a few questions

[Guest guest]

Unless you have something specific against Splenda, it certainly

tastes and bakes a lot better than stevia. You can measure and pour it

just like sugar and it tastes the same as sugar. You might want to

check out the Center For Science in the Public Interest's Guide to

Food Additives. They're the radical " food cops " who are out to save us

from movie popcorn and restaurant meals among other things. They give

Splenda (sucralose) a thumbs-up as safe and stevia a big red X for

doing bad things to mouse testicles or something like that. LOL

Aspartame, saccharine, Ace-K also got the big red X.

http://www.cspinet.org/reports/chemcuisine.htm

I know that the sweetener debate is a hot one and people who feel

strongly one way or the other tend not to change their minds. You have

to do whatever feels right for you and your family. Personally, I use

Splenda almost daily. I don't know if the safety reports about stevia

would have scared me off, but the taste definitely did. :-)

On 1/28/06, <marymichelledarby@...> wrote:

> Thank you all so much for your support! I appreciate it so much.

> As I read through all of the posts here from you women, I am amazed

> at your generosity of spirit and your support. Thank you so much.

> By the way, I do eat the pancake recipe in the Eating for Life book

> and I am doing my best not to eat any artificial sweeteners,

> including Splenda. But I do put Stevia in my foods - haven't quite

> figured out how to bake with Stevia. I tried to make the brownie

> recipe in the book but substituting Stevia and it was an out and out

> disaster! (And I LOVE to bake - and am pretty darned good at it).

> If any of you know where I can get info on how to bake with Stevia,

> I would be greatly appreciate it. (I have managed to be able to

> stand the taste of it - unbelievably to me).

>

> Again, thank you all so so much!

>

> Peace,

>

>

[Guest guest]

Thanks for the info, . I'll do more research on both of them.

From my understanding, Splenda is chlorinated sugar. It's the

chlorine that bothers me as chlorine can bind with iodine and impair

thyroid function. I could be wrong about that and I'll definitely

check out the info on Stevia.

Thanks for the heads up!!

Peace,

> > Thank you all so much for your support! I appreciate it so much.

> > As I read through all of the posts here from you women, I am

amazed

> > at your generosity of spirit and your support. Thank you so

much.

> > By the way, I do eat the pancake recipe in the Eating for Life

book

> > and I am doing my best not to eat any artificial sweeteners,

> > including Splenda. But I do put Stevia in my foods - haven't

quite

> > figured out how to bake with Stevia. I tried to make the brownie

> > recipe in the book but substituting Stevia and it was an out and

out

> > disaster! (And I LOVE to bake - and am pretty darned good at

it).

> > If any of you know where I can get info on how to bake with

Stevia,

> > I would be greatly appreciate it. (I have managed to be able to

> > stand the taste of it - unbelievably to me).

> >

> > Again, thank you all so so much!

> >

> > Peace,

> >

> >

>

[Guest guest]

I use agave nectar for some baking as it is very low on the glycemic

index. (It is a liquid similar in consistency to honey)

Actually, with BFL I seem to not be baking much at all.

I use a couple drops of liquid stevia to sweeten liquids like tea or

smoothies. A little goes a LONG way.

This quote is from http://chetday.com/stevia.html

Google " baking with stevia " . There seems to be a lot...

" As a sweetener and flavor enhancer, Stevia is very useful for baking

and cooking because it is heat stable to 392° Fahrenheit and will not

degrade. It is also excellent in smoothies, tea, breakfast grains, or

sprinkled on vegetables and salads. It does have some limitations and

baking and cooking with these various forms may require some

experimentation to determine which forms and amounts suit your taste

and recipes. If you prefer to use the whole leaf products for the

health benefits and aren't bothered by the green color it conveys to

foods, then use those. If green is bothersome then use the stevioside

products. Because Stevia contains no sugar it cannot be used

effectively in yeast breads, as they require sugar in some form, to

activate the yeast and Stevia won't caramelize so can't be used for

meringues. Baked goods containing Stevia will not brown in the same

manner as conventionally sweetened cookies, muffins, and other baked

items. The easiest way to judge doneness is to stick a toothpick into

the center to determine if the item is sufficiently dry. "

Millet Yam Patties

Ingredients:

2 Cups cooked millet

1 Cup cooked, mashed yams

2 Tablespoons soy sauce

1/2 cup walnuts

1/2 cup shredded onion

1/4 cup chopped parsley

2 Tablespoons sesame seeds

Juice from 1 orange or blood orange

10 drops of whole leaf Stevia concentrate (or to taste)

Set oven at 375°. Combine all ingredients, mixing well. Form into

balls then flatten into 3-inch patties. Place on a greased cookie

sheet. Ghee (clarified butter - use organic) works well for greasing

the pan, because it doesn't burn or stick. Bake patties for

approximately 20 minutes, or until they are dry enough to turn over.

Bake on second side for an additional 20 minutes.

Oatmeal Apple Muffins

Ingredients:

1 Cup whole wheat flour

1 Cup rolled oats

1/2 teaspoon sea salt

3 teaspoons baking powder

1/2 teaspoon nutmeg

1-12 teaspoons cinnamon

1-1/2 teaspoons Stevia powder

1/4 cup applesauce

3/4-cup soy or rice milk

1/4 cup oil

1 Medium apple, coarsely chopped

3/4 cup raisins

Preheat oven to 375°. Mix first seven ingredients thoroughly. In a

separate bowl mix remaining ingredients. Gradually mix dry ingredients

into moist ingredients. Spoon into greased muffin tins. Bake 25-30

minutes or until a toothpick comes out clean when inserted into the

center of muffin.

M.

[Guest guest]

>

> I know that the sweetener debate is a hot one and people who feel

> strongly one way or the other tend not to change their minds. You have

> to do whatever feels right for you and your family. Personally, I use

> Splenda almost daily. I don't know if the safety reports about stevia

> would have scared me off, but the taste definitely did. :-)

>

>

I agree with - I really don't think there is anything wrong with

Splenda as a SUBSTANCE to be consumed. My issue (which I battle with

constantly) is that artificial sweeteners seem to make MY sweet

cravings either 1) never go away or 2) get even worse.

My latest escapade in the cooking department has been to

refine/tweak/perfect a recipe for chocolate gelato that blows the socks

off of ANYTHING you can buy (including Godiva ice cream) and has 450

calories per pint. This is compared to 760 calories in a pint of

Haagen Dazs Light Dutch Chocolate, and 1200 calories in a pint of

Godiva. My recipe contains 1/4c of granular Splenda, and I eat the

whole thing at once, so I'm getting all of that artificial-ness as one

big dose. I do bloat out a bit for a day or two, and definitely CRAVE

the gelato in the interim.

Now, is this a better situation to be in than just not eating sweet

things in general and not really craving them? I don't know.

Chocolate rocks my world, and the other benefit to my gelato is one

batch contains 1/2 CUP of cocoa powder - can you say antioxidants???

So, I fight the " fake sugar " battle myself. So far I've been giving

in, at least to some degree. But at least I still get my chocolate.

Take care everyone,

http://tenacity.net

[Guest guest]

Well, are you going to share the recipe? LOL.

At 10:47 PM 1/29/2006, you wrote:

>My latest escapade in the cooking department has been to

>refine/tweak/perfect a recipe for chocolate gelato that blows the socks

>off of ANYTHING you can buy (including Godiva ice cream) and has 450

>calories per pint. This is compared to 760 calories in a pint of

>Haagen Dazs Light Dutch Chocolate, and 1200 calories in a pint of

>Godiva. My recipe contains 1/4c of granular Splenda, and I eat the

>whole thing at once, so I'm getting all of that artificial-ness as one

>big dose. I do bloat out a bit for a day or two, and definitely CRAVE

>the gelato in the interim.

>

>N

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.1.375 / Virus Database: 267.14.23/243 - Release Date: 1/27/2006

[Guest guest]

,

This sounds like something you should mass produce and start marketing

You KNOW the women will adore it.

How about as fudgcicles?

M.

> My latest escapade in the cooking department has been to

> refine/tweak/perfect a recipe for chocolate gelato that blows the socks

> off of ANYTHING you can buy (including Godiva ice cream) and has 450

> calories per pint. This is compared to 760 calories in a pint of

> Haagen Dazs Light Dutch Chocolate, and 1200 calories in a pint of

> Godiva.

>

[Guest guest]

Hi, Doug.

>

> Goodmorning all

***Goodmorning to you, too! In my corner of the globe, we're

currently having a goodevening!

>

> If possible I would like to request some advice from the group

> regarding a few matters

>

> I react to both immune pro and NAC ( bad headaches and general

unwell

> feeling) which my doctor advises is due to poor cysteine metabolism

> most likely due to metal toxicity.

***If you have a high body burden of mercury, the NAC could have

moved some into the brain. The relatively recent study by Aposhian

et al. found this to be true in rats (no aspersions intended, Doug!)

ImmunePro Rx supplies cysteine as well, as you know. So far, I

think your doctor has a good hypothesis.

>

> My liver function is phase 1 double the top of the ref range while

> phase 2 glutathionation at the bottom of the ref range, glycination

> and sulphation at the top end of the ref range.

***O.K. It sounds as though you are either depleted in glutathione

or you have a genetic variation that is interfering with your use of

glutathione for detox, in one or more of the glutathione transferase

enzymes. The fast Phase 1 suggests either that you have one or more

polymorphisms in your cytochrome P450 enzymes that are causing the

one that processes caffeine (measured in the test) to be

upregulated, or that you have a big load of toxins in your body that

is upregulating Phase 1 to try to cope with it, or both.

>

> Due to cysteine metabolism , hair analysis & NDF reaction my doctor

> suspects metal and possibly pesticide toxicity( NDF I can only

> tolerate 1 drop maximum).Both he and i are not willing to risk a

> challenge test at this stage.

***I can certainly understand that. I don't know if you have direct

evidence for pesticide toxicity, but having low glutathionation

would make you vulnerable to that, if you have been exposed to

pesticides, because glutathione is needed to detox pesticides.

>

> I am using lipoflow glutathione along with glutamine & glycine and

> tumeric to build glutathione for 3months and have found a gradual

> improvement in endurance from a low base.

***The improvement seems to confirm that your glutathione is low.

The fact that it has been a slow improvement suggests either a

genetic problem higher up in the sulfur metabolism, or metals

blocking certain enzymes, or both.

>

> I was wondering if anyone has had experience in rebalancing liver

> function and in particular improving glutathionation without using

NAC

> /whey.

***I think that some of the treatments used by the DAN! autism

doctors might help with this. See below.

I did try SAMe but only for 10days with no effect at all,maybe

> i need a longer trial.

***The fact that you could tolerate SAMe suggests that your

methylation cycle is probably operating fairly well.

I also am not able to tolerate lipoic acid

> except in minimal doses ( 10mg ).

***O.K., that also incorporates a chemically reduced form of sulfur,

as does cysteine.

>

> I also was wondering if there was any way to improve cysteine

> metabolism . I am not sure if it was mentioned in the discussions

on

> methylation and sulphation.

***I would suggest that you try P-5-P, the active form of vitamin

B6, together with magnesium. The amount of magnesium should be at

least 10% of the amount of P-5-P by weight. Start low on them, and

slowly raise the dosage up to, say, 500 mg per day of P-5-P. The

reason for this is that P-5-P is needed as a cofactor by several of

the enzymes in the cysteine metabolism, not only those that are used

upstream of cysteine, but also some downstream. It may be that your

conversion of B6 to P-5-P is slow, as has been found in some

autistic children, and that's the reason for taking the active form.

***I would also suggest that you consider supplementing molybdenum,

starting low and going up to as high as, say, 1,000 micrograms per

day. It would be a good idea to add some copper (say 5 micrograms

per day) if you go this high in molybdenum, because molybdenum is an

antagonist to copper. The reason for supplementing molybdenum is

that it is a cofactor for the sulfite oxidase enzyme. It's possible

that you have a bottleneck at this enzyme which converts sulfite to

sulfate. Much of the cysteine and alpha lipoic acid will eventually

have to pass through this enzyme on their pathway to sulfate, which

is excreted in the urine.

>

> My doctor has recently been at a seminar on the MT promotion

protocol

> ,restoring the metallothionen detoxification function which has

been

> used for autistic children . From my preliminary research this

seems

> to be a secondary protocol used if other detox programs don't

work .

> Does anyone have any knowledge of this protocol ?

If it involves metallothionein and autism, Blake Graham from Perth,

who we haven't heard from here for a while, is probably familiar

with this.

>

> I am in Australia and many of the new tests which seem to be

available

> in the US/UK aren't available here that I am aware of.

>

> thanks & regards Doug

>

***I hope this is helpful, and please keep us posted on how things

go for you.

***Rich

[Guest guest]

Gooday Rich

I think that covers morning & evening.

Thankyou for this reply . I will try P5P & molybdenum and advise of

any result.

I have been taking normal b6 in a multi B formula 50mg but no positive

effect .

kind regds Doug

> >

> > Goodmorning all

>

> ***Goodmorning to you, too! In my corner of the globe, we're

> currently having a goodevening!

> >

> > If possible I would like to request some advice from the group

> > regarding a few matters

> >

> > I react to both immune pro and NAC ( bad headaches and general

> unwell

> > feeling) which my doctor advises is due to poor cysteine metabolism

> > most likely due to metal toxicity.

>

> ***If you have a high body burden of mercury, the NAC could have

> moved some into the brain. The relatively recent study by Aposhian

> et al. found this to be true in rats (no aspersions intended, Doug!)

> ImmunePro Rx supplies cysteine as well, as you know. So far, I

> think your doctor has a good hypothesis.

> >

> > My liver function is phase 1 double the top of the ref range while

> > phase 2 glutathionation at the bottom of the ref range, glycination

> > and sulphation at the top end of the ref range.

>

> ***O.K. It sounds as though you are either depleted in glutathione

> or you have a genetic variation that is interfering with your use of

> glutathione for detox, in one or more of the glutathione transferase

> enzymes. The fast Phase 1 suggests either that you have one or more

> polymorphisms in your cytochrome P450 enzymes that are causing the

> one that processes caffeine (measured in the test) to be

> upregulated, or that you have a big load of toxins in your body that

> is upregulating Phase 1 to try to cope with it, or both.

> >

> > Due to cysteine metabolism , hair analysis & NDF reaction my doctor

> > suspects metal and possibly pesticide toxicity( NDF I can only

> > tolerate 1 drop maximum).Both he and i are not willing to risk a

> > challenge test at this stage.

>

> ***I can certainly understand that. I don't know if you have direct

> evidence for pesticide toxicity, but having low glutathionation

> would make you vulnerable to that, if you have been exposed to

> pesticides, because glutathione is needed to detox pesticides.

> >

> > I am using lipoflow glutathione along with glutamine & glycine and

> > tumeric to build glutathione for 3months and have found a gradual

> > improvement in endurance from a low base.

>

> ***The improvement seems to confirm that your glutathione is low.

> The fact that it has been a slow improvement suggests either a

> genetic problem higher up in the sulfur metabolism, or metals

> blocking certain enzymes, or both.

> >

> > I was wondering if anyone has had experience in rebalancing liver

> > function and in particular improving glutathionation without using

> NAC

> > /whey.

>

> ***I think that some of the treatments used by the DAN! autism

> doctors might help with this. See below.

>

> I did try SAMe but only for 10days with no effect at all,maybe

> > i need a longer trial.

>

> ***The fact that you could tolerate SAMe suggests that your

> methylation cycle is probably operating fairly well.

>

> I also am not able to tolerate lipoic acid

> > except in minimal doses ( 10mg ).

>

> ***O.K., that also incorporates a chemically reduced form of sulfur,

> as does cysteine.

> >

> > I also was wondering if there was any way to improve cysteine

> > metabolism . I am not sure if it was mentioned in the discussions

> on

> > methylation and sulphation.

>

> ***I would suggest that you try P-5-P, the active form of vitamin

> B6, together with magnesium. The amount of magnesium should be at

> least 10% of the amount of P-5-P by weight. Start low on them, and

> slowly raise the dosage up to, say, 500 mg per day of P-5-P. The

> reason for this is that P-5-P is needed as a cofactor by several of

> the enzymes in the cysteine metabolism, not only those that are used

> upstream of cysteine, but also some downstream. It may be that your

> conversion of B6 to P-5-P is slow, as has been found in some

> autistic children, and that's the reason for taking the active form.

>

> ***I would also suggest that you consider supplementing molybdenum,

> starting low and going up to as high as, say, 1,000 micrograms per

> day. It would be a good idea to add some copper (say 5 micrograms

> per day) if you go this high in molybdenum, because molybdenum is an

> antagonist to copper. The reason for supplementing molybdenum is

> that it is a cofactor for the sulfite oxidase enzyme. It's possible

> that you have a bottleneck at this enzyme which converts sulfite to

> sulfate. Much of the cysteine and alpha lipoic acid will eventually

> have to pass through this enzyme on their pathway to sulfate, which

> is excreted in the urine.

> >

> > My doctor has recently been at a seminar on the MT promotion

> protocol

> > ,restoring the metallothionen detoxification function which has

> been

> > used for autistic children . From my preliminary research this

> seems

> > to be a secondary protocol used if other detox programs don't

> work .

> > Does anyone have any knowledge of this protocol ?

>

> If it involves metallothionein and autism, Blake Graham from Perth,

> who we haven't heard from here for a while, is probably familiar

> with this.

> >

> > I am in Australia and many of the new tests which seem to be

> available

> > in the US/UK aren't available here that I am aware of.

> >

> > thanks & regards Doug

> >

> ***I hope this is helpful, and please keep us posted on how things

> go for you.

>

> ***Rich

>

[Guest guest]

Aileen

Soda helps some and others it bothers, just is a case by case scenario. I can only speak for myself, i can't vomit anymore, and i keep phenergen at home for that reason, just in case!!! That's a drug that stops you from vomiting, so it stops the dry heves!

in Indiana

From: achalasia [mailto:achalasia ] On Behalf Of aileenmonroeSent: Thursday, March 23, 2006 4:47 PMachalasia Subject: A Few Questions

So I just read the most recent postings, and they've triggered some questions for me. 1. Once I was diagnosed with A, my first two doctors told me never to drink soda again, among other things. People seem to react well to soda when spasms attack. Is soda good or bad?2. I plan to have the surgery soon. I'm working on the date right now. Is it definitely true that you cannot vomit once you've had this surgery? YUCK! I'm a teacher, so it's going to be hard to avoid stomach bugs for the rest of my life. -Aileen

[Guest guest]

Hi Aileen,

Two very good questions, and you will will probably have more coming. You want to listen to your doctors advice, but you read things here contrary to what you have been told. I know that I am Diet Coke's greatest cheerleader if you've read some of my posts (which just go back to January). While I've been "cheering" about it, I've read along the way that some people just can't tolerate it for a number of reasons. I think you know what I'm going to say next. (I'll just go out for a Diet Coke in the meantime).

Nobody, as far as I know, died from drinking soda. If you have spasms and the soda works to quell it, you go with it. If it doesn't, you try something else. For me the soda does two things: it stops the spasms (usually), and it gets the food down to my stomach (usually). Ever try shaking a can of soda and then flipping it open? That's the kind of action I like to see going on in my esophagus! Drinking water is like riding on a lake, very calm. Drinking soda is like taking my esophagus white water rafting! Oh, I think I've been doing taxes too long now.

Let's move on to your next question - Vomiting. I haven't vomited in 25 years, and I'm still here to talk about it. Yes, as a teacher you're exposed to much more than I am. Clearly, if you think you might lose the ability to vomit, what are you going to do about it....cancel the surgery? I guess washing your hands more often will have to be your alternative.

Oh, I see that in Indiana beat me to the punch in answering. That's what I liked about that other answer I gave the other day, "Second Opinion." Just quick to the point.

Anyway, without peristalsis down, we don't have it in the other direction either. I have found over the years there have been times that I felt so sick that I just knew I was going to vomit, and yet I didn't. What was even stranger was that I did a violent dry heave, and after that I felt better as if I did vomit!

There is no end to the matters we can discuss here while staying on the topic.

Aileen - good luck. You're in control now, and you are going to be fine!

>> So I just read the most recent postings, and they've triggered some > questions for me. > > 1. Once I was diagnosed with A, my first two doctors told me never to > drink soda again, among other things. People seem to react well to > soda when spasms attack. Is soda good or bad?> 2. I plan to have the surgery soon. I'm working on the date right now. > Is it definitely true that you cannot vomit once you've had this > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid > stomach bugs for the rest of my life. > > -Aileen>

[Guest guest]

Here's a question about the vomiting - what happens if you get food

poisoning and your body needs to, um, get that food outta there??

And there is no place for it to go? I think too much:)

> >

> > So I just read the most recent postings, and they've triggered

some

> > questions for me.

> >

> > 1. Once I was diagnosed with A, my first two doctors told me

never to

> > drink soda again, among other things. People seem to react well

to

> > soda when spasms attack. Is soda good or bad?

> > 2. I plan to have the surgery soon. I'm working on the date

right now.

> > Is it definitely true that you cannot vomit once you've had this

> > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid

> > stomach bugs for the rest of my life.

> >

> > -Aileen

> >

>

[Guest guest]

I was told by my doctor that if i think it is true food poisoning then i need to seek medical attention, since i can't get rid of the food that is causing the problem. I haven't had this happen yet!!! I'm usually careful about what i eat, but you never know when something is going to be bad and then served to you.

Everyone is different but i think I'll follow what my doc suggested!!!

in Indiana

From: achalasia [mailto:achalasia ] On Behalf Of Sent: Thursday, March 23, 2006 5:24 PMachalasia Subject: Re: A Few Questions

Here's a question about the vomiting - what happens if you get food poisoning and your body needs to, um, get that food outta there?? And there is no place for it to go? I think too much:)> >> > So I just read the most recent postings, and they've triggered some> > questions for me.> >> > 1. Once I was diagnosed with A, my first two doctors told me never to> > drink soda again, among other things. People seem to react well to> > soda when spasms attack. Is soda good or bad?> > 2. I plan to have the surgery soon. I'm working on the date right now.> > Is it definitely true that you cannot vomit once you've had this> > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid> > stomach bugs for the rest of my life.> >> > -Aileen> >>

[Guest guest]

No, you don't. I think the same way, that's why I am so worried now!!

> > >

> > > So I just read the most recent postings, and they've triggered

> some

> > > questions for me.

> > >

> > > 1. Once I was diagnosed with A, my first two doctors told me

> never to

> > > drink soda again, among other things. People seem to react well

> to

> > > soda when spasms attack. Is soda good or bad?

> > > 2. I plan to have the surgery soon. I'm working on the date

> right now.

> > > Is it definitely true that you cannot vomit once you've had this

> > > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid

> > > stomach bugs for the rest of my life.

> > >

> > > -Aileen

> > >

> >

>

[Guest guest]

In my 25 years of having achalasia I haven't thought once about what I would do if I had food poisoning. So far its been a moot point.

This Board is a place for us to exchange thoughts, ideas and concerns. So, lets talk about it.

I guess for the vomiters amongst us sticking the finger down the back of the throat and inducing the gag/vomit reflex is the way to go to cure food poisoning.

Believe me, I'm not trying to make light of this potential problem, when I say that I'm basically not concerned for myself about it (actually I'm more concerned for anyone here on this Board more than myself), but if I thought I had food poisoning, rather than put my fingers down my throat I would use my fingers and call emergency 911, or just go to the hospital, where they could pump my stomach.

So, a and , you then ask me what to do if you get food poisoning and you are not near a hospital? You first go to your local pharmacy or health food store and ask them for an elixir to neutralize most forms of food poisoning in your body.

Let me say, I have been to many third world countries on all continents and while I have not come away without getting sick in some of them there is always medication and time for the body to cleanse itself, no matter where you are.

I think I've overstayed my time here. Just please try not to dwell on this food poisoning subject. There are far more pressing issues.

> > > >> > > > So I just read the most recent postings, and they've triggered > > some> > > > questions for me.> > > >> > > > 1. Once I was diagnosed with A, my first two doctors told me > > never to> > > > drink soda again, among other things. People seem to react well > > to> > > > soda when spasms attack. Is soda good or bad?> > > > 2. I plan to have the surgery soon. I'm working on the date > > right now.> > > > Is it definitely true that you cannot vomit once you've had this> > > > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid> > > > stomach bugs for the rest of my life.> > > >> > > > -Aileen> > > >> > >> >>

[Guest guest]

I drink soda all the time. I have had no problems with it. When I feel food sticking a little and not going down smooth a drink of soda normally clears that right up.

in Suffolk

[Guest guest]

I was told at the begining that i wasn't allowed to vomit now they say

i can. i wouldn't be worried about food poising. if you are worried

ask you doc for zofrian it works great. If you arn't sure which way it

might come out take a does of that med and you will fell great. it

take the nausia and upset felling away. i love that med i have taken

it about 5 times in the lst 4 years and it works great. Abigail

> > > > >

> > > > > So I just read the most recent postings, and they've triggered

> > > some

> > > > > questions for me.

> > > > >

> > > > > 1. Once I was diagnosed with A, my first two doctors told me

> > > never to

> > > > > drink soda again, among other things. People seem to react well

> > > to

> > > > > soda when spasms attack. Is soda good or bad?

> > > > > 2. I plan to have the surgery soon. I'm working on the date

> > > right now.

> > > > > Is it definitely true that you cannot vomit once you've had this

> > > > > surgery? YUCK! I'm a teacher, so it's going to be hard to avoid

> > > > > stomach bugs for the rest of my life.

> > > > >

> > > > > -Aileen

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks all for answering about the good poisoning. I'm not that concerned about it - it was just a thought I had. In reality, I'm more concerned that the surgery won't work or that I will never be able to eat food again. That's my biggest fear.ChefAJT <Abigailstar@...> wrote: I was told at the begining that i wasn't allowed to vomit now they sayi can. i wouldn't be worried about food poising. if you are worriedask you doc for zofrian it works great. If you arn't sure which way itmight come out take a does of that med and you will fell great. ittake the nausia and upset felling away. i love that med i have takenit about 5 times in the lst 4 years and it works great. Abigail> > > > >> > > > > So I just read the most recent postings, and they've triggered> > > some> > > > > questions for me.> > > > >> > > > > 1. Once I was diagnosed with A, my first two doctors told me> > > never to> > > > > drink soda again, among other things. People seem to react well> > > to> > > > > soda when spasms attack. Is soda good or bad?> > > > > 2. I plan to have the surgery soon. I'm working on the date> > > right now.> > > > > Is it definitely true that you cannot vomit once you've had this> > > > > surgery? YUCK! I'm a teacher, so it's going

to be hard to avoid> > > > > stomach bugs for the rest of my life.> > > > >> > > > > -Aileen> > > > >> > > >> > >> >>

[Guest guest]

,

" In reality, I'm more concerned that the surgery won't work or that I

will never be able to eat food again. That's my biggest fear. "

That was and continues to be my biggest fear. I don't think I'll ever

go back to feeling as if I don't have to worry about swallowing. Kind

of hard to forget once you know type of thing. I'm always very

conscious of how I'm swallowing.

The way I've come to accept it is that I'll just require " tune ups "

every now and then, but as long as I can eat and drink relatively

normal that's good enough for me. But then again anything is an

improvement to pre op days. I just remember being miserable and tired

and worried. So tune ups are ok and so are my not so good days when I

just require more water and nifedipine than normal.

-Lisbeth

[Guest guest]

-Lisbeth,

I had the myotomy back in Oct 2005. I was so sick,weak. thin and

miserable that I had no option. Life could not go on that way. It was

the best thing I did. Worry not of the fear of the surgery failing.

You don;t need any more negatives in your life to make you more

stressed. You need to be more positive and decide why this is good

for you and go forward and take what is rightfully yours. So many of

us have had the myotomy and are functioning so much better.

I was terrified at the time, absolutley beside myself, my husband and

this group kept me on track and I went through with it. I is worth

it. I am much healthier and eat so much better.

All the best with your decisions.

-- In achalasia , " lclopez477 " <Lisbeth477@...> wrote:

>

> ,

>

> " In reality, I'm more concerned that the surgery won't work or that

I

> will never be able to eat food again. That's my biggest fear. "

>

> That was and continues to be my biggest fear. I don't think I'll

ever

> go back to feeling as if I don't have to worry about swallowing.

Kind

> of hard to forget once you know type of thing. I'm always very

> conscious of how I'm swallowing.

>

> The way I've come to accept it is that I'll just require " tune ups "

> every now and then, but as long as I can eat and drink relatively

> normal that's good enough for me. But then again anything is an

> improvement to pre op days. I just remember being miserable and

tired

> and worried. So tune ups are ok and so are my not so good days when

I

> just require more water and nifedipine than normal.

>

> -Lisbeth

>

[Guest guest]

,

Hi, actually I was replying to . I've had a heller going on 2

yrs now and the down tone in my note (which I apparently didn't hide

well enough ) is because I'm having a bad time right now until I

have my dilation in the summer.

But yes I do agree that a positive outlook is very important not just

for A but for our health and thanks for your encouragement. It's

always welcome

-Lisbeth

[Guest guest]

hi i was woundering why are you waiting till summer to have the dialation. i get

one done every 2 months but they don't help me really. it takes only 2 days to

recover. i get mine done in the OR under general. sorry just woundering. Abigail

-------------- Original message ----------------------

From: " lclopez477 " <Lisbeth477@...>

,

Hi, actually I was replying to . I've had a heller going on 2

yrs now and the down tone in my note (which I apparently didn't hide

well enough ) is because I'm having a bad time right now until I

have my dilation in the summer.

But yes I do agree that a positive outlook is very important not just

for A but for our health and thanks for your encouragement. It's

always welcome

-Lisbeth

[Guest guest]

Hi Abigail,

I'm in the middle of prepping for finals and can't take off from

school to miss any class time. It's scheduled for end of May before I

start my internship. I know I'll have bad spasms for a couple days

following and right now I simply don't have time to deal with all of

that. If things get worse then I'd have to move it up. But for now

it's manageable.

-Lisbeth

[Guest guest]

hey good luck with school and i hope you feel somewhat ok till summer.

i know it is hard to take time off and get things taken care of. my

son is sick and sometimes i have to push mine back too. talk to u

latter Abigail

>

> Hi Abigail,

>

> I'm in the middle of prepping for finals and can't take off from

> school to miss any class time. It's scheduled for end of May before I

> start my internship. I know I'll have bad spasms for a couple days

> following and right now I simply don't have time to deal with all of

> that. If things get worse then I'd have to move it up. But for now

> it's manageable.

>

> -Lisbeth

>

[Guest guest]

--That's Ok,

You can be down with us and we will just pick you up. We all have our

turn. I have mine often enough too. So next time you can remind me that

things are not so bad when I am down.

Regards

- In achalasia , " lclopez477 " <Lisbeth477@...> wrote:

>

> ,

>

> Hi, actually I was replying to . I've had a heller going on 2

> yrs now and the down tone in my note (which I apparently didn't hide

> well enough ) is because I'm having a bad time right now until I

> have my dilation in the summer.

>

> But yes I do agree that a positive outlook is very important not just

> for A but for our health and thanks for your encouragement. It's

> always welcome

>

> -Lisbeth

>

[Guest guest]

dreama098 wrote:

> So here is my question. I would like to know, what kinds of formal

> testing would help qualify a child, who is high functioning and

> getting by as far as grades are concerned, to receive some kind of

> services within the school?

You should take your son to a psychologist and have him assessed for AS.

With that diagnosis in hand, you can go to your school and ask for (or

demand, as the case may be) an IEP. This will nail down the help your

son requires and the services too in a document that they must go by.

It's the law.

> My second question, I've often thought that some type of

> social/pragmatic skills training would be beneficial to him. Most of

> the social skills material that I have encountered so far, seems to

> target a younger child. Has anyone had success with older children

> as far as social skills are concerned? What was done and how?

You might try Social Stories. There are others here who can refer you

to a website, but I forget where it is right now. These worked

pretty well with our son. You might also look within your community for

any social activities geared toward the developmentally disabled. Often

the parks dept. will have recreation programs. Our son never has

related well to people his own age (he's 26, HFA/AS), but once he moved

from our place to assisted living he began to make friends in the

autistic community. Now he has lots of friends.

If you can't find social outlets for your guy, you could do what I did:

create one! I started last year planning with a group from my church a

series of monthly dances for the dd community; we had the first one last

month, and it went over great! We did it with no budget and a lot of

donated treat goodies, printed up a flyer with all the dates on it (we

call it DD Dance Club) and a request that each party bring a snack to

share, charged $2 admission, and made enough to do the one this month.

This month is the Spring Ball (since a lot of our guys never got to go

to prom), which is semi-formal with live music (a local band is donating

their time) and pictures of participants under a lighted archway (for

those who want them). We're charging $4 for this one, and that will

carry us through the next few dances with no problem. It's not that

hard to put one of these things together, I found, so I would suggest it

to anyone who lives where something like this is unavailable.

Anyway, those are our experiences. Sorry for the ramble!

Annie, who loves ya annie@...

--

If you want to know what God thinks of money, just look at the people he

gave it to.

-- Dorothy