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I've had several questions regarding enzymes and weight gain. Enzymes help us

digest food. There are many different kinds of enzymes, I don't know which is

best--I've used some from Nature's Sunshine with good success, but normally I

take Enzymall from Schiff. You can get them at your local health store or

probably www.vitaminshoppe.com.

They have helped significantly with food absorption and some 'good' weight

regain. Been on Schiff for over a year and the difference is remarkable--I'm

not a thin stick anymore. I now have developed muscle that had atrophied

away. Now I have to start watching what I eat so that I don't turn it to

unwanted fat as I have a tough time exercising.

L

In a message dated 99-07-05 20:10:54 EDT, you write:

<< Thank you for the response to the weight loss problem. No, I have not

tried enzymes. Don't know where to get reliable info on which ones to take.

Which ones helped you?

Harry >>

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  • 1 year later...

Leah

We are giving Jeff ( 3 1/2 years old - autistic) Enzymaid for the past 2

months.

He is doing fine with it (no adverse reactions.)

We used to notice a lot of undigested food and gooey poops in January of

this year. And about 2 1/2 mos ago Jeff still had some food was coming

through (in much better poops) a little undigested, for examples some small

pieces of carrots.

Now, he poops more, they are well formed and everything seems to be fully

digested.

(I look at this email and LAUGH! Ask me a year ago if I was going to be a

poop expert and I would tell you " YOU'RE CRAZY! " ) Good luck!

Take care

A Jeffs mom

[ ] Re: enzymes

Hi,

Could you please tell me what the good results are for those who

are giving digestive enzymes to their children? Thanks. I think I

read an article once on prescription enzymes being good with one of

the disabilities, I'm not sure which one.

Leah

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Hi,

Could you please tell me what the good results are for those who

are giving digestive enzymes to their children? Thanks. I think I

read an article once on prescription enzymes being good with one of

the disabilities, I'm not sure which one.

Leah

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Hi,

I still don't know the good results and would like an answer

still, but for those of you that have tryed secretin I thought this

was interesting. I searched the web for 'creon a digestive enzyme'

Many sites came up and the product is used for cystic fibrosis. I

went to http//www.cycticfibrosis.co.uk/creon8.htm and there are many

things written but these 2 things caught my eye' For treatment of

pancreatic exocrine insufficiency' The product is of porcine origin'

I wonder if this product may help as secretin has. Just a thought ,

any input? Leah

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Creon has a good effect on 's moods. He is also healthier, with fewer

infections. He has always been under weight, and that's improving slowly.

[ ] Re: enzymes

>Hi,

> Could you please tell me what the good results are for those who

>are giving digestive enzymes to their children? Thanks. I think I

>read an article once on prescription enzymes being good with one of

>the disabilities, I'm not sure which one.

>Leah

>

>

>

>

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Don't know if this is related, but had a positive response to

secretin drops

[ ] Re: enzymes

>Hi,

> I still don't know the good results and would like an answer

>still, but for those of you that have tryed secretin I thought this

>was interesting. I searched the web for 'creon a digestive enzyme'

>Many sites came up and the product is used for cystic fibrosis. I

>went to http//www.cycticfibrosis.co.uk/creon8.htm and there are many

>things written but these 2 things caught my eye' For treatment of

>pancreatic exocrine insufficiency' The product is of porcine origin'

>I wonder if this product may help as secretin has. Just a thought ,

>any input? Leah

>

>

>

>

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The reason we started using enzymes is because we sent in the comprehensive

digestive parasitology X3 test, and it showed everything from yeast, to

bacteria, to digestive going's on.

The first test showed he did not have any digestive enzymes and we

implemented them... by the second test (three months later) it showed he was

having digestive action.

hope this helps

[ ] enzymes

> Hi

> Thanks so much for reminding me about the enzymes. I asked my doctor

> about them when I heard about them quite a while ago. He said he

> would look into them for me and never got back to me. I think you

> said you also give your son secretin drops, where did you get those?

> I used secretin transdermaly a few times with powder secretin

> and dmso and responded poorly. More in touch but oooh!!! the

> behaviors were in full swing. Don't care to do that again. I think

> I'm going to look into the enzymes again when I see the Dr. next week

> and if all works well I should have Prescription to start

> chelation. Thanks for the info. Leah

>

>

>

>

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  • 9 months later...

Nicky,

That is disappointing that Oli may need to remain on the gfcf diet,

but good that the enzymes seem to help while on the diet. It is

possible you need to increase the dose for infractions. Some parents

have had to double or even triple one of the enzymes. However, some

parents have had to still restrict their child's diet with the

enzymes regardless of the dose. Check back with us again after you

add back the enzymes. It will be interesting to see if you again

observe improvement with the enzymes beyond what the diet does for

Oli (love the name).

> Hi all-here's an enzyme update.Not so good as we thought I'm

afraid.The very night that I posted how well Oli was doing he woke

for 4 hours during the night and the following two nights.He became

very irritable,aggressive and unhappy.I couldn't say for certain that

this was the food but I did send a sample to Shattock and it

came back with a peak for gluten and a recommendation for a gf

diet.There was no peak for casomorphine (however we'd only challanged

him with a very small amount of dairy)

> So it's back to the diet for us and continue searching for other

things to help Oli.He has been gfcf again for about two weeks but is

still fairly aggressive and disinterested in people.We will

reintroduce the enzymes again when he's back to normal as these

certainly did seem to help him whilst still on the diet.

> Regarding Harry my 3 yr NT child(also gfcf for 2 yrs and challanged

this month).He showed a marker for the problem but no gluten peak and

a small casein peak.Back on the diet anyway as I can't risk any

problems.Might challange again in a couple of years!

> Bye for now Nicky

>

>

>

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  • 3 weeks later...

> Hi, listmates,

> Does anybody know for how long Peptizyde and Prime stay effective in

> the stomach?

> Tx. Lenny.

They stay active in the stomach for so long as the food is there and

needs digesting, but when the stomach senses that the food is at the

proper consistency, then they leave the stomach into the small

intestine with the other food. Depending on size of the meal, types

of foods eaten, age of child, etc, it can be as long as 90 minutes,

but I have found for my own children, I need to be sure they finish

their meal within 45 minutes of taking the enzymes.

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Lenny,

I agree with Dana's description. I aim for 60 minutes. Usually the

boys will eat dinner in about 20 minutes, then wait for 20 minutes

and then have dessert - which usually has dairy in it. That keeps us

within 60 minutes. If they have a dairy containing snack later, I

give another Peptizyde.

.

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  • 2 weeks later...

> I was wondering if the Peptizide enzymes and HZ prime

> need to be refrigerated. I do know that Enzymaid

> needed to be so I was just wondering.

>

> lana

Devin said earlier on that these are best NOT refrigerated because

enzymes last when they are kept DRY not cold. So keeping the bottle

in a cabinet or similar will keep them very potent for up to 2 years.

Putting them in the refrigerator enhances the possibility of them

getting damp (door opening and closing, change in temp) and loosing

potency. Once they get wet, you have about 4 hours to use them.

.

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  • 2 months later...

Hi Lee, everyone,

In case you don't know the list ()

you might want to check in there too. VERY active group.

Good stuff-- seems to be very helpful, as you say!

Moria

At 02:56 AM 11/28/2001 EST, you wrote:

>Dear List,

>Could anybody tell me if they are chelating and taking enzymes at the same

>time. On Sunday, after a round of DMSA ,that we completed on Saturday, I

>tried EnzymeAid from Kirkman on my son 3 year old ASD son and I can't

believe

>the changes. In two days: he call for me and his sisters by name from a

>distance, his eye contact is 300% better, I would go so far as to say its

>normal, he does not stop talking with meaning, he asking for his need and he

>just seems totally with it. Could this be an enzymes dysfunction caused by

>mercury??? Anyone with any information please advise. Also, is it dangerous

>to chelate and take enzymes.

>

>Thanks so much.

>A very happy Lee

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  • 4 months later...
Guest guest

Vicky -

we all feel a very deep sadness when we read stories like yours...my

heart goes out to you...

my son was helped tremendously by the cfgf diet....he is still on it

today... after 2 years.

were you careful to have rice free days at least twice a week when on

cfgf diet? just wondering. I'd hate to see my son or any other

child develop a rice intolerance and any input you provide would be most

helpful. How long was your little one cfgf before the rice intolerance

occured?

Jeanne A. Brohart

mamommy2001@... wrote:

> It's really great to hear all of the success stories from the HNI

> enzymes and

> I don't blame and for being such adamant supporters of

> them--if

> their success had been ours I would be too. But the fact remains that

> until

> there is a comparable product without rice many of us will never see

> any

> results like that. Goodness knows we tried--on 2 different occasions

> and now

> we're trying again. If willing them to work would help they would

> have to.

> It's not surprising that so many of our children are so intolerant of

> rice--that's what my son lived on for the first few months of the

> diet! Had

> I to do it all over, I would have never placed my son on the GFCF diet

>

> (GFCFlimited soy since 6/01 and trying desperately to rotate the few

> meager

> foods left after IgG food avoidance since 12/01) --benefit has been

> very

> minimal and now he has intolerances to pretty much all common foods.

> Social

> outings are a disaster--he knows his food his different and resents

> it. Last

> birthday party we attended he was scavenging for crumbs left from the

> other

> kids goodies (even though I had made cupcakes for him using liners

> given to

> me by the birthday hostess and brought " safe " potato chips to share).

> Meanwhile after a stomach virus over the weekend, his little legs look

> like

> bird legs and I'm afraid that the first strong wind will pick him up

> and blow

> him away. Any minor fall produces a major bruise and I really believe

> that

> he's more malnourished now than he ever was from simply a leaky gut

> with

> moderate yeast. In addition to the diet, he's recently gone through

> AIT and

> a round of sporanox with no significant gains so far.

> Sorry--I just had to vent--all of this has taken a major toll

> (financial,

> emotional, and physical) on our entire family.

> Vicki

>

>

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Guest guest

Vicki-I am so sorry to hear what you are going through. I totally

understand what you are saying about the diet because although we

have seen improvements I am not sure I thought in the end it

outweighed the losses. Its so hard to deny your child something as

basic as food and my daughter continued to build sensitivites

especially to phenols-I am sure without enzymes we would have been

miserable eventually. Luckily she didn't eat rice much or drink that

much rice milk, I guess. I hope so much that an enzyme will work for

you. ((hugs)) Just remember new things are coming out all the time.

Oh-let me ask you-have you ordered any foods from Kinnikinnick's

foods? I am not sure exactly what your son has sensitivities to but

you could read their ingredients. My daughter really,really loved

alot of their foods(worth the steep prices) I know alot of the stuff

I bought had rice flour but they might have items without.

---

In @y..., autismhelpforyou <autismhelpforyou@c...>

wrote:

> Vicky -

>

> we all feel a very deep sadness when we read stories like yours...my

> heart goes out to you...

>

> my son was helped tremendously by the cfgf diet....he is still on it

> today... after 2 years.

>

> were you careful to have rice free days at least twice a week when

on

> cfgf diet? just wondering. I'd hate to see my son or any other

> child develop a rice intolerance and any input you provide would be

most

> helpful. How long was your little one cfgf before the rice

intolerance

> occured?

>

> Jeanne A. Brohart

>

> mamommy2001@a... wrote:

>

> > It's really great to hear all of the success stories from the HNI

> > enzymes and

> > I don't blame and for being such adamant supporters of

> > them--if

> > their success had been ours I would be too. But the fact remains

that

> > until

> > there is a comparable product without rice many of us will never

see

> > any

> > results like that. Goodness knows we tried--on 2 different

occasions

> > and now

> > we're trying again. If willing them to work would help they would

> > have to.

> > It's not surprising that so many of our children are so

intolerant of

> > rice--that's what my son lived on for the first few months of the

> > diet! Had

> > I to do it all over, I would have never placed my son on the GFCF

diet

> >

> > (GFCFlimited soy since 6/01 and trying desperately to rotate the

few

> > meager

> > foods left after IgG food avoidance since 12/01) --benefit has

been

> > very

> > minimal and now he has intolerances to pretty much all common

foods.

> > Social

> > outings are a disaster--he knows his food his different and

resents

> > it. Last

> > birthday party we attended he was scavenging for crumbs left from

the

> > other

> > kids goodies (even though I had made cupcakes for him using liners

> > given to

> > me by the birthday hostess and brought " safe " potato chips to

share).

> > Meanwhile after a stomach virus over the weekend, his little legs

look

> > like

> > bird legs and I'm afraid that the first strong wind will pick him

up

> > and blow

> > him away. Any minor fall produces a major bruise and I really

believe

> > that

> > he's more malnourished now than he ever was from simply a leaky

gut

> > with

> > moderate yeast. In addition to the diet, he's recently gone

through

> > AIT and

> > a round of sporanox with no significant gains so far.

> > Sorry--I just had to vent--all of this has taken a major toll

> > (financial,

> > emotional, and physical) on our entire family.

> > Vicki

> >

> >

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Guest guest

Vicki,

Did you try the Complete which does not have rice and did that work?

I would consider trying it. Also, did you try the Zyme Prime only to

see if it is more a withdrawal effect from the high amount of

proteases in Peptizyde rather than the rice bran? We've not heard

anyone else intolerant of rice bran not be able to take the HNI

enzymes as long as they stuck it out three weeks, how long has it

been?

You say you've only seen minimal benefits from the diet, but it

sounds like he does have reactions to the problem foods, is that

correct? Or, is it that the testing indicated many intolerances, but

you've not actually observed these intolerances?

Thank you for the compliment, " I don't blame and for

being such adamant supporters of them--if their success had been

ours would be too. " I felt from the beginning, " How can I NOT tell

people about this? " I appreciate your words and you must a pretty

neat person to be able to have happiness for others when you are

struggling. It is amazing that some people can't accept that we are

trying to help kids, yet a parent whose child is not benefitting can

show understanding and kindness. Nice comments like this from

parents make up for all the rude remarks from the anti-parent people.

Big hug to you.

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Guest guest

> Are the enzymes we're using pancreatic enzymes or are they two

different things.

Depends on which ones are you using. Pancreatic ones usually

say " pancreatin " on it and will have USP units. These are derived

from pig and ox pancreas (delightful idea, huh). Most of the ones

discussed on this board are from either plant or microbial sources.

Plant include papain (papaya), bromelain (pineapple),or actinidin

(kiwi). Microbial is everything else, also called fungal derived. The

plant and microbial enzymes are FAR more stable and work longer in

the digestive tract because they are effective over a wide range of

pH. Far less plant/microbe enzymes are needed than animal derived

enzymes to achieve the same amount of breakdown in the gut.

The " natural " enzymes your body produces are " animal " derived.

Is that what you needed to know?

.

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Guest guest

> Is that what you needed to know?

> .

>

Yes, it answers my question. I had read somewhere on an autism site that

gave supplements and things that have been beneficial for autism and it

suggested prancreatic enzymes. So I'll just stick to what I'm using.

Thanks,

Diane

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  • 2 months later...
Guest guest

the enzymes should be fine for that short of a period; the oils in

the chocolate will help " insulate " the enzymes.

Nice idea about the ice container, bet someone could come up with

something like that.

Devin

> Hi,

> We've begun Houston enzymes, just the Zyme so far. We spent a week

on one quarter capsule x 3 daily, went up to x 4 daily and we're now

on half capsule x 4 daily, even x 5 if he has a substantial afternoon

tea. Next week we'll start on Pep as well, slowly slowly. He is gf

but not really cf (has a little yoghurt, cheese, chocolate, ice

cream). I have to put the enzumes in his lunch box for morning tea

and lunch, so I put it in gfcf (dark) choc " wafers " in those tiny

confectionary paper cups for chocolate-making. I make them every

three days and keep them in the freezer. My question - I pack his

lunch box at about 8am, he doesn't eat lunch until 12.30 or even

12.45pm. Would the enzymes still be active? The lunch box is one of

those supplosedly insulated ones and I don't put any warm food in it,

but I still worry his second wafer will have " run out " by then. Any

one got any views on this? (What I would like is a little plastic

tablet container with water in a totally sealed bottom part and a top

part for putting the wafer in. The water could be frozen like a

little self-contained ice block and would keep the wafer cool. Dream

on!!!)

> Thanks! Gillian.

>

>

>

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Guest guest

Hi Gillian

How about a small lidded pot and one of those flexible wraps you freeze, that

then go round wine bottles - ? do you have those in US? The school were

actually keeping them in thheir freezer but I used this to send them in at

the beginning of the week.

HTH

Mandi in UK

> (What I would like is a little plastic tablet container with water in a

> totally sealed bottom part and a top part for putting the wafer in. The

> water could be frozen like a little self-contained ice block and would keep

> the wafer cool. Dream on!!!)

> Thanks! Gillian.

>

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Guest guest

>>>> Is there really help for autistic children through enzymes?

For many, yes there is. I will send you some information on what to

expect with enzymes and how to read enzyme product labels for your

consideration. This is a " new " therapy which is has been successful

for about the last year. Hopefully you will see at least a little

benefit. Fortunately certain enzymes have produced improvements

in " older " children where other therapies have not. Although usually

improvements are seen in 3 weeks, with older kids it may take a few

more weeks than that.

Best wishes for success. Please post any questions that may come up

and we will try to be helpful.

.

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Guest guest

That's an interesting idea. Sam (like most 9 year olds probably) hates

looking different so I have to give him his enzymes in a way which he can

hide if he wants to or which looks " cool " if he is seen, so having a little

choc wafer in his lunchbox is perfect. Devin kindly replied and put my mind

at rest that a frozen choc wafer would still be fine by lunch time, so

that's great - I just have to keep making them! I've found some really yummy

organic dark gfcf chocolate, wouldn't be great for kids who react to fenols

but it's ideal for us.

BTW I'm in Aus!

All the best,

Gillian.

> Hi Gillian

> How about a small lidded pot and one of those flexible wraps you freeze,

that

> then go round wine bottles - ? do you have those in US? The school were

> actually keeping them in thheir freezer but I used this to send them in at

> the beginning of the week.

> HTH

> Mandi in UK

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  • 1 month later...
Guest guest

--Beth my son is 3.5 and we use digestive enzymes from

www.houstonni.com. We started them while we were gf/cf soy and egg

free and saw excellent results in that my sons severe sensory issues

stopped within a month. His angry morning behavior also stopped. I was

a very strict on diet person so that tells me that even the strictest

diet has unknown contaminations. Also it just helped heal the gut. We

then in April added the HNI (houston) no-fenol enzyme and my sons

obsessive compulsive behavior stopped and also he started

transitioning much better. My son has severe phenol reactions that I

hope chelation will get rid of. We are now off the GF/CF diet using

the Houston enzymes and my son is doing great. We still have chelation

ahead of us as we have just only finished round #3 but I think enzymes

help keep the gut in better shape while chelating. I also know that

the no-phenol along with other yeast fighters has helped us get yeast

under controll. THe enzymes actually crack the hard exterior shell of

the yeast making them more vulnerable to medications. My son uses

Grapefruit seed extract which is a high phenol and without the

no-fenol he would not be able to take it. You can ask more questions

and get lots of info on the enzymes and autism list. Here is a link:

/

Good luck,

Patti

- In @y..., Beth Kennedy <merrybethkennedy@y...> wrote:

>

> I am ready to begin enzymes. My son is gfcf. A couple of questions:

>

> -If we have no infractions, do we still need the enzymes? Are they

" just in case? "

>

> -I remember a lot of recent chatter about competition in this field.

I am confused. Could someone recommend the best one?

>

> My son is almost 3.

>

> Beth

>

>

>

> ---------------------------------

>

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Guest guest

All I know is that we started enzymes before gfcf and saw great

progress. When we started gfcf, we got lax with the enzymes; everytime

we goofed, he had horrible days, despite being absolutely gfcf pure. So

I think in my son's case, the enzymes were addressing some other

problematic proteins in addition to gluten and casein. As far as best,

that's certainly a matter of opinion. We have had very good success at

our house with Houston (www.houstonni.com). -- Z.

Beth Kennedy wrote:

>

> I am ready to begin enzymes. My son is gfcf. A couple of questions:

>

> -If we have no infractions, do we still need the enzymes? Are they

> " just in case? "

>

> -I remember a lot of recent chatter about competition in this field.

> I am confused. Could someone recommend the best one?

>

> My son is almost 3.

>

> Beth

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Guest guest

Message: 1

Date: Tue, 16 Jul 2002 14:14:41 -0700 (PDT)

From: Beth Kennedy

Subject: enzymes

I am ready to begin enzymes. My son is gfcf. A couple of questions:

-If we have no infractions, do we still need the enzymes? Are they " just in

case? "

-I remember a lot of recent chatter about competition in this field. I am

confused. Could someone recommend the best one?

My son is almost 3.

Beth

we use houston's enzymes.... i was told that they were formulated just for our

kids in mind and are much stronger than others....i believe that kirkman's

states it is for infractions only... but its been a while since i 've been

there... we were gfcf for mo before starting them and once we started them were

gfcf for over 5 mo afterwards we had a few infractions... towards the 5th mo we

were having soooooooooooooooooooooooooooooooooooooooooooooooooooo many

infractions that we decided to drop the diet and see what would happen.... that

was over 3 mo ago and we have had no regression or ill effects. some kids

cannot drop the diet with houston's but then again many can.... we use all 3

enzymes....pep, zyme and no fenol(didn't realize that there was a phenol issue

until we tried it for a mo... there is a link to a message board here on

on www.houstonni.com the board is called . you can also search

for it on the groups home page. i great place to pose the questrions that you

have...files are fab...lots of info and there are people that use all kinds of

enzymes.... i would have to say that houston's enzymes are our preferred ones

as they have given us a quality of life we have never known.... neva

---------------------------------

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