introducing myself

[Guest guest]

Hi Laurel

I was banded by Dr Talbot a couple of months ago and with private

health insurance I was out of pocket just over $2850.00 or there

abouts. I had to pay $3600 upfront though to begin with. I got about

$800 back from medicare and my health insurance.

Hope that helps you.

Kellie

If you have any questions about dr talbot please call. 0412913711

>

> Hi,

> Thought I would introduce myself. I'm 42, living in South west

Sydney

> and going to see a surgeon this Wed, Dr Christope Berney about

getting

> a band put in. Has anyone heard of this Dr? He works at POW hosp but

> no one seems to have surgery from him. I'm worried that his fees

will

> be way over the top and I wont be able to afford the surgery. Ive

seen

> Dr Talbot works at POW, can anyone share how much he charges? I've

got

> 40 kilos to lose, i'm 107kg's.

> Thanks

> Laurel

>

[Guest guest]

Welcome, Leif:

Glad to have you here. I'm a mom of 3 ASD boys and there is no personal

confusion as to what happened to my family. I appreciate your comment about

autism not being one condition. It's clear we need reform in every area for

our children. I know you are not giving up on exploring treatment options

for your son.

Alison

>From: " Leif Knutsen " <vyerllc@...>

>Reply-EOHarm

>EOHarm

>Subject: Introducing myself

>Date: Fri, 6 Jul 2007 08:30:46 -0400

>

>Hi everyone - I recently joined this list, having found it through links to

>an article about Arthur I recently posted in my blog (

>http://vyer.typepad.com/hereticsalmanac).

>

>My name is Leif Knutsen. I live in Maplewood, NJ, with my wife and 8-year

>old twins. My daughter is neurotypical, but my son is classified

>autistic, following a dramatic regression at 17 months almost immediately

>following his 18-month vaccinations. We have tried pretty much everything

>to

>help : several chelation therapies, hyperbaric oxygen therapy, several

>restrictive diets, glutathione, supplements, homeopathy, etc., etc. I can't

>say anything has made a dramatic difference, though it's pretty clear to us

>that the Specific Carbohydrate Diet has helped him quite a bit. He's on

>Abilify now, which calms him and helps him sleep; and I'm not discounting

>that.

>

>I started out dismissing the idea that vaccines could have done any damage

>to , but the more I learn, the more suspicious I get about the

>risk/benefit trade-offs or vaccinations. I make it my habit to advise all

>expectant parents to get informed before they vaccinate their kids, and all

>opt for some kind of modified protocol.

>

>My belief, or call it hypotheses, right now, are that:

>

>- Autism isn't one condition but a cluster of conditions with differing

>etiology but vaguely similar symptoms. The diagnosis " autism " to me is as

>meaningful as " I have a limp when I walk. "

>

>- My son's illness was triggered by an environmental shock to his system.

>Leading suspect is vaccinations, but I'm certainly willing to be convinced

>it was something else.

>

>- I think that public health organizations are consciously or unconsciously

>terrified about investigating the adverse effects of vaccines in general

>and

>thimerosal in particular, because if a link were to be proven, it would

>lead

>to a massive confidence crisis against vaccination

>

>- I've worked with pharmaceutical companies and HMOs as a consultant, and I

>tend to discount conspiracy theories about them, because they're generally

>not organized well enough to be as devious as some might imagine. Which

>isn't to say they're blameless, but I think their sins are more of omission

>than commission.

>

>I know that the cause and cure for 's illness can be found, and I only

>hope that it happens soon.

_________________________________________________________________

Local listings, incredible imagery, and driving directions - all in one

place! http://maps.live.com/?wip=69 & FORM=MGAC01

[Guest guest]

Hi Leif,

Have you read the book “Evidence of

Harm” by Kirby?

Pamela

" Courage is doing

what you're afraid to do. There can be no courage unless you're scared. "

Eddie Rickenbacker,

top US

fighter ace, WWI

From: EOHarm [mailto:EOHarm ] On Behalf Of Leif Knutsen

Sent: Friday, July 06, 2007 8:31

AM

EOHarm

Subject: Introducing

myself

Hi

everyone - I recently joined this list, having found it through links to an

article about Arthur I recently posted in my blog (http://vyer.typepad.com/hereticsalmanac

).

My name is Leif Knutsen. I live in Maplewood, NJ,

with my wife and 8-year old twins. My daughter is neurotypical, but my son

is classified autistic, following a dramatic regression at 17 months

almost immediately following his

18-month vaccinations. We have tried pretty much everything to help :

several chelation therapies, hyperbaric oxygen therapy, several restrictive

diets, glutathione, supplements, homeopathy, etc., etc. I can't say anything has made a

dramatic difference, though it's pretty clear to us that the Specific

Carbohydrate Diet has helped him quite a bit. He's on Abilify now, which calms

him and helps him sleep; and I'm not discounting that.

I started out dismissing the idea that vaccines could have done any damage to

, but the more I learn, the more suspicious I get about the risk/benefit

trade-offs or vaccinations. I make it my habit to advise all expectant parents

to get informed before they

vaccinate their kids, and all opt for some

kind of modified protocol.

My belief, or call it hypotheses, right now, are that:

- Autism isn't one condition but a cluster of conditions with differing

etiology but vaguely similar symptoms. The diagnosis " autism " to me is as meaningful

as " I have a limp when I walk. "

- My son's illness was triggered by an environmental

shock to his system. Leading suspect is vaccinations, but I'm certainly willing

to be convinced it was something

else.

- I think that public health organizations are consciously or unconsciously

terrified about investigating the adverse effects of vaccines in general and

thimerosal in particular, because if

a link were to be proven, it would lead to a massive confidence crisis against

vaccination

- I've worked with pharmaceutical companies and HMOs as a consultant, and I

tend to discount conspiracy theories about them, because they're generally not

organized well enough to be as devious as some

might imagine. Which isn't to say they're blameless,

but I think their sins are more of omission than commission.

I know that the cause and cure for 's illness can be found, and I only

hope that it happens soon.

[Guest guest]

Welcome Leif Knutsen.

Leif writes:

"- I think that public health organizations are consciously or unconsciously terrified about investigating the adverse effects of vaccines in general and thimerosal in particular, because if a link were to be proven, it would lead to a massive confidence crisis against vaccination "

-------------------------------------------------------------------------------------------------------------------------------------------------------

Unfortunately, our public health organizations (CDC, FDA, HHS) have "self-identified" themselves as "partners" with the vaccine manufacturers they are responsible for "regulating". Can you imagine these same public health organizations calling themselves "partners" with tobacco growers?

Any publicly declared "partnership", between government "regulators" and the businessmen they are responsible for "regulating", should be investigated for possible criminal prosecution for professional "mal-feasance, mis-feasance or non-feasance".

Indeed, the opening statement of recent vaccine trial began with the apt description of these partners "standing shoulder to shoulder", ostensibly to protect their mutual interests. Who bares responsibility for protecting the public interest? Parents?

-------------------------------------------------------------------------------------------------------------

There is no way former Senator Bill Frist and former Congressman Dick Armey were "unconscious" when they snuck that vaccine liability protection clause into the Patriot Act in the dead of night. Therefore, I suspect there is nothing these "partners" do "unconsciously". Absolutely nothing.

See what's free at AOL.com.

[Guest guest]

Welcome, ! I am also re-learning all these wonderful

techniques/recipes. I live in NE Minneapolis and look forward to

chatting with you. I am able to acquire real milk and related products

from a wonderful woman who has a drop-off every Thursday from MOM

Dairy. If you are interested in finding out more, I think she can

handle a few more customers.

Marjorie

[Guest guest]

Well, what about doing pr school at home? It looks like you are a stay

at home mom, yes? Preschool is so much fun and all you have to do is

LIVE and you're teaching your child. You can learn numbers, shapes and

math just by baking cookies. Give them cleaning things kid sized and

you're teaching them home ec. Get some flannels for ABC's.. phonics

magnets.. preschool is more than worksheets.

If the school is private, AFAIK, it will be a fight b/c they set their

own rules. So you might be OK and you might not be OK.

I had a friend that baby died at 6 days old. Knowing what I know now, it

was labeled SIDS too and I wonder, was it really? Another lady at

church, 4 months old. Labeled SIDS. Unfortunately you learn too late

sometimes. I am absolutely certain that many of those precious little

babies whose deaths broke families apart, were from vaccines and I think

it's downright criminal that the medical world can just label it SIDS

and not be culpable. They ought to be shot and hung up to dry by their

pinkie toes.

Nita, yes my hands are full, but not my heart: 14, Jon 12,

10, 8, 6, Christian (RIP: 7/16/03 to 8/22/04), 1,

and due 2/08

Some minds are like concrete:

Thoroughly mixed up and permanently set.

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.476 / Virus Database: 269.11.8/940 - Release Date: 8/6/2007

4:53 PM

[Guest guest]

ask the school if they have exemption papers there. If not, go to the

health dept. I have just recently moved from Ohio and my kids were in5

different schools. The small Christian school just wanted a letter form me

stating exemption due to religious and philosphical reasons and they were

good with that. The preschool at the Y I just wrote exempt due to rel and

phil on their health card and they were good with that. The public schools

I had to get an exemption form from the health dept and altho it wanted

explanations, I just checked off the boxes for rel and phil and that was

that for them. Then when they switeched schools it went right along with

them so i was good to go!

I imagine they would be allowed to not accept your child if very private

but that is something you would have to ask a lawyer if you feel you are

being discriminated against.

Laurie

I am about to have

> my 3 year old start pre-school, and I'm wondering about my rights as a

> parent... I know the schools provide exemptions (religious, philosophical,

> and medical for Ohio), but what about a pre-school? Can they require

> immunizations for admittance into their pre-school, or would they accept

> some sort of record of our non-vaccinating status? Are all pre-schools the

> same in how they handle this?

[Guest guest]

,

I recently moved from Ohio also --- while I was there I had my

own " religious exemption " letter that I gave to any doctor or program

that required shot records. All it was was a simple letter stating

that according to Ohio law (put in the law code #) I was relgiously

opposed to vacinations. I signed it in front of a notary and I was

good to go.

HTH,

>

> Hi-- I am thrilled that I have found this forum. As for why I

don't

> vaccinate... where do I start? I received an email a LONG time ago--

telling

> how one woman was so driven to see if there might be anything to

the

> controversy that she went to the county morgue and found that most

deaths of

> babies were CLEARLY clustered just after the times babies would be

given

> vaccines (listed as SIDS for cause of death-- truly a " catch all "

term

> meaning they don't claim to know why the death occurred.) OK... so

that

> wasn't enough for me--but it did concern me greatly-- obviously. I

am

> telling you, I have put in YEARS of research... countless hours...

> researching online and in many different books and resources. I

agonized

> over the decision and prayed to God that I would choose the right

thing to

> do for my babies. At one point I was scared to vaccinate, but

scared not to

> as well. I started out just " delaying them " and found a doctor

(thank you

> Lord) respectful of that. And I just kept researching...

>

> And the bottom line is-- it is VERY clear to me now the harm that

vaccines

> are doing to our kids and all people. There were congressional

hearings on

> vaccines... that shocked me. Congressman Dan Burton has been a

leader in the

> fight against these vaccines... he thinks there is a massive cover-

up, and I

> believe him. People's reputations and careers are on the line...

the

> government doesn't want it to come out obviously... and Big Pharma

makes big

> bucks from all of them. Our kids are getting more vaccines now (and

many

> given together) than ever before. It is the main reason people take

their

> kids to the doctor, and without shots, those " well visits " would

not seem so

> important... they are doctors' bread and butter...

>

> So I have decided to not vaccinate my kids... My husband... I think

mainly

> to prevent WWIII... has given in to not vaccinating. But I am

about to have

> my 3 year old start pre-school, and I'm wondering about my rights

as a

> parent... I know the schools provide exemptions (religious,

philosophical,

> and medical for Ohio), but what about a pre-school? Can they

require

> immunizations for admittance into their pre-school, or would they

accept

> some sort of record of our non-vaccinating status? Are all pre-

schools the

> same in how they handle this? I'm hoping they will be like schools

in noting

> the exemption and making it clear that if there is an outbreak, I

may have

> to remove my child from pre-school until it's under control.

Someone

> recently told me that if they receive any government funding, then

I

> definitely have the right not to vaccinate. Any thoughts on

this? Also,

> I saw some old messages regarding classes... I would love that

since I truly

> would like something to calm my fears about the diseases out there

and not

> vaccinating. Are there definite things I should be doing on a

regular

> basis (as opposed to just when I think they are getting sick) to

boost their

> immune systems?

>

> thanks in advance!

>

> M.

>

> _________________________________________________________________

> See what you're getting into…before you go there

> http://newlivehotmail.com/?

ocid=TXT_TAGHM_migration_HM_viral_preview_0507

>

[Guest guest]

I'm interested in knowing as well. I have not put my son in daycare for just

this reason. If worst comes to worst, I would skip preschool!!

in Colo.

Re: Introducing myself

,

I recently moved from Ohio also --- while I was there I had my

own " religious exemption " letter that I gave to any doctor or program

that required shot records. All it was was a simple letter stating

that according to Ohio law (put in the law code #) I was relgiously

opposed to vacinations. I signed it in front of a notary and I was

good to go.

HTH,

>

> Hi-- I am thrilled that I have found this forum. As for why I

don't

> vaccinate... where do I start? I received an email a LONG time ago--

telling

> how one woman was so driven to see if there might be anything to

the

> controversy that she went to the county morgue and found that most

deaths of

> babies were CLEARLY clustered just after the times babies would be

given

> vaccines (listed as SIDS for cause of death-- truly a " catch all "

term

> meaning they don't claim to know why the death occurred.) OK... so

that

> wasn't enough for me--but it did concern me greatly-- obviously. I

am

> telling you, I have put in YEARS of research... countless hours...

> researching online and in many different books and resources. I

agonized

> over the decision and prayed to God that I would choose the right

thing to

> do for my babies. At one point I was scared to vaccinate, but

scared not to

> as well. I started out just " delaying them " and found a doctor

(thank you

> Lord) respectful of that. And I just kept researching. ..

>

> And the bottom line is-- it is VERY clear to me now the harm that

vaccines

> are doing to our kids and all people. There were congressional

hearings on

> vaccines... that shocked me. Congressman Dan Burton has been a

leader in the

> fight against these vaccines... he thinks there is a massive cover-

up, and I

> believe him. People's reputations and careers are on the line...

the

> government doesn't want it to come out obviously... and Big Pharma

makes big

> bucks from all of them. Our kids are getting more vaccines now (and

many

> given together) than ever before. It is the main reason people take

their

> kids to the doctor, and without shots, those " well visits " would

not seem so

> important... they are doctors' bread and butter...

>

> So I have decided to not vaccinate my kids... My husband... I think

mainly

> to prevent WWIII... has given in to not vaccinating. But I am

about to have

> my 3 year old start pre-school, and I'm wondering about my rights

as a

> parent... I know the schools provide exemptions (religious,

philosophical,

> and medical for Ohio), but what about a pre-school? Can they

require

> immunizations for admittance into their pre-school, or would they

accept

> some sort of record of our non-vaccinating status? Are all pre-

schools the

> same in how they handle this? I'm hoping they will be like schools

in noting

> the exemption and making it clear that if there is an outbreak, I

may have

> to remove my child from pre-school until it's under control.

Someone

> recently told me that if they receive any government funding, then

I

> definitely have the right not to vaccinate. Any thoughts on

this? Also,

> I saw some old messages regarding classes... I would love that

since I truly

> would like something to calm my fears about the diseases out there

and not

> vaccinating. Are there definite things I should be doing on a

regular

> basis (as opposed to just when I think they are getting sick) to

boost their

> immune systems?

>

> thanks in advance!

>

> M.

>

> ____________ _________ _________ _________ _________ _________ _

> See what you're getting into…before you go there

> http://newlivehotma il.com/?

ocid=TXT_TAGHM_ migration_ HM_viral_ preview_0507

>

[Guest guest]

At 07:26 PM 8/7/2007 -0700, you wrote:

>I'm interested in knowing as well. I have not put my son in daycare for

just this reason. If worst comes to worst, I would skip preschool!!

>

> in Colo.

If they receive federal funding have to abide by the laws

If not, they often don't know the difference - just give them your

exemption with a copy of the law

Sheri

>

>

> Re: Introducing myself

>

>,

>I recently moved from Ohio also --- while I was there I had my

>own " religious exemption " letter that I gave to any doctor or program

>that required shot records. All it was was a simple letter stating

>that according to Ohio law (put in the law code #) I was relgiously

>opposed to vacinations. I signed it in front of a notary and I was

>good to go.

>HTH,

>

>

>

>>

>> Hi-- I am thrilled that I have found this forum. As for why I

>don't

>> vaccinate... where do I start? I received an email a LONG time ago--

>telling

>> how one woman was so driven to see if there might be anything to

>the

>> controversy that she went to the county morgue and found that most

>deaths of

>> babies were CLEARLY clustered just after the times babies would be

>given

>> vaccines (listed as SIDS for cause of death-- truly a " catch all "

>term

>> meaning they don't claim to know why the death occurred.) OK... so

>that

>> wasn't enough for me--but it did concern me greatly-- obviously. I

>am

>> telling you, I have put in YEARS of research... countless hours...

>> researching online and in many different books and resources. I

>agonized

>> over the decision and prayed to God that I would choose the right

>thing to

>> do for my babies. At one point I was scared to vaccinate, but

>scared not to

>> as well. I started out just " delaying them " and found a doctor

>(thank you

>> Lord) respectful of that. And I just kept researching. ..

>>

>> And the bottom line is-- it is VERY clear to me now the harm that

>vaccines

>> are doing to our kids and all people. There were congressional

>hearings on

>> vaccines... that shocked me. Congressman Dan Burton has been a

>leader in the

>> fight against these vaccines... he thinks there is a massive cover-

>up, and I

>> believe him. People's reputations and careers are on the line...

>the

>> government doesn't want it to come out obviously... and Big Pharma

>makes big

>> bucks from all of them. Our kids are getting more vaccines now (and

>many

>> given together) than ever before. It is the main reason people take

>their

>> kids to the doctor, and without shots, those " well visits " would

>not seem so

>> important... they are doctors' bread and butter...

>>

>> So I have decided to not vaccinate my kids... My husband... I think

>mainly

>> to prevent WWIII... has given in to not vaccinating. But I am

>about to have

>> my 3 year old start pre-school, and I'm wondering about my rights

>as a

>> parent... I know the schools provide exemptions (religious,

>philosophical,

>> and medical for Ohio), but what about a pre-school? Can they

>require

>> immunizations for admittance into their pre-school, or would they

>accept

>> some sort of record of our non-vaccinating status? Are all pre-

>schools the

>> same in how they handle this? I'm hoping they will be like schools

>in noting

>> the exemption and making it clear that if there is an outbreak, I

>may have

>> to remove my child from pre-school until it's under control.

>Someone

>> recently told me that if they receive any government funding, then

>I

>> definitely have the right not to vaccinate. Any thoughts on

>this? Also,

>> I saw some old messages regarding classes... I would love that

>since I truly

>> would like something to calm my fears about the diseases out there

>and not

>> vaccinating. Are there definite things I should be doing on a

>regular

>> basis (as opposed to just when I think they are getting sick) to

>boost their

>> immune systems?

>>

>> thanks in advance!

>>

>> M.

>>

>> ____________ _________ _________ _________ _________ _________ _

>> See what you're getting into…before you go there

>> http://newlivehotma il.com/?

>ocid=TXT_TAGHM_ migration_ HM_viral_ preview_0507

>>

>

>

>

>

>

[Guest guest]

Interesting. It was a military daycare that refused to give me an exemption and

I would assume they get some sort of federal funding!

The job is long gone now -- and for the best, but I do find it frustrating that

they can " force " you to do something. IN other words, if I didn't have a husband

with a decent job, I'd be " forced " to vaccinate my child against my wishes to

survive. And that angers me.

Re: Introducing myself

>

>,

>I recently moved from Ohio also --- while I was there I had my

>own " religious exemption " letter that I gave to any doctor or program

>that required shot records. All it was was a simple letter stating

>that according to Ohio law (put in the law code #) I was relgiously

>opposed to vacinations. I signed it in front of a notary and I was

>good to go.

>HTH,

>

>

>

>>

>> Hi-- I am thrilled that I have found this forum. As for why I

>don't

>> vaccinate... where do I start? I received an email a LONG time ago--

>telling

>> how one woman was so driven to see if there might be anything to

>the

>> controversy that she went to the county morgue and found that most

>deaths of

>> babies were CLEARLY clustered just after the times babies would be

>given

>> vaccines (listed as SIDS for cause of death-- truly a " catch all "

>term

>> meaning they don't claim to know why the death occurred.) OK... so

>that

>> wasn't enough for me--but it did concern me greatly-- obviously. I

>am

>> telling you, I have put in YEARS of research... countless hours...

>> researching online and in many different books and resources. I

>agonized

>> over the decision and prayed to God that I would choose the right

>thing to

>> do for my babies. At one point I was scared to vaccinate, but

>scared not to

>> as well. I started out just " delaying them " and found a doctor

>(thank you

>> Lord) respectful of that. And I just kept researching. ..

>>

>> And the bottom line is-- it is VERY clear to me now the harm that

>vaccines

>> are doing to our kids and all people. There were congressional

>hearings on

>> vaccines... that shocked me. Congressman Dan Burton has been a

>leader in the

>> fight against these vaccines... he thinks there is a massive cover-

>up, and I

>> believe him. People's reputations and careers are on the line...

>the

>> government doesn't want it to come out obviously... and Big Pharma

>makes big

>> bucks from all of them. Our kids are getting more vaccines now (and

>many

>> given together) than ever before. It is the main reason people take

>their

>> kids to the doctor, and without shots, those " well visits " would

>not seem so

>> important... they are doctors' bread and butter...

>>

>> So I have decided to not vaccinate my kids... My husband... I think

>mainly

>> to prevent WWIII... has given in to not vaccinating. But I am

>about to have

>> my 3 year old start pre-school, and I'm wondering about my rights

>as a

>> parent... I know the schools provide exemptions (religious,

>philosophical,

>> and medical for Ohio), but what about a pre-school? Can they

>require

>> immunizations for admittance into their pre-school, or would they

>accept

>> some sort of record of our non-vaccinating status? Are all pre-

>schools the

>> same in how they handle this? I'm hoping they will be like schools

>in noting

>> the exemption and making it clear that if there is an outbreak, I

>may have

>> to remove my child from pre-school until it's under control.

>Someone

>> recently told me that if they receive any government funding, then

>I

>> definitely have the right not to vaccinate. Any thoughts on

>this? Also,

>> I saw some old messages regarding classes... I would love that

>since I truly

>> would like something to calm my fears about the diseases out there

>and not

>> vaccinating. Are there definite things I should be doing on a

>regular

>> basis (as opposed to just when I think they are getting sick) to

>boost their

>> immune systems?

>>

>> thanks in advance!

>>

>> M.

>>

>> ____________ _________ _________ _________ _________ _________ _

>> See what you're getting into…before you go there

>> http://newlivehotma il.com/?

>ocid=TXT_TAGHM_ migration_ HM_viral_ preview_0507

>>

>

>

>

>

>

[Guest guest]

I agree! Not attending preschool isn't going to ruin a child's

life....afterall, how many of us didn't go to preschool and have turned

out alright, lol!

~

> >I'm interested in knowing as well. I have not put my son in daycare

for

> just this reason. If worst comes to worst, I would skip preschool!!

> >

> > in Colo.

>

[Guest guest]

Hello and all the group,

I want to thank you for the warm welcome we received from you.

I think that having child with DS changes our life in a very positive way, and

the things you told me about your experience goes in this direction, reinforcing

my good feelings.

I created an album for Zoë in the page of the group - and uploaded only one

picture, sorry, but no time now.... - so you can see her.

The surgery is approaching and we believe it will happen on Oct. 9. We will

know the date for sure tomorrow. We are very confident and your comments about

the good perspectives it brings also are important and make me more secure.

Thanks for everything and all the best to all of you

Marta

Taguchi <heatherhunt@...> wrote:

Hello Marta, I just want you to know that I will be praying for Zoë and all

of you during this time before the surgery. Our 7 month old, Emilia, just had

surgery a month ago. We live in Taiwan. She had a successful surgery and then

a few other things took place that kept her in the hospital for 25 days. But

she is doing really well now and so we are very thankful for this!

I'm so thrilled at your attitude about Zoë's Downs...she will continue to be a

huge blessing to all of you! In regard to her future...don't think about

tomorrow, live in today! And show her the love and acceptance now so that she

has a foundation, later in life, to stand on!! She can be used to show many

people that love comes in so many different packages!

I look forward to hearing how she does!

, Mom to Emilia (DS)

On Sep 18, 2007, at 8:00 AM, Marta Avancini wrote:

Hello everybody,

I am Marta, mother to Zoë, a cute little girl who is 9 months old.

She has Down Sindrome. We live in Brasília, the capital of Brazil.

I am married to Arian, a Dutch man who decided to start a new life in

Brazil, and also mother to o, 1,9 year.

I am part already of two lists about DS in Brazil, but I felt like

joining an international list - to exchange feelings, impressions,

information.

To have a child with DS has never been a problem for me. When I

received the news, still in the hospital, I looked outside and saw a

beautiful blue sky and I thought to myself: " This can't be anything

bad " . In fact, Zoë has brought a lot of good things to us. With her,

our family feeling has become stronger. But I do fear for her future,

for the prejudice she will, eventually, have to face.

Now we are going through a difficult time. She needs a heart

operation, because she has two " wholes " in her heart. Since she was

born we knew about her heart condition, but the exames showed that

the " wholes " were small. The exams were wrong and the whole that was

classified as " insignificant " has 12 mm. No comments. Brazil can be a

crazy country. But now we transfered her to São o, where the

health assistance is much better than in Brasília, and she is in good

hands. We believe she will be operated next week.

Thanks for allowing me (us...) in the group.

All the best

Marta

---------------------------------

Pinpoint customers who are looking for what you sell.

[Guest guest]

Kathy Robles wrote:

> Hi,

>

> Thank you for approving my membership! I am a novice soap maker and

> just made a batch of perfume paste using essential oils.

>

Hi Kathy

Welcome to the group. I'm the list mom and I know you'll find it a

friendly and helpful group -- if we can answer your questions, we will.

> I have always loved fragrance, but stayed away from many of the perfume

> counters because many of the scents gave me a raging headache. I have

> been interested in herbs and natural healing for many years, along with

> natural food, so it made sense for me to look into natural or botanical

> scents, not only for the sheer enjoyment of the fragrance, but for the

> deeply psychological benefits and healing that they give.

>

You're here for the same reason as many of us, so settle in, get into

the archives for pleasant, educational reading, and start on the NP path.

> I am looking forward to participating in the group and learning much.

>

> ~Kathy

Tell us about your perfume paste, that's a starter :-)

--

Sincerely, Anya

Anya's Garden of Natural Perfume http://AnyasGarden.com - rare and exotic

aromatics and artisan perfumes,

perfumery classes and consultation

Natural Perfumers Guild http://NaturalPerfumersGuild.com

[Guest guest]

>

> > >

> You're here for the same reason as many of us, so settle in, get into

> the archives for pleasant, educational reading, and start on the NP path.

> > I am looking forward to participating in the group and learning much.

> >

> > ~Kathy

> Tell us about your perfume paste, that's a starter :-)

Thank you for the welcome, Anya.

Well, I tried making a paste a few months ago just using beeswax and didn't like

the feel of it. So, I added a bit of castor oil and some black cumin seed oil -

melted them together with a bit of shaved amber resin. The blend of fragrance

was patchouli, clove, frank and myrrh, sandalwood, cassia, vetiver - I think I

added a couple of other things, but I was playing around and didn't keep track.

Next time, I will....I think it's heavy on the vetiver, but seems to work

alright with my own chemistry. I like spicy - both in foods and fragrance.

After reading your blog and the comments from the group, I feel a bit

intimidated - but, I am not one to back down from a challenge. This natural

perfumery is like learning a language from another culture and becoming familiar

with the food from that area. I have SO MUCH to learn - and it should be an

interesting adventure for me.

I love to cook, so I'll approach learning about natural perfumes in the same way

I learned how to cook. I am fortunate to have a friend who is a gourmet cook

and she taught me so much when I was in my 20s. I was also fortunate to live in

the SF Bay area when the wines

of Sonoma and Napa were making their mark - and the area is one of wonderful

restuarants and food sources. Foodies love it! I watched the cooking shows all

of the time and tried all different kinds of food - and started collecting

cookbooks and reading them like novels. I wish there were perfume shows on TV

or the Internet! I will begin collecting

some of the books mentioned in the files - I do have some on aromatherapy

already.

Although I've never explored the chemistry of food, I'll make a valiant attempt

not to run away like a frightened child when that comes up in the natural

perfume conversations!

Al the best,

~Kathy

[Guest guest]

Kathy-

Forgot to tell you one of my favorite things about your perfume - not

only was it long lasting, but it was beautiful. I think it was the

perfect texture and a very lovely color against the tin. It helped me

through a rough time with my mother-in-law over the holidays. Thanks

again.

Take Care,

Jess Ring

>

[Guest guest]

mother_ring wrote:

> Kathy-

> Forgot to tell you one of my favorite things about your perfume - not

> only was it long lasting, but it was beautiful. I think it was the

> perfect texture and a very lovely color against the tin. It helped me

> through a rough time with my mother-in-law over the holidays. Thanks

> again.

>

> Take Care,

> Jess Ring

This sounds lovely, Jess, what is Kathy's website? What was the perfume?

Excuse me if I missed the original post, this group has been really busy!

--

Sincerely, Anya

Anya's Garden http://AnyasGarden.com - perfumes, aromatics, classes,

consultation

Natural Perfumers Guild http://NaturalPerfumersGuild.com

1400 member Natural Perfumery group -

/

[Guest guest]

>

>

>

> Kathy-

> Forgot to tell you one of my favorite things about your perfume -

not

> only was it long lasting, but it was beautiful. I think it was the

> perfect texture and a very lovely color against the tin.

>

>

> Take Care,

> Jess Ring

>

>

>

>

> Hi Janita and Anya,

Kathy sent me a tin of her solid perfume as well as some really

beautiful sunstone earrings in trade for some Queen Sitka oil. She

is very humble about her blend as I believe it is one of her first.

She made it with a base of beeswax, castor oil, and black cumin oil.

Oils and resins used were amber shavings, vetiver, cassia, patchouli,

frankincense, mhyrr, and some other unmentioned stuff. The initial

scent is very cinnamony and powerfully sweet, but it dries down to a

really nice rounded, earthy, spicy sweet blend. the color of the

perfume is almost rootbeer brown - with a touch of olive. I love it

and it takes me to a pretty cool place when I wear it (on my ankles)-

as all of my trades have so far. I have been so overjoyed at what

everyone has offered for some spruce oil (sage tincture, wormwood,

winter lip balms (thank you sooo much mj!), helichrysum abs. (sweet-

hay-honey-sugar-green-stem-gorgeousness), blue lotus tincture,

cedarwood soap, the list goes on... These new fragrances now

characterize this rapid growth time of my life, and have connected me

to some really great people. I encourage anyone on this list to

trade - it is a great way to obtain new samples and special stuff

when funds are low, or when you just want a surprise or two.

Cheers,

Jess

Cheers

>

[Guest guest]

>

>

>

> Kathy-

> Forgot to tell you one of my favorite things about your perfume - not

> only was it long lasting, but it was beautiful. I think it was the

> perfect texture and a very lovely color against the tin.

>

>

> Take Care,

> Jess Ring

> >

>

>

> Hi Kathy

>

> Your perfume described by Jess sounds just lovely.... would like to share

with the

group what inspired you to make the perfume that you gave to Jess

> Quite fascinated by the comment about the tin.too...every good wish, Janita

>

>

This sounds lovely, Jess, what is Kathy's website? What was the perfume?

Excuse me if I missed the original post, this group has been really busy!

--

Sincerely, Anya

>>>

Hi, Janita and Anya,

Sorry for the delay in responding - just getting around to reading the digests

from the

past week! Time seems to warp speed during this season of the year!

I was touched and inspired by Jess and her story of the Queen Sitka Spruce which

had

fallen during the storms. She offered to trade some of the distillation for a

creation by

other people. I took her up on it and sent her a tin of my first attempt at a

perfumed

paste. Jess is very generous in both spirit and her praise of my perfume.

A friend of mine made a creation that I loved and I asked her to share the

recipe/

ingredients with me, which she did - but as she is so familiar with scents and

blends, she

rattled them off like I would rattle off my recipe for a killer marinara sauce -

no real

measurements as she measures " by hand " as she calls it. The result was much

spicier than

hers and the texture was different, too. For my first real attempt at blending,

it turned our

alright - I am going to play around some more with it and see what happens. The

tin was

just a metal 1 oz tin and the color of the paste was a rich brown.

Anya, I don't have a website; I wouldn't even know what to put on a website as I

am a

novice playing around right now with the art of scent - I love this group

because of the

wealth of information here and the willingness to share. It helps me get

through my basic

intimidation of the subject and for that, I am grateful.

All the best for the new year!

~Kathy

[Guest guest]

>

>

>

> Kathy-

> Forgot to tell you one of my favorite things about your perfume - not

> only was it long lasting, but it was beautiful. I think it was the

> perfect texture and a very lovely color against the tin.

>

>

> Take Care,

> Jess Ring

> >

>

>

> Hi Kathy

>

> Your perfume described by Jess sounds just lovely.... would like to share

with the

group what inspired you to make the perfume that you gave to Jess

> Quite fascinated by the comment about the tin.too...every good wish, Janita

>

>

This sounds lovely, Jess, what is Kathy's website? What was the perfume?

Excuse me if I missed the original post, this group has been really busy!

--

Sincerely, Anya

>>>

Hi, Janita and Anya,

Sorry for the delay in responding - just getting around to reading the digests

from the

past week! Time seems to warp speed during this season of the year!

I was touched and inspired by Jess and her story of the Queen Sitka Spruce which

had

fallen during the storms. She offered to trade some of the distillation for a

creation by

other people. I took her up on it and sent her a tin of my first attempt at a

perfumed

paste. Jess is very generous in both spirit and her praise of my perfume.

A friend of mine made a creation that I loved and I asked her to share the

recipe/

ingredients with me, which she did - but as she is so familiar with scents and

blends, she

rattled them off like I would rattle off my recipe for a killer marinara sauce -

no real

measurements as she measures " by hand " as she calls it. The result was much

spicier than

hers and the texture was different, too. For my first real attempt at blending,

it turned our

alright - I am going to play around some more with it and see what happens. The

tin was

just a metal 1 oz tin and the color of the paste was a rich brown.

Anya, I don't have a website; I wouldn't even know what to put on a website as I

am a

novice playing around right now with the art of scent - I love this group

because of the

wealth of information here and the willingness to share. It helps me get

through my basic

intimidation of the subject and for that, I am grateful.

All the best for the new year!

~Kathy

[Guest guest]

>

>

>>>

Hi, Janita and Anya,

A friend of mine made a creation that I loved and I asked her to share the

recipe/

ingredients with me, which she did - but as she is so familiar with scents and

blends, she

rattled them off like I would rattle off my recipe for a killer marinara sauce -

no real

measurements as she measures " by hand " as she calls it. The result was much

spicier than

hers and the texture was different, too. For my first real attempt at blending,

it turned our

alright - I am going to play around some more with it and see what happens. The

tin was

just a metal 1 oz tin and the color of the paste was a rich brown.

~Kathy

Hi Kathy

Thanks for sharing ...... I think its great .... just like a good food recipe

that your friend rattled off some ingredients for which gave you the confidence

to make up and became altered slightly with amounts and then sent as a trade

for another lovely oil ...... love that ....

has a really good synergy.....

Every good wish, Janita

Janita Haan Natural Perfume

Flowers of Myddfai project http://www.tiny.cc/flowers817

Janita's Attar http://www.janitasattars.blogspot.com

---------------------------------

Support the World Aids Awareness campaign this month with for Good

[Guest guest]

Good Lord, ita! You've been through several terrifying hoops! I'm glad you are now on the other side and recuperating. I'm glad you are able to eat and swallow and that you sound as if you are on the mend. Wishing you excellent health, Deborah

[Guest guest]

welcome to the group kyie.  i had the same experience with my daugther's first

allopathic ped.  I fired him before he got out of control on me though...

started taking her to a holistic chiro and couldn't be happier.  we are also

blessed to have a new holistic minded pediatrician on record with the insurance

company " just in case " , but we really have no use for him as our primary care

comes from chiro. 

 

since the guilt trips are going to get more intense as you continue to do

well-baby visits, i would suggest you (1) avoid well-baby visits esp. since your

child is clearly thriving... (2) start looking for a parent-choice friendlier

ped. or see a naturopath/chiro.  and (3) as far school exemptions go...  why not

use the religious exemption since it is available to you?

 

good luck.

 

ari

Arianna Mojica -   (UCC 1-207/1-103) 

~~~ " All rights not demanded are presumed waived " . ~ Thurston

~~~ " The only safe vaccine is a vaccine that is never used " -- Dr. A.

, National Institutes of Health

~~~A truth¢s initial commotion is directly proportional to how deeply the lie

was believed...When a well-packaged web of lies has been sold gradually to the

masses over generations, the truth will seem utterly preposterous and its

speaker, a raving lunatic. " Dresden

www.vaclib.org 

www.909shot.com

 http://www.vacinfo.org/

http://www.vran.org/

http://www.momtoanangel.net/ingred.htm

 

http://www.moorbows.com/

From: kylie_wright <lkylie@...>

Subject: Introducing myself

Vaccinations

Date: Wednesday, August 20, 2008, 11:05 AM

Hi All,

My name is Kylie, and I am a mother to a healthy unvaccinated 14 month old boy

who is

still breastfeeding. I live in the New york City area.

I joined this group because I am starting to get a lot of pressure to " protect "

Raffi from

diseases by vaccinating him. My pediatrician had initially been pretty okay with

our not

vaccinating, primarily because I used the word " defer " when we initially came to

see her.

Now that he is over 1 she seems to think it is time to start, and has been

scaring me with

Hib meningitis and other dread diseases. Even though I have read that breastfed

babies

rarely get this.

I am really happy to have found this group, and am avidly reading all the info

available. I

especially like that there are so many MD's weighing in on the side of not

vaccinating. I

think that there just is no information given about the dangers in med school.

My OBGYN

didn't even know about Thimerosol in vaccinations, when i asked her about

whether it was

in RoGam when i was pregnant. (Never did get an answer by the way...)

My own experience is that every single friend of mine with vaccinated kids of

the same

age has been to the emergency room by now, for either an unexplained fever, ear

infection, etc. My son has had the usual colds, stomach bugs etc, but always

recovers

pretty quick, and has never been to the ER. He's never had an ear infection.

I would welcome advice on how to deal with the school issue; I know that is just

around

the corner for us, and NY state does not have a philosophical opt-out, only

religious.

[Guest guest]

Hi Kylie, I would recommend stop going to your ped. My son is 16

months/unvaccinated and in great health. After his 6 month appt.

with a naturopath I realized it was a waste of time and money and he

hasn't been to a doctor since. He is growing just fine and is happy

so it seems pointless for me to take him. He did get sick once

right after his 1 year birthday with what I believe was roseola. He

had a strong fever for about 24 hours but then it was over without

any medications. If you don't want to give vaccines you probably

don't want to give antibiotics or any other chemical meds., so an

allopathic ped. is kind of pointless. Look for a naturopathic doc.

or chiro. as they will probably not push the vaccines.

>

> Hi All,

> My name is Kylie, and I am a mother to a healthy unvaccinated 14

month old boy who is

> still breastfeeding. I live in the New york City area.

> I joined this group because I am starting to get a lot of pressure

to " protect " Raffi from

> diseases by vaccinating him. My pediatrician had initially been

pretty okay with our not

> vaccinating, primarily because I used the word " defer " when we

initially came to see her.

> Now that he is over 1 she seems to think it is time to start, and

has been scaring me with

> Hib meningitis and other dread diseases. Even though I have read

that breastfed babies

> rarely get this.

> I am really happy to have found this group, and am avidly reading

all the info available. I

> especially like that there are so many MD's weighing in on the

side of not vaccinating. I

> think that there just is no information given about the dangers in

med school. My OBGYN

> didn't even know about Thimerosol in vaccinations, when i asked

her about whether it was

> in RoGam when i was pregnant. (Never did get an answer by the

way...)

> My own experience is that every single friend of mine with

vaccinated kids of the same

> age has been to the emergency room by now, for either an

unexplained fever, ear

> infection, etc. My son has had the usual colds, stomach bugs etc,

but always recovers

> pretty quick, and has never been to the ER. He's never had an ear

infection.

>

> I would welcome advice on how to deal with the school issue; I

know that is just around

> the corner for us, and NY state does not have a philosophical opt-

out, only religious.

>

[Guest guest]

Welcome all - so glad you are here.

I am the mother of a vaccine injured child. I stopped vaccinating my

son at 6 mos. Thankfully (what the h*** am i saying) he was falling

off the growth charts and missed milestones following the 4th month

DTap - and whatever else was shot into him that day. Before this apt.

we was starting to hold his bottle (i was breastfeeding and pumping)

but after he was simply a lump of cutness. He had a huge reaction -

the same one I've read over and over again.. the beginning of the

end. The nurse said to give him Tylenol (STUPIDITY) and that it was

normal to have dilated eyes, unconsolable screaming, arched back,

high fever. FYI. the unconsolable screaming was the pain from his

BRAIN SWELLING! I did not take him to the ER, which I knew would

have only made matters worse.

Because my boy did not progress into full blown autism - he's not

counted so any idiot who makes the claim that Autism is over

diagnosed is just another idiot. I listned to the mainstream, which

was basically a big question mark, sorry about your luck, and a

scripts to " therapy " . So I did that... but I'm no young chick - and

my bs radar was going off constantly. One day, when he was a

physical MESS, barely had 50 single unintellible words at 3.5 I got

my self into gear. I cut out all " therapy " as they are largely

working out of a 1950's playbook. Waste of time, waste of money and

so insulting.

I found myself a rescue angel (www.generationrescue.org) and the

healing and education began. My son is now 5.5 - nearly recovered

after thousands of dollars, quit my job to committ to educating

myself. We have done 80 hyperbaric oxygen dives - and about to start

40 more. This requires us to leave our home for a month - the cost

to all out of pocket. But, no therapy can come close to repairing

the brain damage. I want my kids IQ back - and hyperbaric oxygen can

do it.

So that's a abbreviated war story... so glad you Mom's are listening

to your instincts.

Also, I just had another boy - he's 6 weeks old. I wouldn't allow

vit K, or the eye stuff and certainly no vaccines. I went prepared

with my own waivers and documents... and I didn't need any of it.

The staff just let me do what I wanted w/o any hassle.

My Ped. is a young guy, and from my observation he's got a clue but

no where near where he should be. They still hand out tylenol as if

it's going out of style, and when i mentioned the link to families

with autoimmune issues he was clueless. The AMA is making huge

efforts to keep our Peds " in line " . The Ped and I have what I call a

non verbal " understanding " . I call myself a granola cruncher, he

laughs, and there is NO mention of vaccinating either of my sons ever

again.

My best advise in regard to dealing with the public is to be polite,

non confrontational and smile as you hand them your exemption. YOU

MUST know your rights, refuse to engage with anyone your reasons for

opting out. Do what you can in your state to maintain your rights to

choose. Get involved!

Mother of a Vaccine Injured / Recovering Boy 5.5 years old

>

> Hi All,

> My name is Kylie, and I am a mother to a healthy unvaccinated 14

month old boy who is

> still breastfeeding. I live in the New york City area.

> I joined this group because I am starting to get a lot of pressure

to " protect " Raffi from

> diseases by vaccinating him. My pediatrician had initially been

pretty okay with our not

> vaccinating, primarily because I used the word " defer " when we

initially came to see her.

> Now that he is over 1 she seems to think it is time to start, and

has been scaring me with

> Hib meningitis and other dread diseases. Even though I have read

that breastfed babies

> rarely get this.

> I am really happy to have found this group, and am avidly reading

all the info available. I

> especially like that there are so many MD's weighing in on the side

of not vaccinating. I

> think that there just is no information given about the dangers in

med school. My OBGYN

> didn't even know about Thimerosol in vaccinations, when i asked her

about whether it was

> in RoGam when i was pregnant. (Never did get an answer by the

way...)

> My own experience is that every single friend of mine with

vaccinated kids of the same

> age has been to the emergency room by now, for either an

unexplained fever, ear

> infection, etc. My son has had the usual colds, stomach bugs etc,

but always recovers

> pretty quick, and has never been to the ER. He's never had an ear

infection.

>

> I would welcome advice on how to deal with the school issue; I know

that is just around

> the corner for us, and NY state does not have a philosophical opt-

out, only religious.

>