Hello

August 22, 2008

Actually, now that I am thinking about this, I remember having some type of

adhesive sprayed onto my foot after my nerve biopsy. I know there was some

thin piece of white material put on after that. I can't really describe it

but I wonder if that is maybe the same thing as you are talking about. I think

I will call the doctor who used that today or Monday and ask him what it's

called so I can talk to the neurosurgeon about using it. Although, my nerve

biopsy incision was about 1/4 inch long...if even that. It may be different

on a larger scale.

In a message dated 8/22/2008 6:57:52 A.M. Eastern Daylight Time,

dotratz@... writes:

Kathy,

I am thinking that what they have now is something new, or at least that is

what my doctor told me. I mentioned to him that I had it years ago and he

said that this wasn't around back then. I do not have problems with many things

just vitamins and adhesive tape. I have ended up with 2nd degree burns and

with vitamins it looks like I have the measles along with a bad case of chicken

pox and that is how bad it itches too.

Dorothy

[Non-text portions of this message have been removed]

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

August 22, 2008

Hey Jenn...

If your wound is seeping, you may very well need an anti biotic....you don't

want cellulitis on top of everything esle!!!

maybe you should get in touch with the dr?

hope it is better soon

kathy

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

August 22, 2008

Hey Kathy, I don't know how your e-mail service works. Mine automatically

copies the prior posts to my reply. I understand this one, but sometimes I

find myself confused with your responses and then I have to look through old

posts to figure out what you were responding to. It makes me feel even crazier

than I do now LOL. I looked through my settings and all it was for me was

checking something in the settings.

In a message dated 8/22/2008 5:42:18 P.M. Eastern Daylight Time,

KGAVI@... writes:

Hey Jenn...

If your wound is seeping, you may very well need an anti biotic....you don't

want cellulitis on top of everything esle!!!

maybe you should get in touch with the dr?

hope it is better soon

kathy

**************************It's only a deal if it's where you want to

go.

deal here.

(_http://information.http://infohttp://infhttp://informatihttp://in_

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) )

[Non-text portions of this message have been removed]

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

August 22, 2008

My doctor didn't put anything over the area he had sprayed but that could be

because it was on my lower abdomen rather than on my foot. All I know is that it

was a great relief not having to worry about how the tape was going to effect

me.

Just one word of advise, tell the doctor that you want plenty of the spray but

to please not get too liberal about where he is spraying it. My doctor got a

little carried away and some of the spray hit the skin on my upper abdomen and

then my breast got stuck to it. Fortunately it was right after surgery and I was

able to unstick myself.

Also, I know you addressed the comment to Kathy but thought I would tell you why

my posts don't show the post I am responding to. My settings also automatically

show the post that I am responding to but I then erase the previous post before

sending mine. I do that because the people who receive the daily digest with all

the posts at one time don't have to read the same initial post half a dozen

times.

Dorothy

August 23, 2008

i try to send them right away to you, Jenn....but as I answer all the mail

and I get over 100-190 per day...sometimes I need to off line and then come

back on.

I will try to send my responses to you right away...if not...you can send

your mail to me directly as you have in the past.

I do try to address the mail that I am answering and most of the time, the

post that I am answering is above what I am writing already.

kathy g.

Co-owner

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

August 25, 2008

-nobody draggin you through the mud. you are taking this out of

context. re read it again. all Kathy said was she didnt understand

is that bad. Please dont make a mountain out of a mole hill. mike

group owner -- In Stimulator , UCJAM1977@... wrote:

>

> Kathy, Why are you so hateful? It is absurd the way you are

dragging me

> through the mud for a simple request. It hurts my feelings and I

don't

> understand it.

>

> Jenn

>

> In a message dated 8/23/2008 9:31:18 P.M. Eastern Daylight Time,

> KGAVI@... writes:

>

> Hi, Dorothy!

>

> Yeah...I do the same thing...as I do believe most folks do...if

you don't

> understand the few worded posts....most likely it is to someone

else and

> like

> you said, you let it go at that....and you don't really need to

know what it

> means....so I really didn't even understand Jenn's point in the

first place.

>

> Anyway......Anyway......I am so sorry about all your health

issues..

> strong and vibrant woman. You are a role model, as even though you

have many

> health problems, you are involved in a lot, and for that I

honestly applaud

> you.

>

> I am sorry about your stroke and how it has left your hand, but

applaud you

> for typing and using the typing as therapy.

>

> I know all too well about the typing being painful, but

benefiticial toward

> therapy from the RSD in both hands.

>

> Have a nice night and it was really great to gab with you.

>

> Gentle hugs to you and all,

>

> Kathy G.

> Group Co-owner

>

> **************************It's only a deal if it's where you

want to

> go.

> deal here.

>

(_http://information.http://infohttp://infhttp://informatihttp://in_

> (http://information.travel.aol.com/deals?

ncid=aoltrv00050000000047) )

>

> [Non-text portions of this message have been removed]

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

August 25, 2008

I dont see any post that showed any hatefulness toward you Jen. all

Kathy said was she disnt understand. if thats hateful then i am

going crazy. if I dont understand I wull say so. mike owner

>

> Kathy, Why are you so hateful? It is absurd the way you are

dragging me

> through the mud for a simple request. It hurts my feelings and I

don't

> understand it.

>

> Jenn

>

> In a message dated 8/23/2008 9:31:18 P.M. Eastern Daylight Time,

> KGAVI@... writes:

>

> Hi, Dorothy!

>

> Yeah...I do the same thing...as I do believe most folks do...if

you don't

> understand the few worded posts....most likely it is to someone

else and

> like

> you said, you let it go at that....and you don't really need to

know what it

> means....so I really didn't even understand Jenn's point in the

first place.

>

> Anyway......Anyway......I am so sorry about all your health

issues..

> strong and vibrant woman. You are a role model, as even though you

have many

> health problems, you are involved in a lot, and for that I

honestly applaud

> you.

>

> I am sorry about your stroke and how it has left your hand, but

applaud you

> for typing and using the typing as therapy.

>

> I know all too well about the typing being painful, but

benefiticial toward

> therapy from the RSD in both hands.

>

> Have a nice night and it was really great to gab with you.

>

> Gentle hugs to you and all,

>

> Kathy G.

> Group Co-owner

>

> **************************It's only a deal if it's where you

want to

> go.

> deal here.

>

(_http://information.http://infohttp://infhttp://informatihttp://in_

> (http://information.travel.aol.com/deals?

ncid=aoltrv00050000000047) )

>

> [Non-text portions of this message have been removed]

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 22, 2008

Hi Mike...my MSN email addy is dclaar2@....

Thanks for working on putting a list together for all of us.

>

> Hello group I hope everyone having a painfree day. I just wanted to

> ask everyone if you have msn messenger downloaded could you send me

> your messenger email so i can get chat going again. mike group owner

>

September 22, 2008

Mike

My email for messenger is kimfleach@...

Thanks

Kim

hello

Hello group I hope everyone having a painfree day. I just wanted to

ask everyone if you have msn messenger downloaded could you send me

your messenger email so i can get chat going again. mike group owner

October 13, 2008

Hi Jim,

Welcome to the group alot of us understand what you are going

through and have been were you are, we are all here to help and talk

when ever you need too. Mike is the founder of the group, Sue is the

Co-Own I am one of the Moderators My name is Kathy Sweet. You will

meet allot of people on here, we are all friendly and ready to lend

am ear know matter the problem. You hang in there we all know how you

feel. I look foward to chatting with you.

Keep On Smiling

Kathy Sweet

Moderator

>

> Hi everyone,

>

> My name is and I am having a few problems.

>

> I have an underlying problem with the circulation in my right leg.

I have had 12 operations on my leg to date and as a result of all the

surgery I have been left with chronic pain in my leg below the knee

due to extensive nerve damage. I spent the best part of 3 months in

hospital at the end of last year being pumped full of a cocktail of

various drugs including morphine which did little for the pain.

>

> I had a stimulator fitted just before Christmas and it was the best

present ever, no more pain and within 3 weeks I was off all

medication and back at work. I felt that I had got my life back.

Unfortunately the lead attached to my spine became detached and

migrated downwards. I had further surgery to correct the situation in

February when I had a different type of lead fitted which involved

the removal of a part of the bone. This didn't work as a subsequent x-

ray showed that the lead had become detached from the implant.

>

> Until then I had been covered by private health insurance but my

insurers decided to withdraw cover so i had to wait until April for

further surgery. I underwent 3 operations in 2 days but they couldn't

get the stimulator to work properly. I saw another neurosurgeon in

May who promised he could fix things but I am still waiting for the

operation with no indication of when it might be.

>

> In the meantime I am in constant pain not only from my leg but also

from the implant itself. It feels like it is trying to work its way

through my skin and the area appears to be bruised and is incredibly

sore. I can't sit down for very long or walk very far.Â The only

medication that offers a degree of pain relief is Ketamine which I

takeÂ in an oral solution but I don't like taking it as I had a

rather nasty experience with it a few weeks ago. I took an accidental

overdose due to a mix up at the pharmacy when the concentration of

the solution was increased from 50mg/5ml to 250mg/5ml and they didn't

tell me. The hallucinations were horrendous and the doctor told me

that I was very lucky. I live on my own and the experience has left

me feeling very alone and vunerable.

>

> I really don't know what to do any more I have no quality of life

and am virtually housebound. The whole experience has had a profound

effect not only on me but also on those people that I was closest to.

I am on my own and have become very withdrawn and I could do with

someone to talk to who understands and may know how I'm feeling.

>

> Thank you for listening.

>

> Best regards

>

October 13, 2008

Welcome and sorry you're having so many problems with your stimulator.

I'm rather new here too and it's good to be able to talk to people

that understand what you're feeling and going through. Sometimes

family has no idea, they've not gone through this.

I don't have a stimulator yet, that will be Step Three for me. I'm

just starting Step One on Wed. Medial Branch Blocks for Facet Joints.

This group has been good for me, hope you enjoy it also.

Margee'

>

> Hi everyone,

>

> My name is and I am having a few problems.

>

> I have an underlying problem with the circulation in my right leg. I

have had 12 operations on my leg to date and as a result of all the

surgery I have been left with chronic pain in my leg below the knee

due to extensive nerve damage. I spent the best part of 3 months in

hospital at the end of last year being pumped full of a cocktail of

various drugs including morphine which did little for the pain.

>

> I had a stimulator fitted just before Christmas and it was the best

present ever, no more pain and within 3 weeks I was off all medication

and back at work. I felt that I had got my life back. Unfortunately

the lead attached to my spine became detached and migrated downwards.

I had further surgery to correct the situation in February when I had

a different type of lead fitted which involved the removal of a part

of the bone. This didn't work as a subsequent x-ray showed that the

lead had become detached from the implant.

>

> Until then I had been covered by private health insurance but my

insurers decided to withdraw cover so i had to wait until April for

further surgery. I underwent 3 operations in 2 days but they couldn't

get the stimulator to work properly. I saw another neurosurgeon in May

who promised he could fix things but I am still waiting for the

operation with no indication of when it might be.

>

> In the meantime I am in constant pain not only from my leg but also

from the implant itself. It feels like it is trying to work its way

through my skin and the area appears to be bruised and is incredibly

sore. I can't sit down for very long or walk very far.Â The only

medication that offers a degree of pain relief is Ketamine which I

takeÂ in an oral solution but I don't like taking it as I had a rather

nasty experience with it a few weeks ago. I took an accidental

overdose due to a mix up at the pharmacy when the concentration of the

solution was increased from 50mg/5ml to 250mg/5ml and they didn't tell

me. The hallucinations were horrendous and the doctor told me that I

was very lucky. I live on my own and the experience has left me

feeling very alone and vunerable.

>

> I really don't know what to do any more I have no quality of life

and am virtually housebound. The whole experience has had a profound

effect not only on me but also on those people that I was closest to.

I am on my own and have become very withdrawn and I could do with

someone to talk to who understands and may know how I'm feeling.

>

> Thank you for listening.

>

> Best regards

>

October 13, 2008

---Hi

I am sao sorry you are having so many problems with your scs. I

recieved mine the end of Feb. It has been a God send to me.. I

wouldnt trade it for nothing. I love it.

Hopefully this next Dr can get it fixed right.. What kind do you

have? I have Medtronics...

If you ever need to talk to someone I am usally sitting right here

at my computer.. I also live alone so I understand being lonely..

but im here if you ever need me.

take care ... there is alot of people on this site that have

wonderful insight to what might be going on

soft hugs

T

>

> >

> > Hi everyone,

> >

> > My name is and I am having a few problems.

> >

> > I have an underlying problem with the circulation in my right

leg. I

> have had 12 operations on my leg to date and as a result of all the

> surgery I have been left with chronic pain in my leg below the knee

> due to extensive nerve damage. I spent the best part of 3 months in

> hospital at the end of last year being pumped full of a cocktail of

> various drugs including morphine which did little for the pain.

> >

> > I had a stimulator fitted just before Christmas and it was the

best

> present ever, no more pain and within 3 weeks I was off all

medication

> and back at work. I felt that I had got my life back. Unfortunately

> the lead attached to my spine became detached and migrated

downwards.

> I had further surgery to correct the situation in February when I

had

> a different type of lead fitted which involved the removal of a

part

> of the bone. This didn't work as a subsequent x-ray showed that the

> lead had become detached from the implant.

> >

> > Until then I had been covered by private health insurance but my

> insurers decided to withdraw cover so i had to wait until April for

> further surgery. I underwent 3 operations in 2 days but they

couldn't

> get the stimulator to work properly. I saw another neurosurgeon in

May

> who promised he could fix things but I am still waiting for the

> operation with no indication of when it might be.

> >

> > In the meantime I am in constant pain not only from my leg but

also

> from the implant itself. It feels like it is trying to work its way

> through my skin and the area appears to be bruised and is

incredibly

> sore. I can't sit down for very long or walk very far.Â The only

> medication that offers a degree of pain relief is Ketamine which I

> takeÂ in an oral solution but I don't like taking it as I had a

rather

> nasty experience with it a few weeks ago. I took an accidental

> overdose due to a mix up at the pharmacy when the concentration of

the

> solution was increased from 50mg/5ml to 250mg/5ml and they didn't

tell

> me. The hallucinations were horrendous and the doctor told me that

I

> was very lucky. I live on my own and the experience has left me

> feeling very alone and vunerable.

> >

> > I really don't know what to do any more I have no quality of life

> and am virtually housebound. The whole experience has had a

profound

> effect not only on me but also on those people that I was closest

to.

> I am on my own and have become very withdrawn and I could do with

> someone to talk to who understands and may know how I'm feeling.

> >

> > Thank you for listening.

> >

> > Best regards

> >

October 13, 2008

sorry just wanted to say Kathy G is co-owner mike owner

> >

> > Hi everyone,

> >

> > My name is and I am having a few problems.

> >

> > I have an underlying problem with the circulation in my right

leg.

> I have had 12 operations on my leg to date and as a result of all

the

> surgery I have been left with chronic pain in my leg below the knee

> due to extensive nerve damage. I spent the best part of 3 months in

> hospital at the end of last year being pumped full of a cocktail of

> various drugs including morphine which did little for the pain.

> >

> > I had a stimulator fitted just before Christmas and it was the

best

> present ever, no more pain and within 3 weeks I was off all

> medication and back at work. I felt that I had got my life back.

> Unfortunately the lead attached to my spine became detached and

> migrated downwards. I had further surgery to correct the situation

in

> February when I had a different type of lead fitted which involved

> the removal of a part of the bone. This didn't work as a subsequent

x-

> ray showed that the lead had become detached from the implant.

> >

> > Until then I had been covered by private health insurance but my

> insurers decided to withdraw cover so i had to wait until April for

> further surgery. I underwent 3 operations in 2 days but they

couldn't

> get the stimulator to work properly. I saw another neurosurgeon in

> May who promised he could fix things but I am still waiting for the

> operation with no indication of when it might be.

> >

> > In the meantime I am in constant pain not only from my leg but

also

> from the implant itself. It feels like it is trying to work its way

> through my skin and the area appears to be bruised and is

incredibly

> sore. I can't sit down for very long or walk very far.Â The only

> medication that offers a degree of pain relief is Ketamine which I

> takeÂ in an oral solution but I don't like taking it as I had a

> rather nasty experience with it a few weeks ago. I took an

accidental

> overdose due to a mix up at the pharmacy when the concentration of

> the solution was increased from 50mg/5ml to 250mg/5ml and they

didn't

> tell me. The hallucinations were horrendous and the doctor told me

> that I was very lucky. I live on my own and the experience has left

> me feeling very alone and vunerable.

> >

> > I really don't know what to do any more I have no quality of life

> and am virtually housebound. The whole experience has had a

profound

> effect not only on me but also on those people that I was closest

to.

> I am on my own and have become very withdrawn and I could do with

> someone to talk to who understands and may know how I'm feeling.

> >

> > Thank you for listening.

> >

> > Best regards

> >

October 13, 2008

Hi Margee,

Â

Thanks for your message. Its good to know that there are people out there that

understand. I've lost so many friends over this. My son has been a God send and

has been very supportive particularly over the last few months but he has now

moved away to attend university so I wont get to see him again until Christmas

and I do miss him.

Â

I'veÂ also been havingÂ weekly nerve block injections since February. They give

me a day or two of relief but my pain doctor has informed me that I can't have

many more as they will end up causing even more damage to the nerves. I started

off by having the injections administered under a general anaesthetic in

hospital but now the pain has got so bad the doctor just gives them to me in his

consulting room, ouch!!

Â

Re: Hello

Welcome and sorry you're having so many problems with your stimulator.

I'm rather new here too and it's good to be able to talk to people

that understand what you're feeling and going through. Sometimes

family has no idea, they've not gone through this.

I don't have a stimulator yet, that will be Step Three for me. I'm

just starting Step One on Wed. Medial Branch Blocks for Facet Joints.

This group has been good for me, hope you enjoy it also.

Margee'

>

> Hi everyone,

>

> My name is and I am having a few problems.

>

> I have an underlying problem with the circulation in my right leg. I

have had 12 operations on my leg to date and as a result of all the

surgery I have been left with chronic pain in my leg below the knee

due to extensive nerve damage. I spent the best part of 3 months in

hospital at the end of last year being pumped full of a cocktail of

various drugs including morphine which did little for the pain.

>

> I had a stimulator fitted just before Christmas and it was the best

present ever, no more pain and within 3 weeks I was off all medication

and back at work.. I felt that I had got my life back. Unfortunately

the lead attached to my spine became detached and migrated downwards.

I had further surgery to correct the situation in February when I had

a different type of lead fitted which involved the removal of a part

of the bone. This didn't work as a subsequent x-ray showed that the

lead had become detached from the implant.

>

> Until then I had been covered by private health insurance but my

insurers decided to withdraw cover so i had to wait until April for

further surgery. I underwent 3 operations in 2 days but they couldn't

get the stimulator to work properly. I saw another neurosurgeon in May

who promised he could fix things but I am still waiting for the

operation with no indication of when it might be.

>

> In the meantime I am in constant pain not only from my leg but also

from the implant itself. It feels like it is trying to work its way

through my skin and the area appears to be bruised and is incredibly

sore. I can't sit down for very long or walk very far.Ã‚Â The only

medication that offers a degree of pain relief is Ketamine which I

takeÃ‚Â in an oral solution but I don't like taking it as I had a rather

nasty experience with it a few weeks ago. I took an accidental

overdose due to a mix up at the pharmacy when the concentration of the

solution was increased from 50mg/5ml to 250mg/5ml and they didn't tell

me. The hallucinations were horrendous and the doctor told me that I

was very lucky. I live on my own and the experience has left me

feeling very alone and vunerable.

>

> I really don't know what to do any more I have no quality of life

and am virtually housebound.. The whole experience has had a profound

effect not only on me but also on those people that I was closest to.

I am on my own and have become very withdrawn and I could do with

someone to talk to who understands and may know how I'm feeling.

>

> Thank you for listening.

>

> Best regards

>

October 13, 2008

Hi ,

Â

Thanks so much for your kind words.

Â

I think that the hardest part for me is knowing that the implant works and that

for a few weeks at the beginning of the year I had my life back and I felt the

best that I had in a very long time and then for it to be taken away has been so

very hard to cope with. I also got my hopes up with each new round of surgery so

its all been very disappointing (understatement of the year!!)..

Â

My implant is an ANS and I've just found out that the surgeon who is planning on

doing the operation is looking to replace the whole thing. I have been in touch

with ANS and they have just launched a new model which does everything mine does

but it is a fraction of the size. My pain doctor has given it the go ahead so

things may be looking up. I hope to know more later on in the week so I'll keep

you posted.

Â

Once again thank you so much for your kind words, they have been a great comfort

and I feel as though I've found a new friend. Don't forget that I'm here too if

you would like to chat.

Â

Hugs to you too.

Â

Re: Hello

---Hi

I am sao sorry you are having so many problems with your scs. I

recieved mine the end of Feb. It has been a God send to me.. I

wouldnt trade it for nothing. I love it.

Hopefully this next Dr can get it fixed right.. What kind do you

have? I have Medtronics.. .

If you ever need to talk to someone I am usally sitting right here

at my computer.. I also live alone so I understand being lonely..

but im here if you ever need me.

take care .... there is alot of people on this site that have

wonderful insight to what might be going on

soft hugs

T

>

> >

> > Hi everyone,

> >

> > My name is and I am having a few problems.

> >

> > I have an underlying problem with the circulation in my right

leg.. I

> have had 12 operations on my leg to date and as a result of all the

> surgery I have been left with chronic pain in my leg below the knee

> due to extensive nerve damage. I spent the best part of 3 months in

> hospital at the end of last year being pumped full of a cocktail of

> various drugs including morphine which did little for the pain.

> >

> > I had a stimulator fitted just before Christmas and it was the

best

> present ever, no more pain and within 3 weeks I was off all

medication

> and back at work. I felt that I had got my life back. Unfortunately

> the lead attached to my spine became detached and migrated

downwards.

> I had further surgery to correct the situation in February when I

had

> a different type of lead fitted which involved the removal of a

part

> of the bone. This didn't work as a subsequent x-ray showed that the

> lead had become detached from the implant.

> >

> > Until then I had been covered by private health insurance but my

> insurers decided to withdraw cover so i had to wait until April for

> further surgery. I underwent 3 operations in 2 days but they

couldn't

> get the stimulator to work properly. I saw another neurosurgeon in

May

> who promised he could fix things but I am still waiting for the

> operation with no indication of when it might be.

> >

> > In the meantime I am in constant pain not only from my leg but

also

> from the implant itself. It feels like it is trying to work its way

> through my skin and the area appears to be bruised and is

incredibly

> sore. I can't sit down for very long or walk very far.Ã‚Â The only

> medication that offers a degree of pain relief is Ketamine which I

> takeÃ‚Â in an oral solution but I don't like taking it as I had a

rather

> nasty experience with it a few weeks ago. I took an accidental

> overdose due to a mix up at the pharmacy when the concentration of

the

> solution was increased from 50mg/5ml to 250mg/5ml and they didn't

tell

> me. The hallucinations were horrendous and the doctor told me that

I

> was very lucky. I live on my own and the experience has left me

> feeling very alone and vunerable.

> >

> > I really don't know what to do any more I have no quality of life

> and am virtually housebound. The whole experience has had a

profound

> effect not only on me but also on those people that I was closest

to.

> I am on my own and have become very withdrawn and I could do with

> someone to talk to who understands and may know how I'm feeling.

> >

> > Thank you for listening.

> >

> > Best regards

> >

October 13, 2008

Welcome to the group. My name is Sue, I'm one of the moderators of this

wonderful group. You have come to the right place. Everyone here knows what it's

like to live in pain every minute of every day. You're so right, living in

chronic pain effects every part of our lives. Only someone who lives with

chronic pain can understand what it's like. I also lost many friends. They

couldn't deal with the fact that I couldn't do what I used to do.

I'm sorry to hear that you have had such a tough time, but you must never give

up hope. You never know what miracle waits around the corner. I have 2 spinal

cord stimulators and a pain pump. The good news is that you know that the SCS

works and the new doctor feels that he can help you. You must think positive.

Before I had my implants, I was housebound, and extremely depressed, so I know

exactly where you are coming from. It's so easy to dwell on the negative and to

sink deeper and deeper. The SCS and the pump have given me my life back. I'm

not the same as I was before I was injured, but the quality of my life has

greatly improved!!!

The most important thing is attitude. If you dwell on the negative, you will

only get more depressed. If you think positve, count your blessing, what you're

grateful for, you will start to feel better emotionally.

If you have any questions or would like any information, I am here for you and

everyone else.

Sue C

Moderator

From: Woolrich <john.woolrich@...>

Subject: Hello

Stimulator

Date: Monday, October 13, 2008, 11:16 AM

Hi everyone,

My name is and I am having a few problems.

I have an underlying problem with the circulation in my right leg. I have had 12

operations on my leg to date and as a result of all the surgery I have been left

with chronic pain in my leg below the knee due to extensive nerve damage. I

spent the best part of 3 months in hospital at the end of last year being pumped

full of a cocktail of various drugs including morphine which did little for the

pain.

I had a stimulator fitted just before Christmas and it was the best present

ever, no more pain and within 3 weeks I was off all medication and back at work.

I felt that I had got my life back. Unfortunately the lead attached to my spine

became detached and migrated downwards. I had further surgery to correct the

situation in February when I had a different type of lead fitted which involved

the removal of a part of the bone. This didn't work as a subsequent x-ray showed

that the lead had become detached from the implant..

Until then I had been covered by private health insurance but my insurers

decided to withdraw cover so i had to wait until April for further surgery. I

underwent 3 operations in 2 days but they couldn't get the stimulator to work

properly. I saw another neurosurgeon in May who promised he could fix things but

I am still waiting for the operation with no indication of when it might be.

In the meantime I am in constant pain not only from my leg but also from the

implant itself. It feels like it is trying to work its way through my skin and

the area appears to be bruised and is incredibly sore. I can't sit down for very

long or walk very far. The only medication that offers a degree of pain relief

is Ketamine which I take in an oral solution but I don't like taking it as I had

a rather nasty experience with it a few weeks ago. I took an accidental overdose

due to a mix up at the pharmacy when the concentration of the solution was

increased from 50mg/5ml to 250mg/5ml and they didn't tell me. The hallucinations

were horrendous and the doctor told me that I was very lucky. I live on my own

and the experience has left me feeling very alone and vunerable.

I really don't know what to do any more I have no quality of life and am

virtually housebound. The whole experience has had a profound effect not only on

me but also on those people that I was closest to. I am on my own and have

become very withdrawn and I could do with someone to talk to who understands and

may know how I'm feeling.

Thank you for listening.

Best regards

October 13, 2008

Wow! that many injections? My doctor said there wouldn't be more than

three, then he'd go to Step Two.

> >

> > Hi everyone,

> >

> > My name is and I am having a few problems.

> >

> > I have an underlying problem with the circulation in my right leg. I

> have had 12 operations on my leg to date and as a result of all the

> surgery I have been left with chronic pain in my leg below the knee

> due to extensive nerve damage. I spent the best part of 3 months in

> hospital at the end of last year being pumped full of a cocktail of

> various drugs including morphine which did little for the pain.

> >

> > I had a stimulator fitted just before Christmas and it was the best

> present ever, no more pain and within 3 weeks I was off all medication

> and back at work.. I felt that I had got my life back. Unfortunately

> the lead attached to my spine became detached and migrated downwards.

> I had further surgery to correct the situation in February when I had

> a different type of lead fitted which involved the removal of a part

> of the bone. This didn't work as a subsequent x-ray showed that the

> lead had become detached from the implant.

> >

> > Until then I had been covered by private health insurance but my

> insurers decided to withdraw cover so i had to wait until April for

> further surgery. I underwent 3 operations in 2 days but they couldn't

> get the stimulator to work properly. I saw another neurosurgeon in May

> who promised he could fix things but I am still waiting for the

> operation with no indication of when it might be.

> >

> > In the meantime I am in constant pain not only from my leg but also

> from the implant itself. It feels like it is trying to work its way

> through my skin and the area appears to be bruised and is incredibly

> sore. I can't sit down for very long or walk very far.Ã‚Â The only

> medication that offers a degree of pain relief is Ketamine which I

> takeÃ‚Â in an oral solution but I don't like taking it as I had a rather

> nasty experience with it a few weeks ago. I took an accidental

> overdose due to a mix up at the pharmacy when the concentration of the

> solution was increased from 50mg/5ml to 250mg/5ml and they didn't tell

> me. The hallucinations were horrendous and the doctor told me that I

> was very lucky. I live on my own and the experience has left me

> feeling very alone and vunerable.

> >

> > I really don't know what to do any more I have no quality of life

> and am virtually housebound.. The whole experience has had a profound

> effect not only on me but also on those people that I was closest to.

> I am on my own and have become very withdrawn and I could do with

> someone to talk to who understands and may know how I'm feeling.

> >

> > Thank you for listening.

> >

> > Best regards

> >

October 13, 2008

You are so right so, depression and chronic pain go hand in hand if

you don't have your pain in control. The depression really has a hold

of me. The pain and the fact that I don't have insurance to see a

doctor. Some days I fell like giving up ! That's what happened to my

Dad and Mom, they could not take it and they decided to check out. Now

I'm left all alone and think of checking out myself. I take meds for

depression and some times I don't because I think who cares. I can't

wait until I get my insurance so I can get Help. It's hell to want help

and have no means of getting it. Sorry for this story but when I think

about it I'm just yelling from inside. P.S. The hard part is my Mom

went on thanksgiving and my Dad went on Fathers Day. And they wonder

why I'm Crazy !

>

> From: Woolrich john.woolrich@...

> Subject: Hello

> Stimulator

> Date: Monday, October 13, 2008, 11:16 AM

>

> Hi everyone,

>

> My name is and I am having a few problems.

>

> I have an underlying problem with the circulation in my right leg. I

have had 12 operations on my leg to date and as a result of all the

surgery I have been left with chronic pain in my leg below the knee due

to extensive nerve damage. I spent the best part of 3 months in hospital

at the end of last year being pumped full of a cocktail of various drugs

including morphine which did little for the pain.

>

> I had a stimulator fitted just before Christmas and it was the best

present ever, no more pain and within 3 weeks I was off all medication

and back at work. I felt that I had got my life back. Unfortunately the

lead attached to my spine became detached and migrated downwards. I had

further surgery to correct the situation in February when I had a

different type of lead fitted which involved the removal of a part of

the bone. This didn't work as a subsequent x-ray showed that the lead

had become detached from the implant..

>

> Until then I had been covered by private health insurance but my

insurers decided to withdraw cover so i had to wait until April for

further surgery. I underwent 3 operations in 2 days but they couldn't

get the stimulator to work properly. I saw another neurosurgeon in May

who promised he could fix things but I am still waiting for the

operation with no indication of when it might be.

>

> In the meantime I am in constant pain not only from my leg but also

from the implant itself. It feels like it is trying to work its way

through my skin and the area appears to be bruised and is incredibly

sore. I can't sit down for very long or walk very far. The only

medication that offers a degree of pain relief is Ketamine which I take

in an oral solution but I don't like taking it as I had a rather nasty

experience with it a few weeks ago. I took an accidental overdose due to

a mix up at the pharmacy when the concentration of the solution was

increased from 50mg/5ml to 250mg/5ml and they didn't tell me. The

hallucinations were horrendous and the doctor told me that I was very

lucky. I live on my own and the experience has left me feeling very

alone and vunerable.

>

> I really don't know what to do any more I have no quality of life and

am virtually housebound. The whole experience has had a profound effect

not only on me but also on those people that I was closest to. I am on

my own and have become very withdrawn and I could do with someone to

talk to who understands and may know how I'm feeling.

>

> Thank you for listening.

>

> Best regards

>

October 13, 2008

Hey Margie!

I wish you all the luck and success with your blocks on Wednesday!!

I was so glad to hear that the group has been helpful to you and for

you...that is great!

You are so right when you say that family just doesn't understand it

all....no matter how supportive and great they are...they are not the ones

inside

the pain....they can give us unconditional love and support which is totally

awesome, but no matter how hard they try...they do not know what we experience

on a daily basis...and this is why we can help eachother so greatly! I can't

tell you the friendships and help that I have received from the great folks

in this group....and I truly hope you have the same!

Gentle hugs and best of luck to you on Wednesday,

kathy G.

Group Co-owner

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

(http://local.mapquest.com/?ncid=emlcntnew00000002)

October 13, 2008

First things first, you are not crazy. Don't let anyone tell you that, and don't

tell yourself that. You have been through the unimaginable. You can't give up.

You are important. You have alot to live for. You have to think postive. Isn't

there some kind of aid that you can get without insurance? There has to be some

place you can go for help. Maybe your doctor can recommend something. It would

be so helpful if you could speak to someone. I don't know what you are going

through, but I have lost both my parents, so I know the empty, lost feeling. You

have this group and we are here to support you in any way we can. It's hard

enough to lose a parent, but to lose them on a special day, makes it so much

harder. Keeping all these feeling bottled up only increasing your pain level. I

am here if you or anyone else needs me.

Sue C

Moderator

From: cobranine <cobranine@...>

Subject: Re: Hello

Stimulator

Date: Tuesday, October 14, 2008, 1:43 AM