Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Hi and welcome to the group! I have a 12 y/o son with OCD. I live in North Carolina but my older sister (I'm 43) lives in Lindsey, Ontario! I think it's a couple hours from Toronto. You've been through a lot in 13 years! It is hard when your child has " something! " Especially if the something is apparently going to be a problem they'll have to deal with in some way their whole lives. But hopefully it IS something that as they mature they will learn better ways to handle themselves and deal with any problems/diagnoses they have. I'm hoping that for each of my kids (3 sons!) has been diagnosed with OCD since this time last year. He's in 7th grade now, and the OCD seemed to hit us hard right after he began 6th grade. I don't have him on any prescribed meds. He sees a psychologist where I work at once a month. I know what you mean about isolated somewhat. There's no close help here in my town for OCD and I work at our county mental health agency! There's just not a lot of OCD people (apparently) for any kind of nearby help. There's some great places a couple hours away, but I can't afford the time off work, plus my son is in school! Oh well...But THIS GROUP has been a lifesaver! The people here are a GREAT support!! Since the psychiatrist is gone, is that the only person she was getting help from? Is the hospital in Toronto just for her to go for a few weeks for help? How does she feel about going? You mentioned the medications, have they helped her a lot, as in she's a lot better now than when she wasn't taking any? What kind of OCD behaviors does she have? I know the SIB has to be tough! I suffered from depression myself at an earlier age and still feels it's shadow sometimes. Another group you might be interested in joining (lots of people belong to more than one group) is Shadow Syndrome Kids. Lots of people there are familiar with Tourettes and I think I've seen the PTSD plus OCD; also a lot of autism and other diagnoses. It's a big mix! Well, gotta go! Sons are calling! Please keep us posted on how you and your daughter are doing and how it works out with the hospital! in North Carolina > hi, I am from Ontario, Canada in a northwestern small city. We have > recently lost our only child psychiatrist. I have a just turned 13 > year old daughter who has severe treatment resistent OCD, mild > Tourettes, clinical depression and PTSD. She is very bright - reads > at a college level, speaks with an advanced vocabulary, is capable of > doing senior level academics when her symptoms are low. she has a > wonderful sense of humour, is creative, senstive, empathtic, curious, > kind and gentle. > > I find I am isolated; I know I am not alone but there isn't any > parent support groups here. I am thinking of starting one. She has > been in treatment for over a year - EMDR and CBT. She is on 2 types > of medications. She was out of school for grade 3, I homeschooled > her. She had to leave school in novemeber of last year and has just > returned to grade 8 but is only able to do half days and even that is > hard.She had a breakdown in grade 3, has been suicidal and self > harms. I live with my family or I wouldn't be able to do it on my > own. > > I am in the process of getting her into Sick Kid's hospital in > Toronto but it will be a real process as we live out of the area. > I don't really know why I am writing here, and it is a lot. But I am > afraid for my child and have just begun to accept the fact that she > has a real disability, maybe it is a grieving process...it is sad to > see your child suffer and hear her cry why can't she just be like > other children. > > Anyway I hope someone reads this and I will check back. Liisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 HI Liisa: I recognized many parallels in your story and ours. My son Steve, now 14, was also born in Canada although we now live in Hawaii. We also live in an isolated area where it take 4 months to see the only child psychiatrist in town. Steve has some of the same dxs as your daughter, i.e. OCD, depression and PTSD. IT is possible to treat our kids without using a in-patient facility. IT takes a lot of work and planning and if you have access to skilled facility which knows very well how to treat OCD the effort may not be worth it. Our facility for kids is under Federal sanctions for lots of upsetting reasons. So we did not want to send Steve there. We found a doc who could teach someone from out area how to do E & Rp and that made a lot of difference. We had to fly 500 miles each week round trip to get the therapist trained and then it took quite a while of treatment before Steve was doing self-E & RP. Now he is doing well. The MDD is under control with meds right now, and he does self-E & RP for the OCD. THe PTSD seems to have responded to the same therapy as the OCD. Your daughter sounds a delightful person. Our kids are very sensitive and thoughtful even when they seem otherwise due to their NBDs. You are so right there is a lot of grieving we have to go through about our kids and their NBDs. I had always hoped for so much for Steve and at least wanted him to have a happy life. Now I have learned to see things a bit differently. He will have an interesting life, and has had to learn to cope with adversity at the tender age of 10. I wish that this never had to happen. but it did and I am very proud of his strength and determination. We try to live each day as it goes and not jump ahead to far. This works for me too with my own health problems. Good luck to you and to your beloved daughter, take care, aloha, kathy (h) kathyh@... At 12:07 AM 10/07/2001 -0000, you wrote: >hi, I am from Ontario, Canada in a northwestern small city. We have >recently lost our only child psychiatrist. I have a just turned 13 >year old daughter who has severe treatment resistent OCD, mild >Tourettes, clinical depression and PTSD. She is very bright - reads >at a college level, speaks with an advanced vocabulary, is capable of >doing senior level academics when her symptoms are low. she has a >wonderful sense of humour, is creative, senstive, empathtic, curious, >kind and gentle. > >I find I am isolated; I know I am not alone but there isn't any >parent support groups here. I am thinking of starting one. She has >been in treatment for over a year - EMDR and CBT. She is on 2 types >of medications. She was out of school for grade 3, I homeschooled >her. She had to leave school in novemeber of last year and has just >returned to grade 8 but is only able to do half days and even that is >hard.She had a breakdown in grade 3, has been suicidal and self >harms. I live with my family or I wouldn't be able to do it on my >own. > >I am in the process of getting her into Sick Kid's hospital in >Toronto but it will be a real process as we live out of the area. >I don't really know why I am writing here, and it is a lot. But I am >afraid for my child and have just begun to accept the fact that she >has a real disability, maybe it is a grieving process...it is sad to >see your child suffer and hear her cry why can't she just be like >other children. > >Anyway I hope someone reads this and I will check back. Liisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Hi, Liisa, Welcome to this parent support group. I am glad you posted...you are writing to parents who have all shared your fear and concern at one time or another. Some have made it through the wortst of it and can see light at the end of the tunnel. I have found that knowing others have made life with OCD managable keeps me (who is in the middle of the worst of it) hopeful that better days will come. You and your daughter are really suffering now, so please continue to vent, ask questions and solicit support from this group. Our moderators have so much knowlege to share. I am glad you have your family as support. Take care and keep us posted. Melinda S. Dallas > hi, I am from Ontario, Canada in a northwestern small city. We have > recently lost our only child psychiatrist. I have a just turned 13 > year old daughter who has severe treatment resistent OCD, mild > Tourettes, clinical depression and PTSD. She is very bright - reads > at a college level, speaks with an advanced vocabulary, is capable of > doing senior level academics when her symptoms are low. she has a > wonderful sense of humour, is creative, senstive, empathtic, curious, > kind and gentle. > > I find I am isolated; I know I am not alone but there isn't any > parent support groups here. I am thinking of starting one. She has > been in treatment for over a year - EMDR and CBT. She is on 2 types > of medications. She was out of school for grade 3, I homeschooled > her. She had to leave school in novemeber of last year and has just > returned to grade 8 but is only able to do half days and even that is > hard.She had a breakdown in grade 3, has been suicidal and self > harms. I live with my family or I wouldn't be able to do it on my > own. > > I am in the process of getting her into Sick Kid's hospital in > Toronto but it will be a real process as we live out of the area. > I don't really know why I am writing here, and it is a lot. But I am > afraid for my child and have just begun to accept the fact that she > has a real disability, maybe it is a grieving process...it is sad to > see your child suffer and hear her cry why can't she just be like > other children. > > Anyway I hope someone reads this and I will check back. Liisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Welcome Liisa!, I have written to your reply, below what you have written. > hi, I am from Ontario, Canada in a northwestern > small city. We have > recently lost our only child psychiatrist. Will there be a replacement?? I have a > just turned 13 > year old daughter who has severe treatment resistent > OCD, mild > Tourettes, clinical depression and PTSD. I am very familiar with treatment resistant OCD and depression. I have a 17 y/o son who is doing much better now but is still treatment resistant. He has been taking medication for almost one year now, but is not open to CBT. We have been taking him to someone very knowledgeable who says our son has made very little changes since he started seeing this phycologist. It is very discouraging for me. Sometimes I want to blame the phycologist!! I am currently checking into another therapist who specializes in CBT, but without our son's co-operation I wonder if it will be a waste of time and money. I will never give up with finding the right person, but soon our son will be of legal age and he will be out on his own to handle his issues. She is very > bright - reads > at a college level, speaks with an advanced > vocabulary, is capable of > doing senior level academics when her symptoms are > low. she has a > wonderful sense of humor, is creative, sensitive, > empathetic, curious, > kind and gentle. Your daughter sounds like a wonderful, bright young lady. > > I find I am isolated; I know I am not alone but > there isn't any > parent support groups here. I am thinking of > starting one. Are you familiar with the OC Foundation web site? They have information about starting a support group. What a great idea of getting a group going. Here there is a NAMI group that meets once a month I sometimes attend. My main support is this group. I actually got a computer and Internet because we could not find anyone who was knowledga ble in this disorder on our area. I have been to two conferences and met others on this list and it gives great comfort to have others listen and relate to my concerns. She has > been in treatment for over a year - EMDR and CBT. > She is on 2 types > of medications. She was out of school for grade 3, I > homeschooled > her. She had to leave school in novemeber of last > year and has just > returned to grade 8 but is only able to do half days > and even that is > hard.She had a breakdown in grade 3, has been > suicidal and self > harms. I live with my family or I wouldn't be able > to do it on my > own. I am glad to hear you have the suppport of your family. Are the schools supportive? > > I am in the process of getting her into Sick Kid's > hospital in > Toronto but it will be a real process as we live out > of the area. I this a hospital that is familiar with treating OCD? > I don't really know why I am writing here, and it is > a lot. But I am > afraid for my child and have just begun to accept > the fact that she > has a real disability, maybe it is a grieving > process...it is sad to > see your child suffer and hear her cry why can't she > just be like > other children. I can relate to the grieving process. We see how much our children have to give and then to be ill and not able to function at times really can get you down. It seems she is doing much better since she is in school part time. You seem to be such a dedicated and caring Mom. Hope you find this list a helpful support. Welcome! > > Anyway I hope someone reads this and I will check > back. Liisa Glad to have you here Liisa, Vivian in WA ST > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 HI Liisa, We live in Ottawa, but I'm not at home right now/ If you give me some more info about what you are looking for, i can check to see what suggestions I have. In the last 2-3 years more professionals are being educated in the treatments options for ocd. Perhaps there is someone local who can conduct cognitive behavioural therapy using the exposure and response technique, and the family doc can prescribe medication if that is necessary. You mention that your daughter has severe treatment resistant ocd - no such thing!! What you need to do is find the right therapist, change many of your families behaviours that accomodate ocd, and then you will see that even severe ocd can be controlled!!! My husand and three live with ocd. We began treatment 5 years ago. My oldest, now 18, was diagnosed with severe ocd ++, he is doing amazingly well with medication and a little therapy. My 15yr old who originally had severe depression and severe ocd, is now med free and does not attend any therapy. My youngest is 12 and stopped medication in April. She is taking trazadone to help sleep since the attack on the States Sept. 11., but otherwise, she is doing well with continual therapy. I'm also a social worker trained by the Obsessive-Compulsive Foundations' ( www.ocfoundation.org ) Behavioural Therapy Institute. I'll be back in Ottawa towards next weekend. You can write me privately or through this list and I'll see what info I can find out for you.... If you have the time, our archives are a wealth of information. The files are up to date and can save you time in researching information. In the mean time - remember to take care of yourself! wendy, in canada ================================ --- clarkel3@... wrote: hi, I am from Ontario, Canada in a northwestern small city. We have recently lost our only child psychiatrist. I have a just turned 13 year old daughter who has severe treatment resistent OCD, mild Tourettes, clinical depression and PTSD. She is very bright - reads at a college level, speaks with an advanced vocabulary, is capable of doing senior level academics when her symptoms are low. she has a wonderful sense of humour, is creative, senstive, empathtic, curious, kind and gentle. I find I am isolated; I know I am not alone but there isn't any parent support groups here. I am thinking of starting one. She has been in treatment for over a year - EMDR and CBT. She is on 2 types of medications. She was out of school for grade 3, I homeschooled her. She had to leave school in novemeber of last year and has just returned to grade 8 but is only able to do half days and even that is hard.She had a breakdown in grade 3, has been suicidal and self harms. I live with my family or I wouldn't be able to do it on my own. I am in the process of getting her into Sick Kid's hospital in Toronto but it will be a real process as we live out of the area. I don't really know why I am writing here, and it is a lot. But I am afraid for my child and have just begun to accept the fact that she has a real disability, maybe it is a grieving process...it is sad to see your child suffer and hear her cry why can't she just be like other children. Anyway I hope someone reads this and I will check back. Liisa _______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Hi -- I also live in Ottawa. I don't post often on this site, but I do read it regularly. I would dearly love any suggestions or experience with therapists in Ottawa. Our 11 year old has had OCD for almost 2 years -- after some trial, Zoloft with a bit of Risperdal to take the edge of mania from the Zoloft has helped enormously. I am really pushing for therapy, but so far, the psych. isn't recommending it. We did have a poor experience with therapy very early on, but we were all in shock at the time from the very bad OCD -- something we had never heard of before. We have 2 other boys who seem to be symptom free, although one has some tendencies. Anyway, it sounds as if you have been around the OCD block a few times, and I have read your posts about rage and how you handle it. If you have the time, I would very much appreciate suggestions. Thanks so much -- . Re: new to this site >HI Liisa, > > We live in Ottawa, but I'm not at home right now/ If you give me >some more info about what you are looking for, i can check to see >what suggestions I have. In the last 2-3 years more professionals are >being educated in the treatments options for ocd. Perhaps there is >someone local who can conduct cognitive behavioural therapy using the >exposure and response technique, and the family doc can prescribe >medication if that is necessary. > > You mention that your daughter has severe treatment resistant ocd - >no such thing!! What you need to do is find the right therapist, >change many of your families behaviours that accomodate ocd, and then >you will see that even severe ocd can be controlled!!! > > My husand and three live with ocd. We began treatment 5 years ago. >My oldest, now 18, was diagnosed with severe ocd ++, he is doing >amazingly well with medication and a little therapy. My 15yr old who >originally had severe depression and severe ocd, is now med free and >does not attend any therapy. My youngest is 12 and stopped medication >in April. She is taking trazadone to help sleep since the attack on >the States Sept. 11., but otherwise, she is doing well with continual >therapy. > > I'm also a social worker trained by the Obsessive-Compulsive >Foundations' ( www.ocfoundation.org ) Behavioural Therapy Institute. >I'll be back in Ottawa towards next weekend. You can write me >privately or through this list and I'll see what info I can find out >for you.... If you have the time, our archives are a wealth of >information. The files are up to date and can save you time in >researching information. > > In the mean time - remember to take care of yourself! > >wendy, in canada >================================ >--- clarkel3@... wrote: >hi, I am from Ontario, Canada in a northwestern small city. We have >recently lost our only child psychiatrist. I have a just turned 13 >year old daughter who has severe treatment resistent OCD, mild >Tourettes, clinical depression and PTSD. She is very bright - reads >at a college level, speaks with an advanced vocabulary, is capable of > >doing senior level academics when her symptoms are low. she has a >wonderful sense of humour, is creative, senstive, empathtic, curious, > >kind and gentle. >I find I am isolated; I know I am not alone but there isn't any >parent support groups here. I am thinking of starting one. She has >been in treatment for over a year - EMDR and CBT. She is on 2 types >of medications. She was out of school for grade 3, I homeschooled >her. She had to leave school in novemeber of last year and has just >returned to grade 8 but is only able to do half days and even that is > >hard.She had a breakdown in grade 3, has been suicidal and self >harms. I live with my family or I wouldn't be able to do it on my >own. >I am in the process of getting her into Sick Kid's hospital in >Toronto but it will be a real process as we live out of the area. >I don't really know why I am writing here, and it is a lot. But I am >afraid for my child and have just begun to accept the fact that she >has a real disability, maybe it is a grieving process...it is sad to >see your child suffer and hear her cry why can't she just be like >other children. >Anyway I hope someone reads this and I will check back. Liisa > >_______________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Dear Liisa, Welcome to this wonderful group. What you are going through is so hard, and yes, it requires grieving. It takes some time (sometimes a long time) to realize that your child has a serious illness that isn't going to suddenly disappear, but eventually you will find peace even in that. (most of the time). I have a nine year old daughter who sounds much like your child - extremely bright, creative, funny, amazing... and suffers from severe OCD. At the moment she is off medication because the side effects were too much for us, but she is doing o.k. for now. I have learned though that nothing stays stable for very long with OCD, and have come to accept that we will have huge ups and downs. Being, or feeling, alone with this is the hardest part. My daughter had a sudden onset of OCD when she was four and it wasn't diagnosed correctly until she was almost eight. Those were the hardest years of my life. This group has helped me so much - I have learned that none of what my daughter has gone through is unique to her, and everyone here has wonderful, helpful suggestions. For those early years we too didn't have the right medical care available. And life was impossible. Getting a diagnosis and having a good child psychiatrist and a psychologist on board made all the difference. If you can't get good medical and psychiatric care where you are, then going to Toronto may be the best, though most difficult, thing. I think our family would have eventually imploded if we didn't get help (particularly medication, which more a year gave us complete peace!). Best wishes to you - please let us know how things are going. in Reno, mother of Annie (9) with OCD, and Ben (almost 6) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Patty, This is also my dilema. I have the added trouble of my 2 daughter's adhd/ocd behavior getting on my adhd/ocd nerves. I have been an enabler with my youngest (8). I have been too hard on my oldest (9). I am looking for the right solution also. for me, I step back and think, did I do this as a child? I try and ask my girls why they did something. If the answer is an ocd or adha one, I try and help them find ways to stop the behavior. I am trying my best! Somedays I feel like Mommy dearest! You are not alone, everyday presents new problems, just take them one incident at a time! We are all here for you! Peggy Sue-Ann * Mesa,Az. * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Im hopeing someone can help me understand something thats very confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd like her grades were not good this report card and should i say to myself oh alot of this is her ocd, or should i say she just wasnt paying attention like she should of been? I cant seperate, like theres times id get upset and yell about something she did that made me upset, but an hour later she explained to me she felt the urge to turn the tv off and on 6 times. then i felt bad, children need discipline but then again how do you know whats ocd and whats not, help me learn this please patty in california Re: new to this site Dear Liisa, Welcome to this wonderful group. What you are going through is so hard, and yes, it requires grieving. It takes some time (sometimes a long time) to realize that your child has a serious illness that isn't going to suddenly disappear, but eventually you will find peace even in that. (most of the time). I have a nine year old daughter who sounds much like your child - extremely bright, creative, funny, amazing... and suffers from severe OCD. At the moment she is off medication because the side effects were too much for us, but she is doing o.k. for now. I have learned though that nothing stays stable for very long with OCD, and have come to accept that we will have huge ups and downs. Being, or feeling, alone with this is the hardest part. My daughter had a sudden onset of OCD when she was four and it wasn't diagnosed correctly until she was almost eight. Those were the hardest years of my life. This group has helped me so much - I have learned that none of what my daughter has gone through is unique to her, and everyone here has wonderful, helpful suggestions. For those early years we too didn't have the right medical care available. And life was impossible. Getting a diagnosis and having a good child psychiatrist and a psychologist on board made all the difference. If you can't get good medical and psychiatric care where you are, then going to Toronto may be the best, though most difficult, thing. I think our family would have eventually imploded if we didn't get help (particularly medication, which more a year gave us complete peace!). Best wishes to you - please let us know how things are going. in Reno, mother of Annie (9) with OCD, and Ben (almost 6) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Hello Patty, until my daughter got a significant degree of relief from OCD thanks to ERP and medications, I just assumed that most problems were the disorder rather than disciplinary and was rarely wrong. When kids are struggling with significant symptoms, they lose choice about whether, for ex., to pay attention to the teacher vs. pay attention to the obsessions. Having OCD is like having a full time job, once its requirements are met, only then can the kids study, pay attention in class, control their behavior, have a social life, sleep, etc. In other words they are living their real lives around the edges of the OCD. You are right that a lot of OCD behavior can look like willful misbehavior, laziness, and so on. But OCD symptoms do not diminish or go away with punishment or consequences--as poor behavior will. That is one way to distinguish between behavior problems and OCD obsessions or compulsions. Once your daughter is successfully treated, it will be easier to distinguish between poor behavior and the OCD. It sounds like your daughter may need special accomodations in school, such as a 504 plan. She may be helped by a daily handout from the teacher, for example, to help her fill in the blanks when OCD steals her attention away. A very good book which discusses the sort of accomodations our children may need is " Teaching the Tiger. " Take care, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Im hopeing someone can help me understand something thats very confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd like her grades were not good this report card and should i say to myself oh alot of this is her ocd, or should i say she just wasnt paying attention like she should of been? I cant seperate, like theres times id get upset and yell about something she did that made me upset, but an hour later she explained to me she felt the urge to turn the tv off and on 6 times. then i felt bad, children need discipline but then again how do you know whats ocd and whats not, help me learn this please patty in california Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Dear Kathy, thanks so much for your advice, Im a single parent and i really have a hard time with knowing what to do alot of the times, i havent been real good with discipline , im such a softy , but again i dont let shauna get away with everything, she has had a hard time with friends , and i do feel sorry for her, any advise you can give me please do your greatly appreciated thank you , Patty in california .Psss Kathy how do i learn when shes truly haveing the ocd symptoms, you no for 3yrs councelors were pretty much telling me to ignore her because she just wanted attention, till finally i found a childrens psychiatrist who diagnost her right away with ocd, and her psychiologist thinks she also possibly has some psychotic traits also sooooo im still trying to get out of the wanting attention mode and do you know by councelors telling me that how many times i did ignore her or get angry at her or loose patience with her and just not want to listen, i feel terrable write back KKK Patty Re: new to this site Hello Patty, until my daughter got a significant degree of relief from OCD thanks to ERP and medications, I just assumed that most problems were the disorder rather than disciplinary and was rarely wrong. When kids are struggling with significant symptoms, they lose choice about whether, for ex., to pay attention to the teacher vs. pay attention to the obsessions. Having OCD is like having a full time job, once its requirements are met, only then can the kids study, pay attention in class, control their behavior, have a social life, sleep, etc. In other words they are living their real lives around the edges of the OCD. You are right that a lot of OCD behavior can look like willful misbehavior, laziness, and so on. But OCD symptoms do not diminish or go away with punishment or consequences--as poor behavior will. That is one way to distinguish between behavior problems and OCD obsessions or compulsions. Once your daughter is successfully treated, it will be easier to distinguish between poor behavior and the OCD. It sounds like your daughter may need special accomodations in school, such as a 504 plan. She may be helped by a daily handout from the teacher, for example, to help her fill in the blanks when OCD steals her attention away. A very good book which discusses the sort of accomodations our children may need is " Teaching the Tiger. " Take care, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Im hopeing someone can help me understand something thats very confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd like her grades were not good this report card and should i say to myself oh alot of this is her ocd, or should i say she just wasnt paying attention like she should of been? I cant seperate, like theres times id get upset and yell about something she did that made me upset, but an hour later she explained to me she felt the urge to turn the tv off and on 6 times. then i felt bad, children need discipline but then again how do you know whats ocd and whats not, help me learn this please patty in california You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 Dear Peggy sue, thanks for your advise, and yes its good to know im not alone, i just wish i had more answers so i could make better decisions about things, Im going back to work in a couple of weeks after being off 3.5months due to surgery and my girl will have to get up on her own and get ready for school , ill be at work and I CANT EVEN GET HER UP , she has always been a hard sleeper, but now takeing zoloft and resperdal she is truly a hard sleeper, any advise from anyone would be great, cause i am the soul support and do have to go back to work soon thanks much Patty in california Re: new to this site Patty, This is also my dilema. I have the added trouble of my 2 daughter's adhd/ocd behavior getting on my adhd/ocd nerves. I have been an enabler with my youngest (8). I have been too hard on my oldest (9). I am looking for the right solution also. for me, I step back and think, did I do this as a child? I try and ask my girls why they did something. If the answer is an ocd or adha one, I try and help them find ways to stop the behavior. I am trying my best! Somedays I feel like Mommy dearest! You are not alone, everyday presents new problems, just take them one incident at a time! We are all here for you! Peggy Sue-Ann * Mesa,Az. * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hi Patty! My name is Terry and I have a 6 year old with OCD. Right now, he is in " remission " and we are all enjoying a break from his OCD - especially him! I don't know if this is helpful or not. It will depend on how long your daughter has had the OCD and, probably the nature of the onset - whether it was very gradual or more of a rapid onset. Anyway, whenever I question whether Ben's behavior is OCD or acting out, I go back to the days _before_ his onset of OCD and ask myself if this was something we would have had to deal with then. 99 times out of 100, I realize that his behavior is OCD related - a " reflex " or knee-jerk reaction to the sudden anxiety he may feel due to an intrusive thought. Many times, we unwittingly trigger those intrusive thoughts by something we say or do, and unbeknownst to us, it happens to be something that the OCD grabs hold of - so....we say or do something and our child reacts " inappropriately " and it _is_ hard to distinguish sometimes. The bottom line....I try to establish a " personality " baseline from pre OCD days and then judge current behavior based on that - AND....when in doubt, I assume OCD is the culprit. I, personally, would rather cut him some slack and watch to see if the behavior shows up again in a different, non-stressful moment, than come down hard on him and unfairly punish him. Hang in there - it takes a lot of attentiveness and patience on our part. I think I am actually a better parent because of this, due to the fact that I rarely " snap " at Ben without thinking now, I work hard on taking a breath and stepping away from the situation before making any decisions - it has helped Ben too, as sometimes he will recognise his inappropriate behavior and resolve the issue first and be the first to apologise before things desintegrate..... Terry in NY > > Im hopeing someone can help me understand something thats very confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd like her grades were not good this report card and should i say to myself oh alot of this is her ocd, or should i say she just wasnt paying attention like she should of been? I cant seperate, like theres times id get upset and yell about something she did that made me upset, but an hour later she explained to me she felt the urge to turn the tv off and on 6 times. then i felt bad, children need discipline but then again how do you know whats ocd and whats not, help me learn this please patty in california > Re: new to this site > > Dear Liisa, > Welcome to this wonderful group. What you are going through is so > hard, and yes, it requires grieving. It takes some time (sometimes a long > time) to realize that your child has a serious illness that isn't going to > suddenly disappear, but eventually you will find peace even in that. (most of > the time). I have a nine year old daughter who sounds much like your child - > extremely bright, creative, funny, amazing... and suffers from severe OCD. At > the moment she is off medication because the side effects were too much for > us, but she is doing o.k. for now. I have learned though that nothing stays > stable for very long with OCD, and have come to accept that we will have huge > ups and downs. Being, or feeling, alone with this is the hardest part. My > daughter had a sudden onset of OCD when she was four and it wasn't diagnosed > correctly until she was almost eight. Those were the hardest years of my > life. This group has helped me so much - I have learned that none of what my > daughter has gone through is unique to her, and everyone here has wonderful, > helpful suggestions. > For those early years we too didn't have the right medical care > available. And life was impossible. Getting a diagnosis and having a good > child psychiatrist and a psychologist on board made all the difference. If > you can't get good medical and psychiatric care where you are, then going to > Toronto may be the best, though most difficult, thing. I think our family > would have eventually imploded if we didn't get help (particularly > medication, which more a year gave us complete peace!). > Best wishes to you - please let us know how things are going. > in Reno, > mother of Annie (9) with OCD, and Ben (almost 6) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 how do i learn when shes truly haveing the ocd symptoms, you no for 3yrs councelors were pretty much telling me to ignore her because she just wanted attention, till finally i found a childrens psychiatrist who diagnost her right away with ocd, and her psychiologist thinks she also possibly has some psychotic traits also sooooo im still trying to get out of the wanting attention mode and do you know by councelors telling me that how many times i did ignore her or get angry at her or loose patience with her and just not want to listen, i feel terrable Hi Again Patty, I just wanted to comment on this because I had a similar experience with a counselor, but fortunately I had begun to learn more about OCD on my own AND I had found this group for support. It was when Ben's first counselor commented that he was wondering if Ben was just looking for attention that I realized we had the wrong person to help. If your daughter is a " reassurance seeker " then you may very well be the " compulsive " side of your daughter's OCD. Ben was/is that way. When he has an obsessive thought, his compulsion is to ask me if he is going to die, get hurt or go to jail because of what he thought. He _had_ to ask and sometimes I _had_ to answer in a certain way or he'd _have_ to ask again. So, while he met with his therapist, he would be fine, then I would walk in the door and WHAM... " mom, am I going to die because?....and Mom, am I going to go to jail because?.... and Mom can this electrocute me? " so it looked like he just wanted my attention. DON'T feel guilty! You are doing the best you can and you are getting on the right track now! You should be proud of yourself for recognising your own need to get help and doing it! Keep asking the questions and educating yourself. And keep advocating for your daughter - let go of the past " failures " and keep moving forward. Though I have felt bad for the few months Ben was getting no help from the other therapist, on the other hand, I knew _nothing_ about OCD and was trusting that, if the therapist didn't know how to treat OCD, then he would direct us to someone who did. I have learned a valuable lesson - when it comes to my kids or our health, I will assume nothing. I will begin digging and asking questions right away - then I'll know when/if we're on the right track. Hang in there - you're a great mom and your daughter is lucky to have you! Terry in NY > > Re: new to this site > > Hello Patty, until my daughter got a significant degree of relief from OCD > thanks to ERP and medications, I just assumed that most problems were the > disorder rather than disciplinary and was rarely wrong. When kids are > struggling with significant symptoms, they lose choice about whether, for > ex., to pay attention to the teacher vs. pay attention to the obsessions. > Having OCD is like having a full time job, once its requirements are met, > only then can the kids study, pay attention in class, control their > behavior, have a social life, sleep, etc. In other words they are living > their real lives around the edges of the OCD. > > You are right that a lot of OCD behavior can look like willful misbehavior, > laziness, and so on. But OCD symptoms do not diminish or go away with > punishment or consequences--as poor behavior will. That is one way to > distinguish between behavior problems and OCD obsessions or compulsions. > Once your daughter is successfully treated, it will be easier to distinguish > between poor behavior and the OCD. > > It sounds like your daughter may need special accomodations in school, such > as a 504 plan. She may be helped by a daily handout from the teacher, for > example, to help her fill in the blanks when OCD steals her attention away. > A very good book which discusses the sort of accomodations our children may > need is " Teaching the Tiger. " > > Take care, > Kathy R. in Indiana > > ----- Original Message ----- > From: " patricia manzanares " <pattymanzanares@m...> > > Im hopeing someone can help me understand something thats very > confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd > like her grades were not good this report card and should i say to myself oh > alot of this is her ocd, or should i say she just wasnt paying attention > like she should of been? I cant seperate, like theres times id get upset and > yell about something she did that made me upset, but an hour later she > explained to me she felt the urge to turn the tv off and on 6 times. then i > felt bad, children need discipline but then again how do you know whats ocd > and whats not, help me learn this please patty in california > > > > You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe@y... . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe@y... . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@b... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hello Patty, one bit of practical advice here is to see if you can divide her Risperdal dose or otherwise change the timing of the dose. Risperdal also makes my daughter sleepy, and dividing the pill and giving it twice during the day (rather than all at night) made it easier for her to get up in the morning once school started, less grogginess, etc. Another thought it, do you have a neighbor who might be willing to drop in to make sure your daughter is up on school mornings? My working Mom did this, the neighbor just got us up and going, then went on back home. Finally, would your daughter consider going to bed earlier on school nights? That sounds simple enough but might make the difference in the morning. BTW, I can pretty much control when my daughter falls asleep by the timing of her Risperdal, she's out about an hour after I give it to her. Sneaky, but works! Take care, Kathy ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Dear Peggy sue, thanks for your advise, and yes its good to know im not alone, i just wish i had more answers so i could make better decisions about things, Im going back to work in a couple of weeks after being off 3.5months due to surgery and my girl will have to get up on her own and get ready for school , ill be at work and I CANT EVEN GET HER UP , she has always been a hard sleeper, but now takeing zoloft and resperdal she is truly a hard sleeper, any advise from anyone would be great, cause i am the soul support and do have to go back to work soon thanks much Patty in california Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> >Psss Kathy how do i learn when shes truly haveing the ocd symptoms, you no for 3yrs councelors were pretty much telling me to ignore her because she just wanted attention, till finally i found a childrens psychiatrist who diagnost her right away with ocd, and her psychiologist thinks she also possibly has some psychotic traits also sooooo im still trying to get out of the wanting attention mode and do you know by councelors telling me that how many times i did ignore her or get angry at her or loose patience with her and just not want to listen, i feel terrable write back KKK Patty Patty, does your gut instinct tell you that your daughter is using her OCD to get out of things, for example? If she is, she wouldn't be the first kid to do this. If you don't, I would just believe her. OCD can be so fantastically weird, and it's hard for us non-OCDers to really understand when someone with OCD " must " do something. If I were you I'd forget the advice of the therapists who suggested ignoring her unwanted behavior, this is the classic wrong advice that many of us get before our child is properly diagnosed. It may be a reasonable starting point, but if this technique were going to work, it wouldn't take anywhere near three years to show results. If I were you, I would take on the attitude that your daughter doesn't want to do OCD behaviors either--in truth OCDers **hate** the obsessions and compulsions and desperately wish they would go away. This puts you and your child on the same side against the OCD enemy. When kids are having symptoms, their anxiety rises: they might become agitated, irritable, angry or worse, especially if they are prevented from doing compulsions to reduce this unpleasant feeling. If your daughter is acting anxious, that's a good clue that she's experiencing symptoms. Regarding psychosis: my daughter also seemed psychotic, according to her first psychiatrist, at OCD onset. Proper treatment of the OCD made this go away. A lot of our kids get other dxes on top of the OCD, but when OCD is properly treated, the other problems go away. It's not a guarantee of course, and OCD kids can certainly have other brain disorders as well, but getting good control of the OCD is first in my opinion. Then, any remaining problems can be addressed. It's understandable that you feel terrible at the memory of reacting with anger at your daughter's symptoms. But you can only go on the information you have--now you know these things are likely OCD symptoms. I still get angry and upset sometimes at my daughter's symptoms, but am able to tell her that I need a time out from OCD, then I go into the next room to gather myself and regain my perspective. You are doing a good job, and the hardest part is behind you. Your daughter is taking meds for her OCD and, I hope, receiving effective ERP therapy. It won't be long before you feel you are good at being the mom of an OCDer. Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Dear Kathy, you are a wonderful person and you have msde me feel so much better, i think you might be my guardian angel haha I can tell you have alot of experience and boy is it appreciated Kathy, thanks so much and please email me again when you can your great patty in california bye Re: new to this site ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> >Psss Kathy how do i learn when shes truly haveing the ocd symptoms, you no for 3yrs councelors were pretty much telling me to ignore her because she just wanted attention, till finally i found a childrens psychiatrist who diagnost her right away with ocd, and her psychiologist thinks she also possibly has some psychotic traits also sooooo im still trying to get out of the wanting attention mode and do you know by councelors telling me that how many times i did ignore her or get angry at her or loose patience with her and just not want to listen, i feel terrable write back KKK Patty Patty, does your gut instinct tell you that your daughter is using her OCD to get out of things, for example? If she is, she wouldn't be the first kid to do this. If you don't, I would just believe her. OCD can be so fantastically weird, and it's hard for us non-OCDers to really understand when someone with OCD " must " do something. If I were you I'd forget the advice of the therapists who suggested ignoring her unwanted behavior, this is the classic wrong advice that many of us get before our child is properly diagnosed. It may be a reasonable starting point, but if this technique were going to work, it wouldn't take anywhere near three years to show results. If I were you, I would take on the attitude that your daughter doesn't want to do OCD behaviors either--in truth OCDers **hate** the obsessions and compulsions and desperately wish they would go away. This puts you and your child on the same side against the OCD enemy. When kids are having symptoms, their anxiety rises: they might become agitated, irritable, angry or worse, especially if they are prevented from doing compulsions to reduce this unpleasant feeling. If your daughter is acting anxious, that's a good clue that she's experiencing symptoms. Regarding psychosis: my daughter also seemed psychotic, according to her first psychiatrist, at OCD onset. Proper treatment of the OCD made this go away. A lot of our kids get other dxes on top of the OCD, but when OCD is properly treated, the other problems go away. It's not a guarantee of course, and OCD kids can certainly have other brain disorders as well, but getting good control of the OCD is first in my opinion. Then, any remaining problems can be addressed. It's understandable that you feel terrible at the memory of reacting with anger at your daughter's symptoms. But you can only go on the information you have--now you know these things are likely OCD symptoms. I still get angry and upset sometimes at my daughter's symptoms, but am able to tell her that I need a time out from OCD, then I go into the next room to gather myself and regain my perspective. You are doing a good job, and the hardest part is behind you. Your daughter is taking meds for her OCD and, I hope, receiving effective ERP therapy. It won't be long before you feel you are good at being the mom of an OCDer. Kathy R. in Indiana You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hi Kathy , Thanks for your advice, you know her dr, has shauna on 1tablet three times a day so she takes i in am about 8 and about 3 then about 8;30pm and goes to bed about 9;30 but maybe i can give shauna 1 tab at 6am them if schoolcan give her at 1pm and then i can give at about 6 thanks ill try that, and yes theres an elderly lady liveing next door but she is takeing care of her husband who has altimers so i really dont want to impose, can you think of anything else, id appreciate it. Kathy i did go buy a alarm clock and its pretty loud, we will see how she does, but i highly doubt it, thanks patty in california Re: new to this site Hello Patty, one bit of practical advice here is to see if you can divide her Risperdal dose or otherwise change the timing of the dose. Risperdal also makes my daughter sleepy, and dividing the pill and giving it twice during the day (rather than all at night) made it easier for her to get up in the morning once school started, less grogginess, etc. Another thought it, do you have a neighbor who might be willing to drop in to make sure your daughter is up on school mornings? My working Mom did this, the neighbor just got us up and going, then went on back home. Finally, would your daughter consider going to bed earlier on school nights? That sounds simple enough but might make the difference in the morning. BTW, I can pretty much control when my daughter falls asleep by the timing of her Risperdal, she's out about an hour after I give it to her. Sneaky, but works! Take care, Kathy ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Dear Peggy sue, thanks for your advise, and yes its good to know im not alone, i just wish i had more answers so i could make better decisions about things, Im going back to work in a couple of weeks after being off 3.5months due to surgery and my girl will have to get up on her own and get ready for school , ill be at work and I CANT EVEN GET HER UP , she has always been a hard sleeper, but now takeing zoloft and resperdal she is truly a hard sleeper, any advise from anyone would be great, cause i am the soul support and do have to go back to work soon thanks much Patty in california You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 Hi Terry, it sounds like your a great mom, and i want to thank you so much, you dont even know how much better you have made me feel, yes Shauna to would tell me the same things over and over and over again sometimes i felt like i was going crazy cause YES it was only with me and no one else i couldnt figure it out, funny to say at one point and time i started to think maybe she was doing this on pourpose to make me crazy hahaah man this is a hard one to learn, and i sure do appreciate any advice you have for me Terry, you know Shauna is going through puberty and 11yrs old , possibly starting her period soon and och talk about an emotionable roller coaster, but thank you for saying im a good mom , i dont think anyone has said that before, Thank you Patty in calif. Re: new to this site > > Hello Patty, until my daughter got a significant degree of relief from OCD > thanks to ERP and medications, I just assumed that most problems were the > disorder rather than disciplinary and was rarely wrong. When kids are > struggling with significant symptoms, they lose choice about whether, for > ex., to pay attention to the teacher vs. pay attention to the obsessions. > Having OCD is like having a full time job, once its requirements are met, > only then can the kids study, pay attention in class, control their > behavior, have a social life, sleep, etc. In other words they are living > their real lives around the edges of the OCD. > > You are right that a lot of OCD behavior can look like willful misbehavior, > laziness, and so on. But OCD symptoms do not diminish or go away with > punishment or consequences--as poor behavior will. That is one way to > distinguish between behavior problems and OCD obsessions or compulsions. > Once your daughter is successfully treated, it will be easier to distinguish > between poor behavior and the OCD. > > It sounds like your daughter may need special accomodations in school, such > as a 504 plan. She may be helped by a daily handout from the teacher, for > example, to help her fill in the blanks when OCD steals her attention away. > A very good book which discusses the sort of accomodations our children may > need is " Teaching the Tiger. " > > Take care, > Kathy R. in Indiana > > ----- Original Message ----- > From: " patricia manzanares " <pattymanzanares@m...> > > Im hopeing someone can help me understand something thats very > confuseing, my daughter is 11yrs old and i cant seperate discipline from ocd > like her grades were not good this report card and should i say to myself oh > alot of this is her ocd, or should i say she just wasnt paying attention > like she should of been? I cant seperate, like theres times id get upset and > yell about something she did that made me upset, but an hour later she > explained to me she felt the urge to turn the tv off and on 6 times. then i > felt bad, children need discipline but then again how do you know whats ocd > and whats not, help me learn this please patty in california > > > > You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe@y... . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe@y... . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@b... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 In a message dated 10/10/01 5:28:28 PM Eastern Daylight Time, pattymanzanares@... writes: > Hi Kathy , I used the alarm clock and yes it was loud, but it didnt even > phase her , any more ideas would be great thanx Patty in calif,----- O I have a suggestion for you.. Do you have an alarm clock with the buzzer sound instead of the radio? This may have been suggested, if so sorry. My son's alarm has both settings and sometime he needs the buzzer sound. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Kathy i did go buy a alarm clock and its pretty loud, we will see how she does, but i highly doubt it, thanks patty in california Hope it doesn't have a snooze button! :-) Sometimes our kids rise to the occasion and surprise us, and there's some chance your daughter may do just fine getting herself up and ready for school. If not, once you see what the problem is, you can address that problem. Good luck, Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Yeah, but what's so hard about hitting the snooze button and climbing right back into bed?? Annie does that every morning. And is still furious when we wake her up again later. I'm thinking about a series of hidden alarm clocks for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Hi Kathy , I used the alarm clock and yes it was loud, but it didnt even phase her , any more ideas would be great thanx Patty in calif,----- Original Message ----- From: Kathy Sent: Wednesday, October 10, 2001 1:47 PM Subject: Re: new to this site ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Kathy i did go buy a alarm clock and its pretty loud, we will see how she does, but i highly doubt it, thanks patty in california Hope it doesn't have a snooze button! :-) Sometimes our kids rise to the occasion and surprise us, and there's some chance your daughter may do just fine getting herself up and ready for school. If not, once you see what the problem is, you can address that problem. Good luck, Kathy R. in Indiana You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Patty, I can relate to your " wake-up " delimma. I have 2 boys... a 15 YO with OCD and a 14 YO who is just a typical teen. When (15 YO) was on Risperdal he took only 1 tablet (don't remember the dosage) and it made him very sleepy. We altered the time he took it, but it never seemed to help. At night, he would fight the sleepiness which only made homework time much longer and less efficient. But finally, when he would give in to the sleep, it knocked him out. He was also very, very sleepy in class. This was also possibly a reaction the the paxil he was on. Finally, he so hated the sleepiness, that he went off all meds for a while and has just started back on Prozac recently. His brother, who takes no meds, is even harder to get up in the morning...he is just out cold!!! An alarm in his ear does no good. I often heave to sprinkle water on his face. I will also be returning to work soon, and I suspect that Jeff will be spending significant time in detention hall for tardies. Hang in there...You are doing great...just know you are not alone. Melinda S. Dallas > Hi Kathy , Thanks for your advice, you know her dr, has shauna on 1tablet three times a day so she takes i in am about 8 and about 3 then about 8;30pm and goes to bed about 9;30 but maybe i can give shauna 1 tab at 6am them if schoolcan give her at 1pm and then i can give at about 6 thanks ill try that, and yes theres an elderly lady liveing next door but she is takeing care of her husband who has altimers so i really dont want to impose, can you think of anything else, id appreciate it. Kathy i did go buy a alarm clock and its pretty loud, we will see how she does, but i highly doubt it, thanks patty in california > > Re: new to this site > > Hello Patty, one bit of practical advice here is to see if you can divide > her Risperdal dose or otherwise change the timing of the dose. Risperdal > also makes my daughter sleepy, and dividing the pill and giving it twice > during the day (rather than all at night) made it easier for her to get up > in the morning once school started, less grogginess, etc. > > Another thought it, do you have a neighbor who might be willing to drop in > to make sure your daughter is up on school mornings? My working Mom did > this, the neighbor just got us up and going, then went on back home. > > Finally, would your daughter consider going to bed earlier on school nights? > That sounds simple enough but might make the difference in the morning. > BTW, I can pretty much control when my daughter falls asleep by the timing > of her Risperdal, she's out about an hour after I give it to her. Sneaky, > but works! > > Take care, > Kathy > > > > ----- Original Message ----- > From: " patricia manzanares " <pattymanzanares@m...> > > > Dear Peggy sue, thanks for your advise, and yes its good to know im not > alone, i just wish i had more answers so i could make better decisions about > things, Im going back to work in a couple of weeks after being off 3.5months > due to surgery and my girl will have to get up on her own and get ready for > school , ill be at work and I CANT EVEN GET HER UP , she has always been a > hard sleeper, but now takeing zoloft and resperdal she is truly a hard > sleeper, any advise from anyone would be great, cause i am the soul support > and do have to go back to work soon thanks much Patty in california > > > > > You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe@y... . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe@y... . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@b... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Of course, putting the alarm clock across the room can help too - then if there is a snooze button, they can't hit it without getting out of bed first. Terry > In a message dated 10/10/01 5:28:28 PM Eastern Daylight Time, > pattymanzanares@m... writes: > > > > Hi Kathy , I used the alarm clock and yes it was loud, but it didnt even > > phase her , any more ideas would be great thanx Patty in calif,----- O > > I have a suggestion for you.. Do you have an alarm clock with the buzzer > sound instead of the radio? This may have been suggested, if so sorry. My > son's alarm has both settings and sometime he needs the buzzer sound. > > > Tammy > > > > > Quote Link to comment Share on other sites More sharing options...
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