trouble sleeping

[Guest guest]

I posted this on another group also. My son did his first 3 days

of chelation, ending on Monday morning at 4. He now has a cold, he

just had one a couple of weeks ago. Do I recall correctly that many

of the children, when starting chelation became sick with colds? I am

also concerned because he's been awake most the night, and he has not

had a sleep problem for a couple of years. Could chelation effect his

sleep pattern, I am hoping this is just because he is sick. He does

not do well on melatonin so this is not an option. My Dr is very new

to chelation, and I'm not sure what to tell him, or how long to wait

before starting again, it doesn't look like I will be chelating this

weekend. Could that be a problem? First day off chelation was

difficult, behaviors WAY UP!!!!!! Aggresion, non-compliance,

emotional, by not starting again soon, will the behaviors escalate

more? So many questions. Any suggestions? Thanks Leah

toxic metals often cause insomnia, and chelation may stir them up. I

gave my son

5-HTP(tryptophan) for insomnia and it worked very well; its also likely

good for the other problems you mentioned. My son was much better re:

anxiousness, mood, sleep

when taking 5-HTP. safe also. you can get it from Life Extension

Products or health food store or etc. Is he taking Vit C?

Bernie

[Guest guest]

Bernie,

Thank you for taking the time to answer all our questions. I have

some 5-HTP but have not tryed it yet. Is there a certain time to give

it? And what amount would be safe for a 55pd little guy? I figured

that the metals caused the sleeplessness, and also the congestion,

just another way of getting those metals to leave the body. I took

him to the Dr today just to be sure the ear, chest and throat were

fine. Everything checked out well. He's in bed now and quiet, I hope

he sleeps well. We will go ahead with chelation again on Friday, Oh,

and yes he does take vitamin C. I split it up into serveral doses a

day because he becomes to hyper if I give him to much at a time, we

have tried many vitamin c's and this has been the best way so far.

Thanks again, Leah

[Guest guest]

Hi & welcome to our group!

Would you mind giving us some more plagio information about your

son? His age, type of band, severity of plagio, etc.? We'd love to

hear more about him

It is not very common for babies to have trouble sleeping in the

helmet, but it is not unheard of either.

You say he has a red spot on his forehead, does the red spot

completely fade & disappear after the helmet has been off for one

hour? If it does fade, then that is ok. If it does not fade, then

you should get into your orthotist to have an adjustment made.

The first couple wks can be stressful while in the band, becuz it's

hard to get the perfect fit. Many people require several trips back

to the orthotist for several adjustments.

Welcome again, can't wait to hear more from you! Good luck.

Debbie Abby's mom DOCGrad

MI

> My son just got his helmet acouple of days ago and had trouble

> sleeping. His forehead is a little red so we took it off. Is it

> common for them to have a difficult time sleeping?

[Guest guest]

Does he get the red spot while sleeping in it? If so, it might be

the position he is sleeping.

It took a few days before Dane slept in his. We needed to get his

body temp used to have a cap on his noggin!

Does the red spot go away in one hour?

Dane's mom DOC Grad

> My son just got his helmet acouple of days ago and had trouble

> sleeping. His forehead is a little red so we took it off. Is it

> common for them to have a difficult time sleeping?

[Guest guest]

My son's name is Tyler. He is almost 8 mos. He has Torticollis,

reflux and Plagio. He may also have a fused c1-c2 vertebrae(Dr.

appt. next week). He had some redness above his right eye and yes it

did go aeay after we took the helmet off. We are going for an

adjustment today..Thanks

> > My son just got his helmet acouple of days ago and had trouble

> > sleeping. His forehead is a little red so we took it off. Is it

> > common for them to have a difficult time sleeping?

[Guest guest]

Dane had reflux, tort and plagio! I was so worried that band was

going to start stinking from reflux related accidents!

Hopefully the adjustment will do the trick.

Does Tyler seem to be outgrowing his reflux? Both my kids were off

there reflux meds about 8 months.

Dane's mom DOC Grad, tort resolved and reflux OUTGROWN!

> > > My son just got his helmet acouple of days ago and had trouble

> > > sleeping. His forehead is a little red so we took it off. Is

it

> > > common for them to have a difficult time sleeping?

[Guest guest]

Hello and welcome. It is not really common for most babies to have trouble

sleeping in their helmet/band although it has been known to happen. If his

forehead is red and stays red for more then an hour then adjustment is necessary

and you should not put the helmet back on until you have seen the ortho. What

kind of device are you using? DOCband, STARband or locally made helmet? If

sleeping is a big issue and you can't attribute it to anything else (Ie

teething, ear infection, cold, etc) then it may be worth a visit to the ortho to

make sure everything is fitting the way it should.

We're glad you have joined us and hope you will share some more information

about you and your son with the group.

Marci (Mom to )

Oklahoma

[Guest guest]

Thanks for the info about Tyler! I'm glad you are getting in for an adjustment -

let us know what you find out!

Marci (mom to )

Oklahoma

[Guest guest]

Actually the Dr just upped his prilosec because it has gotten a

little worse. We just took him to give some blood to check for

allergies

> > > > My son just got his helmet acouple of days ago and had

trouble

> > > > sleeping. His forehead is a little red so we took it off.

Is

> it

> > > > common for them to have a difficult time sleeping?

[Guest guest]

Dane was apnic from reflux, but reglan and zantac or pepcid kept it

in line.

He also had/has a lot of allergies. It really affected his reflux.

I did a total elimination diet and that helped a ton. Last month

(at about 9 months) I started reintroducing some of the things into

my diet. So far, so good!

Sorry to hear about the Prilosec. My friend's twins were on it and

sid the purple stained everything easily.

Dane's mom DOC Grad

> > > > > My son just got his helmet acouple of days ago and had

> trouble

> > > > > sleeping. His forehead is a little red so we took it

off.

> Is

> > it

> > > > > common for them to have a difficult time sleeping?

[Guest guest]

> > > My son just got his helmet acouple of days ago and had trouble

> > > sleeping. His forehead is a little red so we took it off. Is

it

> > > common for them to have a difficult time sleeping?

Hi & Welcome -

My daughter, Sky is 9 months, she got her helmet - she has a

STarband -at 7 1/2 months. We were one of the few that had a

HORRIBLE time adjusting and sleeping was the WORST!!!! So, you are

not alone - I had felt like I was the only one since most babies seem

to adjust so easily. She has gotten much better. Alot of the

sleeping problem was due to teething at the same time we got the

helmet. We also have some problems w/ her ears - so sometimes it is

hard to tell - is it the helmet? ears? teeth?????? Good luck - hang

in there - the improvement in your little guys head will be worth it

Kim

[Guest guest]

I see that you have already received a lot of good responses to your

question. I just wanted to wish you luck, and that I hope the

adjustment did the trick. You'll have to let us know in the morning

how Tyler did in his helmet overnight!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> > > My son just got his helmet acouple of days ago and had trouble

> > > sleeping. His forehead is a little red so we took it off. Is

it

> > > common for them to have a difficult time sleeping?

[Guest guest]

Hmmm,

That is strange that the first night went well and now he is having a

hard time sleeping. Could he also be teething? My son never had

sleep issues while he was banded. Hope things settle down for ya!

Natasha

> Hi All,

> My son started wearing his Doc Band on Monday. Monday night he

slept

> fine - he only woke up a bit earlier than normal. Tuesday, Wed and

> Thurs he slept awful. He is up every couple of hours and he seems

to

> cry as he gets himself comfortable. He has a cold right now too

and

> I can't seem to figure out if it is the band that is making him get

> up so much or his cold or a combination.

> First I thought it had to be the cold since he slept fine the first

> night, however, he usually only wakes up a couples times in the

early

> night with a cold not constantly all night long. It has crossed my

> mind that he has an ear infection too, but he takes his bottles

> without a problem and he is fine during the day.

>

> Did anyone's child have trouble adjusting at night? It just seems

> like he cannot get comfortable as he rolls around a lot at night

and

> the band seems to impede on his sleeping positions.

>

> I can't wait for the 3-4 months to go by Seems like forever

> already and it has only been 4 days!

>

> Thanks!

>

>

[Guest guest]

,

I'd take him to the ped to get his ears checked. He amy also be

teething. Some babies do take some time to adjust to their band while

sleeping. Is it leaving any red marks that last more than an hour?

> Hi All,

> My son started wearing his Doc Band on Monday. Monday night he

slept

> fine - he only woke up a bit earlier than normal. Tuesday, Wed and

> Thurs he slept awful. He is up every couple of hours and he seems

to

> cry as he gets himself comfortable. He has a cold right now too

and

> I can't seem to figure out if it is the band that is making him get

> up so much or his cold or a combination.

> First I thought it had to be the cold since he slept fine the first

> night, however, he usually only wakes up a couples times in the

early

> night with a cold not constantly all night long. It has crossed my

> mind that he has an ear infection too, but he takes his bottles

> without a problem and he is fine during the day.

>

> Did anyone's child have trouble adjusting at night? It just seems

> like he cannot get comfortable as he rolls around a lot at night

and

> the band seems to impede on his sleeping positions.

>

> I can't wait for the 3-4 months to go by Seems like forever

> already and it has only been 4 days!

>

> Thanks!

>

>

[Guest guest]

,

My 7 mo son has only been in his Starband for about 3 weeks and the

first few nights were rough! We had to help him find a sleep

position that was comfortable for him, which ended up being on his

tummy. But, once we finally got him to sleep through the night

again, he started with lots of waking. It turned out that he,

indeed, had an ear infection along with a nasty cold. Once we got

the infection cleared up, he started sleeping and napping really well

again. A mom's instinct is a strong thing, so trust yourself and

have him checked out by the doc.

Good luck!

Lori in FL

Mom to Christian, Starband 2/17, 7 mons

Dominick, 3 1/2 yrs

> > Hi All,

> > My son started wearing his Doc Band on Monday. Monday night he

> slept

> > fine - he only woke up a bit earlier than normal. Tuesday, Wed

and

> > Thurs he slept awful. He is up every couple of hours and he

seems

> to

> > cry as he gets himself comfortable. He has a cold right now too

> and

> > I can't seem to figure out if it is the band that is making him

get

> > up so much or his cold or a combination.

> > First I thought it had to be the cold since he slept fine the

first

> > night, however, he usually only wakes up a couples times in the

> early

> > night with a cold not constantly all night long. It has crossed

my

> > mind that he has an ear infection too, but he takes his bottles

> > without a problem and he is fine during the day.

> >

> > Did anyone's child have trouble adjusting at night? It just

seems

> > like he cannot get comfortable as he rolls around a lot at night

> and

> > the band seems to impede on his sleeping positions.

> >

> > I can't wait for the 3-4 months to go by Seems like forever

> > already and it has only been 4 days!

> >

> > Thanks!

> >

> >

[Guest guest]

-Cherie

I am sorry that you are having so many problems. How old are you?

Unfortunately, I was hitting perimenopause just about the time I got

my implants out. I really think that makes it much more difficult

to get to feeling good. I belong to another website for people sick

with autoimmune disease who are doing the antibiotic therapy. I had

several women tell me that their doctors told them that until their

hormones were in balance they would find it hard to make progress.

One woman told me she took antibiotics for over a year with no

progress. Then she got her hormones balanced and her therapy took

off and she went into remission. So what I am saying is that your

hormones can be intricately tied up with your immune system. When

it is constantly changing---during perimenopause--it creates havoc.

It is very hard to find balance of hormones during perimenopause but

it is possible to be more stable than you are now. Your doctor

needs to do some saliva testing of estrogen, progesterone,

testosterone, and cortisols. Oh and all your thyroid hormones.

Some women are helped by progesterone cream during this time

period. I definitely am! Usually women go low in progesterone

while the estrogen runs the gamut from high to low on any given

day. This imbalance usually causes estrogen dominance symptoms.

These may be what you are experiencing. I take natural progesterone

cream and capsule both. Usually within a few weeks my hot flashes

subside and I start to feel more positive. I just had tests done

again and this time they gave me a real low estradiol patch too. It

made a significant difference in my terrible moods and headaches.

Some women go to low dose oral contraceptives but that did not work

for me at all! I prefer the natural compounded estrogens--biest or

tri est. Also, maca is supposed to be good for the hormones--all of

them. Garden of Life product Multi living for Women contains

several things including Maca for women to help with these kind of

issues. I think it is a great supplement. It sure couldn't hurt to

try it. Try and find a doctor who balances hormones through natural

methods. Definitely sleep problems can be related to hormone

imbalance. Sleeping pills are a very poor choice. they dont really

give you good sleep and they cause your body more harm than help.

If you are deficient in progesterone--and I bet you are--taking the

progesteron cream will help you sleep better. but it takes awhile

for it to work in some people. I actually felt worse for a few

weeks and then started seeing good improvements. I think you would

benefit from getting saliva testing and taking naturals to get

yourself more balanced

Hugs, Kathy

-- In , " Cherie " <cheriesut@y...> wrote:

>

> Does anyone have trouble sleeping? I never knew if it was a

symptom

> of my sickness, or maybe just my age, but I go through spells of

not

> being able to sleep. As soon as I start to doze off, it's like a

> jolt of electricity hits me and I am as awake as if it is the

middle

> of the day. When I go through these times, no amount of benadryl

or

> melatonin works. I end up resorting to a sleeping pill. I am so

> afraid of getting addicted to sleeping pills, that I really start

to

> worry about it. The past few nights have been rough, and I think

I

> am back into one of those sleepless times, the first time since

> explant. It seems all my symptoms are back right now, pain and

all.

>

> I went for my annual Gyn visit today and told my doc all about my

> explant. I got to feeling so awful in the exam room, my head

> pounding and started sweating all over. (Not nerves). She said it

> may be low estrogen, said I may need estrogen when I hit

menopause,

> and sent me on my way. I really felt like crying that she had no

> other help for me NOW, not after menopause! I guess I should have

> requested more help, but I just felt awful at the time. As I am

> allergic to Tylenol and all other over-the-counter pain meds, I

> found myself taking a Vicoden for the headache and all over pain,

> which I don't want to get addicted to either. I'm sorry, the pain

> meds make me ramble. I wish I would feel better enough not to

need

> any of it!

> Thanks guys,

> Cherie

>

[Guest guest]

Kathy - I'm 45. I do feel like I'm physically stuck - with

autoimmune disease, weight, sleep, etc. Where would I begin to look

for a gyn that would test my saliva? I am about to order the Primal

and fungal defense - once ths month's bills are paid. Maybe I should

include the Multi Living for Women. I probably am hitting

perimenopause, but in the middle of the night when I am lying there

awake, it's hard to make a wise decision not to use the sleeping

pill. Would love to find a doc like the one you talk about.

Gratefully,

Cherie

--- In , " mikat828 " <mikat828@y...>

wrote:

>

> -Cherie

> I am sorry that you are having so many problems. How old are

you?

> Unfortunately, I was hitting perimenopause just about the time I

got

> my implants out. I really think that makes it much more difficult

> to get to feeling good. I belong to another website for people

sick

> with autoimmune disease who are doing the antibiotic therapy. I

had

> several women tell me that their doctors told them that until

their

> hormones were in balance they would find it hard to make

progress.

> One woman told me she took antibiotics for over a year with no

> progress. Then she got her hormones balanced and her therapy took

> off and she went into remission. So what I am saying is that your

> hormones can be intricately tied up with your immune system. When

> it is constantly changing---during perimenopause--it creates

havoc.

> It is very hard to find balance of hormones during perimenopause

but

> it is possible to be more stable than you are now. Your doctor

> needs to do some saliva testing of estrogen, progesterone,

> testosterone, and cortisols. Oh and all your thyroid hormones.

> Some women are helped by progesterone cream during this time

> period. I definitely am! Usually women go low in progesterone

> while the estrogen runs the gamut from high to low on any given

> day. This imbalance usually causes estrogen dominance symptoms.

> These may be what you are experiencing. I take natural

progesterone

> cream and capsule both. Usually within a few weeks my hot flashes

> subside and I start to feel more positive. I just had tests done

> again and this time they gave me a real low estradiol patch too.

It

> made a significant difference in my terrible moods and headaches.

> Some women go to low dose oral contraceptives but that did not

work

> for me at all! I prefer the natural compounded estrogens--biest

or

> tri est. Also, maca is supposed to be good for the hormones--all

of

> them. Garden of Life product Multi living for Women contains

> several things including Maca for women to help with these kind of

> issues. I think it is a great supplement. It sure couldn't hurt

to

> try it. Try and find a doctor who balances hormones through

natural

> methods. Definitely sleep problems can be related to hormone

> imbalance. Sleeping pills are a very poor choice. they dont

really

> give you good sleep and they cause your body more harm than help.

> If you are deficient in progesterone--and I bet you are--taking

the

> progesteron cream will help you sleep better. but it takes awhile

> for it to work in some people. I actually felt worse for a few

> weeks and then started seeing good improvements. I think you would

> benefit from getting saliva testing and taking naturals to get

> yourself more balanced

> Hugs, Kathy

>

>

>

>

>

>

>

> -- In , " Cherie " <cheriesut@y...>

wrote:

> >

> > Does anyone have trouble sleeping? I never knew if it was a

> symptom

> > of my sickness, or maybe just my age, but I go through spells of

> not

> > being able to sleep. As soon as I start to doze off, it's like

a

> > jolt of electricity hits me and I am as awake as if it is the

> middle

> > of the day. When I go through these times, no amount of

benadryl

> or

> > melatonin works. I end up resorting to a sleeping pill. I am

so

> > afraid of getting addicted to sleeping pills, that I really

start

> to

> > worry about it. The past few nights have been rough, and I

think

> I

> > am back into one of those sleepless times, the first time since

> > explant. It seems all my symptoms are back right now, pain and

> all.

> >

> > I went for my annual Gyn visit today and told my doc all about

my

> > explant. I got to feeling so awful in the exam room, my head

> > pounding and started sweating all over. (Not nerves). She said

it

> > may be low estrogen, said I may need estrogen when I hit

> menopause,

> > and sent me on my way. I really felt like crying that she had

no

> > other help for me NOW, not after menopause! I guess I should

have

> > requested more help, but I just felt awful at the time. As I am

> > allergic to Tylenol and all other over-the-counter pain meds, I

> > found myself taking a Vicoden for the headache and all over

pain,

> > which I don't want to get addicted to either. I'm sorry, the

pain

> > meds make me ramble. I wish I would feel better enough not to

> need

> > any of it!

> > Thanks guys,

> > Cherie

> >

>

[Guest guest]

If you can't find someone to do saliva testing, my ND will do it for you.

He sends out the test kits, you do the test, send it to the lab and the

results are sent to him. There would be a charge for the telephone

conference when he gets your results in. There are a couple of women here

who have treated with him.

You also could be low in certain aminos that help with sleep so you'd

probably want to test for these as well.

Kenda

> Kathy - I'm 45. I do feel like I'm physically stuck - with

> autoimmune disease, weight, sleep, etc. Where would I begin to look

> for a gyn that would test my saliva? I am about to order the Primal

> and fungal defense - once ths month's bills are paid. Maybe I should

> include the Multi Living for Women. I probably am hitting

> perimenopause, but in the middle of the night when I am lying there

> awake, it's hard to make a wise decision not to use the sleeping

> pill. Would love to find a doc like the one you talk about.

> Gratefully,

> Cherie

>

>>>

>>> Does anyone have trouble sleeping? I never knew if it was a

>> symptom

>>> of my sickness, or maybe just my age, but I go through spells of

>> not

>>> being able to sleep. As soon as I start to doze off, it's like

> a

>>> jolt of electricity hits me and I am as awake as if it is the

>> middle

>>> of the day. When I go through these times, no amount of

> benadryl

>> or

>>> melatonin works. I end up resorting to a sleeping pill. I am

> so

>>> afraid of getting addicted to sleeping pills, that I really

> start

>> to

>>> worry about it. The past few nights have been rough, and I

> think

>> I

>>> am back into one of those sleepless times, the first time since

>>> explant. It seems all my symptoms are back right now, pain and

>> all.

>>>

>>> I went for my annual Gyn visit today and told my doc all about

> my

>>> explant. I got to feeling so awful in the exam room, my head

>>> pounding and started sweating all over. (Not nerves). She said

> it

>>> may be low estrogen, said I may need estrogen when I hit

>> menopause,

>>> and sent me on my way. I really felt like crying that she had

> no

>>> other help for me NOW, not after menopause! I guess I should

> have

>>> requested more help, but I just felt awful at the time. As I am

>>> allergic to Tylenol and all other over-the-counter pain meds, I

>>> found myself taking a Vicoden for the headache and all over

> pain,

>>> which I don't want to get addicted to either. I'm sorry, the

> pain

>>> meds make me ramble. I wish I would feel better enough not to

>> need

>>> any of it!

>>> Thanks guys,

>>> Cherie

>>>

>>

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

> health care professionals. Consult your physician or licensed health care

> professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live a

> happy life and how to work for a better world. " - Linus ing, two-time

> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

Kenda - I would be interested in that testing. I'm so tired and

have no idea what to expect when I lay my head down tonight. Thank

you.

Cherie

> >>>

> >>> Does anyone have trouble sleeping? I never knew if it was a

> >> symptom

> >>> of my sickness, or maybe just my age, but I go through spells

of

> >> not

> >>> being able to sleep. As soon as I start to doze off, it's like

> > a

> >>> jolt of electricity hits me and I am as awake as if it is the

> >> middle

> >>> of the day. When I go through these times, no amount of

> > benadryl

> >> or

> >>> melatonin works. I end up resorting to a sleeping pill. I am

> > so

> >>> afraid of getting addicted to sleeping pills, that I really

> > start

> >> to

> >>> worry about it. The past few nights have been rough, and I

> > think

> >> I

> >>> am back into one of those sleepless times, the first time since

> >>> explant. It seems all my symptoms are back right now, pain and

> >> all.

> >>>

> >>> I went for my annual Gyn visit today and told my doc all about

> > my

> >>> explant. I got to feeling so awful in the exam room, my head

> >>> pounding and started sweating all over. (Not nerves). She said

> > it

> >>> may be low estrogen, said I may need estrogen when I hit

> >> menopause,

> >>> and sent me on my way. I really felt like crying that she had

> > no

> >>> other help for me NOW, not after menopause! I guess I should

> > have

> >>> requested more help, but I just felt awful at the time. As I

am

> >>> allergic to Tylenol and all other over-the-counter pain meds, I

> >>> found myself taking a Vicoden for the headache and all over

> > pain,

> >>> which I don't want to get addicted to either. I'm sorry, the

> > pain

> >>> meds make me ramble. I wish I would feel better enough not to

> >> need

> >>> any of it!

> >>> Thanks guys,

> >>> Cherie

> >>>

> >>

> >

> >

> >

> >

> >

> >

> > Opinions expressed are NOT meant to take the place of advice

given by licensed

> > health care professionals. Consult your physician or licensed

health care

> > professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> > Find out what the facts are, and make your own decisions about

how to live a

> > happy life and how to work for a better world. " - Linus ing,

two-time

> > Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> > See our photos website! Enter " implants " for access at this link:

> > http://.shutterfly.com/action/

> >

> >

[Guest guest]

-

Cherie

You could try calling around to different ob/gyn offices and ask if

they use compounded natural hormones and do saliva testing. Also,

sometimes health food stores--locally owned ones--know of doctors

practicing more natural medicine. I actually go to a family

practice doctor who advertises that she specializes in hormone

problems. I found out that she did the saliva testing. My regular

gyne doesn't do saliva testing but still allowed me to try biest and

natural progesterone cream. But I preferred to have the testing

done. Sometimes you can find that kind of information online too.

The problem with sleeping pills is that they really dont give you

restorative sleep and can be addicting and have many many side

effects. For along time I depended on ativan to help me sleep and

to get through some hard times. Then one day I realized that I was

having withdrawal symptoms between doses (they were very small doses

and I was shocked). When I looked them up online I found they had

many many nasty sideeffects--including depression. Actually many of

the side effects from the ativan were the same as for autoimmune

disease. I decided to cut them out cold turkey and felt like I was

having a stroke. Even though I have been tempted at times to take

one here or there, I just won't anymore. They helped me sleep but I

never really felt any better and I read that the sleep was not stage

four sleep. Actually some antidepressants are supposed to be able

to do that but the one I tried I hated and they have side effects

too. I did buy a tape on relaxation that is very good and it does

help me drift to sleep. I have been sleep deprived for years --and

have gone years without normal sleep. It is a wonder that I am as

well as I am! Rest is essential as it is when the body repairs

itself. But the kind of sleep produced by sleeping pills won't give

you that. Yes, I would encourage you to try living multi. Go the

website and you can see all the ingredients. I get mine at

appleadayandbeyond.com and they have really good prices. but you

must to a telephone order to get the best price. Good luck and I

really can sympathise with where you are at right now.

Hugs

Kathy

-- In , " Cherie " <cheriesut@y...> wrote:

>

> Kathy - I'm 45. I do feel like I'm physically stuck - with

> autoimmune disease, weight, sleep, etc. Where would I begin to

look

> for a gyn that would test my saliva? I am about to order the

Primal

> and fungal defense - once ths month's bills are paid. Maybe I

should

> include the Multi Living for Women. I probably am hitting

> perimenopause, but in the middle of the night when I am lying

there

> awake, it's hard to make a wise decision not to use the sleeping

> pill. Would love to find a doc like the one you talk about.

> Gratefully,

> Cherie

>

> > >

> > > Does anyone have trouble sleeping? I never knew if it was a

> > symptom

> > > of my sickness, or maybe just my age, but I go through spells

of

> > not

> > > being able to sleep. As soon as I start to doze off, it's

like

> a

> > > jolt of electricity hits me and I am as awake as if it is the

> > middle

> > > of the day. When I go through these times, no amount of

> benadryl

> > or

> > > melatonin works. I end up resorting to a sleeping pill. I am

> so

> > > afraid of getting addicted to sleeping pills, that I really

> start

> > to

> > > worry about it. The past few nights have been rough, and I

> think

> > I

> > > am back into one of those sleepless times, the first time

since

> > > explant. It seems all my symptoms are back right now, pain

and

> > all.

> > >

> > > I went for my annual Gyn visit today and told my doc all about

> my

> > > explant. I got to feeling so awful in the exam room, my head

> > > pounding and started sweating all over. (Not nerves). She

said

> it

> > > may be low estrogen, said I may need estrogen when I hit

> > menopause,

> > > and sent me on my way. I really felt like crying that she had

> no

> > > other help for me NOW, not after menopause! I guess I should

> have

> > > requested more help, but I just felt awful at the time. As I

am

> > > allergic to Tylenol and all other over-the-counter pain meds,

I

> > > found myself taking a Vicoden for the headache and all over

> pain,

> > > which I don't want to get addicted to either. I'm sorry, the

> pain

> > > meds make me ramble. I wish I would feel better enough not to

> > need

> > > any of it!

> > > Thanks guys,

> > > Cherie

> > >

> >

>

[Guest guest]

Cherie, I've been trying to respond to your message and for some

reason my e-mails were " bouncing " . Anyway, I'm trying again and

hopefully my messages will post again.

I've been having a tough time sleeping as well. A few years ago I

went into early menopause and that's when my sleep issues began.

Two years ago I went on the pill and was sleeping like a baby.

However, after I got the implants my sleep issues came back, even

though I was still on the pill. I went off the pill because it

seemed to make my symptoms worse, and it raised my blood pressure,

and since I went off it I'm sleeping even worse than before. I'm

not feeling that great lately, either - so try not to get

discouraged in your healing because I'm right there with ya, and the

buddy system has it's merits. I'm 2 months post op, and I think

you're a few weeks further along than me, but it helps me to have

someone who had their surgery at around the same time and is

experiencing similar things. I hate to see you suffer, I don't wish

this on anyone, but it helps to know that what's happening with me

isn't abnormal considering it's only been a few months.

Kathy - I'd really like to find a physician who compounds their own

hormones, I'll have to visit the healthfood store in town and see if

the owner knows of anyone. Do natural hormones have side effects

like the pill?

Cherie, if you find anyone in your area, let me know - I'd drive a

couple of hours if someone could help me.

Sis

> > > >

> > > > Does anyone have trouble sleeping? I never knew if it was a

> > > symptom

> > > > of my sickness, or maybe just my age, but I go through

spells

> of

> > > not

> > > > being able to sleep. As soon as I start to doze off, it's

> like

> > a

> > > > jolt of electricity hits me and I am as awake as if it is

the

> > > middle

> > > > of the day. When I go through these times, no amount of

> > benadryl

> > > or

> > > > melatonin works. I end up resorting to a sleeping pill. I

am

> > so

> > > > afraid of getting addicted to sleeping pills, that I really

> > start

> > > to

> > > > worry about it. The past few nights have been rough, and I

> > think

> > > I

> > > > am back into one of those sleepless times, the first time

> since

> > > > explant. It seems all my symptoms are back right now, pain

> and

> > > all.

> > > >

> > > > I went for my annual Gyn visit today and told my doc all

about

> > my

> > > > explant. I got to feeling so awful in the exam room, my

head

> > > > pounding and started sweating all over. (Not nerves). She

> said

> > it

> > > > may be low estrogen, said I may need estrogen when I hit

> > > menopause,

> > > > and sent me on my way. I really felt like crying that she

had

> > no

> > > > other help for me NOW, not after menopause! I guess I

should

> > have

> > > > requested more help, but I just felt awful at the time. As

I

> am

> > > > allergic to Tylenol and all other over-the-counter pain

meds,

> I

> > > > found myself taking a Vicoden for the headache and all over

> > pain,

> > > > which I don't want to get addicted to either. I'm sorry,

the

> > pain

> > > > meds make me ramble. I wish I would feel better enough not

to

> > > need

> > > > any of it!

> > > > Thanks guys,

> > > > Cherie

> > > >

> > >

> >

>

[Guest guest]

Cherie,

A sleep disorder goes hand-in-glove with fibromyalgia.

.. . A real chicken and egg situation! . . . And

Fibromyalgia is VERY common among implanted women. You

might do a websearch to learn more about FM.

Understanding it goes a long way to help to manage it.

With FM, the covering of the muscle becomes very taut,

pulling on the joints. This makes one hurt all over -

especially if one is not able to be up and about!

The body does it's repair work during deep sleep - so

if you're not getting deep sleep, you can expect to

have more pain!

I've always been a person who didn't need much sleep.

After I got sick with my implants, I reached a point

where I couldn't sleep! I thought I was coping - but I

now realise I wasn't coping at all! mentally or

physically!

I do take a sleep medication. It was prescribed by a

neurologist whose wife and daughter both have FM. The

prescription he gave me would allow twice the amount I

take (15 mg. temazapam nightly), but I've never

allowed myself to take that much. I may be addicted, I

don't know. I've gone off it from time to time to see

if I feel any different . . . After a point, I decide

I'd rather get a good nights sleep than worry about

addiction. I have had a couple doctors who tried to

put me on other medications - but I reacted very

poorly to those - not to mention they cost many times

what my medication costs. Most of my doctors, when

they know that, with medication, I'm able to manage my

FM to the point of no symptoms, they don't mind

prescribing it. However, they do not write

prescriptions so I could take a double dose!

Occasionally, I'll still have trouble getting to sleep

or staying asleep . . . That's when I resort to a

number of techniques that help. . . A hot bath, Sleep

Time Tea, or a very boring book (try concentrating on

alegbra). Supplementing with Magnesium also helps -

You will need two parts Calcium to one part magnesium.

Garden of Life's Living Calcium is great!

Right now, I'm feeling the effects of having gotten

off my program over the holidays! . . . Not sleeping

well, muscle pain, anxiety, fatigue, etc. . . As I see

it, staying well after implants can mean adopting an

entire program geared to eating right, getting

sufficient sleep and exercise - as well as managing

stress and anger! . . . It feels like a never ending

juggling act!

It's time for you to pamper yourself so your body has

every chance to recover!

Hugs and prayers,

Rogene

[Guest guest]

You are all so right! When all this started, my primary doc thought

I had fibromyalgia, but the rheumatologist did not. As it turns

out, after he was focusing on just one tender point, he never even

heard me talk about my sleep problems or pain in between my shoulder

blades, etc. He was surprised when I reminded him of that. I don't

actually want the official diagnosis of FM right now, because I am

trying to switch to a new health insurance. Health insurance for my

family right now is up to 1,050 per month!! Can't keep this up,

need to find something cheaper. But that's off the subject. I know

I need restorative sleep to heal, but sometimes I feel that with the

Ambien, at least I am getting some sleep and not lying there worring

about sleeping or not. I try reading, and get sleepy, but as soon

as I start to drift off, something electrical happens in my brain,

and I awaken - not even to feel sleepy. A few years ago I was on

Lexapro, which solved all my sleep problems, but I didn't like the

lack of any sort of emotion and weight gain, so I painfully

withdrew, not to go back again! I work in the gyn field

(transcription) so am familiar with all our local docs, and have not

heard of one who practices anything other than standard stuff. But

the city of Philadelphia is not far, and should be big enough to

find someone to help. Sis, I will let you know, and same with you,

I am willing to drive to find someone to help. If not, I am very

interested in Kenda's doc.

I was wondering if the symptoms I have been feeling could be a

reaction from the sleeping pills or even the pain meds that I have

had to take lately. Yikes, who knows, could it be the meds, FM,

implants, hormones, something I ate, herxing, -- HEEELLP!!

It really is great to have you guys to share with - there really is

no person I know who can really understand this stuff, though my

husband is really trying! Thanks,

Cherie

>

> Cherie,

>

> A sleep disorder goes hand-in-glove with fibromyalgia.

> . . A real chicken and egg situation! . . . And

> Fibromyalgia is VERY common among implanted women. You

> might do a websearch to learn more about FM.

> Understanding it goes a long way to help to manage it.

>

> With FM, the covering of the muscle becomes very taut,

> pulling on the joints. This makes one hurt all over -

> especially if one is not able to be up and about!

>

> The body does it's repair work during deep sleep - so

> if you're not getting deep sleep, you can expect to

> have more pain!

>

> I've always been a person who didn't need much sleep.

> After I got sick with my implants, I reached a point

> where I couldn't sleep! I thought I was coping - but I

> now realise I wasn't coping at all! mentally or

> physically!

>

> I do take a sleep medication. It was prescribed by a

> neurologist whose wife and daughter both have FM. The

> prescription he gave me would allow twice the amount I

> take (15 mg. temazapam nightly), but I've never

> allowed myself to take that much. I may be addicted, I

> don't know. I've gone off it from time to time to see

> if I feel any different . . . After a point, I decide

> I'd rather get a good nights sleep than worry about

> addiction. I have had a couple doctors who tried to

> put me on other medications - but I reacted very

> poorly to those - not to mention they cost many times

> what my medication costs. Most of my doctors, when

> they know that, with medication, I'm able to manage my

> FM to the point of no symptoms, they don't mind

> prescribing it. However, they do not write

> prescriptions so I could take a double dose!

>

> Occasionally, I'll still have trouble getting to sleep

> or staying asleep . . . That's when I resort to a

> number of techniques that help. . . A hot bath, Sleep

> Time Tea, or a very boring book (try concentrating on

> alegbra). Supplementing with Magnesium also helps -

> You will need two parts Calcium to one part magnesium.

> Garden of Life's Living Calcium is great!

>

> Right now, I'm feeling the effects of having gotten

> off my program over the holidays! . . . Not sleeping

> well, muscle pain, anxiety, fatigue, etc. . . As I see

> it, staying well after implants can mean adopting an

> entire program geared to eating right, getting

> sufficient sleep and exercise - as well as managing

> stress and anger! . . . It feels like a never ending

> juggling act!

>

> It's time for you to pamper yourself so your body has

> every chance to recover!

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Cherie,

You're smart not to collect diagnoses! . . . It can

ruin your insurance! Working with a doc like Kenda's

is expensive up front, but in the long run it will

cost you much, much less since your insurance won't be

affected.

What I'm hearing from you is that you're stressing

over all the symptoms you're having . . . Stress is

every bit as bad as any illness you may have. If

you're like virtually all the women who come here,

your symptoms will gradually fade away and you'll find

life is great again!

I suggest that you just accept any and all symptoms

you experience as a temporary situation that you WILL

move through. Try to put them out of your mind by

taking postive action. Nobody can tell you how long

it's going to take. That's highly dependent on how

much you put into your own program. Keep telling

yourself " When I cheat, I cheat only myself! "

If you have an immediate need, by all means see your

doctor. Otherwise, experiment with different things

that may help. If you can't afford supplements, you

can find alternatives in fresh, wholesome foods. . . .

Some suggestions:

Eating raw, crushed, fresh garlic is one of the

cheapest, most effective foods there is.

Make your own organic sauerkraut and eat it raw . . .

a tablespoon several times a day.

Avoid sugar like the plague!

Avoid processed foods! Make everything for yourself!

Get " The Maker's Diet " by Rubin and use that as a

dietary goal.

Find a good yoga tape and start working on stretches

that will take the pain out of fibromyalgia.

Get a book on massage from the library and learn how

to massage the parts of your body you can reach. You

can attach devices to the wall to work on back, or

hard to reach, muscles.

Liver flushes are very inexpensive and very effective.

Mediation is outstanding.

Visualizing yourself as happy, healthy and active is

extremely effective as well as free!

Sweat therapy is great!

Espom salt baths will help draw the toxins out of your

body while putting magnesium in! Magnesium will help

with muscle pain since 20% of the body's magnesium is

found in the muscles.

Our archives are full of things we've tried and found

sucessful! . . . What works is highly individual, so

we can't write a prescription. Even if we could, you

won't find the answer in a pill!

If you'll keep a daily journal describing how you feel

and what you're doing to get better, you'll begin to

see what is working and what doesn't. And, when you

have those inevitable bad days, you'll be able to look

back and see how far you've come.

You're on the right track . . . Your job is to stay on

track until you get to where you want to go. What

you'll get out of all this will will change your life

for the better from now on!

Hugs and prayers,

Rogene

[Guest guest]

Rogene - thank you - I'm going to print your list and try it.

Sometimes it really is stressful to try to get well - hearing so

much good advice, and not knowing what to do first. I have had

quite a few good days since explant, but so easy to get discouraged

when I'm feeling down. I really would like to have a natural doc

who really knew what to test for and how to treat me. The one I was

going to practiced kinesiology, and I'm just not convinced and felt

like I was throwing a lot of money away, not getting well. I like

the idea of the saliva test - it just seems more logical to me.

I have switched to wholesome food, but have not yet given up all

sugar. The family is more difficult to convince and they try to

make me feel like I'm depriving them if I don't buy them Oreos, but

I feel like I'm poisoning them if I do! I really liked the article

you posted on MSG and the addiction that develops (although I do

like and support ).

Back to work,

Cherie

>

> Cherie,

>

> You're smart not to collect diagnoses! . . . It can

> ruin your insurance! Working with a doc like Kenda's

> is expensive up front, but in the long run it will

> cost you much, much less since your insurance won't be

> affected.

>

> What I'm hearing from you is that you're stressing

> over all the symptoms you're having . . . Stress is

> every bit as bad as any illness you may have. If

> you're like virtually all the women who come here,

> your symptoms will gradually fade away and you'll find

> life is great again!

>

> I suggest that you just accept any and all symptoms

> you experience as a temporary situation that you WILL

> move through. Try to put them out of your mind by

> taking postive action. Nobody can tell you how long

> it's going to take. That's highly dependent on how

> much you put into your own program. Keep telling

> yourself " When I cheat, I cheat only myself! "

>

> If you have an immediate need, by all means see your

> doctor. Otherwise, experiment with different things

> that may help. If you can't afford supplements, you

> can find alternatives in fresh, wholesome foods. . . .

>

>

> Some suggestions:

>

> Eating raw, crushed, fresh garlic is one of the

> cheapest, most effective foods there is.

>

> Make your own organic sauerkraut and eat it raw . . .

> a tablespoon several times a day.

>

> Avoid sugar like the plague!

>

> Avoid processed foods! Make everything for yourself!

>

> Get " The Maker's Diet " by Rubin and use that as a

> dietary goal.

>

> Find a good yoga tape and start working on stretches

> that will take the pain out of fibromyalgia.

>

> Get a book on massage from the library and learn how

> to massage the parts of your body you can reach. You

> can attach devices to the wall to work on back, or

> hard to reach, muscles.

>

> Liver flushes are very inexpensive and very effective.

>

>

> Mediation is outstanding.

>

> Visualizing yourself as happy, healthy and active is

> extremely effective as well as free!

>

> Sweat therapy is great!

>

> Espom salt baths will help draw the toxins out of your

> body while putting magnesium in! Magnesium will help

> with muscle pain since 20% of the body's magnesium is

> found in the muscles.

>

> Our archives are full of things we've tried and found

> sucessful! . . . What works is highly individual, so

> we can't write a prescription. Even if we could, you

> won't find the answer in a pill!

>

> If you'll keep a daily journal describing how you feel

> and what you're doing to get better, you'll begin to

> see what is working and what doesn't. And, when you

> have those inevitable bad days, you'll be able to look

> back and see how far you've come.

>

> You're on the right track . . . Your job is to stay on

> track until you get to where you want to go. What

> you'll get out of all this will will change your life

> for the better from now on!

>

> Hugs and prayers,

>

> Rogene

>