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I was officially dx'ed in June 05 and feel pretty much like you do. I

don't understand why we have to keep taking the meds that didn't work

well enough in the first place which is why the Rheumy had to prescribe

stronger meds... why aren't the " old " meds discontinued??????? Is that

a stupid question? All of these toxic meds are not good. Right?

I've always traveled to my own beat... I respect our medical people but

respect is earned and questions need to be addressed.

Carol

On Oct 18, 2005, at 4:55 PM, jhawkot87 wrote:

> Hello all,

>     I had my 3rd Rheumy visit last week. (diagnosed in July, started

> on

> Mtx, pred. and plaquenil).  I have had to play around with my

> prednisone dosage and can't get it under 15 a day if I want to be able

> to walk.  Still popping Ibu quite a bit also.  Dr. said I'm not

> responding as well to the Mtx so he has now added Enbrel.  In reading

> the info about Enbrel, I noticed it said it has been known to work up

> to 5 years.  So, if I should be fortunate enough to have good results

> with Enbrel, I'm assuming it would only work for a limited time.  Is

> this the case with all the meds?  I'm 41 now, what's going to happen

> by

> the time i hit 50?  It worries me.  For those of you have been

> battling

> this for years, my heart goes out to you.  I've only had RA since July

> and already am quite frustrated and concerned about my outlook in the

> long run.  I feel like I shouldn't complain at all because I know so

> many of you have suffered much worse for a long time.  But I'm already

> tired of it!!!  lol.  Consider this my first whining session.  Any

> input you have about the meds would be appreciated.  I know it varies

> from person to person and I'm trying to stay positive here.  Take

> care,

> all.

>                                   - NC

>

>

>

>

>

>

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:

I was officially dx'ed in June 05 and feel pretty much like you do. I

don't understand why we have to keep taking the meds that didn't work

well enough in the first place which is why the Rheumy had to prescribe

stronger meds... why aren't the " old " meds discontinued??????? Is that

a stupid question? All of these toxic meds are not good. Right?

I've always traveled to my own beat... I respect our medical people but

respect is earned and questions need to be addressed.

Carol

On Oct 18, 2005, at 4:55 PM, jhawkot87 wrote:

> Hello all,

>     I had my 3rd Rheumy visit last week. (diagnosed in July, started

> on

> Mtx, pred. and plaquenil).  I have had to play around with my

> prednisone dosage and can't get it under 15 a day if I want to be able

> to walk.  Still popping Ibu quite a bit also.  Dr. said I'm not

> responding as well to the Mtx so he has now added Enbrel.  In reading

> the info about Enbrel, I noticed it said it has been known to work up

> to 5 years.  So, if I should be fortunate enough to have good results

> with Enbrel, I'm assuming it would only work for a limited time.  Is

> this the case with all the meds?  I'm 41 now, what's going to happen

> by

> the time i hit 50?  It worries me.  For those of you have been

> battling

> this for years, my heart goes out to you.  I've only had RA since July

> and already am quite frustrated and concerned about my outlook in the

> long run.  I feel like I shouldn't complain at all because I know so

> many of you have suffered much worse for a long time.  But I'm already

> tired of it!!!  lol.  Consider this my first whining session.  Any

> input you have about the meds would be appreciated.  I know it varies

> from person to person and I'm trying to stay positive here.  Take

> care,

> all.

>                                   - NC

>

>

>

>

>

>

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  • 6 months later...
Guest guest

Dearest ,

I would also love an answer to that question. Our son is 17 and been on

everything... If a med works it will work for a few weeks... we will see a brand

new person for a short time. Now that he is 17 and seeing this for himself is

is very depressed and feeling hopeless... Sure wish we could find an answer.

The only thing that has worked a bit is Prozac. I'm now trying to figure out

how long he has been on that medication. I'm having to access medical records

from Children's Hospital. The pharmacy I used to use tracked it back to

1998....

In my opinion way to long to be on a drug... the story

continues.....................

Blessings,

Mimi

<etay58@...> wrote:

I did not find any med combination helpful to my son. He has been on almost

every cocktail and skipped his way through the pharmacy in the last 6 years,

and nothing really helped with the moods or the meltdowns.

Right now he is med free since the end of January; I like the little boy

that he is under all that medication; however I really do not see any

difference in his behavior or his ability to handle the world at large. I

know that if his schedule has any changes he can meltdown, (same as before).

The staff at the RTF says that the all the same things that were happening

at home are still happening there with or without meds.

Why do they work on same children and not all?

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Guest guest

Dearest ,

I would also love an answer to that question. Our son is 17 and been on

everything... If a med works it will work for a few weeks... we will see a brand

new person for a short time. Now that he is 17 and seeing this for himself is

is very depressed and feeling hopeless... Sure wish we could find an answer.

The only thing that has worked a bit is Prozac. I'm now trying to figure out

how long he has been on that medication. I'm having to access medical records

from Children's Hospital. The pharmacy I used to use tracked it back to

1998....

In my opinion way to long to be on a drug... the story

continues.....................

Blessings,

Mimi

<etay58@...> wrote:

I did not find any med combination helpful to my son. He has been on almost

every cocktail and skipped his way through the pharmacy in the last 6 years,

and nothing really helped with the moods or the meltdowns.

Right now he is med free since the end of January; I like the little boy

that he is under all that medication; however I really do not see any

difference in his behavior or his ability to handle the world at large. I

know that if his schedule has any changes he can meltdown, (same as before).

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  • 1 month later...
Guest guest

Kathe,

Thank you for the information! I am going to see a Rheumy in 3 weeks, and am

very anxious. I just want to get all the information and begin treatment. I

suppose there could be a chance I don't have RA, but my current joint pain would

suggest otherwise.

I know what you mean about the future. My great-grandmother had RA and seeing

what it does is not encouraging. But, like you said, with the meds being more

progressive and the different combos available, we have hope!

I am glad to hear you don't have severe joint damage. I am encouraged by your

story as well. Take care!

Kristi

__________________________________________________

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  • 3 months later...

My daughter doesn't take meds due to a very low seizure threshold.

But my youngest son takes risperdal for his fears/anxieties which

are HUGE without the med, even with the med he has a long list of

fears/anxieties. The med does help tho ..at least he will take a

bath now. lol

(asperger as well)

>

> I'm curious as to what sort of meds other children with AS are on.

My

> Trevor isn't taking any. I've done a bucketload of research and

> reading and have even talked in depth with his therapist and it

was my

> understanding that there really aren't meds created for AS. Is

that

> wrong or are the meds other kiddos are on treating something I'm

> missing?

> Just curious. At this point, we've got Trevor in therapy (to learn

> some assertiveness and to learn how to channel his frustrations

and

> self-monitor a little more) but that's about it. He's also been

> involved in every sport known to man which seems to be helping his

> self-esteem and social skills, thus my reasoning behind not having

him

> involved in a social skills group.

> Thanks!

> Nikki

>

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They don't treat AS but treat the comorbid diagnosis, of which most

AS kids have. My son has OCD, for example, and if this symptoms

worsen they can give him a medicine for that. As it is, he gets

behavioral therapy.

We are using L-tryptophan and sublingual Vitamin B to lower his

stress. Right now, this is really working for us, and does not seem

to have the serious side effects I have seen in other meds. That

does not mean I won't use them, but right now we don't have to in

order for him to function pretty good.

>

> I'm curious as to what sort of meds other children with AS are on.

My

> Trevor isn't taking any. I've done a bucketload of research and

> reading and have even talked in depth with his therapist and it

was my

> understanding that there really aren't meds created for AS. Is

that

> wrong or are the meds other kiddos are on treating something I'm

> missing?

> Just curious. At this point, we've got Trevor in therapy (to learn

> some assertiveness and to learn how to channel his frustrations

and

> self-monitor a little more) but that's about it. He's also been

> involved in every sport known to man which seems to be helping his

> self-esteem and social skills, thus my reasoning behind not having

him

> involved in a social skills group.

> Thanks!

> Nikki

>

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> >

> > I'm curious as to what sort of meds other children with AS are

on.

> My

> > Trevor isn't taking any. I've done a bucketload of research and

> > reading and have even talked in depth with his therapist and it

> was my

> > understanding that there really aren't meds created for AS. Is

> that

> > wrong or are the meds other kiddos are on treating something I'm

> > missing?

> > Just curious. At this point, we've got Trevor in therapy (to

learn

> > some assertiveness and to learn how to channel his frustrations

> and

> > self-monitor a little more) but that's about it. He's also been

> > involved in every sport known to man which seems to be helping

his

> > self-esteem and social skills, thus my reasoning behind not

having

> him

> > involved in a social skills group.

> > Thanks!

> > Nikki

> >

>

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My son's pdoc recommended prozac, he already takes ripserdal but I

didn't want to start any meds I wasn't sure would help or harm. It's

working for your son?

> > >

> > > I'm curious as to what sort of meds other children with AS are

> on.

> > My

> > > Trevor isn't taking any. I've done a bucketload of research

and

> > > reading and have even talked in depth with his therapist and

it

> > was my

> > > understanding that there really aren't meds created for AS. Is

> > that

> > > wrong or are the meds other kiddos are on treating something

I'm

> > > missing?

> > > Just curious. At this point, we've got Trevor in therapy (to

> learn

> > > some assertiveness and to learn how to channel his

frustrations

> > and

> > > self-monitor a little more) but that's about it. He's also

been

> > > involved in every sport known to man which seems to be helping

> his

> > > self-esteem and social skills, thus my reasoning behind not

> having

> > him

> > > involved in a social skills group.

> > > Thanks!

> > > Nikki

> > >

> >

>

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Hi NIkki, I need sleep but wanted to add my input.

My boys aren't on any at this time. But I agree, there is nothing

for A.S. It is more the other things, like anxiety, depression,

hyperactivity, whatever a child may exhibit.

If your son is working on handeling his emotions, ! Some times

that is what our kids are medicated for, just because we can't stand

to see them suffer.

Anxiety can 'shred' you apart on the inside if you suffer greatly

from it. that is why I could consider meds for my youngest anyways.

Haven't yet, but working on other strategies first.

*smiles*

B

>

> I'm curious as to what sort of meds other children with AS are on.

My

> Trevor isn't taking any. I've done a bucketload of research and

> reading and have even talked in depth with his therapist and it

was my

> understanding that there really aren't meds created for AS. Is

that

> wrong or are the meds other kiddos are on treating something I'm

> missing?

> Just curious. At this point, we've got Trevor in therapy (to learn

> some assertiveness and to learn how to channel his frustrations

and

> self-monitor a little more) but that's about it. He's also been

> involved in every sport known to man which seems to be helping his

> self-esteem and social skills, thus my reasoning behind not having

him

> involved in a social skills group.

> Thanks!

> Nikki

>

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Thanks so much to everyone who offered in thoughts and situations!

Trevor has some anxiety (we're still trying to gauge to what degree it

affects him) and some depression but to this point, his therapist is

holding off on meds for either. Just wanted to make sure I wasn't

misinformed on the nature of meds and AS.

Thanks!

Nikki

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It may simply be the dosage that needs adjusted or it might not work

for your child. I would recommend you go back to the dr. and discuss

your concerns. Our ds takes 60 mg strattera and 10 mg prozac daily and

it seems to be doing wonders for him. But again, this is highly

individual and what works for one doesn't work for another. You've got

to find the lowest dosage that produces the best results for your

child. You also have to remember that behaviors at school can also

come from skill deficits not just from the comorbid conditions that

are common to our children. It sometimes takes many trials to find

what works the best for your child. I wish you the best of luck.

>

> My son has been taking strattara for about a month now. It makes him

> sleep well, but does not seem to help him at school. Any feed back

on

> this drug would be much appreciated.

>

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I really feel.. The depression and anxiety is a MAJOR issue with our kids.

I have used meds with my son.. Some. Work great others.. Not so much

I am also dabbling in Yoga, breathing exercises, and some massage..

Therapeutic massage..

You might want to add that to your list as well.. As any medical information

you might get!

I also use a paraffin wax kit. Kind of like a crock pot.. With wax and do

hand dipping.. Its great for the cuticles and when you do it with your

son/daughter it is a great opportunity to have some discussion while warming

the heart, hands and soul with some quiet time.

Take care to all

-- ( ) Re: meds

Thanks so much to everyone who offered in thoughts and situations!

Trevor has some anxiety (we're still trying to gauge to what degree it

affects him) and some depression but to this point, his therapist is

holding off on meds for either. Just wanted to make sure I wasn't

misinformed on the nature of meds and AS.

Thanks!

Nikki

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They aren't called " autism " medications, but they can treat specific

symptoms or co-morbid diagnoses. (Personally, I don't say my son is ADHD

or OCD or anything, I think enough of that is covered in the ASD label,

but you'll see often people using lots of other labels, too...just a

personal thing or sometimes doctors insist on it.)

Anyway, lots of things can be helped with certain meds. For our son, we

chose clonidine. It's not a psychotropic drug, and was initially

designed to help with blood pressure but was known eventually to help

minimize aggression, self-injurious behavior and tics. As a bonus, it

helps our son sleep. He's on a very low dosage and if nothing else, just

the sleep helps. He will not sleep at all without it. He used to fight

to go to sleep, and he'll wake up 4-8x per night, fully coherent. Other

nights, he just sleepwalks, talks in his sleep, grinds teeth constantly,

moves, etc., like he's re-playing the day in his head and re-doing all

the conversations he had. The meds make a difference, though we just had

to increase the dosage.

We've discussed risperdal, and who knows, at some point we may need to

go that route but we're still trying behavioral therapy now. He's so

little, for us we don't want to try anything stronger at the moment, but

we'll see as he gets older. One of his biggest issues is his anger --

horrible tantrums in which he hurts himself and people close to him.

ms_nikki24 wrote:

>

> I'm curious as to what sort of meds other children with AS are on. My

> Trevor isn't taking any. I've done a bucketload of research and

> reading and have even talked in depth with his therapist and it was my

> understanding that there really aren't meds created for AS. Is that

> wrong or are the meds other kiddos are on treating something I'm

> missing?

> Just curious. At this point, we've got Trevor in therapy (to learn

> some assertiveness and to learn how to channel his frustrations and

> self-monitor a little more) but that's about it. He's also been

> involved in every sport known to man which seems to be helping his

> self-esteem and social skills, thus my reasoning behind not having him

> involved in a social skills group.

> Thanks!

> Nikki

>

>

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My son is 13 and has been on meds since 1st grade. They treat the symptoms

of AS and as many AS have different symptoms, many are on different meds.

We could not even start to work with my son in behavioral therapy until he

had the meds. He would have a meltdown and his brain would seem to shut off

- he couldn't even think of the things we were trying to teach him to cope.

I would like to see him on less meds, and hope that after puberty he will be

able to wean off, but I can't see that happening soon, as I don't think he

could function. Even with the meds he is on, he is not in mainstream

school. He is on Buspar, stratera (he just started that about a year ago,

as he started into puberty I think) and risperdal - low dose. He can't

think if he starts to get frustrated w/o the risperdal - we have tried a

couple others instead of the risperdal, but it just doesn't work.

Kathy K

toozie@...

_____

From:

[mailto: ] On Behalf Of ms_nikki24

Sent: Saturday, September 23, 2006 7:49 PM

Subject: ( ) Meds

I'm curious as to what sort of meds other children with AS are on. My

Trevor isn't taking any. I've done a bucketload of research and

reading and have even talked in depth with his therapist and it was my

understanding that there really aren't meds created for AS. Is that

wrong or are the meds other kiddos are on treating something I'm

missing?

Just curious. At this point, we've got Trevor in therapy (to learn

some assertiveness and to learn how to channel his frustrations and

self-monitor a little more) but that's about it. He's also been

involved in every sport known to man which seems to be helping his

self-esteem and social skills, thus my reasoning behind not having him

involved in a social skills group.

Thanks!

Nikki

_____

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  • 1 month later...

, I don't understand the meds your doctor has prescribed, i.e., I

don't understand why you should fill all the prescriptions unless you

need them. Why bring them with you the day of the procedure? Huh? I

think she is just trying to cover every possibility, because you leave

her care, and go home, and she wants to be sure you have available what

you might need. I think you need to straighten this out with her

office. It's important for you to take the ones she *wants* you to take,

but not necessarily the ones she's offering for as needed use. I think

she *wants* you to take the Celebrex for anti-inflammatory effects, and

Keflex because all you need is a post-op infection! If someone who

cares for you during surgery has a staph bacteria in his or her nose,

you can end up with a staph wound infection, and as a nurse I've cared

for those! Nasty! And lots of extra scarring when a wound gets

infected. And even stronger antibiotics than the one she is giving you

to take prophylactically. So, find out from your doctor what is the

safest course for you to follow. No one else can tell you better what

you should do!

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hi , Yes, I don't plan on taking them all - the idea is that I have what I might need on hand, but of course they don't think of cost, lol. I got generics of everything but celebrex, so the total for all the meds minus celebrex was 37 bucks. I called them about celebrex and said there is no way I could pay $300 for those, and said I didn't want or need 60 pills! So, they called in a prescription for 7 pills, conceding that is all I really need! I am cyncial, but I figure these docs all have arrangements with the drug companies. I certainly will take the antibiotics and the celebrex,but we'll see about the rest. I am so encouraged to hear that typically this operation has much less pain that the first one! Crocker <dwcrn@...> wrote: , I don't understand the meds your doctor has prescribed, i.e., I don't understand why you should fill all the prescriptions unless you need them. Why bring them with you the day of the procedure? Huh? I think she is just trying to cover every possibility, because you leave her care, and go home, and she wants to be sure you have available what you might need. I think you need to straighten this out with her office. It's important for you to take the ones she *wants* you to take, but not necessarily the ones she's offering for as needed use. I think she *wants* you

to take the Celebrex for anti-inflammatory effects, and Keflex because all you need is a post-op infection! If someone who cares for you during surgery has a staph bacteria in his or her nose, you can end up with a staph wound infection, and as a nurse I've cared for those! Nasty! And lots of extra scarring when a wound gets infected. And even stronger antibiotics than the one she is giving you to take prophylactically. So, find out from your doctor what is the safest course for you to follow. No one else can tell you better what you should do!

Everyone is raving about the all-new beta.

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One of our silent sisters is married to a former big pharma exec . . . She tells me that their announced goal is to have everyone on drugs from birth to grave! Horrors!Emeraldkittee <emeraldkittee@...> wrote: hi , Yes, I don't plan on taking them all - the idea is that I have what I might need on hand, but of course they don't think of cost, lol. I got generics of everything but celebrex, so the total for all the meds minus celebrex was 37 bucks. I called them about

celebrex and said there is no way I could pay $300 for those, and said I didn't want or need 60 pills! So, they called in a prescription for 7 pills, conceding that is all I really need! I am cyncial, but I figure these docs all have arrangements with the drug companies. I certainly will take the antibiotics and the celebrex,but we'll see about the rest. I am so encouraged to hear that typically this operation has much less pain that the first one! Crocker <dwcrncharter (DOT) net> wrote: , I don't understand the meds your doctor has prescribed, i.e., I don't understand why you should fill all the prescriptions unless you need them. Why bring them with you the day of the procedure? Huh? I think she is just trying

to cover every possibility, because you leave her care, and go home, and she wants to be sure you have available what you might need. I think you need to straighten this out with her office. It's important for you to take the ones she *wants* you to take, but not necessarily the ones she's offering for as needed use. I think she *wants* you to take the Celebrex for anti-inflammatory effects, and Keflex because all you need is a post-op infection! If someone who cares for you during surgery has a staph bacteria in his or her nose, you can end up with a staph wound infection, and as a nurse I've cared for those! Nasty! And lots of extra scarring when a wound gets infected. And even stronger antibiotics than the one she is giving you to take prophylactically. So, find out from your doctor what is the safest course for you to follow. No one else can tell you better what you should do! Everyone is raving about the all-new beta.

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> , I don't understand the meds your doctor has

prescribed, i.e., I

> don't understand why you should fill all the prescriptions unless you

> need them. Why bring them with you the day of the procedure? Huh? I

> think she is just trying to cover every possibility, because you leave

> her care, and go home, and she wants to be sure you have available what

> you might need. I think you need to straighten this out with her

> office. It's important for you to take the ones she *wants* you to

take,

> but not necessarily the ones she's offering for as needed use. I think

> she *wants* you to take the Celebrex for anti-inflammatory effects, and

> Keflex because all you need is a post-op infection! If someone who

> cares for you during surgery has a staph bacteria in his or her nose,

> you can end up with a staph wound infection, and as a nurse I've cared

> for those! Nasty! And lots of extra scarring when a wound gets

> infected. And even stronger antibiotics than the one she is giving you

> to take prophylactically. So, find out from your doctor what is the

> safest course for you to follow. No one else can tell you better what

> you should do!

>

>

>

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

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Rogene, I agree with you about the horrific goal they have. Now, if

I absolutely have to be on medication, the people I check with are

the pharmacists, as they know way more about meds that doctors. Even

my doctor admits that. That's what they study.

Years back I had an allergic reaction to Canesten, for vaginal yeast

infections. Didn't know what my problem was at the time, but I broke

out in lesions and blisters " down there " . Couldn't walk. Very ugly

and painful. Well, I ended up in the hospital for a week. Nobody

could figure out what was wrong with me. STD was ruled out as I had

one partner and symptoms weren't matching. I had several eyes on me,

including student doctors, etc. Just lovely! Hey, everyhody...help

yourself for a peek! LOL

Anyhoo, it subsided after a week. I went home and found that I still

had a yeast infection, so went back to the doc and he prescribed more

Canesten. I looked at the name and a " little voice " told me to go

the the pharmacy and ask my buddy Brad for a look in his book. Well,

guess what?? An allergic reaction to Canesten includes lesions,

blisters, etc. " down there " ! Who knew? In those days, I didn't

check on the side effects BEFORE I took anything. A hard lesson

learned.

I humbly went back to my doc's office, which was next door to the

pharmacy and waited to see him. When I showed him the side effects,

he turned all red and we both laughed and sorta cried together. He

apologized and I said, " well, we both learned something new here

today " .

I'm actually looking at the silver lining of being poisoned by

implants.....now I am forced to seek out natural remedies even more

because of my chemical sensitivity.

Again, praise God for all methods out there, because there was a time

in my life when psychiatric medication saved my life.

Lots of Love & Blessings,

Sunny :)

> , I don't understand the meds your doctor has

prescribed, i.e., I

> don't understand why you should fill all the prescriptions unless

you

> need them. Why bring them with you the day of the procedure? Huh? I

> think she is just trying to cover every possibility, because you

leave

> her care, and go home, and she wants to be sure you have available

what

> you might need. I think you need to straighten this out with her

> office. It's important for you to take the ones she *wants* you to

take,

> but not necessarily the ones she's offering for as needed use. I

think

> she *wants* you to take the Celebrex for anti-inflammatory effects,

and

> Keflex because all you need is a post-op infection! If someone who

> cares for you during surgery has a staph bacteria in his or her

nose,

> you can end up with a staph wound infection, and as a nurse I've

cared

> for those! Nasty! And lots of extra scarring when a wound gets

> infected. And even stronger antibiotics than the one she is giving

you

> to take prophylactically. So, find out from your doctor what is the

> safest course for you to follow. No one else can tell you better

what

> you should do!

>

>

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

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Sunny:

> Years back I had an allergic reaction to Canesten, for vaginal yeast

> infections. Didn't know what my problem was at the time>snip<

You gave me a real chuckle, Sunny, with your description of all the eyes

on you 'down there!' As a nurse I'm very familiar with doctors'

'rounds' where they go in a group to see patients, with the 'attending'

physicians teaching the students! I used to feel so embarrassed for the

poor patients! :-[

Sunny:

> Again, praise God for all methods out there, because there was a time

> in my life when psychiatric medication saved my life.

What a woman! You've really had some rough patches, haven't you,

sweetie?! Bless your heart.

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Thank you Sunny so much for sharing your experiences with us ...

and for all the love and support you bring to this wonderful group.

Ilena

> > > , I don't understand the meds your doctor has

> >prescribed, i.e., I

> > > don't understand why you should fill all the prescriptions unless

> >you

> > > need them. Why bring them with you the day of the procedure? Huh? I

> > > think she is just trying to cover every possibility, because you

> >leave

> > > her care, and go home, and she wants to be sure you have available

> >what

> > > you might need. I think you need to straighten this out with her

> > > office. It's important for you to take the ones she *wants* you to

> >take,

> > > but not necessarily the ones she's offering for as needed use. I

> >think

> > > she *wants* you to take the Celebrex for anti-inflammatory effects,

> >and

> > > Keflex because all you need is a post-op infection! If someone who

> > > cares for you during surgery has a staph bacteria in his or her

> >nose,

> > > you can end up with a staph wound infection, and as a nurse I've

> >cared

> > > for those! Nasty! And lots of extra scarring when a wound gets

> > > infected. And even stronger antibiotics than the one she is giving

> >you

> > > to take prophylactically. So, find out from your doctor what is the

> > > safest course for you to follow. No one else can tell you better

> >what

> > > you should do!

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Everyone is raving about the all-new beta.

> > >

> >

> >

>

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Sunny,

All I can say is Ouch.

Lynda

At 10:13 PM 11/14/2006, you wrote:

>Rogene, I agree with you about the horrific goal they have. Now, if

>I absolutely have to be on medication, the people I check with are

>the pharmacists, as they know way more about meds that doctors. Even

>my doctor admits that. That's what they study.

>

>Years back I had an allergic reaction to Canesten, for vaginal yeast

>infections. Didn't know what my problem was at the time, but I broke

>out in lesions and blisters " down there " . Couldn't walk. Very ugly

>and painful. Well, I ended up in the hospital for a week. Nobody

>could figure out what was wrong with me. STD was ruled out as I had

>one partner and symptoms weren't matching. I had several eyes on me,

>including student doctors, etc. Just lovely! Hey, everyhody...help

>yourself for a peek! LOL

>

>Anyhoo, it subsided after a week. I went home and found that I still

>had a yeast infection, so went back to the doc and he prescribed more

>Canesten. I looked at the name and a " little voice " told me to go

>the the pharmacy and ask my buddy Brad for a look in his book. Well,

>guess what?? An allergic reaction to Canesten includes lesions,

>blisters, etc. " down there " ! Who knew? In those days, I didn't

>check on the side effects BEFORE I took anything. A hard lesson

>learned.

>

>I humbly went back to my doc's office, which was next door to the

>pharmacy and waited to see him. When I showed him the side effects,

>he turned all red and we both laughed and sorta cried together. He

>apologized and I said, " well, we both learned something new here

>today " .

>

>I'm actually looking at the silver lining of being poisoned by

>implants.....now I am forced to seek out natural remedies even more

>because of my chemical sensitivity.

>

>Again, praise God for all methods out there, because there was a time

>in my life when psychiatric medication saved my life.

>

>Lots of Love & Blessings,

>

>Sunny :)

>

>

> > , I don't understand the meds your doctor has

>prescribed, i.e., I

> > don't understand why you should fill all the prescriptions unless

>you

> > need them. Why bring them with you the day of the procedure? Huh? I

> > think she is just trying to cover every possibility, because you

>leave

> > her care, and go home, and she wants to be sure you have available

>what

> > you might need. I think you need to straighten this out with her

> > office. It's important for you to take the ones she *wants* you to

>take,

> > but not necessarily the ones she's offering for as needed use. I

>think

> > she *wants* you to take the Celebrex for anti-inflammatory effects,

>and

> > Keflex because all you need is a post-op infection! If someone who

> > cares for you during surgery has a staph bacteria in his or her

>nose,

> > you can end up with a staph wound infection, and as a nurse I've

>cared

> > for those! Nasty! And lots of extra scarring when a wound gets

> > infected. And even stronger antibiotics than the one she is giving

>you

> > to take prophylactically. So, find out from your doctor what is the

> > safest course for you to follow. No one else can tell you better

>what

> > you should do!

> >

> >

> >

> >

> >

> > ---------------------------------

> > Everyone is raving about the all-new beta.

> >

>

>

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, I'm glad you got a chuckle out of my story. Being a nurse,

you've probably seen it all!

Humor is so important in my recovery and I'm glad to cheer someone

else up. God bless you, too.

Love ya,

Sunny :)

>

> Sunny:

>

> > Years back I had an allergic reaction to Canesten, for vaginal

yeast

> > infections. Didn't know what my problem was at the time>snip<

>

> You gave me a real chuckle, Sunny, with your description of all the

eyes

> on you 'down there!' As a nurse I'm very familiar with doctors'

> 'rounds' where they go in a group to see patients, with

the 'attending'

> physicians teaching the students! I used to feel so embarrassed

for the

> poor patients! :-[

>

> Sunny:

>

> > Again, praise God for all methods out there, because there was a

time

> > in my life when psychiatric medication saved my life.

>

> What a woman! You've really had some rough patches, haven't you,

> sweetie?! Bless your heart.

>

>

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  • 1 month later...

Hi Everyone,

I know not many will agree with our choice ... but I wondered if any of you

had this happen to then?

We pulled my son off his medication for a week to see if he would eat. He

was so flat (not caring about anyone) and losing weight. By day two he was

happy and eating tons. OCD and a little more Stemy...BUT happy. We noticed

more interaction and overall improvement. I am using enzymes and Omega 3.

Today day 6, although still happy and eating he had a lot of melt downs. So we

thought OK the medication is out of his system. It has only been a week and

we just wanted him to eat. Now I am having trouble putting him back on even

with the melt downs. His ped. does not want him back on and wants me to stop

everything and go to an OCD doc. I am lost.

Any thoughts would be great.

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