Re: ldn, exacerbations, feeling less improvement

[Guest guest]

Zora, I strongly suspect that what we call MS is in fact many diseases. Much like there are many forms of cancer, there are probably many things that are CALLED MS but have different causes and take different courses. And therefore respond differently to the many different supplements and treatments...

JT

----- Original Message -----

From: Zora

low dose naltrexone

Sent: Monday, November 15, 2004 11:02 AM

Subject: [low dose naltrexone] Re: ldn, exacerbations, feeling less improvement

I have problem with this vit D theory...I live since 1977 in tropics, been on sun every day since then and even with all the supplements and LDN I am not seeing fantastic improvemnts!ZoraTrinidadWI> > In a message dated 11/13/2004 12:58:18 PM Eastern Standard Time, > jatrac1@p... writes:> > I wonder most about the vitamin D connection. As the days have become > shorter I've had a continuing increase in symptoms and discomfort despite taking > supplemental vitamin D. And I find myself craving sunshine...> > > > JT> Like I posted to Sheila, I think the lack of sunshgine/Vit D has a lot to do > with mood, which in turn causes stress, which in turn causes an increase in > symptoms.> > I guess Ashton Embry's theories on vit D are valid (he's the originator of > the BBD).> > Arlene

[Guest guest]

Marcie,

Your words tell me that you're a real survivor. Being a hard headed rebel is something I certainly can relate to and is one of your best traits! My mother is ppms but she is so hard headed she will not even listen to my LDN speeches! Please always remember that you have friends on this board wishing you well now and always

From: marciemjm@... [mailto:marciemjm@...] Sent: Monday, November 15, 2004 10:26 AMlow dose naltrexone Subject: Re: [low dose naltrexone] ldn, exacerbations, feeling less improvement

Here's my point, when a person is able-bodied and making it fairly well through their days, not falling and bouncing their heads off of the floor or cutting partrs of their body on the way down during the fall, faith is much easier. The last time this happened to me, as I dragged my paralyzed body to the stool that I had made so that I don't have to call the PD or EMS everytime I need back in my chair (and take it from me, the stool doesn't make the job of getting in the chair easy!), I left a trail of blood from the bathroom to my bedroom. It wasn't a comfort to know that God was there watching me. Maybe it's just me, but truly, I didn't know that I could lose so much. No doctors will tell one about this since it can send someone over the edge. None of the literature even came close. I've learned as I've gone! Like I've said, I'm hard-headed and I ain't giving in! It will be over my dead body that I let this disease win! I know that nothing could have prepared me for this hell on earth! I had to learn it on my own! Proverbs mentions that a peaceful spirit is good for the soul, but stife and turmoil will rot the bones! I know this is true for me. I've been an emotional wreck my entire life. My parents used to think it was cute how I worried about things as a child. I think their ignorance let them perceive it as responsibility somehow. Or maybe I wouldn't get into trouble if I was so concerned about consequences. They had control issues! Anyway...stress is a killer. Don't worry...be happy! If a person isn't making mistakes, they aren't living! Life on this earth needs to be lived to the fullest! There's my advice to anyone! Oh, and if a diagnosis of MS comes along, get LDN ASAP!! Marcie In a message dated 11/14/2004 9:02:04 PM Central Standard Time, etna@... writes:

Thankyou Yolanda...that was kinda the point I was making. Was only trying to encourage, I care deeply about all of you and only wish the best for everyone on this forum. God for me is the best. Love to all,

[Guest guest]

Hello

I am glad that you are taking LDN.

I am very sorry that you had and still have to go through such

difficult times.

Loneliness is strange thing. I have very nice family, but we do not

talk about MS, neither we talk about my husband's heart problems and

so on. So although I am not alone physically, I am alone in my own

ordeal. I try not to be bothered by it, because situation can be

worse.

I literally have to force myself to be positive as positive can be.

I had to work on my mind for years...just to get out of depressions.

Till recently I used to call MS all negative things, now I turned it

to Morning Serenity, Morning Starter, Morning Star. It helps.

What really keeps me now alive? Before it were our children as they

were small when I started having problems with MS, now they are all

grown up and gone and I fell less useless, but the idea that life

was given to me somehow keeps me going. And I have HOPE.

Zora

Trinidad

WI

http://www.geocities.com/mumza18/

> Yes , I've been taking LDN since February 04. It hasn't done

for me what it has for others but it has helped a little so I see no

reason to stop taking it. I appreciate you responding to my message

and your concern but there are other people who are in much worse

shape than I am. I can still drive and get around with a cane, which

isn't the case for many. I was just trying to express my

frustrations at all the other problems that a chronic illness like

MS brings to life. Loneliness is what bothers me the most because it

isn't something that should ever happen. It really is frustrating to

watch people who were once close run away we have leprocy. The one

person who would have stood by me is my wife but she was in a

nursing home before I needed any help. I'm glad that I stuck by her

all those years before she went into the nursing home but it was

painful to watch all her friends turn her back on her. I just want

to point out to the public how much more difficult being disabled is

because of the way we are treated. Perfect strangers seem to treat

us the best, opening doors and helping any way they can but people

who were close tend to be downright mean. I can tell by the

responses that I received that I'm not alone in the way I feel. It's

just that I watched it happen to my wife before it happened to me

and it made me sick both times. Thankfully we have the internet so

we can support each other because we are going through basically the

same thing. The responses that I got from you, Joanne, , Russ,

Marcie, , Chi and others are all important to me.

>

Best wishes,

>

Chris

> -------------- Original message --------------

>

> >

> >

> > your story touches me very much and I'm sorry you have to

go

> > through this. I'm curious to know if you're taking LDN and if

it's

> > helped at all...

> >

> >

> >

> > ________________________________________________________________

> > Juno Platinum $9.95. Juno SpeedBand $14.95.

> > Sign up for Juno Today at http://www.juno.com!

> > Look for special offers at Best Buy stores.

> >

> >

> >

> >

> >

[Guest guest]

Yes I agree with you it is very complex mammoth.

Zora

> Zora, I strongly suspect that what we call MS is in fact many

diseases. Much like there are many forms of cancer, there are

probably many things that are CALLED MS but have different causes

and take different courses. And therefore respond differently to

the many different supplements and treatments...

[Guest guest]

Good for you, Marcie! You said that beautifully.

________________________________________________________________

Juno Platinum $9.95. Juno SpeedBand $14.95.

Sign up for Juno Today at http://www.juno.com!

Look for special offers at Best Buy stores.

[Guest guest]

Zora....I like your new definitions of MS and admire your attitude.

We all battle depression with this dreaded disease but the key word is

" battle " . Sounds like your are winning yours! Thanks for the

inspiration.

Kathy

Canada

On 15-Nov-04, at 3:49 PM, Zora wrote:

>

> Hello

> I am glad that you are taking LDN.

> I am very sorry that you had and still have to go through such

> difficult times.

>

> Loneliness is strange thing.  I have very nice family, but we do not

> talk about MS, neither we talk about my husband's heart problems and

> so on.  So although I am not alone physically, I am alone in my own

> ordeal.  I try not to be bothered by it, because situation can be

> worse.

> I literally have to force myself to be positive as positive can be. 

> I had to work on my mind for years...just to get out of depressions.

> Till recently I used to call MS all negative things, now I turned it

> to Morning Serenity, Morning Starter, Morning Star. It helps.

> What really keeps me now alive?  Before it were our children as they

> were small when I started having problems with MS, now they are all

> grown up and gone and I fell less useless, but the idea that life

> was given to me somehow keeps me going. And I have HOPE.

> Zora

> Trinidad

> WI

> http://www.geocities.com/mumza18/

>

>

>

> > Yes , I've been taking LDN since February 04. It hasn't done

> for me what it has for others but it has helped a little so I see no

> reason to stop taking it. I appreciate you responding to my message

> and your concern but there are other people who are in much worse

> shape than I am. I can still drive and get around with a cane, which

> isn't the case for many. I was just trying to express my

> frustrations at all the other problems that a chronic illness like

> MS brings to life. Loneliness is what bothers me the most because it

> isn't something that should ever happen. It really is frustrating to

> watch people who were once close run away we have leprocy. The one

> person who would have stood by me is my wife but she was in a

> nursing home before I needed any help. I'm glad that I stuck by her

> all those years before she went into the nursing home but it was

> painful to watch all her friends turn her back on her. I just want

> to point out to the public how much more difficult being disabled is

> because of the way we are treated. Perfect strangers seem to treat

> us the best, opening doors and helping any way they can but people

> who were close tend to be downright mean. I can tell by the

> responses that I received that I'm not alone in the way I feel. It's

> just that I watched it happen to my wife before it happened to me

> and it made me sick both times. Thankfully we have the internet so

> we can support each other because we are going through basically the

> same thing. The responses that I got from you, Joanne, , Russ,

> Marcie, , Chi and others are all important to me.  

> >                                                                   

>                              Best wishes,

> >                                                                   

>                              Chris

> > -------------- Original message --------------

> >

> > >

> > >

> > > your story touches me very much and I'm sorry you have to

> go

> > > through this. I'm curious to know if you're taking LDN and if

> it's

> > > helped at all...

> > >

> > >

> > >

> > > ________________________________________________________________

> > > Juno Platinum $9.95. Juno SpeedBand $14.95.

> > > Sign up for Juno Today at http://www.juno.com!

> > > Look for special offers at Best Buy stores.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Kathy you're welcome.

The self talk and what sort of self talk is important! Nobody can do

anything about that but you. And if I have to hypnotize myself to

feel better, I'll do it.

Zora

Trinidad

WI

--- In low dose naltrexone , Kathy Huget <etna@s...>

wrote:

> Zora....I like your new definitions of MS and admire your

attitude.

> We all battle depression with this dreaded disease but the key

word is

> " battle " . Sounds like your are winning yours! Thanks for the

> inspiration.

>

> Kathy

> Canada