Introductions

[Guest guest]

At 02:19 PM 07/05/2000 -0700, you wrote:

>Hi,

>

>I've just joined this list and am very happy to have

>found it. My name is and I am the mother of 2

>boys, Judah who will be 5 at the end of the month, and

>Seth who is 3 1/2 months, neither have been

>vaccinated. Neither has my husband, which is how I

>began learning about all of the possible side effects.

> I am a type 1 diabetic since the age of 10 and

>believe it's possible adverse reactions to

>vaccinations caused this. Also, I had German Measles

>even though I was vaccinated against it. My husband

>is a chiropractor as well as my father-in-law. I look

>forward to reading all of your questions concerns and

>wealth of knowledge. Have a great day!

>

>

Welcome , you've come to the right place!

Yes, your diabetes definitely could be due to vaccines if there isn't any

family history.

So glad you met your wise husband!

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

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[Guest guest]

Dear ,

This is completly off topic, but i love the name Judah!!! My husband and i

were thinking of using that name if we had twin boys, but we ended up with

two girls instead!!

Christin

[Guest guest]

In a message dated 3/19/01 5:31:51 AM Eastern Standard Time,

miandeva@... writes:

<< Hello everyone,

I joined this group last week but have not had a

chance to introduce myself. My name is Mireya, my

husband is and our son (ds-PDD & ADHD)

will be 9 in April and is an only child.

We always thought was different than the other

children in our DS group but did not think anything of

it. was diagnosed 2 years ago with ADHD and

PDD. >>

Mireya,

Love your name! Well, sounds like you found a place you do fit in. Funny

how we all have felt that sense of being alone and different. Glad to have

you here with us.

Gail

Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-25,

Grandma to Errick-5

and wife to -my hero

[Guest guest]

mireya,

welcome to you, nathan and david too.... he sounds like a wonderful

child....please tell us how you got him to site read 300 words////are you

using a specific program???? welcome aboard and jump in any time...leah

>From: Mireya AndradeDeValera <miandeva@...>

>Reply-

>

>Subject: Introductions

>Date: Mon, 19 Mar 2001 02:30:46 -0800 (PST)

>

>Hello everyone,

>I joined this group last week but have not had a

>chance to introduce myself. My name is Mireya, my

>husband is and our son (ds-PDD & ADHD)

>will be 9 in April and is an only child.

>We always thought was different than the other

>children in our DS group but did not think anything of

>it. was diagnosed 2 years ago with ADHD and

>PDD.

> The following are a few of his sensory issues:

> - stimming (enjoys flipping pages in books)

> - grinds his teeth when he is nervous.

> - unable to handle changes

> - very sensitive to loud noices

> - echolalia

> - unable to be in a large group of people

> - high pain tolerance (but will cry if his feelings

> are hurt)

> - never gets tired of the same videos, food, or CD's

>As far as the ADHD we don't believe he is that hyper.

>He was on Ritalin and changed to Adderall instead of

>helping him they changed his moods he became withdrawn

>and depressed. We believe that it was the many

>changes his classroom was going through and the adults

>wanting less stress.

>Besides all the sensory issues has he is also

>very lovable, loves to sing (in the shower too),can

>sight read about 300+ words, loves basketball, and

>books. I can go on and on about but I don't

>want to bore you.

>I am soooo glad to have found this group I've learned

>so much in such a short time. And I don't feel so

>alone and different. My husband is the greatest

>but he is not a good listener and believes I overreact

>when it comes to .

>Take care and hope to hear from you soon.

>Mireya

>

>

>

>__________________________________________________

>

[Guest guest]

Mireya,

Hi and welcome! Look forward to hearing more about , listening about

people's children is never boring to me.

Carol

[Guest guest]

welcome Mireya

It's good to hear from another parent...I am mom to (nick) 6-ds/autism,

9, 17 and 21 and mother in law to Steve since June! also

wife to a very patient guy but not always the best listener either

Introductions

Hello everyone,

I joined this group last week but have not had a

chance to introduce myself. My name is Mireya, my

husband is and our son (ds-PDD & ADHD)

will be 9 in April and is an only child.

We always thought was different than the other

children in our DS group but did not think anything of

it. was diagnosed 2 years ago with ADHD and

PDD.

The following are a few of his sensory issues:

- stimming (enjoys flipping pages in books)

- grinds his teeth when he is nervous.

- unable to handle changes

- very sensitive to loud noices

- echolalia

- unable to be in a large group of people

- high pain tolerance (but will cry if his feelings

are hurt)

- never gets tired of the same videos, food, or CD's

As far as the ADHD we don't believe he is that hyper.

He was on Ritalin and changed to Adderall instead of

helping him they changed his moods he became withdrawn

and depressed. We believe that it was the many

changes his classroom was going through and the adults

wanting less stress.

Besides all the sensory issues has he is also

very lovable, loves to sing (in the shower too),can

sight read about 300+ words, loves basketball, and

books. I can go on and on about but I don't

want to bore you.

I am soooo glad to have found this group I've learned

so much in such a short time. And I don't feel so

alone and different. My husband is the greatest

but he is not a good listener and believes I overreact

when it comes to .

Take care and hope to hear from you soon.

Mireya

__________________________________________________

[Guest guest]

Wow its like im looking in the mirror, hi im shawna, mireya, my son is also

nathan, 9yrs, w/ds,pdd,add/hd, ocd, etc etc, you know how it goes, they

sound almost like identicle twins, my nathan does many things as yours does,

except his birthday is in augusts,lol, shawna.

>From: Mireya AndradeDeValera <miandeva@...>

>Reply-

>

>Subject: Introductions

>Date: Mon, 19 Mar 2001 02:30:46 -0800 (PST)

>

>Hello everyone,

>I joined this group last week but have not had a

>chance to introduce myself. My name is Mireya, my

>husband is and our son (ds-PDD & ADHD)

>will be 9 in April and is an only child.

>We always thought was different than the other

>children in our DS group but did not think anything of

>it. was diagnosed 2 years ago with ADHD and

>PDD.

> The following are a few of his sensory issues:

> - stimming (enjoys flipping pages in books)

> - grinds his teeth when he is nervous.

> - unable to handle changes

> - very sensitive to loud noices

> - echolalia

> - unable to be in a large group of people

> - high pain tolerance (but will cry if his feelings

> are hurt)

> - never gets tired of the same videos, food, or CD's

>As far as the ADHD we don't believe he is that hyper.

>He was on Ritalin and changed to Adderall instead of

>helping him they changed his moods he became withdrawn

>and depressed. We believe that it was the many

>changes his classroom was going through and the adults

>wanting less stress.

>Besides all the sensory issues has he is also

>very lovable, loves to sing (in the shower too),can

>sight read about 300+ words, loves basketball, and

>books. I can go on and on about but I don't

>want to bore you.

>I am soooo glad to have found this group I've learned

>so much in such a short time. And I don't feel so

>alone and different. My husband is the greatest

>but he is not a good listener and believes I overreact

>when it comes to .

>Take care and hope to hear from you soon.

>Mireya

>

>

>

>__________________________________________________

>

[Guest guest]

Welcome Kerrie. My son is 14 and is caught between puberty and the

girls have cooties stage. He would kiss them if they initiated the kiss.

He likes girls in bikinis. He doesn't do anything inappropriate, just

scopes very quietly:)) and introduces himself to every bikini-clad girl on

the beach. I really wish we had more girls his age at his school.

Elaine

introductions

> Hey all. My name is Kerrie and I have an almost 16yr old son with ds and

a

> 13 yr old boy nd. just wanted to share my story with all of you. (not

going

> to capitalize cuz it takes too dang long).

>

> benjamin was born march 27, 1985, a peferct, healthy baby. so we were

told

> by the delivering family doctor and two ped doctors. still we had a

feeling

> something was not right. after a short stay due to jaundice we were able

to

> bring our new born home. we were quite surprised when he slept the whole

> first night. he was checked at 3 weeks and again at two months and we

were

> told he was doing fine. he seemed awfully stuffed up to us so we had

called

> our family dr a few times who told us this was common for newborns. well,

at

> almost three months we decided to call a different dr, this time a

> pediatrician instead of our family dr. first thing this dr told us was

that

> our son was in congestive heart failure. after xrays we were also told he

> had an enlarged heart. next day we went to a ped cardiologist who did an

> echo. after looking over the results he mentioned that he had a very

common

> heart defect for down syndrome children and suggested we all be tested.

when

> ben was four months we were told he did indeed have down syndrome, but

> neither of us were carriers. guess at the time the whole heart thing was

> more of a shock than the down syndrome. he had two heart cath, two open

> heart surgeries and two shorts stays in the hospital for croup and

pneumonia

> all before he was two. at four he had reconstructive surgery on his chest

> bone which grew back like a hump, gallbladder removed at 13 and cataract

> surgery on both eyes at 14. he is now a strapping young lad of almost 16.

>

> i would be glad to answer any questions or talk to you all about what our

> kids are going thru. we are into puberty big time and having a hard time

> dealing with it. ben is on quite a few med because his behavior had been

> getting out of control. bet we are the only ones ever kicked out of

special

> olympics. lol.

>

> thanks for reading my loooonnnng story. hope to hear from all of you.

>

> kerrie, mom to ben (16ds), alex (13)

>

>

>

[Guest guest]

In a message dated 8/12/01 2:58:36 PM Eastern Daylight Time, cpitonyak@... writes:

Anyway - that's our situation in a nutshell. I am really happy to find you. Cyndi in Virginia

Welcome Cyndi. We're happy that you're here too! Where in VA are you (generally speaking)? I'm in the 'burbs of Richmond. Nice to meet you.

Joni

[Guest guest]

Hi Joni - Thanks for your note. We're in the mountains in southwest VA -

near Roanoke. Nice to meet you, too. Cyndi

[Guest guest]

Welcome Cyndi!

I have a 12 y/o son diagnosed with OCD last fall - it seemed to come

on rather suddenly also (the severity of it) but he had some " minor "

OCD behaviors previously in elementary school. (Erasing and

rewriting letters, tracing over and over some letters, just minor

things.) I've often wondered if has " thoughts " but he says

he just has to do things until it " feels right " which can include

turning things on/off/on/off, etc., little things he does before

getting on a bed, etc. He just looks like he's really concentrating

sometimes and makes me wonder if he's " having thoughts " or " feeling. "

It's great Sam is more open with you now. I can't get to

talk about himself, just the little bit I've got from nagging him

with questions. He's not on any meds, doesn't want to start them.

He has improved on a vitamin (inositol) I've been giving him at least

on the severity of it but OCD is still always with him.

It seems like there's someone in this group whose child has the

PANDAS OCD. Have you found a lot to read about it? I know I've seen

it mentioned in a lot of websites but haven't read much of what it's

said besides what it is.

This group has really been a lifesaver for me as no one else

around " here " seems to understand OCD very well. Hey, I work at a

mental health center and they really haven't dealt with it. I wish I

could take the time off work to take further for treatment;

but he has improved a lot and we work on things at home (not daily

though) so we'll just keep trying on our own for now.

Keep us posted on your family!!!

- single mom to (12) w/OCD and dysgraphia; (12-twin)

with separation anxiety; Randall (16) moody teenager -

> Hello - I was thrilled to read today about this network in Mitzi

> Waltz's book and joined immediately. My 14 year old son was

> diagnosed with OCD last year - we were completely surprised. He

had

> no overt compulsions that we could see, but shared with me that he

> was having difficulty with violent thoughts and " needing to do

things

> a certain way or getting so uncomfortable I can't stand it " . We

had

> been concerned about his stress level since he was 9 years old - he

> was just extremely stressed and saw himself as isolated for reasons

> he could not explain - his grades were good, he had plenty of

> friends, but he was utterly miserable. Anyway, to make a very long

> story short, it took us months to find a doctor with expertise in

OCD

> and we travel 4 hours for appointments - but information and Prozac

> seem to be making an incredible difference. He is also seeing a

> counselor who is a really nice guy and who has other clients with

> OCD - but Sam is not finding those visits really helpful at this

> point. Our doctor says it's ok to let him enjoy the relief that

the

> Prozac is bringing him right now (she says adolescence is hard

> enough, even without OCD!) and we can pursue more formal CBT when

he

> is ready. I hope this is the right advice. Sam has become more

open

> with us about what he is experiencing, and we are reading

everything

> we can find to learn more. I think his symptoms really began with

a

> year of constant strep infections which were just chronic - he

still

> has trouble with strep even though his tonsils were removed 2 years

> ago. I wonder about PANDAS??? Anyway - that's our situation in a

> nutshell. I am really happy to find you. Cyndi in Virginia

[Guest guest]

Hi - Thanks for writing. I know Sam doesn't tell me nearly all of his

OCD thoughts, but one thing that helped, I think, was when he first got the

diagnosis and I started reading and sharing with him some of the things I

found out - especially about what's happening in the brain to cause OCD - how

people with OCD are not having different thoughts than anyone else, their

brains are just holding onto some thoughts and worrying about them rather

than dismissing them instantly. I mentioned that some people have really

terrible thoughts and they think they must be terrible people, but that's not

true at all - and he teared up instantly (very unusual for him) and told me

that he has images of his throat or eyelids being cut, has had a repeating

worry that he might secretly be the kind of person who could commit a school

shooting (this one started after a discussion in a class at school), and a

few other things. I don't know if he would have shared this with me if I

hadn't brought it up, but it has really helped to be able to remind him that

those thoughts are not him - just OCD. The Prozac seems to have helped

enormously - he didn't want to try it for a while and we didn't push him -

but his symptoms were getting stronger and he was getting very depressed and

starting to isolate himself from others. I'm just keeping my fingers crossed

about school starting - he begins high school next week and I hope the stress

doesn't send him into another tailspin.

Thanks again for writing and telling me about . Take care, Cyndi in VA

[Guest guest]

Hi :

Thanks for introducing yourself and your son. I also have a 14-year-old

son, Steve, who has OCD and MDD (major depressive disorder) both now in

partial remission.

CBT is a very potent therapy for OCD and for most of our kids, medications

only provide at best, 40-60% improvement in symptoms. IF your son has

moderate or severe OCD, as our son Steve did, that is not enough to give

him his lives back. The best treatment is probably a combination of CBT

(specifically E & RP = exposure and response prevention) and SSRI

medications. If you are going to choose one I believe most knowledgeable

m.h. professionals would recommend E & RP.

KNowledge about PANDAS is still in the early stages, and the treatment is

generally the same as for other kinds of OCD. Some docs recommend

prophylactic antibiotic therapy, but this is not recommended by researchers.

Good luck, take care, aloha, Kathy (h)

kathyh@...

At 06:57 PM 08/12/2001 -0000, you wrote:

>Hello - I was thrilled to read today about this network in Mitzi

>Waltz's book and joined immediately. My 14 year old son was

>diagnosed with OCD last year - we were completely surprised. He had

>no overt compulsions that we could see, but shared with me that he

>was having difficulty with violent thoughts and " needing to do things

>a certain way or getting so uncomfortable I can't stand it " . We had

>been concerned about his stress level since he was 9 years old - he

>was just extremely stressed and saw himself as isolated for reasons

>he could not explain - his grades were good, he had plenty of

>friends, but he was utterly miserable. Anyway, to make a very long

>story short, it took us months to find a doctor with expertise in OCD

>and we travel 4 hours for appointments - but information and Prozac

>seem to be making an incredible difference. He is also seeing a

>counselor who is a really nice guy and who has other clients with

>OCD - but Sam is not finding those visits really helpful at this

>point. Our doctor says it's ok to let him enjoy the relief that the

>Prozac is bringing him right now (she says adolescence is hard

>enough, even without OCD!) and we can pursue more formal CBT when he

>is ready. I hope this is the right advice. Sam has become more open

>with us about what he is experiencing, and we are reading everything

>we can find to learn more. I think his symptoms really began with a

>year of constant strep infections which were just chronic - he still

>has trouble with strep even though his tonsils were removed 2 years

>ago. I wonder about PANDAS??? Anyway - that's our situation in a

>nutshell. I am really happy to find you. Cyndi in Virginia

[Guest guest]

Welcome to the group Cyndi. I just joined a couple of weeks ago myself. I also have a 14 year old who got his diagnosis at age 10, but has really had symptoms since probably 4. My son went through therapy for 2 years without much benefit (wrong meds) but it wasn't anything like the real CBT you read about in books. We have just recently found a CBT therapist and my son thankfully hasn't said anything like, "I've tried this before and it hasn't worked". I think as long as your current therapist isn't calling what he is doing CBT, then you aren't likely to run into the problem of spoiling the soup for someone else down the road. On the other hand, knowing what I know now about CBT, I look back on those two years of "therapy" as a waste of precious time in my son's life, and a waste of my money.

Introductions

Hello - I was thrilled to read today about this network in Mitzi Waltz's book and joined immediately. My 14 year old son was diagnosed with OCD last year - we were completely surprised. He had no overt compulsions that we could see, but shared with me that he was having difficulty with violent thoughts and "needing to do things a certain way or getting so uncomfortable I can't stand it". We had been concerned about his stress level since he was 9 years old - he was just extremely stressed and saw himself as isolated for reasons he could not explain - his grades were good, he had plenty of friends, but he was utterly miserable. Anyway, to make a very long story short, it took us months to find a doctor with expertise in OCD and we travel 4 hours for appointments - but information and Prozac seem to be making an incredible difference. He is also seeing a counselor who is a really nice guy and who has other clients with OCD - but Sam is not finding those visits really helpful at this point. Our doctor says it's ok to let him enjoy the relief that the Prozac is bringing him right now (she says adolescence is hard enough, even without OCD!) and we can pursue more formal CBT when he is ready. I hope this is the right advice. Sam has become more open with us about what he is experiencing, and we are reading everything we can find to learn more. I think his symptoms really began with a year of constant strep infections which were just chronic - he still has trouble with strep even though his tonsils were removed 2 years ago. I wonder about PANDAS??? Anyway - that's our situation in a nutshell. I am really happy to find you. Cyndi in VirginiaYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... .

[Guest guest]

Cindi,

Welcome to the group! I am the mom of a 15 yo boy whose onset was

probably 13, but went undiagnosed until last year. Like your son,

the beginning symptoms were subtle and gradually got worse (he

suffers from scrupulosity, hyperresponsibility and compulsive

exercise). He is currently off-meds because he refuses them at this

point. He was on Paxil last year, but the sedating side-effect made

taking it prohibitive. His pdoc wants to have him start Prozac.

What dosage does your son take? How long did it take until you saw

some results? Have there been any BSE? It is so good to here that a

med has been successful for someone else. I know each person reacts

differently to meds, but I have hope that someday we will be

successful in getting to try prozac.

I hope you find as much support from this group as I have...it has

been a life saver for me.

Melinda S.

Dallas

> Hello - I was thrilled to read today about this network in Mitzi

> Waltz's book and joined immediately. My 14 year old son was

> diagnosed with OCD last year - we were completely surprised. He

had

> no overt compulsions that we could see, but shared with me that he

> was having difficulty with violent thoughts and " needing to do

things

> a certain way or getting so uncomfortable I can't stand it " . We

had

> been concerned about his stress level since he was 9 years old - he

> was just extremely stressed and saw himself as isolated for reasons

> he could not explain - his grades were good, he had plenty of

> friends, but he was utterly miserable. Anyway, to make a very long

> story short, it took us months to find a doctor with expertise in

OCD

> and we travel 4 hours for appointments - but information and Prozac

> seem to be making an incredible difference. He is also seeing a

> counselor who is a really nice guy and who has other clients with

> OCD - but Sam is not finding those visits really helpful at this

> point. Our doctor says it's ok to let him enjoy the relief that

the

> Prozac is bringing him right now (she says adolescence is hard

> enough, even without OCD!) and we can pursue more formal CBT when

he

> is ready. I hope this is the right advice. Sam has become more

open

> with us about what he is experiencing, and we are reading

everything

> we can find to learn more. I think his symptoms really began with

a

> year of constant strep infections which were just chronic - he

still

> has trouble with strep even though his tonsils were removed 2 years

> ago. I wonder about PANDAS??? Anyway - that's our situation in a

> nutshell. I am really happy to find you. Cyndi in Virginia

[Guest guest]

Hi - Thanks for your note. The therapist Sam has been seeing has

been around for our family for years - helped us with a divorce - we love him

and he seems to sort of know what is supposed to be happening with CBT but I

get the feeling he is " winging it " . I'm going to keep looking around for

someone who really knows what she/he is doing - not easy in our rural area.

Sam was getting so depressed by the time we finally found a knowledgable

psychiatrist in Richmond and got him on medication - he was withdrawing from

everyone and really miserable. It has been wonderful to see the " cloud " lift

away from him with the Prozac. He is getting pretty good at spotting OCD

thoughts, and he seems to feel pretty successful at fighting some of them.

We've taken a " break " from the therapy over the summer and he certainly

hasn't suffered for it. I wonder, if I can't find a real CBT person in our

area, what my options are? Does anyone know of a therapist in the

Blacksburg/Roanoke area of Virginia?? I'll keep looking - school starts next

week and that will send his stress level right up again. I never thought

about this therapy " spoiling the soup " for future efforts. That really gives

me something to ponder. Thanks so much!

Cyndi in Virginia

[Guest guest]

Hi Melinda! My son Sam is currently on 40 mg. of Prozac but our psychiatrist

has moved him into it VERY slowly. He started at the end of May on only 5

mg. for a week, then 10 for a week, and then 20 mg. for the next 2 weeks.

His symptoms were about the same at that point, she moved us up to 30 mg.

with the idea of increasing to 40 after a week at 30. When we moved up to 40

he started having headaches so we dropped back to 30 for a couple of weeks.

When we went back to 40 mg. he was fine. At his July appointment, his

symptoms were really improving and our doctor felt that he hadn't seen the

full benefit of the 40 mg. dosage yet, so she kept him there for another

month. We go back at the end of this week. Our doctor feels that his

" target dose " will be somewhere around 60-80 mg., but we are glad she is

moving slowly and cautiously and he is markedly improved with 40 mg. We

really didn't see any improvement at all until after about 8 weeks. Our

doctor warned Sam that Prozac has an energizing effect, and that sometimes

people feel more energized after a couple of weeks but are still having very

strong symptoms, which is a bad combination. She always told us that it

would be around 10 weeks before we would know whether it was working or not.

He has not had any BSEs that we can see - the headaches have been the only

side effect and that was resolved by staying at a lower dose for a while.

Sam doesn't like the idea of taking medicine, but was willing to give it a

try to get some relief. We are looking for a CBT therapist now, and he would

like to eventually get off meds, but at this point we are so genuinely

thrilled to actually see him feeling good for the first time since he was 9

years old!!!! Good luck and thanks for writing - I am delighted to find this

resource! Cyndi in VA

[Guest guest]

Dear Cyndi,

Have you asked your therapist if he is willing to use something like the

OCD Workbook to help him with therapy if he's not too confident with what

he's doing now?

Jackie

[Guest guest]

Thanks, Cyndi, for the info on Prozac. I am so glad that it has

brought relief to Sam (and to you!). So far, refuses, but if

he changes his mind or we insist he take meds, we will have an idea

what to expect from Prozac (his doc's next choice). Thanks so much

for your input...so glad you are aboard!

Melinda S.

Dallas

> Hi Melinda! My son Sam is currently on 40 mg. of Prozac but our

psychiatrist

> has moved him into it VERY slowly. He started at the end of May on

only 5

> mg. for a week, then 10 for a week, and then 20 mg. for the next 2

weeks.

> His symptoms were about the same at that point, she moved us up to

30 mg.

> with the idea of increasing to 40 after a week at 30. When we

moved up to 40

> he started having headaches so we dropped back to 30 for a couple

of weeks.

> When we went back to 40 mg. he was fine. At his July appointment,

his

> symptoms were really improving and our doctor felt that he hadn't

seen the

> full benefit of the 40 mg. dosage yet, so she kept him there for

another

> month. We go back at the end of this week. Our doctor feels that

his

> " target dose " will be somewhere around 60-80 mg., but we are glad

she is

> moving slowly and cautiously and he is markedly improved with 40

mg. We

> really didn't see any improvement at all until after about 8

weeks. Our

> doctor warned Sam that Prozac has an energizing effect, and that

sometimes

> people feel more energized after a couple of weeks but are still

having very

> strong symptoms, which is a bad combination. She always told us

that it

> would be around 10 weeks before we would know whether it was

working or not.

> He has not had any BSEs that we can see - the headaches have been

the only

> side effect and that was resolved by staying at a lower dose for a

while.

> Sam doesn't like the idea of taking medicine, but was willing to

give it a

> try to get some relief. We are looking for a CBT therapist now,

and he would

> like to eventually get off meds, but at this point we are so

genuinely

> thrilled to actually see him feeling good for the first time since

he was 9

> years old!!!! Good luck and thanks for writing - I am delighted to

find this

> resource! Cyndi in VA

[Guest guest]

Jackie,

What is this OCD workbook and where can I get a copy? My son is starting

with a new therapist and maybe this might be a useful tool.

Ellen

>From: jackie48hr@...

>Reply-

>

>Subject: Re: Introductions

>Date: Wed, 15 Aug 2001 00:53:38 EDT

>

>Dear Cyndi,

> Have you asked your therapist if he is willing to use something like

>the

>OCD Workbook to help him with therapy if he's not too confident with what

>he's doing now?

> Jackie

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Ellen F.,

The OCD Workbook is easy to follow, but not really geared to

children. I'm sorry but I can't remember how old your son is. When my

daughter was 12 she found that " Kissing Doorknobs " was a great way to

read about others in her situation. She passed it around her friends

and then told them that is how she is - and they became her biggest

support group!

I purchase my books through the ocf bookstore, but most are available

through major book sellers. http://www.ocfoundation.org/ocf1110a.htm

" The OCD Workbook: Your Guide to Breaking Free from OCD

Bruce M. Hyman, Ph.D. and Cherry Pedrick, R.N.

(Guilford Publications, 1999, 217 pages)

An intensive, self-directed program that shows readers how to

block or postpone rituals, reduce fears, and change unhealthy

thought patterns. Included are strategies for overcoming a

variety of forms of OCD, including scrupulosity, hit and run,

and hoarding problems.

OCF member price $20.00 non-member $24.00 "

For up to date literature on ocd - both fiction and non-fiction, i

look through the ocf's online bookstore. If you have any questions

about a particular book or guide before you order it, just ask about

it here!!

take care and good luck with the new therapist!!

wendy in canada

===================================================

--- Ellen Fleischmann <ellenf2001@...> wrote:

Jackie,

What is this OCD workbook and where can I get a copy? My son is

starting with a new therapist and maybe this might be a useful tool.

Ellen

_______________________________________________________

[Guest guest]

,

Thanks for the tip. I'll check out the OCF bookstore. By the way, my son

is 15 years old. Do you think that the OCD Workbook is to old for him?

Ellen

>From: w birkhan <birkhanw@...>

>Reply-

>

>Subject: Re: Introductions

>Date: Wed, 15 Aug 2001 16:00:53 -0400 (EDT)

>

>Ellen F.,

>

> The OCD Workbook is easy to follow, but not really geared to

>children. I'm sorry but I can't remember how old your son is. When my

>daughter was 12 she found that " Kissing Doorknobs " was a great way to

>read about others in her situation. She passed it around her friends

>and then told them that is how she is - and they became her biggest

>support group!

>

>I purchase my books through the ocf bookstore, but most are available

>through major book sellers. http://www.ocfoundation.org/ocf1110a.htm

>

> " The OCD Workbook: Your Guide to Breaking Free from OCD

> Bruce M. Hyman, Ph.D. and Cherry Pedrick, R.N.

> (Guilford Publications, 1999, 217 pages)

>

> An intensive, self-directed program that shows readers how to

> block or postpone rituals, reduce fears, and change unhealthy

> thought patterns. Included are strategies for overcoming a

> variety of forms of OCD, including scrupulosity, hit and run,

> and hoarding problems.

> OCF member price $20.00 non-member $24.00 "

>

>For up to date literature on ocd - both fiction and non-fiction, i

>look through the ocf's online bookstore. If you have any questions

>about a particular book or guide before you order it, just ask about

>it here!!

>

> take care and good luck with the new therapist!!

>wendy in canada

>===================================================

>--- Ellen Fleischmann <ellenf2001@...> wrote:

>Jackie,

>What is this OCD workbook and where can I get a copy? My son is

>starting with a new therapist and maybe this might be a useful tool.

>Ellen

>

>_______________________________________________________

>

[Guest guest]

Dear Ellen,

The OCD Workbook was written by Cherry Pedwick, a nurse from :as Vegas

who has OCD, and Bruce Hyman, a psychologist from Florida. It is written in

such a way that a person who cannot find adequate therapy can work through

the book on their own. A support group in Indianapolis used it for their

weekly meetings, a chapter each week.

My suggestion is that if the child is too young to use the book

themselves, an adaptable therapist could learn a lot by using the book. It

is available from Amazon, and the OC Foundation.

Jackie

[Guest guest]

Hi there, Minna Aka Lilghostie, from who has a daughter with Autism .

Welcome.

introductions

> hi everyone,

> finally after reading for a while, have decided to introduce mineself

> and the kids.

> we are a family of 3 humans, and two dogs living in norhtern ontario

> on the shores of a large lake in a trailer house.

> am a 35 yr old single mom with aspergers syndrome.

> the children also have aspergers syndrome and daughter-michelle just

> turned 9 and son-mika is 11 1/2.

> we are struggling with various issues to do with autism and some

> issues affect us all, just in varyind degrees.

> some of you may know us from other autism related lists/message

> boards (with the nick lilghostie being used in most except for the

> autismenzymes group and the sensory integration disorder group using

> mine first name-minna).

>

> hoping to find some info in this list, and some of the issues you

> people are dealing with are very familiar.

> will share info as it arises, but have nothing really important to

> share at this time.

> sometimes will share stuff about mineself, apparently have a way to

> express how things are from the autistic perspective so that many

> have said write a book. perhaps some day, lorelie a online friend who

> is grandmother to two spectrum kids says she is keeping all mine

> posts incase will ever write a book. so going on what she says,

> sometimes have somting useful to say.

> when that arises, will try to share.

> asides from that, do not have anything special to share today,

> only want to say hi and introduce our family.

>

> minna aka lilghostie

>

>

>

>

>

>

[Guest guest]

Welcome minna, hope you make some friends in this group, look around there

are heaps of groups i have discovered, there is another group i belong too,

it is AspergersAutism, and it is very good and a real friendly lot of

people.I think the more groups the better. Cheryl

introductions

hi everyone,

finally after reading for a while, have decided to introduce mineself

and the kids.

we are a family of 3 humans, and two dogs living in norhtern ontario

on the shores of a large lake in a trailer house.

am a 35 yr old single mom with aspergers syndrome.

the children also have aspergers syndrome and daughter-michelle just

turned 9 and son-mika is 11 1/2.

we are struggling with various issues to do with autism and some

issues affect us all, just in varyind degrees.

some of you may know us from other autism related lists/message

boards (with the nick lilghostie being used in most except for the

autismenzymes group and the sensory integration disorder group using

mine first name-minna).

hoping to find some info in this list, and some of the issues you

people are dealing with are very familiar.

will share info as it arises, but have nothing really important to

share at this time.

sometimes will share stuff about mineself, apparently have a way to

express how things are from the autistic perspective so that many

have said write a book. perhaps some day, lorelie a online friend who

is grandmother to two spectrum kids says she is keeping all mine

posts incase will ever write a book. so going on what she says,

sometimes have somting useful to say.

when that arises, will try to share.

asides from that, do not have anything special to share today,

only want to say hi and introduce our family.

minna aka lilghostie