Hello everyone

[Guest guest]

HI Jennie and Theresa,

Welcome to both of you. I was too lazy to write two separate e-mails! I'm a

35 year old nursing student living in western NC with my husband (8 years

tomorrow) and 2 year old son. Hope you enjoy the group. It has some wonderful

info

and tips as well as just being a fun place to hang out. Wishing you both a

pain-free (in Theresa's case for her husband too) day!

</HTML>

[Guest guest]

WELCOME TO THE GROUP;;CHANNING;; HUGS DORT FROM MICHChanning Ashbaugh <channing28270@...> wrote: Hello Everyone I am a female. I have aspergers autism. Some of my hobbies include penpalling, making new friends. Some of my interests include pets, sports, camping and movies.Hello Everyone I am looking for postal mail pen pals. I live in a Group home that has told me that I will not get any money for stamps to send any pen pals letters in the postal mail. I would enjoy haveing some

postal mail pen pals that will not mind me writeing short letters with questions only like for example:1. Do you have any pets?2. Do you like music?3. What type of Music do you like?I also would appreciate it if my postal mail pen pals can PLEASE send a stamp with their letters so I can send a return response. I also would appreciate it that people type their letters for me because I cannot read Sloppy handwriteing and cursve handwriteing.My address is Channing Ashbaugh1631 Forsythia CircleCharlotte, North Carolina 28208USAIf you would like to write meChanning

[Guest guest]

Channing and all,

You asked for a postal mail pen pal, does

that mean that you do not want email?

I would like to start a group for Autistic

youth/adults to email each other in a safe environment but do not know if there

is interest. We joined one two years ago. It was active for a month

and then no one wrote anymore.

My son is 12 and loves Weird Al music and

action movies. He loves to get email.

Please let me know if there is

interest. I would be glad to set up the group and moderate it. If

such a group exists, please let me know.

Thanks

Beckyh

From:

Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Channing Ashbaugh

Sent: Sunday, December 30, 2007

7:30 PM

To:

Autism and Aspergers Treatment

Subject: Hello

Everyone

Hello Everyone I am a female. I have aspergers autism.

Some of my

hobbies include penpalling, making new friends. Some of my interests

include pets, sports, camping and movies.

Hello Everyone I am looking for postal mail pen pals. I live in a

Group home that has told me that I will not get any money for stamps

to send any pen pals letters in the postal mail. I would enjoy

haveing some postal mail pen pals that will not mind me writeing

short letters with questions only like for example:

1. Do you have any pets?

2. Do you like music?

3. What type of Music do you like?

I also would appreciate it if my postal mail pen pals can PLEASE send

a stamp with their letters so I can send a return response.

I also would appreciate it that people type their letters for me

because I cannot read Sloppy handwriteing and cursve handwriteing.

My address is

Channing Ashbaugh

1631 Forsythia Circle

Charlotte, North Carolina 28208

USA

If you would like to write me

Channing

[Guest guest]

Hope your knee problems are better, today.

-- In LifeLift , " conistar12 " <conistar@...> wrote:

>

> I did mine! I am having knee problems,pain , creaking,-- maybe

> arthritis-not sure. Anyone know any good suggestions to help heal

> them? Connie

>

[Guest guest]

Oh Connie, sorry about the pain in the knee's. I'm sure someone here

has some good suggestions of supplements to help. My husband has bad

knees from playing too much football and he uses magnesium oil on his

knees at night and morning; then during the day he uses BioFreeze gel;

which is like a ben gay type gel but it really helps him. Then he

wears his neoprene knee brace; but under that he puts on one of those

ThermaCare knee bandages and heat helps his problem. We're all so

different regarding heat vs. ice when our knee's hurt.

Don't cross your legs; nor cross your feet over if you have your legs

up. That puts way too much strain on the knee joints. Maybe someone

can give you the accupressure point so you can press while doing some

LL breaths and bring the oxygen to the source.

Just feel better!

Love, Wanda.

>

> I did mine! I am having knee problems,pain , creaking,-- maybe

> arthritis-not sure. Anyone know any good suggestions to help heal

> them? Connie

>

[Guest guest]

Hi Wanda,

I wanted to suggest something that helps. I hurt my knees playing college

volleyball. I have found something that helps me a lot. Others have told me it

helps a lot with arthritis pain. Here is what I do.... I use a coffee cup. I

full it about 3/4 the way full with juice. I have found the best one to use is

the white grape/peach blend. I use the Wal-Mart brand. Then I put at least 1

tablespoon up to 1/2 of a foil packet of liquid pectin. I prefer the Certo

brand. When my joints are hurting, I do this twice a day until it doesn't hurt

anymore. Depending on how long I procrastinated getting started taking it, it

usually doesn't take that long to be pain free.

Anyway, it is a simple solution.

Karma

Re: Hello Everyone

Oh Connie, sorry about the pain in the knee's. I'm sure someone here

has some good suggestions of supplements to help. My husband has bad

knees from playing too much football and he uses magnesium oil on his

knees at night and morning; then during the day he uses BioFreeze gel;

which is like a ben gay type gel but it really helps him. Then he

wears his neoprene knee brace; but under that he puts on one of those

ThermaCare knee bandages and heat helps his problem. We're all so

different regarding heat vs. ice when our knee's hurt.

Don't cross your legs; nor cross your feet over if you have your legs

up. That puts way too much strain on the knee joints. Maybe someone

can give you the accupressure point so you can press while doing some

LL breaths and bring the oxygen to the source.

Just feel better!

Love, Wanda.

>

> I did mine! I am having knee problems,pain , creaking,-- maybe

> arthritis-not sure. Anyone know any good suggestions to help heal

> them? Connie

>

[Guest guest]

Connie, if you like a heat rub,Arbonne International has the best one I have

ever used! It gets extremely hot,much hotter than ben gay or flex-all 454and

you seem to forget about the pain and enjoy the warmth it causes in your muscle

and joints. If I have any type of tension headache, or muscle ache that's what

I reach for. They also have a joint formula that you can take orally which I

have not used but the rub is wonderful! The website is arbonne.com where you can

read about it and find out the ingredients.

Karma Tucker <karmatucker@...> wrote: Hi

Wanda,

I wanted to suggest something that helps. I hurt my knees playing college

volleyball. I have found something that helps me a lot. Others have told me it

helps a lot with arthritis pain. Here is what I do.... I use a coffee cup. I

full it about 3/4 the way full with juice. I have found the best one to use is

the white grape/peach blend. I use the Wal-Mart brand. Then I put at least 1

tablespoon up to 1/2 of a foil packet of liquid pectin. I prefer the Certo

brand. When my joints are hurting, I do this twice a day until it doesn't hurt

anymore. Depending on how long I procrastinated getting started taking it, it

usually doesn't take that long to be pain free.

Anyway, it is a simple solution.

Karma

Re: Hello Everyone

Oh Connie, sorry about the pain in the knee's. I'm sure someone here

has some good suggestions of supplements to help. My husband has bad

knees from playing too much football and he uses magnesium oil on his

knees at night and morning; then during the day he uses BioFreeze gel;

which is like a ben gay type gel but it really helps him. Then he

wears his neoprene knee brace; but under that he puts on one of those

ThermaCare knee bandages and heat helps his problem. We're all so

different regarding heat vs. ice when our knee's hurt.

Don't cross your legs; nor cross your feet over if you have your legs

up. That puts way too much strain on the knee joints. Maybe someone

can give you the accupressure point so you can press while doing some

LL breaths and bring the oxygen to the source.

Just feel better!

Love, Wanda.

>

> I did mine! I am having knee problems,pain , creaking,-- maybe

> arthritis-not sure. Anyone know any good suggestions to help heal

> them? Connie

>

[Guest guest]

Great tip, Karma!

Melinda )

Re: Hello Everyone

Oh Connie, sorry about the pain in the knee's. I'm sure someone here

has some good suggestions of supplements to help. My husband has bad

knees from playing too much football and he uses magnesium oil on his

knees at night and morning; then during the day he uses BioFreeze gel;

which is like a ben gay type gel but it really helps him. Then he

wears his neoprene knee brace; but under that he puts on one of those

ThermaCare knee bandages and heat helps his problem. We're all so

different regarding heat vs. ice when our knee's hurt.

Don't cross your legs; nor cross your feet over if you have your legs

up. That puts way too much strain on the knee joints. Maybe someone

can give you the accupressure point so you can press while doing some

LL breaths and bring the oxygen to the source.

Just feel better!

Love, Wanda.

>

> I did mine! I am having knee problems,pain , creaking,-- maybe

> arthritis-not sure. Anyone know any good suggestions to help heal

> them? Connie

>

[Guest guest]

WELCOME TO THE GROUP;; CHANNING HUGS DORT FROM MICH;;U.S.A.Channing Ashbaugh <channing28270@...> wrote: Hello Everyone. I am a female that has Autism- The Aspergers Form. Iam being treated meanly by people because I am looking for both postalmail and e-mail pen pals that will accept short letters with questionslike for example:1. Do you have any pets?2. Do you like music?3. What type of music do you like?And people do not want to be my pen pal.My hobbies include letter

writeing, listening to music and makeing newfriends. My interests include pets, sports, camping and movies.If you would like to be a postal mail pen pal PLEASE PROVIDE A STAMPso I can write you back because I live in a group home that has toldme that I have no money to get stamps.Please e-mail me at the e-mails below:CHANNING28270MYWAY (DOT) COMCHANNING28270GMAIL (DOT) COMCHANNING28270 (DOT) COMCHANNING79HOTMAIL (DOT) COMSOCKSCAT23HOTMAIL (DOT) COMIf you would like to be my pen pal via postal mail or e-mail. If youwould like to be my postal mail pen pal please ask me for postal mailaddress. Please let me know if you want to be a postal mail pen pal oran e-mail pen

pal.Also I would prefer to have some postal mail ONLY pen pals to fill upmy mail box because My internet goes out everytime it rains andeverytime it is hot during the Months of May, June, July, Septemberand AugustChanning

[Guest guest]

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

Hi,

I guess I should introduce myself to everyone in the group, now that I have been informed that this IS a support group for Autism/Asperger's. I am Jodie, and I live in the Los Angeles area. I am a single mom of a wonderful 13 year old son (my ASD), and an 11 year old daughter (NT, but not really!) I believe I have figured out how to fight the system, and have great accommodations in place for my son.

Right now the bain of my existence is the sibling rivalry/jealousy between my two kids. I have tried all the things everyone has ever suggested, so I wanted to know if anyone had anything different?? I spend lots of 1:1 time with my daughter (son has 44 hours of respite a month), and even 1:1 time with my son. I don't compare them, but they compare themselves. Their bickering is 24/7...or maybe 18/7 (when they are sleeping it is peaceful).

I'd appreciate any advice on this issue...it is really stressing me out!!

JodieIt's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Spiro and breast cancer???? Is this true?? Please can someone deny or

confirm as I have family history of breast cancer and have also just be

been diagnosed with DCIS!!

Helen in Scotland

>

<snip> Initially the dosage of

> spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

> minus amiloride. I continue to see a cardiologist at Greenslopes. He

> said he was reluctant to prescribe a higher dosage of spiro because of

> breast cancer risk. (My mother has survived breast cancer.)

>

<end of snip>

[Guest guest]

There have been only 25 articles in the literature I could find in

PUBMED searching breast cancer and spironolactone. You can look at

them yourself.

The abstract below is the best data I could find.

The major problem I have seen is breast biopsy done in men for

gynecomastia without asking if the pt was on gynecomastia.

Recall that breast cancer is fairly common and lots of folks take

spiro. So the prob of both occuring by chance together is a likley

9: Am J Epidemiol. 1982 Aug;116(2):329-32.

Nonestrogenic drugs and breast cancer.

son DA, Jick H, Hunter JR, Stergachis A, Madsen S.

The relation between breast cancer and selected nonestrogenic drugs was

evaluated

in the Group Health ative of Puget Sound, Seattle, Washington, a

prepaid

health care organization with computerized information on diagnoses and

outpatient drug use. No important positive associations with breast

cancer were

found in a follow-up study of 302 women aged 35-74 years. These women

were newly

diagnosed with breast cancer in 1977-1980 and were studied in relation

to

exposure in the six months prior to diagnosis to one or more of the

following

drugs: diazepam, digitalis glycosides, medroxyprogesterone acetate,

methyldopa,

metronidazole, phenothiazines, tricyclic antidepressants, thiazides,

thyroid/levothyroxine sodium, or spironolactone. A modest association

between

recent reserpine use and breast cancer was present (risk ratio = 1.7,

90%

confidence interval 0.9-3.3).

There is also a report of breast CA in a man who had been on spiro for

17 years

2: Int J Clin Oncol. 2004 Apr;9(2):130-3.

Acquired hemophilia as first manifestation of breast carcinoma in a man

under

long-term spironolactone therapy.

Lamy O, Elmiger H, Fiche M, Bauer J, Livio F.

Service of Medicine A, Department of Internal Medicine, University

Hospital,

CHUV, BH10, CH-1011, Lausanne, Switzerland. olivier.lamy@...

A 69-year-old man under long-term spironolactone therapy (16 years) was

hospitalized with spontaneous hematoma on the trunk and extremities.

Coagulation

studies disclosed an acquired hemophilia that was successfully treated

with human

factor VIII for a few days and immunosuppressive agents for several

months.

Physical examination revealed bilateral gynecomastia and an upper left

quadrant

breast nodule. Complete staging was unremarkable. Complete left

mastectomy was

performed. Histopathology showed invasive ductal carcinoma, expressing

positivity

for estrogen and progesterone receptors. The acquired hemophilia was

considered

to be a paraneoplasic syndrome. The question of a linkage between

long-term

spironolactone therapy and breast carcinoma is discussed.

On Mar 26, 2008, at 6:34 AM, Helen wrote:

> Spiro and breast cancer???? Is this true?? Please can someone deny or

> confirm as I have family history of breast cancer and have also just

> be

> been diagnosed with DCIS!!

>

> Helen in Scotland

>

>

> >

> <snip> Initially the dosage of

> > spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

> > minus amiloride. I continue to see a cardiologist at Greenslopes. He

> > said he was reluctant to prescribe a higher dosage of spiro because

> of

> > breast cancer risk. (My mother has survived breast cancer.)

> >

> <end of snip>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

[Guest guest]

Be sure you are DASHing to the max to minimize the need for any drugs

to control your PA.

See my next note on Breast CA lit search.

The Brisbane group is one of the world class experts in PA and I

suggest you contact

Recommend you contact Dr. Stowasser and get his groups opinion. Let us

know what they think. I am also forwarding this to him.

On Mar 26, 2008, at 3:03 AM, carolch58 wrote:

> Hello everyone,

> I joined this group a few years ago - 'silent partner' you might say

> as I think I have only posted once.

>

> In 2004 I was diagnosed with primary aldosteronism at Greenslopes

> Hospital in Brisbane, Australia. I then had adrenal vein sampling, but

> the result was 'inconclusive'. So I have been treated medically since

> with verapamil, amiloride and spironalactone. Initially the dosage of

> spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

> minus amiloride. I continue to see a cardiologist at Greenslopes. He

> said he was reluctant to prescribe a higher dosage of spiro because of

> breast cancer risk. (My mother has survived breast cancer.)

>

> While my BP is more acceptable, I still suffer many symptoms referred

> to by others in this group - constant fatigue, weak muscles, back

> pain, brain fogginess, reduced ability to organise/concentrate, sleep

> disturbance, breathlessness on exertion.

>

> I have sleep apnoea and use a CPAP machine. Blood tests indicate

> potassium levels at normal range. An echocardiogram has shown 'stiff

> heart'.

>

> Recently my general practice doctor diagnosed me as having chronic

> fatigue syndrome. And,of course, there is the usual diagnosis of

> depression for which I reluctantly take Lexapro.

>

> I find it tough to keep going, but am determined to do so. Thanks to

> all who share their stories and advice.

> Regards

> Carol

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

[Guest guest]

What is DCIS?

http://www.rxlist.com/ <http://www.rxlist.com/cgi/generic/spiron_wcp.htm>

Search on " Aldactone. "

" Carcinoma of the breast has been reported in patients taking spironolactone

but a cause and effect relationship has not been established.

Carcinogenesis, mutagenesis, impairment of fertility: Orally administered

spironolactone has been shown to be a tumorigen in dietary administration

studies performed in rats, with its proliferative effects manifested on

endocrine organs and the liver. In an 18-month study using doses of about

50, 150 and 500 mg/kg/day, there were statistically significant increases in

benign adenomas of the thyroid and testes and, in male rats, a dose-related

increase in proliferative changes in the liver (including hepatocytomegaly

and hyperplastic nodules). In a 24-month study in which the same strain of

rat was administered doses of about 10, 30, 100 and 150 mg

spironolactone/kg/day, the range of proliferative effects included

significant increases in hepatocellular adenomas and testicular interstitial

cell tumors in males, and significant increases in thyroid follicular cell

adenomas and carcinomas in both sexes. There was also a statistically

significant, but not dose-related, increase in benign uterine endometrial

stromal polyps in females. . "

And Inspra does not have a long enough history.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Helen

Spiro and breast cancer???? Is this true?? Please can someone deny or

confirm as I have family history of breast cancer and have also just be

been diagnosed with DCIS!!

Helen in Scotland

[Guest guest]

Again CA Breast and spiro use are both common.

Another good reason to DASH max.

On Mar 26, 2008, at 9:55 AM, Valarie wrote:

> What is DCIS?

>

> http://www.rxlist.com/

> <http://www.rxlist.com/cgi/generic/spiron_wcp.htm>

> Search on " Aldactone. "

>

> " Carcinoma of the breast has been reported in patients taking

> spironolactone

> but a cause and effect relationship has not been established.

>

> Carcinogenesis, mutagenesis, impairment of fertility: Orally

> administered

> spironolactone has been shown to be a tumorigen in dietary

> administration

> studies performed in rats, with its proliferative effects manifested

> on

> endocrine organs and the liver. In an 18-month study using doses of

> about

> 50, 150 and 500 mg/kg/day, there were statistically significant

> increases in

> benign adenomas of the thyroid and testes and, in male rats, a

> dose-related

> increase in proliferative changes in the liver (including

> hepatocytomegaly

> and hyperplastic nodules). In a 24-month study in which the same

> strain of

> rat was administered doses of about 10, 30, 100 and 150 mg

> spironolactone/kg/day, the range of proliferative effects included

> significant increases in hepatocellular adenomas and testicular

> interstitial

> cell tumors in males, and significant increases in thyroid follicular

> cell

> adenomas and carcinomas in both sexes. There was also a statistically

> significant, but not dose-related, increase in benign uterine

> endometrial

> stromal polyps in females. . "

>

> And Inspra does not have a long enough history.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Helen

>

> Spiro and breast cancer???? Is this true?? Please can someone deny or

> confirm as I have family history of breast cancer and have also just

> be

> been diagnosed with DCIS!!

>

> Helen in Scotland

>

>

[Guest guest]

Hi Carol,

Your symptoms:

" constant fatigue, weak muscles, back pain, brain fogginess, reduced ability

to organise/concentrate, sleep disturbance, breathlessness on exertion. .

Recently my general practice doctor diagnosed me as having chronic fatigue

syndrome. And, of course, there is the usual diagnosis of depression for

which I reluctantly take Lexapro. "

I had the same symptoms while severely hypothyroid. The primary symptoms I

have right now that I didn't have when hypothyroid are anxiety and inability

to sleep.

On my thyroid lists, many women have the same symptoms. Instead of PA, they

are hypothyroid. Just as those of us here go for many years trying to get

the PA diagnosis, hypothyroid people have the same problem.

It took well over nine years for me to get diagnosed hypothyroid. I had

worn long underwear, summer and winter, and bandaged my elbows with creams

(very dry skin) for nine years. I was never properly diagnosed because the

accepted " normal " range for TSH was much higher back then and my doctor

never measured my actual hormone levels - FREE T3 and FREE T4. Had he

measured the actual hormones, I doubt seriously I would have been even close

to the bottom of the range. His neglect cost me many good years with my

young children.

Perhaps you have read my references about low T3 and negative cardiac

outcomes?

Please get your TSH, FREE T3 and FREE T4 checked. You should also initially

get your thyroid antibodies measured. You might just be surprised.

Your symptoms are also what I had at extreme levels when I had a parathyroid

adenoma. Have you had calcium and PTH measured?

Have you considered switching to Inspra for your PA? If I stay on meds, I

will switch at some point.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of carolch58

Hello everyone,

I joined this group a few years ago - 'silent partner' you might say

as I think I have only posted once.

In 2004 I was diagnosed with primary aldosteronism at Greenslopes

Hospital in Brisbane, Australia. I then had adrenal vein sampling, but

the result was 'inconclusive'. So I have been treated medically since

with verapamil, amiloride and spironalactone. Initially the dosage of

spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

minus amiloride. I continue to see a cardiologist at Greenslopes. He

said he was reluctant to prescribe a higher dosage of spiro because of

breast cancer risk. (My mother has survived breast cancer.)

While my BP is more acceptable, I still suffer many symptoms referred

to by others in this group - constant fatigue, weak muscles, back

pain, brain fogginess, reduced ability to organise/concentrate, sleep

disturbance, breathlessness on exertion.

I have sleep apnoea and use a CPAP machine. Blood tests indicate

potassium levels at normal range. An echocardiogram has shown 'stiff

heart'.

Recently my general practice doctor diagnosed me as having chronic

fatigue syndrome. And,of course, there is the usual diagnosis of

depression for which I reluctantly take Lexapro.

I find it tough to keep going, but am determined to do so. Thanks to

all who share their stories and advice.

[Guest guest]

Thanks for your comments, Dr Grim. Actually it was Dr Stowasser who

signed off on the diagnosis of my PA.

I think there was a collaboration between the Greenslopes Hypertension

Unit and the Princess andra hospital team.

While I have consciously avoided salt and salted foods, I haven't

followed the DASH to the letter. I now have the book, so will

now do this.

Is the dosage of spiro determined by the aldosterone renin ratio?

What do you consider to be a 'usual' dosage of spiro? (if such a thing

exists)

Thanks

Carol

Clarence Grim wrote:

>

> Be sure you are DASHing to the max to minimize the need for any drugs

> to control your PA.

>

> See my next note on Breast CA lit search.

>

> The Brisbane group is one of the world class experts in PA and I

> suggest you contact

>

> Recommend you contact Dr. Stowasser and get his groups opinion. Let us

> know what they think. I am also forwarding this to him.

> On Mar 26, 2008, at 3:03 AM, carolch58 wrote:

>

> > Hello everyone,

> > I joined this group a few years ago - 'silent partner' you might say

> > as I think I have only posted once.

> >

> > In 2004 I was diagnosed with primary aldosteronism at Greenslopes

> > Hospital in Brisbane, Australia. I then had adrenal vein sampling, but

> > the result was 'inconclusive'. So I have been treated medically since

> > with verapamil, amiloride and spironalactone. Initially the dosage of

> > spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

> > minus amiloride. I continue to see a cardiologist at Greenslopes. He

> > said he was reluctant to prescribe a higher dosage of spiro because of

> > breast cancer risk. (My mother has survived breast cancer.)

> >

> > While my BP is more acceptable, I still suffer many symptoms referred

> > to by others in this group - constant fatigue, weak muscles, back

> > pain, brain fogginess, reduced ability to organise/concentrate, sleep

> > disturbance, breathlessness on exertion.

> >

> > I have sleep apnoea and use a CPAP machine. Blood tests indicate

> > potassium levels at normal range. An echocardiogram has shown 'stiff

> > heart'.

> >

> > Recently my general practice doctor diagnosed me as having chronic

> > fatigue syndrome. And,of course, there is the usual diagnosis of

> > depression for which I reluctantly take Lexapro.

> >

> > I find it tough to keep going, but am determined to do so. Thanks to

> > all who share their stories and advice.

> > Regards

> > Carol

> >

> >

> May your pressure be low!

>

> CE Grim BS, MS, MD

> High Blood Pressure Consulting

> Specializing in Difficult to Manage High Blood Pressure

> Consult the following at for details

> bloodpressureline

> hyperaldosteronism

>

>

[Guest guest]

Hello Val,

Many thanks for your suggestions re hypothyroid and parathyroid

problems. I'll raise this with my GP.

I don't think I have had these checked.

> Perhaps you have read my references about low T3 and negative cardiac

> outcomes?

I would appreciate seeing these. Where should I look?

> Have you considered switching to Inspra for your PA?

Inspra is not available for this condition in Australia.

Regards

Carol

Valarie wrote:

>

> Hi Carol,

>

> Your symptoms:

>

> " constant fatigue, weak muscles, back pain, brain fogginess, reduced

> ability

> to organise/concentrate, sleep disturbance, breathlessness on exertion. .

> Recently my general practice doctor diagnosed me as having chronic fatigue

> syndrome. And, of course, there is the usual diagnosis of depression for

> which I reluctantly take Lexapro. "

>

> I had the same symptoms while severely hypothyroid. The primary symptoms I

> have right now that I didn't have when hypothyroid are anxiety and

> inability

> to sleep.

>

> On my thyroid lists, many women have the same symptoms. Instead of PA,

> they

> are hypothyroid. Just as those of us here go for many years trying to get

> the PA diagnosis, hypothyroid people have the same problem.

>

> It took well over nine years for me to get diagnosed hypothyroid. I had

> worn long underwear, summer and winter, and bandaged my elbows with creams

> (very dry skin) for nine years. I was never properly diagnosed because the

> accepted " normal " range for TSH was much higher back then and my doctor

> never measured my actual hormone levels - FREE T3 and FREE T4. Had he

> measured the actual hormones, I doubt seriously I would have been even

> close

> to the bottom of the range. His neglect cost me many good years with my

> young children.

>

> Perhaps you have read my references about low T3 and negative cardiac

> outcomes?

>

> Please get your TSH, FREE T3 and FREE T4 checked. You should also

> initially

> get your thyroid antibodies measured. You might just be surprised.

>

> Your symptoms are also what I had at extreme levels when I had a

> parathyroid

> adenoma. Have you had calcium and PTH measured?

>

> Have you considered switching to Inspra for your PA? If I stay on meds, I

> will switch at some point.

>

> Val

>

> From: hyperaldosteronism

> <mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

> <mailto:hyperaldosteronism%40>] On Behalf Of carolch58

>

> Hello everyone,

> I joined this group a few years ago - 'silent partner' you might say

> as I think I have only posted once.

>

> In 2004 I was diagnosed with primary aldosteronism at Greenslopes

> Hospital in Brisbane, Australia. I then had adrenal vein sampling, but

> the result was 'inconclusive'. So I have been treated medically since

> with verapamil, amiloride and spironalactone. Initially the dosage of

> spiro was 12.5 mg. Since last year it is 25mg, plus irbesartan and

> minus amiloride. I continue to see a cardiologist at Greenslopes. He

> said he was reluctant to prescribe a higher dosage of spiro because of

> breast cancer risk. (My mother has survived breast cancer.)

>

> While my BP is more acceptable, I still suffer many symptoms referred

> to by others in this group - constant fatigue, weak muscles, back

> pain, brain fogginess, reduced ability to organise/concentrate, sleep

> disturbance, breathlessness on exertion.

>

> I have sleep apnoea and use a CPAP machine. Blood tests indicate

> potassium levels at normal range. An echocardiogram has shown 'stiff

> heart'.

>

> Recently my general practice doctor diagnosed me as having chronic

> fatigue syndrome. And,of course, there is the usual diagnosis of

> depression for which I reluctantly take Lexapro.

>

> I find it tough to keep going, but am determined to do so. Thanks to

> all who share their stories and advice.

>

>

[Guest guest]

the usual dose of spiro is enough to get the BP and K to goal. this

can range from 12.5/d to 400/day. the ratio or the aldo level do not

appear to be predictive.

So its trial and error. Monitor your BP at home preferably with a

device you listen with a stethoscope. You can get a video on how to do

this by looking at sharedcareinc.com and then contacting Carlene Grim

SpDN at bpstandard@.... She is my wife and the world's expert on

teaching people how to take BP correctly.

On Mar 26, 2008, at 6:36 PM, Carol Christie wrote:

> Thanks for your comments, Dr Grim. Actually it was Dr Stowasser who

> signed off on the diagnosis of my PA.

> I think there was a collaboration between the Greenslopes Hypertension

> Unit and the Princess andra hospital team.

>

> While I have consciously avoided salt and salted foods, I haven't

> followed the DASH to the letter. I now have the book, so will

> now do this.

>

> Is the dosage of spiro determined by the aldosterone renin ratio?

> What do you consider to be a 'usual' dosage of spiro? (if such a thing

> exists)

> Thanks

> Carol

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Specializing in Difficult to Manage High Blood Pressure

Consult the following at for details

bloodpressureline

hyperaldosteronism

[Guest guest]

Good Girl Connie!!!!! Which walk did you do? She has a couple of newer

ones out that I really enjoy. One is the 5 mile walk... you can do 1 to 5 mls. I

normally do 3 mls.. The other one is Walk Away Your Waistline. This one comes

with the walk belt. It's so much fun!!!!! :-)

Love, Liz

_____________________________________________________________

Click to create your dream holiday trip now.

http://thirdpartyoffers.juno.com/TGL2121/fc/Ioyw6i3nJgyabOdHF9B2SrS4Omov63MNxpPJ\

sppXjMXmlbLY5CoDpB/

[Guest guest]

Oh Liz! I don't have the new ones. Must put it on my list! I did the christian

2 mile walk. I also have weighted balls, and strap. I need to get the 5 mile

and up mine to 3 miles! And I love doing life lift on the ball, don't you? It

is easier for me than standing or sitting, I sometimes have back problems. I am

doing Reflexology at night. I sleep so much better when I do, and since I will

me at Mom's I especially need it.

Hugs, Connie

-------------- Original message --------------

From: " lizkins9@... " <Lizkins9@...>

Good Girl Connie!!!!! Which walk did you do? She has a couple of newer

ones out that I really enjoy. One is the 5 mile walk... you can do 1 to 5 mls. I

normally do 3 mls.. The other one is Walk Away Your Waistline. This one comes

with the walk belt. It's so much fun!!!!! :-)

Love, Liz

__________________________________________________________

Click to create your dream holiday trip now.

http://thirdpartyoffers.juno.com/TGL2121/fc/Ioyw6i3nJgyabOdHF9B2SrS4Omov63MNxpPJ\

sppXjMXmlbLY5CoDpB/

[Guest guest]

Dear Connie,

You are sure doing well. Keep up the grand work.

I will be praying for your Mom.

Love, Wanda.

>

> Did my 2 mile walk with Sansone. And my Life Lift on the ball.

> Ate very well yesterday and with God's help will today.

> My mother is having hip replacement tomorow, please pray for her.

>

> Thanks Connie

>

[Guest guest]

In a message dated 4/15/2008 9:09:32 P.M. Pacific Daylight Time, dj_1022_3_3@... writes:

The last few weeks hasnt been good for me I"ll loose a few pounds and the next week I gain it back I do the same thing everyday.

If you are doing the same thing everyday and the scale isn't doing <much> for you, I would recommend changing things up: eating more calories for a few days, then changing them again to lower, change your exercise, or something. Maybe your body is just learning to live efficiently with what you are doing?

Shrugs. Don't know for sure, those are just two things I would do if it were me.

(( HUGS ))

in WA310/249.0/170 (-61 total, 79 to go, 9 from half-way point) I'm not telling you it's going to be easy, I'm telling you it's going to be worth it! -Art It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Hi Shera, I know where you're coming from. My son also has Aspergers. He's 8 1/2, he loves to play with other kids but only much younger one like 3 or 4 yos, because they're on the same level. He tries to talk to the older kids, but they tend to ignore him or make fun of him, which he doesn't usually pick up on.

Hello Everyone

Hi, I'm new here. To be honest, I can't remember whether I introducedmyself or not! If I have...ignore this!I am in the middle of moving so life is crazy right now. I live inKingston and am a 32 year old single mom. My 7 year old daughter wasrecently diagnosed with Aspergers and I am completely confused. She issweet, innocent, loves to sing (sings all the time), a bit obsessive,extremely emotional, a bit young for her age and adores Barney. Shealready had a diagnosis of Developmental Coordination Disorder. Thething that is confusing me is that she is a social butterfly. Ithought kids with Aspergers were not social at all? She just says thewrong things at the wrong times, doesn't really interact well andtakes everything as though people don't like her. I'm so confused as to what is happening with her. Does anyone elseexperience this? One doctor suggested changing the diagnosis to PDDbut

she is concerned that my daughter won't get the help she needs ifshe does that.I am happy to be here and eager to learn!Shera

[Guest guest]

Hello Wanda

I can't believe Aug is half gone, either. Seems like this year just

started. I am not doing too well with my reflexology the last couple of

days. How are coming along with the book?

-- In LifeLift , " winwithlifelift " <winwithlifelift@...>

wrote:

>

> I hope everyone is doing great. And the August goals are going well

> too.

>

> I'm right on target with my August goals; and I can't believe half of

> the month is gone already.

>

> How are you all doing on your personal goals?

>

> Hugs,

> Wanda

>