welcome

[Guest guest]

Hi Kim!

My 2 1/2 yr old was born at home and has also never been to an MD -

never had an ear infection or anything more than a cold and fever and a

" purpera " rash reaction just recently. But came through it with flying

colors in exactly 48 hours! Worked it's way through his pure little body

very fast! We were going in for regular chiro adjustments until my hubby

lost his job a few months ago. Can't wait to be able to go again - I

know it really keeps us healthy!

Just wanted to agree!

[Guest guest]

LocalHome@... wrote:

> Hello everyone, my name is and I live in St. sburg, FL. I have a

> 4 month old daughter, who has not received any vaccines yet. I say yet

> because my pediatrician is trying to force me to get them. She just called

> the other day and informed me that I had to get the vaccines or they would

> drop Anevay (my daughter) as a patient. I was also given a deadline of June

> 11th to do so. Not sure what to do.

Giving you a deadline is absolutely incredibly wrong! There is no law on earth

that says

you have to vaccinate your child by any deadline other than for school. The

schedule for

shots that they give is for their convenience. They want you to take your child

in for

well baby visits, and what better time to give a shot. I urge you to drop that

doctor.

If you don't intend to vaccinate, or want to delay them a few years, fine, you

may even

drop the well baby visits, that is up to you and only you! You don't need that

doctor.

Let them drop you!

Welcome to the list

--

Anne, mama to (9-12-97)

mailto:jiterbug@... ~ ICQ #1682175 ~ AIM: noshotz4us

http://members.tripod.com/~ghosty_7/index.html

http://albums.photopoint.com/j/AlbumIndex?u=14345 & a=47206

[Guest guest]

Hi , welcome to the list. My name is Kathy and I'm the mom of a

5-year-old who had a sudden onset of ocd symptoms last December, so I'm

pretty new at figuring the ins and outs of daily life with ocd too. This

list has been invaluable to me and I'm sure it will be for you as well.

You asked about what to tell other parents about ocd. Over the last few

months I have explained to a few of my daughter's friends' parents about it,

but for the most part the most useful thing I've found is to just to mention

whatever part of ocd may be visible or causing problems that day. She's at

a birthday party right now, and I told the mom that she was feeling anxious

and therefore irritable, but she'd probably be fine in a few minutes. I

also told her I'd be home, gave her my phone number, and asked her to call

me if she needed. This approach has worked best for us, rather than trying

to explain the whole disorder and all the different ways her ocd manifests

itself. My daughter's age is a plus, there's practically no behavior or

compulsion that stands out as too unusual for this age group!

Kathy R. in Indiana

Welcome to onelist

>

>

> >Hello,

> >

> >Welcome to the list.

> >

> >Our list exists to provide support and information for parents of

children

> with OCD

> >or one of it's related spectrum disorders.

> >

> >Please introduce yourself and tell us about your family as soon as

> >you feel comfortable. Our list needs your participation.

> >

> >Take care.

> >

> >Louis

> >louisharkins_4@...

> >ICQ: 38330756

> >Fax: 1-408-293-2266 Ext. 30071

> >/subscribe/ and

> >/subscribe/ocdandhomeschooling

> >

> >

> >

>

>

> ------------------------------------------------------------------------

> Looking to expand your world?

>

> ONElist has nearly 160,000 e-mail communities from which to chose!

> ------------------------------------------------------------------------

> You may subscribe to the OCD-L by emailing

> listserv@... .

> In the body of your message write:

> subscribe OCD-L your name.

> The archives for the OCD and

> Parenting List may be accessed

> by going to the member center.

> Enter your username and password,

> then click on " list name " , then

> click on " view archives " , and

> then click on " archives index " .

> You may then view archives by

> date of entry.

>

[Guest guest]

Kathy - Thanks for your note. I agree that the younger the child is, the

easier it is for them to blend in. My son was in 1st grade this year - the

onset of his OCD. Even though the teacher was aware of some of his

compulsions, I don't believe the children were. Kids that age are so full

of movement anyway. I'm not so sure 2nd grade will be the same. I want to

get him in a CBT program ASAP so that he won't stand out so much next school

year. Have you looked into this for your daughter yet. Does she take any

meds? Good luck. To be continued.....

Re: Welcome

>From: " Kathy " <klr@...>

>

>Hi , welcome to the list. My name is Kathy and I'm the mom of a

>5-year-old who had a sudden onset of ocd symptoms last December, so I'm

>pretty new at figuring the ins and outs of daily life with ocd too. This

>list has been invaluable to me and I'm sure it will be for you as well.

>

>You asked about what to tell other parents about ocd. Over the last few

>months I have explained to a few of my daughter's friends' parents about

it,

>but for the most part the most useful thing I've found is to just to

mention

>whatever part of ocd may be visible or causing problems that day. She's at

>a birthday party right now, and I told the mom that she was feeling anxious

>and therefore irritable, but she'd probably be fine in a few minutes. I

>also told her I'd be home, gave her my phone number, and asked her to call

>me if she needed. This approach has worked best for us, rather than

trying

>to explain the whole disorder and all the different ways her ocd manifests

>itself. My daughter's age is a plus, there's practically no behavior or

>compulsion that stands out as too unusual for this age group!

>

>Kathy R. in Indiana

>

> Welcome to onelist

>>

>>

>> >Hello,

>> >

>> >Welcome to the list.

>> >

>> >Our list exists to provide support and information for parents of

>children

>> with OCD

>> >or one of it's related spectrum disorders.

>> >

>> >Please introduce yourself and tell us about your family as soon as

>> >you feel comfortable. Our list needs your participation.

>> >

>> >Take care.

>> >

>> >Louis

>> >louisharkins_4@...

>> >ICQ: 38330756

>> >Fax: 1-408-293-2266 Ext. 30071

>> >/subscribe/ and

>> >/subscribe/ocdandhomeschooling

>> >

>> >

>> >

>>

>>

>> ------------------------------------------------------------------------

>> Looking to expand your world?

>>

>> ONElist has nearly 160,000 e-mail communities from which to chose!

>> ------------------------------------------------------------------------

>> You may subscribe to the OCD-L by emailing

>> listserv@... .

>> In the body of your message write:

>> subscribe OCD-L your name.

>> The archives for the OCD and

>> Parenting List may be accessed

>> by going to the member center.

>> Enter your username and password,

>> then click on " list name " , then

>> click on " view archives " , and

>> then click on " archives index " .

>> You may then view archives by

>> date of entry.

>>

>

>

>------------------------------------------------------------------------

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>

>Deadline is June 19. Join now to win $5000 for your charity of choice.

>------------------------------------------------------------------------

>You may subscribe to the OCD-L by emailing

>listserv@... .

>In the body of your message write:

>subscribe OCD-L your name.

>The archives for the OCD and

>Parenting List may be accessed

>by going to the member center.

>Enter your username and password,

>then click on " list name " , then

>click on " view archives " , and

>then click on " archives index " .

>You may then view archives by

>date of entry.

>

[Guest guest]

Welcome a,

I am the mom of a 7 yr old daughter Kelsey with OCD. She was diagnosed last

March, was very severe w/ contamination OCD, but is now nearly symptom-free

after 10 weeks or so of CBT without medications. I haven't seen any signs

of contamination OCD in the last month but once in awhile see an event that

looks like scrupulosity or touble with leaving things " unfinished " and she

tells me she sometimes needs to repeat words if she doesn't say them just

right. But quite frankly, these are so minor and don't interfere that much

so we switched gears to work on her social phobia for now. Kelsey also has

a 4-yr brother , with an anxious nature but no OCD for now.

The individuals on this list are compassionate and informed so you've come

to the right place!

Take care,

in San Diego

[Guest guest]

Don't worry, won't be on pureed food forever. Our little

choked on a piece of bread last summer and had to be airlifted to Loma

Medical Center. We almost lost him. (found out his passageway was extremely

narrow for even small food) I have pureed his food for so long, and just a

few weeks ago, we offered him a " bite " of a french fry. He loved it. We

monitered his bites to be " small " bites, as we are worried about him choking

again. He did so well, that today, nearly a month later, he eats french

fries all by himself with a little ketchup on them. He loves them. He does

eat two other foods all by himself , and that's graham crackers,(they

dissolve quickly with saliva) and Cheese Puffs. (his favorite junk food in

the whole world!) I'm now chopping up pasta's such as spagetti, noodle

casseroles, etc., with a fork. is actually chewing very well. I

thought we'd never get to this stage! So, hang in there.......the pureed

stage will pass, in time. By the way, have you tried baby cereal in his

bottle? I know they say you shouldn't do that because they have to learn to

chew, but I found that it helped " fill up " and it also helped him

gain weight which made him stronger and eventually he figured out " how " to

chew. Keep offering new things, eventually something will come up that he'll

love and he will work hard to figure out how to chew it. ( I took a banana

and bit a piece off with my teeth and actually chewed it a bit [like a mother

bird chewing food for her baby birdies] and then stuck it in 's mouth

and that was probably the first food he learned to chew.....of course it was

already partially chewed.)

Joyce, mother of seven (three are down syndrome--16, -6, and

- 2 1/2)

[Guest guest]

Margaret,

Hi wanted to let you know we come to Atlanta quite a bit. We are coming that

wayon the 10th it is a all day thing up there.

Mabey we can get together. Would love to meet all your kids. Sounds like they

are a handful.

Can email me at rmedrano@...

Talk to you soon,

welcome

Hi and Welcome to and Dennis and Rusty and ,

We have twin boys who recently turned three, Greyson and (ds) and a

daughter Annice who is 17mos. The twins were born at 33 weeks and had two

surgeries for the duedonal atresia and eye surgery for strabismus. is doing

great except for eating and fine motor skills are difficult for him. He is such

a joy and has a delightful sense of humor. We feel very blessed by all aour

wonderful kids. This list has been so wonderful and supportive glad you all have

joined.

and Rusty, we live in Atlanta so we are fairly close, do you all

ever come into Atlanta?

Margaret

[Guest guest]

Hi Dennis, , Rudy and TJ

Glad to see you made it to the list! It

is so great to have some parents of older twins on the

list! I'm sure I will have lots of questions for you.

BTW, TJ is my dad's name. You don't see it often!

Again, welcome to the list!

mom to Landon(DS) and Ashton 16

months

--- Lesfevr21@... wrote:

> Hi! We are Rudy (DS) & , 12, TJ 16,

> & Dennis. The twins were

> full term and healthy. Rudy has had his bouts of

> pneumnia and assorted other

> minor illnesses but is relatively healthy. He is

> delayed in his speech but

> otherwise is the life of the party and quite the

> sneak!! He is now in 6th

> grade, participates in Special Olympics and loves

> his action figures. The

> twins were 3 years old before I found my first

> multiple parent so I am

> thrilled that someone came up with this to let us

> know we aint alone!!! It

> is different dealing with the multiples but has also

> been very rewarding.

> Take care all.

>

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

[Guest guest]

Hi Rusty and ,

Welcome to the list! It is like having your own

personal support group at you fingertips 24 hours a

day! I have really enjoyed it!

mom to Landon and Ashton 16 months

--- Rusty and Medrano <rmedrano@...>

wrote:

> Hi,I am ..I have been trying to get my email

> to go through but having

> problems...lol

> I am a mother to a daughter, 6 and Dayton he

> will be 17 months on

> the 4th of Nov.

> They both are mine... they have translocation 13. I

> found out I am a

> carrier. Where in the heck it came from. My gentic

> dr and I went back 5

> generations and it is no where to be found. I guess

> I am just special like

> my kids. hehe

> Hoping this letter goes through I will give any

> information to anyone

> ....any time you can email me at

> rmedrano@...

> or ICQ me at 40538092....

> Medrano

> Re:

>

>

> >From: Momjlf47@...

> >

> >Dear ,

> >I noticed you are mother of two DS children age 6

> and 17 months. Are these

> >your only two children? Did you give birth to

> both? I am just curious and

> I

> >am very new to this group. Are they straight

> trisomy 21?

> >Joyce-mother of seven children (three are DS

> -16,-6, and

> > 2 1/2)

> >

> >>http://DSyndrome.com/Multiples

> >

>

>

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

[Guest guest]

If you do meet... take LOTS and LOTS of pictures for

the " members only " part of the web site! )

Sara (who is way jealous!)

--- Rusty and Medrano <rmedrano@...>

wrote:

> Margaret,

> Hi wanted to let you know we come to Atlanta quite a

> bit. We are coming that wayon the 10th it is a all

> day thing up there.

> Mabey we can get together. Would love to meet all

> your kids. Sounds like they are a handful.

> Can email me at rmedrano@...

> Talk to you soon,

>

> welcome

>

>

> Hi and Welcome to and Dennis and Rusty

> and ,

>

> We have twin boys who recently turned three,

> Greyson and (ds) and a daughter Annice who is

> 17mos. The twins were born at 33 weeks and had

> two surgeries for the duedonal atresia and eye

> surgery for strabismus. is doing great except

> for eating and fine motor skills are difficult for

> him. He is such a joy and has a delightful sense of

> humor. We feel very blessed by all aour wonderful

> kids. This list has been so wonderful and supportive

> glad you all have joined.

>

> and Rusty, we live in Atlanta so we are

> fairly close, do you all ever come into Atlanta?

>

> Margaret

>

=====

[Guest guest]

Welcome (vinlin@...),

I still feel pretty new around here too.....and am just learning about OCD

myself. My daughter has had various diagnoses and medications in the last 5

years (she is now 13). The underlying symptom seemed to be anxiety that

would then " flood " over into rage...... Now we are beginning to see a lot

more of the obsessions----hers are mainly intrusive thoughts.

This is a great list because others have been where you are, as a parent to a

child with OCD.....and that support is invaluable because many times we do

feel alone... and so do our children as they fight to " boss back " this OCD.

My daughter is 13 and is taking 1000mg depakote, 40mg paxil, 125mg trazadone,

and she also takes singulair for asthma. She had also been taking dexedrine,

but off now due to weight and stomach issues.

Let us know more about your child with OCD.....

Good luck and please feel welcomed

Laurie in WI

[Guest guest]

Hi Laurie,

Thanks for the welcome! Everyone here has been so nice. I have been learning

so

much. Mainly that I am not alone and there are other people out there who know

what we are going through and understand.

My son had a pretty rough morning. He got really mad at me for refusing to wash

my hands on the way to the store. I had pulled his pants leg over his boot and

he went ballistic because I told him that I didn't dirty my hands doing that. I

just got out the truck and went in the store and my husband brought the kids in

after me. He chilled out a little but wouldn't let me touch him. Oh the joys

of

this OCD.

He has his hands so red and dry they look terrible. Can any of you with hand

washers give me an idea of what to do about the redness? Is there something

specific you find that works well on this?

in Louisiana

SEnLE@... wrote:

> From: SEnLE@...

>

> Welcome (vinlin@...),

> I still feel pretty new around here too.....and am just learning about OCD

> myself. My daughter has had various diagnoses and medications in the last 5

> years (she is now 13). The underlying symptom seemed to be anxiety that

> would then " flood " over into rage...... Now we are beginning to see a lot

> more of the obsessions----hers are mainly intrusive thoughts.

>

> This is a great list because others have been where you are, as a parent to a

> child with OCD.....and that support is invaluable because many times we do

> feel alone... and so do our children as they fight to " boss back " this OCD.

>

> My daughter is 13 and is taking 1000mg depakote, 40mg paxil, 125mg trazadone,

> and she also takes singulair for asthma. She had also been taking dexedrine,

> but off now due to weight and stomach issues.

>

> Let us know more about your child with OCD.....

>

> Good luck and please feel welcomed

> Laurie in WI

[Guest guest]

,

I'm from Lake , La. are you close to me?

is a handwasher too. We cut out the antibacterial soaps and started using

liquid soaps with Aloe and moisturizers. I also put hand lotion in a pump

dispenser

next to the sink where he does most of his washing.

We have been working on using the first paper towel for the last two weeks.

would always peel off the first two paper towel, leave them on the counter, then

peel

off and use the third....he felt that the first two were contaminated. We use

to go

through

a case of paper towel a week.

I keep a chart for him to put a check if he is successful or an x if he is

unsuccessful....

Since doing this, he has cut back on the number of times a day that he washes

his

hands.

Take care and good luck .

mary from La.

Losavio wrote:

> From: vinlin@... ( Losavio)

>

> Hi Laurie,

>

> Thanks for the welcome! Everyone here has been so nice. I have been learning

so

> much. Mainly that I am not alone and there are other people out there who

know

> what we are going through and understand.

>

> My son had a pretty rough morning. He got really mad at me for refusing to

wash

> my hands on the way to the store. I had pulled his pants leg over his boot

and

> he went ballistic because I told him that I didn't dirty my hands doing that.

I

> just got out the truck and went in the store and my husband brought the kids

in

> after me. He chilled out a little but wouldn't let me touch him. Oh the joys

of

> this OCD.

>

> He has his hands so red and dry they look terrible. Can any of you with hand

> washers give me an idea of what to do about the redness? Is there something

> specific you find that works well on this?

>

> in Louisiana

>

> SEnLE@... wrote:

>

> > From: SEnLE@...

> >

> > Welcome (vinlin@...),

> > I still feel pretty new around here too.....and am just learning about OCD

> > myself. My daughter has had various diagnoses and medications in the last 5

> > years (she is now 13). The underlying symptom seemed to be anxiety that

> > would then " flood " over into rage...... Now we are beginning to see a lot

> > more of the obsessions----hers are mainly intrusive thoughts.

> >

> > This is a great list because others have been where you are, as a parent to

a

> > child with OCD.....and that support is invaluable because many times we do

> > feel alone... and so do our children as they fight to " boss back " this OCD.

> >

> > My daughter is 13 and is taking 1000mg depakote, 40mg paxil, 125mg

trazadone,

> > and she also takes singulair for asthma. She had also been taking

dexedrine,

> > but off now due to weight and stomach issues.

> >

> > Let us know more about your child with OCD.....

> >

> > Good luck and please feel welcomed

> > Laurie in WI

>

> ---------------------------

[Guest guest]

:

My son began as a handwasher. I finally had to resort to using Bag Balm

and white cotton gloves at night to try and heal his hands.

Jule in Cleveland

[Guest guest]

Hi Jule,

What is Bag Balm? I don't think I have ever heard of it. Are these special

gloves for this reason or just any old glove?

Thanks for you input.

in Louisiana

j.monnens@... wrote:

> From: j.monnens@...

>

> :

>

> My son began as a handwasher. I finally had to resort to using Bag Balm

> and white cotton gloves at night to try and heal his hands.

>

> Jule in Cleveland

>

[Guest guest]

" heather richardson " <heathe-@...> wrote:

original article:tae-bo_on/?start=13439

> Hi All! Nice to be part of this group now. Just wondering if there

> are any people posting messages from Europe? I live in Germany right

> now and am looking for some mutual european support! Let me know and

> hope to hear from someone soon!

> Keep on people, taebo rocks!

> -

Welcome ! Wow, Germany....that's so cool! I think you're the

first from Germany, but there are a few girls from England! I'm glad

you found this group. I saw in another post that you had the 4-pack of

tapes and the first 3 Advanced tapes....that's a great start! Do you

have the new live 4-pack or the original 4-pack! I'm glad you have a

way to order the tapes, since they are not widely available in Germany

yet! I'm glad you joined us....it will be neat hearing how you like it

and your experiences with tae-bo!

[Guest guest]

Hi ,

I have the original 4 pack but I LOVE the advanced live first 3. They

give SUCH a good workout. I plan to get the next 3 live advanced soon.

I am already in pretty good shape, but I need to get da rest of the

flab off the inner thighs. I hope this stuff works! As for my normal

workout, taebo is sooo motivating! So regardless, I do it every day as

my workout. Step aerobix got sort of boring after awhile--

I do notice much more strength in my legs, so something must be

working! It is my last resort to get the rest of " the big legs "

syndrome rock hard! Does this work for anyone else?? !! I also want

to spread the word over here in Germany of taebo, it is simply great!!!

-H

[Guest guest]

Thank you Michele.

NS

Michele Sheeran <sheeranj@...> wrote:

From: Michele Sheeran <sheeranj@...> Hi NS and welcome to lifelift list. I just found it a few days agomyself and everyone is so supportive. It's good to have you with us:-).Michele S.

[Guest guest]

Lori,

Thanks for your concern. I know that our bodies give us warnings, and we need to listen, but I'm horrible at doing that. I often feel as though I have to be superteacher just to prove that my illness doesn't affect my job. It doesn't help that my kids are particularly difficult and my caseload is currently at 130% My whole life is my job. I put everything that I have into it. I don't want to get too sick to work, so I'm making myself get out of there at 4:00 two days a week (I told tommy, our custodian, that I was leaving at 4:00 today and he laughed and said he would believe it when he saw it). I work too many ten and twelve hour days. If I cut back to eight to ten, and increase my supplements, I should be okay.

As for whether or not things will settle down after spring break, the answer is that I have no idea. It depends on whether or not I get more new kids. The good news is that our last day of school is May 19th, and that's not too far away. We still have more standardized testing to do in April, and I have three IEPs to write before then. Oh well, I'm rambling. Thanks for caring.

*************************************************** B. M. Ed.SPARK TeacherTempe Elementary School District #3Nevitt Elementary School(602) 431-6640 ext. 6652***************************************************

Welcome

From: Lori Fish <angelfsh@...> , Hello and welcome! You will learn sooo much here - this is a wonderful group of people! PLEASE listen to your body - it is warning you and if you dont listen it will shut down. The stress is pushing your adrenals to the max and they will give out in time. You are lucky that you are still able to work but if you keep up at that rate you may end up I was - bed ridden. Stress KILLS your body!! You still have time, reduce the stress before it reduces you!! After spring break will it slow down?? Lori B. wrote:

From: " B. " <Mel@...> I just wanted to take a few moments and introduce myself. My name is and I'm 32 years old. I'm new to this list. In the Fall of 93, I was diagnosed with Mono, partially recovered, and was diagnosed again with mono in the summer of 94. Once again I partially recovered, but relapsed again in the Spring of 95. I was diagnosed with CFIDS that summer. I managed to continue my job, even though my doctor did recommend that I might want to loke at changing professions. At the time I was teaching a case load of 55 learning disabled and behavior disordered students (on a pull out basis). Nearly half of my students were gang involved, and several were even homeless, or living in cars, or dealing with drug-addicted parents. Needless to say, it was a stressful job. I continued to do okay until the stress from a rape, and the aftermath of the legal process took its toll. I missed so many days of work during that school year (1996-1997), that my principal recommended that I go down to half time. I reluctantly agreed. At the end of the school year, I took a personal leave so that i could get myself back in good health, physically and mentally. At that time, my doc completely changed my meds, and I saw an immediate improvement. Midyear, I went back to teaching. I was able to do this if I slept all weekend. Then I began adding supplements, and i noticed that my naps became shorter, and I was sometimes feeling rested when I woke up. I now work in a different position (with emotionally disabled students), and am back to full time. i do get very tired, but I put in 10 or more hours a day. Most of my coworkers do no even know I'm sick. I notice, however, because I am very tired most of the time. I still use my weekends to recover from the work week, but my work is important to me and helps me have an identity other than just a sick person. Besides CFIDS, I've also got migraines, ADHD, and have suffered in the past from PTSD, and Clinical Depression. In all, these conditions have resulted in my taking 10 prescription meds and 3 supplements. My SO and I are getting married this coming May and that has added some stress. There is also more stress from work because i have been the person responblible for getting enough documentation to convince the school district to fire a very incompetent and even disruptive Teaching Assistant. This time, my body first responded to this extra stress with daily migraines, and now I am feeling the effects through my CFS symptoms, difficulty thinking, weak muscles, painfuly lymph nodes, and exhaustion. My sleep is no longer enough. I only have one week until spring break, though. One more week, and then I can sleep, sleep, sleep, and hopefully get back to where I was before. Well, this is probably more than you needed to know. I just wanted to introduce myself.

This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

[Guest guest]

,

I feel for you, it is so hard to be a teacher! You remind of a teacher I

worked for as a teacher's aide. I was having problems with insomnia and

frequent illnesses at the time. The Principal told me that it was OK to take

sick days, that they could get by without me there every day. I felt bad

about it though, and tried to explain to the teacher I worked for why I

wasn't performing up to par. I asked her if she ever woke up in the morning

feeling more tired than she had when she went to bed. I was surprised when

she told me " Every day " . She rarely missed a day, if she did they would have

to get a sub and it would disrupt her lesson plans. It was hard for me to

take care of myself by staying home to rest, knowing that I was leaving her

with an extra burden. She is such an excellent and dedicated teacher, I wish

she had all the energy I know she wants to bring to her job.

Please do be kind to yourself. You deserve it! I've yet to meet anyone who

works harder and gives more of themselves than teachers do.

Abra

>From: " B. " <Mel@...>

>Reply-onelist

><onelist>

>Subject: Re: Welcome

>Date: Wed, 8 Mar 2000 18:39:39 -0700

>

>Lori,

>

>Thanks for your concern. I know that our bodies give us warnings, and we

>need to listen, but I'm horrible at doing that. I often feel as though I

>have to be superteacher just to prove that my illness doesn't affect my

>job. It doesn't help that my kids are particularly difficult and my

>caseload is currently at 130% My whole life is my job. I put everything

>that I have into it. I don't want to get too sick to work, so I'm making

>myself get out of there at 4:00 two days a week (I told tommy, our

>custodian, that I was leaving at 4:00 today and he laughed and said he

>would believe it when he saw it). I work too many ten and twelve hour

>days. If I cut back to eight to ten, and increase my supplements, I should

>be okay.

>

>As for whether or not things will settle down after spring break, the

>answer is that I have no idea. It depends on whether or not I get more new

>kids. The good news is that our last day of school is May 19th, and that's

>not too far away. We still have more standardized testing to do in April,

>and I have three IEPs to write before then. Oh well, I'm rambling. Thanks

>for caring.

>

>

>

>

>

>

>

>

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[Guest guest]

Hi , I have CFIDS myself plus a teen that developed this in Jr High. I'm not sure if you are aware that younger kids can also get hit with this same disease, but can manifest completely different. I have a younger son also, he was hit with this stuff very early in life. Originally they thought he was ADHD. I found out it was immune related when he was five, but was having a hard time finding the right treatment for him. Then he progressed into infection triggered OCD. So I have been on the other side of the IEP's and trying to get school to understand what was going on with my son. With the OCD came more severe behavior problems and uncontrollable rages, academic problems etc.(because of the part of the brain effected) I hate what I am dealing with but it is really horrible when it hits during the critical stages of development. I wonder how many of the kids you are seeing at school are dealing with this same thing, but its not recognized because they don't seem to get the physical fatigue part. But still have a brain that is severely malfunctioning. I did find a treatment that is working so now I am fighting to keep Spec. Ed. I understand your stress, dealing with this from the other side has been very detrimental to my health.

Cheryl

/

Re: Welcome

From: " B. " <Mel@...>

Lori,

Thanks for your concern. I know that our bodies give us warnings, and we need to listen, but I'm horrible at doing that. I often feel as though I have to be superteacher just to prove that my illness doesn't affect my job. It doesn't help that my kids are particularly difficult and my caseload is currently at 130% My whole life is my job. I put everything that I have into it. I don't want to get too sick to work, so I'm making myself get out of there at 4:00 two days a week (I told tommy, our custodian, that I was leaving at 4:00 today and he laughed and said he would believe it when he saw it). I work too many ten and twelve hour days. If I cut back to eight to ten, and increase my supplements, I should be okay.

As for whether or not things will settle down after spring break, the answer is that I have no idea. It depends on whether or not I get more new kids. The good news is that our last day of school is May 19th, and that's not too far away. We still have more standardized testing to do in April, and I have three IEPs to write before then. Oh well, I'm rambling. Thanks for caring.

This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

[Guest guest]

Hi Cheryl,

Re: Welcome

From: " B. " <Mel@...>

Lori,

Thanks for your concern. I know that our bodies give us warnings, and we need to listen, but I'm horrible at doing that. I often feel as though I have to be superteacher just to prove that my illness doesn't affect my job. It doesn't help that my kids are particularly difficult and my caseload is currently at 130% My whole life is my job. I put everything that I have into it. I don't want to get too sick to work, so I'm making myself get out of there at 4:00 two days a week (I told tommy, our custodian, that I was leaving at 4:00 today and he laughed and said he would believe it when he saw it). I work too many ten and twelve hour days. If I cut back to eight to ten, and increase my supplements, I should be okay.

As for whether or not things will settle down after spring break, the answer is that I have no idea. It depends on whether or not I get more new kids. The good news is that our last day of school is May 19th, and that's not too far away. We still have more standardized testing to do in April, and I have three IEPs to write before then. Oh well, I'm rambling. Thanks for caring.

This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

Enter Ht: ft.

in.

Enter Wt: lbs.

This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

[Guest guest]

I didn't however know that it manifested itself differently in children. What were his specific symptoms? those that were similar to ADHD? and OCD?

There is more and more research showing that the same process that is hitting us, in children can appear to be autism/PDD,AD/HD, LD, OCD, Tourettes, etc. (More and more research is looking at neuroimmune) Depends on the age of development and severity. The kids have the same types of abnormalities on NeuroSPECT and the immune dysfunction.

What treatment has been successful? Is it treating the OCD and behavioral issues, or the CFIDS? Also, you should be aware that if you child is no longer eligible for Spec Ed (there are a bunch of complicated rules made by the legislatures which determine this.

My son is on an antiviral, antifungal, antihistimine, antibiotic, kutapressin, low dose SSRI, some dietary issues. Altogether they seem to be doing the trick. Because I knew this was immune related from early on, he never received a diagnosis that would have covered his symptoms. I now realize he would have fallen into the high end of the autism spectrum or possibly NVLD.(orig diag ADHD) Once the OCD was on top of that my son couldn't begin to function at school.(missed more school than he attended) So now that he is functioning, they are trying to say his previous classification of other health impaired is not an issue. They believe that he is making such strides that Spec. Ed. won't be needed. I'm not so sure since he missed some stages of development. I don't know, I'll see how it goes. He'll still have Spec Ed. until further eval, which won't be for at least 6mo. May have to do an IEE. But thanks for the offer of help.

Cheryl

[Guest guest]

Welcome ! We are so glad to have you here!

[Guest guest]

>From: rejoice1198@...

>Reply-LifeLiftegroups

>LifeLiftegroups

>Subject: Re: Welcome

>Date: Fri, 7 Apr 2000 08:52

>

Connie,

Thank-you for your warm welcome. I am glad to hear that the body wrap

products are working for you. That's great that you say you are " looking

good. " I hope to be at that point one day. I, like some of the others,

will have days when I also pass a store window or mirror and go, " My gosh!!

Boy does she look dumpy!! " Then I realize it's me!! That's why I refuse to

have my picture taken unless absolutely necessary. On the upside, people

don't believe it that I am going to be 39. Part of it is because I'm short

- 5'2 " . The other part is thanks to Life Lift. I just wish my inner thighs

would reduce already. I also have the outer thigh problem but for some

reason, they reduce faster than the inner thighs on me. Like everyone else,

I am smaller in other areas (for me it's from the waist up) so it makes my

thighs look like tree trunks. I know, I know, I should just be thankful to

even have legs (my mother tells me this from time to time to give me a

reality check), but when you struggle to lose weight and you continue to

have chunky legs for so many years, it's hard not to obsess about it.

Again, thanks for the welcome.

Abby

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