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Re: Introducing myself and asking for help...

By Guest guest, in Health, Medicine and Natural Healing 08

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Guest guest
Posted

To us all,

None of us deserve the pain.  We didn't do anything bad in this world to get

this pain.  God doesn't put more on us than we can bear.  Alot of the times we

may ask why us or why me.  Only God knows the answer.  There is a reason why we

have what we have.  We will get thru it.  I pray every day for the people who

have chronic pain and all the people with informalities. We have to stay focused

and there is always some one out there that is worse off than we are.

a

From: UCJAM1977@... <UCJAM1977@...>

Subject: Re: Re: Introducing myself and asking for help...

Stimulator

Date: Saturday, July 26, 2008, 10:23 AM

I will have to learn how to do things for myself. I have sacrificed

all my

wants and desires for so long. My family suffered because of my illness, I

think sometimes more than I do. The illness has caused me to lose my house,

my car, my job, my friends. Someone said something about me introducing

myself as disabled and not someone who happened to be disabled. Being disabled

is

a big part of me. It isn't something that just happens to be a part of my

life. It has stolen everything but my kids and husband that I had. I admit

that I still have the most important things (family) but that doesn't change

that for whatever reason, I was dealt a crappy hand. Sometimes I wonder if I

did something bad and that is why I have the pain and why I suffer. I

consider myself a good person but that doesn't mean that I haven't made my

mistakes. Sometimes I think maybe I deserve the pain. Maybe I did something

so

awful that it is my turn to suffer. My friend thinks it is a horrid thing to

say

this but I have nothing to hide. If I think something or feel something I

am going to say it. She says that although people think the things I say that

they have the common sense and respect not to say them. I am sorry if I

upset someone by what I say but how could I suffer like I do and experience

what

I can only compare to my visions of hell, if I hadn't done something awful

to deserve it? I am rambling and not making sense I don't think. These

stupid meds make it hard for me to say what I am thinking. It is doubly worse

since I have to take my max dose of meds since I fell.

In a message dated 7/25/2008 5:57:31 P.M. Eastern Daylight Time,

mxzks02 (DOT) com writes:

jennifer,

i think you are an amazing person to admit that without the illness you

don't know who you are. i went through that also and when i came out of it i

had

let my marriage and life go.

I spent a long time with a therapist to figure out who i was and what i

wanted out of life. up until my illness i lived for my husband and two

beautiful

kids. i realized that i need to find things i liked in life. of course while

i was doing that my husband went to my best friend for his needs. but in the

end i have meantg a wonderful man, moved to another state, found a job i

adore and each day i have no pain is a wonderful day. my kids have supported me

completely and they think i did the right thing. i hope after your surgery ,

when you are feeling better you take a little of each day for yourself.

kim

Re: Introducing myself and asking for help...

You have an excellent point about not feeling sorry for myself. My

husband takes care of me and most of the time I never hear a word of

complaint. Recently, since I found out about the SCS, he has been a

bit more vocal. I'm not sure if this is because he is afraid or if

he genuinely is starting to resent me. Due to some other medical

conditions besides the RSD, I require daily care and don't have the

option of solely caring for myself. I will have to admit that there

are days that I could get up and do things and I don't, probably as a

result of the RSD and just the same there are days that I shouldn't

get up and I do. I think the hardest thing for me is that since I

have this unbearable pain for an extended period, I can't just yell

and scream all the time and it appears to people looking in that the

pain couldn't possibly be as bad as I say. Otherwise, I would be

yelling and screaming. I want the SCS to work. I want it to be my

ticket out of here and I will only allow myself to peek into

the 'what if' rarely. I can't stand to think about what would happen

if it doesn't work. Also, I will say, and I am ashamed to admit it

but I have been entangled in one major illness after another and if

it were to all be cured, I don't know what would make up my existance

then. My life has been defined by my illness for so long that I am

not even sure who I am apart from the illness anymore. I am ashamed

to admit this. The definition of who I am is so important, it

doesn't benefit me to hide that feeling or pretend it isn't there.

Don't get me wrong, I want to be healthy and I want to be able to do

the things that everyone else does. I'm not sure how people will see

me when they can't see someone who is sick anymore. Maybe they will

see me as not thankful enough (although I will be) or careless

because of all the new things I want to do and try. Maybe I am

holding too much hope for the SCS. If it could really give me my

life back, then I think these are real concerns. I am rambling and

not even sure if I am getting my point across.

>

> HELLO AGAIN...HAD TO FLOP ON THE RECLINER.... AND NOW I AM BACK

ONLINE.

>

> WHAT IS YOUR FIRST NAME??

>

> I WANTED TO LET YOU KNOW ALSO TO CHECK OUT OUR SITE...GO TO THE

> LINKS...THERE ARE ALOT OF INFORMATION THAT YOU MIGHT FIND HELPFUL.

>

> ALSO...THERE IS ANOTHER SITE YOU CAN CHECK OUT..WHICH I BELONG TO

AND I KNOW

> SOME OF THE OTHER RSD MEMBERS DO TOO....IT IS _WWW.RSD.ORG_

> (_http://www.RSD. _ (http://www.rsd. /) ORG) JIM BROATCH IS THE EXECUTIVE

DIRECTOR, AND

HE IS A FANTASTIC PERSON!

> HE IS A VERY CARING AND COMPASSIONATE MAN. HE HAS HELPED ME WITH

MANY

> THINGS AND IS JUST TERRIFIC.

> HIS EMAIL ADDRESS IS _JWBROATCH@. .._ (mailto:JWBROATCH@ ...)

>

> I HOPE THAT THIS INFORMATION HELPS YOU.

>

> I KNOW YOU FEEL LIKE A BURDEN TO YOU FAMILY.....BUT THEY DO THE

THINGS THEY

> DO FOR YOU SINCE THEY LOVE YOU. MY HUSBAND AND I WERE MARRIED FOR

2 MONTHS

> WHEN ALL HELL BROKE OUT. I HAD RSD ALL ALONG WHEN WE DATED...BUT

NOTHING LIKE

> IT IS NOW. I TWISTED MY DAMNED ANKLE GETTING UP OUT OF A DAMNED

CHAIR....I

> TOLD HIM THE SAME THING THAT I FELT LIKE A BURDEN...AND I WENT ONE

STEP

> FARTHER...I FELT LIKE A FAILURE AS A WOMAN AND A WIFE...WHICH I

STILL DO TO THIS

> DAY AT TIMES..AND HE TELLS ME THE SAME THING HE TOLD ME 7 YEARS

AGO...IF IT

> WERE ME, WHAT WOULD YOU DO....LOVE ME OR LEAVE ME? I AM A REAL

MAN...I TOOK MY

> VOWS SERIOUSLY, AND I LOVE YOU.

>

> SO....SINCE YOUR HUBBIE SOUNDS LIKE A REAL STAND UP GUY TOO...TRY

TO TALK TO

> HIM ABOUT HOW YOU FEEL...YOU MIGHT BE SURPRISED HOW GOOD YOU FEEL

AFTERWARDS.

>

> JUST A FEW MORE THOUGHTS.

>

> AFTER I READ YOUR MAIL, MY HEART HURT FOR YOU....NOT PITY...

> I HATE PITY...I HATE WHEN PEOPLE LOOK AT ME WITH THAT FACE....YOU

KNOW THE

> ONE I MEAN...OH WHAT A SHAME SO YOUNG TO BE UNABLE TO ENJOY

LIFE...SO YOUNG

> NOT TO BE ABLE TO DO ANYTHING.... BULLSHIT I SAY TO THAT...YES, I

AM DISABLED,

> YES, I AM IN AGONY AT TIMES...BUT DAMMIT, I AM A YOUNG, VIBRANT

STRONG-WILLED

> IRISH WOMAN..WHO IS MADLY IN LOVE WITH MY AWESOME HUSBAND, ONE

HELL OF A

> MOTHER TO MY INCREDIBLE DAUGHTER AND I MIGHT ADD ONE HELL OF

WOMAN.

>

> DON'T GET ME WRONG....THERE ARE TIMES WHEN I SEE THAT FACE ON AND

ALL I CAN

> DO IS CRY SINCE THAT IS HOW I FEEL THAT DAY....AND THEN I GET THE

IRISH UP

> AND I CHANGE MY THOUGHTS. IF I THINK THAT I AM WORTHLESS AND

PITIFUL...WELL

> THEN I WILL BE...BUT IF I THINK THAT YES...I AM DISABLED...YES, I

AM HURTING SO

> DAMNED BAD...BUT WON'T I HURT JUST AS BAD IF I LAY HERE AND FEEL

SORRY FOR

> MYSELF JUST AS MUCH IF I PULL MYSELF TOGETHER AND DO

SOMETHING... ANYTHING THAT

> I AM PHYSICALLY REALLY ABLE TO DO...SO EVEN THOUGH I HURT LIKE ALL

HELL ALL

> THROUGH OUT MY BODY..I CAN HOLD MY HEAD UP AND BE PROUD OF MYSELF..

>

> WELL...NOW YOU KNOW HOW I FEEL ABOUT BEING PITIED....I AM SURE

JUST LIKE

> EVERYONE ELSE IN THIS AMAZING GROUP OF AWESOME FOLKS!!! LOL

>

> WELL.....TAKE GREAT CARE AND KNOW I AM HERE, JUST LIKE ALOT OF THE

FOLKS

> THAT I KNOW WILL BE ANWERING YOUR POST.

>

> I WISH PAIN FREE DAYS FOR US AND SLEEP-FILLED NIGHTS.

>

> GENTLE HUGS TO ALL,

>

> KATHY G.

>

>

>

> ************ **Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (_http://www.fanhouse _ (http://www.fanhouse /) .com/fantasyaffa

ir?ncid=aolspr00 050000000020)

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

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Guest guest   

Guest guest
Posted

Since joining this group, I have been blessed to be enlightened that as bad

as my pain is or as much as I feel I have been dealt a rotten hand, there is

always someone out there worse off. You make an excellent point!

In a message dated 7/27/2008 2:01:26 A.M. Eastern Daylight Time,

teenysjms@... writes:

To us all,

None of us deserve the pain. We didn't do anything bad in this world to get

this pain. God doesn't put more on us than we can bear. Alot of the times

we may ask why us or why me. Only God knows the answer. There is a reason

why we have what we have. We will get thru it. I pray every day for the

people who have chronic pain and all the people with informalities. We have to

stay focused and there is always some one out there that is worse off than we

are.

a

From: _UCJAM1977@..._ (mailto:UCJAM1977@...) <_UCJAM1977@..._

(mailto:UCJAM1977@...) >

Subject: Re: Re: Introducing myself and asking for help...

_Stimulator@groStimula_ (mailto:Stimulator )

Date: Saturday, July 26, 2008, 10:23 AM

I will have to learn how to do things for myself. I have sacrificed all my

wants and desires for so long. My family suffered because of my illness, I

think sometimes more than I do. The illness has caused me to lose my house,

my car, my job, my friends. Someone said something about me introducing

myself as disabled and not someone who happened to be disabled. Being

disabled is

a big part of me. It isn't something that just happens to be a part of my

life. It has stolen everything but my kids and husband that I had. I admit

that I still have the most important things (family) but that doesn't change

that for whatever reason, I was dealt a crappy hand. Sometimes I wonder if I

did something bad and that is why I have the pain and why I suffer. I

consider myself a good person but that doesn't mean that I haven't made my

mistakes. Sometimes I think maybe I deserve the pain. Maybe I did something

so

awful that it is my turn to suffer. My friend thinks it is a horrid thing to

say

this but I have nothing to hide. If I think something or feel something I

am going to say it. She says that although people think the things I say

that

they have the common sense and respect not to say them. I am sorry if I

upset someone by what I say but how could I suffer like I do and experience

what

I can only compare to my visions of hell, if I hadn't done something awful

to deserve it? I am rambling and not making sense I don't think. These

stupid meds make it hard for me to say what I am thinking. It is doubly

worse

since I have to take my max dose of meds since I fell.

In a message dated 7/25/2008 5:57:31 P.M. Eastern Daylight Time,

mxzks02 (DOT) com writes:

jennifer,

i think you are an amazing person to admit that without the illness you

don't know who you are. i went through that also and when i came out of it i

had

let my marriage and life go.

I spent a long time with a therapist to figure out who i was and what i

wanted out of life. up until my illness i lived for my husband and two

beautiful

kids. i realized that i need to find things i liked in life. of course while

i was doing that my husband went to my best friend for his needs. but in the

end i have meantg a wonderful man, moved to another state, found a job i

adore and each day i have no pain is a wonderful day. my kids have supported

me

completely and they think i did the right thing. i hope after your surgery ,

when you are feeling better you take a little of each day for yourself.

kim

----- Original Message ----

From: jennifer_hollandswo From<_UCJAM1977@_UCJAM1977@<WBR>aol. UCJ_

(m_UCJAM1977>

_Stimulator@ groStimula_ (mailto:Stimulator@_Stimulator@

Sent: Friday, July 25, 2008 6:43:24 AM

Subject: Re: Introducing myself and asking for help...

You have an excellent point about not feeling sorry for myself. My

husband takes care of me and most of the time I never hear a word of

complaint. Recently, since I found out about the SCS, he has been a

bit more vocal. I'm not sure if this is because he is afraid or if

he genuinely is starting to resent me. Due to some other medical

conditions besides the RSD, I require daily care and don't have the

option of solely caring for myself. I will have to admit that there

are days that I could get up and do things and I don't, probably as a

result of the RSD and just the same there are days that I shouldn't

get up and I do. I think the hardest thing for me is that since I

have this unbearable pain for an extended period, I can't just yell

and scream all the time and it appears to people looking in that the

pain couldn't possibly be as bad as I say. Otherwise, I would be

yelling and screaming. I want the SCS to work. I want it to be my

ticket out of here and I will only allow myself to peek into

the 'what if' rarely. I can't stand to think about what would happen

if it doesn't work. Also, I will say, and I am ashamed to admit it

but I have been entangled in one major illness after another and if

it were to all be cured, I don't know what would make up my existance

then. My life has been defined by my illness for so long that I am

not even sure who I am apart from the illness anymore. I am ashamed

to admit this. The definition of who I am is so important, it

doesn't benefit me to hide that feeling or pretend it isn't there.

Don't get me wrong, I want to be healthy and I want to be able to do

the things that everyone else does. I'm not sure how people will see

me when they can't see someone who is sick anymore. Maybe they will

see me as not thankful enough (although I will be) or careless

because of all the new things I want to do and try. Maybe I am

holding too much hope for the SCS. If it could really give me my

life back, then I think these are real concerns. I am rambling and

not even sure if I am getting my point across.

>

> HELLO AGAIN...HAD TO FLOP ON THE RECLINER.... AND NOW I AM BACK

ONLINE.

>

> WHAT IS YOUR FIRST NAME??

>

> I WANTED TO LET YOU KNOW ALSO TO CHECK OUT OUR SITE...GO TO THE

> LINKS...THERE ARE ALOT OF INFORMATION THAT YOU MIGHT FIND HELPFUL.

>

> ALSO...THERE IS ANOTHER SITE YOU CAN CHECK OUT..WHICH I BELONG TO

AND I KNOW

> SOME OF THE OTHER RSD MEMBERS DO TOO....IT IS _WWW.RSD.ORG_

> (__http://www.RSD._ (http://www.rsd./) _ (_http://www.rsd._

(http://www.rsd./) /) ORG) JIM BROATCH IS THE EXECUTIVE

DIRECTOR, AND

HE IS A FANTASTIC PERSON!

> HE IS A VERY CARING AND COMPASSIONATE MAN. HE HAS HELPED ME WITH

MANY

> THINGS AND IS JUST TERRIFIC.

> HIS EMAIL ADDRESS IS _JWBROATCH@. .._ (mailto:JWBROATCH@ ...)

>

> I HOPE THAT THIS INFORMATION HELPS YOU.

>

> I KNOW YOU FEEL LIKE A BURDEN TO YOU FAMILY.....BUT THEY DO THE

THINGS THEY

> DO FOR YOU SINCE THEY LOVE YOU. MY HUSBAND AND I WERE MARRIED FOR

2 MONTHS

> WHEN ALL HELL BROKE OUT. I HAD RSD ALL ALONG WHEN WE DATED...BUT

NOTHING LIKE

> IT IS NOW. I TWISTED MY DAMNED ANKLE GETTING UP OUT OF A DAMNED

CHAIR....I

> TOLD HIM THE SAME THING THAT I FELT LIKE A BURDEN...AND I WENT ONE

STEP

> FARTHER...I FELT LIKE A FAILURE AS A WOMAN AND A WIFE...WHICH I

STILL DO TO THIS

> DAY AT TIMES..AND HE TELLS ME THE SAME THING HE TOLD ME 7 YEARS

AGO...IF IT

> WERE ME, WHAT WOULD YOU DO....LOVE ME OR LEAVE ME? I AM A REAL

MAN...I TOOK MY

> VOWS SERIOUSLY, AND I LOVE YOU.

>

> SO....SINCE YOUR HUBBIE SOUNDS LIKE A REAL STAND UP GUY TOO...TRY

TO TALK TO

> HIM ABOUT HOW YOU FEEL...YOU MIGHT BE SURPRISED HOW GOOD YOU FEEL

AFTERWARDS.

>

> JUST A FEW MORE THOUGHTS.

>

> AFTER I READ YOUR MAIL, MY HEART HURT FOR YOU....NOT PITY...

> I HATE PITY...I HATE WHEN PEOPLE LOOK AT ME WITH THAT FACE....YOU

KNOW THE

> ONE I MEAN...OH WHAT A SHAME SO YOUNG TO BE UNABLE TO ENJOY

LIFE...SO YOUNG

> NOT TO BE ABLE TO DO ANYTHING.... BULLSHIT I SAY TO THAT...YES, I

AM DISABLED,

> YES, I AM IN AGONY AT TIMES...BUT DAMMIT, I AM A YOUNG, VIBRANT

STRONG-WILLED

> IRISH WOMAN..WHO IS MADLY IN LOVE WITH MY AWESOME HUSBAND, ONE

HELL OF A

> MOTHER TO MY INCREDIBLE DAUGHTER AND I MIGHT ADD ONE HELL OF

WOMAN.

>

> DON'T GET ME WRONG....THERE ARE TIMES WHEN I SEE THAT FACE ON AND

ALL I CAN

> DO IS CRY SINCE THAT IS HOW I FEEL THAT DAY....AND THEN I GET THE

IRISH UP

> AND I CHANGE MY THOUGHTS. IF I THINK THAT I AM WORTHLESS AND

PITIFUL...WELL

> THEN I WILL BE...BUT IF I THINK THAT YES...I AM DISABLED...YES, I

AM HURTING SO

> DAMNED BAD...BUT WON'T I HURT JUST AS BAD IF I LAY HERE AND FEEL

SORRY FOR

> MYSELF JUST AS MUCH IF I PULL MYSELF TOGETHER AND DO

SOMETHING... ANYTHING THAT

> I AM PHYSICALLY REALLY ABLE TO DO...SO EVEN THOUGH I HURT LIKE ALL

HELL ALL

> THROUGH OUT MY BODY..I CAN HOLD MY HEAD UP AND BE PROUD OF MYSELF..

>

> WELL...NOW YOU KNOW HOW I FEEL ABOUT BEING PITIED....I AM SURE

JUST LIKE

> EVERYONE ELSE IN THIS AMAZING GROUP OF AWESOME FOLKS!!! LOL

>

> WELL.....TAKE GREAT CARE AND KNOW I AM HERE, JUST LIKE ALOT OF THE

FOLKS

> THAT I KNOW WILL BE ANWERING YOUR POST.

>

> I WISH PAIN FREE DAYS FOR US AND SLEEP-FILLED NIGHTS.

>

> GENTLE HUGS TO ALL,

>

> KATHY G.

>

>

>

> ************ **Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (__http://www.fanhouse_ (http://www.fanhouse/) _ (_http://www.fanhouse_

(http://www.fanhouse/) /) .com/fantasyaffa

ir?ncid=aolspr00 050000000020)

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(_http://www.fanhouse_ (http://www.fanhouse/) .com/fantasyaffa

ir?ncid=aolspr00 050000000020)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

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Guest guest   

Guest guest
Posted

hey jenn!

i am so glad that the group has been a great help to you....I learn

something new every day....not about pain...but how all different folks

cope...this

group is full of positive, real people who have problems...

i like to think of myself as a 38 year old happily married mom of a 17 year

old daughter who has chronic pain. you see...my loved ones and my happy life

will ALWAYS come before the demons...the pain.

glad that you are doing better!

you can always teach us stuff too, jenn....that is what this group is

about...

lots of love,

kathy g

GOOD FOR YOU!!!

**************Get fantasy football with free live scoring. Sign up for

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Guest guest   

Guest guest
Posted

>

> Strange question here. I was stretching my arms and I got this

weird sharp

> pain just above my elbow. As quick as it was there, it was gone. I

had some

> numbness in that area. Now, almost every time I stretch my elbow I

get that

> pain and notice the numbness. Is this part of rsd or something else?

>

>

Dear Jen,

You might have pinched the Ulnar, or Median Nerve!!! If it is in the

Back of the Elbow, where Your Funny Bone is, it is the Ulnar Nerve, if

it is on the Inside of Your Elbow, it is the Median Nerve!!!

The Ulnar Nerve passes through what is call the " Cubital Tunnel " on the

Back side of Your Elbow, and it can be entrapped, causing " Cubital

Tunnel Syndrome " just like the Carpel Tunnel in Your Wrist!!!

So, you might want to see a Neurologist or a Neurosurgeon!!! If it gets

too bad, the Numbness might Stay Longer Each Time!!!

Not Trying to Scare You Darlin, just make You aware that it needs to be

looked at!!!

{{{{Hugs}}}} and Prayers,

Tom

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Guest guest
Posted

Left leg

In a message dated 7/29/2008 8:21:03 P.M. Eastern Daylight Time,

KGAVI@... writes:

where is your RSD located?

************************<WBR>**Get fantasy football with free live scor

FanHouse Fantasy Football today.

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Posted

I have a therapist that I saw weekly but I have temporarily put on hold

until I have gotten my trial. The pain is just too intense to try to travel

let

alone sit there for an hour. I went out to the store today with my husband

to treat myself to something nice. I figured I would just wonder around until

I found something I wanted. I left empty handed and in tears. It was the

pain, it was the frustration, it was the people who were so rude in their

questions. It is no wonder that I don't want to go out anymore. People look

at

me and just can't figure out why someone my age is shuffling around with a

walker. They can't figure out why the 80 year olds are walking past me. " Oh,

honey did you have surgery? " " Oh, darling did you hurt yourself? " Are you

kidding me?!?! I am tired and very very sore, I will write more tomorrow.

In a message dated 7/29/2008 8:42:21 P.M. Eastern Daylight Time,

KGAVI@... writes:

yes, Jenn, You are learning to depend on yourself more and more....and that

is awesome...but it is okay to have bad days too.....I don't care what

anyone

says!!! RSD is a horrific and barbaric disease in itself. It is relentless

and cruel...but we have to be just a bit more bitchy than the RSD is!!

I myself have had it now for 25 years and I suffer every damned day with the

agony....but you just need to remember it can't be every day to have a bad

day emotionally. Physically we may not have a choice...but I always ask for

help from my hubbie, daughter, family members and friends. Asking for minor

favors daily won't hurt them....for instance...Hey hon...if you bring all

the

dishes off the table and to me, I will do them. The same goes for

laundry...cooking, cleaning....laundry...cooking, cleaning....<WBR>my

daughter must

shooting gallery...as soon as she walks in with something...shooting

gallery...as

this for me too...then she walks back...hey hon...she just laughs

now..before she would roll her eys,,but she always did it for me.

When they are not home, I have a walker with a seat on it...I place my lunch

on that and carefully walk over to the kitchen table with my lunch. I sit

in my wheelchair and use my cane to pull the wash basket over to the

table...I

use my power chair..it looks ridiculous..use my power chair..it looks

ridiculous

and no one really sees me anyway!!!

I hope this helps a wee bit.

Please don't hear me saying to you that you can't have bad days...that is

just impossible..just impossible..<WBR>.we just need to change our thinking

horrible days. If I can do it, believe me anyone can!!

Maybe a therapist could help you out too. I went to one and he really made

a huge difference in my thinking, and my life.

One big thing I don't do anymore is " should on myself " . You know...oh I

should of done this...or I should of done that..that in itself makes a huge

difference for me in my thinking.

lots of hugs and love, jenn

please email me directly if you would like to talk...or need a shoulder..I

have two strong ones.

Love,

Kathy g. pa

************************<WBR>**Get fantasy football with free live scoring.

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Guest guest
Posted

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS....

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR...THEY

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT SO....I

AM

HUGHIE...DON'T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW YOU USING A WALKER,

BUT

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT...I THOUGHT HOW RUDE!! IT

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT..THANKFULLY I STILL HAD MY BRA ON!!!! LOL

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES....SO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH BIRTHDAY...ME

ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

**************Get fantasy football with free live scoring. Sign up for

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Posted

I hate when we park in the handicap and every stares. I especially hated

having to walk to my car on my walker. I was sore, so I was moving especially

slow and of course the traffic stops to let me across and I can just hear

them saying hurry up, or what the hell...I absolutely hate it!

In a message dated 7/30/2008 7:38:32 A.M. Eastern Daylight Time,

KGAVI@... writes:

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS...I

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR..OLDER

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT

SO....I AM

HUGHIE...DON'HUGHIE...DON'<WBR>T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW

YOU US

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT.SAW HIM STARING AT ME IN K

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO

HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT..FORGOT AND UNZIPPED MY SWEATSHIRT..<WBR>

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES....ANO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD

A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************************<WBR>**Get fantasy football with free live scor

FanHouse Fantasy Football today.

(_http://www.fanhousehttp://www.fanhohttp://www.fanhohttp://www.f_

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) )

[Non-text portions of this message have been removed]

**************Get fantasy football with free live scoring. Sign up for

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Guest guest   

Guest guest
Posted

Your story makes me feel like an ass for being upset for being looked at

In a message dated 7/30/2008 8:56:58 A.M. Eastern Daylight Time,

mike2boys@... writes:

Boy can I relate I had people stairring at me since I was born with

missing fingers kids use to pick on me. adults after noticing ask how

you loose your fingers everyone thinks they where cut off by a

acciedent. if you go in the photo section i have picture of my hands

in there. the stares I would get daily everyday. use to bother me

then one day i said who cares i wont let people stareing at me bother

me. and It took time but i did it. on my right hand i have full thumb

and last finger full one. the first thru the third are short like a

half a fingers. i am a left hand person haad to become lefty becuse i

have 3 full fingers and a made thumb. It use to bother me not

anymore. i walk with a cane always and I get sezuires the looks i

get with having epilepsy sezuires still bother me It started 2 years

i would have a sezuire not knowing what they where doctor tested me

and was told i have epilepsy and there nothing that can be done

except take meds Istill have seziures not as many but camera flashes

set me off causes sezuire certain lights bother me. I have photo

sentivity which is normal with epilepsy. me my wife and kids go out

to eat once a week. i would be fine then a camera flash goes off if

it hit my eyes My face would twitch badly and i would be in pain in

my head pain like a brain ache i wwould have to go in my room myy

wife makes it dark i wear srong dark glasses so anyway I know how it

feels being starred at. mike group owner --- In

_Stimulator@groStimula_ (mailto:Stimulator ) ,

UCJAM1977@.., UC

>

> I have a therapist that I saw weekly but I have temporarily put on

hold

> until I have gotten my trial. The pain is just too intense to try

to travel let

> alone sit there for an hour. I went out to the store today with

my husband

> to treat myself to something nice. I figured I would just wonder

around until

> I found something I wanted. I left empty handed and in tears. It

was the

> pain, it was the frustration, it was the people who were so rude

in their

> questions. It is no wonder that I don't want to go out anymore.

People look at

> me and just can't figure out why someone my age is shuffling

around with a

> walker. They can't figure out why the 80 year olds are walking

past me. " Oh,

> honey did you have surgery? " " Oh, darling did you hurt yourself? "

Are you

> kidding me?!?! I am tired and very very sore, I will write more

tomorrow.

>

>

> In a message dated 7/29/2008 8:42:21 P.M. Eastern Daylight Time,

> KGAVI@... writes:

>

>

>

>

> yes, Jenn, You are learning to depend on yourself more and

more....and that

> is awesome...but it is okay to have bad days too.....I don't care

what

> anyone

> says!!! RSD is a horrific and barbaric disease in itself. It is

relentless

> and cruel...but we have to be just a bit more bitchy than the RSD

is!!

>

> I myself have had it now for 25 years and I suffer every damned

day with the

> agony....but you just need to remember it can't be every day to

have a bad

> day emotionally. Physically we may not have a choice...but I

always ask for

> help from my hubbie, daughter, family members and friends. Asking

for minor

> favors daily won't hurt them....for instance...Hey hon...if you

bring all

> the

> dishes off the table and to me, I will do them. The same goes for

> laundry...cooking, cleaning.... laundry. laundry...coo

cleaning....<WBR>my

> daughter must

> shooting gallery...as soon as she walks in with

something...something

> gallery...as

> this for me too...then she walks back...hey hon...she just laughs

> now..before she would roll her eys,,but she always did it for me.

>

> When they are not home, I have a walker with a seat on it...I

place my lunch

> on that and carefully walk over to the kitchen table with my

lunch. I sit

> in my wheelchair and use my cane to pull the wash basket over to

the

> table...I

> use my power chair..it looks ridiculous.. use my power chair

looks

> ridiculous

> and no one really sees me anyway!!!

>

> I hope this helps a wee bit.

>

> Please don't hear me saying to you that you can't have bad

days...that is

> just impossible.. just impossi<WBR>.we just need to change our

thinking

> horrible days. If I can do it, believe me anyone can!!

>

> Maybe a therapist could help you out too. I went to one and he

really made

> a huge difference in my thinking, and my life.

>

> One big thing I don't do anymore is " should on myself " . You

know...oh I

> should of done this...or I should of done that..that in itself

makes a huge

> difference for me in my thinking.

>

> lots of hugs and love, jenn

>

> please email me directly if you would like to talk...or need a

shoulder..I

> have two strong ones.

>

> Love,

>

> Kathy g. pa

>

> ************ **** <WBR>**<WBR>*Get fantasy football with free

scoring.

> FanHouse Fantasy Football today.

> (__http://www.fanhousehttp://www.http://wwwhttp://www.fanhohttp://w_

(http://www.fanhousehttp//www.fanhohttp://www.fanhohttp://www.f_)

> (_http://www.fanhousehttp://www.fanhohttp://www.fanhohttp://www.f_

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) ) )

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

> ************ ************<WBR>**Get fantasy football with free live sco

for

> FanHouse Fantasy Football today.

> (_http://www.fanhousehttp://www.fanhohttp://www.fanhohttp://www.f_

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) )

>

>

> [Non-text portions of this message have been removed]

>

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

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Guest guest   

Guest guest
Posted

Boy can I relate I had people stairring at me since I was born with

missing fingers kids use to pick on me. adults after noticing ask how

you loose your fingers everyone thinks they where cut off by a

acciedent. if you go in the photo section i have picture of my hands

in there. the stares I would get daily everyday. use to bother me

then one day i said who cares i wont let people stareing at me bother

me. and It took time but i did it. on my right hand i have full thumb

and last finger full one. the first thru the third are short like a

half a fingers. i am a left hand person haad to become lefty becuse i

have 3 full fingers and a made thumb. It use to bother me not

anymore. i walk with a cane always and I get sezuires the looks i

get with having epilepsy sezuires still bother me It started 2 years

i would have a sezuire not knowing what they where doctor tested me

and was told i have epilepsy and there nothing that can be done

except take meds Istill have seziures not as many but camera flashes

set me off causes sezuire certain lights bother me. I have photo

sentivity which is normal with epilepsy. me my wife and kids go out

to eat once a week. i would be fine then a camera flash goes off if

it hit my eyes My face would twitch badly and i would be in pain in

my head pain like a brain ache i wwould have to go in my room myy

wife makes it dark i wear srong dark glasses so anyway I know how it

feels being starred at. mike group owner

>

> I have a therapist that I saw weekly but I have temporarily put on

hold

> until I have gotten my trial. The pain is just too intense to try

to travel let

> alone sit there for an hour. I went out to the store today with

my husband

> to treat myself to something nice. I figured I would just wonder

around until

> I found something I wanted. I left empty handed and in tears. It

was the

> pain, it was the frustration, it was the people who were so rude

in their

> questions. It is no wonder that I don't want to go out anymore.

People look at

> me and just can't figure out why someone my age is shuffling

around with a

> walker. They can't figure out why the 80 year olds are walking

past me. " Oh,

> honey did you have surgery? " " Oh, darling did you hurt yourself? "

Are you

> kidding me?!?! I am tired and very very sore, I will write more

tomorrow.

>

>

> In a message dated 7/29/2008 8:42:21 P.M. Eastern Daylight Time,

> KGAVI@... writes:

>

>

>

>

> yes, Jenn, You are learning to depend on yourself more and

more....and that

> is awesome...but it is okay to have bad days too.....I don't care

what

> anyone

> says!!! RSD is a horrific and barbaric disease in itself. It is

relentless

> and cruel...but we have to be just a bit more bitchy than the RSD

is!!

>

> I myself have had it now for 25 years and I suffer every damned

day with the

> agony....but you just need to remember it can't be every day to

have a bad

> day emotionally. Physically we may not have a choice...but I

always ask for

> help from my hubbie, daughter, family members and friends. Asking

for minor

> favors daily won't hurt them....for instance...Hey hon...if you

bring all

> the

> dishes off the table and to me, I will do them. The same goes for

> laundry...cooking, cleaning....laundry...cooking,

cleaning....<WBR>my

> daughter must

> shooting gallery...as soon as she walks in with

something...shooting

> gallery...as

> this for me too...then she walks back...hey hon...she just laughs

> now..before she would roll her eys,,but she always did it for me.

>

> When they are not home, I have a walker with a seat on it...I

place my lunch

> on that and carefully walk over to the kitchen table with my

lunch. I sit

> in my wheelchair and use my cane to pull the wash basket over to

the

> table...I

> use my power chair..it looks ridiculous..use my power chair..it

looks

> ridiculous

> and no one really sees me anyway!!!

>

> I hope this helps a wee bit.

>

> Please don't hear me saying to you that you can't have bad

days...that is

> just impossible..just impossible..<WBR>.we just need to change our

thinking

> horrible days. If I can do it, believe me anyone can!!

>

> Maybe a therapist could help you out too. I went to one and he

really made

> a huge difference in my thinking, and my life.

>

> One big thing I don't do anymore is " should on myself " . You

know...oh I

> should of done this...or I should of done that..that in itself

makes a huge

> difference for me in my thinking.

>

> lots of hugs and love, jenn

>

> please email me directly if you would like to talk...or need a

shoulder..I

> have two strong ones.

>

> Love,

>

> Kathy g. pa

>

> ************************<WBR>**Get fantasy football with free live

scoring.

> FanHouse Fantasy Football today.

> (_http://www.fanhousehttp://www.fanhohttp://www.fanhohttp://www.f_

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) )

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

> **************Get fantasy football with free live scoring. Sign up

for

> FanHouse Fantasy Football today.

> (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020)

>

>

>

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Guest guest   

Guest guest
Posted

It use to bother me when I parked in the handicapp place; now it doesn't.  I

would trade one day without pain and let them walk in my shoes and let them

feel.  then maybe they wouldn't stare and gripe.

a

From: UCJAM1977@... <UCJAM1977@...>

Subject: Re: Re: Introducing myself and asking for help...

Stimulator

Date: Wednesday, July 30, 2008, 10:07 AM

I hate when we park in the handicap and every stares. I especially

hated

having to walk to my car on my walker. I was sore, so I was moving especially

slow and of course the traffic stops to let me across and I can just hear

them saying hurry up, or what the hell...I absolutely hate it!

In a message dated 7/30/2008 7:38:32 A.M. Eastern Daylight Time,

KGAVI@... writes:

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... I

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. OLDER

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT

SO....I AM

HUGHIE...DON' HUGHIE... DON'<WBR> T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW

YOU US

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. SAW HIM STARING AT ME IN K

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO

HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. FORGOT AND UNZIPPED MY SWEATSHIRT.. <WBR>

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... ANO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD

A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ ********* ***<WBR>* *Get fantasy football with free live scor

FanHouse Fantasy Football today.

(_http://www.fanhouse http://www. fanhohttp: //www.fanhohttp: //www.f_

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) )

[Non-text portions of this message have been removed]

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

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Guest guest   

Guest guest
Posted

that makes me so mad that people would actually say hurry up...... some people

are just so ignorant!!  Next time that happens.... walk even slower..... that's

what I would do.  URggghhh

Re: Re: Introducing myself and asking for help...

I hate when we park in the handicap and every stares. I especially hated

having to walk to my car on my walker. I was sore, so I was moving especially

slow and of course the traffic stops to let me across and I can just hear

them saying hurry up, or what the hell...I absolutely hate it!

In a message dated 7/30/2008 7:38:32 A.M. Eastern Daylight Time,

KGAVI@... writes:

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... I

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. OLDER

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT

SO....I AM

HUGHIE...DON' HUGHIE... DON'<WBR> T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW

YOU US

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING.....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. SAW HIM STARING AT ME IN K

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO

HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. FORGOT AND UNZIPPED MY SWEATSHIRT.. <WBR>

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... ANO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD

A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ ********* ***<WBR>* *Get fantasy football with free live scor

FanHouse Fantasy Football today.

(_http://www.fanhouse http://www. fanhohttp: //www.fanhohttp: //www.f_

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) )

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Guest guest   

Guest guest
Posted

I applied for a handicap plate but was denied.  To fight  it would cost like

$100 so I just said forget it.  I am fortunate not to need one everyday only

when I am having a bad flare.  Jill ~ Boston

Re: Re: Introducing myself and asking for help...

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... .

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. .THEY

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT....CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT SO....I

AM

HUGHIE...DON' T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW YOU USING A WALKER,

BUT

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. ..I THOUGHT HOW RUDE!! IT

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. THANKFULLY I STILL HAD MY BRA ON!!!! LOL

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... SO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

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Guest guest   

Guest guest
Posted

I also have a hadicap plate Iusse it anytime i go out. Mike group

owner

> From: UCJAM1977@... <UCJAM1977@...>

> Subject: Re: Re: Introducing myself and asking for

help...

> Stimulator

> Date: Wednesday, July 30, 2008, 10:07 AM

>

>

>

>

>

>

>

>

>

>

>

> I hate when we park in the handicap and every stares.

I especially hated

>

> having to walk to my car on my walker. I was sore, so I was

moving especially

>

> slow and of course the traffic stops to let me across and I can

just hear

>

> them saying hurry up, or what the hell...I absolutely hate it!

>

>

>

>

>

> In a message dated 7/30/2008 7:38:32 A.M. Eastern Daylight Time,

>

> KGAVI@... writes:

>

>

>

> HEY LOVE,

>

>

>

> I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

>

>

>

> I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... I

>

>

>

> HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED

SPACE...UNTIL THE

>

> OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR

WHEELCHAIR.. OLDER

>

> THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

>

>

>

> WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS

IT DOES

>

> BOTHER ME.

>

>

>

> TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR

THEY ARE TRUE)

>

>

>

> I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST

HAD IT....SO

>

> THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR

ACCIDENT, BORN

>

> THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I

WENT UP TO

>

> HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS

LONGER...WELL OF

>

> COURSE

>

> ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS

MAN, I

>

> APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT

IT IS

>

> FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS

RESPONCE

>

> WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I

THOUGHT

>

> SO....I AM

>

> HUGHIE...DON' HUGHIE... DON'<WBR> T YOU REMEMBER ME....I FELT SO

BAD WHEN I SAW

>

> YOU US

>

> DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

>

>

>

> THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED

THING....PEOPLE

>

> GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY

HIM AND

>

> ME....I

>

> SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. SAW HIM STARING

AT ME IN K

>

> WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I

HAD TAKEN

>

> OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I

WAS TOO

>

> HOT

>

> WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE

GOING OUT AND

>

> FORGOT AND UNZIPPED MY SWEATSHIRT.. FORGOT AND UNZIPPED MY

SWEATSHIRT.. <WBR>

>

>

>

> ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON

CRUTCHES.... ANO

>

> BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT

WORSE...MY DAD HAD

>

> A

>

> BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN

HER

>

> BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY

IMAGINE THE

>

> STARES

>

> THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

>

> BIRTHDAY...ME ON

>

> THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY

SISTER ON A

>

> CANE!!!

>

>

>

> PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE

HURTING,

>

> HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC

RELIEF.

>

>

>

> I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS

A SEAT ON

>

> IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE

JUST

>

> CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

>

>

>

> LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

>

>

>

> KATHY G.

>

>

>

> REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU

WOULD LIKE.

>

>

>

> HANG IN, HONEY.

>

>

>

> MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER

WEEK...JUST TO

>

> TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA,

SWEETIE.

>

>

>

> ************ ********* ***<WBR>* *Get fantasy football with free

live scor

>

> FanHouse Fantasy Football today.

>

> (_http://www.fanhouse http://www.

fanhohttp: //www.fanhohttp: //www.f_

>

> (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00

050000000020) )

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

> ************ **Get fantasy football with free live scoring. Sign up

for

>

> FanHouse Fantasy Football today.

>

> (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

>

>

>

>

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Guest guest
Posted

I THINK THAT I WOULD REALLY HAVE TO PULL OUT MY CELL PHONE AND CHAT WITH

ANYONE THAT WOULD ANSWER AND REALLY PISS THEM OFF...BUT THEN AGAIN SOMONE THAT

IGNORANT WOULD JUST RUN YOU THE HELL OVER.

GENTLE HUGS TO ALL,

KATHY G.

**************Get fantasy football with free live scoring. Sign up for

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Guest guest   

Guest guest
Posted

That's just what I need! I won't be here much or at all for a bit, I have

been banned from sitting up. I have to stay in bed with my leg up for now. I

will miss you guys! I wish I had a laptop so I could talk to you all from

there = ( I'm so sad

In a message dated 7/30/2008 4:46:45 P.M. Eastern Daylight Time,

tomcarv@... writes:

--- In _Stimulator@groStimula_ (mailto:Stimulator ) ,

UCJAM1977@.., UC

>

> Strange question here. I was stretching my arms and I got this

weird sharp

> pain just above my elbow. As quick as it was there, it was gone. I

had some

> numbness in that area. Now, almost every time I stretch my elbow I

get that

> pain and notice the numbness. Is this part of rsd or something else?

>

>

Dear Jen,

You might have pinched the Ulnar, or Median Nerve!!! If it is in the

Back of the Elbow, where Your Funny Bone is, it is the Ulnar Nerve, if

it is on the Inside of Your Elbow, it is the Median Nerve!!!

The Ulnar Nerve passes through what is call the " Cubital Tunnel " on the

Back side of Your Elbow, and it can be entrapped, causing " Cubital

Tunnel Syndrome " just like the Carpel Tunnel in Your Wrist!!!

So, you might want to see a Neurologist or a Neurosurgeon!So, you might

too bad, the Numbness might Stay Longer Each Time!!!

Not Trying to Scare You Darlin, just make You aware that it needs to be

looked at!!!

{{{{Hugs}}}} and Prayers,

Tom

**************Get fantasy football with free live scoring. Sign up for

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Guest guest
Posted

I wouldn't wish an entire day of my pain on my enemy...now a few hours is

another story LOL

In a message dated 7/30/2008 4:46:52 P.M. Eastern Daylight Time,

teenysjms@... writes:

It use to bother me when I parked in the handicapp place; now it doesn't. I

would trade one day without pain and let them walk in my shoes and let them

feel. then maybe they wouldn't stare and gripe.

a

From: _UCJAM1977@..._ (mailto:UCJAM1977@...) <_UCJAM1977@..._

(mailto:UCJAM1977@...) >

Subject: Re: Re: Introducing myself and asking for help...

_Stimulator@groStimula_ (mailto:Stimulator )

Date: Wednesday, July 30, 2008, 10:07 AM

I hate when we park in the handicap and every stares. I especially hated

having to walk to my car on my walker. I was sore, so I was moving

especially

slow and of course the traffic stops to let me across and I can just hear

them saying hurry up, or what the hell...I absolutely hate it!

In a message dated 7/30/2008 7:38:32 A.M. Eastern Daylight Time,

_KGAVI@..._ (mailto:KGAVI@...) writes:

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... I

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. OLDER

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT...CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT

SO....I AM

HUGHIE...DON' HUGHIE... DON'<WBR> T YOU REMEMBER ME....I FELT SO BAD WHEN I

SAW

YOU US

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. SAW HIM STARING AT ME IN K

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO

HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. FORGOT AND UNZIPPED MY SWEATSHIRT.. <WBR>

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... ANO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD

A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ ********* ***<WBR>* *Get fantasy football with free live scor

FanHouse Fantasy Football today.

(__http://www.fanhouse_ (http://www.fanhouse/) _http://www._ (http://www./)

fanhohttp: //www.fanhohttp: //www.f_

(_http://www.fanhouse_ (http://www.fanhouse/) .com/fantasyaffa

ir?ncid=aolspr00 050000000020) )

[Non-text portions of this message have been removed]

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(_http://www.fanhouse_ (http://www.fanhouse/) .com/fantasyaffa

ir?ncid=aolspr00 050000000020)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Get fantasy football with free live scoring. Sign up for

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Guest guest   

Guest guest
Posted

If I didn't have a handicap plate, I wouldn't make it to the door of the

store before I had had too much!

In a message dated 7/30/2008 4:47:03 P.M. Eastern Daylight Time,

clemhoff1111@... writes:

I applied for a handicap plate but was denied. To fight it would cost like

$100 so I just said forget it. I am fortunate not to need one everyday only

when I am having a bad flare. Jill ~ Boston

Re: Re: Introducing myself and asking for help...

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... .

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. .THEY

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT....CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT

SO....I AM

HUGHIE...DON' T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW YOU USING A

WALKER, BUT

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. ..I THOUGHT HOW RUDE!! IT

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO

HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. THANKFULLY I STILL HAD MY BRA ON!!!! LOL

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... SO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD

A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH

BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(_http://www.fanhouse_ (http://www.fanhouse/) .com/fantasyaffa

ir?ncid=aolspr00 050000000020)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

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Guest guest   

Guest guest
Posted

In CA. once you get the rear view mirror tag, you can go back to the dmv and get

plates as well and it saved me money on my registration. I have the tag for when

in other peoples vehicles and also plates on 2 of our vehicles. I love

CA......Oh and the Dr doesnt have to fill out paperwork again as long as you

have your tag, they just use the info from that.

Deanna

Re: Re: Introducing myself and asking for help...

I CHOSE TO GET THE REAR VIEW MIRROR TAG...SO I CAN BRING IN TO ANY VEHICLE I

AM IN...WITH THE PLATE..I WOULD BE STUCK ONLY USING MY VAN.

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Posted

$100 is crazy.....why do you have to pay that money to fight for plates? I never

heard of that......

Deanna

Re: Re: Introducing myself and asking for help...

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... .

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. .THEY

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT....CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT SO....I

AM

HUGHIE...DON' T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW YOU USING A WALKER,

BUT

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. ..I THOUGHT HOW RUDE!! IT

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. THANKFULLY I STILL HAD MY BRA ON!!!! LOL

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... SO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH BIRTHDAY...ME ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

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Posted

Jill

My pain Dr wouldn't fill out the paper work for the handicap tag/plate. I went

to my primary Dr. and he filled it out without a problem. I got my handicap tag

for the mirror. I agree that the tag has the advantage of going with you, where

that license plate can only stay on the car it is issued for. I live in NY and

take the tag with me when I go to visit my son in California. Maybe you have

another doctor that can fill it out?

I walk with a cane, and my gait isn't always steady, I can't count the number of

times I've almost been knocked to the ground because someone was in a rush to

get in front on me. They see I can't walk fast, what do they expect. I'd love to

be able to walk the way I used to. Before I got hurt, I was able to walk a

l5-16 minute mile. Now, I'm just so thankful that I'm still able to walk. To

make matters worse, they would turn around and give me a dirty look and/or give

me a gesture. What did I do wrong to deserve that? I would get so angry, it

would bother me so, then the body would tense and the pain would increase. One

time I had such an arugument with a jogger at Central Park while doing the RSD

walk for Archilles. (A totally awesome experience.)

The jogger only wanted to know when the walk was over because these charity

walks infringe on her jogs. I totally lost it, I blew my cool. I told her the

walk would be over when the walk would be over. Everyone doing the walk was

disabled and it takes us a lot longer to finish than her and we had every right

to use the park. I told her to count her blessing that she was where she was,

not where we were, but she should be more understanding because she doesn't know

what the future holds in store for her. I then told her that if she ever been

disabled I hoped the people in her life were nicer and more understanding than

she was. She was rude, nasty, ignorant, and selfish. Nothing I said mattered,

she just kept yelling back at me that this was her park, her jog, we were to

slow, blah, blah, blah. What I've learned is to let this slide off my back.I

can't get upset over other people's stupidity. I can't change how other people

are going to react or act to me but I can change my reaction to them. Before, I

was causing my pain to increase without realizing it. Now, if something like

this happens, I'll smile at the person. If I'm with my husband i'll say to

him, certain people are so rude, loud enough for the other person to hear. I've

found other ways to deal with this situation other than making myself upset.

NEVER GIVE UP HOPE

Sue C.

Re: Re: Introducing myself and asking for help...

HEY LOVE,

I AM SO SORRY THAT YOU ARE GOING THROUGH SUCH A HARD TIME, JENN :(

I UNDERSTAND THOSE STARES..AND ALL THE QUESTIONS... .

HOW ABOUT THE STARES WHEN YOU ARE PARKED IN A HANDICAPPED SPACE...UNTIL THE

OLDER PEOPLE SEE YOU GETTING OUT AND USING YOUR WALKER OR WHEELCHAIR.. .THEY

THINK...THEY ARE BOTH YOUNG..WHY IS HE PARKING THERE?????

WITH THE STARES...I HAVE LEARNED TO IGNORE THEM...BUT ON BAD DAYS IT DOES

BOTHER ME.

TWO FUNNY STORIES THAT MIGHT CHEER YOU UP A BIT...(AND I SWEAR THEY ARE TRUE)

I HAD HAD IT WITH PEOPLE GAWKING AT ME ABOUT 3 YEARS AGO...JUST HAD IT....SO

THIS POOR GUY WAS STARING AT ME...TRYING TO FIGURE OUT....CAR ACCIDENT, BORN

THAT WAY...AAH THE POOR THING...WHICH I HATE....THE PITY...SO I WENT UP TO

HIM AND ASKED HIM IF HE WOULD LIKE A PICTURE...IT LASTS LONGER...WELL OF

COURSE

ABOUT A FEW MINUTES LATER, I FELT SO BAD THAT I WAS SO MEAN TO THIS MAN, I

APOLOGIZED TO HIM IN THE NEXT AISLE OF THE STORE...TELLING HIM THAT IT IS

FRUSTRATING WHEN EVERYONE AND THERE MOTHER STARES AT ME. HIS RESPONCE

WAS...DIDN'T YOU GO TO ST. MARTIN OF TOURS SCHOOL IN PHILA...I THOUGHT SO....I

AM

HUGHIE...DON' T YOU REMEMBER ME....I FELT SO BAD WHEN I SAW YOU USING A

WALKER, BUT

DIDN'T WANT TO ASK YOU IF IT WASNT YOU....BOY DID I FEEL STUPID??!

THE NEXT ONE ABOUT STARING...YOU KNOW THE SAME OLD DAMNED THING....PEOPLE

GAWKING....BUT THANKFULLY IN THIS AISLE OF THE ACME IT WAS ONLY HIM AND

ME....I

SAW HIM STARING AT ME IN KIND OF EMBARRASSEMENT. ..I THOUGHT HOW RUDE!! IT

WAS THEN I REALIZED WHEN I UNZIPPED MY SWEATSHIRT, I FORGOT THAT I HAD TAKEN

OFF MY SHIRT, AND ONLY KEPT THAT ON...IT IS A REAL SOFT ONE AND I WAS TOO HOT

WITH BOTH SHIRTS ON...WELL, O FORGOT TO PUT IT BACK ON BEFORE GOING OUT AND

FORGOT AND UNZIPPED MY SWEATSHIRT.. THANKFULLY I STILL HAD MY BRA ON!!!! LOL

ANOTHER ONE...MY DAUGHTER HAD SOME KNEE SURGERY...AND WAS ON CRUTCHES.... SO

BOY DIDN'T WE LOOK LIKE THE WALKING WOUNDED...THEN IT GOT WORSE...MY DAD HAD A

BROKEN FOOT, AND MY SISTER IS ALSO DISABLED WITH NERVE DAMAGE IN HER

BACK...FOR WHICH SHE NEEDS TO USE A CANE....WELL YOU CAN ONLY IMAGINE THE

STARES

THAT WE ALL GOT WHEN WE WENT OUT TO DINNER FOR MY MOTHER'S 65TH BIRTHDAY...ME

ON

THE WALKER, MY DAUGHER ON CRUTCHES, MY DAD ON A WALKER AND MY SISTER ON A

CANE!!!

PLEASE DO NOT HEAR ME DOWNPLAYING YOUR PAIN, JENN. I KNOW YOU ARE HURTING,

HONEY..JUST THOUGHT YOU COULD USE SOME HONEST TO GOODNESS COMIC RELIEF.

I KNOW SHOPPING IS SO HARD. MAYBE YOU CAN GET THE WALKER THAT HAS A SEAT ON

IT...I HAVE THAT AND IT HELPS A LOT. SCREW THE LOOKS...PEOPLE ARE JUST

CURIOUS OR THEY FEEL FOR US...I THINK IT IS COMMON NATURE.

LOTS OF LOVE AND GENTLE HUGS TO YOU AND ALL,

KATHY G.

REMEMBER YOU CAN ALWAY EMAIL ME AND WE CAN CHAT ON PHONE..IF YOU WOULD LIKE.

HANG IN, HONEY.

MAYBE IT MIGHT HELP A BIT IF YOU SAW YOUR PERSON EVERY OTHER WEEK...JUST TO

TOUCH BASE AND IT WOULDN'T BE SO HARD AS WEEKLY. JUST AN IDEA, SWEETIE.

************ **Get fantasy football with free live scoring. Sign up for

FanHouse Fantasy Football today.

(http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020)

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Posted

Maybe you are being a lot more judgmental than is necessary. I've sat here

and read 20+ posts about how stupid one person or another is or how lazy or

selfish another is. When did everyone get so high and mighty that you feel it

is your place to judge anybody?? You can't have it two ways, you can't be

upset that someone judges you for parking in the handicapped spot or looking

at you and then turn around and be angry that pregnant women want to park

closer! Who are you to know how they feel? Who are you to know how ANYONE

other

than yourself feels?? Now you are criticizing even the most simple action.

This post particularly irritates me. Advertising to the world that you are

handicapped? Are you kidding me? By the time I have struggled to get

dressed, I have to invest another 10 minutes to shuffle out to the car,

stopping

frequently from the pain. Made it to the car, now my muscles tense up from

every bump the car hits in the road that sends pain throughout my body, when I

have finally gotten to the place that I am going, I have to wipe the sweat and

tears away so that when I go in people won't look quite as much. This

doesn't even bring into question having to get into the store and getting what

I

need. I don't leave the house but perhaps once every two weeks precisely for

this reason. Now, maybe through all of this, I just might not be able to

remember to put some damn handicap placard up on my mirror. You have the

audacity to tell me that this means I am advertising?? Are you kidding me??

This

disgusts me. I really enjoyed this room but this would be the end of it.

I'm leaving the room and I hope that you think twice next time before stepping

up on your soapboxes. Who are you to judge anyone? Don't judge me but I'll

judge you? Does that make ANY sense? This is ridiculous, selfish,

childish, and unforgivable!

In a message dated 7/31/2008 9:04:56 A.M. Eastern Daylight Time,

dotratz@... writes:

Deanna,

The same is true in FL, you can have both the mirror tag and the license

plate. However, you can get both of them at the same time. The thing that

bothers me are the people that drive with the mirror tag hanging. Right at the

top

of the mirror tag it says, " Remove before driving vehicle " . I often want to

ask these people if they really feel it is necessary to advertise to the world

that they are handicapped.

The only time a mirror tag is suppose to be used is when a person is parked

in a legally posted handicap parking space.

Dorothy

[Non-text portions of this message have been removed]

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