weight gain

April 13, 2006

Dear ,

I am so sorry you are this extremely sick. Probably weight loss is not

your first concern. I know the people I have known who are as sick as

you have had some success with having someone take them to a warm

swimming pool and help them in the water. Once in water up to your

neck you want to just stand there - don't overdo or stay to long.

Remember you have to get back out of the pool and get home.

The other thing that Dr. Cheney used to recommend was a swing, I think

called a rebounder. You sit in it and gently bounce up and down for a

bit. These chairs used to be quite expensive, but you may be able to

get one on ebay or custom made. They look like a giant baby's bouncer

that you hang from a beam, but they have their own metal frame that

holds the chair and adult weight.

These two activities may help you eventually be able to function out

of bed a bit longe each day.

Have you had a clear diagnosis of what might be the underlying cause

of your severe illness?

a Carnes

>

> Hi All,

>

> I lowered my metabolism when I was unable to eat for 4 months. I

have

> gained 30lbs on top of a gradual weight gain of 10lbs per yr. I am

in

> bed 24/7 so how is it possible to lose weight while in bed and

unable

> to exercise at all, including walking.

>

> Any ideas?

>

> L

April 13, 2006

Hi a,

Thank you for your ideas, I appreciate your tone of compassion. The

last exercise I did was in a therapy pool and I received Watsu and I

did some gentle walking. But for some reason I believe it was the Watsu

that began the intractable neurological pain episodes that have plagued

me. It could have been moving the mercury to my brain. Who knows... but

it is a drag. Watsu is where your are held in the arms of your physical

therapist and you are swished back and forth in the water. It is

extremely intoxicating, the therapist uses magic moves that allow her

to move me into many different postures while swishing through the

water.

I was thinking about the bounce back chair that Dr Cheney recommended

just recently. I think I will put the word out that I would like to buy

one used from past Cheney patients.

The thing that destroyed my health was an amalgam removal from a site

in my mouth that had a root canal surgically packed with mercury from

above the tooth-line in the gum in 1969 ( right after Woodstock : ) and

in late 2002 (it was a front tooth) the tooth snapped off and so my

dentist with his cavitat machine surmised it was filled with infection

so he had that area cleaned out with the tooth removed, the necrotic

bone, the mercury and infection was released into my body. I listened

to my dentist who convinced me it was urgent to move on this, I did and

I was unprotected by either an antibiotic or a dental dam.

I was a 30% functioning PWCFID before the mouth was opened up. After

that, I had chest pain and hyperventilation and I slid down hill. I

have cardiomyopathy and a very low cardiac output, supine, of 3.3. I

could write about lots of ways I am unwell, but I think the heart and

mercury are my primary underlying issues.

Thanks for your ideas, a,

Blessings -

L

On Apr 13, 2006, at 8:54 PM, pjeanneus wrote:

> Dear ,

> I am so sorry you are this extremely sick. Probably weight loss is not

> your first concern. I know the people I have known who are as sick as

> you have had some success with having someone take them to a warm

> swimming pool and help them in the water. Once in water up to your

> neck you want to just stand there - don't overdo or stay to long.

> Remember you have to get back out of the pool and get home.

>

> The other thing that Dr. Cheney used to recommend was a swing, I think

> called a rebounder. You sit in it and gently bounce up and down for a

> bit. These chairs used to be quite expensive, but you may be able to

> get one on ebay or custom made. They look like a giant baby's bouncer

> that you hang from a beam, but they have their own metal frame that

> holds the chair and adult weight.

>

> These two activities may help you eventually be able to function out

> of bed a bit longe each day.

>

> Have you had a clear diagnosis of what might be the underlying cause

> of your severe illness?

>

> a Carnes

>

> >

> > Hi All,

> >

> > I lowered my metabolism when I was unable to eat for 4 months. I

> haveÂ

> > gained 30lbs on top of a gradual weight gain of 10lbs per yr. I am

> inÂ

> > bed 24/7 so how is it possible to lose weight while in bed and

> unableÂ

> > to exercise at all, including walking.

> >

> > Any ideas?

> >

> > L

>

> This list is intended for patients to share personal experiences with

> each other, not to give medical advice.Â If you are interested in any

> treatment discussed here, please consult your doctor.

>

April 14, 2006

>

I don't think it is true that everyone with CFS is completely unable

to exercise all the time. Maybe some people never can, and some

people can at some times and not at other times.

>>Even if people were to just try 5 minutes a day of a very slow

walk, I think it could make a big difference in keeping that

metabolism from slowing down. And just because you are too sick to

clean the house or go shopping doesn't mean you can't walk on a

treadmill slow for 5 miniutes;

>>I'm sure there are some who truly can't do anything, but I think a

lot of people could benefit from a little, mild exercise.

>

***Hi Doris - I totally agree with you. On the days that I can I

either do a slow walk on the treadmill or head outside and do a bit

of gardening. On the days that I can't, then I don't. I feel that

this is why I sleep fairly well at night, and I don't suffer

from " Brain-fog " to the degree that others with CFS do.

I also find weight resistance exercises hard to do. I never seem to

be able to increase the resistance, or to go much beyond five

minutes. I believe it is Rich who says that we are better off doing

this type of exercise, as opposed to doing aerobic exercise.

When I was first diagnosed my doctor didn't want me getting any

exercise, and I was to have a two hour nap in the afternoon. After

four months I couldn't think and I was turning into a zombie. At this

point my doctor agreed that her advise probably wasn't the best and

changed her mind about me getting complete rest.

I know that this view isn't popular with a lot of CFSers, however, I

don't buy into a lot of what we have been told to believe over the

years. Who knows, maybe in the end I will be proven wrong, but until

then I try to live as " normally " as possible given my limitations.

Take care.

Bernie

April 16, 2006

Isn't that the worst? I've lost about 80 pounds with a very low-carb diet and

treating yeast. Still have 50 to go . . . and I've gained back some because the

past couple months have been weird with changing around my candida treatments

and my stomach being weird and trying to add Recup with sugar and everything.

Trina

patricia <pcmattes@...> wrote:

I think I am beginning to feel better, after a diagnosis of lupus and fibro

for about 15 years. My problem now is that I have gained over 100 pounds and am

having a difficult time getting it off. Has anyone been successful in losing

weight? I am still recovering from a broken ankle and damaged joint going on 9

months so walking is difficult. But my appetite is still over of control. I need

to eat less.

Pat

April 16, 2006

I am going to have to stop eating so many carbs. I just wish there was something

to curve the appetite.

Re: weight gain

Isn't that the worst? I've lost about 80 pounds with a very low-carb diet and

treating yeast. Still have 50 to go . . . and I've gained back some because the

past couple months have been weird with changing around my candida treatments

and my stomach being weird and trying to add Recup with sugar and everything.

Trina

patricia <pcmattes@...> wrote:

I think I am beginning to feel better, after a diagnosis of lupus and fibro

for about 15 years. My problem now is that I have gained over 100 pounds and am

having a difficult time getting it off. Has anyone been successful in losing

weight? I am still recovering from a broken ankle and damaged joint going on 9

months so walking is difficult. But my appetite is still over of control. I need

to eat less.

Pat

April 16, 2006

I find fiber is the best curb for appetite. Just stuff yourself on vegetables,

fruits, and whole grain wheat or rice. Apples work the best for me. Even

bananas. One has only 100 calories, but is filling. You can even use Citrucel

or Metamucil. There are also many high fiber cereals on the market.

Re: weight gain

Isn't that the worst? I've lost about 80 pounds with a very low-carb diet

and treating yeast. Still have 50 to go . . . and I've gained back some because

the past couple months have been weird with changing around my candida

treatments and my stomach being weird and trying to add Recup with sugar and

everything.

Trina

patricia <pcmattes@...> wrote:

I think I am beginning to feel better, after a diagnosis of lupus and

fibro for about 15 years. My problem now is that I have gained over 100 pounds

and am having a difficult time getting it off. Has anyone been successful in

losing weight? I am still recovering from a broken ankle and damaged joint going

on 9 months so walking is difficult. But my appetite is still over of control. I

need to eat less.

Pat

April 16, 2006

Trina

Can you work out?

That is a huge weight loss, good luck with the final 50

L

On Apr 16, 2006, at 5:26 PM, Katrina Tangen wrote:

> Isn't that the worst? I've lost about 80 pounds with a very low-carb

> diet and treating yeast. Still have 50 to go . . . and I've gained

> back some because the past couple months have been weird with changing

> around my candida treatments and my stomach being weird and trying to

> add Recup with sugar and everything.

> Â Â

> Â Trina

>

> patricia <pcmattes@...> wrote:

> Â

> Â I think I am beginning to feel better, after a diagnosis of lupus

> and fibro for about 15 years. My problem now is that I have gained

> over 100 pounds and am having a difficult time getting it off. Has

> anyone been successful in losing weight? I am still recovering from a

> broken ankle and damaged joint going on 9 months so walking is

> difficult. But my appetite is still over of control. I need to eat

> less.

>

> Â Pat

>

April 16, 2006

--U might try this to help curb your apetite. right before eating

your main meal drink 2 T. of vinegar. I drink it in the the form of

pickle juice. I read a very small synopsis of a study where they

gave healthy males 2 T. of vinegar to drink right before giving them

a piece of white bread to eat. It increased feelings of fullness

after eating and decreased by 20% their insulin and blood sugar

levels . I have been doing this since i read this. it really helps.

zuzu

In , " patricia " <pcmattes@...> wrote:

>

> I am going to have to stop eating so many carbs. I just wish there

was something to curve the appetite.

> Re: weight gain

>

> Isn't that the worst? I've lost about 80 pounds with a very low-

carb diet and treating yeast. Still have 50 to go . . . and I've

gained back some because the past couple months have been weird with

changing around my candida treatments and my stomach being weird and

trying to add Recup with sugar and everything.

>

> Trina

>

> patricia <pcmattes@...> wrote:

>

> I think I am beginning to feel better, after a diagnosis of

lupus and fibro for about 15 years. My problem now is that I have

gained over 100 pounds and am having a difficult time getting it off.

Has anyone been successful in losing weight? I am still recovering

from a broken ankle and damaged joint going on 9 months so walking is

difficult. But my appetite is still over of control. I need to eat

less.

>

> Pat

>

April 16, 2006

Thanks...I will try this!

Re: weight gain

>

> Isn't that the worst? I've lost about 80 pounds with a very low-

carb diet and treating yeast. Still have 50 to go . . . and I've

gained back some because the past couple months have been weird with

changing around my candida treatments and my stomach being weird and

trying to add Recup with sugar and everything.

>

> Trina

>

> patricia <pcmattes@...> wrote:

>

> I think I am beginning to feel better, after a diagnosis of

lupus and fibro for about 15 years. My problem now is that I have

gained over 100 pounds and am having a difficult time getting it off.

Has anyone been successful in losing weight? I am still recovering

from a broken ankle and damaged joint going on 9 months so walking is

difficult. But my appetite is still over of control. I need to eat

less.

>

> Pat

>

April 17, 2006

Thanks! No, no exercise for me.

Lucey <susan.lucey@...> wrote: Trina

Can you work out?

That is a huge weight loss, good luck with the final 50

L

On Apr 16, 2006, at 5:26 PM, Katrina Tangen wrote:

> Isn't that the worst? I've lost about 80 pounds with a very low-carb

> diet and treating yeast. Still have 50 to go . . . and I've gained

> back some because the past couple months have been weird with changing

> around my candida treatments and my stomach being weird and trying to

> add Recup with sugar and everything.

> Â Â

> Â Trina

>

> patricia <pcmattes@...> wrote:

> Â

> Â I think I am beginning to feel better, after a diagnosis of lupus

> and fibro for about 15 years. My problem now is that I have gained

> over 100 pounds and am having a difficult time getting it off. Has

> anyone been successful in losing weight? I am still recovering from a

> broken ankle and damaged joint going on 9 months so walking is

> difficult. But my appetite is still over of control. I need to eat

> less.

>

> Â Pat

>

April 17, 2006

From: " patricia " pcmattes@...

Date: Sun Apr 16, 2006 4:02pm(PDT)

Subject: Re: weight gain

I am going to have to stop eating so many carbs. I just wish there was

something to curve the appetite.

>>>>>> Try virgin coconut oil and more protein.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

May 11, 2006

Tara -

I don't have the exact answer to your question, but I've been

pondering it while doing my HIIT, and I wanted to make a couple of

comments.

From reading your posts thru the weeks, I know how afraid you are

that you'll lose control and gain too much too fast. I'd like to

suggest that it isn't an EITHER/OR situation (either you are losing

or you are out-of-control, either you are eating as you are now or

you are eating junk).

There are easy transitions that you can make to bring up your

calories to maintenance level, and then above, to put on some muscle

& fat. Here are some examples:

- increase your use of whole eggs rather than just whites

- peanut butter in your shakes

- peanut butter in celery with some raisins

- add nuts

- add avocado

- add red meat

- add dark chicken/turkey

- salmon

- olive oil to your vegs and other cooking

This way, you are still eating whole, healthy foods, but you are

augmenting them with some fat and therefore calories.

HTH

n

>

> What would be a good rate to gain every week? I've finally

decided that I really should gain some muscle and fat. I'm down to

about 115 and my bodyfat is probably under 10, b/c tanita is saying

13%. I have been eating around 1600 calories a day, and my

metabolism has probably slowed down. I'm afraid that if I gain

weight too fast, I'll freak out and start restricting calories

again. Any recommendations for how many calories I should add every

week and how much I should be gaining a week? I'd like to get to 125

with 14 or 15% bodyfat.

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

May 11, 2006

Tara,

I don't know if this will help raise your fat, but Bill

recommends adding an extra porition of carbs to your first three

meals each day for adding mass. Check out:

http://www.bodyforlife.com/exercise/calcalc.asp

I would add extra fats too, like maybe having avacodos with your

salads and make sure to add some sort of fat to each meal. You also

mentioned in another post that you do cardio 4 x per week, maybe you

could cut back to 3 x.

>

> What would be a good rate to gain every week? I've finally

decided that I really should gain some muscle and fat. I'm down to

about 115 and my bodyfat is probably under 10, b/c tanita is saying

13%. I have been eating around 1600 calories a day, and my

metabolism has probably slowed down. I'm afraid that if I gain

weight too fast, I'll freak out and start restricting calories

again. Any recommendations for how many calories I should add every

week and how much I should be gaining a week? I'd like to get to 125

with 14 or 15% bodyfat.

>

May 11, 2006

I also wanted to comment on this issue. A friend of mine, professional dancer,

tried many

times to get pregnant, and wasnt able to until her doctor told her she needed to

increase

her body fat. On all counts, this woman is serious about the health of her

body! So she ate

more healthy fats like nuts.

She just delivered her healthy baby about 2 weeks ago!

> >

> > What would be a good rate to gain every week? I've finally

> decided that I really should gain some muscle and fat. I'm down to

> about 115 and my bodyfat is probably under 10, b/c tanita is saying

> 13%. I have been eating around 1600 calories a day, and my

> metabolism has probably slowed down. I'm afraid that if I gain

> weight too fast, I'll freak out and start restricting calories

> again. Any recommendations for how many calories I should add every

> week and how much I should be gaining a week? I'd like to get to 125

> with 14 or 15% bodyfat.

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US (and

> 30+ countries) for 2¢/min or less.

> >

May 11, 2006

I have started adding natural PB to shakes and I've started taking a TBSP of

UDOs every day. We'll see how that goes.

n wrote: Tara -

I don't have the exact answer to your question, but I've been

pondering it while doing my HIIT, and I wanted to make a couple of

comments.

From reading your posts thru the weeks, I know how afraid you are

that you'll lose control and gain too much too fast. I'd like to

suggest that it isn't an EITHER/OR situation (either you are losing

or you are out-of-control, either you are eating as you are now or

you are eating junk).

There are easy transitions that you can make to bring up your

calories to maintenance level, and then above, to put on some muscle

& fat. Here are some examples:

- increase your use of whole eggs rather than just whites

- peanut butter in your shakes

- peanut butter in celery with some raisins

- add nuts

- add avocado

- add red meat

- add dark chicken/turkey

- salmon

- olive oil to your vegs and other cooking

This way, you are still eating whole, healthy foods, but you are

augmenting them with some fat and therefore calories.

HTH

n

>

> What would be a good rate to gain every week? I've finally

decided that I really should gain some muscle and fat. I'm down to

about 115 and my bodyfat is probably under 10, b/c tanita is saying

13%. I have been eating around 1600 calories a day, and my

metabolism has probably slowed down. I'm afraid that if I gain

weight too fast, I'll freak out and start restricting calories

again. Any recommendations for how many calories I should add every

week and how much I should be gaining a week? I'd like to get to 125

with 14 or 15% bodyfat.

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

May 11, 2006

My doctor has also said the same thing about my body fat levels.

beijobear wrote: I also wanted to comment on this issue.

A friend of mine, professional dancer, tried many