weight gain

[Guest guest]

Hi Glenda.

You wrote:

" However the point of this email is that I have been complaining now for 2

>years about the horrendous weight gain I've suffered. My doctor has just

>passed this off as well you have to expect to gain weight as you get

>older, my specialist kept insisting that if we got the more important

>problems of fatigue, etc under control, this would bring my metabolism back

>into line and I would lose the weight, and a post to another CFS list got

>the response to try and accept my body and love it how it was!

>

>Eventually I became very assertive about this with my specialist and

>started discussing things I had gleaned from 's list and elsewhere

>with him - he even asked for copies of the stuff I was getting off the

>Internet and eventually agreed to run some tests. To cut a long story short

>we have now discovered that my body is pumping out 3 times the average

>amount of cortisol! "

I have been trying to lose weight for about three years. Everything that

worked in the past won't even budge more than 15 lbs. at a time. My

wonderful doctor (mentioned in another e-mail) told me that he would put me

on a diet pill and that would help me lose weight and give me energy. He

hasn't got a clue!!!!! I've thought all the time that this 'stubborn fat'

had something to do with my not feeling well. But after learning what you

did about yours, what can be done about it? Misery like company and it is

comforting that 'this' it NOT all in my head.

I'll be watching and reading to see what happens with this. Thanks for

sharing. you have restored my faith in my own sanity. don't have any in my

doctor's though!!!

Judi

[Guest guest]

Hi Marcia,

You wrote:

" Has anyone on this list had the testing done for " sticky blood " and/or

tried the recommended heparin treatment???? "

Is 'sticky blood' what is keeping us from losing this weight?

Judi

[Guest guest]

One of the answers to weight gain may be found in the work Hemex is doing.

When the walls get built up with too much fibrenagin, they don't allow the

blood through correctly and this also traps fatty particles......you're not

processing them correctly!

Gail

[Guest guest]

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> One of the answers to weight gain may be found in the work Hemex is doing.

> When the walls get built up with too much fibrenagin, they don't allow the

> blood through correctly and this also traps fatty particles......you're not

> processing them correctly!

> Gail

>

I have the same problem, the weight just keeps piling up, not eating anything

fun or interesting. VERY frustrating. I also find it frustrating they don't

consider this an important symptom in

conjunction with all our other body changes.

Has anyone on this list had the testing done for " sticky blood " and/or tried the

recommended heparin treatment????

Marcia

[Guest guest]

My specialist has just run a dexamethasone surpression test (I hope that is

the correct title of the test) to see if Cushings is a possibility - won't

know the results until 5 May. He has also said we have to eliminate the

possibility of a tumor and he has suggested seeing an endinocrinologist

(sp). So now that the original tests have shown that there is something

wrong he seems to be moving in the right direction. It is just that I have

found that I get a lot further along when I see him if I already have some

knowledge of what it is all about and can discuss the situation

intelligently and maybe even suggest something that has come up on this

list he may not be aware of.

The other point is that cortisol can affect cognitive functions which is an

important consideration for someone trying to struggle through a PhD and

hence my frustration. If the weight gain had been taken seriously earlier....

Many thanks to all for the support.

>

>Please exclude Cushings disease or Cushings syndrome.

>

>C.Tab. wrote:

>

[Guest guest]

In a message dated 4/26/99 12:45:54 AM Eastern Daylight Time,

mgrahn@... writes:

<< Has anyone on this list had the testing done for " sticky blood " and/or

tried the recommended heparin treatment???? >>

Aside from those on the first (pilot) trial, others have just begun so it's

too new to yet tell, although some have said, at a few weeks, they already

feel improvement....waiting to see!

[Guest guest]

In a message dated 4/26/99 5:56:53 PM Eastern Daylight Time,

sco338@... writes:

<< period of time (weeks to months). It is hard to measure the rheology of

the blood and takes specialized hematologic

equipment. >>

That's exactly what the laboratory is using, according to their website.

They usually recommend low molecular weight heparin but some patients take

coumadin according to their test results and their own reaction. They're

tested regularly. The doctors decide whether or not to put them on the

protocol. The laboratory just will make reccommendations. You can see thier

website (though it's not up-to-date) at hemex.com.

[Guest guest]

Marcia, the purpose of the heparin, or anything used for DIC in CFIDS is not

to just thin the blood, but to break up the thickening endothelial cells that

line the parts in your body that carry blood.

Gail

[Guest guest]

Look up the Hawthorne effect Gail. Many treatments will seem to work for a short

period of time (weeks to months). It is hard to measure the rheology of the

blood and takes specialized hematologic

equipment. Many disorders can thicken the blood including MIs, certain

connective tissue disease and even stress problems. Vitamin E and ASA are the

traditional mild blood thinners. Heparin usually

made from porcine and bovine sources carry risks and whoever is doing that work

must legally be responsible for a proper informed consent. One baby asa a day

usually has little risk unless your ASA

allergic, asthmatic or have a documented ulcer problem.

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 4/26/99 12:45:54 AM Eastern Daylight Time,

> mgrahn@... writes:

>

> << Has anyone on this list had the testing done for " sticky blood " and/or

> tried the recommended heparin treatment???? >>

> Aside from those on the first (pilot) trial, others have just begun so it's

> too new to yet tell, although some have said, at a few weeks, they already

> feel improvement....waiting to see!

>

> ------------------------------------------------------------------------

> You can now easily share photos and documents with your fellow list members

> http://www.ONElist.com

> Check out our homepage for details on how to use our new shared files feature!

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

In a message dated 4/26/99 7:50:55 PM Eastern Daylight Time,

sco338@... writes:

<< I personally don't use these

things much because they don't work well with FM. Instead I use osteopathic

treaments, chinese massage, flaxseed oil, bromelein and herbs plus Jungian

hypnotherapy occasionally. MIND-BODY-SPIRIT.

>>

We have a D.O. in our group who has a huge FM patient population. His child

has had CFIDS for over four years. He's used everything that ever worked for

FM on his child. Nothing has helped and she is still bedridden and unable

to attend school or do anything. The few things that have been of help have

been things that he does not use but her pediatrician recommended. Guess it's

just another case for everyone being different.

Gail

[Guest guest]

You're tight but it is important to stay calm, be balanced and at peace with

your soul for maximum healing. Even if you end up with a disorder other than

CFIDS, you will have a more clear answer.

Smile.

Glenda re wrote:

> From: Glenda re <g.carriere@...>

>

> My specialist has just run a dexamethasone surpression test (I hope that is

> the correct title of the test) to see if Cushings is a possibility - won't

> know the results until 5 May. He has also said we have to eliminate the

> possibility of a tumor and he has suggested seeing an endinocrinologist

> (sp). So now that the original tests have shown that there is something

> wrong he seems to be moving in the right direction. It is just that I have

> found that I get a lot further along when I see him if I already have some

> knowledge of what it is all about and can discuss the situation

> intelligently and maybe even suggest something that has come up on this

> list he may not be aware of.

>

> The other point is that cortisol can affect cognitive functions which is an

> important consideration for someone trying to struggle through a PhD and

> hence my frustration. If the weight gain had been taken seriously earlier....

>

> Many thanks to all for the support.

>

> >

> >Please exclude Cushings disease or Cushings syndrome.

> >

> >C.Tab. wrote:

> >

>

> ------------------------------------------------------------------------

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> http://www.ONElist.com

> Sign up for a new e-mail list today!

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Garlic and Vitamin E both work on your platelets to make your blood less sticky.

Advil and ASA work on platelets and chemicals in the blood vessel. The Baby ASA

would be used for just it's blood thinning

role one pill is enough. If you are already on advil, naprosyn, ibuprofen or

similar products then you don't need the ASA. Yes we are just treating another

result not cause. I personally don't use these

things much because they don't work well with FM. Instead I use osteopathic

treaments, chinese massage, flaxseed oil, bromelein and herbs plus Jungian

hypnotherapy occasionally. MIND-BODY-SPIRIT.

Marcia Grahn wrote:

> From: Marcia Grahn <mgrahn@...>

>

> Stevan Cordas DO MPH wrote:

>

> > From: Stevan Cordas DO MPH <sco338@...>

> >

> > Look up the Hawthorne effect Gail. Many treatments will seem to work for a

short period of time (weeks to months). It is hard to measure the rheology of

the blood and takes specialized hematologic

> > equipment. Many disorders can thicken the blood including MIs, certain

connective tissue disease and even stress problems. Vitamin E and ASA are the

traditional mild blood thinners. Heparin usually

> > made from porcine and bovine sources carry risks and whoever is doing that

work must legally be responsible for a proper informed consent. One baby asa a

day usually has little risk unless your ASA

> > allergic, asthmatic or have a documented ulcer problem.

>

> Hi Dr. C,

>

> That was another question I was going to ask, is if the " sticky blood " theory

is yet just another symptom causing symptoms and not the cause of our illness?,

and if treating just that symptom would

> bring one any closer to a cure? How would one determine what is causing the

thickening of the blood? Also I'm not sure what ASA is?????? Is aspirin also

used as a mild blood thinner??

>

> Marcia

>

> ------------------------------------------------------------------------

> Have you visited the new ONElist home page lately?

> http://www.ONElist.com

> ONElist: The Leading e-mail list and community service on the Internet!

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Stevan Cordas DO MPH wrote:

> From: Stevan Cordas DO MPH <sco338@...>

>

> Look up the Hawthorne effect Gail. Many treatments will seem to work for a

short period of time (weeks to months). It is hard to measure the rheology of

the blood and takes specialized hematologic

> equipment. Many disorders can thicken the blood including MIs, certain

connective tissue disease and even stress problems. Vitamin E and ASA are the

traditional mild blood thinners. Heparin usually

> made from porcine and bovine sources carry risks and whoever is doing that

work must legally be responsible for a proper informed consent. One baby asa a

day usually has little risk unless your ASA

> allergic, asthmatic or have a documented ulcer problem.

Hi Dr. C,

That was another question I was going to ask, is if the " sticky blood " theory is

yet just another symptom causing symptoms and not the cause of our illness?, and

if treating just that symptom would

bring one any closer to a cure? How would one determine what is causing the

thickening of the blood? Also I'm not sure what ASA is?????? Is aspirin also

used as a mild blood thinner??

Marcia

[Guest guest]

Thanks every little bit helps. My Petrovich protocol people are still doing good

2 out of 2. Any comments?

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 4/26/99 5:56:53 PM Eastern Daylight Time,

> sco338@... writes:

>

> << period of time (weeks to months). It is hard to measure the rheology of

> the blood and takes specialized hematologic

> equipment. >>

> That's exactly what the laboratory is using, according to their website.

> They usually recommend low molecular weight heparin but some patients take

> coumadin according to their test results and their own reaction. They're

> tested regularly. The doctors decide whether or not to put them on the

> protocol. The laboratory just will make reccommendations. You can see thier

> website (though it's not up-to-date) at hemex.com.

>

> ------------------------------------------------------------------------

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> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I guess. In my 30 years experience in treating FM and 10 years plus in treating

this disorder one learns to attack vigorously in as safe a way as possible with

extreme fine tuning from a team

effort with the patient. I know a lot of docs say that but you really have to do

it for it to work. I am exited about a beeter way to balance thyroid and sex

hormones that I just learned using

natural hormones. I already use them but can fine tune them better with the

new testing system.

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 4/26/99 7:50:55 PM Eastern Daylight Time,

> sco338@... writes:

>

> << I personally don't use these

> things much because they don't work well with FM. Instead I use osteopathic

> treaments, chinese massage, flaxseed oil, bromelein and herbs plus Jungian

> hypnotherapy occasionally. MIND-BODY-SPIRIT.

> >>

> We have a D.O. in our group who has a huge FM patient population. His child

> has had CFIDS for over four years. He's used everything that ever worked for

> FM on his child. Nothing has helped and she is still bedridden and unable

> to attend school or do anything. The few things that have been of help have

> been things that he does not use but her pediatrician recommended. Guess it's

> just another case for everyone being different.

>

> Gail

>

> ------------------------------------------------------------------------

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> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I'm an old fashioned doctor who no longer uses hospitals doesnot belong to any

HMO's and as a triple specialist, cannot be considered a family pracitioner. I

cater to complex and confusing cases and CFIDS is

that. I don't have all the answers but learned homeopathy, kinesiology,

acupuncture, naturopathy and phytotherapy along with all the advances in

virology and standard internal medicine to the best of my

ability. In other words I study a lot.

Marcia Grahn wrote:

> From: Marcia Grahn <mgrahn@...>

>

> Stevan Cordas DO MPH wrote:

>

> > From: Stevan Cordas DO MPH <sco338@...>

> >

> > Garlic and Vitamin E both work on your platelets to make your blood less

sticky. Advil and ASA work on platelets and chemicals in the blood vessel. The

Baby ASA would be used for just it's blood thinning

> > role one pill is enough. If you are already on advil, naprosyn, ibuprofen or

similar products then you don't need the ASA. Yes we are just treating another

result not cause. I personally don't use these

> > things much because they don't work well with FM. Instead I use osteopathic

treaments, chinese massage, flaxseed oil, bromelein and herbs plus Jungian

hypnotherapy occasionally. MIND-BODY-SPIRIT.

> >

>

> You have an AMAZING range of therapies! How did you learn about so many

effective treatments?? I know they don't recognize many of those in med school.

Sounds like Dr. Weils integrated medicine program,

> the best of both worlds! How would I ever find a doc like you here in Oregon

with such a wide range of knowlege and experience willing to listen to peoples

symptoms?????

>

> I really appreciate your input, wish I had the recall to remember everything I

read and am learning on this list!

>

> Thanks, Marcia

>

> ------------------------------------------------------------------------

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> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Stevan Cordas DO MPH wrote:

> From: Stevan Cordas DO MPH <sco338@...>

>

> Garlic and Vitamin E both work on your platelets to make your blood less

sticky. Advil and ASA work on platelets and chemicals in the blood vessel. The

Baby ASA would be used for just it's blood thinning

> role one pill is enough. If you are already on advil, naprosyn, ibuprofen or

similar products then you don't need the ASA. Yes we are just treating another

result not cause. I personally don't use these

> things much because they don't work well with FM. Instead I use osteopathic

treaments, chinese massage, flaxseed oil, bromelein and herbs plus Jungian

hypnotherapy occasionally. MIND-BODY-SPIRIT.

>

You have an AMAZING range of therapies! How did you learn about so many

effective treatments?? I know they don't recognize many of those in med school.

Sounds like Dr. Weils integrated medicine program,

the best of both worlds! How would I ever find a doc like you here in Oregon

with such a wide range of knowlege and experience willing to listen to peoples

symptoms?????

I really appreciate your input, wish I had the recall to remember everything I

read and am learning on this list!

Thanks, Marcia

[Guest guest]

In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time,

sco338@... writes:

<< My Petrovich protocol people are still doing good 2 out of 2. Any

comments? >>

Two patients out of two patients? I hope that's not what you meant. That

doesn't mean anything. You can find two people doing " well " on nearly

anything. Please read the list rules again. I would hate for you to bend

the rules too much to be banned. You could add a lot, but this is not for

those who will counter others. There is no cure, nor an effective treatment.

There are some treatments that help....but not one that can be suggested for

everyone. The same treatment that can be a miracle for one can be a disaster

for another. That could be because of different causes, different phases of

the illness, or different stages in the development, but the fact remains

that there is no one effective treatment. That's the very reason for this

list.

[Guest guest]

Who said anything about banishing Dr. Cordas. I hope not. He as been a

well of information. And what ever he has said about helping others is his

experience. We are all different. It is not a one size fits all cure. And

we all know that.

Thanks Dr. for your valuable imput. You are greatly appreciated.

Judi

Re: Weight gain

>From: " Cheryl " <cherylk@...>

>

>I had no intention of posting to this list -- just lurking for information.

>

>But, this wholly unwarrented attack (from my perspective) on Dr. Cordas

>really angered me.

>

>The Dr has posted good information; has said repeatedly that treatments

must

>be tailored to individuals and that it is a process of trial and error (my

>paraphrasing).

>

>I've seen NOTHING that he has said that indicated he had a one size fits

>all -- here is the ANSWER folks attitude.

>

>Yet, you have threatened banishment of him for indicating that in two

people

>he's tried something with, he's so far had success.

>

>One reason I don't want to participate in this group is because of its

>history of banishing everyone who says anything that the owner doesn't

agree

>with. It seems her attitude is shared by others.

>

>I've been ill for 10 years and I've tried everything I could afford -- I've

>had things that looked like " the answer " for me work wonderfully for up to

4

>months and then just stop. I've tried to teach myself not to get excited

>when something does make a positive change -- too many times it has only

>lasted a few days or a couple of weeks.

>

>I'm right now dealing with the disappointment of having Enada cause a

>dramatic improvement for six weeks and then nothing.

>

>I applaud people (and especially doctors) who keep trying. And, I really

>can't understand the attitude of people like you in the community who jump

>on people and threaten them for any perceived deviance from your agenda.

>

>Cheryl from Florida

>

>

>

> Re: Weight gain

>

>

>> From: GAILRONDA@...

>>

>> In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time,

>> sco338@... writes:

>>

>> << My Petrovich protocol people are still doing good 2 out of 2. Any

>> comments? >>

>> Two patients out of two patients? I hope that's not what you meant.

That

>> doesn't mean anything. You can find two people doing " well " on nearly

>> anything. Please read the list rules again. I would hate for you to

bend

>> the rules too much to be banned. You could add a lot, but this is not

>for

>> those who will counter others. There is no cure, nor an effective

>treatment.

>> There are some treatments that help....but not one that can be suggested

>for

>> everyone. The same treatment that can be a miracle for one can be a

>disaster

>> for another. That could be because of different causes, different phases

>of

>> the illness, or different stages in the development, but the fact remains

>> that there is no one effective treatment. That's the very reason for

this

>> list.

>>

>> ------------------------------------------------------------------------

>> Has ONElist changed your life?

>> http://www.ONElist.com

>> Visit our homepage and share with us your experiences at ONElist of the

>Week!

>> ------------------------------------------------------------------------

>> This list is intended for patients to share personal experiences with

each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>>

>

>

>------------------------------------------------------------------------

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[Guest guest]

[, T.]

my problem with heparin is that it is a relatively common drug. I

would image that many cfsers have been put on this drug over the years for

problems unrelated to cfs. If this is true it would have been noted by now

that heparin helps. Just like b12, kutapressin, and steroids. It is well

know that these drugs provide some help for some cfsers (with some negative

side effects) .

>

[Guest guest]

I had no intention of posting to this list -- just lurking for information.

But, this wholly unwarrented attack (from my perspective) on Dr. Cordas

really angered me.

The Dr has posted good information; has said repeatedly that treatments must

be tailored to individuals and that it is a process of trial and error (my

paraphrasing).

I've seen NOTHING that he has said that indicated he had a one size fits

all -- here is the ANSWER folks attitude.

Yet, you have threatened banishment of him for indicating that in two people

he's tried something with, he's so far had success.

One reason I don't want to participate in this group is because of its

history of banishing everyone who says anything that the owner doesn't agree

with. It seems her attitude is shared by others.

I've been ill for 10 years and I've tried everything I could afford -- I've

had things that looked like " the answer " for me work wonderfully for up to 4

months and then just stop. I've tried to teach myself not to get excited

when something does make a positive change -- too many times it has only

lasted a few days or a couple of weeks.

I'm right now dealing with the disappointment of having Enada cause a

dramatic improvement for six weeks and then nothing.

I applaud people (and especially doctors) who keep trying. And, I really

can't understand the attitude of people like you in the community who jump

on people and threaten them for any perceived deviance from your agenda.

Cheryl from Florida

Re: Weight gain

> From: GAILRONDA@...

>

> In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time,

> sco338@... writes:

>

> << My Petrovich protocol people are still doing good 2 out of 2. Any

> comments? >>

> Two patients out of two patients? I hope that's not what you meant. That

> doesn't mean anything. You can find two people doing " well " on nearly

> anything. Please read the list rules again. I would hate for you to bend

> the rules too much to be banned. You could add a lot, but this is not

for

> those who will counter others. There is no cure, nor an effective

treatment.

> There are some treatments that help....but not one that can be suggested

for

> everyone. The same treatment that can be a miracle for one can be a

disaster

> for another. That could be because of different causes, different phases

of

> the illness, or different stages in the development, but the fact remains

> that there is no one effective treatment. That's the very reason for this

> list.

>

> ------------------------------------------------------------------------

> Has ONElist changed your life?

> http://www.ONElist.com

> Visit our homepage and share with us your experiences at ONElist of the

Week!

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

In a message dated 4/27/99 9:57:17 PM Eastern Daylight Time,

sco338@... writes:

<< Thus far a have found two negative comments about this protocol on another

CFS server site but no response

here. Why? >>

It may be that none have followed his protocol or it may be that those who

did are not the ones posting, but merely following the list. Were the two

patients that are trying this with success those who have had CFIDS for many

years (over 7)? Are they severe or moderate? A lot of treatment depends on

the severity, as I'm sure you're more than aware. How long have they been on

it? Again, if anyone on this list has tried it, please post and let us know

if you've found it helpful or not.

Gail

[Guest guest]

Gail. I admit I don't know the rules on stating that some of my patients are

responding to something. I thought that was what this group was about. If you

wish me to join the doctor list and ask

them only I will be glad to do that. I only brought up the Petrovich experience

to see if others in your group tried it and had success or failure. I don't like

it when a web site claims 100% cure.

I am skeptical. My two patients got it from the web site and followed through

with it. Thus far a have found two negative comments about this protocol on

another CFS server site but no response

here. Why?

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 4/27/99 1:08:07 AM Eastern Daylight Time,

> sco338@... writes:

>

> << My Petrovich protocol people are still doing good 2 out of 2. Any

> comments? >>

> Two patients out of two patients? I hope that's not what you meant. That

> doesn't mean anything. You can find two people doing " well " on nearly

> anything. Please read the list rules again. I would hate for you to bend

> the rules too much to be banned. You could add a lot, but this is not for

> those who will counter others. There is no cure, nor an effective treatment.

> There are some treatments that help....but not one that can be suggested for

> everyone. The same treatment that can be a miracle for one can be a disaster

> for another. That could be because of different causes, different phases of

> the illness, or different stages in the development, but the fact remains

> that there is no one effective treatment. That's the very reason for this

> list.

>

> ------------------------------------------------------------------------

> Has ONElist changed your life?

> http://www.ONElist.com

> Visit our homepage and share with us your experiences at ONElist of the Week!

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

One was disabled chronic CFIDS severe non responsive to nutritional,

immunologic, medical,antiviral or candida treatments. After being on the complex

protocol, which costs about $2500 for 5 months

of treatment,for three weeks she asked me for a letter to allow her to go back

to work. That was 4 months ago. It was dramatic and sustained. The second case

did well but got diarrhea from the

Ester C in the protocol. Recently she got sick from dursban sprayed by her

neighbor so I cant' be sure about her.

GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 4/27/99 9:57:17 PM Eastern Daylight Time,

> sco338@... writes:

>

> << Thus far a have found two negative comments about this protocol on another

> CFS server site but no response

> here. Why? >>

> It may be that none have followed his protocol or it may be that those who

> did are not the ones posting, but merely following the list. Were the two

> patients that are trying this with success those who have had CFIDS for many

> years (over 7)? Are they severe or moderate? A lot of treatment depends on

> the severity, as I'm sure you're more than aware. How long have they been on

> it? Again, if anyone on this list has tried it, please post and let us know

> if you've found it helpful or not.

> Gail

>

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[Guest guest]

Stevan - I came into this discussion in the middle. Can you tell me where

the website mentioned below is, and could you also fill me in (privately if

you like) on where you practice medicine, etc. If we are close enough

together, I have a really fine case of CFS / multi-symptomatic disease that

you can have a go at! :-)

Pat

At 08:56 PM 4/27/99 -0500, you wrote:

>From: Stevan Cordas DO MPH <sco338@...>

> I only brought up the Petrovich experience to see if others in your group

tried it and had >success or failure. I don't like it when a web site claims

100% cure.

>I am skeptical. My two patients got it from the web site and followed

through with it.