Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 I posted this on another group also. My son did his first 3 days of chelation, ending on Monday morning at 4. He now has a cold, he just had one a couple of weeks ago. Do I recall correctly that many of the children, when starting chelation became sick with colds? I am also concerned because he's been awake most the night, and he has not had a sleep problem for a couple of years. Could chelation effect his sleep pattern, I am hoping this is just because he is sick. He does not do well on melatonin so this is not an option. My Dr is very new to chelation, and I'm not sure what to tell him, or how long to wait before starting again, it doesn't look like I will be chelating this weekend. Could that be a problem? First day off chelation was difficult, behaviors WAY UP!!!!!! Aggresion, non-compliance, emotional, by not starting again soon, will the behaviors escalate more? So many questions. Any suggestions? Thanks Leah toxic metals often cause insomnia, and chelation may stir them up. I gave my son 5-HTP(tryptophan) for insomnia and it worked very well; its also likely good for the other problems you mentioned. My son was much better re: anxiousness, mood, sleep when taking 5-HTP. safe also. you can get it from Life Extension Products or health food store or etc. Is he taking Vit C? Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Bernie, Thank you for taking the time to answer all our questions. I have some 5-HTP but have not tryed it yet. Is there a certain time to give it? And what amount would be safe for a 55pd little guy? I figured that the metals caused the sleeplessness, and also the congestion, just another way of getting those metals to leave the body. I took him to the Dr today just to be sure the ear, chest and throat were fine. Everything checked out well. He's in bed now and quiet, I hope he sleeps well. We will go ahead with chelation again on Friday, Oh, and yes he does take vitamin C. I split it up into serveral doses a day because he becomes to hyper if I give him to much at a time, we have tried many vitamin c's and this has been the best way so far. Thanks again, Leah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Hi & welcome to our group! Would you mind giving us some more plagio information about your son? His age, type of band, severity of plagio, etc.? We'd love to hear more about him It is not very common for babies to have trouble sleeping in the helmet, but it is not unheard of either. You say he has a red spot on his forehead, does the red spot completely fade & disappear after the helmet has been off for one hour? If it does fade, then that is ok. If it does not fade, then you should get into your orthotist to have an adjustment made. The first couple wks can be stressful while in the band, becuz it's hard to get the perfect fit. Many people require several trips back to the orthotist for several adjustments. Welcome again, can't wait to hear more from you! Good luck. Debbie Abby's mom DOCGrad MI > My son just got his helmet acouple of days ago and had trouble > sleeping. His forehead is a little red so we took it off. Is it > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Does he get the red spot while sleeping in it? If so, it might be the position he is sleeping. It took a few days before Dane slept in his. We needed to get his body temp used to have a cap on his noggin! Does the red spot go away in one hour? Dane's mom DOC Grad > My son just got his helmet acouple of days ago and had trouble > sleeping. His forehead is a little red so we took it off. Is it > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 My son's name is Tyler. He is almost 8 mos. He has Torticollis, reflux and Plagio. He may also have a fused c1-c2 vertebrae(Dr. appt. next week). He had some redness above his right eye and yes it did go aeay after we took the helmet off. We are going for an adjustment today..Thanks > > My son just got his helmet acouple of days ago and had trouble > > sleeping. His forehead is a little red so we took it off. Is it > > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Dane had reflux, tort and plagio! I was so worried that band was going to start stinking from reflux related accidents! Hopefully the adjustment will do the trick. Does Tyler seem to be outgrowing his reflux? Both my kids were off there reflux meds about 8 months. Dane's mom DOC Grad, tort resolved and reflux OUTGROWN! > > > My son just got his helmet acouple of days ago and had trouble > > > sleeping. His forehead is a little red so we took it off. Is it > > > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Hello and welcome. It is not really common for most babies to have trouble sleeping in their helmet/band although it has been known to happen. If his forehead is red and stays red for more then an hour then adjustment is necessary and you should not put the helmet back on until you have seen the ortho. What kind of device are you using? DOCband, STARband or locally made helmet? If sleeping is a big issue and you can't attribute it to anything else (Ie teething, ear infection, cold, etc) then it may be worth a visit to the ortho to make sure everything is fitting the way it should. We're glad you have joined us and hope you will share some more information about you and your son with the group. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Thanks for the info about Tyler! I'm glad you are getting in for an adjustment - let us know what you find out! Marci (mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Actually the Dr just upped his prilosec because it has gotten a little worse. We just took him to give some blood to check for allergies > > > > My son just got his helmet acouple of days ago and had trouble > > > > sleeping. His forehead is a little red so we took it off. Is > it > > > > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Dane was apnic from reflux, but reglan and zantac or pepcid kept it in line. He also had/has a lot of allergies. It really affected his reflux. I did a total elimination diet and that helped a ton. Last month (at about 9 months) I started reintroducing some of the things into my diet. So far, so good! Sorry to hear about the Prilosec. My friend's twins were on it and sid the purple stained everything easily. Dane's mom DOC Grad > > > > > My son just got his helmet acouple of days ago and had > trouble > > > > > sleeping. His forehead is a little red so we took it off. > Is > > it > > > > > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 > > > My son just got his helmet acouple of days ago and had trouble > > > sleeping. His forehead is a little red so we took it off. Is it > > > common for them to have a difficult time sleeping? Hi & Welcome - My daughter, Sky is 9 months, she got her helmet - she has a STarband -at 7 1/2 months. We were one of the few that had a HORRIBLE time adjusting and sleeping was the WORST!!!! So, you are not alone - I had felt like I was the only one since most babies seem to adjust so easily. She has gotten much better. Alot of the sleeping problem was due to teething at the same time we got the helmet. We also have some problems w/ her ears - so sometimes it is hard to tell - is it the helmet? ears? teeth?????? Good luck - hang in there - the improvement in your little guys head will be worth it Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 I see that you have already received a lot of good responses to your question. I just wanted to wish you luck, and that I hope the adjustment did the trick. You'll have to let us know in the morning how Tyler did in his helmet overnight! Niki Kaylie & Danny (STAR grads) Phila., PA > > > My son just got his helmet acouple of days ago and had trouble > > > sleeping. His forehead is a little red so we took it off. Is it > > > common for them to have a difficult time sleeping? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Hmmm, That is strange that the first night went well and now he is having a hard time sleeping. Could he also be teething? My son never had sleep issues while he was banded. Hope things settle down for ya! Natasha > Hi All, > My son started wearing his Doc Band on Monday. Monday night he slept > fine - he only woke up a bit earlier than normal. Tuesday, Wed and > Thurs he slept awful. He is up every couple of hours and he seems to > cry as he gets himself comfortable. He has a cold right now too and > I can't seem to figure out if it is the band that is making him get > up so much or his cold or a combination. > First I thought it had to be the cold since he slept fine the first > night, however, he usually only wakes up a couples times in the early > night with a cold not constantly all night long. It has crossed my > mind that he has an ear infection too, but he takes his bottles > without a problem and he is fine during the day. > > Did anyone's child have trouble adjusting at night? It just seems > like he cannot get comfortable as he rolls around a lot at night and > the band seems to impede on his sleeping positions. > > I can't wait for the 3-4 months to go by Seems like forever > already and it has only been 4 days! > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 , I'd take him to the ped to get his ears checked. He amy also be teething. Some babies do take some time to adjust to their band while sleeping. Is it leaving any red marks that last more than an hour? > Hi All, > My son started wearing his Doc Band on Monday. Monday night he slept > fine - he only woke up a bit earlier than normal. Tuesday, Wed and > Thurs he slept awful. He is up every couple of hours and he seems to > cry as he gets himself comfortable. He has a cold right now too and > I can't seem to figure out if it is the band that is making him get > up so much or his cold or a combination. > First I thought it had to be the cold since he slept fine the first > night, however, he usually only wakes up a couples times in the early > night with a cold not constantly all night long. It has crossed my > mind that he has an ear infection too, but he takes his bottles > without a problem and he is fine during the day. > > Did anyone's child have trouble adjusting at night? It just seems > like he cannot get comfortable as he rolls around a lot at night and > the band seems to impede on his sleeping positions. > > I can't wait for the 3-4 months to go by Seems like forever > already and it has only been 4 days! > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 , My 7 mo son has only been in his Starband for about 3 weeks and the first few nights were rough! We had to help him find a sleep position that was comfortable for him, which ended up being on his tummy. But, once we finally got him to sleep through the night again, he started with lots of waking. It turned out that he, indeed, had an ear infection along with a nasty cold. Once we got the infection cleared up, he started sleeping and napping really well again. A mom's instinct is a strong thing, so trust yourself and have him checked out by the doc. Good luck! Lori in FL Mom to Christian, Starband 2/17, 7 mons Dominick, 3 1/2 yrs > > Hi All, > > My son started wearing his Doc Band on Monday. Monday night he > slept > > fine - he only woke up a bit earlier than normal. Tuesday, Wed and > > Thurs he slept awful. He is up every couple of hours and he seems > to > > cry as he gets himself comfortable. He has a cold right now too > and > > I can't seem to figure out if it is the band that is making him get > > up so much or his cold or a combination. > > First I thought it had to be the cold since he slept fine the first > > night, however, he usually only wakes up a couples times in the > early > > night with a cold not constantly all night long. It has crossed my > > mind that he has an ear infection too, but he takes his bottles > > without a problem and he is fine during the day. > > > > Did anyone's child have trouble adjusting at night? It just seems > > like he cannot get comfortable as he rolls around a lot at night > and > > the band seems to impede on his sleeping positions. > > > > I can't wait for the 3-4 months to go by Seems like forever > > already and it has only been 4 days! > > > > Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 -Cherie I am sorry that you are having so many problems. How old are you? Unfortunately, I was hitting perimenopause just about the time I got my implants out. I really think that makes it much more difficult to get to feeling good. I belong to another website for people sick with autoimmune disease who are doing the antibiotic therapy. I had several women tell me that their doctors told them that until their hormones were in balance they would find it hard to make progress. One woman told me she took antibiotics for over a year with no progress. Then she got her hormones balanced and her therapy took off and she went into remission. So what I am saying is that your hormones can be intricately tied up with your immune system. When it is constantly changing---during perimenopause--it creates havoc. It is very hard to find balance of hormones during perimenopause but it is possible to be more stable than you are now. Your doctor needs to do some saliva testing of estrogen, progesterone, testosterone, and cortisols. Oh and all your thyroid hormones. Some women are helped by progesterone cream during this time period. I definitely am! Usually women go low in progesterone while the estrogen runs the gamut from high to low on any given day. This imbalance usually causes estrogen dominance symptoms. These may be what you are experiencing. I take natural progesterone cream and capsule both. Usually within a few weeks my hot flashes subside and I start to feel more positive. I just had tests done again and this time they gave me a real low estradiol patch too. It made a significant difference in my terrible moods and headaches. Some women go to low dose oral contraceptives but that did not work for me at all! I prefer the natural compounded estrogens--biest or tri est. Also, maca is supposed to be good for the hormones--all of them. Garden of Life product Multi living for Women contains several things including Maca for women to help with these kind of issues. I think it is a great supplement. It sure couldn't hurt to try it. Try and find a doctor who balances hormones through natural methods. Definitely sleep problems can be related to hormone imbalance. Sleeping pills are a very poor choice. they dont really give you good sleep and they cause your body more harm than help. If you are deficient in progesterone--and I bet you are--taking the progesteron cream will help you sleep better. but it takes awhile for it to work in some people. I actually felt worse for a few weeks and then started seeing good improvements. I think you would benefit from getting saliva testing and taking naturals to get yourself more balanced Hugs, Kathy -- In , " Cherie " <cheriesut@y...> wrote: > > Does anyone have trouble sleeping? I never knew if it was a symptom > of my sickness, or maybe just my age, but I go through spells of not > being able to sleep. As soon as I start to doze off, it's like a > jolt of electricity hits me and I am as awake as if it is the middle > of the day. When I go through these times, no amount of benadryl or > melatonin works. I end up resorting to a sleeping pill. I am so > afraid of getting addicted to sleeping pills, that I really start to > worry about it. The past few nights have been rough, and I think I > am back into one of those sleepless times, the first time since > explant. It seems all my symptoms are back right now, pain and all. > > I went for my annual Gyn visit today and told my doc all about my > explant. I got to feeling so awful in the exam room, my head > pounding and started sweating all over. (Not nerves). She said it > may be low estrogen, said I may need estrogen when I hit menopause, > and sent me on my way. I really felt like crying that she had no > other help for me NOW, not after menopause! I guess I should have > requested more help, but I just felt awful at the time. As I am > allergic to Tylenol and all other over-the-counter pain meds, I > found myself taking a Vicoden for the headache and all over pain, > which I don't want to get addicted to either. I'm sorry, the pain > meds make me ramble. I wish I would feel better enough not to need > any of it! > Thanks guys, > Cherie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Kathy - I'm 45. I do feel like I'm physically stuck - with autoimmune disease, weight, sleep, etc. Where would I begin to look for a gyn that would test my saliva? I am about to order the Primal and fungal defense - once ths month's bills are paid. Maybe I should include the Multi Living for Women. I probably am hitting perimenopause, but in the middle of the night when I am lying there awake, it's hard to make a wise decision not to use the sleeping pill. Would love to find a doc like the one you talk about. Gratefully, Cherie --- In , " mikat828 " <mikat828@y...> wrote: > > -Cherie > I am sorry that you are having so many problems. How old are you? > Unfortunately, I was hitting perimenopause just about the time I got > my implants out. I really think that makes it much more difficult > to get to feeling good. I belong to another website for people sick > with autoimmune disease who are doing the antibiotic therapy. I had > several women tell me that their doctors told them that until their > hormones were in balance they would find it hard to make progress. > One woman told me she took antibiotics for over a year with no > progress. Then she got her hormones balanced and her therapy took > off and she went into remission. So what I am saying is that your > hormones can be intricately tied up with your immune system. When > it is constantly changing---during perimenopause--it creates havoc. > It is very hard to find balance of hormones during perimenopause but > it is possible to be more stable than you are now. Your doctor > needs to do some saliva testing of estrogen, progesterone, > testosterone, and cortisols. Oh and all your thyroid hormones. > Some women are helped by progesterone cream during this time > period. I definitely am! Usually women go low in progesterone > while the estrogen runs the gamut from high to low on any given > day. This imbalance usually causes estrogen dominance symptoms. > These may be what you are experiencing. I take natural progesterone > cream and capsule both. Usually within a few weeks my hot flashes > subside and I start to feel more positive. I just had tests done > again and this time they gave me a real low estradiol patch too. It > made a significant difference in my terrible moods and headaches. > Some women go to low dose oral contraceptives but that did not work > for me at all! I prefer the natural compounded estrogens--biest or > tri est. Also, maca is supposed to be good for the hormones--all of > them. Garden of Life product Multi living for Women contains > several things including Maca for women to help with these kind of > issues. I think it is a great supplement. It sure couldn't hurt to > try it. Try and find a doctor who balances hormones through natural > methods. Definitely sleep problems can be related to hormone > imbalance. Sleeping pills are a very poor choice. they dont really > give you good sleep and they cause your body more harm than help. > If you are deficient in progesterone--and I bet you are--taking the > progesteron cream will help you sleep better. but it takes awhile > for it to work in some people. I actually felt worse for a few > weeks and then started seeing good improvements. I think you would > benefit from getting saliva testing and taking naturals to get > yourself more balanced > Hugs, Kathy > > > > > > > > -- In , " Cherie " <cheriesut@y...> wrote: > > > > Does anyone have trouble sleeping? I never knew if it was a > symptom > > of my sickness, or maybe just my age, but I go through spells of > not > > being able to sleep. As soon as I start to doze off, it's like a > > jolt of electricity hits me and I am as awake as if it is the > middle > > of the day. When I go through these times, no amount of benadryl > or > > melatonin works. I end up resorting to a sleeping pill. I am so > > afraid of getting addicted to sleeping pills, that I really start > to > > worry about it. The past few nights have been rough, and I think > I > > am back into one of those sleepless times, the first time since > > explant. It seems all my symptoms are back right now, pain and > all. > > > > I went for my annual Gyn visit today and told my doc all about my > > explant. I got to feeling so awful in the exam room, my head > > pounding and started sweating all over. (Not nerves). She said it > > may be low estrogen, said I may need estrogen when I hit > menopause, > > and sent me on my way. I really felt like crying that she had no > > other help for me NOW, not after menopause! I guess I should have > > requested more help, but I just felt awful at the time. As I am > > allergic to Tylenol and all other over-the-counter pain meds, I > > found myself taking a Vicoden for the headache and all over pain, > > which I don't want to get addicted to either. I'm sorry, the pain > > meds make me ramble. I wish I would feel better enough not to > need > > any of it! > > Thanks guys, > > Cherie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 If you can't find someone to do saliva testing, my ND will do it for you. He sends out the test kits, you do the test, send it to the lab and the results are sent to him. There would be a charge for the telephone conference when he gets your results in. There are a couple of women here who have treated with him. You also could be low in certain aminos that help with sleep so you'd probably want to test for these as well. Kenda > Kathy - I'm 45. I do feel like I'm physically stuck - with > autoimmune disease, weight, sleep, etc. Where would I begin to look > for a gyn that would test my saliva? I am about to order the Primal > and fungal defense - once ths month's bills are paid. Maybe I should > include the Multi Living for Women. I probably am hitting > perimenopause, but in the middle of the night when I am lying there > awake, it's hard to make a wise decision not to use the sleeping > pill. Would love to find a doc like the one you talk about. > Gratefully, > Cherie > >>> >>> Does anyone have trouble sleeping? I never knew if it was a >> symptom >>> of my sickness, or maybe just my age, but I go through spells of >> not >>> being able to sleep. As soon as I start to doze off, it's like > a >>> jolt of electricity hits me and I am as awake as if it is the >> middle >>> of the day. When I go through these times, no amount of > benadryl >> or >>> melatonin works. I end up resorting to a sleeping pill. I am > so >>> afraid of getting addicted to sleeping pills, that I really > start >> to >>> worry about it. The past few nights have been rough, and I > think >> I >>> am back into one of those sleepless times, the first time since >>> explant. It seems all my symptoms are back right now, pain and >> all. >>> >>> I went for my annual Gyn visit today and told my doc all about > my >>> explant. I got to feeling so awful in the exam room, my head >>> pounding and started sweating all over. (Not nerves). She said > it >>> may be low estrogen, said I may need estrogen when I hit >> menopause, >>> and sent me on my way. I really felt like crying that she had > no >>> other help for me NOW, not after menopause! I guess I should > have >>> requested more help, but I just felt awful at the time. As I am >>> allergic to Tylenol and all other over-the-counter pain meds, I >>> found myself taking a Vicoden for the headache and all over > pain, >>> which I don't want to get addicted to either. I'm sorry, the > pain >>> meds make me ramble. I wish I would feel better enough not to >> need >>> any of it! >>> Thanks guys, >>> Cherie >>> >> > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > health care professionals. Consult your physician or licensed health care > professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. > Find out what the facts are, and make your own decisions about how to live a > happy life and how to work for a better world. " - Linus ing, two-time > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Kenda - I would be interested in that testing. I'm so tired and have no idea what to expect when I lay my head down tonight. Thank you. Cherie > >>> > >>> Does anyone have trouble sleeping? I never knew if it was a > >> symptom > >>> of my sickness, or maybe just my age, but I go through spells of > >> not > >>> being able to sleep. As soon as I start to doze off, it's like > > a > >>> jolt of electricity hits me and I am as awake as if it is the > >> middle > >>> of the day. When I go through these times, no amount of > > benadryl > >> or > >>> melatonin works. I end up resorting to a sleeping pill. I am > > so > >>> afraid of getting addicted to sleeping pills, that I really > > start > >> to > >>> worry about it. The past few nights have been rough, and I > > think > >> I > >>> am back into one of those sleepless times, the first time since > >>> explant. It seems all my symptoms are back right now, pain and > >> all. > >>> > >>> I went for my annual Gyn visit today and told my doc all about > > my > >>> explant. I got to feeling so awful in the exam room, my head > >>> pounding and started sweating all over. (Not nerves). She said > > it > >>> may be low estrogen, said I may need estrogen when I hit > >> menopause, > >>> and sent me on my way. I really felt like crying that she had > > no > >>> other help for me NOW, not after menopause! I guess I should > > have > >>> requested more help, but I just felt awful at the time. As I am > >>> allergic to Tylenol and all other over-the-counter pain meds, I > >>> found myself taking a Vicoden for the headache and all over > > pain, > >>> which I don't want to get addicted to either. I'm sorry, the > > pain > >>> meds make me ramble. I wish I would feel better enough not to > >> need > >>> any of it! > >>> Thanks guys, > >>> Cherie > >>> > >> > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed > > health care professionals. Consult your physician or licensed health care > > professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians mislead you. > > Find out what the facts are, and make your own decisions about how to live a > > happy life and how to work for a better world. " - Linus ing, two-time > > Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > > > See our photos website! Enter " implants " for access at this link: > > http://.shutterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 - Cherie You could try calling around to different ob/gyn offices and ask if they use compounded natural hormones and do saliva testing. Also, sometimes health food stores--locally owned ones--know of doctors practicing more natural medicine. I actually go to a family practice doctor who advertises that she specializes in hormone problems. I found out that she did the saliva testing. My regular gyne doesn't do saliva testing but still allowed me to try biest and natural progesterone cream. But I preferred to have the testing done. Sometimes you can find that kind of information online too. The problem with sleeping pills is that they really dont give you restorative sleep and can be addicting and have many many side effects. For along time I depended on ativan to help me sleep and to get through some hard times. Then one day I realized that I was having withdrawal symptoms between doses (they were very small doses and I was shocked). When I looked them up online I found they had many many nasty sideeffects--including depression. Actually many of the side effects from the ativan were the same as for autoimmune disease. I decided to cut them out cold turkey and felt like I was having a stroke. Even though I have been tempted at times to take one here or there, I just won't anymore. They helped me sleep but I never really felt any better and I read that the sleep was not stage four sleep. Actually some antidepressants are supposed to be able to do that but the one I tried I hated and they have side effects too. I did buy a tape on relaxation that is very good and it does help me drift to sleep. I have been sleep deprived for years --and have gone years without normal sleep. It is a wonder that I am as well as I am! Rest is essential as it is when the body repairs itself. But the kind of sleep produced by sleeping pills won't give you that. Yes, I would encourage you to try living multi. Go the website and you can see all the ingredients. I get mine at appleadayandbeyond.com and they have really good prices. but you must to a telephone order to get the best price. Good luck and I really can sympathise with where you are at right now. Hugs Kathy -- In , " Cherie " <cheriesut@y...> wrote: > > Kathy - I'm 45. I do feel like I'm physically stuck - with > autoimmune disease, weight, sleep, etc. Where would I begin to look > for a gyn that would test my saliva? I am about to order the Primal > and fungal defense - once ths month's bills are paid. Maybe I should > include the Multi Living for Women. I probably am hitting > perimenopause, but in the middle of the night when I am lying there > awake, it's hard to make a wise decision not to use the sleeping > pill. Would love to find a doc like the one you talk about. > Gratefully, > Cherie > > > > > > > Does anyone have trouble sleeping? I never knew if it was a > > symptom > > > of my sickness, or maybe just my age, but I go through spells of > > not > > > being able to sleep. As soon as I start to doze off, it's like > a > > > jolt of electricity hits me and I am as awake as if it is the > > middle > > > of the day. When I go through these times, no amount of > benadryl > > or > > > melatonin works. I end up resorting to a sleeping pill. I am > so > > > afraid of getting addicted to sleeping pills, that I really > start > > to > > > worry about it. The past few nights have been rough, and I > think > > I > > > am back into one of those sleepless times, the first time since > > > explant. It seems all my symptoms are back right now, pain and > > all. > > > > > > I went for my annual Gyn visit today and told my doc all about > my > > > explant. I got to feeling so awful in the exam room, my head > > > pounding and started sweating all over. (Not nerves). She said > it > > > may be low estrogen, said I may need estrogen when I hit > > menopause, > > > and sent me on my way. I really felt like crying that she had > no > > > other help for me NOW, not after menopause! I guess I should > have > > > requested more help, but I just felt awful at the time. As I am > > > allergic to Tylenol and all other over-the-counter pain meds, I > > > found myself taking a Vicoden for the headache and all over > pain, > > > which I don't want to get addicted to either. I'm sorry, the > pain > > > meds make me ramble. I wish I would feel better enough not to > > need > > > any of it! > > > Thanks guys, > > > Cherie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Cherie, I've been trying to respond to your message and for some reason my e-mails were " bouncing " . Anyway, I'm trying again and hopefully my messages will post again. I've been having a tough time sleeping as well. A few years ago I went into early menopause and that's when my sleep issues began. Two years ago I went on the pill and was sleeping like a baby. However, after I got the implants my sleep issues came back, even though I was still on the pill. I went off the pill because it seemed to make my symptoms worse, and it raised my blood pressure, and since I went off it I'm sleeping even worse than before. I'm not feeling that great lately, either - so try not to get discouraged in your healing because I'm right there with ya, and the buddy system has it's merits. I'm 2 months post op, and I think you're a few weeks further along than me, but it helps me to have someone who had their surgery at around the same time and is experiencing similar things. I hate to see you suffer, I don't wish this on anyone, but it helps to know that what's happening with me isn't abnormal considering it's only been a few months. Kathy - I'd really like to find a physician who compounds their own hormones, I'll have to visit the healthfood store in town and see if the owner knows of anyone. Do natural hormones have side effects like the pill? Cherie, if you find anyone in your area, let me know - I'd drive a couple of hours if someone could help me. Sis > > > > > > > > Does anyone have trouble sleeping? I never knew if it was a > > > symptom > > > > of my sickness, or maybe just my age, but I go through spells > of > > > not > > > > being able to sleep. As soon as I start to doze off, it's > like > > a > > > > jolt of electricity hits me and I am as awake as if it is the > > > middle > > > > of the day. When I go through these times, no amount of > > benadryl > > > or > > > > melatonin works. I end up resorting to a sleeping pill. I am > > so > > > > afraid of getting addicted to sleeping pills, that I really > > start > > > to > > > > worry about it. The past few nights have been rough, and I > > think > > > I > > > > am back into one of those sleepless times, the first time > since > > > > explant. It seems all my symptoms are back right now, pain > and > > > all. > > > > > > > > I went for my annual Gyn visit today and told my doc all about > > my > > > > explant. I got to feeling so awful in the exam room, my head > > > > pounding and started sweating all over. (Not nerves). She > said > > it > > > > may be low estrogen, said I may need estrogen when I hit > > > menopause, > > > > and sent me on my way. I really felt like crying that she had > > no > > > > other help for me NOW, not after menopause! I guess I should > > have > > > > requested more help, but I just felt awful at the time. As I > am > > > > allergic to Tylenol and all other over-the-counter pain meds, > I > > > > found myself taking a Vicoden for the headache and all over > > pain, > > > > which I don't want to get addicted to either. I'm sorry, the > > pain > > > > meds make me ramble. I wish I would feel better enough not to > > > need > > > > any of it! > > > > Thanks guys, > > > > Cherie > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Cherie, A sleep disorder goes hand-in-glove with fibromyalgia. .. . A real chicken and egg situation! . . . And Fibromyalgia is VERY common among implanted women. You might do a websearch to learn more about FM. Understanding it goes a long way to help to manage it. With FM, the covering of the muscle becomes very taut, pulling on the joints. This makes one hurt all over - especially if one is not able to be up and about! The body does it's repair work during deep sleep - so if you're not getting deep sleep, you can expect to have more pain! I've always been a person who didn't need much sleep. After I got sick with my implants, I reached a point where I couldn't sleep! I thought I was coping - but I now realise I wasn't coping at all! mentally or physically! I do take a sleep medication. It was prescribed by a neurologist whose wife and daughter both have FM. The prescription he gave me would allow twice the amount I take (15 mg. temazapam nightly), but I've never allowed myself to take that much. I may be addicted, I don't know. I've gone off it from time to time to see if I feel any different . . . After a point, I decide I'd rather get a good nights sleep than worry about addiction. I have had a couple doctors who tried to put me on other medications - but I reacted very poorly to those - not to mention they cost many times what my medication costs. Most of my doctors, when they know that, with medication, I'm able to manage my FM to the point of no symptoms, they don't mind prescribing it. However, they do not write prescriptions so I could take a double dose! Occasionally, I'll still have trouble getting to sleep or staying asleep . . . That's when I resort to a number of techniques that help. . . A hot bath, Sleep Time Tea, or a very boring book (try concentrating on alegbra). Supplementing with Magnesium also helps - You will need two parts Calcium to one part magnesium. Garden of Life's Living Calcium is great! Right now, I'm feeling the effects of having gotten off my program over the holidays! . . . Not sleeping well, muscle pain, anxiety, fatigue, etc. . . As I see it, staying well after implants can mean adopting an entire program geared to eating right, getting sufficient sleep and exercise - as well as managing stress and anger! . . . It feels like a never ending juggling act! It's time for you to pamper yourself so your body has every chance to recover! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 You are all so right! When all this started, my primary doc thought I had fibromyalgia, but the rheumatologist did not. As it turns out, after he was focusing on just one tender point, he never even heard me talk about my sleep problems or pain in between my shoulder blades, etc. He was surprised when I reminded him of that. I don't actually want the official diagnosis of FM right now, because I am trying to switch to a new health insurance. Health insurance for my family right now is up to 1,050 per month!! Can't keep this up, need to find something cheaper. But that's off the subject. I know I need restorative sleep to heal, but sometimes I feel that with the Ambien, at least I am getting some sleep and not lying there worring about sleeping or not. I try reading, and get sleepy, but as soon as I start to drift off, something electrical happens in my brain, and I awaken - not even to feel sleepy. A few years ago I was on Lexapro, which solved all my sleep problems, but I didn't like the lack of any sort of emotion and weight gain, so I painfully withdrew, not to go back again! I work in the gyn field (transcription) so am familiar with all our local docs, and have not heard of one who practices anything other than standard stuff. But the city of Philadelphia is not far, and should be big enough to find someone to help. Sis, I will let you know, and same with you, I am willing to drive to find someone to help. If not, I am very interested in Kenda's doc. I was wondering if the symptoms I have been feeling could be a reaction from the sleeping pills or even the pain meds that I have had to take lately. Yikes, who knows, could it be the meds, FM, implants, hormones, something I ate, herxing, -- HEEELLP!! It really is great to have you guys to share with - there really is no person I know who can really understand this stuff, though my husband is really trying! Thanks, Cherie > > Cherie, > > A sleep disorder goes hand-in-glove with fibromyalgia. > . . A real chicken and egg situation! . . . And > Fibromyalgia is VERY common among implanted women. You > might do a websearch to learn more about FM. > Understanding it goes a long way to help to manage it. > > With FM, the covering of the muscle becomes very taut, > pulling on the joints. This makes one hurt all over - > especially if one is not able to be up and about! > > The body does it's repair work during deep sleep - so > if you're not getting deep sleep, you can expect to > have more pain! > > I've always been a person who didn't need much sleep. > After I got sick with my implants, I reached a point > where I couldn't sleep! I thought I was coping - but I > now realise I wasn't coping at all! mentally or > physically! > > I do take a sleep medication. It was prescribed by a > neurologist whose wife and daughter both have FM. The > prescription he gave me would allow twice the amount I > take (15 mg. temazapam nightly), but I've never > allowed myself to take that much. I may be addicted, I > don't know. I've gone off it from time to time to see > if I feel any different . . . After a point, I decide > I'd rather get a good nights sleep than worry about > addiction. I have had a couple doctors who tried to > put me on other medications - but I reacted very > poorly to those - not to mention they cost many times > what my medication costs. Most of my doctors, when > they know that, with medication, I'm able to manage my > FM to the point of no symptoms, they don't mind > prescribing it. However, they do not write > prescriptions so I could take a double dose! > > Occasionally, I'll still have trouble getting to sleep > or staying asleep . . . That's when I resort to a > number of techniques that help. . . A hot bath, Sleep > Time Tea, or a very boring book (try concentrating on > alegbra). Supplementing with Magnesium also helps - > You will need two parts Calcium to one part magnesium. > Garden of Life's Living Calcium is great! > > Right now, I'm feeling the effects of having gotten > off my program over the holidays! . . . Not sleeping > well, muscle pain, anxiety, fatigue, etc. . . As I see > it, staying well after implants can mean adopting an > entire program geared to eating right, getting > sufficient sleep and exercise - as well as managing > stress and anger! . . . It feels like a never ending > juggling act! > > It's time for you to pamper yourself so your body has > every chance to recover! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Cherie, You're smart not to collect diagnoses! . . . It can ruin your insurance! Working with a doc like Kenda's is expensive up front, but in the long run it will cost you much, much less since your insurance won't be affected. What I'm hearing from you is that you're stressing over all the symptoms you're having . . . Stress is every bit as bad as any illness you may have. If you're like virtually all the women who come here, your symptoms will gradually fade away and you'll find life is great again! I suggest that you just accept any and all symptoms you experience as a temporary situation that you WILL move through. Try to put them out of your mind by taking postive action. Nobody can tell you how long it's going to take. That's highly dependent on how much you put into your own program. Keep telling yourself " When I cheat, I cheat only myself! " If you have an immediate need, by all means see your doctor. Otherwise, experiment with different things that may help. If you can't afford supplements, you can find alternatives in fresh, wholesome foods. . . . Some suggestions: Eating raw, crushed, fresh garlic is one of the cheapest, most effective foods there is. Make your own organic sauerkraut and eat it raw . . . a tablespoon several times a day. Avoid sugar like the plague! Avoid processed foods! Make everything for yourself! Get " The Maker's Diet " by Rubin and use that as a dietary goal. Find a good yoga tape and start working on stretches that will take the pain out of fibromyalgia. Get a book on massage from the library and learn how to massage the parts of your body you can reach. You can attach devices to the wall to work on back, or hard to reach, muscles. Liver flushes are very inexpensive and very effective. Mediation is outstanding. Visualizing yourself as happy, healthy and active is extremely effective as well as free! Sweat therapy is great! Espom salt baths will help draw the toxins out of your body while putting magnesium in! Magnesium will help with muscle pain since 20% of the body's magnesium is found in the muscles. Our archives are full of things we've tried and found sucessful! . . . What works is highly individual, so we can't write a prescription. Even if we could, you won't find the answer in a pill! If you'll keep a daily journal describing how you feel and what you're doing to get better, you'll begin to see what is working and what doesn't. And, when you have those inevitable bad days, you'll be able to look back and see how far you've come. You're on the right track . . . Your job is to stay on track until you get to where you want to go. What you'll get out of all this will will change your life for the better from now on! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Rogene - thank you - I'm going to print your list and try it. Sometimes it really is stressful to try to get well - hearing so much good advice, and not knowing what to do first. I have had quite a few good days since explant, but so easy to get discouraged when I'm feeling down. I really would like to have a natural doc who really knew what to test for and how to treat me. The one I was going to practiced kinesiology, and I'm just not convinced and felt like I was throwing a lot of money away, not getting well. I like the idea of the saliva test - it just seems more logical to me. I have switched to wholesome food, but have not yet given up all sugar. The family is more difficult to convince and they try to make me feel like I'm depriving them if I don't buy them Oreos, but I feel like I'm poisoning them if I do! I really liked the article you posted on MSG and the addiction that develops (although I do like and support ). Back to work, Cherie > > Cherie, > > You're smart not to collect diagnoses! . . . It can > ruin your insurance! Working with a doc like Kenda's > is expensive up front, but in the long run it will > cost you much, much less since your insurance won't be > affected. > > What I'm hearing from you is that you're stressing > over all the symptoms you're having . . . Stress is > every bit as bad as any illness you may have. If > you're like virtually all the women who come here, > your symptoms will gradually fade away and you'll find > life is great again! > > I suggest that you just accept any and all symptoms > you experience as a temporary situation that you WILL > move through. Try to put them out of your mind by > taking postive action. Nobody can tell you how long > it's going to take. That's highly dependent on how > much you put into your own program. Keep telling > yourself " When I cheat, I cheat only myself! " > > If you have an immediate need, by all means see your > doctor. Otherwise, experiment with different things > that may help. If you can't afford supplements, you > can find alternatives in fresh, wholesome foods. . . . > > > Some suggestions: > > Eating raw, crushed, fresh garlic is one of the > cheapest, most effective foods there is. > > Make your own organic sauerkraut and eat it raw . . . > a tablespoon several times a day. > > Avoid sugar like the plague! > > Avoid processed foods! Make everything for yourself! > > Get " The Maker's Diet " by Rubin and use that as a > dietary goal. > > Find a good yoga tape and start working on stretches > that will take the pain out of fibromyalgia. > > Get a book on massage from the library and learn how > to massage the parts of your body you can reach. You > can attach devices to the wall to work on back, or > hard to reach, muscles. > > Liver flushes are very inexpensive and very effective. > > > Mediation is outstanding. > > Visualizing yourself as happy, healthy and active is > extremely effective as well as free! > > Sweat therapy is great! > > Espom salt baths will help draw the toxins out of your > body while putting magnesium in! Magnesium will help > with muscle pain since 20% of the body's magnesium is > found in the muscles. > > Our archives are full of things we've tried and found > sucessful! . . . What works is highly individual, so > we can't write a prescription. Even if we could, you > won't find the answer in a pill! > > If you'll keep a daily journal describing how you feel > and what you're doing to get better, you'll begin to > see what is working and what doesn't. And, when you > have those inevitable bad days, you'll be able to look > back and see how far you've come. > > You're on the right track . . . Your job is to stay on > track until you get to where you want to go. What > you'll get out of all this will will change your life > for the better from now on! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
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