Cramps

[Guest guest]

Jan what was that condition that I related to that fit the symptoms in

your legs to a tee? I forgot and I didn't file it. I want to go back and

see what they say about toes that put on recitals. Do you remember what

I'm talking about?

love jerry

[Guest guest]

nne,

I have had lots of experience with cramping

especially in my feet. I started taking a calcium

supplement and supplements for magnesium and potassium

plus I try to drink more water when I get cramps and

now I rarely have them anymore. I hope they stop, you

don't notice that little toe until it decides to have

a mind of it's own, than it becomes very important.

Ruth

--- nne Chandler <legalasst@...> wrote:

> For the past two or three months now, I've been

> getting pretty bad cramps

> in my toes. I can acually watch the toe next to the

> great toe separate into

> a V shape. Usually happens in the evening when I'm

> relaxing, but for the

> past couple of days it's been happening more

> frequently.

> Anyone have these problems? Haven't ever seen

> anything posted on the

> subject. Most likely it's not due to AIH or the

> meds, but something

> completely different. Probably just coincidental.

>

> nne

>

>

>

[Guest guest]

nne,

I too have had the cramps you are speaking of, only in my hands. Since I

have always been low on potassium, though, and my doctors have taken me all

my vitamins, I just put it down to a low potassium level, and started eating

at least two bananas a day. Sometimes though, when they get so bad I can't

even fold clothes without physically pulling my fingers apart, and massaging

my hands between articles of clothing, I break down and take the potassium.

I have only had to resort to that when I have failed to eat the bananas. I

also understand that spinach is a good source of potassium. Not too many

people like spinach, but I do. It's just easier for me to eat the bananas

as a snack. I also concoct a fruit salad that contains plenty of bananas,

that serves as my dessert on most nights. Give that a try and see if you

don't see a difference. Hope this helps. Allida

[Guest guest]

Thanks for the tips, Ruth. I've been taking a calcium supplement for some

time, guess I should start with a potassium one, too. I also try to drink

lots of water.

nne

Re: [ ] Cramps

> nne,

> I have had lots of experience with cramping

> especially in my feet. I started taking a calcium

> supplement and supplements for magnesium and potassium

> plus I try to drink more water when I get cramps and

> now I rarely have them anymore. I hope they stop, you

> don't notice that little toe until it decides to have

> a mind of it's own, than it becomes very important.

> Ruth

> --- nne Chandler <legalasst@...> wrote:

> > For the past two or three months now, I've been

> > getting pretty bad cramps

> > in my toes. I can acually watch the toe next to the

> > great toe separate into

> > a V shape. Usually happens in the evening when I'm

> > relaxing, but for the

> > past couple of days it's been happening more

> > frequently.

> > Anyone have these problems? Haven't ever seen

> > anything posted on the

> > subject. Most likely it's not due to AIH or the

> > meds, but something

> > completely different. Probably just coincidental.

> >

> > nne

> >

> >

> >

[Guest guest]

Have you guys had your potassium level checked. Low potassium can

cause wicked cramps. I have to take Potassium CL 10 meq per day to

keep my potassium in the normal range. Even with that, sometimes it

is below normal - once low enough to keep me in the hospital

overnight with massive doses of potassium to get it back up.

W

[Guest guest]

nne,

I also have had that happen...not only toes but sometimes with the

fingers too...hubby thought I was doing an awesome Quasimodo

impersonation one night...lol. I thought for awhile it might be

related to the 6mp...started the first time right about a month after

I started. My dosage was increased for the second time about 3

months ago...and these joint..spasms...whatever you might call

them...have kicked back in again. In addition, this time also

getting muscles twitches all over the place...no rhyme or reason to

those either. I have noticed, however, that these things seem to get

worse as joint pain worsens. Doctors have had no explanation thus

far. Wish I could offer more than " me, too " .

(Another) nne

> For the past two or three months now, I've been getting pretty

bad cramps

> in my toes. I can acually watch the toe next to the great toe

separate into

> a V shape. Usually happens in the evening when I'm relaxing, but

for the

> past couple of days it's been happening more frequently.

> Anyone have these problems? Haven't ever seen anything posted on

the

> subject. Most likely it's not due to AIH or the meds, but something

> completely different. Probably just coincidental.

>

> nne

[Guest guest]

ruby and gary

Good deal! If that proves to fix the problem the next step would be to

figure out why that happened in the first place and take measures to prevent it

happening again. Chronic electrolyte imbalance can cause serious problems and if

no predictable cause can be identified it could indicate kidney problems. It

might be a good idea for to talk to his doctor if he doesnt intend to take

the quinate as prescribed because I doubt it was prescribed for malaria.

Orin

[Guest guest]

hi orin

>thanx for the info on the electrolytes and the possible use of gatorade.

>hubby used to get cramps before he was diagnosed but only once in a blue

>moon and he would always reach for the STAMINADE in a powder form we just

>had to make it up (similar to gatorade) but unfortunately we have had

>trouble getting this. however after we read your email i went to the shops

>to look for gatorade and what did i find??? staminade in a drink form

>already made. gary tired this on saturday and he had no cramps that night,

>he had some again on sunday and no cramps hopefully we are on to

>something!!! he has his script for quinate tablets but has not tried them

>yet he is hoping the staminade will do the job without having to take more

>medication.

than again

regards

ruby and gary

_________________________________________________________________

Send mobile Christmas cards, download a festive ringtone and win a Motorola

E365. Go to: http://ninemsn.com.au/mobilecentral/christmas.asp

[Guest guest]

Hey ,

My regards to you and Jeff, and empathy, especially regarding

your life with cramps. As well, the unattached feet thing is big for

me too. I tell folks they seem like a pair of size 9 4X4's! Well, hang

tough, and beware of throw rugs!

Y.T. -

[Guest guest]

Been getting cramps in my toes for the past few days.

What causes cramps? How can I stop them?

I am trying, trying, trying to get back to raw. Did a 1 day and a 1/2 last

week and now everything taste crappy but I'm still doing it. Going to put in

some extra effort.

Hugs

Tracey

[Guest guest]

Try vitamin B (1, 5, 6 in particular) Rainbow Egret <egret.09@...> wrote: Been getting cramps in my toes for the past few days.What causes cramps? How can I stop them?I am trying, trying, trying to get back to raw. Did a 1 day and a 1/2 last week and now everything taste crappy but I'm still doing it. Going to put in some extra effort.

Check out the all-new beta - Fire up a more powerful email and get things done faster.

[Guest guest]

Sometimes a dip in potassium levels can

cause cramping Tracey. Most veggies have plenty of potassium in the peel –

like potatoes. Or try to eat a banana every day for a few days, they are loaded

with potassium.

Janet

From: health [mailto:health ] On Behalf Of Rainbow Egret

Sent: Wednesday, November 08, 2006

8:49 PM

health

Subject:

Cramps

Been getting cramps in my toes for the past few days.

What causes cramps? How can I stop them?

I am trying, trying, trying to get back to raw. Did a 1 day and a 1/2 last

week and now everything taste crappy but I'm still doing it. Going to put in

some extra effort.

Hugs

Tracey

[Guest guest]

Yolanda,

I am not sure which of your meds are causing you pain or the other

symptoms, but if you are proven to have low Potassium you should be

taking a larger dose than you CAN eat. I was taking diuretics, which

does seriously deplete one's Potassium. The doctor prescribed

capsuleds, (I forget how many mgs). But she said, I'd have to eat 100

bananas to even get close to the concentration in the capsule. I took

that for years and my Potassium level just barely stayed in the normal

zone. I now take Spirolactone for my leg puffiness and I do not take

the extra Potassium , rather now I have to watch my Potassium intake!!

Life is crazy! Clara OR

I ate everything with mass quantities of potassium. Dehydrated

cranberries?

> Yolanda

>

>

[Guest guest]

Sometimes also magnesium can help with cramps. My mother had

serious cramps in her legs, especially at night, and they have

completely disappeared after she started taking magnesium. I used

to take it myself before AIH, and some friends swear by it as well.

I don't know if it is helpful for the kind of cramps connected

with AIH or low potassium levels, though, or whether it would be

safe for us to take in the first place. However, it seems that

there is a degree of magnesium deficiency in cirrhosis patients

at least (see for example http://tinyurl.com/tm5pn ), so maybe it

has something to do with the cramps as well. But, as always, a

doctor should be consulted before trying.

Jaana

--

jfogl at saunalahti.fi

*************************************

* I am a Bear of Very Little Brain, *

* and long words Bother me. *

* - Winnie the Pooh *

*************************************

cinike33 wrote:

>

>

>

> Yolanda,

>

> I am not sure which of your meds are causing you pain or the other

> symptoms, but if you are proven to have low Potassium you should be

> taking a larger dose than you CAN eat. I was taking diuretics, which

> does seriously deplete one's Potassium. The doctor prescribed

> capsuleds, (I forget how many mgs). But she said, I'd have to eat 100

> bananas to even get close to the concentration in the capsule. I took

> that for years and my Potassium level just barely stayed in the normal

> zone. I now take Spirolactone for my leg puffiness and I do not take

> the extra Potassium , rather now I have to watch my Potassium intake!!

> Life is crazy! Clara OR

>

> I ate everything with mass quantities of potassium. Dehydrated

> cranberries?

> > Yolanda

> >

> >

[Guest guest]

Hi ,

I've had cramps in just about every muscle in the human body. Big

muscles and little muscles alike.

Tracey

>

> I was playing ping pong Sunday I twisted for a ball and my r calf

cramped bad. I play all the time on wood this was concrete,any one

had a camp in this a large muscle.I get little one's in my chest but 

they go away

>

>

>

>

> ________________________________

> From: Cohen <scrappygirl123@...>

>

> Sent: Sunday, November 2, 2008 5:09:26 AM

> Subject: RE: [ ] (unknown)

>

>

> Bobby,

>

> This is the place that you can complain without any repercussions

from anyone. That's why we are here. Side effects are no fun. I am

still having pain from my shingles. I try not to complain, but when I

tell my spouse that I am going to have more injections of Cortisone

and lidocaine to get rid of the pain, he doesn't understand. He

thinks that I should just live with it and not look to put anything

> else in my body. So go ahead and tell us all. We will listen.

>

>

>

> groups (DOT) com

> From: rcd1929sbcglobal (DOT) net

> Date: Sat, 1 Nov 2008 10:19:41 -0700

> Subject: [ ] (unknown)

>

> Hi everyone, Just went to Ann Arbor for another infusion, I am

getting to not like these things. I know I am a pain for complaining

about a numb tongue, but honest, it is weird, all food has no

texture, and feels slippery, and no taste. I keep telling my self to

shut up, if that's the only side effects, I am a very lucky person.

>

> I saw Len and Ernie, I had made chili, and they came to my motel

room, same place they stay, and we had a picnic. Len made strawberry

short cake, yummy, and it is always so nice to see them.

>

> So far this drug is working real well for me, will keep you posted

when I get the pcr results. Bobby

>

> a (Bobby) Doyle

>

> Brecksville, Ohio, USA

>

> DX 05/1995

>

> 02/2000 - Gleevec Trial/OHSU

>

> 06/2002 - Gleevec/Trisenox Trial/OHSU

>

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

>

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

>

> #840 - Zavie's Zero Club

>

> 09/2006 - out of CCR

>

> 04/29/08 - XL228 Trial/ U.of Michigan

>

> 06/02/08 - CCR ( in 4 weeks)

>

>

[Guest guest]

ouch thanks

________________________________

From: Tracey <traceyincanada@...>

Sent: Sunday, November 2, 2008 10:11:19 PM

Subject: [ ] Re: cramps

Hi ,

I've had cramps in just about every muscle in the human body. Big

muscles and little muscles alike.

Tracey

>

> I was playing ping pong Sunday I twisted for a ball and my r calf

cramped bad. I play all the time on wood this was concrete,any one

had a camp in this a large muscle.I get little one's in my chest but 

they go away

>

>

>

>

> ____________ _________ _________ __

> From: Cohen <scrappygirl123@ ...>

> groups (DOT) com

> Sent: Sunday, November 2, 2008 5:09:26 AM

> Subject: RE: [ ] (unknown)

>

>

> Bobby,

>

> This is the place that you can complain without any repercussions

from anyone. That's why we are here. Side effects are no fun. I am

still having pain from my shingles. I try not to complain, but when I

tell my spouse that I am going to have more injections of Cortisone

and lidocaine to get rid of the pain, he doesn't understand. He

thinks that I should just live with it and not look to put anything

> else in my body. So go ahead and tell us all. We will listen.

>

>

>

> groups (DOT) com

> From: rcd1929sbcglobal (DOT) net

> Date: Sat, 1 Nov 2008 10:19:41 -0700

> Subject: [ ] (unknown)

>

> Hi everyone, Just went to Ann Arbor for another infusion, I am

getting to not like these things. I know I am a pain for complaining

about a numb tongue, but honest, it is weird, all food has no

texture, and feels slippery, and no taste. I keep telling my self to

shut up, if that's the only side effects, I am a very lucky person.

>

> I saw Len and Ernie, I had made chili, and they came to my motel

room, same place they stay, and we had a picnic. Len made strawberry

short cake, yummy, and it is always so nice to see them.

>

> So far this drug is working real well for me, will keep you posted

when I get the pcr results. Bobby

>

> a (Bobby) Doyle

>

> Brecksville, Ohio, USA

>

> DX 05/1995

>

> 02/2000 - Gleevec Trial/OHSU

>

> 06/2002 - Gleevec/Trisenox Trial/OHSU

>

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

>

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

>

> #840 - Zavie's Zero Club

>

> 09/2006 - out of CCR

>

> 04/29/08 - XL228 Trial/ U.of Michigan

>

> 06/02/08 - CCR ( in 4 weeks)

>

>

[Guest guest]

I had cramps begin about a year after I started Gleevec and they

continued until this year. I had to have transfusions for 6 months,

Nov. 2006 thru May 2007. Then I was on a Gleevec vacation for 11

months while trying to recover from Iron Deficent Anemia. When the

Phillies showed up in my PCR I went back on Gleevec until the end of

June 2008 and had to have a transfusion and then started Procrit

(EPO) and am again on Gleevec vacation. I have not had any cramps

since the end of July and all my Iron Deficent Anemia and low RBC are

reaching levels that I have not seen since before I was Diagnosed.

Thursday I will get the results of my 3 month Q-PCR to see if I stay

on vacation or return to Gleevec or some other newer drug. I have

about another month and my HEM should reach 11 or better and they

will stop the Procrit until the levels fall under 9, The ONC

monitering my Procrit read me the book on the problems from patients

that continued use as your counts reach 12 (low normal or above).

Both my ONC's agree that I will stay on Gleevec vacation as long as I

remain undetectable. Personally, I would prefer to stay on Gleevec

as I have learned to live with the few side effects I have endured

since the 1st anniversery. The cramps have been the most annoying

and. I now know that the cramps are definitely caused by not having

enough red blood cells to carry the oxigen needed. Yes, I can blame

Gleevec as the major factor but it has done the job of keeping my CML

under control and I need to worry about managing the side effects.

H.

dxd. 2/03

Gleevec 400mg 3/03

PCRU 11/03

Transfusions 11/06-5-07

Gleevec vacation 5/07-1/08

Gleevec 400mg 1/08-6/08

Transfusion 6/08

Procrit (EPO) 6/08-??

Gleevec vacation 6/08-??

>

> ouch thanks

>

>

>

>

> ________________________________

> From: Tracey <traceyincanada@...>

>

> Sent: Sunday, November 2, 2008 10:11:19 PM

> Subject: [ ] Re: cramps

>

>

> Hi ,

>

> I've had cramps in just about every muscle in the human body. Big

> muscles and little muscles alike.

>

> Tracey

>

[Guest guest]

Same for me. Chest and neck were the worst. It's getting better with

time, pretty much back to normal now.

Marcos.

On Sun, Nov 2, 2008 at 9:11 PM, Tracey <traceyincanada@...> wrote:

> Hi ,

>

> I've had cramps in just about every muscle in the human body. Big

> muscles and little muscles alike.

>

> Tracey

>

>

>>

>> I was playing ping pong Sunday I twisted for a ball and my r calf

> cramped bad. I play all the time on wood this was concrete,any one

> had a camp in this a large muscle.I get little one's in my chest but

> they go away

>>

>>

>>

>>

>> ________________________________

>> From: Cohen <scrappygirl123@...>

>>

>> Sent: Sunday, November 2, 2008 5:09:26 AM

>> Subject: RE: [ ] (unknown)

>>

>>

>> Bobby,

>>

>> This is the place that you can complain without any repercussions

> from anyone. That's why we are here. Side effects are no fun. I am

> still having pain from my shingles. I try not to complain, but when I

> tell my spouse that I am going to have more injections of Cortisone

> and lidocaine to get rid of the pain, he doesn't understand. He

> thinks that I should just live with it and not look to put anything

>> else in my body. So go ahead and tell us all. We will listen.

>>

>>

>>

>> groups (DOT) com

>> From: rcd1929sbcglobal (DOT) net

>> Date: Sat, 1 Nov 2008 10:19:41 -0700

>> Subject: [ ] (unknown)

>>

>> Hi everyone, Just went to Ann Arbor for another infusion, I am

> getting to not like these things. I know I am a pain for complaining

> about a numb tongue, but honest, it is weird, all food has no

> texture, and feels slippery, and no taste. I keep telling my self to

> shut up, if that's the only side effects, I am a very lucky person.

>>

>> I saw Len and Ernie, I had made chili, and they came to my motel

> room, same place they stay, and we had a picnic. Len made strawberry

> short cake, yummy, and it is always so nice to see them.

>>

>> So far this drug is working real well for me, will keep you posted

> when I get the pcr results. Bobby

>>

>> a (Bobby) Doyle

>>

>> Brecksville, Ohio, USA

>>

>> DX 05/1995

>>

>> 02/2000 - Gleevec Trial/OHSU

>>

>> 06/2002 - Gleevec/Trisenox Trial/OHSU

>>

>> 06/2003 - Gleevec/Zarnestra Trial/OHSU

>>

>> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

>>

>> #840 - Zavie's Zero Club

>>

>> 09/2006 - out of CCR

>>

>> 04/29/08 - XL228 Trial/ U.of Michigan

>>

>> 06/02/08 - CCR ( in 4 weeks)

>>

>>

[Guest guest]

Yes.....

I find that all my muscles are tense when taking the drug, especially my neck

and upper back. Sometime my chest as well. Chiropractic, massage and

accupuncture all helps along with yoga.

A banana every other day has helped too.

Good luck!

Rhonda

Sent from my Verizon Wireless BlackBerry

[ ] (unknown)

>>

>> Hi everyone, Just went to Ann Arbor for another infusion, I am

> getting to not like these things. I know I am a pain for complaining

> about a numb tongue, but honest, it is weird, all food has no

> texture, and feels slippery, and no taste. I keep telling my self to

> shut up, if that's the only side effects, I am a very lucky person.

>>

>> I saw Len and Ernie, I had made chili, and they came to my motel

> room, same place they stay, and we had a picnic. Len made strawberry

> short cake, yummy, and it is always so nice to see them.

>>

>> So far this drug is working real well for me, will keep you posted

> when I get the pcr results. Bobby

>>

>> a (Bobby) Doyle

>>

>> Brecksville, Ohio, USA

>>

>> DX 05/1995

>>

>> 02/2000 - Gleevec Trial/OHSU

>>

>> 06/2002 - Gleevec/Trisenox Trial/OHSU

>>

>> 06/2003 - Gleevec/Zarnestra Trial/OHSU

>>

>> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

>>

>> #840 - Zavie's Zero Club

>>

>> 09/2006 - out of CCR

>>

>> 04/29/08 - XL228 Trial/ U.of Michigan

>>

>> 06/02/08 - CCR ( in 4 weeks)

>>

>>

[Guest guest]

You are not alone

I thought cramps in legs were bad

Then I got cramps in my hips and cramps in leg weren't that bad

Then lordy lordy cramps and actual bone pain in back and shoulders

then thought cramps in hips not that bad.

Then got cramps in shoulder socket and then thought no cramps in

back are the worst.

I am with you guys, back cramp a high 10 on pain barrier

and worse in winter or the cold weather -

Last experience in our winter with cold wind - seemed to go on for

weeks - so what can I say - thanks for the memories - until the

next time

An Invitation if in the southern hemisphere (Aust)

I have to walk cramps out so if you see a person in their dressing

gown and jarmies walking at a slow pace with a cuppa of tea at

3.00am in the morning - that is me - free to join me in the cramp

crawl - slow walk

Keep well

Sue

> >>

> >> I was playing ping pong Sunday I twisted for a ball and my r

calf

> > cramped bad. I play all the time on wood this was concrete,any

one

> > had a camp in this a large muscle.I get little one's in my chest

but

> > they go away

> >>

> >>

> >>

> >>

> >> ________________________________

> >> From: Cohen <scrappygirl123@>

> >>

> >> Sent: Sunday, November 2, 2008 5:09:26 AM

> >> Subject: RE: [ ] (unknown)

> >>

> >>

> >> Bobby,

> >>

> >> This is the place that you can complain without any

repercussions

> > from anyone. That's why we are here. Side effects are no fun. I

am

> > still having pain from my shingles. I try not to complain, but

when I

> > tell my spouse that I am going to have more injections of

Cortisone

> > and lidocaine to get rid of the pain, he doesn't understand. He

> > thinks that I should just live with it and not look to put

anything

> >> else in my body. So go ahead and tell us all. We will listen.

> >>

> >>

> >>

> >> groups (DOT) com

> >> From: rcd1929sbcglobal (DOT) net

> >> Date: Sat, 1 Nov 2008 10:19:41 -0700

> >> Subject: [ ] (unknown)

> >>

> >> Hi everyone, Just went to Ann Arbor for another infusion, I am

> > getting to not like these things. I know I am a pain for

complaining

> > about a numb tongue, but honest, it is weird, all food has no

> > texture, and feels slippery, and no taste. I keep telling my

self to

> > shut up, if that's the only side effects, I am a very lucky

person.

> >>

> >> I saw Len and Ernie, I had made chili, and they came to my motel

> > room, same place they stay, and we had a picnic. Len made

strawberry

> > short cake, yummy, and it is always so nice to see them.

> >>

> >> So far this drug is working real well for me, will keep you

posted

> > when I get the pcr results. Bobby

> >>

> >> a (Bobby) Doyle

> >>

> >> Brecksville, Ohio, USA

> >>

> >> DX 05/1995

> >>

> >> 02/2000 - Gleevec Trial/OHSU

> >>

> >> 06/2002 - Gleevec/Trisenox Trial/OHSU

> >>

> >> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> >>

> >> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> >>

> >> #840 - Zavie's Zero Club

> >>

> >> 09/2006 - out of CCR

> >>

> >> 04/29/08 - XL228 Trial/ U.of Michigan

> >>

> >> 06/02/08 - CCR ( in 4 weeks)

> >>

> >>

[Guest guest]

me too. I even get them in my face muscles and neck. Others must think I have

Tourette's!

I take extra potassium, or sometimes drink orange juice immediately, also

calcium and magnesium helps. Any ideas about supplements? A little Tonic water

helps if it has a small amount of quinine.Appreciate your suggestions.

Margaret ,

mpraymond@...

margaret-raymond@...

 

 

 

From: suehurt28 <hollie@...>

Subject: [ ] Re: cramps

Date: Monday, November 3, 2008, 7:36 PM

You are not alone

I thought cramps in legs were bad

Then I got cramps in my hips and cramps in leg weren't that bad

Then lordy lordy cramps and actual bone pain in back and shoulders

then thought cramps in hips not that bad.

Then got cramps in shoulder socket and then thought no cramps in

back are the worst.

I am with you guys, back cramp a high 10 on pain barrier

and worse in winter or the cold weather -

Last experience in our winter with cold wind - seemed to go on for

weeks - so what can I say - thanks for the memories - until the

next time

An Invitation if in the southern hemisphere (Aust)

I have to walk cramps out so if you see a person in their dressing

gown and jarmies walking at a slow pace with a cuppa of tea at

3.00am in the morning - that is me - free to join me in the cramp

crawl - slow walk

Keep well

Sue

> >>

> >> I was playing ping pong Sunday I twisted for a ball and my r

calf

> > cramped bad. I play all the time on wood this was concrete,any

one

> > had a camp in this a large muscle.I get little one's in my chest

but

> > they go away

> >>

> >>

> >>

> >>

> >> ____________ _________ _________ __

> >> From: Cohen <scrappygirl123@ >

> >> groups (DOT) com

> >> Sent: Sunday, November 2, 2008 5:09:26 AM

> >> Subject: RE: [ ] (unknown)

> >>

> >>

> >> Bobby,

> >>

> >> This is the place that you can complain without any

repercussions

> > from anyone. That's why we are here. Side effects are no fun. I

am

> > still having pain from my shingles. I try not to complain, but

when I

> > tell my spouse that I am going to have more injections of

Cortisone

> > and lidocaine to get rid of the pain, he doesn't understand. He

> > thinks that I should just live with it and not look to put

anything

> >> else in my body. So go ahead and tell us all. We will listen.

> >>

> >>

> >>

> >> groups (DOT) com

> >> From: rcd1929sbcglobal (DOT) net

> >> Date: Sat, 1 Nov 2008 10:19:41 -0700

> >> Subject: [ ] (unknown)

> >>

> >> Hi everyone, Just went to Ann Arbor for another infusion, I am

> > getting to not like these things. I know I am a pain for

complaining

> > about a numb tongue, but honest, it is weird, all food has no

> > texture, and feels slippery, and no taste. I keep telling my

self to

> > shut up, if that's the only side effects, I am a very lucky

person.

> >>

> >> I saw Len and Ernie, I had made chili, and they came to my motel

> > room, same place they stay, and we had a picnic. Len made

strawberry

> > short cake, yummy, and it is always so nice to see them.

> >>

> >> So far this drug is working real well for me, will keep you

posted

> > when I get the pcr results. Bobby

> >>

> >> a (Bobby) Doyle

> >>

> >> Brecksville, Ohio, USA

> >>

> >> DX 05/1995

> >>

> >> 02/2000 - Gleevec Trial/OHSU

> >>

> >> 06/2002 - Gleevec/Trisenox Trial/OHSU

> >>

> >> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> >>

> >> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> >>

> >> #840 - Zavie's Zero Club

> >>

> >> 09/2006 - out of CCR

> >>

> >> 04/29/08 - XL228 Trial/ U.of Michigan

> >>

> >> 06/02/08 - CCR ( in 4 weeks)

> >>

> >>

[Guest guest]

Maggie,

Try drinking electrolyte water at Trader's Joe. This will help the cramps.

Also, I have found that when I awaken in the morning, to stretch. Sometimes

the cramps were from too much white gluten, like bread, or what ever contained

glutens.

If you like bananas eat them upon your cramps, they reduce the cramps

quickly!

Exercise reduces leg cramps, and body cramps in general!

Dory Doggie

________________________________

From: Margaret Peake <mpraymond@...>

Sent: Tuesday, November 4, 2008 7:21:31 AM

Subject: Re: [ ] Re: cramps

me too. I even get them in my face muscles and neck. Others must think I have

Tourette's!

I take extra potassium, or sometimes drink orange juice immediately, also

calcium and magnesium helps. Any ideas about supplements? A little Tonic water

helps if it has a small amount of quinine.Appreciate your suggestions.

Margaret ,

mpraymond@sbcglobal .net

margaret-raymond@ cherokee. org

From: suehurt28 <hollieiinet (DOT) net.au>

Subject: [ ] Re: cramps

groups (DOT) com

Date: Monday, November 3, 2008, 7:36 PM

You are not alone

I thought cramps in legs were bad

Then I got cramps in my hips and cramps in leg weren't that bad

Then lordy lordy cramps and actual bone pain in back and shoulders

then thought cramps in hips not that bad.

Then got cramps in shoulder socket and then thought no cramps in

back are the worst.

I am with you guys, back cramp a high 10 on pain barrier

and worse in winter or the cold weather -

Last experience in our winter with cold wind - seemed to go on for

weeks - so what can I say - thanks for the memories - until the

next time

An Invitation if in the southern hemisphere (Aust)

I have to walk cramps out so if you see a person in their dressing

gown and jarmies walking at a slow pace with a cuppa of tea at

3.00am in the morning - that is me - free to join me in the cramp

crawl - slow walk

Keep well

Sue

> >>

> >> I was playing ping pong Sunday I twisted for a ball and my r

calf

> > cramped bad. I play all the time on wood this was concrete,any

one

> > had a camp in this a large muscle.I get little one's in my chest

but

> > they go away

> >>

> >>

> >>

> >>

> >> ____________ _________ _________ __

> >> From: Cohen <scrappygirl123@ >

> >> groups (DOT) com

> >> Sent: Sunday, November 2, 2008 5:09:26 AM

> >> Subject: RE: [ ] (unknown)

> >>

> >>

> >> Bobby,

> >>

> >> This is the place that you can complain without any

repercussions

> > from anyone. That's why we are here. Side effects are no fun. I

am

> > still having pain from my shingles. I try not to complain, but

when I

> > tell my spouse that I am going to have more injections of

Cortisone

> > and lidocaine to get rid of the pain, he doesn't understand. He

> > thinks that I should just live with it and not look to put

anything

> >> else in my body. So go ahead and tell us all. We will listen.

> >>

> >>

> >>

> >> groups (DOT) com

> >> From: rcd1929sbcglobal (DOT) net

> >> Date: Sat, 1 Nov 2008 10:19:41 -0700

> >> Subject: [ ] (unknown)

> >>

> >> Hi everyone, Just went to Ann Arbor for another infusion, I am

> > getting to not like these things. I know I am a pain for

complaining

> > about a numb tongue, but honest, it is weird, all food has no

> > texture, and feels slippery, and no taste. I keep telling my

self to

> > shut up, if that's the only side effects, I am a very lucky

person.

> >>

> >> I saw Len and Ernie, I had made chili, and they came to my motel

> > room, same place they stay, and we had a picnic. Len made

strawberry

> > short cake, yummy, and it is always so nice to see them.

> >>

> >> So far this drug is working real well for me, will keep you

posted

> > when I get the pcr results. Bobby

> >>

> >> a (Bobby) Doyle

> >>

> >> Brecksville, Ohio, USA

> >>

> >> DX 05/1995

> >>

> >> 02/2000 - Gleevec Trial/OHSU

> >>

> >> 06/2002 - Gleevec/Trisenox Trial/OHSU

> >>

> >> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> >>

> >> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> >>

> >> #840 - Zavie's Zero Club

> >>

> >> 09/2006 - out of CCR

> >>

> >> 04/29/08 - XL228 Trial/ U.of Michigan

> >>

> >> 06/02/08 - CCR ( in 4 weeks)

> >>

> >>

[Guest guest]

Hey there fellow CMT'ers !!  I get cramps in the legs, arms, hands, feet, back,

stomach, my sides and once in awhile in my neck!! So I would say you can just

about get them anywhere.

Bob

[Guest guest]

Bob,

Vinegar or pickle juice - that's all I'm going to say - works wonders

Steve