Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 welcome to the list--i hope you get the info you are looking for. there are lots of very knowledgeable, helpful people on this list. any specific questions--post them to the list, you're bound to find some answers... brigit, in albany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 Hi Lynn, What delays does your baby have? Emma seems to be " behind " to the ped neuro but " within the norm " with her other doctors and us! Robin D Reston, VA --- Bob & Lynn <baley@...> wrote: > I have three children 4 1/2 years, 2 1/2 years and 7 > months. I am having > my baby checked out now through early intervention > because she is delayed in > her gross motor skills. We don't know anything yet > about what may be causing > this. > I have been reading a lot about vaccines and thought > I would really be > interested in this list. I am worried also that my > oldest daughter is near > the age when they will want to give her the MMR > vaccine. This really worries > me because of all the things I have recently read. > I am also not wanting to have the baby vaccinated > because I don't know what > would have caused her to be delayed in her motor > skills. > I would like to read and know much more about > vaccines. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 She had the Denver test done about a month ago. She was 2 months behind on her gross motor skills and a little behind in her fine motor skills. She is seven months old now and has not rolled over very many times from her back to her stomach. She has never rolled over from her stomach to her back. My other two daughters would want to stand on our lap from a very young age. It would be hard to make them sit down. This one won't do that. When we try to stand her on our lap she won't do it at all. She just kind of flops down. That is what I mainly had a concern about when I talked to my Doctor. She lined me up with early intervention for my own piece of mind. We have an appointment Monday with a different Doctor through this program. After she is evaluated there, they will decide whether or not she needs to be seen by a neurologist. Re: introduction Hi Lynn,What delays does your baby have? Emma seems to be"behind" to the ped neuro but "within the norm" withher other doctors and us! Robin DReston, VA--- Bob & Lynn <baley@...> wrote:> I have three children 4 1/2 years, 2 1/2 years and 7> months. I am having> my baby checked out now through early intervention> because she is delayed in> her gross motor skills. We don't know anything yet> about what may be causing> this.> I have been reading a lot about vaccines and thought> I would really be> interested in this list. I am worried also that my> oldest daughter is near> the age when they will want to give her the MMR> vaccine. This really worries> me because of all the things I have recently read.> I am also not wanting to have the baby vaccinated> because I don't know what> would have caused her to be delayed in her motor> skills.> I would like to read and know much more about> vaccines.> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 I,too, have gone through all that but I have stood firm in my decision. I have lost "friends" because of my educated preferences(from birthing decisions,family practices,etc.). The sad thing that really gets to me is that the ones who rejected me are the ones who won't even read or listen to my decisions! I am not asking them to join my bandwagons, just to understand where I am coming from!!! And then I have friends who listen with half an ear but don't want to learn more and just accept me as the wierd one I am! It would be nice to have people with like minds that I can be friends with as it is hard being a rebel lunatic but for now I'll settle for people who just accept me! Hang tough! ps...where are you located? I am not a medical doctor,nor do I portray one on t.v.!(But my husband,Mike,is!!!) Laurie>Bucyrus,Ohiomother to (13),Donovan(8),Buck(4),Luke(3), and (1)2 csecs,3 VBACs(1 partial waterbirth,1 complete waterbirth) Please visit us at our websitehttp://www.goldenprideweb.com/drmikeandlaurie for information on nutritional supplements,including the original oral chelator, skin care,weight loss(The Florida Diet),Herbs for Health,and home products Hello.My name is Adrienne Black and I am the mother of 2 boys, ages 5 yrs. and 9 months. I chose not to vaccinate my boys and have come up against so muchignorance, vehemence and rudeness that you would think I was the most evilperson in the world. I am a firm believer in educating oneself and makingdecisions based on true and accurate information. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 > >We do have one big area of concern, and I would love to get some >substantiated information on this. One or both of us travel overseas to >third world countries on about an annual basis to do missionary work. We are >exposed to a different, much more unhealthy, environment. In fact, >(my husband) will be going to Honduras end of March and will be assisting a >dentist during the trip. (We're talking high chance of exposure to Hep B >here). What do we do and how do we protect our son upon his return? Is >everyone against vaccinations in a situation such as this? > For facts on Hep B for your husband See my webpage http://www.nccn.net/~wwithin/hepatitisb.htm Not the killer disease made out to be and not that easy to catch - I worked in ICU's with blood flowing all over me. And therefore also very difficult for your son to get it even if dad exposed. That vaccine is a BAD one. I know hundreds and hundreds of peopel with terrible reactions. If he would like some nurses to write to him of their damage after the vaccine I'd be happy to ask them. Lots on my webpages http://www.nccn.net/~wwithin/vaccine.htm -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 I thought it was interesting that you mentioned not vaccinating your pets in your post. My best friend's dog just died of cancer and the specialist that was working with them told her that this cancer seems to be linked to vaccinations. what next?? -Phyllis Introduction > Hi! > > I'm Peace. We're not vaccinating in our household, people or pets, > except rabies until dh is comfortable without it, because we believe > that the body is in balance with Nature only in it's Natural state. > We're mostly here to learn as we have nowhere near the knowledge of most > on this list, and to participate where we can in preserving and > expanding medical (and every) freedom. It's very nice to meet you all. > :-> > > Be... > Peace.................................... :-> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 yes, it is see www.ouralexander.org /01 -0500, you wrote: >I thought it was interesting that you mentioned not vaccinating your pets in >your post. My best friend's dog just died of cancer and the specialist that >was working with them told her that this cancer seems to be linked to >vaccinations. what next?? >-Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Phyllis said: " I thought it was interesting that you mentioned not vaccinating your pets in your post. " From what I've come to understand regarding animal vaxes since beginning research into human ones, we're fortunate that chronic yeast infections of the ears and skin in three of four and severe allergic reactions to fleas, certain foods and pollen in one are the 'only' apparent signs of vaccine damage our dogs exhibit. The fourth one had a temporary hair loss and 'hot spots' in a huge patch on her flank for four weeks after her final set of puppy shots last year, which was just before I real-ised why the other dogs' ears and skin got worse every spring, 'coincidentally' within days or weeks of each round of annual vaxes. Be... Peace......................... :-> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 At 04:54 AM 03/25/2001 -0000, you wrote: >Hello, my hubby and I live in Colorado and have a 16 month old son >and are expecting our second baby (a girl) in July. We don't >vaccinate and don't plan on it. We hadn't really thought much of it >until a friend of mine asked me if I knew anything about the Hep B >vaccine and I didn't so from there we both, my friend and I, started >doing research on vaccinations. The more I read and learn the more I >am convinced that we made the right choice. We are Christians so we >also prayed about it and have peace about our decision. I also have >a Aunt who doesn't vax her 5 children. She gave me the names and >authors of several good books to read about the topic. Our faith is >in God, not drugs or their makers. Not to say that we don't use them >when necessary but that is certainly not often. Glad to be apart of >your group. I hope to become more well informed. > > >Cobluegirl Welcome - more on hep b vax on http://www.nccn.net/~wwithin/heptatisb.htm -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 welcome to the list. where in colorado? adrienne in winter park, co Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Hurray for doulas!!! I had one present at the births of my last two children...and boy, what a difference. Wish I had know about them for the first two! Anyway, I encourage you to homeschool. It makes a wonderfully close family situation. It is fun. I love it. As far as the finances go, you get used to doing with less and it is well worth the privledge to be home with your children. Who cares if you have to go to second hand stores for clothes, or home make food rather than buy the more expensive ready-made version. And I can live without a vacation every year. The memories of being with my kids are worth more to me. Sorry if I have gone off. I have four children, 2 are fully vaccinated and they have PDD, one is partially vaccinated and has ADHD, one is not vaccinated at all and we are waiting to see, but if I was a betting woman, I would bet that he will be totally unaffected. Feel free to mail me privately, if you like. -Phyllis introduction Hello, everyone! I'm new to the list and wanted to give a little information about myself. My name is , and I am a stay-at-home mom to our 1 year old son, Liam, who was born at home in the water. I have been married to my husband, , since Winter Solstice 1996. We cloth diaper, AP, BF, co-sleep, don't vaccinate, circumcise, etc. We're not at all in a financial position for me to stay home, but it's very important to both my husband and me that Liam (and hopefully more to follow!) has me at home with him. We are most likely going to homeschool. We are interested in the democratic schools we've read about, but have none near us. We are in a small town of about 20,000. It's quite mainstream - for example, before Liam was born, I was a licensed massage therapist. On the books, it's illegal for me to have an office to practice massage because it's considered adult entertainment. There is a tiny zone in which LMTs can practice, but it's away from ALL children. I went to massage school to do pregnancy massage, which often leads to infant massage! It's ridiculous! I'm also trained as a doula and hope to someday be a homebirth midwife. In terms of vaccinating, I was made aware of the concerns surrounding them several years ago by the doulas that I met with each month. Some of their kids are selectively vaccinated, and some aren't vacc. at all. So far, Liam is falling into the not at all category, which our pediatrician doesn't like. (He pushes Hib, for some reason, with no mention of tetanus or polio, which I would imagine to big the big ones for a doc!) I'm not comfortable thinking about vaccinating him at all. I am just interested in gaining as much information as I can. Not so much for my own peace of mind, b/c we're really comfortable with our choice, but for well-meaning parents, friends, and especially doctors. I'm also interested in parents' experiences with disease and treatments. We use homeopathics for everything, which luckily our pediatrician supports. Can't wait to start diving into the digests! Steph Stay-at-Home Mom to Liam Gaelen, 3/19/00, home waterbirth http://kiss.to/Liam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 I feel like people are going a little overboard eliminating the prior text of letters. Many times I have no idea what people are talking about since there is nothing to refer it to. Perhaps the pertinent information could be kept in? The following is a good example. Sandy from Alaska ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE. THE DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR HEALTH CARE PROVIDER. Re: Introduction welcome to the list. where in colorado? adrienne in winter park, co Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 just don't go to the next baby well check -that way you only need to go when something is wrong and you will still have a doc and have my time to research. " A hundred years from now, it will not matter what my bank-account was, the sort of house I lived in, or the make of car I drove. But the world may be different, because I was important in the life of a child. " -Author Unknown Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 If you check the archive from probably a couple weeks ago, you can find a posting about how screen name " TRUTH " handled the diseases that came her way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Hi Norma Clutter, Welcome! Love the name :-) I am Sue from Wales in the UK. I too have a 2 year old ,she is vaxxed up to but not including the MMR and Men.C ones. We decided not to vaccinate anymore after looking into the MMR issue. Of course, once you start to research, the can o worms is opened and you cant help but discover alot of things that make you not ever wanna vaccinate again! Exactly how it went with us. Now we are here to learn more about vaccination issues to keep us confident in our decision and we are also embarking on the 'alternative' healthcare route, which I feel is a must when not vaccinating anymore. You have to seek alternatives , cant just stop vaccinating and thats it, IMO. :-) Where are you from Norma?? Enjoy this list, busy but unmissable info., ideas, advice and tips!! Sue, mum to Ruby(nearly 2) Wales, Uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Oh, Lynne, you resurrected another memory with your spider story. My aunt was a nurse and came to try to help out after the surgery. She knew I wanted a kitten, so she broght me one in a bird cage. It turned out the kitten had been in a cage most of its life and wasn't extremely sociable. It would not stay in bed with me--I guess it didn't like the cast. BUT, a couple of weeks before I got the cast off, that cat would jump up on my bed VERY EARLY in the morning, get between my feet, and pee in my bed. I couldn't move my feet out of the puddle (I had the cast to the knees with the bar between them, too) and would have to wait for one of my parents to wake up and change the sheets again. YUCK! I too had the Riser cast with > the bar between my legs. What an experience. I returned to school in a > walking cast after months of enforced bedrest in that body cast. I can > still remember Sister Immaculate, the Dean, hugged me (or my cast) and > gave me the key to the elevator to attend classes. > > The funniest story I remember was having a spider come down from the > ceiling on its web. My Mother was in the kitchen making breakfast. > This was shortly after I returned home from the hospital and was not > moving around in the bed too well with the body cast. Needless to say, > the spider landed in the hole that was cut out for my stomach. To this > day I am afraid of spiders. My psych teacher in nursing school told me > I have a phallic problem and has nothing to do with spiders. Amazing. > > Yes, this adventure has changed the definition of modesty never to > return. The body cast prohibited self care for just about every bodily > function. And you are right.the surgeons had no clue of day to day life > for us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 DOUBLE YUCK….but I’m still laughing trying to picture it. Lynne Re: introduction Oh, Lynne, you resurrected another memory with your spider story. My aunt was a nurse and came to try to help out after the surgery. She knew I wanted a kitten, so she broght me one in a bird cage. It turned out the kitten had been in a cage most of its life and wasn't extremely sociable. It would not stay in bed with me--I guess it didn't like the cast. BUT, a couple of weeks before I got the cast off, that cat would jump up on my bed VERY EARLY in the morning, get between my feet, and pee in my bed. I couldn't move my feet out of the puddle (I had the cast to the knees with the bar between them, too) and would have to wait for one of my parents to wake up and change the sheets again. YUCK! I too had the Riser cast with > the bar between my legs. What an experience. I returned to school in a > walking cast after months of enforced bedrest in that body cast. I can > still remember Sister Immaculate, the Dean, hugged me (or my cast) and > gave me the key to the elevator to attend classes. > > The funniest story I remember was having a spider come down from the > ceiling on its web. My Mother was in the kitchen making breakfast. > This was shortly after I returned home from the hospital and was not > moving around in the bed too well with the body cast. Needless to say, > the spider landed in the hole that was cut out for my stomach. To this > day I am afraid of spiders. My psych teacher in nursing school told me > I have a phallic problem and has nothing to do with spiders. Amazing. > > Yes, this adventure has changed the definition of modesty never to > return. The body cast prohibited self care for just about every bodily > function. And you are right.the surgeons had no clue of day to day life > for us. > Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Wow, SB, you brought up another one of mine. My brother had lost interest in his little blue parakeet (budgie), so my mother put her cage beside my bed. I called her Meggie, and she became very tame and friendly. She used to do flips into her seed dish and land on her back, as a way of saying she wanted to get out and be with me. I always tried to make sure none of the household's abundance of cats was about when I released her, but one time a cat got in, and went after her. I screamed bloody murder, but was stuck in bed and couldn't do anything about it. (I know, cats are fast, and I probably couldn't have saved her anyway.) My dad offered to buy me another bird, and I asked for a canary, as I'd never had one. I was amazed to learn he'd actually paid $50 for Sunshine, as this was 50 1971 dollars, and he didn't have anything to spare. Unfortunately, Sunshine's gift was singing, not being my friend. But I guess my love of birds was really cemented by my relationship with Meggie. Today my best friend (other than my husband) is a sun conure named Shemesh. Sharon in southern New Hampshire :^) Congenital scoliosis w/ spina bifida and other vertebral anomalies 1971 fusion T5 to L4 w/ single Harrington rod Flatback, congenital thoracolumbar kyphosis, L5-S1 degeneration, etc. At 03:02 AM 6/14/03 -0000, you wrote: > Oh, Lynne, you resurrected another memory with your spider story. My aunt was a nurse and came to try to help out after the surgery. She knew I wanted a kitten, so she broght me one in a bird cage. It turned out the kitten had been in a cage most of its life and wasn't extremely sociable. It would not stay in bed with me--I guess it didn't like the cast. BUT, a couple of weeks before I got the cast off, that cat would jump up on my bed VERY EARLY in the morning, get between my feet, and pee in my bed. I couldn't move my feet out of the puddle (I had the cast to the knees with the bar between them, too) and would have to wait for one of my parents to wake up and change the sheets again. YUCK! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 said...>>> " There is something about this almost invisible disability that is very difficult to face. Now that it has become more and more noticeable, both in appearance and in pain, I cannot avoid dealing with it any longer. " Here, here. I will second that one. What a terrible place to be. Our invisible disability is becoming all too obvious now...both to ourselves and others as well. . Rats....I thought I could get away with a few more good years of denial. No such luck. I am on that slippery slope too. Heading for the revision table. And of course that is only part 2 of this nightmare. More to come in the future. from what I am gathering., OY!. ...you are not in this alone. There are more of us poor souls out there who are caught in this strange and unusual Abyss ......(disability/disease/deformity), so we can relate to everything you said. Well, all I can say is that if I had to stuck with this disease, then at least I am in very good company here. Great people of tremendous strength and character. Welcome to the group ........Carol ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 said...>>> " There is something about this almost invisible disability that is very difficult to face. Now that it has become more and more noticeable, both in appearance and in pain, I cannot avoid dealing with it any longer. " Here, here. I will second that one. What a terrible place to be. Our invisible disability is becoming all too obvious now...both to ourselves and others as well. . Rats....I thought I could get away with a few more good years of denial. No such luck. I am on that slippery slope too. Heading for the revision table. And of course that is only part 2 of this nightmare. More to come in the future. from what I am gathering., OY!. ...you are not in this alone. There are more of us poor souls out there who are caught in this strange and unusual Abyss ......(disability/disease/deformity), so we can relate to everything you said. Well, all I can say is that if I had to stuck with this disease, then at least I am in very good company here. Great people of tremendous strength and character. Welcome to the group ........Carol ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Carol, That was a beautiful letter you wrote to . I second every bit of it! Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Dear , Thank you for welcoming me to the group last month. You asked me for a title for my “case history”. I always find creating titles for compositions whether music or an essay to be difficult. Since I’ve tried so many alternative therapies the first title that comes to mind is “No more alternatives – ’s story” or “No Alternatives Left –’s story”. I have not been able to afford bodywork in over a decade. My Ayurvedic massage therapist in India did not speak any English and my Hindi is only suitable for light conversation. I would need a translator to discuss philosophy or technique. I also try not to talk much when any therapist works on me, because I have noticed that language takes him/her away from their intuitive side that feels what my body needs. With the right person my groans, moans and sighs can inform much more than a well-structured sentence. My therapist sometimes used oil or lotion and sometimes he didn’t. It was good to have the option depending on what was next in my schedule. If you have the opportunity to work with an Ayurvedic massage therapist take it. If you make a commitment to it, you could purchase a number of sessions at a discount. Many massage therapists of all kinds make this offer. I forgot to mention that most of the massage I received in the early to mid-eighties was Shiatsu massage. One thing about Shiatsu that is appealing to many is that you can, as an option, receive the massage while fully clothed in simple loose clothing. If you’re particularly self-conscious or merely chill easily Shiatsu massage could meet your needs. The technique is based on releasing tension by massaging acupressure points. I also forgot to mention that I purchased an inverter table last year that I really enjoy. I strap my ankles in and then tip the table gradually back until I hang upside down. My chest expands in a similar way to when I took lessons in Technique years ago. I hang for about twenty minutes or so. Unfortunately, I cannot do anything else at the same time. I can’t read or multi-task and I cannot direct other people who work for me. Even my children don’t take me seriously when I hang upside down. Consequently, it has become a very private activity. After surgery I will not be able to enjoy it anymore, because it is advised by the manufacturer that ANYONE WITH SCREWS OR PINS SHOULD NOT USE AN INVERTER TABLE. However, until then with my simple old Harrington rod I’ll risk it. I figured if the fusion wasn’t solid after thirty years it never will be. I will write another post about my visits with Dr. Glazer and Dr. Rand. I have a big decision to make real soon. >From: " poetryperson " <poetryperson@...> >Reply- >< > >Subject: Re: RE: introduction >Date: Tue, 9 Dec 2003 15:01:12 -0600 > >, > >I am so glad to have learned your story. I found it eloquent. While part >of your life story involves fascinating and singular situations (exotic >locales, artistic careers/avocations, etc.), you also describe a number >of situations that many others in this group can relate to as well. > >I would like to post your story on the site (that is, in one of the >sections set aside for archiving articles and items of interest, in >addition to its appearance already in the " Messages " portion of the >site). This would be, I believe, the first in a series of " case >histories " we may want to preserve for posterity. Would you care to >suggest an appropriate title? Or do you think we should just call these >something like " 's Story, " " 's Story, " etc.? I think I >favor interesting personal titles . . . > >In any event, please keep writing and letting us know how you're >progressing. I will be especially interested in your experiences with >Rand, who was my own revision surgeon. I would also be interested to >know if you incorporate any more body work in your regimen. I have read >several books recently on Ayurvedic approaches, without having tried any >of them personally -- but I live on the edge of an Indian neighborhood >with many relevant businesses and could probably afford to pursue this >further (that is, orthopedically -- not financially!). I am looking >into the possibility of some affordable Feldenkrais sessions as well, as >these helped me enormously several years ago. It sounds as if the > approach was similarly helpful to you. > >Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Hi . Welcome to the Feisty group.! I lived in Hawaii 25 years ago and was introduced to Shiatzu there. There is alot of Oriental influence there. It is a very good type of massage. Of course any massage is good as far as I am concerned for my poor sore back . LOL : ) The good thing about Shiatzu that I found helpful was the " accupressure " points that you mentioned. They do tend to release and relax the muscles in a way that is different from conventional massage. I believe it works in the same theory of accupuncture, but minus the needles. I am not crazy about needles in the first place. So I think the accupressure is a great option. Just make sure that the person who's doing the massage knows about your health history so that they will go gentler on the most sore points in your back. But all in all, I think Shiatzu is a great idea for people with " H.A.R.M.S. " It's all soft tissue work. No bone manipulation as is the case of Chiropractors. For us Feisty's we need all the relief we can get.! ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Kris. I was curious to know if you had the A/P surgery when you had your recent revision. Usually the revision surgery takes care of the leaning forward problem. Were you fused to the sacrum.? Just wondering. Take care, Carol...(Long Island)NY ...here's my stats Harrington rod fusion surgery- 1974 in NYC at 17 years old. It was about a 40 degree double major S curve. I went about 10 years when symptoms of flatback were on the horizon. Got married at 29 and had 3 great kids..no problems there. The flatback became very noticeable in 2000 when I was " finally " - properly diagnosed with H.A.R.M.S.. Gone downhill since. It's pretty severe now. Severe stenosis, chronic pain, and of course-the leaning forward deal. I haven't been able to straighten up in 4 days. I am wondering if it is temporary or permanent at this point.? I kind of lean to one side too -due to the extreme pain on the left side of my lumbar area where it is bone on bone at this point. : O I guess I must look kind of funny now. A little quasimotto-ish, LOL My eyes and teeth look good though. LOL I got my hair done recently so I try to keep some semblance of self esteem in tact. OY. I have my revision Doc lined up. This was after 4 years and 3 revision doctors opinions. So, it's only a matter of time now for me. I know it's getting shorter though. Trying to get up and function is a real challenge for me now. My oldest daughter almost has her drivers licence now so that will be a relief for sure. Take care, nice to meet you, and Kris and all the new members of the Feisty group. Carol >>>>>>>>>>>>>>>>>>>>>>>>>>>>> >>Hi, I am new to this group, but not to scoliosis. I had my first surgeries in 1976 (16years old) at Children's Hospital in Boston. All was fine until about 1995, this is when I first noticed myself leaning forward. At the end of the day my back was tired, but not too bad. At this point I had three children (then two more by 1999). I did not know anything about flat back. In 2001, I fell playing basketball with the kids. This is when all the pain started. I had revision surgery in 2003, this took away most of the pain for a while, but I am still leaning forward. Now the pain is starting to come back again (mostly in my hips and legs). I am looking into more surgery. Doctors are hopeful to get me straight, but the thought of another surgery stinks!!! It is hard to arrange for my family to get by through all the time it takes for surgery and recovery. But I am exhausted from leaning forward, it makes anything I have to do standing very difficult. Thanks for listening, Kris ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Loriann, They attempted to create an osteotomy at L4-5 and only had moderate success because of osteophytes and the posterior spinal fusion which was quite solid extending down to L-5. I have made an appointment with Dr. Rand to see what he says. Kris Re: Introduction Hi Kris, Welcome to the group, but am so sorry to hear of your problems. It's likely you will find lots of friends here to whom you can relate. I can see how you would not be thrilled to have to have more surgery. Did your first revision surgery include osteotomies to restore your sagittal balance (insert some lordosis)? I haven't had revision surgery yet, but it's in my future. I know how exhausting it is to try to function while leaning forward. Re: your hip and leg pain -- I have hip problems as well as spine problems, so whenever I hear of folks with hip pain, I always jump in to recommend getting a hip x-ray and having it reviewed by an orthopedic surgeon who specializes in hips. Sometimes hip pain can be referred from the spine, but sometimes it is indicative of a separate problem. Good luck and hope you will keep us posted on how things are going for you. loriann > Hi, I am new to this group, but not to scoliosis. I had my first > surgeries in 1976 (16years old) at Children's Hospital in Boston. > All was fine until about 1995, this is when I first noticed myself > leaning forward. At the end of the day my back was tired, but not > too bad. At this point I had three children (then two more by > 1999). I did not know anything about flat back. In 2001, I fell > playing basketball with the kids. This is when all the pain > started. I had revision surgery in 2003, this took away most of the > pain for a while, but I am still leaning forward. Now the pain is > starting to come back again (mostly in my hips and legs). I am > looking into more surgery. Doctors are hopeful to get me straight, > but the thought of another surgery stinks!!! It is hard to arrange > for my family to get by through all the time it takes for surgery > and recovery. But I am exhausted from leaning forward, it makes > anything I have to do standing very difficult. Thanks for > listening, Kris. Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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