meds

[Guest guest]

You do not say what meds you are talking about, but I will try to

give you my perspective.

I understand what you mean about eating. Some meds have such

bad " side effects " that a kid won't eat or usually in our case won't

sleep. I am constantly reminding myself that he needs the basics to

be healthy...balanced diet, good night's sleep, fresh air, a

multivitamin.

It sounds like you may have a mix of good and bad with the meds. If

you can isolate which med curbs his appetite, amybe that is the one

you go without, or find a substitute. Also, it sounds like you think

some med helped with meltdowns. If it is not the same med that

affects the appetite, maybe it would be good to figure out if it

would be beneficial.

I have learned there are no golden meds. Each one has trade offs

between good and bad, and you need to figure out if the good

outweighs the bad. I also beleive some combos of meds work in some

kids but not others, so it could be a combination of 2 that throws

everything off.

If you are not sure, do one med that your gut says helps and give it

at least a week before introducing another or switching. And write

down everything that you notice so you don't forget.

HTH

>

> Hi Everyone,

>

> I know not many will agree with our choice ... but I wondered if

any of you

> had this happen to then?

> We pulled my son off his medication for a week to see if he would

eat. He

> was so flat (not caring about anyone) and losing weight. By day

two he was

> happy and eating tons. OCD and a little more Stemy...BUT happy.

We noticed

> more interaction and overall improvement. I am using enzymes and

Omega 3.

> Today day 6, although still happy and eating he had a lot of melt

downs. So we

> thought OK the medication is out of his system. It has only been

a week and

> we just wanted him to eat. Now I am having trouble putting him

back on even

> with the melt downs. His ped. does not want him back on and wants

me to stop

> everything and go to an OCD doc. I am lost.

>

> Any thoughts would be great.

>

>

>

[Guest guest]

What med was he taking and did you try a lower dose?

Re: Re: Meds

Hi Everyone,

I know not many will agree with our choice ... but I wondered if any of

you

had this happen to then?

We pulled my son off his medication for a week to see if he would eat.

He

was so flat (not caring about anyone) and losing weight. By day two he

was

happy and eating tons. OCD and a little more Stemy...BUT happy. We

noticed

more interaction and overall improvement. I am using enzymes and Omega

3.

Today day 6, although still happy and eating he had a lot of melt downs.

So we

thought OK the medication is out of his system. It has only been a week

and

we just wanted him to eat. Now I am having trouble putting him back on

even

with the melt downs. His ped. does not want him back on and wants me to

stop

everything and go to an OCD doc. I am lost.

Any thoughts would be great.

[Guest guest]

Sorry to hear your day is so bad. I am trying to push through mine. I

finally talked myself into going out and putting a few marigolds in. Of

course I have a special stool and long handled tools. I don't think it was

the wisest thing for me to do as I am shaky now. I drank some water and had

about 5 fresh strawberries and washed my face with a cold washcloth and

neck, too. Going to take a shower in a few. I just had to accomplish

something for my mental outlook. As far as meds go....I think the drug reps

are one of the highest paid sells people. They are always giving samples

and I heard once on 20/20 that Drs. were getting cruises, vacations and such

from those companies. What a conflict of interest? I personally feel

helpless as I need the meds at this time and have to deal with the drug

companies and insurance rules. Now I see that my metho has turned into a

step drug which means you have had to try other things before you can get

it. Are they kidding? I have been on it for over 3 years now. My RA was

so bad that it was the DRs drug of choice and was one of the starter drugs.

i wonder what the insurance is up to now, it is generic and I pay by mail

for 90 days 12.50. I feel blessed that it has not been so expensive as some

drugs though there was a time I had to pay the full costs. Praying you'll

feel better. ;o)

Laurie R.

On 5/19/07, Beverly <johnnybeverly@...> wrote:

>

> Can you tell I am having a bad day? All I feel like doing is reading

> your mail and writing to you. I hate to start a previous discussion

> that ended up pretty heated, but.... The pharmaceutical companies are

> making a killing off of Americans. The same med in Mexico or Canada is

> considerably less. Example: My dog (I know, I know) is on enalapril.

> The vet was charging me $80 a month for his med. My brother, who has

> no insurance, goes to Mexico to get his meds. He brought me 200 doses

> of enalapril for $35, and this was for a dog!!! He buys all of his BP

> meds, antibiotics, steroids, pain meds over there. (He brings me my

> pain meds, too. I just send my prescription bottle with him.)It not

> only saves him on med costs, but dr visits. The pharm. co.s need to

> give us all a break.

>

> Please pray for me. I am having a really bad day.

>

> Bev

>

>

>

[Guest guest]

(((((((((Bev)))))))))))

I hope your day will get better - please take heart and know that it will be

different tomorrow - I always tell myself if I can just make it through one more

I'll be okay....

As to the meds for Mexico - when my Daddy was alive, he got all his meds from

Mexico too - what would have cost him $80 cost him just $14. So it was well

worth it to him to do that....

Keep your chin up hon....

Rose

Beverly <johnnybeverly@...> wrote:

Can you tell I am having a bad day? All I feel like doing is reading

your mail and writing to you. I hate to start a previous discussion

that ended up pretty heated, but.... The pharmaceutical companies are

making a killing off of Americans. The same med in Mexico or Canada is

considerably less. Example: My dog (I know, I know) is on enalapril.

The vet was charging me $80 a month for his med. My brother, who has

no insurance, goes to Mexico to get his meds. He brought me 200 doses

of enalapril for $35, and this was for a dog!!! He buys all of his BP

meds, antibiotics, steroids, pain meds over there. (He brings me my

pain meds, too. I just send my prescription bottle with him.)It not

only saves him on med costs, but dr visits. The pharm. co.s need to

give us all a break.

Please pray for me. I am having a really bad day.

Bev

---------------------------------

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[Guest guest]

Concerta - one day it just didnt' work....and now Focalin XR. It was good until last year. Anger, aggression, aggitation,,,,,,,,,,,,,, So,,,,they added Risperdal to counteract. It's been a blessing. At first, I thought, "if the Focalin is causing the bad stuff....lets just stop". But,,,,he NEEDED it to stop himself from bouncing off the walls. SO,,,,that's what has worked for us for now. Good luck/ Robinemeryamber <emeryamber@...> wrote: We go back to the Dr. tomorrow. I would like to please get your thoughts on meds that have or have not worked for your families. His biggest problems are aggression, aggitation and depression. Many Smiles, Amber E.

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

[Guest guest]

, is now on Abilify for mood swings,Depakote & Celexa for his anxiety. He is doing really good. Good luck,Betty emeryamber <emeryamber@...> wrote: We go back to the Dr. tomorrow. I would like to please get your thoughts on meds that have or have not worked for your

families. His biggest problems are aggression, aggitation and depression. Many Smiles, Amber E.

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

[Guest guest]

Topamax is actually an anti-seizure medication that is now being used in the treatment of migraines and as a mood stabilizer. I guess side effects depend on the person and on the dose. I was on quite a high dose, and had lots of side effects -- mostly fuzzy thinking, forgetfulness, sleepiness, and we're unsure if my double vision was related to that. I still take Topamax, but at a much lower dose, and have hardly any side effects.LizOn Oct 11, 2007, at 11:45 PM, debmetsfan@... wrote:Is anyone on Topamax for outbursts?  That is what 's psychiatrist wanted to put her on but I was afraid of the side effects - one was diabetes (her dad has diabetes and I didn't want to increase her chances of having it).  Topamax is for migraine sufferers but the doctor said that she thinks it would help .  Deb. 

[Guest guest]

I'm not sure that I would suggest Topamax. I took it for almost two

years, and experienced strong and immediate side-effects, such as

slurred speech, vertigo, memory loss, I was unable to retrieve words

(they call it the Hollywood drug because it makes you thin and

stupid). It can also cause Glaucoma. It's used for migraine

sufferers, but it was initially prescribed for epilepsy, and they

found that it had mood-stabilizing effects. So, like everyone else

said, the meds work differently for everyone.

As for meds, my son is on Dexedrine, and we're looking in to

Risperdal. I'm not sure that we're going to go that route though.

Dexedrine has been wonderful for my son, especially when it comes to

impulsivity, hyperactivity, and anger, but I fear the long-term

effects of such a strong medication.

>

>

>

> We go back to the Dr. tomorrow. I would like to please get your

thoughts on

> meds that have or have not worked for your families. His biggest

problems

> are aggression, aggitation and depression.

> Many Smiles, Amber E.

>

>

>

>

>

>

> ____________________________________

> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user

> panel_

>

(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_\

invite.asp?a=7)

and lay it on us.

>

>

>

>

>

>

> Debbie Salerno

> Maine Coon Rescue

> Board Member

> Eastern Regional Director

> DNA Manager

> www.mainecoonrescue.net

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

I guess the dosage does have a lot to do with it! I didn't think about that. I"ll have to talk to the doctor again about it.

Deb

Re: ( ) Meds

Topamax is actually an anti-seizure medication that is now being used in the treatment of migraines and as a mood stabilizer. I guess side effects depend on the person and on the dose. I was on quite a high dose, and had lots of side effects -- mostly fuzzy thinking, forgetfulness, sleepiness, and we're unsure if my double vision was related to that. I still take Topamax, but at a much lower dose, and have hardly any side effects.

Liz

On Oct 11, 2007, at 11:45 PM, debmetsfanaol wrote:

Is anyone on Topamax for outbursts? That is what 's psychiatrist wanted to put her on but I was afraid of the side effects - one was diabetes (her dad has diabetes and I didn't want to increase her chances of having it). Topamax is for migraine sufferers but the doctor said that she thinks it would help .

Deb

..

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[Guest guest]

Medicine is so confusing! When I read the side effects, I get scared and I tell the doctor no. But is on Ritalin SR, Prozac, and Tenex. They all have side effects, too. But they seem to work for her. I'm just wondering if there is something that will work better. The doctor said that Topamax is the safest medication she can put on.

Deb

( ) Re: Meds

I'm not sure that I would suggest Topamax. I took it for almost two

years, and experienced strong and immediate side-effects, such as

slurred speech, vertigo, memory loss, I was unable to retrieve words

(they call it the Hollywood drug because it makes you thin and

stupid). It can also cause Glaucoma. It's used for migraine

sufferers, but it was initially prescribed for epilepsy, and they

found that it had mood-stabilizing effects. So, like everyone else

said, the meds work differently for everyone.

As for meds, my son is on Dexedrine, and we're looking in to

Risperdal. I'm not sure that we're going to go that route though.

Dexedrine has been wonderful for my son, especially when it comes to

impulsivity, hyperactivity, and anger, but I fear the long-term

effects of such a strong medication.

>

>

>

> We go back to the Dr. tomorrow. I would like to please get your

thoughts on

> meds that have or have not worked for your families. His biggest

problems

> are aggression, aggitation and depression.

> Many Smiles, Amber E.

>

>

>

>

>

>

> ____________________________________

> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user

> panel_

>

(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7)

and lay it on us.

>

>

>

>

>

>

> Debbie Salerno

> Maine Coon Rescue

> Board Member

> Eastern Regional Director

> DNA Manager

> www.mainecoonrescue.net

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

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[Guest guest]

they put my son on rispedal and he reacted violently. luckily he is just on straterra now and seems to focue better and no outburstsdebmetsfan@... wrote: Medicine is so confusing! When I read the side effects, I get scared and I tell the doctor no. But is on Ritalin SR, Prozac, and Tenex. They all have side effects, too. But they seem to work for her. I'm just wondering if there is something that will work better. The doctor said that Topamax is the safest medication she can put

on.Deb ( ) Re: Meds I'm not sure that I would suggest Topamax. I took it for almost twoyears, and experienced strong and immediate side-effects, such asslurred speech, vertigo, memory loss, I was unable to retrieve words(they call it the Hollywood drug because it makes you thin andstupid). It can also cause Glaucoma. It's used for migrainesufferers, but it was initially prescribed for epilepsy, and theyfound that it had mood-stabilizing effects. So, like everyone elsesaid, the meds work differently for everyone.As for meds, my son is on Dexedrine, and we're looking in

toRisperdal. I'm not sure that we're going to go that route though. Dexedrine has been wonderful for my son, especially when it comes toimpulsivity, hyperactivity, and anger, but I fear the long-termeffects of such a strong medication.> > > > We go back to the Dr. tomorrow. I would like to please get yourthoughts on > meds that have or have not worked for your families. His biggestproblems > are aggression, aggitation and depression. > Many Smiles, Amber E.> > > > > > > ____________________________________> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user > panel_ >(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7)and lay it on us. > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> Eastern Regional Director> DNA Manager> www.mainecoonrescue.net> > > > ************************************** See what's new athttp://www.aol.com> Email and AIM finally together. You've gotta check out free AOL Mail!

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[Guest guest]

We haven't tried strattera. When I was bringing to a neurologist, he said he didn't want her on that. The psychiatrist never mentioned putting her on it. I'm not really familiar with that. Is it good for emotional outbursts?

Deb

In a message dated 10/13/2007 11:08:47 A.M. Eastern Daylight Time, gentlewolf63@... writes:

they put my son on rispedal and he reacted violently. luckily he is just on straterra now and seems to focue better and no outburstsdebmetsfanaol wrote:

Medicine is so confusing! When I read the side effects, I get scared and I tell the doctor no. But is on Ritalin SR, Prozac, and Tenex. They all have side effects, too. But they seem to work for her. I'm just wondering if there is something that will work better. The doctor said that Topamax is the safest medication she can put on.Deb ( ) Re: Meds

I'm not sure that I would suggest Topamax. I took it for almost twoyears, and experienced strong and immediate side-effects, such asslurred speech, vertigo, memory loss, I was unable to retrieve words(they call it the Hollywood drug because it makes you thin andstupid). It can also cause Glaucoma. It's used for migrainesufferers, but it was initially prescribed for epilepsy, and theyfound that it had mood-stabilizing effects. So, like everyone elsesaid, the meds work differently for everyone.As for meds, my son is on Dexedrine, and we're looking in toRisperdal. I'm not sure that we're going to go that route though. Dexedrine has been wonderful for my son, especially when it comes toimpulsivity, hyperactivity, and anger, but I fear the long-termeffects of such a strong medication.> > > > We go back to the Dr. tomorrow. I would like to please get yourthoughts on > meds that have or have not worked for your families. His biggestproblems > are aggression, aggitation and depression. > Many Smiles, Amber E.> > > > > > > ____________________________________> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user > panel_ >(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7)and lay it on us. > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> Eastern Regional Director> DNA Manager> www.mainecoonrescue.net> > > > ************************************** See what's new athttp://www.aol.com>

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[Guest guest]

It is a non-stimulant ADHD medication (as far as we know). A great first step, because it is 'safer' so to speak than other ADHD medication choices.....Our 13 year old was on it, and it did not do ANYTHING for him. I have heard it works great for ADHD type behaviors for others......with our 6 year old, we use Focolin for the ADHD because you can open the capsule and dump it in his mouth---he refuses to try to swallow pills (and we were told that is the only one for ADHD that we can do that--open and dump it---and it will still work)....so, that is all I know about it. Hope that helps.

Ruthie Dolezal

( ) Re: Meds

I'm not sure that I would suggest Topamax. I took it for almost twoyears, and experienced strong and immediate side-effects, such asslurred speech, vertigo, memory loss, I was unable to retrieve words(they call it the Hollywood drug because it makes you thin andstupid). It can also cause Glaucoma. It's used for migrainesufferers, but it was initially prescribed for epilepsy, and theyfound that it had mood-stabilizing effects. So, like everyone elsesaid, the meds work differently for everyone.As for meds, my son is on Dexedrine, and we're looking in toRisperdal. I'm not sure that we're going to go that route though. Dexedrine has been wonderful for my son, especially when it comes toimpulsivity, hyperactivity, and anger, but I fear the long-termeffects of such a strong medication.> > > > We go back to the Dr. tomorrow. I would like to please get yourthoughts on > meds that have or have not worked for your families. His biggestproblems > are aggression, aggitation and depression. > Many Smiles, Amber E.> > > > > > > ____________________________________> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user > panel_ >(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7)and lay it on us. > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> Eastern Regional Director> DNA Manager> www.mainecoonrescue.net> > > > ************************************** See what's new athttp://www.aol.com>

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[Guest guest]

I like safe!

We've been through Concerta (did no help her at all). Adderal (I think that was the name - it's been a while! Made very angry! She'd be clenching her fists and the veins were popping out in her neck! And she would yell at me, "Take me off this medicine!" It was scary!). Metadate CD I liked the best but that is so expensive and I didn't have health insurance for a while. 's health insurance that she has now won't cover it. Ritalin seemed to make her depressed but Ritalin SR seems to be ok for some reason.

Deb

In a message dated 10/13/2007 8:29:34 P.M. Eastern Daylight Time, DOLEZAL123@... writes:

It is a non-stimulant ADHD medication (as far as we know). A great first step, because it is 'safer' so to speak than other ADHD medication choices.....Our 13 year old was on it, and it did not do ANYTHING for him. I have heard it works great for ADHD type behaviors for others......with our 6 year old, we use Focolin for the ADHD because you can open the capsule and dump it in his mouth---he refuses to try to swallow pills (and we were told that is the only one for ADHD that we can do that--open and dump it---and it will still work)....so, that is all I know about it. Hope that helps.

Ruthie Dolezal

( ) Re: Meds

I'm not sure that I would suggest Topamax. I took it for almost twoyears, and experienced strong and immediate side-effects, such asslurred speech, vertigo, memory loss, I was unable to retrieve words(they call it the Hollywood drug because it makes you thin andstupid). It can also cause Glaucoma. It's used for migrainesufferers, but it was initially prescribed for epilepsy, and theyfound that it had mood-stabilizing effects. So, like everyone elsesaid, the meds work differently for everyone.As for meds, my son is on Dexedrine, and we're looking in toRisperdal. I'm not sure that we're going to go that route though. Dexedrine has been wonderful for my son, especially when it comes toimpulsivity, hyperactivity, and anger, but I fear the long-termeffects of such a strong medication.> > > > We go back to the Dr. tomorrow. I would like to please get yourthoughts on > meds that have or have not worked for your families. His biggestproblems > are aggression, aggitation and depression. > Many Smiles, Amber E.> > > > > > > ____________________________________> Fussy? Opinionated? Impossible to please? Perfect. _Join 's user > panel_ >(http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7)and lay it on us. > > > > > > > Debbie Salerno> Maine Coon Rescue> Board Member> Eastern Regional Director> DNA Manager> www.mainecoonrescue.net> > > > ************************************** See what's new athttp://www.aol.com>

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Debbie SalernoMaine Coon RescueBoard MemberEastern Regional DirectorDNA Managerwww.mainecoonrescue.net

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Debbie SalernoMaine Coon RescueBoard MemberEastern Regional DirectorDNA Managerwww.mainecoonrescue.netSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Concerta worked for our 7-10 year old. Then, suddenly, it didn't. We switched to Focalin and have been there for almost 2 years. Robinmytwoboys97_00 <mytwoboys97_00@...> wrote: Hi,I would like to know what if any, meds have worked for your Aspie. My son is 7 years old and he is always on and my husband finally agreed that we should put him on something light. Any ideas before I talk to his doctor?**CoriProud Parent of a Child with

Asperger's

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[Guest guest]

is on Ritalin SR and Tenex along with Prozac but we believe we are having problems with the Prozac now.

Deb

In a message dated 12/21/2007 7:18:37 P.M. Eastern Standard Time, mytwoboys97_00@... writes:

Hi,I would like to know what if any, meds have worked for your Aspie. My son is 7 years old and he is always on and my husband finally agreed that we should put him on something light. Any ideas before I talk to his doctor?**CoriProud Parent of a Child with Asperger's

Debbie SalernoMaine Coon RescueBoard MemberDNA ManagerEastern Regional DirectorVice Presidentwww.mainecoonrescue.netSee AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

My son is on Adderall, Celexa, and Risperdal.

There are still problem, especially at school, but

things are getting better.

--- debmetsfan@... wrote:

>

>

> is on Ritalin SR and Tenex along with Prozac

> but we believe we are

> having problems with the Prozac now.

>

> Deb

>

>

> In a message dated 12/21/2007 7:18:37 P.M. Eastern

> Standard Time,

> mytwoboys97_00@... writes:

>

>

>

>

> Hi,

>

> I would like to know what if any, meds have worked

> for your Aspie. My

> son is 7 years old and he is always on and my

> husband finally agreed

> that we should put him on something light.

>

> Any ideas before I talk to his doctor?

>

> **Cori

> Proud Parent of a Child with Asperger's

>

>

>

>

>

>

>

> Debbie Salerno

> Maine Coon Rescue

> Board Member

> DNA Manager

> Eastern Regional Director

> Vice President

> www.mainecoonrescue.net

>

>

>

> **************************************See AOL's top

> rated recipes

>

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

[Guest guest]

I was just curious, what type of issues were you having that made

you turn to medication. Our son is 6 1/2 and was diagnosed about a

year ago. i was just wondering because i feel my son's issues are

going to get worse.

thanks

melissa

> Hi,

>

> I would like to know what if any, meds have worked for your Aspie.

My

> son is 7 years old and he is always on and my husband finally

agreed

> that we should put him on something light.

>

> Any ideas before I talk to his doctor?

>

> **Cori

> Proud Parent of a Child with Asperger's

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

[Guest guest]

NOW,,,,,I can say what the issues were. But back then,,,,I just knew that he didn't fit right, if you know what I mean. And in all honesty, we didn't care. We loved him for who he was. We knew he was brilliant. We knew he was a nice, good kid. We saw his compassion, even if no one else did. It wasn't until 1st grade that we saw that "the way he was" was affecting the way OTHERS treated HIM. He wanted friends, but didn't really have any. It wasn't that he was mean,,,,,he just didn't "chat" with them. He knew what he wanted to do,,,,,,,and didn't seem to care if it bored the other kids. At school, from very early on, he would hang on kids. He was friendly,,,,but even in kindergarten, the kids would say things like, "Knock it off, Ian"......or, "Stop it'. He would always be on the go. Now,,,,,at the time, we never thought of ADHD. It wasn't until we

went and saw a child psychol that she did the "computer test" for ADHD where they have to WAIT to push a button. That showed MAJOR impatience. Then, from there, she gave us sheets to fill out at home and give his teacher one, as well. These sheets showed without a doubt a problem with impulsivity. So,,,,that's when she asked us is we wanted to try Concerta.....for the "impulsivity". You can't medicate for Aspergers. But.....if you medicate, you do so for the other issues. Anyway,,,,,,,,,looking back, he was smart. He focused on certain areas. He knew Pokemon cards/books. Knew everything about them. Points, etc at 6 years old. Knew if he was missing one. Then, it was Yu-gi-oh cards. Same thing with them. He collected rocks. He had many things that he would collect and be interested in IN THE EXTREME. I still don't see a problem with

this. We simply look at it as his thing. When our other kids want to do something,,,,,or invite someone over or whatever.....he's ok just doing his thing here. We fought this for a while, too. Now, we don't. Biggest thing, I think, looking back,,,,was what happened when we went places. He never "acted" right or "polite". Never. Now I see that he wasn't comfortable. He was miserable beyone his control. BUt,,,,,back then, we would almost threaten him to be good. It never worked. He always ended up freaking out our crying, etc. Our other kids would then lose it and everyone would be staring at us like we were a loser family........topped with and I as the top loser parents. We'd leave mad, embarrassed. humiliated and broken. Now,,,,we simply say that we leave when someone needs to leave. Everyone knows about Ian's issues. That,

socially, he's really not comfortable. We take gameboys/psp's/gamecubes, etc along and find him a spot where he can go if he wants. Amazingly,,,,,,,,,,,,,,,,ALL the kids (not just ours) usually end up with Ian and they all have a blast. So,,,,,,,,,,,those are some of our issues. Things got better once he was dx'd,,,,,,and the school understood him. But,,,,at he aged,,,it got worse socially. Even though the school knew him, it just didn't work for him. He was getting sadder and madder and more anxious and frustrated. We pulled him out after 5th grade and he now does a virtual school from home. He has never been happier. He talks to us. HE COMES TO US TO TALK. That is something he never did. He'd respond with a, "Yep". hee hee. So,,,,,,,,like I said, those were some of our issues. I think it's normal for things to get

worse. We as parents, are trying to fit our kids into the pegs of other kids. For us,,,,it didn't work. The sooner we accepted the fact that Ian (and all of our family) was different,,,,,it got much better. Good luck. Robin <sjuliesmom@...> wrote: I was just curious, what type of issues were you having that made you turn to medication. Our son is 6 1/2 and was diagnosed about a year ago. i was just wondering because i feel my son's issues are going to get

worse.thanksmelissa> Hi,> > I would like to know what if any, meds have worked for your Aspie. My > son is 7 years old and he is always on and my husband finally agreed > that we should put him on something light. > > Any ideas before I talk to his doctor?> > **Cori> Proud Parent of a Child with Asperger's> > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast

with Search.>

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

, it sounds like you are describing my son. is almost 7

1/2 and has Asperger Syndrome. I personally can handle the AS part

but the ADHD part is the part that... is always ont he go, can

not sit still and talks and talks and talks. He is extremely smart,

socially inept. I sat down with him the other day and asked him what

it feels like when his is bouncey. He said it is like a train going

really fast and his body and mind go with it.

We have tried the GFCF diet but we couldn't do it long because he

wouldn't eat. He didn't like the way it smelled or tasted, so he

wouldn't eat and at school he traded with other kids. Now we have him

on vitamins. Fish oil, magnesium, multi vit with extra B6. I see the

magnesium does calm him a bit but we need something stronger. I have

a hard time with this because I feel he is only 7 years old and how

is his brain going to develop. How is he going to learn the right way

to handle a situation. Plus, I take antidepressants (clinical

depression) and so did my mom (bi-polar)and I am worried he is going

to go down the same path.

What should I do?? All my friends and co-workers (I happen to work at

's school) say meds. The doctors will probably say meds. My

family says meds. My dh and I don't feel we should but honestly, we

believe HE needs it.

**Cori

--Proud parent of a child with Asperger Syndrome.

> > Hi,

> >

> > I would like to know what if any, meds have worked for your

Aspie.

> My

> > son is 7 years old and he is always on and my husband finally

> agreed

> > that we should put him on something light.

> >

> > Any ideas before I talk to his doctor?

> >

> > **Cori

> > Proud Parent of a Child with Asperger's

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

> Search.

> >

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

[Guest guest]

My son (now 11) was diagnosed w/ ADHD in Kindergarten (Asperger's in 6th grade.) I was so concerned about giving him medication at the age of 5. The only way I agreed was to also enroll him in private behavioral therapy too. Everything I read said the medication doesn't work by itself, you have to have behavior modification therapy (or something similar) too. I felt more confident about the meds (or at least less concerned!) by doing this and I think it helped a lot. Dylan has been on all types of meds through the years for ADHD. He started w/ Adderall, then Stratera, then Ritalin, and now the patch (Concerta?) I've drawn a blank all of a sudden. It's in a yellow

package w/ blue writing. I've also always given him the very lowest amount possible. Dylan often complains of his stomach hurting so I think the ADHD meds makes it worse.

My son is also extremely smart but socially inept, although the older that he gets it's getting better. He just matures at a much slower rate than his peers. At least w/ kids anyway. With adults, he's pretty great. He's such a sweet kid though. Real people pleaser.

Merry Christmas!

Re: ( ) Meds

, it sounds like you are describing my son. is almost 7 1/2 and has Asperger Syndrome. I personally can handle the AS part but the ADHD part is the part that... is always ont he go, can not sit still and talks and talks and talks. He is extremely smart, socially inept. I sat down with him the other day and asked him what it feels like when his is bouncey. He said it is like a train going really fast and his body and mind go with it. We have tried the GFCF diet but we couldn't do it long because he wouldn't eat. He didn't like the way it smelled or tasted, so he wouldn't eat and at school he traded with other kids. Now we have him on vitamins. Fish oil, magnesium, multi vit with extra B6. I see the magnesium does calm him a bit but we need something stronger. I have a hard time with this because I feel he is only 7 years old and how is his brain going to develop. How is he going

to learn the right way to handle a situation. Plus, I take antidepressants (clinical depression) and so did my mom (bi-polar)and I am worried he is going to go down the same path.What should I do?? All my friends and co-workers (I happen to work at 's school) say meds. The doctors will probably say meds. My family says meds. My dh and I don't feel we should but honestly, we believe HE needs it. **Cori--Proud parent of a child with Asperger Syndrome.> > Hi,> > > > I would like to know what if any, meds have worked for your Aspie. > My > > son is 7 years old and he is always on and my

husband finally > agreed > > that we should put him on something light. > > > > Any ideas before I talk to his doctor?> > > > **Cori> > Proud Parent of a Child with Asperger's> > > > > > > > > > > > > > ------------ --------- --------- ---> > Looking for last minute shopping deals? Find them fast with > Search.> >> > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.>

[Guest guest]

I can't see Jonah having ADHD, my nine year old has that to the

extreme. I mean I really don't like to be around her unless she is

on medicine, but then she seems so down on the medicine. it is

really only useful at school because her brain is being used. When

she isn't on her meds she literally climbs the walls like

spiderman. Hops around all the time and seems so easy to react and

throw things and run upstairs if she doesn't get what she wants.

Jonah doesn't do any of that. I don't even think he has the ADD

without hyperactivity. His attention was always good.

I honestly don't think that type of med would be good for him. I

wish there was something that would help his brain be more

consistent with his school abilities. that would be so perfect.

The fact that all of his teachers know that he is either on or off

that day proves that he needs that. I don't really think there is

anything like that you know. Maybe that is just the Asperger's in

him. I love him dearly and am very afraid for his school future.

He is so happy sometimes, he is really sweet and silly with his baby

sister. He is singing with her right now. He hates the weekends if

we are not doing something exciting (usually costs money), He loves

the routine of school/camp.

Well i gotta go do the xmas thing at my moms. i do not like

holidays much. i am just telling myself it is just another day.

Another thing is i need to realize that some of the things that my

son does, other not Asperger child do too.

Thanks for being there group!

Merry Xmas

> > > Hi,

> > >

> > > I would like to know what if any, meds have worked for your

> Aspie.

> > My

> > > son is 7 years old and he is always on and my husband finally

> > agreed

> > > that we should put him on something light.

> > >

> > > Any ideas before I talk to his doctor?

> > >

> > > **Cori

> > > Proud Parent of a Child with Asperger's

> > >

> > >

> > >

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > Looking for last minute shopping deals? Find them fast with

> > Search.

> > >

> >

> >

> >

> >

> >

> >

> > ------------ --------- --------- ---

> > Looking for last minute shopping deals? Find them fast with

> Search.

> >

>

[Guest guest]

It's a Daytrona patch, not Concerta. I like that he can put it on in the morning and take it off in the afternoon when I pick him up. He doesn't have to go to the nurse to take meds at school and he likes the privacy.

Also, Dylan only takes this med when he's at school. He never wears it on the weekends, holidays, summer, etc... Would it help me a little more to have him on it? Maybe when he was younger. But I used the time in his "normal" state to help him learn the right way to behave. I'm so happy we did this too b/c I know meds for ADD/ADHD can stunt growth and I hope we prevented that from using it as little as possible.

Good luck and Merry Christmas to ALL! Dylan just downloaded Wii points and he's having a blast in there. God Bless...

Re: ( ) Meds

, it sounds like you are describing my son. is almost 7 1/2 and has Asperger Syndrome. I personally can handle the AS part but the ADHD part is the part that... is always ont he go, can not sit still and talks and talks and talks. He is extremely smart, socially inept. I sat down with him the other day and asked him what it feels like when his is bouncey. He said it is like a train going really fast and his body and mind go with it. We have tried the GFCF diet but we couldn't do it long because he wouldn't eat. He didn't like the way it smelled or tasted, so he wouldn't eat and at school he traded with other kids. Now we have him on vitamins. Fish oil, magnesium, multi vit with extra B6. I see the magnesium does calm him a bit but we need something stronger. I have a hard time with this because I feel he is only 7 years old and how is his brain going to develop. How is he going

to learn the right way to handle a situation. Plus, I take antidepressants (clinical depression) and so did my mom (bi-polar)and I am worried he is going to go down the same path.What should I do?? All my friends and co-workers (I happen to work at 's school) say meds. The doctors will probably say meds. My family says meds. My dh and I don't feel we should but honestly, we believe HE needs it. **Cori--Proud parent of a child with Asperger Syndrome.> > Hi,> > > > I would like to know what if any, meds have worked for your Aspie. > My > > son is 7 years old and he is always on and my

husband finally > agreed > > that we should put him on something light. > > > > Any ideas before I talk to his doctor?> > > > **Cori> > Proud Parent of a Child with Asperger's> > > > > > > > > > > > > > ------------ --------- --------- ---> > Looking for last minute shopping deals? Find them fast with > Search.> >> > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.>

[Guest guest]

This is how I resolved my concerns about meds for my kids. (We have depression,

bipolar,

OCD, AD/HD, Tourette's, and Asperger's in play with various kids and in the

extended

family.) Without meds, my kids were struggling and failing every single day.

Half the time

they weren't capable of learning how to manage themselves because their issues

were so

much in the way. I decided that we would *try* the meds and see if they help.

If they

don't, or there are undesirable side effects, we stop the meds and try something

else. This

is especially easy with ADHD meds. You know almost right away whether they're

working,

and they clear the system so quickly, that, for most of them, by the next day

(or sooner)

they're gone. When they work right, your kid will tell *you* what a great thing

they are.

And they will give the child the ability to start learning behavioral ways to

make the

situation better too.

Another thing that factored into my thinking was that the kids' brain chemistry

*isn't*

normal. What I'm trying to do is normalize it by adding meds that bring things

into

balance. We and our psychiatrist hope that by normalizing the child's brain

chemistry,

we're actually reducing the chance that some of these problems will become

critical when

the kids are older. For example, I know that the more bipolar cycles you go

through, the

worse they tend to become. Perhaps by decreasing the cycling, we're

ameliorating the

effects of the disorder. Also, there's a major brain reorganization that takes

place at

puberty. Many of these conditions get worse (some get better). Hopefully, with

more

normal brain chemistry in place, that reorganization will go more normally and

things

won't get worse. In the case of ADHD, the latest research shows that some kids

outgrow it

right about then and don't need ADHD meds anymore. I can't say that for a fact

because,

in a way, my kids are guinea pigs for this whole approach. The meds simply

haven't been

around long enough, nor has the pediatric research been done, to support my

hypothesis

one way or the other. But it makes sense. And I *know* that, left

uncontrolled, these

conditions are *very* bad for my children and likely to become worse, so I'm

doing what I

can to control them.

Having said that, I completely understand your concerns. I, too, wonder whether

my

decisions will have long-term drawbacks. I sincerely hope not, but I don't see

any other

effective way of dealing with things. Meds give my kids a shot at a reasonably

happy

childhood--and maybe a better adulthood too.

And one more thing. Some of these conditions are chronic the same way diabetes

is. You

need the meds for the rest of your life in order to function normally. If

you're born to the

disorder, that's just a fact of your life. Nobody wants their child to be

bipolar or diabetic

or have ADHD, but some kids/adults do have those problems, and, as their

parents, it's

our job to do our best to meet their needs.

There will always be people who disagree with whatever you decide to do. There

just isn't

any way to do (or not do) *anything* that won't have some of the people you know

thinking that you're doing the absolute wrong thing. It's a pain to always have

other

people second guessing you, but there it is.

And remember, you're doing all of this with competent medical oversight. Some

of the

meds my kids take are a lot 'scarier' than Ritalin or Adderall, but our

psychiatrist has really

educated me about the pharmacology, so I'm not just trusting her--I'm an active

participant in the decision making process. That's the way it should be.

Good luck with your decision.

Sue C. 49yo Bipolar II

17yo, neurotypical

Ian 16yo, AS, ADD, bipolar, Tourette's--IEP for Autism

Liz 15yo, ADHD, bipolar, OCD

12yo, bipolar, ADHD, AS--IEP for Emotional Disability

Evan 9yo, bipolar, ADHD--IEP for ED

>

><snip> I see the

> magnesium does calm him a bit but we need something stronger. I have

> a hard time with this because I feel he is only 7 years old and how

> is his brain going to develop. How is he going to learn the right way

> to handle a situation. Plus, I take antidepressants (clinical

> depression) and so did my mom (bi-polar)and I am worried he is going

> to go down the same path.

>

> What should I do?? All my friends and co-workers (I happen to work at

> 's school) say meds. The doctors will probably say meds. My

> family says meds. My dh and I don't feel we should but honestly, we

> believe HE needs it.

>

> **Cori

> --Proud parent of a child with Asperger Syndrome.

[Guest guest]

Just a suggestion for anyone looking for a good med....Abilify has

worked great for my son. It is ordinarily prescribed for bi-polar or

schizophrenia but is recently being tested in Asperger's children. I

called to participate in the study but then decided to ask my son's

therapist and the psychiatrist in his office who prescribes meds. He

said it would be worth a shot and was a great suggestion. I've seen

tremendous improvements but every child is different. My son was

started on a different med that is commonly used for AS (I can't

remember the name) where most children show major improvements on but

my son was much worse on that one...a mini mad man. So I think it

really depends on the child. If anyone here has tried a few different

meds and can't seem to get the right one, Abilify is worth a shot.

> > > Hi,

> > >

> > > I would like to know what if any, meds have worked for your

> Aspie.

> > My

> > > son is 7 years old and he is always on and my husband finally

> > agreed

> > > that we should put him on something light.

> > >

> > > Any ideas before I talk to his doctor?

> > >

> > > **Cori

> > > Proud Parent of a Child with Asperger's

> > >

> > >

> > >

> > >

> > >

> > >

> > > ------------ --------- --------- ---

> > > Looking for last minute shopping deals? Find them fast with

> > Search.

> > >

> >

> >

> >

> >

> >

> >

> > ------------ --------- --------- ---

> > Looking for last minute shopping deals? Find them fast with

> Search.

> >

>