Re: ldn, exacerbations, feeling less improvement

November 14, 2004

Try to develop it? There are times when I'm alone and hurting badly

and I talk to God like my best friend in the world. He never judges,

doesn't give me bad advice lets me talk or cry for as long as I want

to. He is our creator, He didn't cause this illness but something in

this world did and chances are man is to blame...not God. The Bible

promises a new body when we get to heaven where there is no pain, no

sickness, no sorrow. He hurts when we hurt and he wants to hear from

us. I know this sounds goofie to some but at times I feel His presence

and a great peace comes over me. All I can say is that having a

personal relationship with Him is what all of us should strive for.

Mine has only been strengthen through this illness and I trust Him.

Hope this doesnt offend anyone but this is my prayer for all of you.

Kathy H

On 14-Nov-04, at 2:10 PM, LarryGC wrote:

> What advice do we give people who may not have that faith?

> ----- Original Message -----

> From: Kathy Huget

> low dose naltrexone

> Sent: Sunday, November 14, 2004 15:30

> Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less

> improvement

>

> My heart goes out to both and Marcie. I've been on a decline

> (SPMS) for the past four months but still nothing compared to what you

> both are dealing with. I am close to a constant wheelchair. My

> mother-in-law today suggested some thing that worked for her " restless

> legs " . People dont understand that this weird pain and nerve sensation

> throughout my whole body that keeps me awake all night, will not go

> away with advil. She is healthy and 73 and keeps trying to compare

> some pain she's having to what I deal with. Drives me crazy! Grrrr!

> But I have a husband who helps lots and 3 wonderful teenagers who are

> quite compassionate with what I deal with. I feel very very blessed.

> My faith in God is what keeps me going.

>

November 14, 2004

What advice do we give people who may not have that faith?

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Sunday, November 14, 2004 15:30

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

My heart goes out to both and Marcie. I've been on a decline (SPMS) for the past four months but still nothing compared to what you both are dealing with. I am close to a constant wheelchair. My mother-in-law today suggested some thing that worked for her "restless legs". People dont understand that this weird pain and nerve sensation throughout my whole body that keeps me awake all night, will not go away with advil. She is healthy and 73 and keeps trying to compare some pain she's having to what I deal with. Drives me crazy! Grrrr! But I have a husband who helps lots and 3 wonderful teenagers who are quite compassionate with what I deal with. I feel very very blessed. My faith in God is what keeps me going.

November 14, 2004

I'm glad it works for you. But I think LDN can work for people who have other beliefs, or no beliefs. So your advice for someone who doesn't share your beliefs is to develop your beliefs?

I'll offer something for someone with any belief, or none. Check out Dr. Wayne Dyer's books and audio tapes. Spend some time with Yourself and his works. You may find God, you have already found God, but what he offers is either Sans or With, it's not a factor.

Other than my chiropractors and LDN, I think it's what I've learned on my own, with the help of Wayne's wisdom has helped me daily, 11 years now. What's really strange is that I found Wayne Dyer in 1993 and when I was DX with MS in 2002 I immediately realized I was having annual MS exacerbations for 10 years by then! He was helping me cope for 9 years before I even knew I was Coping with something!

I don't know how I'd be if not for my transformation 11 years ago. His first 4 books helped me, they're just simple down to earth, day to day, living books. His later books are more spiritual, one full half of one book is dedicated to St. Francis's Prayer, a chapter for each verse. His latest book is really catching on.

So if you're depressed and always anxious, whether you're not religious, or very religious (but STILL depressed?!), I highly recommend spending some time with Wayne's offerings to the universe.

I created my own dedication page to his books back in 1995 when all I had was a text file listing his books so I could tell people their names when they asked. It's changed a bit since then. http://www.larrygc.com/dyer.html

I'm not selling anything.. just offering what I consider golden advice for those who may appreciate it. His books are available at Walden, Amazon or BDalton.

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Sunday, November 14, 2004 15:52

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Try to develop it? There are times when I'm alone and hurting badly and I talk to God like my best friend in the world. He never judges, doesn't give me bad advice lets me talk or cry for as long as I want to. He is our creator, He didn't cause this illness but something in this world did and chances are man is to blame...not God. The Bible promises a new body when we get to heaven where there is no pain, no sickness, no sorrow. He hurts when we hurt and he wants to hear from us. I know this sounds goofie to some but at times I feel His presence and a great peace comes over me. All I can say is that having a personal relationship with Him is what all of us should strive for. Mine has only been strengthen through this illness and I trust Him.Hope this doesnt offend anyone but this is my prayer for all of you.Kathy HOn 14-Nov-04, at 2:10 PM, LarryGC wrote:

What advice do we give people who may not have that faith? ----- Original Message -----From: Kathy Huget low dose naltrexone Sent: Sunday, November 14, 2004 15:30Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvementMy heart goes out to both and Marcie. I've been on a decline (SPMS) for the past four months but still nothing compared to what you both are dealing with. I am close to a constant wheelchair. My mother-in-law today suggested some thing that worked for her "restless legs". People dont understand that this weird pain and nerve sensation throughout my whole body that keeps me awake all night, will not go away with advil. She is healthy and 73 and keeps trying to compare some pain she's having to what I deal with. Drives me crazy! Grrrr! But I have a husband who helps lots and 3 wonderful teenagers who are quite compassionate with what I deal with. I feel very very blessed. My faith in God is what keeps me going.

November 14, 2004

Hi all

I read these with great interest as sunlight or the lack of it anyway does affect me more than stress, which I have very little of.

I must be an idiot but really I am so laid back now that I no longer have to go to work that I am almost giddy.

Right now we have close to eight hours of sunlight which is really stretching it too, and cloudy days or cold ones(plenty of these in the winter) will find me feeling almost ill. Call it depresion, stress,or just the blues but it is a real factor before LDN it was a real problem now it is at least manageable.

Reg

-------Original Message-------

From: low dose naltrexone

Date: 11/14/04 06:56:25

low dose naltrexone

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

In a message dated 11/13/2004 12:27:26 PM Eastern Standard Time, sheilat252002@... writes:

I did take a 10 day vacation, so I blame some of it on that stress, but your problems make me wonder if there is more to it. I also stopped taking copaxone about 2 months ago and noticed an immediate improvement, but wonder if the long run change is going to be for the worse. I'm prepared to go back on it if I have to, I consider this a 3 month vacation from it.

Another thought is that there is less sun here (Germany, so almost none) and maybe the change in vitamin D is effecting this negative change.

Anyway, I'm interested in your thoughts on this and what further changes/improvements you may notice. Keep me/us posted.

Best, Sheila (SPMS)

Sheila

Just my thoughts on this but I tthink a combination of the stress (good or bad) and the sunlight have a lot to do with this. Yesterday although it's very cold here in Michigan was a beautiful, sunny day.

I sat in a chair in front of the doorwall and just soaked up sunlight for about 10 minutes. I don't know what it did for me as far as getting any vitamin D, but the bright sunshine helped my mood. I seriously thinking about getting one of those sun lamps recently discussed on this board.

I started the ldn April 11 and quit Copaxone at the end of April. Although I don't believe it did anything, I wish I had never taken it.

I'm just going to keep taking the ldn and try to reduce the stress even more. I do feel a little less fatigued.

Arlene

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November 14, 2004

Marcie,

I agree with you completely, and if I am wrong, then I guess I will spend Death

in Hell. I am one of those people who has told my family and doctors that if I

become so disabled, and can no longer care for myself independently, I want to

die and I have a plan in place. I do not blame God for this illness - I take

complete blame for it. Although I never smoked or drank alcohol or hurt

people, I did drink Pepsi and I love chocolate and sugar. Those are my sins.

I believe in miracles by God, but I guess, God does not believe in me. So, be

it! Just venting!

Peace!

VCL

OK, I'm not trying to freak anybody out! I was raised Christian and believe I am. It's just not enough at times. If that's weak/no faith, so be it! I'm not asking for miracles anymore, just a little relief! A miracle would be nice, and I haven't given up hope. I believe that is all I've got. And God knows that sometimes I don't feel like I've got much! I don't beat myself up over it anymore. Sometimes I rage at God and shake my fist at Him and say, "If that's the best you can do, then stay the heck away from me!" If I am going to pay for owning my own feelings then oh well! I was made to feel ashamed and guilty most of my life! No more!

To quote a line from the classic "To Kill a Mockingbird", some men are so worried about the next life, and they don't even know how to live in this one. Everyone knows there is no sickness or disease in heaven. I'm trying to get through this life, and it ain't easy when you're an 8 on the disability scale! I think I'm doing pretty good considering a 10 is death! I just don't feel like God is with me helping through difficult times! I'm hard-headed, and I won't give up until I absolutely can't figure out a way to scratch and claw and fight my way out of bed! At that point, eventually I'll wither away because I refuse to have someone feed me and wipe my rear end! That's just me and God knows that!

LDN is the ONLY thing that has helped even a little bit. No doctors, diets, or prayer has helped in a tangible sort of way. I don't think that they hurt, except for the CRABs.

Marcie

In a message dated 11/14/2004 3:27:53 PM Central Standard Time, larrygc@... writes:

I'm glad it works for you. But I think LDN can work for people who have other beliefs, or no beliefs. So your advice for someone who doesn't share your beliefs is to develop your beliefs?

I'll offer something for someone with any belief, or none. Check out Dr. Wayne Dyer's books and audio tapes. Spend some time with Yourself and his works. You may find God, you have already found God, but what he offers is either Sans or With, it's not a factor.

Other than my chiropractors and LDN, I think it's what I've learned on my own, with the help of Wayne's wisdom has helped me daily, 11 years now. What's really strange is that I found Wayne Dyer in 1993 and when I was DX with MS in 2002 I immediately realized I was having annual MS exacerbations for 10 years by then! He was helping me cope for 9 years before I even knew I was Coping with something!

I don't know how I'd be if not for my transformation 11 years ago. His first 4 books helped me, they're just simple down to earth, day to day, living books. His later books are more spiritual, one full half of one book is dedicated to St. Francis's Prayer, a chapter for each verse. His latest book is really catching on.

So if you're depressed and always anxious, whether you're not religious, or very religious (but STILL depressed?!), I highly recommend spending some time with Wayne's offerings to the universe.

I created my own dedication page to his books back in 1995 when all I had was a text file listing his books so I could tell people their names when they asked. It's changed a bit since then. http://www.larrygc.com/dyer.html

I'm not selling anything.. just offering what I consider golden advice for those who may appreciate it. His books are available at Walden, Amazon or BDalton.

----- Original Message ----- From: Kathy Huget low dose naltrexone Sent: Sunday, November 14, 2004 15:52

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Try to develop it? There are times when I'm alone and hurting badly and I talk to God like my best friend in the world. He never judges, doesn't give me bad advice lets me talk or cry for as long as I want to. He is our creator, He didn't cause this illness but something in this world did and chances are man is to blame...not God. The Bible promises a new body when we get to heaven where there is no pain, no sickness, no sorrow. He hurts when we hurt and he wants to hear from us. I know this sounds goofie to some but at times I feel His presence and a great peace comes over me. All I can say is that having a personal relationship with Him is what all of us should strive for. Mine has only been strengthen through this illness and I trust Him.

Hope this doesnt offend anyone but this is my prayer for all of you.

Kathy H

On 14-Nov-04, at 2:10 PM, LarryGC wrote:

What advice do we give people who may not have that faith? ----- Original Message -----

From: Kathy Huget low dose naltrexone Sent: Sunday, November 14, 2004 15:30

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

My heart goes out to both and Marcie. I've been on a decline (SPMS) for the past four months but still nothing compared to what you both are dealing with. I am close to a constant wheelchair. My mother-in-law today suggested some thing that worked for her "restless legs". People dont understand that this weird pain and nerve sensation throughout my whole body that keeps me awake all night, will not go away with advil. She is healthy and 73 and keeps trying to compare some pain she's having to what I deal with. Drives me crazy! Grrrr! But I have a husband who helps lots and 3 wonderful teenagers who are quite compassionate with what I deal with. I feel very very blessed. My faith in God is what keeps me going.

November 14, 2004

Kathy,

Ditto. And if we came across LDN, wasn't it the Lord who allowed it to help bring relief? God is good all the time.

God Bless

Yolanda

----- Original Message -----

From: Kathy Huget

low dose naltrexone

Sent: Sunday, November 14, 2004 3:52 PM

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Try to develop it? There are times when I'm alone and hurting badly and I talk to God like my best friend in the world. He never judges, doesn't give me bad advice lets me talk or cry for as long as I want to. He is our creator, He didn't cause this illness but something in this world did and chances are man is to blame...not God. The Bible promises a new body when we get to heaven where there is no pain, no sickness, no sorrow. He hurts when we hurt and he wants to hear from us. I know this sounds goofie to some but at times I feel His presence and a great peace comes over me. All I can say is that having a personal relationship with Him is what all of us should strive for. Mine has only been strengthen through this illness and I trust Him.Hope this doesnt offend anyone but this is my prayer for all of you.Kathy HOn 14-Nov-04, at 2:10 PM, LarryGC wrote:

What advice do we give people who may not have that faith? ----- Original Message -----From: Kathy Huget low dose naltrexone Sent: Sunday, November 14, 2004 15:30Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvementMy heart goes out to both and Marcie. I've been on a decline (SPMS) for the past four months but still nothing compared to what you both are dealing with. I am close to a constant wheelchair. My mother-in-law today suggested some thing that worked for her "restless legs". People dont understand that this weird pain and nerve sensation throughout my whole body that keeps me awake all night, will not go away with advil. She is healthy and 73 and keeps trying to compare some pain she's having to what I deal with. Drives me crazy! Grrrr! But I have a husband who helps lots and 3 wonderful teenagers who are quite compassionate with what I deal with. I feel very very blessed. My faith in God is what keeps me going.

November 14, 2004

While MS is often worsened or maybe even triggered by Pepsi and chocolate I don't believe it is a divine punishment for enjoying them. I seriously doubt any of us are being punished in this manner by a supreme being. Your faith may encourage you to believe that you are being tested and that in itself may give you the strength to persevere. Any belief that strengthens you is a great thing, but punishment for whatever sins you've committed? I doubt it. If that were the case there are an awful lot of truly immoral and cruel people living in good health until their death from old age or state mandated executions...

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Sunday, November 14, 2004 3:06 PM

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Marcie,I agree with you completely, and if I am wrong, then I guess I will spend Death in Hell. I am one of those people who has told my family and doctors that if I become so disabled, and can no longer care for myself independently, I want to die and I have a plan in place. I do not blame God for this illness - I take complete blame for it. Although I never smoked or drank alcohol or hurt people, I did drink Pepsi and I love chocolate and sugar. Those are my sins. I believe in miracles by God, but I guess, God does not believe in me. So, be it! Just venting!Peace!VCL

November 14, 2004

Hi VCL,

It isn't sinful to enjoy chocolate and sweets, God created the source where we get them from, He knew it would bring us pleasure. I'm a chocoholic and I enjoy it to an extent. As far as miracles, I have seen so many in my life and the life of others, but it's in His time. He knows you and He will work according to your faith. So if you say you believe in miracles, you will receive one. It was Him who allowed us to find LDN. Enjoy it's relief and expect a miracle.

God Bless

Yolanda

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Sunday, November 14, 2004 6:06 PM

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Marcie,I agree with you completely, and if I am wrong, then I guess I will spend Death in Hell. I am one of those people who has told my family and doctors that if I become so disabled, and can no longer care for myself independently, I want to die and I have a plan in place. I do not blame God for this illness - I take complete blame for it. Although I never smoked or drank alcohol or hurt people, I did drink Pepsi and I love chocolate and sugar. Those are my sins. I believe in miracles by God, but I guess, God does not believe in me. So, be it! Just venting!Peace!VCL

November 14, 2004

Have you tried to give up all chocolate, for say, 8-10 weeks? See if you notice any changes after say, 3 weeks.

Then after 8-10 weeks, see how you feel, then start eating it again and see how you feel 3 weeks after that. You may find chocolate is a big enemy to you.

----- Original Message -----

From: manchester_terrier@...

low dose naltrexone

Sent: Sunday, November 14, 2004 18:06

Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Marcie,I agree with you completely, and if I am wrong, then I guess I will spend Death in Hell. I am one of those people who has told my family and doctors that if I become so disabled, and can no longer care for myself independently, I want to die and I have a plan in place. I do not blame God for this illness - I take complete blame for it. Although I never smoked or drank alcohol or hurt people, I did drink Pepsi and I love chocolate and sugar. Those are my sins. I believe in miracles by God, but I guess, God does not believe in me. So, be it! Just venting!Peace!VCL

November 15, 2004

You did ask for a suggestion and Im just sharing what works for me.

Did not mean to offend you. Obviously LDN works for people of any

belief that wasn't what I was suggesting at all. I Appreciate

everyone's experiences here and no one is knocking what you are

suggesting so why attack me?? Thats great that these books have helped

you and now you are sharing that with others...is that not what we are

here for? You have a double standard I'm afraid.

Kathy

On 14-Nov-04, at 2:59 PM, LarryGC wrote:

> I'm glad it works for you. But I think LDN can work for people who

> have other beliefs, or no beliefs. So your advice for someone who

> doesn't share your beliefs is to develop your beliefs?

>

> I'll offer something for someone with any belief, or none. Check out

> Dr. Wayne Dyer's books and audio tapes. Spend some time with Yourself

> and his works. You may find God, you have already found God, but what

> he offers is either Sans or With, it's not a factor.

>

> Other than my chiropractors and LDN, I think it's what I've learned on

> my own, with the help of Wayne's wisdom has helped me daily, 11 years

> now. What's really strange is that I found Wayne Dyer in 1993 and

> when I was DX with MS in 2002 I immediately realized I was having

> annual MS exacerbations for 10 years by then! He was helping me cope

> for 9 years before I even knew I was Coping with something!

>

> I don't know how I'd be if not for my transformation 11 years ago.

> His first 4 books helped me, they're just simple down to earth, day to

> day, living books. His later books are more spiritual, one full half

> of one book is dedicated to St. Francis's Prayer, a chapter for each

> verse. His latest book is really catching on.

>

> So if you're depressed and always anxious, whether you're not

> religious, or very religious (but STILL depressed?!), I highly

> recommend spending some time with Wayne's offerings to the universe.

>

> I created my own dedication page to his books back in 1995 when all I

> had was a text file listing his books so I could tell people their

> names when they asked. It's changed a bit since then.

> http://www.larrygc.com/dyer.html

>

> I'm not selling anything.. just offering what I consider golden advice

> for those who may appreciate it. His books are available at Walden,

> Amazon or BDalton.

>

> ----- Original Message -----

> From: Kathy Huget

> low dose naltrexone

> Sent: Sunday, November 14, 2004 15:52

> Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less

> improvement

>

> Try to develop it? There are times when I'm alone and hurting badly

> and I talk to God like my best friend in the world. He never judges,

> doesn't give me bad advice lets me talk or cry for as long as I want

> to. He is our creator, He didn't cause this illness but something in

> this world did and chances are man is to blame...not God. The Bible

> promises a new body when we get to heaven where there is no pain, no

> sickness, no sorrow. He hurts when we hurt and he wants to hear from

> us. I know this sounds goofie to some but at times I feel His presence

> and a great peace comes over me. All I can say is that having a

> personal relationship with Him is what all of us should strive for.

> Mine has only been strengthen through this illness and I trust Him.

>

> Hope this doesnt offend anyone but this is my prayer for all of you.

>

> Kathy H

> On 14-Nov-04, at 2:10 PM, LarryGC wrote: