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Thanks Andy:

I'm giving the Vitamin E separately in the morning with Depakote (400 IU) But

always nice to know I'm doing something right!!!

tina

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I have been using Vitamin E daily for a couple of years now; unfortunately,

it doesn't seem to have any effect on my muscular soreness which is a large

component of the presentation of my CMT.

P.

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I know that 30IU is generally thought to be 100% of the DV for

children 4+ and adults. I also know that my doctor recommended that

I take between 800 and 1200 mg a day for fibroid inflamation in my

breasts, which I did, with no side effects. I'm not certain what

an " overdose " would be considered...

Call a pharmacist - they have great answers to stuff like this.

Marina

> Does anyone know what the recomeended daily allowance is for

Vitamin

> E. I know it is in both carnosine and Pro-efa and I was wondering

if

> someone could get too much Vitamin E or it is like vitamin C which

I

> believe the body only uses what it needs.

>

> Thanks.

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Vitamin E is fat soluble and can be toxic if too much builds up in

the body. However, according to my nutrition text book, Vitamin E

toxicity is not as detrimental as vitamin A or D toxicity. Symptoms

of toxicity with taking 600 mg per day include GI disturbance and

interference with anticoagulant drugs. Many people feel that the RDA

of 30 mg (for ages 4 and up) is conservative and many doctors

recommend amounts in excess of it to their patients for specific

problems. According to my text book, Vitamin E deficiency is rare

and is usually associated with diseases of fat malabsorption such as

cystic fibrosis. Hope this helps.

>Does anyone know what the recomeended daily allowance is for Vitamin

>E. I know it is in both carnosine and Pro-efa and I was wondering if

>someone could get too much Vitamin E or it is like vitamin C which I

>believe the body only uses what it needs.

>

>Thanks.

>

--

, mom to , age 10, verbal dyspraxia

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>Am I reading this wrong or is this contradictory? The first sentence says

>that the response to Vitamin E was inconsistent when taken with a plain

>wheat cereal. Then they say it proved a huge and consistent increase in

>bioavailabilitty when taken with a grain cereal.

Seems to say that if the Vit E is IN the cereal it is absorbed

better than if it is taken in a pill with the cereal.

Which makes sense ... vitamins are always better if they

are part of the food. Which is a good argument for

getting your Vit E from fats where they are usually found.

(And I won't even mention the issue of eating

wheat cereal, and having a high-carb low-fat breakfast ...).

-- Heidi

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Thanks, Heidi,

I was thinking of it as Vitamin E added to the wheat cereal.

I'm with you on where to get your E. In the fats where it comes naturally.

Judith Alta

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Muff,

I am not sure about vitamin E but I could call my Dr and ask. Didn't your Dr give you a list or anything? I know mine said no aspirin or aspriin containing cold and cough medications.

Maybe someone else here knows for sure.

homefreemuff <homefreemuff@...> wrote:

SHOULD I STOP VITAMIN E BEFORE SURGERY?MUFF

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Hi,

I just had mine removed two weeks ago and was told not to take vitamin E two weeks before surgery. I was also told not to have any protein drinks which surprised me. Also no alleve or any of the normal over the counter drugs that they tell you to stop before surgery.

Beth S.homefreemuff <homefreemuff@...> wrote:

SHOULD I STOP VITAMIN E BEFORE SURGERY?MUFF

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Gretchen,

It is all true. They are so much junk and tactics on the net, unbelievable! Hard

sometimes to find who is right there! Well, I will take it anyway! I do not

believe in that article, but i will ask my doctor just in case to find out what

he would say to me. I feel I want to try because I really want to feel better

in myself! I will let you know anyway. Thanks Gretchen, for all your insight!

Joana

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>Don't worry about the other forms of tocophorol that might be in the

mix. Often you are getting a mix, since it is really hard to separate

them out. (Most come from soy bean or rice). Focus on the alpha

component (at least 400 IU) ...and nice to get some gamma too (like

200-300 mg/day).

> Do I get the Vitamin E that says it has mixed tocophorols? I know it

> needs to have the alpha and the gamma but all of them I have found

> says they have the beta and something else also? I don't know why

> this has to be so confusing! Any help would be appreciated!

>

> Thanks

> Wendi

>

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>Don't worry about the other forms of tocophorol that might be in the

mix. Often you are getting a mix, since it is really hard to separate

them out. (Most come from soy bean or rice). Focus on the alpha

component (at least 400 IU) ...and nice to get some gamma too (like

200-300 mg/day).

> Do I get the Vitamin E that says it has mixed tocophorols? I know it

> needs to have the alpha and the gamma but all of them I have found

> says they have the beta and something else also? I don't know why

> this has to be so confusing! Any help would be appreciated!

>

> Thanks

> Wendi

>

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We saw changes within 48 hours on vit E. (We saw improvement on fish

oil too, but nothing like this). At first I also thought it was

wishful thinking...I so wanted to be right about this. But over the

course of the next week and then weeks - he just blew us away.

Within a week it was so obvious that we had a different child on our

hands - and the OT called to see what was up, since he could now do

things with ease we had worked months on with little progress. Enjoy

the ride. -

> I have had Gavin (my 3yo apraxic son) on 2 Omega 3-6-9 and 1 EPA

per day for about a month. I have noticed improvements in his

vocalizations. He still has very few words, but is making sounds and

actually trying to communicate with me by showing me what he wants

to get his point across. I was going to increase the fish oil

starting on Friday, but then decided to give Vitamin E a try. I was

at the grocery store, of all places, and just happened to go through

the pharmacy when I thought I would look for natural vitamin E. I

found one that was natural, checked the label, and it was d-alpha

and not dl-alpha so I got it. It also happened to be 50% off! WOO

HOO!

>

> Now I am pretty sure this isn't wishful thinking. I just started

him on it yesterday evening. Today, he showed me that he needed to

use the toilet (a first). He put his finger over his lips to tell me

to " shh " because his toy kitty was sleeping. He asked me for

more " yum yums " (children's dha...he loves them, so why stop when

they don't seem to be hurting anything). He asked to go " ou " which

I'm guessing means out since he's never tried to express outside. He

came up to me and very clearly said, " HI! " and then held up three

fingers and said " me " . He said " ba " for bath as I am typing this

message! Is it a coincidence? Is it the fish oils just now kicking

in? I have decreased the trans fats in all of our diets recently. Is

that the key? I don't know, but whatever it is, it's working! I'm

hoping to have more to report in the next few days.

>

> Mandy Knapp

> Creative Memories Unit Leader

> (847) 245-4133

> (224) 577-8304

> www.mycmsite.com/mandyknapp

>

> Your Life | Your Story | Your Way

>

>

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What dose of Vit E are you giving along with the fish oil?

" claudia.morris " <claudia.morris@...> wrote: We saw changes

within 48 hours on vit E. (We saw improvement on fish

oil too, but nothing like this). At first I also thought it was

wishful thinking...I so wanted to be right about this. But over the

course of the next week and then weeks - he just blew us away.

Within a week it was so obvious that we had a different child on our

hands - and the OT called to see what was up, since he could now do

things with ease we had worked months on with little progress. Enjoy

the ride. -

> I have had Gavin (my 3yo apraxic son) on 2 Omega 3-6-9 and 1 EPA

per day for about a month. I have noticed improvements in his

vocalizations. He still has very few words, but is making sounds and

actually trying to communicate with me by showing me what he wants

to get his point across. I was going to increase the fish oil

starting on Friday, but then decided to give Vitamin E a try. I was

at the grocery store, of all places, and just happened to go through

the pharmacy when I thought I would look for natural vitamin E. I

found one that was natural, checked the label, and it was d-alpha

and not dl-alpha so I got it. It also happened to be 50% off! WOO

HOO!

>

> Now I am pretty sure this isn't wishful thinking. I just started

him on it yesterday evening. Today, he showed me that he needed to

use the toilet (a first). He put his finger over his lips to tell me

to " shh " because his toy kitty was sleeping. He asked me for

more " yum yums " (children's dha...he loves them, so why stop when

they don't seem to be hurting anything). He asked to go " ou " which

I'm guessing means out since he's never tried to express outside. He

came up to me and very clearly said, " HI! " and then held up three

fingers and said " me " . He said " ba " for bath as I am typing this

message! Is it a coincidence? Is it the fish oils just now kicking

in? I have decreased the trans fats in all of our diets recently. Is

that the key? I don't know, but whatever it is, it's working! I'm

hoping to have more to report in the next few days.

>

> Mandy Knapp

> Creative Memories Unit Leader

> (847) 245-4133

> (224) 577-8304

> www.mycmsite.com/mandyknapp

>

> Your Life | Your Story | Your Way

>

>

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I'm giving just one capsul of gammaE 400 iu. I am poking it and squeezing it

in the lemonaide with the other stuff. These capsuls are not as easy to

squeeze as nordic naturals, but it does get in there.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

Re: [ ] Re: Vitamin E

What dose of Vit E are you giving along with the fish oil?

" claudia.morris " <claudia.morris@...> wrote: We saw changes

within 48 hours on vit E. (We saw improvement on fish

oil too, but nothing like this). At first I also thought it was

wishful thinking...I so wanted to be right about this. But over the

course of the next week and then weeks - he just blew us away.

Within a week it was so obvious that we had a different child on our

hands - and the OT called to see what was up, since he could now do

things with ease we had worked months on with little progress. Enjoy

the ride. -

> I have had Gavin (my 3yo apraxic son) on 2 Omega 3-6-9 and 1 EPA

per day for about a month. I have noticed improvements in his

vocalizations. He still has very few words, but is making sounds and

actually trying to communicate with me by showing me what he wants

to get his point across. I was going to increase the fish oil

starting on Friday, but then decided to give Vitamin E a try. I was

at the grocery store, of all places, and just happened to go through

the pharmacy when I thought I would look for natural vitamin E. I

found one that was natural, checked the label, and it was d-alpha

and not dl-alpha so I got it. It also happened to be 50% off! WOO

HOO!

>

> Now I am pretty sure this isn't wishful thinking. I just started

him on it yesterday evening. Today, he showed me that he needed to

use the toilet (a first). He put his finger over his lips to tell me

to " shh " because his toy kitty was sleeping. He asked me for

more " yum yums " (children's dha...he loves them, so why stop when

they don't seem to be hurting anything). He asked to go " ou " which

I'm guessing means out since he's never tried to express outside. He

came up to me and very clearly said, " HI! " and then held up three

fingers and said " me " . He said " ba " for bath as I am typing this

message! Is it a coincidence? Is it the fish oils just now kicking

in? I have decreased the trans fats in all of our diets recently. Is

that the key? I don't know, but whatever it is, it's working! I'm

hoping to have more to report in the next few days.

>

> Mandy Knapp

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Michele,

I starrted to give my son 2 gel caps a day (200 IU of the d-alpha and

d-gamma) for a total of 400 IU's a day. He is almost 5 and weighs about 41

lbs. I've not witnessesd any side effects.

Myra

" michelewasikowski "

<michelewasikowski@

.com> cc:

Sent by: Subject:

[ ] Vitamin E

@yaho

ogroups.com

09/16/2006 08:12 PM

Please respond to

I have been seeing a lot of subject lines lately in this group

regarding Vitamin E. Unfortunately, I did not get a chance to read

many, except a few today that show it has excellent benefits.

I am always ready to try something new with my son, but I wanted to

know how much to give a 45 pound almost 6 year old.

Also have there been any negative side effects? Like diaherra?

Michele

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Michele,

I starrted to give my son 2 gel caps a day (200 IU of the d-alpha and

d-gamma) for a total of 400 IU's a day. He is almost 5 and weighs about 41

lbs. I've not witnessesd any side effects.

Myra

" michelewasikowski "

<michelewasikowski@

.com> cc:

Sent by: Subject:

[ ] Vitamin E

@yaho

ogroups.com

09/16/2006 08:12 PM

Please respond to

I have been seeing a lot of subject lines lately in this group

regarding Vitamin E. Unfortunately, I did not get a chance to read

many, except a few today that show it has excellent benefits.

I am always ready to try something new with my son, but I wanted to

know how much to give a 45 pound almost 6 year old.

Also have there been any negative side effects? Like diaherra?

Michele

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I'll be interested to know what you find out. I've chosen to not

supplement with Vit. E. Somewhere, some time ago I read that you have

to be careful with it.

On 10/6/06, momstime4now <momstime4now@...> wrote:

>

>

>

>

>

>

> Having worked many years in a hospital I know how dangerous seemingly

> harmless supplements can be so when I saw all the info on Vitamin E I

> decided to talk to a couple of Pharmacists. Both of them strongly

> recommended not giving it to my six year old. They felt it could

> actually be harmful for children that young. I will be trying to find

> out more info but did want to caution others that they may want to

> look into it further as well before they give it to a child.

>

>

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I recommend checking out the NIH website. It's a government site,

so the info in it is very mainstream and conservative (I don't mean

that in the political sense, just in the sense of being careful). I

read through the vitamin E info there when I was considering whether

to supplement my 2 yr old. It actually gives information about safe

levels for babies, children and pregnant women, and it mentions

studies that raised safety concerns about E but states that the

studies were faulty and have been criticized. It's possible the

folks who are concerned about E (or the old articles you might have

read) were thinking of/based on those particular studies. I think

it's a good idea to do as much research as you can and to feel

comfortable with your decision, whatever it is. Just thought this

resource might be helpful.

> >

> >

> >

> >

> >

> >

> > Having worked many years in a hospital I know how dangerous

seemingly

> > harmless supplements can be so when I saw all the info on

Vitamin E I

> > decided to talk to a couple of Pharmacists. Both of them

strongly

> > recommended not giving it to my six year old. They felt it could

> > actually be harmful for children that young. I will be trying

to find

> > out more info but did want to caution others that they may want

to

> > look into it further as well before they give it to a child.

> >

> >

>

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Medical professionals (no offense, !) tend to be sceptical of

supplements - they are taught much more about addressing disease with

medications than preventing problems with supplements and natural

approaches. There is a huge gulf (for most vitamins) between the DV

(which is the amount assumed to prevent defiency diseases like scurvy

with vit C) and amounts that cause toxicity. I encourage you all to do

your own research and weigh the potential benefit of vitamin E against

the risk (which at such a low dose, I'm not sure of). You can always

have periodic blood tests to check levels if you are concerned.

Witholding a vitamin in which your child is deficient is harmful.

>

> Having worked many years in a hospital I know how dangerous seemingly

> harmless supplements can be so when I saw all the info on Vitamin E I

> decided to talk to a couple of Pharmacists. Both of them strongly

> recommended not giving it to my six year old. They felt it could

> actually be harmful for children that young. I will be trying to find

> out more info but did want to caution others that they may want to

> look into it further as well before they give it to a child.

>

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> >

> >

> >

> >

> >

> >

> > Having worked many years in a hospital I know how dangerous

seemingly

> > harmless supplements can be so when I saw all the info on

Vitamin E I

> > decided to talk to a couple of Pharmacists. Both of them

strongly

> > recommended not giving it to my six year old. They felt it could

> > actually be harmful for children that young. I will be trying

to find

> > out more info but did want to caution others that they may want

to

> > look into it further as well before they give it to a child.

> >

> >

>

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> > >

> > >

> > >

> > >

> > >

> > >

> > > Having worked many years in a hospital I know how dangerous

> seemingly

> > > harmless supplements can be so when I saw all the info on

> Vitamin E I

> > > decided to talk to a couple of Pharmacists. Both of them

> strongly

> > > recommended not giving it to my six year old. They felt it

could

> > > actually be harmful for children that young. I will be trying

> to find

> > > out more info but did want to caution others that they may

want

> to

> > > look into it further as well before they give it to a child.

> > >

> > >

> >

>

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I'm not sure if this is yet a question anyone has thought of

the answer to, but why do you suppose we all of a sudden have a

rising group of children with these deficiency issues?

I mean with fish/omega 3s and all -it's easier to understand. They are

lacking in diets today -especially children's diets. On top of the

fact it's mostly MIA from the diet -whatever measly amount most consume

is compromised by the " bad " fats -the saturated and transfatty acids.

But E I find confusing because it's in whole grains such as

wheat and oats and egg yolks...and the number one kid staple -peanut

butter!

Clearly if it ends up that the majority of apraxic or apraxic

type children respond to E the way they have to the fish oil...what

is creating the deficiency? Why is " apraxia " on the rise? Diet?

Environmental? Viral? Genetic?

Of course I still lean towards believing that whatever is causing

this is triggered by environmental issues

I suspect it's more than one culprit. Most today fixate on mainly

either lead or mercury. While I wouldn't want to expose my children

to either of the above -I still wonder about phenol mixed with some

of the other toxins around today like the Polychlorinated

Biphenyls/PCBs.

There's a few references that PCBs 'cause' a vitamin E deficiency.

" PDF] Effect of simultaneous administration of polychlorinated

biphenyls ... - 8:36pmFile Format: PDF/Adobe Acrobat

(3) PCB causes a nutritional deficiency, such as Vitamin E

deficiency

www.springerlink.com/index/U22VGQ767N303318.pdf "

But when I clicked on the link - I was not able to read the entire

article - I'm sure you could. Here's one I did find.

http://cat.inist.fr/?aModele=afficheN & cpsidt=921166

Around where we used to live if PCBs didn't cause this...what about:

" phenol, cadmium, chromium and lead " (and PCBs too)

http://www.cherab.org/news/Save.html

I know that having clinical studies to validate what we are seeing

as a group with our own children will help treat the rest of the

children (in another group for example) -but I still want to find

the cause so we can stop this from happening in the first place.

Besides -as I wrote in the link below -I see our children as the

canaries in the coal mine -if there are lots of " apraxic " children

around you there are probably more with cancer etc. -and you

probably need to be on fish oil too. -vitamin E too? (I

typically take whatever Tanner does -so yes I too am now on vitamin

E!)

=====

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> > >

> > >

> > >

> > >

> > >

> > >

> > > Having worked many years in a hospital I know how dangerous

> seemingly

> > > harmless supplements can be so when I saw all the info on

> Vitamin E I

> > > decided to talk to a couple of Pharmacists. Both of them

> strongly

> > > recommended not giving it to my six year old. They felt it

could

> > > actually be harmful for children that young. I will be trying

> to find

> > > out more info but did want to caution others that they may

want

> to

> > > look into it further as well before they give it to a child.

> > >

> > >

> >

>

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Please don't forget the other " condition " that is on the rise - food

allergies. Not just intolerance to casein and gluten - peanut butter

is MIA from my son's diet because he is allergic to peanuts (also

suspected apraxia and has SI).

So there is a whole new generation of children unable to eat many of

the Omega/Vit E-containing foods that you mention below (eggs, wheat,

nuts, soy, etc). Growing up in the 1970's-1980's, I can't remember

one classmate that had any food allergies at all, but now chances are

that any given classroom will have at least one child with a serious

food allergy.

>

> I'm not sure if this is yet a question anyone has thought of

> the answer to, but why do you suppose we all of a sudden have a

> rising group of children with these deficiency issues?

>

> I mean with fish/omega 3s and all -it's easier to understand. They

are

> lacking in diets today -especially children's diets. On top of the

> fact it's mostly MIA from the diet -whatever measly amount most

consume

> is compromised by the " bad " fats -the saturated and transfatty

acids.

>

> But E I find confusing because it's in whole grains such as

> wheat and oats and egg yolks...and the number one kid staple -peanut

> butter!

>

> Clearly if it ends up that the majority of apraxic or apraxic

> type children respond to E the way they have to the fish oil...what

> is creating the deficiency? Why is " apraxia " on the rise? Diet?

> Environmental? Viral? Genetic?

>

> Of course I still lean towards believing that whatever is causing

> this is triggered by environmental issues

> I suspect it's more than one culprit. Most today fixate on mainly

> either lead or mercury. While I wouldn't want to expose my children

> to either of the above -I still wonder about phenol mixed with some

> of the other toxins around today like the Polychlorinated

> Biphenyls/PCBs.

>

> There's a few references that PCBs 'cause' a vitamin E deficiency.

> " PDF] Effect of simultaneous administration of polychlorinated

> biphenyls ... - 8:36pmFile Format: PDF/Adobe Acrobat

> (3) PCB causes a nutritional deficiency, such as Vitamin E

> deficiency

> www.springerlink.com/index/U22VGQ767N303318.pdf "

> But when I clicked on the link - I was not able to read the entire

> article - I'm sure you could. Here's one I did find.

> http://cat.inist.fr/?aModele=afficheN & cpsidt=921166

>

> Around where we used to live if PCBs didn't cause this...what about:

> " phenol, cadmium, chromium and lead " (and PCBs too)

> http://www.cherab.org/news/Save.html

>

> I know that having clinical studies to validate what we are seeing

> as a group with our own children will help treat the rest of the

> children (in another group for example) -but I still want to find

> the cause so we can stop this from happening in the first place.

> Besides -as I wrote in the link below -I see our children as the

> canaries in the coal mine -if there are lots of " apraxic " children

> around you there are probably more with cancer etc. -and you

> probably need to be on fish oil too. -vitamin E too? (I

> typically take whatever Tanner does -so yes I too am now on vitamin

> E!)

>

> =====

>

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I'm not sure if this is yet a question anyone has thought of

the answer to, but why do you suppose we all of a sudden have a

rising group of children with these deficiency issues?

I mean with fish/omega 3s and all -it's easier to understand. They are

lacking in diets today -especially children's diets. On top of the

fact it's mostly MIA from the diet -whatever measly amount most consume

is compromised by the " bad " fats -the saturated and transfatty acids.

But E I find confusing because it's in whole grains such as

wheat and oats and egg yolks...and the number one kid staple -peanut

butter!

Clearly if it ends up that the majority of apraxic or apraxic

type children respond to E the way they have to the fish oil...what

is creating the deficiency? Why is " apraxia " on the rise? Diet?

Environmental? Viral? Genetic?

Of course I still lean towards believing that whatever is causing

this is triggered by environmental issues

I suspect it's more than one culprit. Most today fixate on mainly

either lead or mercury. While I wouldn't want to expose my children

to either of the above -I still wonder about phenol mixed with some

of the other toxins around today like the Polychlorinated

Biphenyls/PCBs.

There's a few references that PCBs 'cause' a vitamin E deficiency.

" PDF] Effect of simultaneous administration of polychlorinated

biphenyls ... - 8:36pmFile Format: PDF/Adobe Acrobat

(3) PCB causes a nutritional deficiency, such as Vitamin E

deficiency

www.springerlink.com/index/U22VGQ767N303318.pdf "

But when I clicked on the link - I was not able to read the entire

article - I'm sure you could. Here's one I did find.

http://cat.inist.fr/?aModele=afficheN & cpsidt=921166

Around where we used to live if PCBs didn't cause this...what about:

" phenol, cadmium, chromium and lead " (and PCBs too)

http://www.cherab.org/news/Save.html

I know that having clinical studies to validate what we are seeing

as a group with our own children will help treat the rest of the

children (in another group for example) -but I still want to find

the cause so we can stop this from happening in the first place.

Besides -as I wrote in the link below -I see our children as the

canaries in the coal mine -if there are lots of " apraxic " children

around you there are probably more with cancer etc. -and you

probably need to be on fish oil too. -vitamin E too? (I

typically take whatever Tanner does -so yes I too am now on vitamin

E!)

=====

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