my oldest daughter, Raegan, is 8 and we don't have a

" clear " idea of her complete diagnosis yet. We know she has 0 IgA but are still

trying to find an immunologist around us. Right now she has many specialist

that are trying to treat her many different symptoms. In the last few months

her overall health and well being have dramatically dropped off. She has had

sifnificant weight loss, is suffering with migraines and bouts of N/V. She is

so weak and " fragile " that she doesn't have enough energy to do much. We are in

the process of getting a second opinion from another neurologist per her GI

specialist. Her asthma and allergies are very up and down and she has chronic

sinusitis and will probably be referred to an ENT next. Our next planned

actions are an endoscopy and an MRI of the brain. If anyone here has advice on

anything we are open ears. We are worried about how much she has changed, not

just physically but her persona and livlihood is so down. Thanks so much for

having us in your group. I hope to learn a lot from you.

>

> Corrin

> north of Atlanta, GA

>

[Guest guest]

hi, and welcome. Im Valarie, and I have four kids, three with CVID. They are on

IVIG monthly. IVIG has really helped them to not have as many infections and

asthma flares due to infections.

I hope you are able to get things figured out soon! It is so frustrating going

from dr to dr and still not having a plan.

valarie

mom to 3 w/cvid

> >

> > Hi my name is Corrin and my oldest daughter, Raegan, is 8 and we don't have

a " clear " idea of her complete diagnosis yet. We know she has 0 IgA but are

still trying to find an immunologist around us. Right now she has many

specialist that are trying to treat her many different symptoms. In the last

few months her overall health and well being have dramatically dropped off. She

has had sifnificant weight loss, is suffering with migraines and bouts of N/V.

She is so weak and " fragile " that she doesn't have enough energy to do much. We

are in the process of getting a second opinion from another neurologist per her

GI specialist. Her asthma and allergies are very up and down and she has

chronic sinusitis and will probably be referred to an ENT next. Our next

planned actions are an endoscopy and an MRI of the brain. If anyone here has

advice on anything we are open ears. We are worried about how much she has

changed, not just physically but her persona and livlihood is so down. Thanks

so much for having us in your group. I hope to learn a lot from you.

> >

> > Corrin

> > north of Atlanta, GA

> >

>

[Guest guest]

Hey Amber! Sierra’s back also pops & this is in her cast. As a matter of fact my husband was carrying her last nite & she rared back & we both heard it pop....I’m not sure what it means b/c mine has always popped when someone pops it!!! My knees always pop when I squat down..since I was a young child. I’m on FB under Kristi Strickland ...there is a pic of me & Sierra on profile pic. Look forward to meeting you! It is a very difficult rocky road but it is doable & Thank Goodness you found this site! You are on the right path to correcting your child’s spine!!!! Good Luck & big HUGS!!!!

Kristi Mommy to Sierra now 2 1/2 yrs. been casting since April 2010. On 8th cast! Started with 34 degree curve & now down to ZERO in cast!

From: scholl.amber

Sent: Thursday, September 22, 2011 9:56 AM

infantile scoliosis treatment

Subject: New here

Hi everyone we are new to the infantile scoliosis game...unfortunatly My almost 19 month old son was diagnosed back in late May at his 15 mos check up with a laying down X ray of 25 deg. In early June we visited a peds ortho and took new X rays standing. It was now a 20 deg curve RVAD 0f 16. We thought great maybe its getting better? We waited near 3 months went back and the degree is believed to have progressed. Although I'm not convinced either of the newest X rays are perfect as they were taken at another location with a set up not as baby friendly...The first X ray measured 35 deg with him standing on one foot (the foot into the curve side) & the 2nd taken a min later @ 29 deg both feet forced on the ground by us, but there was no weight on that same foot...really how do you X ray a baby? So now here we are trying to make heads or tails of this all...We got his MRI done last weekend & it was all clear. We have sent all our materials to Salt Lake City & are waiting to see if he will get acepted...The waiting is hard when you know each day counts so much..anyway just wanted to introduce our family & get to know other families who are going down the same rocky road. (some of you I have already met on FB) I also wanted to ask if any other family has problems with joint popping... I have asked both peds doctors we have seen & the peds orth & no one seems to care. They say some kids just pop. My son doesn't always pop. My MIL (who is a nurse) & I first noticed the popping @ 6 mos & at the appointment following the dr X rayed him for abnormal leg folds and found nothing. The popping went away. Then the popping came back during our "watch & wait" time & low and behold the curve was found to be worse. It is mostly gone again. I just do not believe it is nothing...has this happened to anyone else?Amber

[Guest guest]

If the kiddo is weight bearing than a standing film would be most accurate (arms to the side, not above head) If the babe is not yet weight bearing than a supine film (arms to ssside) would be best.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of scholl.amberSent: Thursday, September 22, 2011 8:56 AMinfantile scoliosis treatment Subject: New here Hi everyone we are new to the infantile scoliosis game...unfortunatly My almost 19 month old son was diagnosed back in late May at his 15 mos check up with a laying down X ray of 25 deg. In early June we visited a peds ortho and took new X rays standing. It was now a 20 deg curve RVAD 0f 16. We thought great maybe its getting better? We waited near 3 months went back and the degree is believed to have progressed. Although I'm not convinced either of the newest X rays are perfect as they were taken at another location with a set up not as baby friendly...The first X ray measured 35 deg with him standing on one foot (the foot into the curve side) & the 2nd taken a min later @ 29 deg both feet forced on the ground by us, but there was no weight on that same foot...really how do you X ray a baby? So now here we are trying to make heads or tails of this all...We got his MRI done last weekend & it was all clear. We have sent all our materials to Salt Lake City & are waiting to see if he will get acepted...The waiting is hard when you know each day counts so much..anyway just wanted to introduce our family & get to know other families who are going down the same rocky road. (some of you I have already met on FB) I also wanted to ask if any other family has problems with joint popping... I have asked both peds doctors we have seen & the peds orth & no one seems to care. They say some kids just pop. My son doesn't always pop. My MIL (who is a nurse) & I first noticed the popping @ 6 mos & at the appointment following the dr X rayed him for abnormal leg folds and found nothing. The popping went away. Then the popping came back during our " watch & wait " time & low and behold the curve was found to be worse. It is mostly gone again. I just do not believe it is nothing...has this happened to anyone else?Amber

[Guest guest]

Welcome, Pamela! A Vitamix is such a wonderful choice for so many things from

smoothies, to hot, steamy soups, ice creams, grinding your own flour for

homemade breads-you name it! May I suggest that you buy your machine through

our group owner, Lea Ann-she can get you a great deal, payment plan if needed,

and free shipping! She is at a Vitamix show this week, but I am sure she will

be checking emails in the evenings. A " green " smoothie can be as simple as

adding a couple of leaves of spinach to some fresh berries and buzzing it up

with a little juice, or totally green with all veggies and greens-the choice is

yours, so starting with baby steps is perfectly okay. There are so many

wonderful combinations, recipes, support and people to ask on this group, that I

feel sure you could find lots of things to love! So glad you joined us.

>

> Hi all! I'm new here and very interested in purchasing a Vitamix. I've only

been researching for the past couple days. I've read about the raw diet and

would love more ideas. I've never had a green smoothie before. Are they hard to

handle the the taste in the beginning? I'm looking for a way to lose weight and

feel better. I would love any info you all have, healthy recipes for the

Vitamix, etc.

>

> I look forward to buying my Vitamix as well as being a part of this group.

>

> Pamela

>

[Guest guest]

Pam - I'm new too and just got my machine. I just watched Lea

Ann's demo on YouTube - here is her green smoothie demo. I

thought she was pretty amazing.

Amy

Posted by: "Pam A"

parbri38@... parbri26

Hi all! I'm new here and very interested in purchasing a Vitamix.

I've only been researching for the past couple days. I've read about

the raw diet and would love more ideas. I've never had a green

smoothie before. Are they hard to handle the the taste in the

beginning? I'm looking for a way to lose weight and feel better. I

would love any info you all have, healthy recipes for the Vitamix,

etc.

I look forward to buying my Vitamix as well as being a part of this

group.

Pamela

[Guest guest]

Welcome to the group. Lots of friendly people here. I won't be long and you

will be giving advice. Ask/discuss anything you want.

My son, Josiah, is now 23 yo.

Shirley

New here

Hello! My name is Rene and I am new on here and would like to introduce

myself. My husband and I have been blessed with two wonderful children,

Gracie 3 yrs. and Isaiah 2 months (DS). I wanted to join to help get info and

support for our family. Thank you

No virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1913 / Virus Database: 2112/4809 - Release Date: 02/14/12

[Guest guest]

Hi Rene...you have come to the right place. This is a group of warm,

wise and supportive parents who are always willing to help. Almost

always someone has an answer to your question. I do miss how busy we

used to be though. Anyway WELCOME!

Loree

New here

 

Hello! My name is Rene and I am new on here and would like to

introduce myself. My husband and I have been blessed with two

wonderful children, Gracie 3 yrs. and Isaiah 2 months (DS). I wanted

to join to help get info and support for our family. Thank you

[Guest guest]

Welcome Rene! It seems like just yesterday that I joined this group

with my two children, was just over 2, was a newborn.

Now, in a blink of an eye, is driving, is in 8th grade,

going to high school next year, and there is Sammy too! We are here to

help, so no question is too small... someone on this list has probably

gone through whatever it is, so don't feel like you need to reinvent the

wheel. All of our children with DS are quite different (just like our

typical kids) but there are certainly things that bind us together....

most especially, the chromosome that has the extra love!

Enjoy your beautiful new baby!

, mom to (16), (14 DS), (12),and auntie

to (18)

On 2/14/2012 12:43 PM, Rene wrote:

>

> Hello! My name is Rene and I am new on here and would like to

> introduce myself. My husband and I have been blessed with two

> wonderful children, Gracie 3 yrs. and Isaiah 2 months (DS). I wanted

> to join to help get info and support for our family. Thank you

>

>

[Guest guest]

Thank you everyone for all your emails and wonderful words of encouragement. 

It has been an emotional journey so far, but I could not imagine life without my

special little miracle, Isaiah!

Thank you,  Rene Mom to Gracie 3 yrs and Isaiah 2 months (DS)

________________________________

From: Kerrigan <leslie-kerrigan@...>

Rene <rsaksek@...>

Cc:

Sent: Tuesday, February 14, 2012 7:14 PM

Subject: Re: New here

 

Welcome Rene! It seems like just yesterday that I joined this group

with my two children, was just over 2, was a newborn.

Now, in a blink of an eye, is driving, is in 8th grade,

going to high school next year, and there is Sammy too! We are here to

help, so no question is too small... someone on this list has probably

gone through whatever it is, so don't feel like you need to reinvent the

wheel. All of our children with DS are quite different (just like our

typical kids) but there are certainly things that bind us together....

most especially, the chromosome that has the extra love!

Enjoy your beautiful new baby!

, mom to (16), (14 DS), (12),and auntie

to (18)

On 2/14/2012 12:43 PM, Rene wrote:

>

> Hello! My name is Rene and I am new on here and would like to

> introduce myself. My husband and I have been blessed with two

> wonderful children, Gracie 3 yrs. and Isaiah 2 months (DS). I wanted

> to join to help get info and support for our family. Thank you

>

>

[Guest guest]

Welcome Rene!  Although I live in another country and things are a little bit

different here, I find this group to be of great help, encouragement and support

by friendly parents.  I have learned a great deal in this group.  You came to

the right place!

Blessings to you, your family and your little baby.

Bonnie (in Belgium)

>________________________________

> De: Rene Saksek <rsaksek@...>

>Para: Kerrigan <leslie-kerrigan@...>

>CC: " " < >

>Enviado: Miércoles, 15 de febrero, 2012 3:38:15

>Asunto: Re: New here

>

>

> 

>Thank you everyone for all your emails and wonderful words of encouragement. 

It has been an emotional journey so far, but I could not imagine life without my

special little miracle, Isaiah!

>

>Thank you,  Rene Mom to Gracie 3 yrs and Isaiah 2 months (DS)

>

>________________________________

>From: Kerrigan <leslie-kerrigan@...>

>Rene <rsaksek@...>

>Cc:

>Sent: Tuesday, February 14, 2012 7:14 PM

>Subject: Re: New here

>

>

> 

>Welcome Rene! It seems like just yesterday that I joined this group

>with my two children, was just over 2, was a newborn.

>Now, in a blink of an eye, is driving, is in 8th grade,

>going to high school next year, and there is Sammy too! We are here to

>help, so no question is too small... someone on this list has probably

>gone through whatever it is, so don't feel like you need to reinvent the

>wheel. All of our children with DS are quite different (just like our

>typical kids) but there are certainly things that bind us together....

>most especially, the chromosome that has the extra love!

>

>Enjoy your beautiful new baby!

>

>, mom to (16), (14 DS), (12),and auntie

>to (18)

>

>On 2/14/2012 12:43 PM, Rene wrote:

>>

>> Hello! My name is Rene and I am new on here and would like to

>> introduce myself. My husband and I have been blessed with two

>> wonderful children, Gracie 3 yrs. and Isaiah 2 months (DS). I wanted

>> to join to help get info and support for our family. Thank you

>>

>>

>

>

[Guest guest]

Hi guys,

My name is and I'm new here. I'm 36 female married +3. suffering for about

4 months. I got my final diagnosis for Achalasia last week after having all the

tests done. (barium, gastroscopy and monometry). My doctor advised surgery and I

am waiting consultation on Monday.

By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I do

I have chest pains and I throw up ALL night....

I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

now I have tons of questions to all you " experienced " here:

1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

2. do you think the vitamin B thing can help?

3. should I start with balloon dilation?.... I now it can leave scares and even

rip the esophagus....

I know you guys are not doctors and I need to ask doctors all my questions but I

want to hear your experience.

also I still want more children...... can that hurt the surgery? can it make

things worse?

HELP ;-(

so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

So happy to know I'm not alone and will be able to meet more people with my

problem.

Thank you all for " listening " !!!

[Guest guest]

Welcome, ! Sorry you're here. . . .

First, I'd tell the flippin' pediatrician to go take a. . . nevermind. He's

*clearly* NOT up on the literature, even if he can s p e l l Achalasia. Here's

some from peeps what knows what they is talking about:

http://www.sages.org/publication/id/ACHALASIA/

And yes, lol! I found the Vitamin B cure site about three years before my

crisis years. It does *help* -- and NO it doesn't cure, and can't *manage* a

malfunctioning LES. If you are having trouble with liquids, you are in

*trouble.* You are weak for one very simple reason: you are starving.

Having a doctor deliberately *tear* a muscle and HOPE that that works is not MY

idea of modern medicine: I'd rather have an *experience* surgeon, with his eyes

open, looking at the field he's about to cut open, thank you very much.

Balloons are, in my view, for *minor* touch ups if needed *after* surgery. I'm

sure as hell NOT going to ask a surgeon to fix a mess I created for him, and

then hope for a terrific outcome. Look at it this way: if you had a bolt of

exquisitely expensive silk, and wanted to make a dress, would your start tearing

at it with teeth and fingers? Or find a really good pair of scissors and a

great pattern? If you wanted to paint a great mural, would you start with your

kids' fingerpaints? Dilation has been around for 400 years. And it may be a

desperate gesture, but it just *doesn't* work that well. I HAVE heard of

Hellers lasting thirty years. *Never* heard of a dilation lasting more than

about five.

Aside from that: dilation when it *does* work, works best on OLD people. But

not always even for them.

Pregnancy following a Heller's:

achalasia/message/60609 But you might want

to think about what happens when a dilation fails half way through a pregnancy.

.. . .

And, lol! It's NOT vomiting: it's regurgitating, fondly called regurging. . . .

Use the search box above this message: a wealth of information awaits. More

than you wanna know, really, Grin!

xox

>

> Hi guys,

>

> My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

>

> By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

>

> I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

>

> I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

>

> Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

>

> now I have tons of questions to all you " experienced " here:

>

> 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

>

> 2. do you think the vitamin B thing can help?

>

> 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

>

> I know you guys are not doctors and I need to ask doctors all my questions but

I want to hear your experience.

>

> also I still want more children...... can that hurt the surgery? can it make

things worse?

>

> HELP ;-(

>

> so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

>

> So happy to know I'm not alone and will be able to meet more people with my

problem.

>

> Thank you all for " listening " !!!

>

>

>

[Guest guest]

I would listen to the specialist and not to your children's pediatrician. Also,

whether you have the surgery or the balloon dilatation, you want to have it done

by somebody who has done a lot of them. I'm hoping your doctor has sent you to

a doctor who fits the bill.

I had my HM done 20 years ago. My swallowing was about 85% of normal for 5

years. It seems like I need something to help about every five years or so,

though it has never ever been anywhere near as bad as before the surgery. I've

had 3 dilatations and one BoTox injection.

You need to discuss this in detail with a real specialist. If it were me, I

would go with the surgery, but I'm not a specialist either.

>

> Hi guys,

>

> My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

>

> By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

>

> I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

>

> I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

>

> Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

>

> now I have tons of questions to all you " experienced " here:

>

> 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

>

> 2. do you think the vitamin B thing can help?

>

> 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

>

> I know you guys are not doctors and I need to ask doctors all my questions but

I want to hear your experience.

>

> also I still want more children...... can that hurt the surgery? can it make

things worse?

>

> HELP ;-(

>

> so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

>

> So happy to know I'm not alone and will be able to meet more people with my

problem.

>

> Thank you all for " listening " !!!

>

>

>

[Guest guest]

First of all welcome to the group.  I am ony a member for a few months.  I had

my surgery 17 days ago.  I have not had the ballon or botox.  I highly

recommend the surgery.  you will be very pleased on surpirzed how well you fell

afterwards.  I only feel once in a while like something is in the base of my

thoat.  I just drink a slip or two of water and it goes away.  Do research on

line and make your own judgement.  I feel a possible of 5 to 10 years without

any majoy problems is better than two or three months.  Good Luck.

 

Suzanne

From: <katir@...>

Subject: New here

achalasia

Date: Saturday, May 5, 2012, 11:08 AM

 

Hi guys,

My name is and I'm new here. I'm 36 female married +3. suffering for about

4 months. I got my final diagnosis for Achalasia last week after having all the

tests done. (barium, gastroscopy and monometry). My doctor advised surgery and I

am waiting consultation on Monday.

By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I do

I have chest pains and I throw up ALL night....

I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to bend

over and clean after the kids and he just likes walking over their stuff :-)

now I have tons of questions to all you " experienced " here:

1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

2. do you think the vitamin B thing can help?

3. should I start with balloon dilation?.... I now it can leave scares and even

rip the esophagus....

I know you guys are not doctors and I need to ask doctors all my questions but I

want to hear your experience.

also I still want more children...... can that hurt the surgery? can it make

things worse?

HELP ;-(

so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

So happy to know I'm not alone and will be able to meet more people with my

problem.

Thank you all for " listening " !!!

[Guest guest]

Hi! I had the HEllers when I was 35, and for about 2 years I ate anything I

wanted...no issues. Then I think my E " settled " a bit. I still eat whatever I

want, but I usually have to follow it with some water to push it down--not the

worst thing.

Bottom line is I was very happy I had the surgery!

I was also as. Ad as it gets--like you---no eat or drink would go down. Lost 80

pounds in three months. I found that yogurt, blended together with protein or

vitamin supplements, keeping the yogurt consistancy, really helped. It gave

me a little more energy and that got me too surgery.

Whatever your choice, do not wait!

Sent from my iPhone

On May 5, 2012, at 10:08 AM, " " <katir@...> wrote:

> Hi guys,

>

> My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

>

> By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

>

> I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

>

> I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

>

> Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to bend

over and clean after the kids and he just likes walking over their stuff :-)

>

> now I have tons of questions to all you " experienced " here:

>

> 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

>

> 2. do you think the vitamin B thing can help?

>

> 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

>

> I know you guys are not doctors and I need to ask doctors all my questions but

I want to hear your experience.

>

> also I still want more children...... can that hurt the surgery? can it make

things worse?

>

> HELP ;-(

>

> so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

>

> So happy to know I'm not alone and will be able to meet more people with my

problem.

>

> Thank you all for " listening " !!!

>

>

>

>

>

>

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