New to group

[Guest guest]

am i allowed to recommend dr.s on this site? i dont want to if i am not supposed

to- please advise.

Re: New to group

Brooklyn

> > > > > >

> > > > > > Hello everyone,

> > > > > >

> > > > > > I have been sick for 14 years with CFS. I am so

surprised to

> > find

> > > > > all

> > > > > > this information exists now because in the early years

(of my

> > > > > illness)

> > > > > > no one knew (or cared) anything about CFS and, like many

> > others, I

> > > > > was

> > > > > > often directed to Psychiatrists, which I never saw. I knew

> that I

> > > > > wasn't

> > > > > > a malingerer. So I think I just got used to thinking " Oh

> well,

> > > > > I'm on

> > > > > > my own " . It is wonderful to find all these protocols

and such

> > but

> > > > > I'm

> > > > > > on overload. Where in the world does one begin when

they've

> > had no

> > > > > tx at

> > > > > > all, except for that which followed my own research and

> seemed to

> > > > > supply

> > > > > > some relief during increases in symptoms; such as Chinese

> boiling

> > > > > herbs

> > > > > > and various vitamin supplements.

> > > > > >

> > > > > > I've read somewhere that a small percentage of CFS

patients

> > > > > actually do

> > > > > > get better, some get worse, and the majority live in the

> middle

> > > > > ground

> > > > > > with continued remissions and relapses. I don't know how

> accurate

> > > > > this

> > > > > > is. I have a friend who has been 99% better for 3 years

> now. She

> > > > > is the

> > > > > > only person I personally know who makes this claim.

> > > > > >

> > > > > > After 14 years, I see no light at the end of the tunnel.

> In the

> > > > > > beginning years of the illness I was moved to get my will

> in order

> > > > > > because I thought that I was dying. Now I know that I'm

> not dying

> > > > > (I

> > > > > > just feel like I am when in a flare), so I suppose that is

> some

> > > > > > progress.

> > > > > >

> > > > > > I read here people talking about Salt-C, Thymus

Injections,

> > > > > collodial

> > > > > > silver and such. How does one know where (or how) to

begin?

> > > > > >

> > > > > > Ballady

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Hi:

I just booked an Igenex Lyme test for my son for next week. They didn't mention

anything about being on antibiotics first. Should I question this? He has been

very ill for many years.

Thanks,

bf

Re: New to group

Just use Igenex, they're the best. Use their western blot. Take

antibiotics for a few weeks as sometimes with longstanding lyme you

stop generating antibodies. No, not any doctor will use their tests,

you need either a lyme specialist or a lyme-friendly doctor. Go to

www.lymenet.org and ask the question there, someone will backchannel

you to a doctor in your area.

> > > > > >

> > > > > > Hello everyone,

> > > > > >

> > > > > > I have been sick for 14 years with CFS. I am so

surprised to

> > find

> > > > > all

> > > > > > this information exists now because in the early years

(of my

> > > > > illness)

> > > > > > no one knew (or cared) anything about CFS and, like many

> > others, I

> > > > > was

> > > > > > often directed to Psychiatrists, which I never saw. I knew

> that I

> > > > > wasn't

> > > > > > a malingerer. So I think I just got used to thinking " Oh

> well,

> > > > > I'm on

> > > > > > my own " . It is wonderful to find all these protocols

and such

> > but

> > > > > I'm

> > > > > > on overload. Where in the world does one begin when they've

> > had no

> > > > > tx at

> > > > > > all, except for that which followed my own research and

> seemed to

> > > > > supply

> > > > > > some relief during increases in symptoms; such as Chinese

> boiling

> > > > > herbs

> > > > > > and various vitamin supplements.

> > > > > >

> > > > > > I've read somewhere that a small percentage of CFS

patients

> > > > > actually do

> > > > > > get better, some get worse, and the majority live in the

> middle

> > > > > ground

> > > > > > with continued remissions and relapses. I don't know how

> accurate

> > > > > this

> > > > > > is. I have a friend who has been 99% better for 3 years

> now. She

> > > > > is the

> > > > > > only person I personally know who makes this claim.

> > > > > >

> > > > > > After 14 years, I see no light at the end of the tunnel.

> In the

> > > > > > beginning years of the illness I was moved to get my will

> in order

> > > > > > because I thought that I was dying. Now I know that I'm

> not dying

> > > > > (I

> > > > > > just feel like I am when in a flare), so I suppose that is

> some

> > > > > > progress.

> > > > > >

> > > > > > I read here people talking about Salt-C, Thymus Injections,

> > > > > collodial

> > > > > > silver and such. How does one know where (or how) to begin?

> > > > > >

> > > > > > Ballady

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

my doc. put me on for 5 days to " excite " the virus ( if there was one) before we

sent the blood to the lab...

Re: New to group

Just use Igenex, they're the best. Use their western blot. Take

antibiotics for a few weeks as sometimes with longstanding lyme you

stop generating antibodies. No, not any doctor will use their tests,

you need either a lyme specialist or a lyme-friendly doctor. Go to

www.lymenet.org and ask the question there, someone will backchannel

you to a doctor in your area.

> > > > > >

> > > > > > Hello everyone,

> > > > > >

> > > > > > I have been sick for 14 years with CFS. I am so

surprised to

> > find

> > > > > all

> > > > > > this information exists now because in the early years

(of my

> > > > > illness)

> > > > > > no one knew (or cared) anything about CFS and, like many

> > others, I

> > > > > was

> > > > > > often directed to Psychiatrists, which I never saw. I knew

> that I

> > > > > wasn't

> > > > > > a malingerer. So I think I just got used to thinking " Oh

> well,

> > > > > I'm on

> > > > > > my own " . It is wonderful to find all these protocols

and such

> > but

> > > > > I'm

> > > > > > on overload. Where in the world does one begin when they've

> > had no

> > > > > tx at

> > > > > > all, except for that which followed my own research and

> seemed to

> > > > > supply

> > > > > > some relief during increases in symptoms; such as Chinese

> boiling

> > > > > herbs

> > > > > > and various vitamin supplements.

> > > > > >

> > > > > > I've read somewhere that a small percentage of CFS

patients

> > > > > actually do

> > > > > > get better, some get worse, and the majority live in the

> middle

> > > > > ground

> > > > > > with continued remissions and relapses. I don't know how

> accurate

> > > > > this

> > > > > > is. I have a friend who has been 99% better for 3 years

> now. She

> > > > > is the

> > > > > > only person I personally know who makes this claim.

> > > > > >

> > > > > > After 14 years, I see no light at the end of the tunnel.

> In the

> > > > > > beginning years of the illness I was moved to get my will

> in order

> > > > > > because I thought that I was dying. Now I know that I'm

> not dying

> > > > > (I

> > > > > > just feel like I am when in a flare), so I suppose that is

> some

> > > > > > progress.

> > > > > >

> > > > > > I read here people talking about Salt-C, Thymus Injections,

> > > > > collodial

> > > > > > silver and such. How does one know where (or how) to begin?

> > > > > >

> > > > > > Ballady

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

My question is - can you have CFS and Lyme's? I have classical CFS

symptoms. I just went and read the symptoms for Lymes. I don't ever

remember having a rash (of course, this was years ago and I see there

are some who do not present with the rash). I also do not have

migraines. Maybe I'm just simplifying the symptoms (from what I just

read). But, again, my question - is it possible to have both, because

I know, both intuitively and from tests, that I defintely have CFS.

> > > > > > >

> > > > > > > Hello everyone,

> > > > > > >

> > > > > > > I have been sick for 14 years with CFS. I am so

> surprised to

> > > find

> > > > > > all

> > > > > > > this information exists now because in the early years

> (of my

> > > > > > illness)

> > > > > > > no one knew (or cared) anything about CFS and,

like many

> > > others, I

> > > > > > was

> > > > > > > often directed to Psychiatrists, which I never

saw. I knew

> > that I

> > > > > > wasn't

> > > > > > > a malingerer. So I think I just got used to

thinking " Oh

> > well,

> > > > > > I'm on

> > > > > > > my own " . It is wonderful to find all these protocols

> and such

> > > but

> > > > > > I'm

> > > > > > > on overload. Where in the world does one begin

when they've

> > > had no

> > > > > > tx at

> > > > > > > all, except for that which followed my own

research and

> > seemed to

> > > > > > supply

> > > > > > > some relief during increases in symptoms; such as

Chinese

> > boiling

> > > > > > herbs

> > > > > > > and various vitamin supplements.

> > > > > > >

> > > > > > > I've read somewhere that a small percentage of CFS

> patients

> > > > > > actually do

> > > > > > > get better, some get worse, and the majority live

in the

> > middle

> > > > > > ground

> > > > > > > with continued remissions and relapses. I don't

know how

> > accurate

> > > > > > this

> > > > > > > is. I have a friend who has been 99% better for 3

years

> > now. She

> > > > > > is the

> > > > > > > only person I personally know who makes this claim.

> > > > > > >

> > > > > > > After 14 years, I see no light at the end of the

tunnel.

> > In the

> > > > > > > beginning years of the illness I was moved to get

my will

> > in order

> > > > > > > because I thought that I was dying. Now I know

that I'm

> > not dying

> > > > > > (I

> > > > > > > just feel like I am when in a flare), so I suppose

that is

> > some

> > > > > > > progress.

> > > > > > >

> > > > > > > I read here people talking about Salt-C, Thymus

Injections,

> > > > > > collodial

> > > > > > > silver and such. How does one know where (or how)

to begin?

> > > > > > >

> > > > > > > Ballady

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

I had small bull's-eye rash... but most people i have spoken to over the years

claim that they never saw a rash....The problem is that the symptoms of both are

so similar... I also believe that one can develop CHF as a result of

undiagnosed-long term Lyme...

Re: New to group

My question is - can you have CFS and Lyme's? I have classical CFS

symptoms. I just went and read the symptoms for Lymes. I don't ever

remember having a rash (of course, this was years ago and I see there

are some who do not present with the rash). I also do not have

migraines. Maybe I'm just simplifying the symptoms (from what I just

read). But, again, my question - is it possible to have both, because

I know, both intuitively and from tests, that I defintely have CFS.

> > > > > > >

> > > > > > > Hello everyone,

> > > > > > >

> > > > > > > I have been sick for 14 years with CFS. I am so

> surprised to

> > > find

> > > > > > all

> > > > > > > this information exists now because in the early years

> (of my

> > > > > > illness)

> > > > > > > no one knew (or cared) anything about CFS and,

like many

> > > others, I

> > > > > > was

> > > > > > > often directed to Psychiatrists, which I never

saw. I knew

> > that I

> > > > > > wasn't

> > > > > > > a malingerer. So I think I just got used to

thinking " Oh

> > well,

> > > > > > I'm on

> > > > > > > my own " . It is wonderful to find all these protocols

> and such

> > > but

> > > > > > I'm

> > > > > > > on overload. Where in the world does one begin

when they've

> > > had no

> > > > > > tx at

> > > > > > > all, except for that which followed my own

research and

> > seemed to

> > > > > > supply

> > > > > > > some relief during increases in symptoms; such as

Chinese

> > boiling

> > > > > > herbs

> > > > > > > and various vitamin supplements.

> > > > > > >

> > > > > > > I've read somewhere that a small percentage of CFS

> patients

> > > > > > actually do

> > > > > > > get better, some get worse, and the majority live

in the

> > middle

> > > > > > ground

> > > > > > > with continued remissions and relapses. I don't

know how

> > accurate

> > > > > > this

> > > > > > > is. I have a friend who has been 99% better for 3

years

> > now. She

> > > > > > is the

> > > > > > > only person I personally know who makes this claim.

> > > > > > >

> > > > > > > After 14 years, I see no light at the end of the

tunnel.

> > In the

> > > > > > > beginning years of the illness I was moved to get

my will

> > in order

> > > > > > > because I thought that I was dying. Now I know

that I'm

> > not dying

> > > > > > (I

> > > > > > > just feel like I am when in a flare), so I suppose

that is

> > some

> > > > > > > progress.

> > > > > > >

> > > > > > > I read here people talking about Salt-C, Thymus

Injections,

> > > > > > collodial

> > > > > > > silver and such. How does one know where (or how)

to begin?

> > > > > > >

> > > > > > > Ballady

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

It isn't a " have both " situation. Lyme causes many symptoms, all of

which overlap with CFIDS. That's why the CFIDS association put a tick

on the cover of a recent journal issue. Many with CFIDS are now

discovering they had lyme all along.

> > > > > > > >

> > > > > > > > Hello everyone,

> > > > > > > >

> > > > > > > > I have been sick for 14 years with CFS. I am so

> > surprised to

> > > > find

> > > > > > > all

> > > > > > > > this information exists now because in the early

years

> > (of my

> > > > > > > illness)

> > > > > > > > no one knew (or cared) anything about CFS and,

> like many

> > > > others, I

> > > > > > > was

> > > > > > > > often directed to Psychiatrists, which I never

> saw. I knew

> > > that I

> > > > > > > wasn't

> > > > > > > > a malingerer. So I think I just got used to

> thinking " Oh

> > > well,

> > > > > > > I'm on

> > > > > > > > my own " . It is wonderful to find all these

protocols

> > and such

> > > > but

> > > > > > > I'm

> > > > > > > > on overload. Where in the world does one begin

> when they've

> > > > had no

> > > > > > > tx at

> > > > > > > > all, except for that which followed my own

> research and

> > > seemed to

> > > > > > > supply

> > > > > > > > some relief during increases in symptoms; such as

> Chinese

> > > boiling

> > > > > > > herbs

> > > > > > > > and various vitamin supplements.

> > > > > > > >

> > > > > > > > I've read somewhere that a small percentage of CFS

> > patients

> > > > > > > actually do

> > > > > > > > get better, some get worse, and the majority live

> in the

> > > middle

> > > > > > > ground

> > > > > > > > with continued remissions and relapses. I don't

> know how

> > > accurate

> > > > > > > this

> > > > > > > > is. I have a friend who has been 99% better for 3

> years

> > > now. She

> > > > > > > is the

> > > > > > > > only person I personally know who makes this claim.

> > > > > > > >

> > > > > > > > After 14 years, I see no light at the end of the

> tunnel.

> > > In the

> > > > > > > > beginning years of the illness I was moved to get

> my will

> > > in order

> > > > > > > > because I thought that I was dying. Now I know

> that I'm

> > > not dying

> > > > > > > (I

> > > > > > > > just feel like I am when in a flare), so I suppose

> that is

> > > some

> > > > > > > > progress.

> > > > > > > >

> > > > > > > > I read here people talking about Salt-C, Thymus

> Injections,

> > > > > > > collodial

> > > > > > > > silver and such. How does one know where (or how)

> to begin?

> > > > > > > >

> > > > > > > > Ballady

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > [Non-text portions of this message have been

removed]

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal

> experiences

> > > with each other, not to give medical advice. If you are

> interested in

> > > any treatment discussed here, please consult your doctor.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Lynn,

> am i allowed to recommend dr.s on this site? i dont want to if i am

> not supposed to- please advise

My own feeling is that it's not a good idea to do this publicly, but to

do it by private e-mail. When we find good doctors, I think we need to

protect them.

Sue ,

Upstate New York

[Guest guest]

thank you...

so whoever it was that needed a dr. who uses IgenX, please provide email and i

will provide name.

Thank you for the clarification...

Re: New to group

Hi Lynn,

> am i allowed to recommend dr.s on this site? i dont want to if i am

> not supposed to- please advise

My own feeling is that it's not a good idea to do this publicly, but to

do it by private e-mail. When we find good doctors, I think we need to

protect them.

Sue ,

Upstate New York

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi,

I am not the person that asked but I would like to know, also. Would

you back channel me the name also, please.

Sue B, I think that is good advice, after my experience today.

L

susan.lucey@...

On Feb 6, 2006, at 2:42 PM, Lynn Cohen wrote:

> thank you...

> so whoever it was that needed a dr. who uses IgenX, please provide

> email and i will provide name.

> Thank you for the clarification...

>   Re: New to group

>

>

>   Hi Lynn,

>

>   > am i allowed to recommend dr.s on this site? i dont want to if i

> am

>   > not supposed to- please advise

>

>   My own feeling is that it's not a good idea to do this publicly,

> but to

>   do it by private e-mail.  When we find good doctors, I think we

> need to

>   protect them.

>

>   Sue ,

>   Upstate New York

>

>

>

>   This list is intended for patients to share personal experiences

> with each other, not to give medical advice.  If you are interested in

> any treatment discussed here, please consult your doctor.

>

>

>

>  

[Guest guest]

---

tell us if you have found some one good

chris

In , <rhbailey@...>

wrote:

>

> Hi Lynn,

>

> > am i allowed to recommend dr.s on this site? i dont want to if i am

> > not supposed to- please advise

>

> My own feeling is that it's not a good idea to do this publicly, but

to

> do it by private e-mail. When we find good doctors, I think we need

to

> protect them.

>

> Sue ,

> Upstate New York

>

[Guest guest]

Welcome to the group a,

I am fairly new myself. I was dx in Dec.2000, w & w,

stage 1 with swollen nodes and high wbc.

It looks like you and I are in the same situation.

I have enjoyed this group also. Its good to know that

other people are going thru the same issues and that

we can feel free to talk about it. E-mail me if you

need to talk to someone.

welcome and best wishes,

Bill

--- a <paulakildare@...> wrote:

> Hi everyone,

> I signed on a week or so ago and find this a great

> group. Enjoy your

> concerns and appreciate hearing about all the ups

> and downs. Everyone

> is so hopeful and helpful.

>

> Am 53 and was diagnosed with CLL 9/2001 (a fateful

> month for all of

> us) in preparation for a hysterectomy. Feel great

> and have been W & W

> all this time. Sometimes I can't even believe I

> have the disease --

> only symptoms are the swollen nodes and the swelling

> whites and the

> visits to the hemo/onco at U of Chicago every six or

> three months as

> indicated by rising whites.

>

> Just checking in so you know who I am and when I see

> Dr. late Feb will

> get copies as members suggest.

>

> Thanks,

>

> a of Chicago

>

>

>

>

__________________________________________________

[Guest guest]

Hello Cerridwen -- my name is Judy. My husband was diagnosed with SLL in

October 2005. He has no symptoms other than lumps and what the CT scans and

other tests have shown. He is Stage IV. We have been told that he can do wait

and watch and start chemo when he has symptoms. It is like waiting for the

other shoe to drop. He tries to stays so positive. I keep a smile on my face,

but it tears me apart to think about what he will go through down the road --

and when it will hit. It's nice to have someone to talk to.

Cerridwen <koochlady@...> wrote: Hello, My name is Cerridwen and I am new

to this group. My husband has

CLL and I am hoping just to get some feed back to some of the feelings

that arise in being married to someone with CLL. Just to keep a smile on

my face or maybe put one on someone else. May you all Be Blessed. Thanks

[Guest guest]

Hi my name is Dan and my wife has done a great job of dealing with my condition.

Probably due to our strong relation with Christ. Ask questions and read, this

has a lot of great people and lot of info. Focus on faith and not the world, it

works, believe me.

Cerridwen <koochlady@...> wrote: Hello, My name is Cerridwen and I am new

to this group. My husband has

CLL and I am hoping just to get some feed back to some of the feelings

that arise in being married to someone with CLL. Just to keep a smile on

my face or maybe put one on someone else. May you all Be Blessed. Thanks

[Guest guest]

My same sex partner has dealt well with me and has been very

encouraging and positive.

On Feb 28, 2006, at 6:44 PM, DAN NEIDLINGER wrote:

> Hi my name is Dan and my wife has done a great job of dealing with

> my condition. Probably due to our strong relation with Christ. Ask

> questions and read, this has a lot of great people and lot of info.

> Focus on faith and not the world, it works, believe me.

>

> Cerridwen <koochlady@...> wrote: Hello, My name is Cerridwen

> and I am new to this group. My husband has

> CLL and I am hoping just to get some feed back to some of the feelings

> that arise in being married to someone with CLL. Just to keep a

> smile on

> my face or maybe put one on someone else. May you all Be Blessed.

> Thanks

>

>

>

>

[Guest guest]

Hi welcome to the group. other groups you may wish to look into are

www.clltopics.org and write to cll@... to join. if you have any

questions or problems please write me. Bruce brumoo2540@... also if you can

make

it to Boston April 29th the following seminar is being given.

Thank you for saving the date of April 29th, 2006. Registration is now

available for the regional symposium sponsored by the Leukemia and Lymphoma

Society

at the Crowne Plaza, in Natick, Ma. The brochure with the registration form

is posted at www.leukemia-lymphoma.org/MA under LOCAL FEATURE on the right

hand side. Click " more> " and the brochure can be accessed at: brochure available

on line click here. Registrations must be sent by " snail mail " to the address

listed. As you know, the keynote speaker is the noted Dr. C. Fisher of

both the consortium hospital, Dana Farber Cancer Institute as well as Brigham

and Women’s Hospital, Boston. He will give us a Medical Update on Cll,

including diagnostic testing, markers, current therapies, as well as clinical

trials. In addition, Bill Duffy, MPA, of CLL Topics will speak on Patient

Advocacy.

During the afternoon , Michele Walsh RN will speak on the oncology nursing

perspective and answer questions. Breakfast and lunch are included. We hope

as many of you as possible will avail yourself of this wonderful opportunity to

become up-to-date on CLL as well as meet other CLL'ers.

Thank you, Bruce

[Guest guest]

One very important and enjoyable website concerning CLL that Bruce forgot to

mention is the newest website of http://www.cllforum.com/

which consists of all the patients with CLL in all areas of care, from

caregivers to doctors to new patients to those about to enter treatment or are

in treatment now as well as refractory to treatment, into BMT and beyond.

I do not recommend CLLForum over this website of sll-cll-edu as I have been a

member here since the beginning or thereabouts. I love this website and I feel

connected to all who post here. The new website is simply a website where

everything you can imagine is covered from humor to food to games to play to

chat room for CLL friends to religious areas to anything you can imagine. It is

not meant to replace anything, especially not this valuable website nor the

Digest at ACOR. It is meant simply as a supplement area to visit where you can

talk easily about matters going on here and on the digest.

We often refer to SLL-CLL-edu and post links to members so they can come here to

be part of discussions going on here. We have no association to CIG except

through and the website here and we do support and this website of

SLL-CLL-edu and CIG and will continue to do so.

I have purposely not mentioned our new website of :

http://www.cllforum.com/ before because it is not my intention to take anything

away from this wonderful site, in fact I constantly support this CLL website and

will continue to do so every day.

Thanks, Kurt Grayson

-------------- Original message --------------

From: brumoo2540@...

Hi welcome to the group. other groups you may wish to look into are

www.clltopics.org and write to cll@... to join. if you have any

questions or problems please write me. Bruce brumoo2540@... also if you can

make

it to Boston April 29th the following seminar is being given.

Thank you for saving the date of April 29th, 2006. Registration is now

available for the regional symposium sponsored by the Leukemia and Lymphoma

Society

at the Crowne Plaza, in Natick, Ma. The brochure with the registration form

is posted at www.leukemia-lymphoma.org/MA under LOCAL FEATURE on the right

hand side. Click " more> " and the brochure can be accessed at: brochure available

on line click here. Registrations must be sent by " snail mail " to the address

listed. As you know, the keynote speaker is the noted Dr. C. Fisher of

both the consortium hospital, Dana Farber Cancer Institute as well as Brigham

and Women’s Hospital, Boston. He will give us a Medical Update on Cll,

including diagnostic testing, markers, current therapies, as well as clinical

trials. In addition, Bill Duffy, MPA, of CLL Topics will speak on Patient

Advocacy.

During the afternoon , Michele Walsh RN will speak on the oncology nursing

perspective and answer questions. Breakfast and lunch are included. We hope

as many of you as possible will avail yourself of this wonderful opportunity to

become up-to-date on CLL as well as meet other CLL'ers.

Thank you, Bruce

[Guest guest]

Welcome )

There is no reason to be scared. I just had my surgery on March 27th and it went great. Dr. Aceves and his entire staff are awesome. I was scared too until I read all the post from everyone saying how wonderful their experience was. Mexicali is a very nice area and the hospital is beautiful. I plan to go back for my fills and my husband wants to come with me this time so we can stay a few days and tour around. If you have any questions at all please don't hesitate to ask myself or anyone else. We are all here for support.

Best of luck to you and trust me you will be just fine. Yolanda and the crew make you feel right at home. You will feel like you have known them forever.

Take care,

Karlie

DOB 3/26/06

312/304/170

[Guest guest]

Welcome to the group ,

I know you will be successful on your weight loss

journey with Dr. Aceves and his team and all of us

behind you! If you have questions you know Nina and

all of us are here for you to ask.

Best wishes,

Penny

Penny Manville

Walden, Colorado

DOB 9/26/05

230/184/135

1st fill 12/9/05 1cc

2nd fill 1/27/06 0.5 cc 1.5 cc total

5'4 "

__________________________________________________

[Guest guest]

Hi, . I'm flying in on 21st and surgery is Sat. 22nd. See you there!! You'll recognize me - I'm short ... and fat! HA!! LOL Phyllis

NEW TO GROUP

HI EVERYONE-MY NAME IS KELLY AND I AM SENDING IN MY DEPOSIT TOMORROW FOR SURGERY ON 4/21/06. IS ANYONE ELSE GETTING BANDED THAT DAY? I AM BOTH EXCITED & SCARED.

[Guest guest]

ME TOO!!! MAYBE AT FILL TIME OR REUNION TIME??? I WOULD LOVE TO MEET YOU AND ALL THE OTHERS!!! TAMMY I.

[Guest guest]

Welcome to the group, Sha! And congrats--you're doing fantastic!

I'm Bonnie, 31, and I also have a 5 year old little boy (and a 2.5

year old boy as well) and I can relate 100% to feeling like the 'fat

mommy'. I was just always too tired to do much of anything. I

started my journey toward healthy eating and exercise back in

September (was at 338 lbs, I'm 5'8 " ) and now I'm down 66 pounds. I

don't have a specific goal in mind, but I *do* know that I have so

much excess skin that I won't hit what the charts say is my ideal

weight without some surgery. *shrugs* I'm at 272 now and

realistically, I'd like to get down to 200-220...somewhere in there.

At 175-180 lbs in high school I was a size 8/10--I have a large frame,

naturally more well-endowed, etc. I figure I'll just keep up with

what I'm doing and when my body stops losing, I'll re-evaluate

everything at that point and decide where to go from there.

I haven't noticed too many people treating me differently, but I've

always been very outgoing--even at my heaviest I'd always talk to

people wherever I went. I have noticed more attention from males,

however. I suppose that's to be expected.

And the little things that smaller people (even me, back when I was

thin) take for granted are amazing to me! You don't realize how tough

it is until you're not able to fit in the movie theater seats...or

buckle the lap belt on an airplane. I remember feeling overwhelming

panic at the thought of going to a restaurant and getting seated at a

booth. I started out at a size 30-ish, now I'm in *some* 18's, mostly

20's and a few 22's. So seating isn't too much a problem anymore.

Oooh, gotta run to the Y! Thanks for posting your info!

-Bonnie

[Guest guest]

Welcome. I kinda new here too. Seems like a nice place :-) Congrats

on your weight loss!

> Hi, I'm a 39 yr old wife & mom. I've lost 69.5lbs since august with

> healthy diet, cardio, & resistance training. I'm curently 239.5lbs

> down from 309lbs & still have a little over 100lbs to go.

> I'm so happy with how much easier it is to do simple things now. My

> little boy is 5 & it was so hard explaining why we couldn't sit in a

> booth instead of a table & chairs. I had my eye exam yesterday & I was

> so excited that I could actually sit in the chair & put my chin on the

> machine thing. Last year I had to stand up to do it. The little things

> that average size people take for granted were so hard for me. And

> worse yet embarrasing for me and my family. And forget playing with my

> child! I felt like the fat mommy & I don't want that anymore.

> I am happy to find a place that I feel like I can vent about these

> things, because I know that you guys understand what I'm talking

> about.

>

> P.S people are treating me differently now. Strangers smile & speak

> to me. They hold open doors for me. It's nice to be treated good, but

> at the same time it's upsetting . I'm still the same person.

> Has anyone else noticed this?

> Sha

>

>

>

>

>

>

>

> 100-Plus Files page 100-plus/files

> 100-Plus Links page 100-plus/links

>

>

>

>

[Guest guest]

Welcome, Sha.

>I've lost 69.5lbs since august with

> healthy diet, cardio, & resistance training. I'm curently 239.5lbs

Congrats!

Are you using any specific food or exercise plan, or just winging it?

> I am happy to find a place that I feel like I can vent about these

> things, because I know that you guys understand what I'm talking

> about.

Boy, DO we!

> P.S people are treating me differently now. Strangers smile & speak

> to me. They hold open doors for me. It's nice to be treated good,

Even at my heaviest I always encountered friendly people. It's not so much

the weight but how you feel about yourself. If you carry yourself proudly

and walk tall, look people in the eye and smile at them, most people *will*

smile back and be friendly, no matter what you look like.

Sue in NJ

[Guest guest]

Hi Sha, my name is . I am 34 years old and married to a wonderful man named . We will have been married three years coming this August. I started at 340. I am down in the 290's now. I started back in September when I found out I had type 2 diabetes. I have a fur child named Gracie. She is a little black cat who thinks she owns me instead of the other way around. I don't have any children. I love children, but my husband and I have pretty much already decided that it is best if we just don't have any kids of our own. I understand not being able to sit in booths and having problems like that. There are so many things that a thin person can do that heavy people just have really hard times with. I am finding since I lost the weight I have already lost that there are so many more things I can do. Like I can walk now without being out of breath and hurting just going from the living room to the bedroom. I can stand and cook now, before I had to sit in a chair to cook. Just lots of things others take for granted like you said. Well, I just wanted to welcome you to the group. This is a great group of ladies. I hope you like it here as much as I do. The people here are so friendly and supportive. from MO

[Guest guest]

New to group

Hi, I'm a 39 yr old wife & mom. I've lost 69.5lbs since august with healthy diet, cardio, & resistance training. I'm curently 239.5lbs down from 309lbs & still have a little over 100lbs to go. Welcome! It sounds like you are off to a great start.I'm so happy with how much easier it is to do simple things now. My little boy is 5 & it was so hard explaining why we couldn't sit in a booth instead of a table & chairs. I had my eye exam yesterday & I was so excited that I could actually sit in the chair & put my chin on the machine thing. Last year I had to stand up to do it. The little things that average size people take for granted were so hard for me. And worse yet embarrasing for me and my family. And forget playing with my child! I felt like the fat mommy & I don't want that anymore. These small things is what I noticed that made me now I had to lose. One of my most awful moment was needing new jeans and going to walmart and having one pair in the whole store to fit me and it wasn't a "good fit" I knew then that I was out of control.I am happy to find a place that I feel like I can vent about these things, because I know that you guys understand what I'm talking about. Oh yeah..... I'm sure we have heard it all or lived it ourselves. Vent away whenever you need to. Thats what is good about the group. we are all in the same boat. P.S people are treating me differently now. Strangers smile & speak to me. They hold open doors for me. It's nice to be treated good, but at the same time it's upsetting . I'm still the same person. Has anyone else noticed this?I think someone else had mentioned this but maybe it's YOU! Maybe since you have lost weight, you are smiling more. Maybe you are making more eye contact with other people. And this they are smiling and making eye contact back:)Look at it as a good thing. As you said they are strangers to you. They didnt know how much you weighed previously. So what has changed. Maybe you smiled in their direction first and didnt even realize it:) Sha