Hello

[Guest guest]

Hi , I am okay, are you enjoying yourself? did you go to the Hoover Dan or

Golden Nugget?... thank you.

 Love, Live, and Laugh

________________________________

From: <fr_dxb@...>

cures for AIDS

Sent: Tue, February 22, 2011 3:41:08 PM

Subject: Re: hello

Hi dear Eva , how are you , I'm in Vegas now ...

Sent from my BlackBerry® smartphone from du

hello

Is anyone here.?

 Love, Live, and Laugh

     

[Guest guest]

I'm here...just busy as hell.  Hope everyone is doing well.  I'm in the middle

of a candida cleanse, which is going great.  Hopefully, I will get my toenail

back...lol.

From: Eva V <ev204@...>

Subject: Re: hello

cures for AIDS

Date: Tuesday, February 22, 2011, 4:20 PM

 

Hi , I am okay, are you enjoying yourself? did you go to the Hoover Dan or

Golden Nugget?... thank you.

 Love, Live, and Laugh

________________________________

From: <fr_dxb@...>

cures for AIDS

Sent: Tue, February 22, 2011 3:41:08 PM

Subject: Re: hello

Hi dear Eva , how are you , I'm in Vegas now ...

Sent from my BlackBerry® smartphone from du

hello

Is anyone here.?

 Love, Live, and Laugh

     

[Guest guest]

LOL! I'm here, just been super busy lately.  Nothing new with me although I

might share my story with a radio show soon.  If so I will post the link on

here.

From: Eva V <ev204@...>

Subject: hello

cures for AIDS

Date: Tuesday, February 22, 2011, 2:14 PM

 

Is anyone here.?

 Love, Live, and Laugh

[Guest guest]

Hi Janna

I am impressed that you have found out how " NOT NOT NOT " to have surgery. MY A

started about 5 years ago.

I am the same way, waiting for a better solution than a cut e, I know this works

great for most people.

http://en.wikipedia.org/wiki/Alkaline_diet

" famous proponents of the alkaline diet is Young, who has come under

scrutiny from the National Council Against Health Fraud.[1] "

I am not sure about the Alkaline diet, however if it works, use it.

Could you tell just what you eat for the Alkaline diet, I see many books are

available.

After doing years of research, I find out what works for me

Butter,English Muffins toasted WELL with lots of holes for the butter to sink

in, Coke with CO2, Magnesium two 250mg a day, chocolate, Hot coffee, Macoroni

and cheese with butter mixed in, Pasta and mixed with butter, Bushes brown beans

with some water and butter mixed in, ice cream, milk shakes and Lactaid 4% milk

with cerial.

Butter makes it slip down, you must use real butter for the fat content. Just

have your Cholesterol checked out, I am on Crestor 10 mg.

Foods Decrease LES Pressure from Medical Report on GERD, just don't eat the late

in the day or you might get indigestion at night.

Chocolate

Coffee

Ethanol

Fat=butter

Peppermint

Spearmint

High fiber diet

Ray CA OC old as hell 80 doing great!!!!!!!!!!!!!!!!!

>

> I was diagnosed with A about 5 years ago and have worked to avoid surgery. I

have followed several regimens for managing this situation which I understand

are considered to be " alternative " but for me they have done a good job. I do

not know if they would help anyone else. I rarely see these things mentioned on

Achalasia sites. First, when I was diagnosed, I went on a 10 day fast. I

consumed nothing but Spirulina, yogurt and a little fruit juice. Then I moved on

to an alkaline diet, there are many books out there on the subject. I have tried

to grasp an understanding through these books as to the foods that are acid

producing. I also study yoga and was introduced to some routines called

" bandhas " which include breathing practices that influence relaxation &

digestion. Since that time I have also gotten my " green card " through the

thcfn.org since my state has made it legal to use hemp oil in my food. This has

helped a lot with digestion problems, acid reflux and achalasia. My own journeys

with this situation have shown me a variety of alternatives to surgery. I do not

know if they would work for others. I only know I am much happier and experience

much fewer episodes. I can say that what I eat really influences the existence

of inflammation and spasms in the esophagus, hence the use of anti-inflammatory

foods which seem to follow the alkaline diet scheme. I sincerely hope this

information is of help to you and that you are not offended by it.

>

> Sincerely,

>

> Janna

>

[Guest guest]

HelloFYI

Ellen

Ellen Garber Bronfeld

egskb@...

Hello

" Let's do together what we can't do alone! "

From The Desk of Shirley A.

Executive Director

Family Support Network

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encouragement have truly inspired me! I am excited

about our new partnership in advocacy and

I look forward to working with each of you. As a parent

of an adult with a developmental disability,

I understand first-hand our daily struggles. I embrace

the challenge of continuing the GREAT work

of Charlotte Cronin, but I can’t do it without your

support!

Sincerely,

Shirley A.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\

~~~~~

Please find my Contact Information:

The Family Support Network of Illinois

651 E. 159th Place

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Telephone: 708-331-7370 ~ Fax: 708-339-5423 ~

Email: ShirleyFSN@...

Website: www.familysupportnetwork.org

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preferences

[Guest guest]

Hi, I've just joined this group.

I have the symptoms of an underactive thyroid, but my blood results suggest an

overactive thyroid! Do you think I may benifit from t3? Going to make an

appointment to see my GP to see if he's willing to test my T3, or to refer me to

an endocrineologist.

Any help and advice will be gratefully recieved.

Judith

[Guest guest]

I had that surgery and of you would like to talk more in depth I am willing to.

I will be home around 6 tonight if you would like to call and talk and ask

questions.

in Georgia

Sent from my iPhone

On May 7, 2012, at 9:15, " amandatroff " <amandatroff@...> wrote:

> Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

>

> My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

>

> Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

>

> They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

>

>

>

>

> TODAY(Beta) • Powered by

> New company tops Fortune 500 list

> Privacy Policy

>

>

[Guest guest]

Hi

Yes I had the same problem on my second Barium swallow 3-4 years ago, when I was

real real bad. The Doctor gave me barium, then said spit it out NOW, no opening,

dont want it to get in the lungs.!Then had a manometry test and confirmed

classic A.

If the LES is really closed I should have suggested Nifedipine 10 mg which

helps to open the LES. I used it a bit, crack in teeth but it worked for me.

Just let a bit of it go down, 10 mg might give a headache. Still have the

prescription June 2008, my god 4 years of suffering, maybe 6 years!.

http://www.ncbi.nlm.nih.gov/pubmed/2679048

Ray CA OC

>

>

> > But first of all you have to get some nourishment. If you cant get water

down means you have food stuck in the LES, regurgitate the e using a lot of

water or several COLD COKES. Just dont get it in the lungs.

>

[Guest guest]

The National Institute of Health Study posted only indicated a 26% reduction in

LES pressure while the Opioid Hypersensitivity in Achalasia study reported an

average 46% drop in LES pressure among achalasians with administration of

morphine. Google achalasia and morphine and read the whole pdf.

Study parameters were similar with double blind/placebo and a control/test

group, although the Opioid hypersensitivity study included a " healthy " group

which was markedly less sensitive to LES relaxation than the achalasia group.

I certainly wouldn't want Nifedipine's severe headache side effects and limited

efficacy.

Steve

> >

> >

> > > But first of all you have to get some nourishment. If you cant get water

down means you have food stuck in the LES, regurgitate the e using a lot of

water or several COLD COKES. Just dont get it in the lungs.

> >

>

[Guest guest]

Hi.

I had what we at the group called an oesophagectomy or an " ectomy " for short

back in October 2004. I went on to require 8 dilatations within the 1st year

post-op but it soon settled down and i went on to live a normal life. My eating

remained fairly poor so the doctors decided to put in a Jejunostomy feeding tube

for me to use overnight and have used it now for over 6 years in total, the

recent one was only changed a few months ago after the previous one being in

situ for over 2 years. Don't get me wrong i still eat but not enough to put any

weight on so i use the jejunal feeding tube to give me that little bit extra of

nutrients while i don't have to worry about eating during the day. I enjoy 3

snacks a day but not enough to maintain my weight. With my stomach up in my

chest (it was made into a new tube) there is less room for food but i get by. I

had to have my oesophagus removed as it had enlarged so big it was pushing my

lungs to either side and

pressing on my heart (it was as big as an average sized football). If i had to

go through with the operation again i would as i believe it saved my life.

from the UK

________________________________

From: amandatroff <amandatroff@...>

achalasia

Sent: Monday, May 7, 2012 2:15 PM

Subject: Hello

 

Good Morning everyone. I joined this group a few weeks back, and wow, I finally

feel like I am not alone with this horrible disease.

My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree

to such a major body transformation at 80 but I am only 32 and scared. Looking

for advice.

[Guest guest]

I had the surgery when I was 29, I am now 34 and doing well. As has said,

I too am willing to talk more in depth. I'm a silent member, mainly read since I

had surgery. Just shout.

in WV

Connected by DROID on Verizon Wireless

Re: Hello

I had that surgery and of you would like to talk more in depth I am willing to.

I will be home around 6 tonight if you would like to call and talk and ask

questions.

in Georgia

Sent from my iPhone

On May 7, 2012, at 9:15, " amandatroff " <amandatroff@...> wrote:

> Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

>

> My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

>

> Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

>

> They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

>

>

>

>

> TODAY(Beta) • Powered by

> New company tops Fortune 500 list

> Privacy Policy

>

>

[Guest guest]

Thanks . I appreciate your reply.

It is helpful to hear about other's experiences.

I'm trying to calm myself down.

Are you able to work and have a decent quality

of life?

My best to you.

Faith

Sent from my iPod

On May 8, 2012, at 3:19, Hulmes <christine.hulmes@...> wrote:

> Hi.

> I had what we at the group called an oesophagectomy or an " ectomy " for short

back in October 2004. I went on to require 8 dilatations within the 1st year

post-op but it soon settled down and i went on to live a normal life. My eating

remained fairly poor so the doctors decided to put in a Jejunostomy feeding tube

for me to use overnight and have used it now for over 6 years in total, the

recent one was only changed a few months ago after the previous one being in

situ for over 2 years. Don't get me wrong i still eat but not enough to put any

weight on so i use the jejunal feeding tube to give me that little bit extra of

nutrients while i don't have to worry about eating during the day. I enjoy 3

snacks a day but not enough to maintain my weight. With my stomach up in my

chest (it was made into a new tube) there is less room for food but i get by. I

had to have my oesophagus removed as it had enlarged so big it was pushing my

lungs to either side and

> pressing on my heart (it was as big as an average sized football). If i had to

go through with the operation again i would as i believe it saved my life.

> from the UK

>

>

> ________________________________

> From: amandatroff <amandatroff@...>

> achalasia

> Sent: Monday, May 7, 2012 2:15 PM

> Subject: Hello

>

>

>

>

> Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

>

> My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

>

> Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

>

> They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

>

>

[Guest guest]

Hi Faith

My quality of life is as best as i can have considering that i have had the

surgery but i try and eat what i can and again i can have my off days where i am

lucky to be able to eat one snack. But never mind as i don't worry because i

have the jejunal feed to fall back on so i don't " starve " as some would say. On

a good day i can eat 3 sometimes 4 small snacks! Try not to worry. What wil be

wil be. If you're meant to have the operation then you'll have it. There are

plenty of others who both contribute and offer good advice here so don't just

take my advice, read other posts before deciding on the ectomy as it is a life

changing operation and no turning back once you have it. Please ask me some more

questions if you think i can help. Take care.

from the UK

________________________________

From: Faith Weiss <weissf@...>

" achalasia " <achalasia >

Sent: Tuesday, May 8, 2012 12:14 PM

Subject: Re: Hello

 

Thanks . I appreciate your reply.

It is helpful to hear about other's experiences.

I'm trying to calm myself down.

Are you able to work and have a decent quality

of life?

My best to you.

Faith

Sent from my iPod

On May 8, 2012, at 3:19, Hulmes <christine.hulmes@...> wrote:

> Hi.

> I had what we at the group called an oesophagectomy or an " ectomy " for short

back in October 2004. I went on to require 8 dilatations within the 1st year

post-op but it soon settled down and i went on to live a normal life. My eating

remained fairly poor so the doctors decided to put in a Jejunostomy feeding tube

for me to use overnight and have used it now for over 6 years in total, the

recent one was only changed a few months ago after the previous one being in

situ for over 2 years. Don't get me wrong i still eat but not enough to put any

weight on so i use the jejunal feeding tube to give me that little bit extra of

nutrients while i don't have to worry about eating during the day. I enjoy 3

snacks a day but not enough to maintain my weight. With my stomach up in my

chest (it was made into a new tube) there is less room for food but i get by. I

had to have my oesophagus removed as it had enlarged so big it was pushing my

lungs to either side and

> pressing on my heart (it was as big as an average sized football). If i had to

go through with the operation again i would as i believe it saved my life.

> from the UK

>

>

> ________________________________

> From: amandatroff <amandatroff@...>

> achalasia

> Sent: Monday, May 7, 2012 2:15 PM

> Subject: Hello

>

>

>

>

> Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

>

> My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

>

> Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

>

> They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

>

>

[Guest guest]

That might work, Ray, except that I'm *very* allergic to it (ALL calcium channel

blockers) -- and wasn't long before I discovered that it was the *only* drug my

GIs considered suitable for Achalasia. Beyond that, they had *zip* to offer.

They seemed terrified of nitro compounds. I'm lucky I stumbled on the GERD list

on my own, or I might not have made it TO the Heller. The GIs seemed quite

content to say: " Ensure, " and let me starve.

xox

> >

> >

> > > But first of all you have to get some nourishment. If you cant get water

down means you have food stuck in the LES, regurgitate the e using a lot of

water or several COLD COKES. Just dont get it in the lungs.

> >

>

[Guest guest]

Oh my gosh -that is terrible at such a young age. And a very drastic step. There

are a few here I believe who have experience in that category.

 

Best of luck to you!@

 

Kim A

Wi

________________________________

From: amandatroff <amandatroff@...>

achalasia

Sent: Monday, May 7, 2012 7:15 AM

Subject: Hello

 

Good Morning everyone. I joined this group a few weeks back, and wow, I finally

feel like I am not alone with this horrible disease.

My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree

to such a major body transformation at 80 but I am only 32 and scared. Looking

for advice.

[Guest guest]

Ethanol? Isn't that in gasoline?

________________________________

From: mer <ray_me_99@...>

achalasia

Sent: Monday, May 7, 2012 1:07 PM

Subject: Re: Hello

 

Hi I have posted this before, from a GERD medical report.

Also in my case I would try Magnesium Oxide 250 mg fron the drug

store, believe it seems to open the LES, in my case. It dissolves quickly in the

e. I use two a day and makes a great BM, if you get some fiber down.

Also butter add a teaspoon to the water, fat or butter does two things, opens

the LES and relaxes it. Or olive oil also works.

Foods Decrease LES Pressure

Chocolate

Coffee

Ethanol

Fat

Peppermint

Spearmint

High fiber diet

Foods Increase LES Pressure

Protien

I try to get foods with a high fiber content.

Clearing out the e after every meal and especially at night will prevent the

large e, this is how I manage the A. I hope that if you clear out the e the

large e MIGHT retreat, will take some time, have not seen a study on this, it is

worth a try.

But first of all you have to get some nourishment. If you cant get water down

means you have food stuck in the LES, regurgitate the e using a lot of water or

several COLD COKES. Just dont get it in the lungs.

I wish you well!! Let us know of your progress.

I hope will respond to your question.

Ray CA OC 81 old as hell and no HM.

>

> Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

>

> My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

>

> Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

>

> They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree

to such a major body transformation at 80 but I am only 32 and scared. Looking

for advice.

>

[Guest guest]

For those of us who work full time and have to drive long distances to work, I

cannot perceive taking morphine to control A. It just isn't realistic for

everyone.

________________________________

From: nailheader <stevenakamichi@...>

achalasia

Sent: Tuesday, May 8, 2012 12:39 AM

Subject: Re: Hello

 

The National Institute of Health Study posted only indicated a 26% reduction in

LES pressure while the Opioid Hypersensitivity in Achalasia study reported an

average 46% drop in LES pressure among achalasians with administration of

morphine. Google achalasia and morphine and read the whole pdf.

Study parameters were similar with double blind/placebo and a control/test

group, although the Opioid hypersensitivity study included a " healthy " group

which was markedly less sensitive to LES relaxation than the achalasia group.

I certainly wouldn't want Nifedipine's severe headache side effects and limited

efficacy.

Steve

> >

> >

> > > But first of all you have to get some nourishment. If you cant get water

down means you have food stuck in the LES, regurgitate the e using a lot of

water or several COLD COKES. Just dont get it in the lungs.

> >

>

[Guest guest]

Lol to Ray " old as hell but still no hm " ... Too funny!

California

Sent from my iPhone

On May 8, 2012, at 6:15 PM, Kim Abrams <xploring37@...> wrote:

> Ethanol? Isn't that in gasoline?

>

> ________________________________

> From: mer <ray_me_99@...>

> achalasia

> Sent: Monday, May 7, 2012 1:07 PM

> Subject: Re: Hello

>

>

>

>

> Hi I have posted this before, from a GERD medical report.

> Also in my case I would try Magnesium Oxide 250 mg fron the drug

> store, believe it seems to open the LES, in my case. It dissolves quickly in

the e. I use two a day and makes a great BM, if you get some fiber down.

>

> Also butter add a teaspoon to the water, fat or butter does two things, opens

the LES and relaxes it. Or olive oil also works.

>

> Foods Decrease LES Pressure

> Chocolate

> Coffee

> Ethanol

> Fat

> Peppermint

> Spearmint

> High fiber diet

>

> Foods Increase LES Pressure

> Protien

>

> I try to get foods with a high fiber content.

>

> Clearing out the e after every meal and especially at night will prevent the

large e, this is how I manage the A. I hope that if you clear out the e the

large e MIGHT retreat, will take some time, have not seen a study on this, it is

worth a try.

>

> But first of all you have to get some nourishment. If you cant get water down

means you have food stuck in the LES, regurgitate the e using a lot of water or

several COLD COKES. Just dont get it in the lungs.

>

> I wish you well!! Let us know of your progress.

>

> I hope will respond to your question.

>

> Ray CA OC 81 old as hell and no HM.

>

>

> >

> > Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

> >

> > My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

> >

> > Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

> >

> > They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

> >

>

>

[Guest guest]

Hello,

I concede this may be a fear reaction, and the treatment may not be suitable for

everyone. (like for me, I can't possibly fathom why people drink alcohol, smoke

tobacco or let their docs choose meds with overly adverse side-effect profiles).

However, if a properly managed pain regimen is slowly titrated to effect, it can

greatly ameliorate A symptoms, without causing sedation or loss of

functionality. During pain management was the first time I gained any meaningful

weight while also working a professional career, doing a lot of driving and road

trips, engaging in hobbies and activities, exercising and socializing - many

things that aren't possible for me now without any medical care. Also my

attitude was much better than the bitter one expressed on this forum.

This is just an option for people to consider. The Peligrani study showed a 46%

drop in achalasia LES pressure, which seems to show more promising results with

less risks and incisiveness compared to mechanical manipulation.

Steve

> > >

> > >

> > > > But first of all you have to get some nourishment. If you cant get water

down means you have food stuck in the LES, regurgitate the e using a lot of

water or several COLD COKES. Just dont get it in the lungs.

> > >

> >

>

>

>

>

>

[Guest guest]

wrote:

>

> ... For some of us, some times, it *isn't* a matter of a food bolus

> holding things up, it is simply a matter of *nothing* is going to get

> through. ...

>

Right. When I had my manometry the person doing the test told me that

with the pressure my LES was making (well over 100 mmhg) it was

impossible to get anything past it. He could not understand how I was

surviving and yet unlike many I did not loose any weight. I suspect that

my progression was so slow that my body learned to use the longitudinal

muscles in a way to compensate for the problems with the circular

muscles. But, it was getting worse and I was at a point that I didn't

want to see how bad it could get and decided to have the surgery.

notan