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Jana- so gladto see you back. Was starting to get worried. Wish I could help

with your pain. Could it be gall bladder? Praying for you. ne

>From: janalise <serene@...>

>Reply-egroups

>egroups

>Subject: hello and help

>Date: Tue, 04 Jul 2000 18:52:24 -0600

>

>I tried to get an e-mail to you all from a friends computer - guess it

>didn't

>get sent... my PC is on the fritz... already lost soooo much... anyway,

>Jack it

>was so sweet of you to call. I know you tried a few other times, too - I

>was

>home in bed and alone and didn't get up for the phone.

>

>During this unwelcome period of cyber silence, I realized life will go on

>after

>I leave here... it was a humbling thought. buried a woman my age

>yesterday. She was feeling better than me recently... scary times.

>

>The doc in Chicago says the leg has to go. So does the neurologist...

>

>ANYWAY I HAVE AN URGENT PROBLEM... and please don't tell me to go to the ER

>-

>cuz the worst doc in all of Iowa is on call tonight.

>

>I have a pain.

>

>It started about 10 days ago. I had it for a morning and part of an

>afternoon... It was in my left ribs/side, hurt worse to breathe... had a

>chest

>Xray and it showed my heart is enlarged. It settled down and then a few

>days

>later I had chest pain over my sternum to the right a bit. I sweated,

>barfed

>and felt a bit better. Now the pain is back and it is so severe I can't

>move...

>I have taken all the pain meds I dare take... and visualized till I am

>blue...

>Also, I twitch and jerk frequently . Please someone help me... Also, I have

>a

>rash on my leg - the bad one - could it be more infection??? It itches

>something terrible and I am about to go insane with pain and itchies...

>

>I have adjusted to life in the chair, and will tell you more later. I have

>to

>go chew some morphine...

>

>I MISSED YOU ALL & AM HAPPY HAPPY TO BE HERE!!!janalise

________________________________________________________________________

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In a message dated 7/4/00 7:44:49 PM Central Daylight Time,

serene@... writes:

<< It started about 10 days ago. I had it for a morning and part of an

afternoon... It was in my left ribs/side, hurt worse to breathe... had a

chest

Xray and it showed my heart is enlarged >>

Janalise,

OMG!!!! I'm so sorry to hear that! Do you have diabetes? Maybe the water

retention has enlarged your heart? Don't get paranoid-I'm no doctor! I really

hope you are feeling better soon! Maybe the rash is from moving around a lot

?(Rubbing against your clothes?) I'm sending many hugs and prayers!!!! xoxo

^,,^

>:<

**** @lison

" Copywight 1994 Elmer Fudd. All wights wesewved. "

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  • 4 years later...

You are going to LOVE VEGAS!!! I went there for the 1st time in July, after

having gotten myself into some pretty darn good shape, and had the time of my

life. You will not believe what a wild and fun place it is. Where are you

staying? The workout facilities at our hotel, The Venetian, were phenomenal. I

had the best workouts everyday. My husband is there right now and I just talked

to him. He's already planning for us to go back. You will be in shock when you

see what it's like. FUN, FUN, FUN!! And it's not " cheap and slutty " like you

always see in movies.

As for workout....you don't have a treadmill at home? How about doing an

intense step aerobic video? What about running outside? Whatever you do,

remember, it has to be intense. That's where you get your results from. Good

Luck and Have Fun!

littlebit_102000 <no_reply > wrote:

Hi ladies, just thought I would check in and see how things are goig

around here. I don't get a chance to post much anymore, but I do try

to read them everyday. Congrats to all who are doing so well, that

is great!

Need a little advice here now. I am headed to Vegas on December 8,

my first time there! I know there is no 'miracle " that is going to

make me drop the last 20 pounds by then, but I also don't have many

options for workouts either. Currently I am commuting 1 hour each

way to go to work, my gym is in the town where I work, but I only get

an hour for lunch, and it takes me 20 minutes to get to that side of

town. Weights aren't too much of a problem as my boyfriend has a set

at home that I can use. Any suggestions for an early morning cardio

that I can do that won't wake him OR the neighbors up? I would

really like to look good for this trip, well and for the rest of my

life, but need a " jumpstart " in 4 weeks. ANy good ideas?

Thanks in advance, hope everybody has a WONDERFULL WEEK-END!!

Beej :)

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Beej - I like the Tae Bo 2004 dvd's and The Firm dvd's for at-home cardio if

the weather isn't good and I have no access to machines (like when I was at

my sisters' last week). If the weather is good, I recommend adding a HIIT

walk/jog/run (depending on the shape you are in) and if you can get some

hills in there, all the better.

Kathy

_____

From: littlebit_102000 [mailto:no_reply ]

Sent: Saturday, 13 November, 2004 4:15 PM

Subject: Hello and Help

Hi ladies, just thought I would check in and see how things are goig

around here. I don't get a chance to post much anymore, but I do try

to read them everyday. Congrats to all who are doing so well, that

is great!

Need a little advice here now. I am headed to Vegas on December 8,

my first time there! I know there is no 'miracle " that is going to

make me drop the last 20 pounds by then, but I also don't have many

options for workouts either. Currently I am commuting 1 hour each

way to go to work, my gym is in the town where I work, but I only get

an hour for lunch, and it takes me 20 minutes to get to that side of

town. Weights aren't too much of a problem as my boyfriend has a set

at home that I can use. Any suggestions for an early morning cardio

that I can do that won't wake him OR the neighbors up? I would

really like to look good for this trip, well and for the rest of my

life, but need a " jumpstart " in 4 weeks. ANy good ideas?

Thanks in advance, hope everybody has a WONDERFULL WEEK-END!!

Beej :)

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Beej,

Can you get out of the house for a quick walk/run in the morning?

That would be the best thing. Otherwise, if you're looking more

toward home video workouts, I've tried the firm step videos & they

work great! I think they're all an hour long, which is too long for

me....but I've seen some really great results from doing them! :)

Hope this helps,

Janel

>

> Hi ladies, just thought I would check in and see how things are

goig

> around here. I don't get a chance to post much anymore, but I do

try

> to read them everyday. Congrats to all who are doing so well, that

> is great!

> Need a little advice here now. I am headed to Vegas on December 8,

> my first time there! I know there is no 'miracle " that is going to

> make me drop the last 20 pounds by then, but I also don't have many

> options for workouts either. Currently I am commuting 1 hour each

> way to go to work, my gym is in the town where I work, but I only

get

> an hour for lunch, and it takes me 20 minutes to get to that side

of

> town. Weights aren't too much of a problem as my boyfriend has a

set

> at home that I can use. Any suggestions for an early morning

cardio

> that I can do that won't wake him OR the neighbors up? I would

> really like to look good for this trip, well and for the rest of my

> life, but need a " jumpstart " in 4 weeks. ANy good ideas?

> Thanks in advance, hope everybody has a WONDERFULL WEEK-END!!

>

> Beej :)

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If you are looking for an inside video, the following are Interval

Training and work well with BFL concepts:

Cathe Friedrich www.cathe.com IMAX and IMAX2

Reebok Gin 's Intense Moves www.reebok.com

Most of the Taebos work pretty well also for 20MAS just adjust your

pace accordingly.

Colleen

>

> >

> > Hi ladies, just thought I would check in and see how things are

> goig

> > around here. I don't get a chance to post much anymore, but I do

> try

> > to read them everyday. Congrats to all who are doing so well,

that

> > is great!

> > Need a little advice here now. I am headed to Vegas on December

8,

> > my first time there! I know there is no 'miracle " that is going

to

> > make me drop the last 20 pounds by then, but I also don't have

many

> > options for workouts either. Currently I am commuting 1 hour

each

> > way to go to work, my gym is in the town where I work, but I only

> get

> > an hour for lunch, and it takes me 20 minutes to get to that side

> of

> > town. Weights aren't too much of a problem as my boyfriend has a

> set

> > at home that I can use. Any suggestions for an early morning

> cardio

> > that I can do that won't wake him OR the neighbors up? I would

> > really like to look good for this trip, well and for the rest of

my

> > life, but need a " jumpstart " in 4 weeks. ANy good ideas?

> > Thanks in advance, hope everybody has a WONDERFULL WEEK-END!!

> >

> > Beej :)

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  • 10 months later...

Hello,

Here is my recipe. Works for me.

Kombucha Recipe:

You will need:

1 glass wide mouth glass jar with cap (Subway deli gives them away free -

just ask them to put your name on one for you and hold it or else they will

throw it away)

1 cup of white sugar

6 black teabags

3 quarts of water

1 stainless steel pot

1 SCOBY plus starter tea

1 plastic bag

Place cup of sugar in pot. Add 2 cups of water. Bring to boil, let boil

until sugar is dissolved. Remove from heat, and add teabags. Let steep for 5

minutes.

While tea is steeping, measure 2.5 quarts or 10 cups of water into glass

jar. When the tea has steeped, remove teabags and add hot tea to cold water

in jar. The cold water will absorb the heat, so that it will not injure the

SCOBY, which starts to die above 100 degrees F. Add the SCOBY and starter

tea.

Cover the jar with a plastic bag to protect the metal in the cap from

rusting into the tea.

(Contact with metal damages the brew). Cap the jar. Let ferment away from

the microwave oven for at least 8 days, longer if you have candida or

diabetes. It will take about 14 days for the brew to turn to vinegar.

The first brew will take longer, the subsequent ones will be faster. It is

thought that moving the SCOBY and the starter tea causes it to go into

shock.

Be sure to uncap the jar each day to give it air. Keep out of sunlight as

the UV rays can kill the beneficial bacteria in the brew. From time to time,

you may wish to dunk the SCOBY to ensure that it does not get mold; which is

green, black, and/or fuzzy and often grows in circles.

If you wish to make 1 gallon of kombucha, increase the amount of sugar to 1

and one third cup of sugar, 8 teabags, and the water added to 3.5 quarts.

You will need another glass jar for the rest of the KT and another SCOBY.

hello and help

> Hello all I am just learning how to make Kombucha. Can someone tell me of

> a

> sight that has solid instructions. I am reading so many different things

> I

> am confused. I am even having problems finding a sun tea jar. Any

> instructions would be appreciated.

>

> Gisele and Einstein

>

>

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In our area we can only find sun tea jars during the summer. But you can brew it

in any jar--I use empty gallon pickle jars.

Here are some websites

http://www.happyherbalist.com/brewing_kombucha.htm

kombucha tea/

http://w3.trib.com/~kombu/FAQ/homeFAQ.html

http://www.bluemarble.de/Norbert/kombucha/Recipe/recipe.htm

HTH

CherylC

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Version: 7.0.344 / Virus Database: 267.11.6/111 - Release Date: 9/23/2005

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This is so helpful. It seems amazingly complex to learn this information.

Once again thanks

Gisele and Einstein

-- Re: hello and help

Hello,

Here is my recipe. Works for me.

Kombucha Recipe:

You will need:

1 glass wide mouth glass jar with cap (Subway deli gives them away free -

just ask them to put your name on one for you and hold it or else they will

throw it away)

1 cup of white sugar

6 black teabags

3 quarts of water

1 stainless steel pot

1 SCOBY plus starter tea

1 plastic bag

Place cup of sugar in pot. Add 2 cups of water. Bring to boil, let boil

until sugar is dissolved. Remove from heat, and add teabags. Let steep for 5

minutes.

While tea is steeping, measure 2.5 quarts or 10 cups of water into glass

jar. When the tea has steeped, remove teabags and add hot tea to cold water

in jar. The cold water will absorb the heat, so that it will not injure the

SCOBY, which starts to die above 100 degrees F. Add the SCOBY and starter

tea.

Cover the jar with a plastic bag to protect the metal in the cap from

rusting into the tea.

(Contact with metal damages the brew). Cap the jar. Let ferment away from

the microwave oven for at least 8 days, longer if you have candida or

diabetes. It will take about 14 days for the brew to turn to vinegar.

The first brew will take longer, the subsequent ones will be faster. It is

thought that moving the SCOBY and the starter tea causes it to go into

shock.

Be sure to uncap the jar each day to give it air. Keep out of sunlight as

the UV rays can kill the beneficial bacteria in the brew. From time to time,

you may wish to dunk the SCOBY to ensure that it does not get mold; which is

green, black, and/or fuzzy and often grows in circles.

If you wish to make 1 gallon of kombucha, increase the amount of sugar to 1

and one third cup of sugar, 8 teabags, and the water added to 3.5 quarts.

You will need another glass jar for the rest of the KT and another SCOBY.

hello and help

> Hello all I am just learning how to make Kombucha. Can someone tell me of

> a

> sight that has solid instructions. I am reading so many different things

> I

> am confused. I am even having problems finding a sun tea jar. Any

> instructions would be appreciated.

>

> Gisele and Einstein

>

>

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  • 1 year later...

I couldn't find info on the trial # Kim gave and maybe can't until finished and findings are in and published maybe someone else can be more successful. Trials are in different types stages and categories of development with HCV meds on the market in different settings or new tx's drugs in stages of development each trial with it's own set of criteria - risk factors - blind or with placebos. I admire the brave people who take part in trials that pave the way for medical development and research. At this point in time all of us are paving the way for the

people with HCV that follow us. Deb

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  • 2 months later...
Guest guest

The following people are listed on the International Kombucha page as

sharing scobys.

*

Australia

Australien* * n Gray*

PO Box 1264

Springs 0835

Northern Territory

Australia

e-mail:

marion@...

Webpage

www.kombuchacultures.com

Registered 24.01.2006 Fat Plump Kombucha Cultures with plenty of starter

liquid. Mailing: In Australia $15.00 posted. * **

Australia

Australien* * Bill Herbert*

POB 1422

2480 Lismore

NSW

Australia

e-mail:

kuijb@...

Kombucha Babies. * **

Australia

Australien* * bet *

6010 Perth

West Australia

Australia

e-mail:

elisabetmiller@...

Kombucha Babies. Mailing not yet. * **

Australia

Australien* * Jane Cairns*

6176

West Australia

Australia

e-mail:

janecairns@...

Kombucha Babies for free. No Mailing. * **

Australia

Australien* * Mrs Vashti Wood*

5000, Adelaide

South Australia

Australia

e-mail:

vashtiwood@... Kombucha Babies in starter tea. Also Mailing.

Babies are sent for the cost of postage and/or freight. * **

Australia

Australien* *Trevor Pyman*

PO Box 140,

Angaston 5353

Australia

e-mail:

ozpy@...

Webpage

www.kombuchaustralia.com

Hope that helps!

On 4/10/07, Joan Kilgannon <joan.k@...> wrote:

>

> Hello I'm Joan. I have just joined the group. I live near Mackay NQ

> Australia.

> I've been doing a lot of reading (Internet) on KT. My problem is

> because I live in the middle of nowhere, I don't know anybody who uses

> KT. I have ordered a bottle of KT from a health food store, threads of

> culture are floating in it. My question is can I start brewing using

> this? Is there a way I can begin my own scoby? If so how?

> Or do I need to find a scoby from another source. Thanks in advance Joan

>

--

Live and Love Well,

Sandy

http://www.dragondiscounts.com

http://www.cafepress.com/alternativelove

http://www.cafepress.com/mystreas

http://www.cafepress.com/twinkymind

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Hi

There is a Kombucha exchange Go there: http://www.kombu.de/suche2.htm#australia

You can also order the Kombucha culture from some people on this very forum. I

got mine from Anahata Balance http://store.anahatabalance.com/komustki.html and

have been extremely pleased by the results

Once you brew your very first KT it usually produces another SCOBY which all

by it own self can brew more KT.. Every brew produces another SCOBY, a baby,

EVERY TIME.. You will soon have more SCOBYs than you'll know what do with...

Good Luck

Frantz

Joan Kilgannon <joan.k@...> wrote:

Hello I'm Joan. I have just joined the group. I live near Mackay NQ

Australia.

I've been doing a lot of reading (Internet) on KT. My problem is

because I live in the middle of nowhere, I don't know anybody who uses

KT. I have ordered a bottle of KT from a health food store, threads of

culture are floating in it. My question is can I start brewing using

this? Is there a way I can begin my own scoby? If so how?

Or do I need to find a scoby from another source. Thanks in advance Joan

---------------------------------

Food fight? Enjoy some healthy debate

in the Answers Food & Drink Q & A.

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Guest guest

HI, Joan.

Welcome!

I've never done it, but I understand that you can brew from your bottle of

kombucha, as long as it is raw and alive. It's been discussed on list before,

and as well as I remember you can put it in a brewing container (if the one it

came in is not suitable), cover it with a tightly-woven cloth, and let it sit at

room temperature for 7 or more days. Some people also add some distilled white

vinegar. If your starter kombucha contains live cultures a scoby will start to

form. You can then use this scoby to brew by the recipes in the files section.

Good luck!

Bruce

******

“If you are irritated by every rub, how will you be polished?”

Jalal ad-Din Rumi

Hello and help

culture are floating in it. My question is can I start brewing using

this? Is there a way I can begin my own scoby? If so how?

Or do I need to find a scoby from another source. Thanks in advance Joan

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  • 3 months later...
Guest guest

Hi Rose

Is it that your son have little if any social life that you are

concerned about? Or is it that the other kids harassing him? Or

something else?

If it's the first, relax... that's a normal state for an Aspie,

dealing with people is at its best taxing for Aspies even very high

functioning ones. It's likely that a day at school is as much human

contact as he can tolorate... Have you ever been to Mardi Gras in New

Orleans (before the flood)... It's a mad house even for NT's for an

aspie it's hell, I grew up in NewOrleans so I know... For an aspie a

day at school is as taxing as being on Canal Street on Mardi Gras

day... he needs to decompress. So don't force him into social

settings he does want...

If he's being harassed he'll need the decompression time even more...

listen to him, be supportive but encourage him to find a way to deal

with his tormenters on his own. Getting or giving a bloody nose can

frequently be the foundation of a friendship the trick is to not let

a pushing match turning to a brawl. It sounds hoaky but make it an

" Affair of Honor " so it can be supervised and controlled so no one

gets hurt. who gets his nose blooded doesn't matter standing up to

the bully exchanging a couple of punch (I forgot to mention put

boxing gloves on both kids) and not running away in tears... will get

him some respect from his peers and hopefully the bully... based the

couple of controlled fights I had as a kid the respect I got

afterwards was more than worth the bloody noses. That was back in

the mid '60s, I don't know if that will play today there are a lot

more mindless thugs around now. I was a short chubby nerdling, a

poster boy for the techno-deweebs that grew up to make the world what

it is today... I'm not sure if that is something to be proud of or not...

If it's something different that you are worried about something else

give us some background on what it is...

Ender

At 09:58 AM 7/17/2007, you wrote:

>Hi everyone, My name is Rose and I am the parent of a 14 yr old with

>Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too

>many doctors to count we hope we have a correct diagnoisis. Here is

>one of our many issues with our boy. My biggest concern is trying to

>help him deal and find a way to handle the social aspects of life

>while also maintaning his wonderful personality and intelligence. the

>reason I joined this group is because of the information pages and

>what they contained. I love the fact that this group is based on the

>fact that what my son has is not a disorder but rather an asset. I

>need help on how to guide him to utilize this asset and make it work

>for him in the real world. Any and all ideas are welcome and we are

>more than willing to try to help him find his way. My fondest wish is

>that my boy will be able to do what he loves and work in the real

>world, at something he truly loves doing. thanks to all in advance

>for any and all input.

>

>Rose

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Guest guest

Hi Rose

Is it that your son have little if any social life that you are

concerned about? Or is it that the other kids harassing him? Or

something else?

If it's the first, relax... that's a normal state for an Aspie,

dealing with people is at its best taxing for Aspies even very high

functioning ones. It's likely that a day at school is as much human

contact as he can tolorate... Have you ever been to Mardi Gras in New

Orleans (before the flood)... It's a mad house even for NT's for an

aspie it's hell, I grew up in NewOrleans so I know... For an aspie a

day at school is as taxing as being on Canal Street on Mardi Gras

day... he needs to decompress. So don't force him into social

settings he does want...

If he's being harassed he'll need the decompression time even more...

listen to him, be supportive but encourage him to find a way to deal

with his tormenters on his own. Getting or giving a bloody nose can

frequently be the foundation of a friendship the trick is to not let

a pushing match turning to a brawl. It sounds hoaky but make it an

" Affair of Honor " so it can be supervised and controlled so no one

gets hurt. who gets his nose blooded doesn't matter standing up to

the bully exchanging a couple of punch (I forgot to mention put

boxing gloves on both kids) and not running away in tears... will get

him some respect from his peers and hopefully the bully... based the

couple of controlled fights I had as a kid the respect I got

afterwards was more than worth the bloody noses. That was back in

the mid '60s, I don't know if that will play today there are a lot

more mindless thugs around now. I was a short chubby nerdling, a

poster boy for the techno-deweebs that grew up to make the world what

it is today... I'm not sure if that is something to be proud of or not...

If it's something different that you are worried about something else

give us some background on what it is...

Ender

At 09:58 AM 7/17/2007, you wrote:

>Hi everyone, My name is Rose and I am the parent of a 14 yr old with

>Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too

>many doctors to count we hope we have a correct diagnoisis. Here is

>one of our many issues with our boy. My biggest concern is trying to

>help him deal and find a way to handle the social aspects of life

>while also maintaning his wonderful personality and intelligence. the

>reason I joined this group is because of the information pages and

>what they contained. I love the fact that this group is based on the

>fact that what my son has is not a disorder but rather an asset. I

>need help on how to guide him to utilize this asset and make it work

>for him in the real world. Any and all ideas are welcome and we are

>more than willing to try to help him find his way. My fondest wish is

>that my boy will be able to do what he loves and work in the real

>world, at something he truly loves doing. thanks to all in advance

>for any and all input.

>

>Rose

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Guest guest

Hi Ender,

It is a bit of missed social activies due to his lack of interest

and inablility to handle large groups and is apathy and

unwillingness to take on regular responsibilities of daily life,

coupled with a huge sense of what is right and wrong in his eyes and

being completely unable to comprimise. (There is are not any issues

with bullies as of yet) He is better than he was we enrolled him in

a special school called Hammitt

(http://www.thebabyfold.org/progserv/hammittschool.html)and he has

grown in leaps and bounds in the social area, but he craves

friendship and has none in our town. I guess I just worry he needs

so much but we are unable to fill those needs and it is very

frustrating. i know I am blathering but it is so nice to talk to

someone who knows what I am talking about. Currently he is on 3

medications and they seem to be working pretty well for him.

concerta for the ADHD, Risperdal for the BIPolar and Neurontin for

the skin sensitivity and the BiPolar. I have researched and

researched the diagnosises, the medications, the doctors, the

counselors and have learned a ton of information and some of the

symptoms and signs are there just as with any " disorder " and some

are not...it is a guessing game as to what will work with him and

what will not. Beilieve me I know he is frustrated and feels like

no one understands him, and to be honest most of the time we do

not. There is s world and our world, I DO NOT want to

change my funny, charming,intelligent, wonderful son, I do however,

want to at least help him gain the skills that our society deems

neccesary for him to exist in the world. .My main issues to cut to

the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks-

a major battle, I believe it is due to hypersensitive skin...face

washing, and brushing of teeth all are a major battles) and Changing

of clothes on a daily basis. Ya know if I could get this part of it

handled, I believe I could help him in other areas.

Thanks for listening to me rant...lol.

ROse

>

> >Hi everyone, My name is Rose and I am the parent of a 14 yr old

with

> >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and

too

> >many doctors to count we hope we have a correct diagnoisis. Here

is

> >one of our many issues with our boy. My biggest concern is trying

to

> >help him deal and find a way to handle the social aspects of life

> >while also maintaning his wonderful personality and intelligence.

the

> >reason I joined this group is because of the information pages and

> >what they contained. I love the fact that this group is based on

the

> >fact that what my son has is not a disorder but rather an asset. I

> >need help on how to guide him to utilize this asset and make it

work

> >for him in the real world. Any and all ideas are welcome and we

are

> >more than willing to try to help him find his way. My fondest

wish is

> >that my boy will be able to do what he loves and work in the real

> >world, at something he truly loves doing. thanks to all in advance

> >for any and all input.

> >

> >Rose

>

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Hi Ender,

It is a bit of missed social activies due to his lack of interest

and inablility to handle large groups and is apathy and

unwillingness to take on regular responsibilities of daily life,

coupled with a huge sense of what is right and wrong in his eyes and

being completely unable to comprimise. (There is are not any issues

with bullies as of yet) He is better than he was we enrolled him in

a special school called Hammitt

(http://www.thebabyfold.org/progserv/hammittschool.html)and he has

grown in leaps and bounds in the social area, but he craves

friendship and has none in our town. I guess I just worry he needs

so much but we are unable to fill those needs and it is very

frustrating. i know I am blathering but it is so nice to talk to

someone who knows what I am talking about. Currently he is on 3

medications and they seem to be working pretty well for him.

concerta for the ADHD, Risperdal for the BIPolar and Neurontin for

the skin sensitivity and the BiPolar. I have researched and

researched the diagnosises, the medications, the doctors, the

counselors and have learned a ton of information and some of the

symptoms and signs are there just as with any " disorder " and some

are not...it is a guessing game as to what will work with him and

what will not. Beilieve me I know he is frustrated and feels like

no one understands him, and to be honest most of the time we do

not. There is s world and our world, I DO NOT want to

change my funny, charming,intelligent, wonderful son, I do however,

want to at least help him gain the skills that our society deems

neccesary for him to exist in the world. .My main issues to cut to

the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks-

a major battle, I believe it is due to hypersensitive skin...face

washing, and brushing of teeth all are a major battles) and Changing

of clothes on a daily basis. Ya know if I could get this part of it

handled, I believe I could help him in other areas.

Thanks for listening to me rant...lol.

ROse

>

> >Hi everyone, My name is Rose and I am the parent of a 14 yr old

with

> >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and

too

> >many doctors to count we hope we have a correct diagnoisis. Here

is

> >one of our many issues with our boy. My biggest concern is trying

to

> >help him deal and find a way to handle the social aspects of life

> >while also maintaning his wonderful personality and intelligence.

the

> >reason I joined this group is because of the information pages and

> >what they contained. I love the fact that this group is based on

the

> >fact that what my son has is not a disorder but rather an asset. I

> >need help on how to guide him to utilize this asset and make it

work

> >for him in the real world. Any and all ideas are welcome and we

are

> >more than willing to try to help him find his way. My fondest

wish is

> >that my boy will be able to do what he loves and work in the real

> >world, at something he truly loves doing. thanks to all in advance

> >for any and all input.

> >

> >Rose

>

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" Hi everyone, My name is Rose and I am the parent of a 14 yr old with

Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too

many doctors to count we hope we have a correct diagnoisis. Here is

one of our many issues with our boy. My biggest concern is trying to

help him deal and find a way to handle the social aspects of life

while also maintaning his wonderful personality and intelligence.

the reason I joined this group is because of the information pages

and what they contained. "

Hi Rose. I am Tom, the creator of all these groups and the website

you looked at. I think Ender did a good job of answering your

question. I do have a few things to add though...

1) Make sure you watch his meds for the remainder of his

adolescence. As his body changes, so will his mind, and as his mind

changes, the effect the meds have on him will change. An AS kid whom

I advocated for was quite a behavior problem until his meds were

reduced. Now he is easy to get along with. If other kids see that he

is on an even keel, he will find it easier to get along with them.

2) Recognize that he will never fully socially integrate, and part

of this has less to do with a lack of social skills than it does

with his body. Aspies may have sensitivities to taste, touch, smell,

sound, and sight. These distractions can cause confusion in social

situations where attention ought to be directed at the speaker.

As you have seen with and Claude, simply going to the store

can be a pain, and eye contact, something which is necessary for

social contact, is also difficult.

" I love the fact that this group is based on the fact that what my

son has is not a disorder but rather an asset. "

Those of us who post here function on different levels, but I would

like to point out to you that here, in a " virtual " menu, we are

quite chatty and sociable, don't you think?

In real life, it is doubtful that we would be able to speak in a

group like this, yet these conversations betray our intelligences.

" I need help on how to guide him to utilize this asset and make it

work for him in the real world. "

Honestly, you need to scrap most efforts to try to get him to

integrate socially, and provide him with all the learning materials

he craves in his areas of interests. IF As is a disorder where

social skills are lacking, God has made up for it by giving us

strong perseverative skills in limited areas. These perseverative

skills are a primary asset and ought to be developed wherever

possible.

" Any and all ideas are welcome and we are more than willing to try

to help him find his way. "

Go to www.midnightinchicago.com and find the " Media " link. Click

on " Podcasts " and listen to the autism ones. They are very

informative. More are on the way.

In the meantime, please keep asking questions. You might also try

joining the FAM Family Forum which is for parents of Aspies. As a

rule, non-Aspies are not allowed here so we can have a sense of

privacy, but as long as you get along with us, and be sociable you

can stay.

:)

" My fondest wish is that my boy will be able to do what he loves and

work in the real world, at something he truly loves doing. thanks

to all in advance for any and all input. "

Asperger Syndrome is on the autistic spectrum, and Asperger Syndrome

actually presents itself as a spectrum of conditions, but many

people with As can be quite successful if given the proper tools to

develop their good qualities. Try to play to his strengths and don't

waste too much time developing his weaknesses, especially in the

areas of socializing.

By the way, I am not a doctor, so everything I just said you ought

to run past a professional.

Tom

Administrator

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" ...coupled with a huge sense of what is right and wrong in his eyes

and being completely unable to comprimise. "

Right and wrong has to do with following rules as much as it has to

do with morals and ethics. If the speed limit is 55 MPH and someone

goes 57 to make sure they are going at least 55, your som is not

really going to buy into that.

It also has to do with holding other people accountable for doing

what they say they are going to do.

Let's say your son is now an adult Aspies and is placed in a job

where he must work cooperatively with three other people to get a

goal attained.

The three others in the group work a little, socialize a littkle,

work a little, socialize a little. But your son, being the Aspie he

is, feels like he is not getting paid to chit chat, and if he is

assigned a task, he wants to do the best job possible, and he sees

an additional opportunity here. Since his boss is constantly

checking on their progress, if his boss sees him with his nose to

the grindstone, he will get good comments when the evaluation is

over, and his fellow co-workers will not.

So he works and works and works, and though it irks him that he is

doing all the work, and his co-workers are just goofing off, (and

are starting to make comments like " Don't work so hard. You'll make

the rest of us look bad " , he keeps working anyway.

They begin to rib him about being a brown noser. Your sign finds it

hard to concentrate. They tell him to stop working because

what " they " have produced is good enough. Yet he persists.

Soon, the time allotted for this assignment comes to an end and the

four of you report to the boss on what you have come up with. After

the boss is done complimenting you all on the great job you have

done, he takes your son aside.

Your son is happy, knowing he is going to be complimented, and

secretly hoping for a promotion.

....And the boss tells him that he is very disappointed with the

failure to get along with his co-workers. He says that his training

manual tells him that a happy worker is a productive worker and that

since your son has made his co-workers unhappy, he has obviously

prevented the finished project from being as good as it should have

been. Your son protests, saying that HE was the one who produced the

product. the others only contributed a small percentage of it, Most

of the time they were just talking.

But the boss says that every time he checked up on the group, your

son always had his head burried in his work, and was obviously

embarrassed about the fact that he could not fathom the width and

breadth of this project. He also says that taking it out on his co-

workers and trying to make THEM of all people look bad is in poor

form, and that if he continues to do so, he can expect a poor

performance review.

So you see, two people can live side by side and see things quite

differently. And the life your son has lived, does live, and will

live, is quite unsuspected by most.

NOTHING will change the social aspect of this problem, despite what

they are teaching him at school.

Again, the best thing you can do is help him to be a whiz at

whatever he is best at so people have no choice but to rely on him.

The result will be that he will find a job where his boss will

say " That man is a royal jerk, and I'd fire him if I could because I

just don't like him. But he sure knows his stuff, and I cannot

afford to lose him. "

" My main issues to cut to the chase are hygiene- (hairwashing is a 1

or 2 times every 2 weeks- a major battle, I believe it is due to

hypersensitive skin...face washing, and brushing of teeth all are a

major battles) and Changing of clothes on a daily basis. Ya know if

I could get this part of it handled, I believe I could help him in

other areas. Thanks for listening to me rant...lol. "

Find out what it is about these activities that he hates so much.

I think you ought to keep trying different shampoos and see what he

likes. If you tavel, save the sample bottles they give you in the

bathrooms and have him try them. See which ones he likes the most

and stick with that brand.

Face-washing might have to do with the texture of the washcloth. I

like mine to be thick and cottony, not thin.

With the tooth brushing, it could be that the toothpaste tastes too

strong for him. I use " Tom's of maine " which is naturally flavored,

and only slightly. It may also be the feel of the brush on his

teeth.

Changing his clothes every day should not be an issue. He takes them

off before he goes to bed at night right? All he needs to do is put

them in the hamper before he goes to bed or first thing in the

morning.

Tom

Administrator

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Hello Tom,

A heart felt thank you, the information is wonderful, In all my

research I have not been able to talk to anyone who is AS and there

in lies my frustration, how can I help him if I can not understand

what it is he is. That being said i will take your advice and look

at the pod casts and see about joining the group for non AS family

members, but would still like to stick around and listen and ask for

advice from you who understand what Mitch is going through on a

daily basis.

Yes all of you are very chatty and very inteligent as far as I can

see. There are some very thought provoking conversations going on

in here. All I can say is well done.

I will take you up on your invitation to stay ;0) and please be

assured all of you that I am not going to be posting a lot I really

need to " see " into what it is Mitch " sees " and you all can help me

with my quest, not so much to change him to conform but I like the

idea Tom gave to strip away the socialtal notions and be who he was

intended to be. What really ticks me off is that everyone we deal

with insists that he conform and that just ticks me off... so what

he likes to wear long pants and dress shoes... he looks nice and it

makes him feel good... who cares what time of year it is... or if it

is in fashion... I can go on and on... but won't... thanks for the

input if anyone else has anything to share please do.... thank you

for helping me. Talk to you soon.

Rose

>

> " Hi everyone, My name is Rose and I am the parent of a 14 yr old

with

> Aspergers' BiPolar and ADHD- after 9 years of grueling meds and too

> many doctors to count we hope we have a correct diagnoisis. Here

is

> one of our many issues with our boy. My biggest concern is trying

to

> help him deal and find a way to handle the social aspects of life

> while also maintaning his wonderful personality and intelligence.

> the reason I joined this group is because of the information pages

> and what they contained. "

>

> Hi Rose. I am Tom, the creator of all these groups and the website

> you looked at. I think Ender did a good job of answering your

> question. I do have a few things to add though...

>

> 1) Make sure you watch his meds for the remainder of his

> adolescence. As his body changes, so will his mind, and as his

mind

> changes, the effect the meds have on him will change. An AS kid

whom

> I advocated for was quite a behavior problem until his meds were

> reduced. Now he is easy to get along with. If other kids see that

he

> is on an even keel, he will find it easier to get along with them.

>

> 2) Recognize that he will never fully socially integrate, and part

> of this has less to do with a lack of social skills than it does

> with his body. Aspies may have sensitivities to taste, touch,

smell,

> sound, and sight. These distractions can cause confusion in social

> situations where attention ought to be directed at the speaker.

>

> As you have seen with and Claude, simply going to the

store

> can be a pain, and eye contact, something which is necessary for

> social contact, is also difficult.

>

> " I love the fact that this group is based on the fact that what my

> son has is not a disorder but rather an asset. "

>

> Those of us who post here function on different levels, but I

would

> like to point out to you that here, in a " virtual " menu, we are

> quite chatty and sociable, don't you think?

>

> In real life, it is doubtful that we would be able to speak in a

> group like this, yet these conversations betray our intelligences.

>

> " I need help on how to guide him to utilize this asset and make it

> work for him in the real world. "

>

> Honestly, you need to scrap most efforts to try to get him to

> integrate socially, and provide him with all the learning

materials

> he craves in his areas of interests. IF As is a disorder where

> social skills are lacking, God has made up for it by giving us

> strong perseverative skills in limited areas. These perseverative

> skills are a primary asset and ought to be developed wherever

> possible.

>

> " Any and all ideas are welcome and we are more than willing to try

> to help him find his way. "

>

> Go to www.midnightinchicago.com and find the " Media " link. Click

> on " Podcasts " and listen to the autism ones. They are very

> informative. More are on the way.

>

> In the meantime, please keep asking questions. You might also try

> joining the FAM Family Forum which is for parents of Aspies. As a

> rule, non-Aspies are not allowed here so we can have a sense of

> privacy, but as long as you get along with us, and be sociable you

> can stay.

>

> :)

>

> " My fondest wish is that my boy will be able to do what he loves

and

> work in the real world, at something he truly loves doing. thanks

> to all in advance for any and all input. "

>

> Asperger Syndrome is on the autistic spectrum, and Asperger

Syndrome

> actually presents itself as a spectrum of conditions, but many

> people with As can be quite successful if given the proper tools

to

> develop their good qualities. Try to play to his strengths and

don't

> waste too much time developing his weaknesses, especially in the

> areas of socializing.

>

> By the way, I am not a doctor, so everything I just said you ought

> to run past a professional.

>

> Tom

> Administrator

>

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Tom,

Thank you for yet more insight... I think I have a basic idea- you

know we (Mitch, his counselor, Mom & Dad) had already decided that

his greatest interests are plants of all kinds espcially flowering

or herbs... he is fascianted by landscaping and has many plans

already drawn out and labled for when we have the funds to re create

the back yard. We are trying to let him learn all we can about it

and visit greenhouses all the time.

I will take the advice about the toothpaste... He has complained

about the taste and I bought milder and milder kinds.. nothing seems

to work... he will use baking soda.. but complains of the taste as

well. I will look online and see what I can find.

I wonder about those new micro fiber washcloths... I think I will

try them and see...

Thnk you for all the input.. it is greatly appreciated.

Rose

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Rose...

Oh those things... :-[ When I was a kid they were just

starting to understand that the developmental problems of kids with

autism were not the same as the problems of Downs syndrome kid... A

much simpler time when kids were very bright, bright, average, a bit

slow, or very slow. There were no learning disabilities, the idea for

dyslexia wasn't fully accepted... the world of the Beaver, June Cleaver

and Donna ... " try to remember when grass was green and grain

was yellow.... " sorry it felt like the right place for a song...

anyway all the problems kids have today were around then but they hadn't

been named yet. They were problems kids had to find their own way to live

with them and those that couldn't cope just rattled around until they

were old enough to be let out...

I ran afoul of my third grade teacher over an arithmetic drill that she

graded in a odd way, 50 problems with a time limit if you got the right

answer you got 2points, if you wrote something that could be an answer

down you got 1point and that was where the rift started I would work my

way through the sheet but never finish it getting 2/3 to 3/4 through when

time was called.miss few if any answers... other kids would finish be get

half of the answers wrong... I would turn in the most right answers but

get the lowest grade because I didn't finish... Not understanding the

flaw in her testing she decided that I was retarded... my forks went to

bat for me and got complete mental work-up on me... and to the teachers

shagreen Retarded one word that was in their description of me I didn't

rate an invitation to Mensa but it was close I was reading and

understanding nearly two yeas above grade level taken in total it

was likely I was the smartest kid in the my abilities with number dwarfed

my reading scores... Faced with the work-up say they should consider

jumping me a grade or two they went back to the teacher to find out what

was going on. After seeing the tests and saw the kid with the most

right answers repeatedly getting the lowest grade they suggested that

that her system of scoring the test was flawed because the point of

an arithmetic drill was to get the correct answer so the most correct

answer logically would rate the highest grade... The despised my after

that,,, Since I was as short and chubby as I was they felt bumping

to a higher grade lead to socialization problem so the school wanted me

to dumb down to grade level (the start of " No child left

behind " which if you wanted a more accurate name would be called

" No child shall ever be permitted to excel " ) in the hope I

wouldn't bring another teacher into the spotlight...

In a lot of ways 40 years of ago I was sitting in about the same place

your son is now... He wants to have peer relationship like he sees the

other kids having but he realizes he's not quite like the other kids and

because of that it's hard for him to find a place to fit in. Like

Dirty Harry says (when he's not saying " make my day " ) " a

man has got to know his limitations " As an Aspie its unlikely

will be able to fake the social butterfly life style of normal

teens and pushing for that illusion of being that just like any other kid

is likely to lead him to retreat deeper in to his private world...

When I get too stressed that's what I still do. In my current job I

sometimes have to work trade shows... Walking up to a complete stranger,

shaking his hand and talking to them is a strain at best and after doing

it 10 or twelve hours I go back to my hotel room curl up in a fetal

position and stim for a couple of hours before I can face the world

again.

ADHD and Bi-Polar that's a fun mix to deal with... I just claim

depression, although it does a minor Bi-Polar component the manic phase

never gets me high enough to not be depressed. Be supportive and

encourage him to stretch his limits and test his wings but don't

push.

The hygiene issue... well do you know any other say 12-15 yo boys as I

recall avoiding bath, clean clothes and tooth brushing for weeks at a

time is something of a sport for them so right now it may not be a

function of being an Aspie but a boy being a boy... But your right is can

be an Aspie thing too. And I slip into that mode from time to time mostly

when I've buried myself in a project or when I'm seriously depressed...

sometimes I may appear to be were the same clothes for weeks at a time

I'm not... IT's not unusual for my to buy a couple identical pairs of

pants and 3 or 4 of the same shirt... when you find something that works

for you hold on to it Uncle Al (Albert Einstein) is often cited as

the originator of the style I think to go back at least to Isaac Newton

or earlier... To get him in the shower and to change his clothes is

try talking to him if you can find a compelling reason for him it's

likely he will do it on his own. If that fails you could bribbing

him to stay showered and in fresh clothes...

I don't know if this helps any but I tried...

Ender

At 12:20 PM 7/17/2007, you wrote:

Hi Ender,

It is a bit of missed social activies due to his lack of interest

and inablility to handle large groups and is apathy and

unwillingness to take on regular responsibilities of daily life,

coupled with a huge sense of what is right and wrong in his eyes and

being completely unable to comprimise. (There is are not any issues

with bullies as of yet) He is better than he was we enrolled him in

a special school called Hammitt

(

http://www.thebabyfold.org/progserv/hammittschool.html)and he has

grown in leaps and bounds in the social area, but he craves

friendship and has none in our town. I guess I just worry he needs

so much but we are unable to fill those needs and it is very

frustrating. i know I am blathering but it is so nice to talk to

someone who knows what I am talking about. Currently he is on 3

medications and they seem to be working pretty well for him.

concerta for the ADHD, Risperdal for the BIPolar and Neurontin for

the skin sensitivity and the BiPolar. I have researched and

researched the diagnosises, the medications, the doctors, the

counselors and have learned a ton of information and some of the

symptoms and signs are there just as with any " disorder " and

some

are not...it is a guessing game as to what will work with him and

what will not. Beilieve me I know he is frustrated and feels like

no one understands him, and to be honest most of the time we do

not. There is s world and our world, I DO NOT want to

change my funny, charming,intelligent, wonderful son, I do however,

want to at least help him gain the skills that our society deems

neccesary for him to exist in the world. .My main issues to cut to

the chase are hygiene- (hairwashing is a 1 or 2 times every 2 weeks-

a major battle, I believe it is due to hypersensitive skin...face

washing, and brushing of teeth all are a major battles) and Changing

of clothes on a daily basis. Ya know if I could get this part of it

handled, I believe I could help him in other areas.

Thanks for listening to me rant...lol.

ROse

>

> >Hi everyone, My name is Rose and I am the parent of a 14 yr old

with

> >Aspergers' BiPolar and ADHD- after 9 years of grueling meds and

too

> >many doctors to count we hope we have a correct diagnoisis. Here

is

> >one of our many issues with our boy. My biggest concern is

trying

to

> >help him deal and find a way to handle the social aspects of

life

> >while also maintaning his wonderful personality and

intelligence.

the

> >reason I joined this group is because of the information pages

and

> >what they contained. I love the fact that this group is based on

the

> >fact that what my son has is not a disorder but rather an asset.

I

> >need help on how to guide him to utilize this asset and make it

work

> >for him in the real world. Any and all ideas are welcome and we

are

> >more than willing to try to help him find his way. My fondest

wish is

> >that my boy will be able to do what he loves and work in the

real

> >world, at something he truly loves doing. thanks to all in

advance

> >for any and all input.

> >

> >Rose

>

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Guest guest

" Yes all of you are very chatty and very inteligent as far as I can

see. There are some very thought provoking conversations going on

in here. All I can say is well done. "

Well, as I said earlier, we all have different levels of

functionality, but we say and post here is what goes on inside our

heads. The problem, as you say, is that most people cannot see

inside our heads.

I don't know if you have ever seen that old bugs bunny cartoon where

this construction worker is tearing down a building, and in the

cornerstone is a box. Within the box is a frog, who promptly gets

out and dances and sings.

The construction worker thinks there is money in this so he brings

the frog to a talent agency, but all the frog will do there

is " Brrrrrrrrrrrroooooooaaaaaaaaaaaaaakkkkkkkkkkkk! "

Not dissuaded, the optimistic construction worker gathers together

all the money he has and buys a theatre and sends out fliers. People

rush in to see the frog, who is singing and dancing back stage, but

when the curtain is lifted...

" Brrrrrrrrrrrroooooooaaaaaaaaaaaaaakkkkkkkkkkkk! "

He winds up taking the frog to the construction site and puts the

frog in the cornerstone for the new building and seals it up.

AS people are like that frog, and a select few people are like that

construction worker.

:)

" I will take you up on your invitation to stay ;0) and please be

assured all of you that I am not going to be posting a lot I really

need to " see " into what it is Mitch " sees " and you all can help me

with my quest, not so much to change him to conform but I like the

idea Tom gave to strip away the socialtal notions and be who he was

intended to be. "

I think the more question you ask the better. If you just sit

silently and watch, you may misunderstand some of the things that

happen here.

For instance, as you can see, we are in the midst of a number of

conversations which might appear topical to anyone. But they are in

fact reflective of our perseverative interests, which is why for

example, you could go back three years and see is talking about

pretty much the same things in many cases.

Do we ever get tired of the same old things? Some do but many don't.

" What really ticks me off is that everyone we deal with insists that

he conform and that just ticks me off...'

Well, there is no crime in wanting him to conform. The problem is

that he can never completely conform. Recently, Scherer at

Sick Kids Hospital in Toronto identified the GENES which autistics

have. This means that we are built a certain way, and not much will

change us in terms of therapy or medication. (No therapy or

medication will change your eye color for example.) But medication

does help with co-morbidities, and therapy helps to the extent that

it can relieve stress and give us coping mechanisms to deal with the

real world.

The biggest misconception about AS people is that people think we

are just social rejects who are not willing to make the changes

necessary to fit in. That is untrue. Even when we make the changes,

people sense enough differences in us that we just are not accepted.

As much as society promotes tolerance, we can accept others, but

others cannot accept us, which is why most of us struggle, except

those like Bill Gates and Speilberg, who have AS and managed

to break free of the reigns and harnesses put on them.

This group is founded on the idea that we should all accept

ourselves, but not be too complacent either. Most of us here have

fashioned out some kind of living for ourselves, or at least have

managed to find some online friends, or have become a bit more

optimistic about ourselves, which in many cases is more than meds

and therapy have done.

Tom

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" Thank you for yet more insight... I think I have a basic idea- you

know we (Mitch, his counselor, Mom & Dad) had already decided that

his greatest interests are plants of all kinds espcially flowering

or herbs... he is fascianted by landscaping and has many plans

already drawn out and labled for when we have the funds to re create

the back yard. We are trying to let him learn all we can about it

and visit greenhouses all the time. "

Keep encouraging him. When I was twelve, I was doing the same thing.

I cut five lawns, went around the neighborhood and trimmed trees and

bushes, and drew up the plans for the backyard, which my father did

not change one iota, and I relandscaped it. I had quite a business

going and used the money I earned from it to pay for booksm room and

board, and partial tuition at college for five years.

For me, that was a passing perseverative interest, although I

already have thoughts in my mind about how I would like to landscape

the next house I purchase.

Tom

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" IT's not unusual for my to buy a couple identical pairs of pants and

3 or 4 of the same shirt... when you find something that works for you

hold on to it. "

I'm pretty much the same way. I've got a bunch of identical shirts.

My dress shoes are all the same style also primarily because they feel

great on my feet, but since I wore them every day to work I rotated

them so that they would have time to " ait out. "

Tom

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