hair loss

[Guest guest]

A topic I can certainly relate to since I started losing my hair

pretty early on in my life. I've noticed it increasing lately and had

hoped that being 59 most of my hair loss was behind me, but guess not.

Being a man in today's world makes it easier for us to come to

acceptance with hair loss but must admit that I do suffer from vanity

as well. JUst another thing I guess that we all will learn to accept

as part of this disease, but one thing I've learned is as long as you

maintain a smile and a positive attitude, most people won't even

notice.

Hang in there all. I'm praying that on this day we all have a

painfree day. Last night was my MTX dose so just looking to survive

the day and recharge my batteries for the week. Last week was a real

bummer. It can only get better.

God Bless.

Bob

>

> a,

> Thanks for the info on Nioxin. I just ordered some and was able to

> find a discount code for 5%.

> I used to love my hair. I would like to enjoy it again!

> Shirley

>

>

[Guest guest]

Bob,

I ceratinly hope this week is better for you.

Shirley

> >

> > a,

> > Thanks for the info on Nioxin. I just ordered some and was able

to

> > find a discount code for 5%.

> > I used to love my hair. I would like to enjoy it again!

> > Shirley

> >

> >

>

[Guest guest]

Thanks Shirley - After failing at the attempt to wean back to 15MG and

having the Rheumy put me back up to 20MG as for now is at least back

under control. This week we find out if my liver and kidneys are

cooperating with the MTX and after the 20th, we'll probably be joining

the MTX injectable group. Just hope I can get the Pred. down.

While it's been a blessing for the pain and stiffness, I don't like

what it's doing to the rest of me.

God bless.

Bob

> > >

> > > a,

> > > Thanks for the info on Nioxin. I just ordered some and was able

> to

> > > find a discount code for 5%.

> > > I used to love my hair. I would like to enjoy it again!

> > > Shirley

> > >

> > >

> >

>

[Guest guest]

Hi Bob:

I sure hope you are feeling better today. It is so difficult to

get through a bad pain week. I believe there are better days ahead for

all of us. I have done a lot of thinking regarding my RA., and just

deal with one day at a time. That is all I can manage.

I too am loosing my already thin, baby fine hair. I wear it

extremely short, and get it cut every 4 weeks. I hope I don't go bald.

Right now my RA is quiet, and I am pain free. I thank God everyday

for that, as my last flare was horrible, and my feet were so swollen and

painful, causing me to have that terrible fall.

I have read all your posts, and know you had a very bad week last

week. I hope that is all behind you now, and that you feel better each

day. I too hate the high doses of Pred., but it does work its magic on

me. I guess the weight gain is a small price to pay while on Pred. I

hate the extra pounds I have put on.

Wishing you pain free days.

Hugs,

Barbara

>

> A topic I can certainly relate to since I started losing my hair

> pretty early on in my life. I've noticed it increasing lately and had

> hoped that being 59 most of my hair loss was behind me, but guess not.

> Being a man in today's world makes it easier for us to come to

> acceptance with hair loss but must admit that I do suffer from vanity

> as well. JUst another thing I guess that we all will learn to accept

> as part of this disease, but one thing I've learned is as long as you

> maintain a smile and a positive attitude, most people won't even

> notice.

> Hang in there all. I'm praying that on this day we all have a

> painfree day. Last night was my MTX dose so just looking to survive

> the day and recharge my batteries for the week. Last week was a real

> bummer. It can only get better.

> God Bless.

> Bob

>

> >

> >

> >

> >

>

[Guest guest]

a and group;

Hello a,,, Yes I am taking P;aquinel... I am going to try that

med cheryl was talking about for hair loss... I will sure try the

nixon for hair cleaning system if I can find it.. thanks so much.

gentle hugs

Clora

******************************************************

> Hi Clora....

>

> My med (arava) is thinning my hair also and its always been so thin

anyway.

> Baby thin. My rheumy told me that plaquinel and artava can cause

alopecia.

> He also said that my body should become used to the med and the

hair should

> grow back. It hasn't and its been about a year. I hate it since

my hair is so

> baby fine already. Now I can see my ears thru it which I could

before, but

> this is more obvious.

>

> I am using Nioxin cleaning system for shampoo and conditioner. It

makes it

> feel a little heavier but it still is thin. Everytime i use my

hair brush, I

> can see lots of the brush. I don't blow dry or curl with a curling

iron.

>

> I take 10 mg of arava everyday. Wish there was something I could

do to make

> it grow.

>

> Hugs..a

>

>

>

[Guest guest]

Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidism ( I

don't remember which).

Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

Addy

Group Co-owner

[Guest guest]

>

> Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidism ( I

don't remember which).

>

> Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

>

> Addy

> Group Co-owner

>

My hair hasn't turned loose but it has turned gray. (grin)

[Guest guest]

Thyroid conditions are not the only thing which causes hair loss. 

My thyroid has been checked often as I am sure everyone's elses has been too.

Something else is going on with me.

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Wednesday, March 11, 2009 7:35:48 AM

Subject: [ ] hair loss

Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidis m ( I

don't remember which).

Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

Addy

Group Co-owner

[Guest guest]

As I said, there are a NUMBER of conditions that can cause hair loss. Please

check with your doctor(s).

Good luck,

Addy

Group co-owner

>

> Thyroid conditions are not the only thing which causes hair loss. 

> My thyroid has been checked often as I am sure everyone's elses has been too.

> Something else is going on with me.

>

>

>

>

> ________________________________

> From: pyle456 <jamcculloch2@...>

>

> Sent: Wednesday, March 11, 2009 7:35:48 AM

> Subject: [ ] hair loss

>

>

> Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidis m ( I

don't remember which).

>

> Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

>

> Addy

> Group Co-owner

>

>

>

>

>

>

>

>

[Guest guest]

Good answer.  I think mine is the same.

 

Sr. Volz, C.R.

From: uca79iii <uca79iii@...>

Subject: [ ] Re: hair loss

Date: Wednesday, March 11, 2009, 6:43 AM

>

> Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidis m ( I

don't remember which).

>

> Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

>

> Addy

> Group Co-owner

>

My hair hasn't turned loose but it has turned gray. (grin)

[Guest guest]

Thank you Addy.  You are totally correct.  Pat

From: uca79iii <uca79iiigmail (DOT) com>

Subject: [ ] Re: hair loss

Date: Wednesday, March 11, 2009, 6:43 AM

>

> Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidis m ( I

don't remember which).

>

> Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

>

> Addy

> Group Co-owner

>

My hair hasn't turned loose but it has turned gray. (grin)

[Guest guest]

I noticed hair loss when I went through menapause - I went to a compounding

pharmacy to get bio-identical hormone replacement. They have some treatments

for men as well. The cream is used on the arm - no pills - within a month my

hair was coming back in - had to let it grow out for a year before I could get

it cut again - and joint pain in my knees disappeared. My skin texture improved

- just a lot of subtle changes. I have since decided that the over the counter

bio-identical creams are just as affective and less expensive - for the ladies

just make sure that the label shows the ingredient progesterone USP - Its

progesterone that is derived from a mexican wild yam - and its a very low dose.

It just balances your own estrogen so that you are not estrogen dominant. Hope

this helps someone - its been a miracle drug for me and so easy - and under $15

or less a month. A jar of the cream usually lasts me three months.

Anne

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Wednesday, March 11, 2009 7:35:48 AM

Subject: [ ] hair loss

Xolair and hair loss came up in discussion 2-3 years ago. Both Pat, a Xolair

specialty nurse who was participating at that time, and myself posted that there

are any number of conditions for which hair loss may be a symptom, the most

prevalent of which is a thyroid condition. At least two of our hair loss people

had their thyroids checked and found out that they had hypo/hyperthyroidis m ( I

don't remember which).

Not even a third of those posting here have reported hair loss. If you are

experiencing hair loss, please notify your prescribing physician and your

regular doc, who may want to test your thyroid.

Addy

Group Co-owner

[Guest guest]

Deb,

It took me a good 1 1/2 years to get my hair back after the gastric bypass.

Then I started noticing it falling out after I started doing my Methotrexate by

injection because the dr. felt I probably wasn't absorbing it enough through the

pill because of my bypass. It worked but my hair loss just started to get

worse. HOWEVER, you are probably right -- I really need to get back on my

vitamin regimen. After a while though, don't you get tired of taking so many

mega vitamins daily. I split them up but they're still hard pills to swallow.

It also doesn't help the situation that my job is stressful (project manager for

govt.) and I'm attending college part-time and the help my kids need with their

school work. I've decided after I take this semesters finals tomorrow (Monday)

I'm taking the summer off. I need a rest and need to get myself back in order

before taking on more classes in the fall. I'm about 70 some credits into my

degreee of 120. It's still going to take me several more years to finish, but

I'll get it done and I'll just have to take a break if things get too stressful

like they have been lately.

I have another questions for you -- Have you had problems with your Vitamin D

being low and had to do on prescription doses? I can tell when I'm low because

my whole body's bones will ache and I can be fine most of the day but then feel

like I'm crashing with a bug and have extreme fatigue.

Thanks.

April

[Guest guest]

Hopefully since you  are off arava and mtx your hair will start to come back.  I

lost a lot of hair on both of those but I am off them now and my hair is coming

back in thick but it was about 3 mo. off the arava before it stopped falling

out.  Arava shot my bp up too.  linda

 

 

From: ldydewinter@... <ldydewinter@...>

Subject: Re: [ ] Re: Orencia question

Date: Wednesday, May 27, 2009, 8:51 AM

I am not taking MTX with the Orencia and wonder if I need to suggest adding it.

It worked for me for awhile. I had to stop Arava (which also worked for a couple

months) because my BP went very high. I'm taking Suladin as an anti inflammatory

twice a day and honestly can't tell it does anything.

I'm just frustrated. Part of it could be weather. I do need a paddle because it

won't stop raining here in beautiful TN! I'm feeling so guilty because I'm using

the hydrocodiene and oxycotin I was given. I use probably 1 to 1/2 daily. I know

this is nowhere near addict level, but I guess it's the Catholic guilt kicking

in.

Thanks for listening to me whine. Oh, and my hair is falling out by the

handfulls. I got my hair cut short and parted to the extreme side to cover the

baldish spot. I go back to the dermatologist next week for hair growth injection

shots again. Hope they work like they did last time.

[ ] Re: Orencia question

I'm in the same boat you are in. Wanna help paddle? Anyway, I've been on Orencia

since late July of last year. After the first 3-4 months it started working less

and less to where, after an infusion, I'd have two good weeks and two crap

weeks. My Dr really doesn't want me to stop the ORencia though. He took me off

methotrexate and put me on Arava. That helped some.

I'm still having trouble though. He's talked about allowing me to change

medications in a couple of months if I/we see no improvement. I confess I can't

remember the name of the medication he mentioned. I started with an 'R' and is

an infusion that is taken one time every 3-4 months or so. Sorry I can't be more

specific. My brain-fog is really really bad lately.

Dalanne

>

> I thought Orencia was working for me, but lately I've had some flaring again.

I am consulting with a orthodontic surgeon next week. I've been on Orencia for

four months. At first after the infusion, I will feel great. Two weeks before

the next infusion, I feel like crap again. Does this mean Orencia isn't working

for me and that I should try Remicade? Or is this as good as it gets. I'm afraid

to try a new Devil in exchange for the 'devil I know. "

>

>

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20:20:00

[Guest guest]

In a message dated 12/24/2009 9:20:32 A.M. Central Standard Time,

lindagb52@... writes:

It takes awhile for Arava to get out of our systems. After I stopped it I

continued to lose hair for a couple of months. Now my hair is coming

back in as thick as ever and it even has a little curl in it-enough that it

fuzzes around my face. I'm glad its coming back fuzz or not. I have always

had fairly thick hair and between MTX & Arava it was getting very thin.

Off of both now and enjoying having enough hair to style again. linda .

i also have thin fine hair and lost hair on Arava. Plus it had a strange

texture to it. My beautician did what she could. After quitting Arava, my

hair has also come back curly. Kind of nice. I've lost a few strands since I

started taking Imuran, but she doesn't notice it much.

But ever since I started getting Remicade, my fingernails peel and break

off. I'd rather have that than hair loss, but really I want to have them all

working right.

dd

[Guest guest]

It takes awhile for Arava to get out of our systems.  After I stopped it I

continued to lose hair for a couple of months.  Now my hair is coming back in

as thick as ever and it even has a little curl in it-enough that it fuzzes

around my face.  I'm glad its coming back fuzz or not.  I have always had

fairly thick hair and between MTX & Arava it was getting very thin.  Off of

both now and enjoying having enough hair to style again.  linda

From: rascalsniche@... <rascalsniche@...>

Subject: [ ] Hair loss

Date: Wednesday, December 23, 2009, 6:27 PM

 

I can understand about the hair loss. I am this close to buying a wig.

My

hair is so thin and baby fine anyway but with the meds and aging....

I stopped the arava and it helped some but I still notice it on the brush.

a