Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Hello sandra and welcome to the masgutova family! I have heard a famous qote that the only guarantees in life are death and taxes, so I will not guarantee anything. I am happy to say that I have never seen anybody who did not progress with the masgutova method! I believe you are at the beginning of a great journey! Blessings to both of you, Sent from my BlackBerry® by Boost MobileFrom: Moreira <s.moreira@...>Sender: Date: Fri, 8 Apr 2011 20:01:19 -0700 (PDT)<CHILDRENWITHCHALLENGESGROUPS (DOT) COM>Reply Subject: Introduction Hello Everyone,thank you for welcoming me to your group.My name is , I live in Richmond, BC. I am a single parent of a wonderful 6 year old boy. He has always been a lovely and happy child. From a very young age he's had some difficulties with motor skils and language. Some of the doctors we saw thought he could be autistic. That was ruled out. In the last 2 years he's been meeting the criteria for an ADHD diagnose, and, most recently, after a strep throat infection, for OCD.We've seen a great doctor in chinese medicine in Vancouver and she told us about the masgutova method. We'll have our first consultation in 2 weeks.I feel very hopeless withf the lack oo compassion from most health professionals I've seen so far, and the frightening reliance on medication to treat both ADHD and OCD. The masgutova method is bringing back a little light at the end of the tunnel. I'm very afraid of raising my hopes too high.I'm here to try and learn with you all and possibly share my fears, hopes and, who knows, successes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 I have just learned that OCD stems from issues in the basal ganglia of the brain. Svetlana can surely help release any pressure that may be there. From: Moreira <s.moreira@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Fri, April 8, 2011 11:01:19 PMSubject: Introduction Hello Everyone, thank you for welcoming me to your group. My name is , I live in Richmond, BC. I am a single parent of a wonderful 6 year old boy. He has always been a lovely and happy child. From a very young age he's had some difficulties with motor skils and language. Some of the doctors we saw thought he could be autistic. That was ruled out. In the last 2 years he's been meeting the criteria for an ADHD diagnose, and, most recently, after a strep throat infection, for OCD. We've seen a great doctor in chinese medicine in Vancouver and she told us about the masgutova method. We'll have our first consultation in 2 weeks. I feel very hopeless withf the lack oo compassion from most health professionals I've seen so far, and the frightening reliance on medication to treat both ADHD and OCD. The masgutova method is bringing back a little light at the end of the tunnel. I'm very afraid of raising my hopes too high. I'm here to try and learn with you all and possibly share my fears, hopes and, who knows, successes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 ,Did you doctor address diet for OCD symptoms?On Fri, Apr 8, 2011 at 10:01 PM, Moreira <s.moreira@...> wrote: Hello Everyone, thank you for welcoming me to your group. My name is , I live in Richmond, BC. I am a single parent of a wonderful 6 year old boy. He has always been a lovely and happy child. From a very young age he's had some difficulties with motor skils and language. Some of the doctors we saw thought he could be autistic. That was ruled out. In the last 2 years he's been meeting the criteria for an ADHD diagnose, and, most recently, after a strep throat infection, for OCD. We've seen a great doctor in chinese medicine in Vancouver and she told us about the masgutova method. We'll have our first consultation in 2 weeks. I feel very hopeless withf the lack oo compassion from most health professionals I've seen so far, and the frightening reliance on medication to treat both ADHD and OCD. The masgutova method is bringing back a little light at the end of the tunnel. I'm very afraid of raising my hopes too high. I'm here to try and learn with you all and possibly share my fears, hopes and, who knows, successes. -- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurpose.comNatural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe now mild!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Good luck - I hope your gains continue. If the OCD started after strep, you should look into PANDAS (if you have not already). On 4/9/11, Donna Bateman <donna.bateman@...> wrote: > , > Did you doctor address diet for OCD symptoms? > > On Fri, Apr 8, 2011 at 10:01 PM, Moreira <s.moreira@...> wrote: > >> >> >> Hello Everyone, >> thank you for welcoming me to your group. >> My name is , I live in Richmond, BC. I am a single parent of a >> wonderful 6 year old boy. He has always been a lovely and happy child. >> From >> a very young age he's had some difficulties with motor skils and language. >> Some of the doctors we saw thought he could be autistic. That was ruled >> out. >> In the last 2 years he's been meeting the criteria for an ADHD diagnose, >> and, most recently, after a strep throat infection, for OCD. >> We've seen a great doctor in chinese medicine in Vancouver and she told us >> about the masgutova method. We'll have our first consultation in 2 weeks. >> I feel very hopeless withf the lack oo compassion from most health >> professionals I've seen so far, and the frightening reliance on >> medication >> to treat both ADHD and OCD. The masgutova method is bringing back a little >> light at the end of the tunnel. I'm very afraid of raising my hopes too >> high. >> I'm here to try and learn with you all and possibly share my fears, hopes >> and, who knows, successes. >> >> >> >> > > > > -- > Donna Bateman > Neurodevelopmental Specialist > www.parentswithpurpose.com > Natural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib > Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie > 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe > now mild!) > -- Sent from my mobile device Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 What is PANDAS? Best,Stacey VoinisOn Apr 9, 2011, at 8:23 PM, Amy Hamilton <amyoamyo@...> wrote: Good luck - I hope your gains continue. If the OCD started after strep, you should look into PANDAS (if you have not already). On 4/9/11, Donna Bateman <donna.bateman@...> wrote: > , > Did you doctor address diet for OCD symptoms? > > On Fri, Apr 8, 2011 at 10:01 PM, Moreira <s.moreira@...> wrote: > >> >> >> Hello Everyone, >> thank you for welcoming me to your group. >> My name is , I live in Richmond, BC. I am a single parent of a >> wonderful 6 year old boy. He has always been a lovely and happy child. >> From >> a very young age he's had some difficulties with motor skils and language. >> Some of the doctors we saw thought he could be autistic. That was ruled >> out. >> In the last 2 years he's been meeting the criteria for an ADHD diagnose, >> and, most recently, after a strep throat infection, for OCD. >> We've seen a great doctor in chinese medicine in Vancouver and she told us >> about the masgutova method. We'll have our first consultation in 2 weeks. >> I feel very hopeless withf the lack oo compassion from most health >> professionals I've seen so far, and the frightening reliance on >> medication >> to treat both ADHD and OCD. The masgutova method is bringing back a little >> light at the end of the tunnel. I'm very afraid of raising my hopes too >> high. >> I'm here to try and learn with you all and possibly share my fears, hopes >> and, who knows, successes. >> >> >> >> > > > > -- > Donna Bateman > Neurodevelopmental Specialist > www.parentswithpurpose.com > Natural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib > Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie > 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe > now mild!) > -- Sent from my mobile device Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 How to detect and the treatment? E.g. the strep in the brain? As I know it's related to immune system. Tx.Sent from my BlackBerry®powered by Sinyal Kuat INDOSATFrom: Stacey Voinis <sgvoinis@...>Sender: Date: Sat, 9 Apr 2011 20:47:33 -0500 < >Reply Cc: < >Subject: Re: Introduction What is PANDAS? Best,Stacey VoinisOn Apr 9, 2011, at 8:23 PM, Amy Hamilton <amyoamyo@...> wrote: Good luck - I hope your gains continue. If the OCD started afterstrep, you should look into PANDAS (if you have not already).On 4/9/11, Donna Bateman <donna.bateman@...> wrote:> ,> Did you doctor address diet for OCD symptoms?>> On Fri, Apr 8, 2011 at 10:01 PM, Moreira <s.moreira@...> wrote:>>>>>>> Hello Everyone,>> thank you for welcoming me to your group.>> My name is , I live in Richmond, BC. I am a single parent of a>> wonderful 6 year old boy. He has always been a lovely and happy child.>> From>> a very young age he's had some difficulties with motor skils and language.>> Some of the doctors we saw thought he could be autistic. That was ruled>> out.>> In the last 2 years he's been meeting the criteria for an ADHD diagnose,>> and, most recently, after a strep throat infection, for OCD.>> We've seen a great doctor in chinese medicine in Vancouver and she told us>> about the masgutova method. We'll have our first consultation in 2 weeks.>> I feel very hopeless withf the lack oo compassion from most health>> professionals I've seen so far, and the frightening reliance on>> medication>> to treat both ADHD and OCD. The masgutova method is bringing back a little>> light at the end of the tunnel. I'm very afraid of raising my hopes too>> high.>> I'm here to try and learn with you all and possibly share my fears, hopes>> and, who knows, successes.>> >>>>>>>>>> --> Donna Bateman> Neurodevelopmental Specialist> www.parentswithpurpose.com> Natural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib> Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie> 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe> now mild!)>-- Sent from my mobile device Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep. This is a brief description from http://www.internationalpandasfoundation.org/obsessivecompulsivedisorder/Home.ht\ ml - the International Pandas Foundation Site: " Sometimes when children present with difficult behaviors they are given a mental health diagnosis without considering whether an infection might be the root cause of the disorder. When the child's behaviors are the result of strep antibodies attacking the basal ganglia of the brain, the condition is known as PANDAS: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep. Once the condition is triggered by strep, subsequent exacerbations can be caused by other bacteria or viruses such as the flu. " This can result in OCD, ADHD, motor & verbal tics, etc. Hope that this is helpful - there is much more information on the site itself. Take care, ~ Keri > > > > > >> > > >> > > >> Hello Everyone, > > >> thank you for welcoming me to your group. > > >> My name is , I live in Richmond, BC. I am a single parent of a > > >> wonderful 6 year old boy. He has always been a lovely and happy child. > > >> From > > >> a very young age he's had some difficulties with motor skils and language. > > >> Some of the doctors we saw thought he could be autistic. That was ruled > > >> out. > > >> In the last 2 years he's been meeting the criteria for an ADHD diagnose, > > >> and, most recently, after a strep throat infection, for OCD. > > >> We've seen a great doctor in chinese medicine in Vancouver and she told us > > >> about the masgutova method. We'll have our first consultation in 2 weeks. > > >> I feel very hopeless withf the lack oo compassion from most health > > >> professionals I've seen so far, and the frightening reliance on > > >> medication > > >> to treat both ADHD and OCD. The masgutova method is bringing back a little > > >> light at the end of the tunnel. I'm very afraid of raising my hopes too > > >> high. > > >> I'm here to try and learn with you all and possibly share my fears, hopes > > >> and, who knows, successes. > > >> > > >> > > >> > > >> > > > > > > > > > > > > -- > > > Donna Bateman > > > Neurodevelopmental Specialist > > > www.parentswithpurpose.com > > > Natural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib > > > Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie > > > 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe > > > now mild!) > > > > > > > -- > > Sent from my mobile device > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Hopefully, DR.Nelli Akhmatov will do some research one day about PANDAS. And MNRI Neurostructure is able to improve the immune system of the kids. :-)Sent from my BlackBerry®powered by Sinyal Kuat INDOSATFrom: "wkirek" <kerikw@...>Sender: Date: Sun, 10 Apr 2011 02:06:46 -0000< >Reply Subject: Re: Introduction PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep.This is a brief description from http://www.internationalpandasfoundation.org/obsessivecompulsivedisorder/Home.html- the International Pandas Foundation Site: " Sometimes when children present with difficult behaviors they are given a mental health diagnosis without considering whether an infection might be the root cause of the disorder. When the child's behaviors are the result of strep antibodies attacking the basal ganglia of the brain, the condition is known as PANDAS: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep. Once the condition is triggered by strep, subsequent exacerbations can be caused by other bacteria or viruses such as the flu. " This can result in OCD, ADHD, motor & verbal tics, etc.Hope that this is helpful - there is much more information on the site itself.Take care,~ Keri> > >> > >>> > >>> > >> Hello Everyone,> > >> thank you for welcoming me to your group.> > >> My name is , I live in Richmond, BC. I am a single parent of a> > >> wonderful 6 year old boy. He has always been a lovely and happy child.> > >> From> > >> a very young age he's had some difficulties with motor skils and language.> > >> Some of the doctors we saw thought he could be autistic. That was ruled> > >> out.> > >> In the last 2 years he's been meeting the criteria for an ADHD diagnose,> > >> and, most recently, after a strep throat infection, for OCD.> > >> We've seen a great doctor in chinese medicine in Vancouver and she told us> > >> about the masgutova method. We'll have our first consultation in 2 weeks.> > >> I feel very hopeless withf the lack oo compassion from most health> > >> professionals I've seen so far, and the frightening reliance on> > >> medication> > >> to treat both ADHD and OCD. The masgutova method is bringing back a little> > >> light at the end of the tunnel. I'm very afraid of raising my hopes too> > >> high.> > >> I'm here to try and learn with you all and possibly share my fears, hopes> > >> and, who knows, successes.> > >> > > >>> > >>> > >>> > >> > >> > >> > > --> > > Donna Bateman> > > Neurodevelopmental Specialist> > > www.parentswithpurpose.com> > > Natural Moms Talk Radio Interview Podcast: http://is.gd/4Wwib> > > Mom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie> > > 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe> > > now mild!)> > >> > > > -- > > Sent from my mobile device> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Hi my name is sumaiya & I have a daughter who is 5 now with difficulty in balance motor skill . I heard of this from a friend & thought of joining.Iv read a couple of emails with peoples experiences and I want to try masgutova method bt I need to find a gud placeI live in Kenya where we don't have such facilities.Hope to hear from all soonThanksSumaiyaSent from my iPhoneOn Apr 9, 2011, at 16:26, <@...> wrote: I have just learned that OCD stems from issues in the basal ganglia of the brain. Svetlana can surely help release any pressure that may be there. From: Moreira <s.moreira@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Fri, April 8, 2011 11:01:19 PMSubject: Introduction Hello Everyone, thank you for welcoming me to your group. My name is , I live in Richmond, BC. I am a single parent of a wonderful 6 year old boy. He has always been a lovely and happy child. From a very young age he's had some difficulties with motor skils and language. Some of the doctors we saw thought he could be autistic. That was ruled out. In the last 2 years he's been meeting the criteria for an ADHD diagnose, and, most recently, after a strep throat infection, for OCD. We've seen a great doctor in chinese medicine in Vancouver and she told us about the masgutova method. We'll have our first consultation in 2 weeks. I feel very hopeless withf the lack oo compassion from most health professionals I've seen so far, and the frightening reliance on medication to treat both ADHD and OCD. The masgutova method is bringing back a little light at the end of the tunnel. I'm very afraid of raising my hopes too high. I'm here to try and learn with you all and possibly share my fears, hopes and, who knows, successes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi Su: I am very glad that you join this group. If you are in Europe now, you may join the next camp in Poland or US. Hope to see you again one day. You may visit my country. :-), since my friend and I are inviting Masgutova's team again to my country for some events by end of this year. We are waiting for confirmation from Svetlana. Miss u all, Rgrds. From: Sumaiya <su_bingi@...>" " < >Sent: Sun, April 10, 2011 9:41:28 PMSubject: Re: Introduction Hi my name is sumaiya & I have a daughter who is 5 now with difficulty in balance motor skill . I heard of this from a friend & thought of joining. Iv read a couple of emails with peoples experiences and I want to try masgutova method bt I need to find a gud place I live in Kenya where we don't have such facilities. Hope to hear from all soon Thanks Sumaiya Sent from my iPhone On Apr 9, 2011, at 16:26, <@...> wrote: I have just learned that OCD stems from issues in the basal ganglia of the brain. Svetlana can surely help release any pressure that may be there. From: Moreira <s.moreira@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Fri, April 8, 2011 11:01:19 PMSubject: Introduction Hello Everyone, thank you for welcoming me to your group. My name is , I live in Richmond, BC. I am a single parent of a wonderful 6 year old boy. He has always been a lovely and happy child. From a very young age he's had some difficulties with motor skils and language. Some of the doctors we saw thought he could be autistic. That was ruled out. In the last 2 years he's been meeting the criteria for an ADHD diagnose, and, most recently, after a strep throat infection, for OCD. We've seen a great doctor in chinese medicine in Vancouver and she told us about the masgutova method. We'll have our first consultation in 2 weeks. I feel very hopeless withf the lack oo compassion from most health professionals I've seen so far, and the frightening reliance on medication to treat both ADHD and OCD. The masgutova method is bringing back a little light at the end of the tunnel. I'm very afraid of raising my hopes too high. I'm here to try and learn with you all and possibly share my fears, hopes and, who knows, successes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2011 Report Share Posted May 31, 2011 Welcome Heidi! I am Heidi too. I'm not too far from you either, just a little south in Palm Harbor. We just started working with a lady in Dunedin, Jami Guercia who knows Masgatova. Let me know if you would like her contact info or give me a call if you just want to chat about sensory processing. There is also a MNRI workshop coming up in Tampa in June. Heidi 727-787-5517 In a message dated 5/27/2011 9:24:45 P.M. Eastern Daylight Time, hmbchey@... writes: Hello All, My name is Heidi and I reside in Spring Hill, FL. My daughter Bree is 4 years old and was diagnosed with Sensory Integration Disorder. We went through occupational, speech and communication therapy at All Children's in Pasco for 2 years. Bree started school for her speech impairment at the age 3 part time. This school year has been full days Monday - Friday.I stumbled into this group when I was on Dr. Masgutova's website. My daughter is regressing and I feel it is because she is now challenged with so much more in life. I was hoping to meet others that may have or is going through what I am and could possibly give me some suggestions on what therapies really have improved with their children. I feel very grateful to have found this group. We come to love not by finding a perfect person, but by learning to see an imperfect person perfectly. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2011 Report Share Posted June 28, 2011 A warm welcome to the Feisty Forum, Ann C! I meant to answer your post several days ago and hope you will forgive the delay. I wonder if some of your early treatment experience was military, as mine was. I had my first fusion at age 13 at Walter in Washington, during the years my dad was " a career man. " I had an additional fusion as an adult, and that was when the trouble started, with the nonsegmental instrumentation that is now defunct after crippling so many of us (the Harrington rod). Others of us got flatback from the later Luque rods, but almost any hardware will do when the doctor is inattentive to the sagittal plane. Surgeons with little experience or expertise in this area continue to cause flatback syndrome in their unwitting patients. That's why it's imperative to find someone with lots of training and practice in correcting our specific deformity. I traveled 1,000 miles to get to a known flatback specialist for my first revision procedure. The " name " people are all well equipped to handle various deformities in any plane, not just the sagittal. Unfortunately it doesn't always work the other way around, as you undoubtedly know: a scoliosis surgeon is not necessarily qualified to perform flatback revision (though a number of them are eager to try their hand at it and may put considerable pressure on you to be their learning material!) Assuming your general health is good -- especially your cardiorespiratory status -- age should be no impediment to surgery. Revision surgeons these days are tending more and more to operate on older patients without giving it a second thought -- and by their standards, 72 is young indeed. My second revision surgeon here in Chicago, Ondra, operated on at least one woman in her late nineties. She and her family were thrilled with the outcome. Congratulations on resolving to take care of yourself and to research your options as thoroughly as possible. We're very pleased to have you as a member and look forward to sharing your journey with you. Best, > > My name is Ann C and I was diagnosed with scoliosis about 15 years ago. I am currently 71 and under the care of Dr. Francis Shen at University of Virginia hospital. > > He has told me that I may be a candidate for surgery, but that further tests will need to be done to determine just what can be done surgically to alleviate some of my pain and partially correct my curves. Part of my diagnosis is flatback. This is not due to any previous surgery. I remember being told by an Air Force doctor that I had flat back and I was told this when I was 17. I had no idea what this meant and no treatment or other information was given to me. He didn't mention any other deformity such as scoliosis at the time. > > I have found this group through my reading of the book, Scoliosis Surgery by Wolpert. It has been very informative and has answered a lot of questions about what I might be facing if I should decide to have the surgery. > > I'm wondering if there are any others who have had similar surgery at my age? I am in pretty good health other than this, and my curves seems to be progressing pretty fast. I can envision myself being unable to function within the next year or two. > > I will be going back and reading your previous posts as I go. Thanks for letting me join. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 <waves> Hi ! Nice to see other parents from the Ft. Lauderdale conference here. Hope things are going well with you and . I'm still figuring out how to have dedicated therapy time in a consistent manner. Despite my organizational challenges, Ben seems to still benefit from our short, scattered sessions together. Amazing stuff, this MNRI. ~Gigi http://gigimama.wordpress.com > > Monteleone - Memphis, TN (yawn) > Attended awesome MNRI Family Conferenece in Ft. Lauderdale > My 11 year old son was diagnosed with PDD/NOS when he was 3 1/2 > He starts 5th grade on August 8th - last year of elementary school (how did that happen so fast?) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2011 Report Share Posted August 5, 2011 Hello everyone My name is April, my son is Aidan and he is 10. He has a visual impairment and autism. We were very fortunate to attend Masgutova conferences in California in 2010 and found it really helped with Aidan's development and general awareness. Since moving to the east coast this year, we have seldom practiced but look forward to reconnecting and recommencing soon. Best wishesApril McDevitt +1 610 649 4734 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Hi mandy xxxxxxxxxx Thankyou for posting , i wanted everyone to see what you are going through to see if they come to the same conclusion as me, there IS a thyroid issure!!!!, There are many excellent people on here who will be able to advise you and help you. This may be your first step to getting some of your life back. loads of love sha xxxxxxxxxxxxxxxxxxxxx > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Mandy - when you get your next thyroid function test results, please ensure that the TSH, free TG4, free T3 have been tested and also TPO and TgAntibodies. If these have not been tested, demand that these be done. We allow our doctors to get away with murder and all they seem concerned about lately is saving their surgery money, so don't bother doing the tests that are needed. When you get the results, post them onto the forum together with the reference range for each test done and we will help with their interpretation. A doctor cannot withhold any information that is in your medical records under the Data Protection Act 1998 - so be assertive. You should also get your levels of ferritin, vitamin B12, vitamin d3, magnesium, folate, copper and zinc tested. Luv - Sheila I was seen by a Rheumatalogist 2 years ago and again few weeks ago. On my recent visit to him he asked if I had been given any meds for my thyroid as it was showing T4 8.8. I said no and told him that I wasnt even informed of the results. He didnt say anymore apart from ordering more bloods. I spoke to my GP about this and he said he wanted to do more bloods before giving me any meds and they are showing that no treatment necessary. I have an appointment with my GP at the end of the month and need to get him to check back to 2 years ago and for any bloods done after as Im confused as to why it would show T4 8.8 2 years ago and now it's " normal " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 Hi Han my name is , welcome. what kind of problems are you having? > > Hello, > > My name is Han and I have a 10 yo child with autism. We live in the Bay Area, > CA. I heard about this group from other parents in bayareaasd group. I > would like to learn ways to help my child from other parents in this group. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 Hi , Thank you for welcoming me into our group! is having lots of sensory issues. He also very clumsy due to his motor dyspraxia. He is growing bigger so he just bumps into everything Han From: "ccorsetti@..." <ccorsetti@...> Sent: Mon, October 10, 2011 6:39:30 AMSubject: Re: introduction Hi Han my name is , welcome. what kind of problems are you having?>> Hello,> > My name is Han and I have a 10 yo child with autism. We live in the Bay Area,> CA. I heard about this group from other parents in bayareaasd group. I> would like to learn ways to help my child from other parents in this group.> > Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2011 Report Share Posted October 10, 2011 you are welcome han. here are a couple links http://www.dyspraxiafoundation.org.uk/services/gu_symptoms.php http://www.dyspraxiausa.org/ I wish i could help you out with this but i am not too familiar with it. christina > > > > Hello, > > > > My name is Han and I have a 10 yo child with autism. We live in the Bay Area, > > CA. I heard about this group from other parents in bayareaasd group. I > > would like to learn ways to help my child from other parents in this group. > > > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2011 Report Share Posted October 11, 2011 Hi, I am the mother of a seven year old. We have just started second grade and we are having a tough time. My son from a behavioral aspect does well at school, but this year he is struggling academically. I know that he finds it tough to focus in a classroom versus one on one tutoring. Up until this year, I have thought my child was just highly sensitive, but now realizing he has consistent sensing seeking patterns and I am suspecting sensory integration issues. We have lots of daily life struggles. He breaks down going to school and then the first hour or more after he comes home from school I have always been patient, but I am having a hard time to return to the same place of difficulty that we had in his first year of school. We are starting Mastugova and hopes this helps. I would like to know over what time period (how many times per day) and over how many months, I might see a shift with my child. I am exited to learn more with this group. Thank you. Signe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2011 Report Share Posted October 11, 2011 Hi Signe welcome to the group. Do you have a diagnosis for him? have you got him evaluated? > > Hi, > > I am the mother of a seven year old. We have just started second grade and we are having a tough time. My son from a behavioral aspect does well at school, but this year he is struggling academically. I know that he finds it tough to focus in a classroom versus one on one tutoring. > > Up until this year, I have thought my child was just highly sensitive, but now realizing he has consistent sensing seeking patterns and I am suspecting sensory integration issues. We have lots of daily life struggles. He breaks down going to school and then the first hour or more after he comes home from school > > I have always been patient, but I am having a hard time to return to the same place of difficulty that we had in his first year of school. > > We are starting Mastugova and hopes this helps. I would like to know over what time period (how many times per day) and over how many months, I might see a shift with my child. > > I am exited to learn more with this group. > Thank you. > Signe > Quote Link to comment Share on other sites More sharing options...
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