vitamin E

[Guest guest]

Please don't forget the other " condition " that is on the rise - food

allergies. Not just intolerance to casein and gluten - peanut butter

is MIA from my son's diet because he is allergic to peanuts (also

suspected apraxia and has SI).

So there is a whole new generation of children unable to eat many of

the Omega/Vit E-containing foods that you mention below (eggs, wheat,

nuts, soy, etc). Growing up in the 1970's-1980's, I can't remember

one classmate that had any food allergies at all, but now chances are

that any given classroom will have at least one child with a serious

food allergy.

>

> I'm not sure if this is yet a question anyone has thought of

> the answer to, but why do you suppose we all of a sudden have a

> rising group of children with these deficiency issues?

>

> I mean with fish/omega 3s and all -it's easier to understand. They

are

> lacking in diets today -especially children's diets. On top of the

> fact it's mostly MIA from the diet -whatever measly amount most

consume

> is compromised by the " bad " fats -the saturated and transfatty

acids.

>

> But E I find confusing because it's in whole grains such as

> wheat and oats and egg yolks...and the number one kid staple -peanut

> butter!

>

> Clearly if it ends up that the majority of apraxic or apraxic

> type children respond to E the way they have to the fish oil...what

> is creating the deficiency? Why is " apraxia " on the rise? Diet?

> Environmental? Viral? Genetic?

>

> Of course I still lean towards believing that whatever is causing

> this is triggered by environmental issues

> I suspect it's more than one culprit. Most today fixate on mainly

> either lead or mercury. While I wouldn't want to expose my children

> to either of the above -I still wonder about phenol mixed with some

> of the other toxins around today like the Polychlorinated

> Biphenyls/PCBs.

>

> There's a few references that PCBs 'cause' a vitamin E deficiency.

> " PDF] Effect of simultaneous administration of polychlorinated

> biphenyls ... - 8:36pmFile Format: PDF/Adobe Acrobat

> (3) PCB causes a nutritional deficiency, such as Vitamin E

> deficiency

> www.springerlink.com/index/U22VGQ767N303318.pdf "

> But when I clicked on the link - I was not able to read the entire

> article - I'm sure you could. Here's one I did find.

> http://cat.inist.fr/?aModele=afficheN & cpsidt=921166

>

> Around where we used to live if PCBs didn't cause this...what about:

> " phenol, cadmium, chromium and lead " (and PCBs too)

> http://www.cherab.org/news/Save.html

>

> I know that having clinical studies to validate what we are seeing

> as a group with our own children will help treat the rest of the

> children (in another group for example) -but I still want to find

> the cause so we can stop this from happening in the first place.

> Besides -as I wrote in the link below -I see our children as the

> canaries in the coal mine -if there are lots of " apraxic " children

> around you there are probably more with cancer etc. -and you

> probably need to be on fish oil too. -vitamin E too? (I

> typically take whatever Tanner does -so yes I too am now on vitamin

> E!)

>

> =====

>

[Guest guest]

I'm not debating that food allergies are on the rise -they could

have gone from 1% of the population up a few points -but they are

still rare. I do know that in all the years that my children have

been in school -including preschool -there's only been one child

that has been in my one son Dakota's kindergarten class with a

severe food allergy to nuts which all of the parents in the class

were made aware of so that we didn't send any foods into the school

with nuts. (Dakota is now in 7th)

Tanner in 1st grade had a child in his class who had severe

allergies to bee stings and she needed to have an epipen with her at

all times -but not sure if that counts in food allergies. (Tanner is

now in 4th)

By the US food and drug administration food allergies are considered

to be " rare but risky "

" true food allergies affect a relatively small percentage of people:

Experts estimate that only 2 percent of adults, and from 2 to 8

percent of children, are truly allergic to certain foods. "

http://www.cfsan.fda.gov/~dms/wh-alrg1.html

I mean there could be kids that 'shouldn't " eat stuff -but if they

do they don't risk their life -immediately anyway. Many of us

watched the documentary Super Size Me http://www.supersizeme.com/

Is there a higher percentage of children with severe allergies in

this group of children? (not talking about those of you who need to

get blood testing to prove the child is allergic since most don't go

that route anyway and would never know -I'm talking about children

who are at risk for anaphylactic reaction, could die -need to be

rushed to the ER if they eat ____...(fill in the blank)

Point being in this group -my son included -most do eat all the

normal kid stuff, including peanut butter (Tanner 'loves' peanut

butter) and yet they are apparently still lacking in vitamin E.

Again omega 3's are more understandable in regards to diet if a

child appears to be lacking in that. And in that regard -some test

to be normal in omega 3 but still respond to the fish oils as I've

posted many times before -so we clearly have not perfected testing -

it's not an exact science. With a severe food allergy however -you

don't need to get tested to know for a fact your child has one.

I'm sure it's more like 's point that the issue isn't the

lack of it in the diets as much as it is digestive -they can consume

the food, but are not absorbing all or enough of the nutrients, for

some reason.

=====

[Guest guest]

Yes - I have to keep an epi-pen with me at all times for Elliott's

peanut allergy; my cousin's son is deathly allergic to all nuts, a

friend's son is allergic to eggs and peanuts; my husband's twin

cousins are deathly allergic to peanuts, etc, etc. They don't seem

to be rare around here (East TN). It is a very prevalent problem.

Many schools and pre-schools are completely " peanut free " - no matter

what. I wonder if it varies by area of the country. Interesting.

>

> I'm not debating that food allergies are on the rise -they could

> have gone from 1% of the population up a few points -but they are

> still rare. I do know that in all the years that my children have

> been in school -including preschool -there's only been one child

> that has been in my one son Dakota's kindergarten class with a

> severe food allergy to nuts which all of the parents in the class

> were made aware of so that we didn't send any foods into the school

> with nuts. (Dakota is now in 7th)

>

> Tanner in 1st grade had a child in his class who had severe

> allergies to bee stings and she needed to have an epipen with her

at

> all times -but not sure if that counts in food allergies. (Tanner

is

> now in 4th)

>

> By the US food and drug administration food allergies are

considered

> to be " rare but risky "

> " true food allergies affect a relatively small percentage of

people:

> Experts estimate that only 2 percent of adults, and from 2 to 8

> percent of children, are truly allergic to certain foods. "

> http://www.cfsan.fda.gov/~dms/wh-alrg1.html

>

> I mean there could be kids that 'shouldn't " eat stuff -but if they

> do they don't risk their life -immediately anyway. Many of us

> watched the documentary Super Size Me http://www.supersizeme.com/

>

> Is there a higher percentage of children with severe allergies in

> this group of children? (not talking about those of you who need

to

> get blood testing to prove the child is allergic since most don't

go

> that route anyway and would never know -I'm talking about children

> who are at risk for anaphylactic reaction, could die -need to be

> rushed to the ER if they eat ____...(fill in the blank)

>

> Point being in this group -my son included -most do eat all the

> normal kid stuff, including peanut butter (Tanner 'loves' peanut

> butter) and yet they are apparently still lacking in vitamin E.

> Again omega 3's are more understandable in regards to diet if a

> child appears to be lacking in that. And in that regard -some test

> to be normal in omega 3 but still respond to the fish oils as I've

> posted many times before -so we clearly have not perfected testing -

> it's not an exact science. With a severe food allergy however -you

> don't need to get tested to know for a fact your child has one.

>

> I'm sure it's more like 's point that the issue isn't the

> lack of it in the diets as much as it is digestive -they can

consume

> the food, but are not absorbing all or enough of the nutrients, for

> some reason.

>

> =====

>

[Guest guest]

I'm not debating that food allergies are on the rise -they could

have gone from 1% of the population up a few points -but they are

still rare. I do know that in all the years that my children have

been in school -including preschool -there's only been one child

that has been in my one son Dakota's kindergarten class with a

severe food allergy to nuts which all of the parents in the class

were made aware of so that we didn't send any foods into the school

with nuts. (Dakota is now in 7th)

Tanner in 1st grade had a child in his class who had severe

allergies to bee stings and she needed to have an epipen with her at

all times -but not sure if that counts in food allergies. (Tanner is

now in 4th)

By the US food and drug administration food allergies are considered

to be " rare but risky "

" true food allergies affect a relatively small percentage of people:

Experts estimate that only 2 percent of adults, and from 2 to 8

percent of children, are truly allergic to certain foods. "

http://www.cfsan.fda.gov/~dms/wh-alrg1.html

I mean there could be kids that 'shouldn't " eat stuff -but if they

do they don't risk their life -immediately anyway. Many of us

watched the documentary Super Size Me http://www.supersizeme.com/

Is there a higher percentage of children with severe allergies in

this group of children? (not talking about those of you who need to

get blood testing to prove the child is allergic since most don't go

that route anyway and would never know -I'm talking about children

who are at risk for anaphylactic reaction, could die -need to be

rushed to the ER if they eat ____...(fill in the blank)

Point being in this group -my son included -most do eat all the

normal kid stuff, including peanut butter (Tanner 'loves' peanut

butter) and yet they are apparently still lacking in vitamin E.

Again omega 3's are more understandable in regards to diet if a

child appears to be lacking in that. And in that regard -some test

to be normal in omega 3 but still respond to the fish oils as I've

posted many times before -so we clearly have not perfected testing -

it's not an exact science. With a severe food allergy however -you

don't need to get tested to know for a fact your child has one.

I'm sure it's more like 's point that the issue isn't the

lack of it in the diets as much as it is digestive -they can consume

the food, but are not absorbing all or enough of the nutrients, for

some reason.

=====

[Guest guest]

Yes - I have to keep an epi-pen with me at all times for Elliott's

peanut allergy; my cousin's son is deathly allergic to all nuts, a

friend's son is allergic to eggs and peanuts; my husband's twin

cousins are deathly allergic to peanuts, etc, etc. They don't seem

to be rare around here (East TN). It is a very prevalent problem.

Many schools and pre-schools are completely " peanut free " - no matter

what. I wonder if it varies by area of the country. Interesting.

>

> I'm not debating that food allergies are on the rise -they could

> have gone from 1% of the population up a few points -but they are

> still rare. I do know that in all the years that my children have

> been in school -including preschool -there's only been one child

> that has been in my one son Dakota's kindergarten class with a

> severe food allergy to nuts which all of the parents in the class

> were made aware of so that we didn't send any foods into the school

> with nuts. (Dakota is now in 7th)

>

> Tanner in 1st grade had a child in his class who had severe

> allergies to bee stings and she needed to have an epipen with her

at

> all times -but not sure if that counts in food allergies. (Tanner

is

> now in 4th)

>

> By the US food and drug administration food allergies are

considered

> to be " rare but risky "

> " true food allergies affect a relatively small percentage of

people:

> Experts estimate that only 2 percent of adults, and from 2 to 8

> percent of children, are truly allergic to certain foods. "

> http://www.cfsan.fda.gov/~dms/wh-alrg1.html

>

> I mean there could be kids that 'shouldn't " eat stuff -but if they

> do they don't risk their life -immediately anyway. Many of us

> watched the documentary Super Size Me http://www.supersizeme.com/

>

> Is there a higher percentage of children with severe allergies in

> this group of children? (not talking about those of you who need

to

> get blood testing to prove the child is allergic since most don't

go

> that route anyway and would never know -I'm talking about children

> who are at risk for anaphylactic reaction, could die -need to be

> rushed to the ER if they eat ____...(fill in the blank)

>

> Point being in this group -my son included -most do eat all the

> normal kid stuff, including peanut butter (Tanner 'loves' peanut

> butter) and yet they are apparently still lacking in vitamin E.

> Again omega 3's are more understandable in regards to diet if a

> child appears to be lacking in that. And in that regard -some test

> to be normal in omega 3 but still respond to the fish oils as I've

> posted many times before -so we clearly have not perfected testing -

> it's not an exact science. With a severe food allergy however -you

> don't need to get tested to know for a fact your child has one.

>

> I'm sure it's more like 's point that the issue isn't the

> lack of it in the diets as much as it is digestive -they can

consume

> the food, but are not absorbing all or enough of the nutrients, for

> some reason.

>

> =====

>

[Guest guest]

I also have a son with a severe peanut allergy. These kids with

food allergies are more vulnerable and have immune systems that kick

into overdrive when something considered " foreign " comes in. What

lots of folks don't realize about food allergies is that you can eat

the offending item several times before it causes a severe

reaction. So they give their 2 year old peanut butter 2, 3 times

and then on time #4, they get hives and worse. Another thing to

note: the best allergists recommend that if you have a food allergy

in your family that you hold off on the biggest offenders until the

child is 5!!! That means no peanuts, tree nuts, eggs and shellfish

until 5. Other items - like dairy, wheat and soy - should be

introduced very carefully and watched. I cringe every time I see

someone feeding their kid peanut butter at 2. Why? Because - in

all likelihood - if I hadn't exposed my son to it so early, he

wouldn't be allergic to it. Some kids - like ours - need a while to

allow their immune systems to fully mature. Another thing to note:

peanuts and treenuts are generally transported and processed in the

same facilities. That's one of the main reasons why people allergic

to one don't eat the other. All it takes is 1/10,000th of a peanut

to cause anaphylactic shock.

As for the rarity of food allergies, it's definitely on the rise.

How much so no one really knows until the studies are produced

several years later. I can tell you that we are in a VERY small

district - perhaps 700 primary students in 3 different schools - and

there are at least 9 epipen carrying kids that I know of (and we

find each other pretty quickly). Even the pharmacists comment on

how many more epipens they dole out now. Who really knows why -

perhaps it's the environment, perhaps it's the increased amount of

odd additives in topical products, perhaps it's the increased

exposure to varieties of foods at an earlier age. My theory is a

combination of all 3. Check the labels of the high-end baby

products - many of them have peanut oil in them. Tide reportedly

USED to use ground peanut shells in their powdered detergent to give

it loft. I give them credit (if it's true) for being " green " but

even now with the better labeling laws, they need not report it.

Did you know that aquafresh toothpaste is not ok for peanut allergic

folks? And dog biscuits? And the list goes on...

Did you know that one of the fastest growing food allergies

internationally is to sesame seeds - particularly in Asia? There

must be some clues there.

As for whether or not " our kids " with neuro-dev issues are more at

risk, I believe they are. I belong to lots of lists and there's

always a handful of us with kids with anaphylactic food responses.

The ratio is too high for it to be a coincidence. Also, when I told

my allergist's office that my son had special needs before coming

in, they told me that a really high ratio of their patients are SN.

My son who is allergic to peanuts has a communication disorder - not

apraxia (that's my older son). Talk about vulnerable. We can't

even explain it to him so he can self-regulate his own food because

all he knows is that " peanuts will make me sick " - he doesn't have

the understanding (yet) for us to go into detail. Nor could he tell

me that his throat felt itchy or weird or anything for years. It

was and remains very scary.

Food allergies are nothing to mess with or downplay. A few signs to

watch out for:

1. excema as an infant

2. frequent vomiting - particularly in restaurants as they get

older. We left more restaurants in shame than I can tell you.

unexplained hives

3. kids complaining that they " don't like " entire categories of

foods. They know how it makes them feel.

4. Odd breathing patterns. I had my son in to several specialists

at our local children's hospital - they even scoped him - because he

had strange breathing patterns as an infant. Later, we took him to

the ER 2x for hyperventilating for no reason. We were told that it

was because there was alot going on at our house (it was 2 days

before xmas). NOooooooooooooooooooooo - it was because he had eaten

cookies my mom had made with traces of peanuts in them. He was

having difficulty breathing. No one caught it.

5. having a family history of allergies - any allergies. Though

it's known that food allergies run in families, it is also known

that genetically, you pass on the gene to have an allergic

response. WHAT you are allergic to is all based on exposure. So,

you're allergic to ragweed...what will your child be allergic to?

6. an interesting question on allergist's questionaires: are there

any incidents of unexplained infant/child mortality in your

families? Sure enough, my grandmother had 12 children. 1 of them

died from influenza, 3 live now, and the rest died as infants or in

early childhood. None of them made it past 4, and most made it only

to 1 or 2. My father - her 5th child - has a bizarre reaction to

tree nuts - mostly walnuts - but his developed later in life.

How did we finally learn? He pulled a peanut butter sandwich (his

2nd) apart and put it on his face. His eyes swelled shut and his

lips blew up. My husband called the doctor's office and I gave him

a HUGE dose of benedryl out of instinct. It saved his life.

Don't mess with food allergies. It's a HELL of alot easier to keep

them away from shrimp and PB & Js until they're 5 than it is to spend

the rest of their lives grilling waitresses and fighting schools for

proper accomodations. Believe me.

> >

> > I'm not debating that food allergies are on the rise -they could

> > have gone from 1% of the population up a few points -but they

are

> > still rare. I do know that in all the years that my children

have

> > been in school -including preschool -there's only been one child

> > that has been in my one son Dakota's kindergarten class with a

> > severe food allergy to nuts which all of the parents in the

class

> > were made aware of so that we didn't send any foods into the

school

> > with nuts. (Dakota is now in 7th)

> >

> > Tanner in 1st grade had a child in his class who had severe

> > allergies to bee stings and she needed to have an epipen with

her

> at

> > all times -but not sure if that counts in food allergies.

(Tanner

> is

> > now in 4th)

> >

> > By the US food and drug administration food allergies are

> considered

> > to be " rare but risky "

> > " true food allergies affect a relatively small percentage of

> people:

> > Experts estimate that only 2 percent of adults, and from 2 to 8

> > percent of children, are truly allergic to certain foods. "

> >

http://www.cfsan.fda.gov/~dms/wh-alrg1.html

[Guest guest]

I know how you feel, it's that over whelmed feeling of " God, what

next!? " . My son also starting getting " bumps " on his chest around

your son's age. Not itchy, just small red bumps I remember because

27 months was when we got the neuro's diagnosis. The pediatrician

gave us cream but nothing really helped. I had not changed anything

that I could think of but had started supplements. It turned out to

be that he " develops " allergies to laundry detergents if I use them

for too long or if I buy one that has anything in it that he is

sensitive to. Now I rotate between the brands that health food

stores carry, no dyes, etc. I also do not give him bubble baths. I

found that ES bathes helped (with many things actually!) and to be

careful about feeding him food with colorants. Turns out that

allergies have thresholds, at least that's what my MD told me, and

one thing may not display a rash or other reaction but a couple of

sensitivities happening together push him over the limit and he'll

get bumps on his torso. It happens even if nothing really has

changed. More like a combination of things together!

My son's reactions to foods, supplements, etc has been a puzzle and

I've thought many, many times I sure wish I could hook him up to a

computer and run off a print out saying; feed this food but not this

one, use this much of this supplement but not this one, etc. etc.

etc.! Jeez, do I wish!

I hope it helps to know someone else has had a similar experience.

Please don't hesitate to contact me if you want to talk in more

detail.

McCann

P.S. I also believe that if the reaction is non dangerous then it's

worth putting up with for the benefits. Plus I have read that some

people believe that toxins LEAVING the body can display red bumps

and other negative appearing reactions. Just more things to

research!

>

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

[Guest guest]

Do the red bumps disappear when you press on them? Does your

pediatrician think they are petechiae??? This is probably the only

thing I would worry about. Bruising as a sign of vit E effect from

vitamin E (which you shouldn't see at the dose you are using). But

ironically ph had chronic petechiae (red dots on his chest that

would eventually fade to be replaced by more of them)...but they

have gone away on vit E supplements. Petechiae is usually a sign of

platelet problems (which prevent bleeding). Vit E is actually pretty

important for normal platelet function.

But not having seen the rash...I have no idea. It could be totally

unrelated to the supplements. Many childhood rashes are the result

of viruses. It could also be allergic to new clothes, detergent or

soap etc. Is your pediatrician concerned? If the child is happy and

not bothered by it, and its not bruising or petechiae...I wouldn't

worry about it too much. -claudia

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

[Guest guest]

I know how you feel, it's that over whelmed feeling of " God, what

next!? " . My son also starting getting " bumps " on his chest around

your son's age. Not itchy, just small red bumps I remember because

27 months was when we got the neuro's diagnosis. The pediatrician

gave us cream but nothing really helped. I had not changed anything

that I could think of but had started supplements. It turned out to

be that he " develops " allergies to laundry detergents if I use them

for too long or if I buy one that has anything in it that he is

sensitive to. Now I rotate between the brands that health food

stores carry, no dyes, etc. I also do not give him bubble baths. I

found that ES bathes helped (with many things actually!) and to be

careful about feeding him food with colorants. Turns out that

allergies have thresholds, at least that's what my MD told me, and

one thing may not display a rash or other reaction but a couple of

sensitivities happening together push him over the limit and he'll

get bumps on his torso. It happens even if nothing really has

changed. More like a combination of things together!

My son's reactions to foods, supplements, etc has been a puzzle and

I've thought many, many times I sure wish I could hook him up to a

computer and run off a print out saying; feed this food but not this

one, use this much of this supplement but not this one, etc. etc.

etc.! Jeez, do I wish!

I hope it helps to know someone else has had a similar experience.

Please don't hesitate to contact me if you want to talk in more

detail.

McCann

P.S. I also believe that if the reaction is non dangerous then it's

worth putting up with for the benefits. Plus I have read that some

people believe that toxins LEAVING the body can display red bumps

and other negative appearing reactions. Just more things to

research!

>

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

[Guest guest]

Do the red bumps disappear when you press on them? Does your

pediatrician think they are petechiae??? This is probably the only

thing I would worry about. Bruising as a sign of vit E effect from

vitamin E (which you shouldn't see at the dose you are using). But

ironically ph had chronic petechiae (red dots on his chest that

would eventually fade to be replaced by more of them)...but they

have gone away on vit E supplements. Petechiae is usually a sign of

platelet problems (which prevent bleeding). Vit E is actually pretty

important for normal platelet function.

But not having seen the rash...I have no idea. It could be totally

unrelated to the supplements. Many childhood rashes are the result

of viruses. It could also be allergic to new clothes, detergent or

soap etc. Is your pediatrician concerned? If the child is happy and

not bothered by it, and its not bruising or petechiae...I wouldn't

worry about it too much. -claudia

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

[Guest guest]

Could it be an allergy to soy? I've been doing some research on soy allergy

and it sounds like this could possibly be a symptom, i don't know. Just

trying to be helpful. Here is a quote from one website. Symptoms of soy

allergy

- The reported symptoms of soy allergy include: acne, angioedema, rhinitis,

anaphylaxis, asthma, atopic dermatitis, bronchospasm, cankers, colitis,

conjunctivitis, diarrhea, diffuse small bowel disease, dyspnea, eczema,

enterocolitis, fever, hypotension, itching, laryngeal edema, lethargy,

pollinosis,

urticaria, vomiting, and wheezing.

_Soy allergy_ (http://www.soya.be/soy-allergy.php)

It also said, soybean oil, which does not contain soy proteins, does

normally not produce soy allergy.

I think my son might have an allergy to soy so that is why I have been

researching this.

[Guest guest]

Could it be an allergy to soy? I've been doing some research on soy allergy

and it sounds like this could possibly be a symptom, i don't know. Just

trying to be helpful. Here is a quote from one website. Symptoms of soy

allergy

- The reported symptoms of soy allergy include: acne, angioedema, rhinitis,

anaphylaxis, asthma, atopic dermatitis, bronchospasm, cankers, colitis,

conjunctivitis, diarrhea, diffuse small bowel disease, dyspnea, eczema,

enterocolitis, fever, hypotension, itching, laryngeal edema, lethargy,

pollinosis,

urticaria, vomiting, and wheezing.

_Soy allergy_ (http://www.soya.be/soy-allergy.php)

It also said, soybean oil, which does not contain soy proteins, does

normally not produce soy allergy.

I think my son might have an allergy to soy so that is why I have been

researching this.

[Guest guest]

, just to update you on our little guy's red bumps, since I did ask your

help with them. After all this time, they are still coming and going. We saw

the pediatrician again, and still he does not know what they are. They are not

petechiae and there is no bruising. And the pediatrician says not to worry

about them. Easier said than done, but like you said, since our son is

otherwise happy and not bothered by it, mostly we are just observing them and

hoping they will eventually disappear.

Thank you so much, , for taking the time to answer my earlier query about

the red bumps. I wanted to wait until after that next appointment to answer

your question about whether they are petechiae. I thought not at the time but

wanted to be sure before I replied to this.

So again, thank you so very, very much.

Suzanne

[ ] Re: Vitamin E

Do the red bumps disappear when you press on them? Does your

pediatrician think they are petechiae??? This is probably the only

thing I would worry about. Bruising as a sign of vit E effect from

vitamin E (which you shouldn't see at the dose you are using). But

ironically ph had chronic petechiae (red dots on his chest that

would eventually fade to be replaced by more of them)...but they

have gone away on vit E supplements. Petechiae is usually a sign of

platelet problems (which prevent bleeding). Vit E is actually pretty

important for normal platelet function.

But not having seen the rash...I have no idea. It could be totally

unrelated to the supplements. Many childhood rashes are the result

of viruses. It could also be allergic to new clothes, detergent or

soap etc. Is your pediatrician concerned? If the child is happy and

not bothered by it, and its not bruising or petechiae... I wouldn't

worry about it too much. -claudia

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

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[Guest guest]

Ann,

My response is not exactly aimed at you, but rather I came to the site

today wanting to post about my daughter's 4-year checkup and your post

kind of deals with the same issue.

I am so frustrated with the majority of the medical community and the

lack of open-mindedness about nutritional supplements! I say majority

because of course there are some doctors out there who are okay with

supplements, but I'd say that most are completely clueless about them

and misinform parents based on their general bias against

supplements.

My daughter Meg had her 4-year checkup today, and her doctor

is " concerned " that I have her on the fish oil (I lied and said she

only takes one a day because he probably would've had me arrested on

abuse charges if I had told him the truth) vitamin C and vitamin E.

Fish oil, he said, causes bleeding problems in some adults and no one

knows if they're safe for kids (are you kidding me? they are

IMPORTANT for kids and SO BENEFICIAL for most adults!). In regards to

Vitamin C, he is concerned that her dose of 500 mg per day will give

her kidney stones (but unconcerned that it's important for the immune

system). When he heard I have her on Vitamin E he couldn't believe I

would purposely overdose my daughter on this " very tricky " substance.

I should make sure that my daughter is not exceding the RDA for

vitamins, he said.

Give me a break! The RDA for trans fats is 0 but he never questioned

me about that. And what's the RDA for thimerasol? Hmm...also zero

but he wanted to shoot it into her arm today. Why are many doctors

concerned about the good stuff but not the bad? Does he realize that

the RDAs for C and E are to prevent deficiency diseases, not for

optimal health?

My problem is not that her doctor obviously knows nothing about these

supplements, but rather that he is spouting off misinformation like he

has a degree in the subject. And most people trust everything their

doctors say 100%, so whatever the pediatricians are saying is the

majority opinion of the entire community, resulting in a general

climate where parents are constantly on the defensive for trying to

use supplements (or trying to refuse the toxins in immunizations).

I'm very sorry to have used your post as a rant for myself, Ann.

What I wanted to tell you is that it seems good that your doctor will

want to look at some research to be on the safe side. But if whatever

you get for her never seems to be enough, you may just realize that

you're forced to go behind her back and supplement anyway. In my

case, it's resulted in a complete recovery from moderate apraxia

w/fine motor and sensory problems for my daughter in about 1 year, and

so far no adverse side effects.

Sorry again for being so long-winded,

Kerri

>

> Until reading the posts on this board, I had not heard anything about

> the benefits of Vitamin E. I plan to talk to our pediatrician about

> this. I know before she approves us giving our 4 yr old this

> supplement, she's going to want to see research or some other

> " official " literature about this. Does anyone have this research or

> other literature about Vitamin E and apraxia or know where I could

> find it?

>

> Thanks,

> Ann

>

[Guest guest]

Kerri,

Thanks for the post...I think we all need a place where we can rant!

It's also nice to know that we all have the same problems/concerns

with pediatricians...maybe we can learn from each other in how to deal

with them!

I'm fortunate that my pediatrician is fairly open-minded...at least

she was about the fish oil. She read the research I gave her on that

and actually did some research of her own. Her philosophy is " first,

do no harm. " I feel, though, that Vitamin E is a little different,

and just want to have some " proof " that it will do no harm, and may

actually help my daughter. I work with adult heart patients and I

know that recently there has been conflicting info about how much is

too much, etc. (I agree with your statement on trans fats!)

Did you ever have your daughter tested for a vitamin E deficiency?

Thanks,

Ann

>

> Ann,

>

> My response is not exactly aimed at you, but rather I came to the site

> today wanting to post about my daughter's 4-year checkup and your post

> kind of deals with the same issue.

>

> I am so frustrated with the majority of the medical community and the

> lack of open-mindedness about nutritional supplements! I say majority

> because of course there are some doctors out there who are okay with

> supplements, but I'd say that most are completely clueless about them

> and misinform parents based on their general bias against

> supplements.

>

> My daughter Meg had her 4-year checkup today, and her doctor

> is " concerned " that I have her on the fish oil (I lied and said she

> only takes one a day because he probably would've had me arrested on

> abuse charges if I had told him the truth) vitamin C and vitamin E.

> Fish oil, he said, causes bleeding problems in some adults and no one

> knows if they're safe for kids (are you kidding me? they are

> IMPORTANT for kids and SO BENEFICIAL for most adults!). In regards to

> Vitamin C, he is concerned that her dose of 500 mg per day will give

> her kidney stones (but unconcerned that it's important for the immune

> system). When he heard I have her on Vitamin E he couldn't believe I

> would purposely overdose my daughter on this " very tricky " substance.

> I should make sure that my daughter is not exceding the RDA for

> vitamins, he said.

>

> Give me a break! The RDA for trans fats is 0 but he never questioned

> me about that. And what's the RDA for thimerasol? Hmm...also zero

> but he wanted to shoot it into her arm today. Why are many doctors

> concerned about the good stuff but not the bad? Does he realize that

> the RDAs for C and E are to prevent deficiency diseases, not for

> optimal health?

[Guest guest]

HEY, GEORGE;

I TOO HAVEN'T POSTED FOR SOME TIME, I THINK THERE IS TOO MUCH REPITITION, I GOT

BORED. BUT, YOU SAY YOUR TAKING VITA. E ! WHAT IS IT DOING FOR YOU? AND HOW

MUCH DO YOU TAKE A DAY?

MY CMT IS GETTING INTO MY HAND, RIGHT HAND. IT HURTS SOMETHING AWFUL, JUST

BLOWING A BREATH ACROSSED THE FLESH, EXCITES PAIN. 2 FINGERS ARE FEELING LIKE

THEY ARE DEHYDRATED, THEY ARE DRYING UP AND STIFFINING UP. FOR PAIN, I TAKE

NEUROTIN 3 X'S A DAY @ 1200 MG; PLUS 800MG OF IBUPROPEN 3X'S A DAY; AND

VICODINE ONLY AT BEDTIME.

WHAT DOES VITA E, DO FOR YOU? PLEASE ADVISE.

DENNIS

glw8479 <glw8479@...> wrote:

I haven't posted for quite awhile. Life has been busy and rewarding,

just wanted to say Thanks to Gretchen especially and everyone who

shares here. is my #1 source for CMT info.

Both my daughters were married this summer. So now I've got 2 great

sons (in-law) who enjoy the beach and volleyball as much as I do.

Both daughters are also now established in their careers, but still

find time to 'look in' on Dad. My girls are still asymtomatic for

CMT X, which is what I have.

Business had me traveling earlier in the year to parts of Asia, and

then just recently this Fall I did some pleasure travel in Costa

Rica, the Galapagos and Peru.

CMT is not slowing me down, I have been taking Vitamin E, as

Gretchen does, and still find time for work, pleasure and rest.

Welcome to all the Los Angeles people with CMT too. I live in

Malibu, which is still part of LA. It would be great to all meet up

sometime.

---------------------------------

Access over 1 million songs - Music Unlimited.

[Guest guest]

Dennis,

Vitamin E was suggested to me by a MD about 15 years ago, for cell

and nerve growth, also blood flow into muscle tissue. I've been

taking 1000 IU every morning. I have no pain, sometimes I wonder if

it is because of Vitamin E (having read the research on it) or

because I am just one of those people with CMT that doesn't have

pain. I was diagnosed with CMT as a kid, so have had quite a bit of

time to get to know my body's needs and listen to them. I think

Gretchen has a Vitamin E File at .

Yes, I know, sometimes the subjects are 'repeated' but new people

have questions, and not all will take the time to search the

archives or read past posts.

Don't give up.

I am grateful today for everything; even CMT. It kept me out of

being drafted and going to Vietnam where so many of my buddies

perished. To all of you out there with CMT who did serve in our

armed forces, my kind regards and thanks to you all.

[Guest guest]

Hey ,

Thanks for the follow-up about Vitamin E. I was going to ask you

more about this as well. I ake Vitamin C right now, but never knew

it helped w/ CMT until now. I just take it. *smile*

Anywho, I'm curious, how old were you when u wer diagnosed w/ CMT? I was nine.

I agree with what u stated, we learn how to listen to our bodies more when

diagnosed at a young age. The pain I experience is from my hip (fractured in

2002). I never truly experience pain I believe from CMT. When it gets cold, my

hands get very numb and hurt, causing me to lose function for a while.

I think you stated u live in Malibu?? I love driving up the coast.

An L.A. get together on day might be cool. Have a great day!

Denedria *smile*

[Guest guest]

VITAMIN E Antioxidant which helps prevent cancer and heart disease. Prevents cell damage. Reduces blood pressure and promotes healthy skin and hair. HERBAL SOURCES: Alfalfa, bladder wrack, dandelion, dong quai, flaxseed, nettle, oat straw, raspberry leaf, rose hips. Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats

Everyone is raving about the all-new beta.

[Guest guest]

I don't know anything about creatinine, but as far as E, my doc just said about

my 30 lb son that 1600 IU Is totally safe. She did recommend that we give him

some K to prevent too much thinning.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 944-7891

Available Nov. 1st download your free StoryBook software at

www.mycmsite.com/mandyknapp

Action Code 27169225

your life | your story | your way

[ ] Vitamin E

I have another question for you vitamin E pro's. My daughters tone

improved dramatically with 400 iu of vitamin E. The only problem is

her pediatrician doesn't agree with supplements. I am in the process

of finding a new one, but in the mean time I have to come to you guys.

My daughter is 2yo and 24lbs. Would you stick with 400iu's or should I

up it to 600 or 800 or even more. Not only has her tone improved, but

her balance is also improving all withing one week. (she is also on

2pro EFA and 1pro EPA). Thanks again

Also I was looking back at some of her blood tests awhile ago and her

creatinine syrum is really low. It is around .3 and average is 0.8 to

1.4 mg/dl. Everytime I mention this to her docs they just say her

kidneys are very good, but it looks like it has alot to do with muscle

tone. Should I buy a supplement on my own?

Thanks again

[Guest guest]

do a search on and her recommendations about E. She says keep going up.

I think the max is 1600 before adding K to prevent blood thinning too much.

We are doing larger amounts for my almost 2 year old 24 pound and we have seen

only benefits. Her speech surge and sensory improvements were markedly

noticeable to her team of two ST's and one OT.

Brigett

<mom2raegan_baylee@...> wrote:

I have another question for you vitamin E pro's. My daughters tone

improved dramatically with 400 iu of vitamin E. The only problem is

her pediatrician doesn't agree with supplements. I am in the process

of finding a new one, but in the mean time I have to come to you guys.

My daughter is 2yo and 24lbs. Would you stick with 400iu's or should I

up it to 600 or 800 or even more. Not only has her tone improved, but

her balance is also improving all withing one week. (she is also on

2pro EFA and 1pro EPA). Thanks again

Also I was looking back at some of her blood tests awhile ago and her

creatinine syrum is really low. It is around .3 and average is 0.8 to

1.4 mg/dl. Everytime I mention this to her docs they just say her

kidneys are very good, but it looks like it has alot to do with muscle

tone. Should I buy a supplement on my own?

Thanks again

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

I wouldn't worry about the creatinine...it is a test for kidney

function...and low is good...high is bad.

Did you get carnitine level checked? You can double (or triple) your

dose of fish oil, and with those increases...go up on the vit E. If

you are seeing improvements in a week...you are in for a pleasant

experience of the next few weeks on higher doses. -

> I don't know anything about creatinine, but as far as E, my doc

just said about my 30 lb son that 1600 IU Is totally safe. She did

recommend that we give him some K to prevent too much thinning.

> Mandy Knapp

> Creative Memories Unit Leader

> (847) 245-4133

> (224) 944-7891

> Available Nov. 1st download your free StoryBook software at

www.mycmsite.com/mandyknapp

> Action Code 27169225

>

> your life | your story | your way

> [ ] Vitamin E

>

>

> I have another question for you vitamin E pro's. My daughters

tone

> improved dramatically with 400 iu of vitamin E. The only problem

is

> her pediatrician doesn't agree with supplements. I am in the

process

> of finding a new one, but in the mean time I have to come to you

guys.

> My daughter is 2yo and 24lbs. Would you stick with 400iu's or

should I

> up it to 600 or 800 or even more. Not only has her tone improved,

but

> her balance is also improving all withing one week. (she is also

on

> 2pro EFA and 1pro EPA). Thanks again

>

> Also I was looking back at some of her blood tests awhile ago and

her

> creatinine syrum is really low. It is around .3 and average is

0.8 to

> 1.4 mg/dl. Everytime I mention this to her docs they just say her

> kidneys are very good, but it looks like it has alot to do with

muscle

> tone. Should I buy a supplement on my own?

>

> Thanks again

>

>

>

>

>

>

>

[Guest guest]

As I've stated before...the research dose not yet exist. This is a new

discovery that occurred this past summer, quite by accident. You can

check the archives for the details. Yes, there NEEDS to be a study,

and with a little luck there will be one in the next few years. this

doesn't seem to be a " vit E deficiency " as much as some abnormal

processing of vit E. The symptoms of apraxia overlap those of a vit E

deficiency...and those are the symptoms (speech, coordination, sensory

issues, pain perception, muscle tone)...that improve on vit E + fish

oil. In the meantime over 75 families have posted improvements since

I posted my son's story in August. It seems to work for many children

with apraxia. But since there is not literature to support this, just a

growing number of anecdotal stories...everyone needs to make a decision

for themselves. But vit E is safe in the doses we have discussed here.

Motrin also causes bleeding, and tylenol causes liver damage over

time...yet they are taken with little thought to complications. An in

general...they are safe for the masses. There is no guarentee that

there won't be someone out there that may have an adverse event. But in

general...many medications given to our children are not tested for

children, and everything medication has the potential for adverse

events. My son was put on reglan for severe reflux and the neurological

adverse events he experienced as a result were sufficient enough for me

to never perscribe the drug to another child again, since there are

better alternatives. There have been several deaths from the use of

over the counter cold medicines in children (actually a practice I

don't recommend - I can't tell you how many unhappy families I have

worked with that get upset when I refuse to write a perscription for

cold medicines - which don't really work, anyway). Perscriptions for

ritalin are commonplace...yet eyebrows are raised at using fish oil for

ADHD. (This is not to say there isn't a place for ritalin...it too has

normalize the lives of many children with ADHD who really benefit from

this intervention).

It is a good thing for your pediatricians to question a treatment plan

that is not yet studied in children. But if someone does there

homework, and actually spends some time looking up the side effects of

vit E etc...they will find like I did, that the " dangers " are a myth.

Fortunately vit E and fish oil is very safe. But for us...it has become

an essential treatment plan for my son...the alternative being a return

of the apraxia - which we just saw with his stomach flu after just 2

days off supplements. Now that we've seen what he is like without this

disability...we will never go back. -claudia

-------------------------------

> Until reading the posts on this board, I had not heard anything about

> the benefits of Vitamin E. I plan to talk to our pediatrician about

> this. I know before she approves us giving our 4 yr old this

> supplement, she's going to want to see research or some other

> " official " literature about this. Does anyone have this research or

> other literature about Vitamin E and apraxia or know where I could

> find it?

>

> Thanks,

> Ann

>

[Guest guest]

>

>

>

> Do the red bumps disappear when you press on them? Does your

>

> pediatrician think they are petechiae??? This is probably the only

>

> thing I would worry about. Bruising as a sign of vit E effect from

>

> vitamin E (which you shouldn't see at the dose you are using). But

>

> ironically ph had chronic petechiae (red dots on his chest that

>

> would eventually fade to be replaced by more of them)...but they

>

> have gone away on vit E supplements. Petechiae is usually a sign of

>

> platelet problems (which prevent bleeding). Vit E is actually

pretty

>

> important for normal platelet function.

>

>

>

> But not having seen the rash...I have no idea. It could be totally

>

> unrelated to the supplements. Many childhood rashes are the result

>

> of viruses. It could also be allergic to new clothes, detergent or

>

> soap etc. Is your pediatrician concerned? If the child is happy

and

>

> not bothered by it, and its not bruising or petechiae... I wouldn't

>

> worry about it too much. -claudia

>

> > Having been evaluated as having several verbal and oral apraxia in

>

> > July, we started our son (who is 27 months old now) a few weeks

>

> later

>

> > on ProEFA and then three weeks after that began Vitamin E 400 IU

>

> with

>

> > 300 mg gamma. All this is, of course, thanks to this wonderful

>

> group

>

> > and all the invaluable information you provide.

>

> >

>

> > Then all of a sudden, we were surprised to see some red bumps,

like

>

> > pimples,I guess, on his chest. And you know how it goes, you get

>

> that

>

> > awful lump in your throat and you are thinking, oh, no, what

next.

>

> > This started about 6 weeks after we first began the ProEFA and

>

> about

>

> > 2½ weeks after starting him on Vitamin E. The bumps began to

fade,

>

> > and we thought that was the end of it and were so relieved. Then

>

> more

>

> > started to appear in different areas of his chest. They, too,

>

> began

>

> > to fade until it looked again like this was clearing up. Now with

>

> > most of the earlier bumps gone, he is getting a few more again.

>

> >

>

> > They don't itch. They aren't hives—his pediatrician doesn't know

>

> what

>

> > is causing them. They don't burst.

>

> >

>

> > We can't imagine what is causing them. The only new things in his

>

> > life are the ProEFA and the Vitamin E, so naturally we are

>

> wondering

>

> > if it could be related to one of those. Since we doubled the

>

> ProEFA 2

>

> > weeks ago and didn't see any increase in the bumps, we are kind of

>

> > thinking it must not be the ProEFA.

>

> >

>

> > I know you are so busy, , but with all your expertise on

>

> > Vitamin E, I am wondering if you know of any side effects or

>

> > conditions caused by Vitamin E, either too much or too little,

that

>

> > sound anything at all like this. He hasn't been on it all that

>

> long.

>

> > I wonder, also, if it could be due to some other ingredient in

the

>

> > Vitamin E.

>

> >

>

> > Strange symptoms of something, and it is so worrisome, as the

bumps

>

> > shouldn't be there. And strange that they come and go. I worry

>

> that

>

> > they are a sign of something else going wrong somewhere in his

>

> little

>

> > body. I have to admit that when I saw those first bumps, trying

to

>

> > figure out what in the world they could be, that I even wondered

>

> if it

>

> > might be chickenpox. This all started about 2½ weeks ago.

>

> >

>

> > Has anyone else had anything like this happen? With all that

>

> > knowledge in this group I'm hoping that maybe someone has some

>

> ideas

>

> > about this.

>

> >

>

> > I know this sounds so weird. I wish the bumps would just go

>

> away. I

>

> > didn't want to bother anyone with this problem. I know it is so

>

> > trivial compared to the many real problems that our kids have.

But

>

> > they keep coming back, and they do worry me, so I finally had to

>

> post

>

> > this to see if anyone has any answers.

>

> >

>

> > Thanks so much for your help.

>

> > Suzanne

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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[Guest guest]

> >

> > Having been evaluated as having several verbal and oral apraxia in

> > July, we started our son (who is 27 months old now) a few weeks

> later

> > on ProEFA and then three weeks after that began Vitamin E 400 IU

> with

> > 300 mg gamma. All this is, of course, thanks to this wonderful

> group

> > and all the invaluable information you provide.

> >

> > Then all of a sudden, we were surprised to see some red bumps,

like

> > pimples,I guess, on his chest. And you know how it goes, you get

> that

> > awful lump in your throat and you are thinking, oh, no, what

next.

> > This started about 6 weeks after we first began the ProEFA and

> about

> > 2½ weeks after starting him on Vitamin E. The bumps began to

fade,

> > and we thought that was the end of it and were so relieved. Then

> more

> > started to appear in different areas of his chest. They, too,

> began

> > to fade until it looked again like this was clearing up. Now with

> > most of the earlier bumps gone, he is getting a few more again.

> >

> > They don't itch. They aren't hives—his pediatrician doesn't know

> what

> > is causing them. They don't burst.

> >

> > We can't imagine what is causing them. The only new things in his

> > life are the ProEFA and the Vitamin E, so naturally we are

> wondering

> > if it could be related to one of those. Since we doubled the

> ProEFA 2

> > weeks ago and didn't see any increase in the bumps, we are kind of

> > thinking it must not be the ProEFA.

> >

> > I know you are so busy, , but with all your expertise on

> > Vitamin E, I am wondering if you know of any side effects or

> > conditions caused by Vitamin E, either too much or too little,

that

> > sound anything at all like this. He hasn't been on it all that

> long.

> > I wonder, also, if it could be due to some other ingredient in

the

> > Vitamin E.

> >

> > Strange symptoms of something, and it is so worrisome, as the

bumps

> > shouldn't be there. And strange that they come and go. I worry

> that

> > they are a sign of something else going wrong somewhere in his

> little

> > body. I have to admit that when I saw those first bumps, trying

to

> > figure out what in the world they could be, that I even wondered

> if it

> > might be chickenpox. This all started about 2½ weeks ago.

> >

> > Has anyone else had anything like this happen? With all that

> > knowledge in this group I'm hoping that maybe someone has some

> ideas

> > about this.

> >

> > I know this sounds so weird. I wish the bumps would just go

> away. I

> > didn't want to bother anyone with this problem. I know it is so

> > trivial compared to the many real problems that our kids have.

But

> > they keep coming back, and they do worry me, so I finally had to

> post

> > this to see if anyone has any answers.

> >

> > Thanks so much for your help.

> > Suzanne

> >

>